What Is ENS? An Introduction to Empty Nose Syndrome
ฝัง
- เผยแพร่เมื่อ 30 พ.ย. 2018
- ENS: A Matter of Life and Breath
Episode 1: This Is ENS
ENS Victim Advocate Barbara Schmidt provides an overview of #ENS (or #EmptyNoseSyndrome), which is an iatrogenic disorder resulting from sinus and nasal-related surgeries in which the #turbinates are affected. In this episode, viewers will learn about the causes, symptoms and impacts of ENS.
Copyright 2018 Barbara Schmidt
Produced by Barbara Schmidt
Empty Nose Syndrome is a devastating complication caused by a physician with Empty Head Syndrome.
Good one
Not one doctor but all ENT specialists, unfortunately! 🥺
Not a doctor but all ENT specialists unfortunately!
I am not directly concerned but I am a witness.😢
Glad I found out about ENS before trying surgical intervention on my sinuses. I am great full you shared this information.
I just read your article about your experience with ENS. I had never heard about ENS and am inspired by your courage. God bless you and all those who are struggling.
So kind of you!
Thank you, Barbara! You are doing such an incredible job spreading the word. I hope we can find a cure and put an end to ENS.
Randi Siegel how are you
Snaps, this makes a lot of sense now. I got this surgery 21 years ago, when I was 15, and I felt like it didn't help with anything. I always felt like I couldn't breathe, couldn't sleep at night, I lost a lot of my sense of smell. All the symptoms that the person in the video mentioned I had. Depression, anxiety, even nightmares, you name it. Only thing that kind of helped me was doing meditation for several years, cause that is what allowed me to be able to relax a little. People would always tell me why I breathed so hard, and still do sometimes, but after years of living like this. I'm kinda used to it, though it always does feel like I can't breathe. Relaxing, doing yoga, and meditation does help though.
I’m sorry you had to go through this what surgery did you go ? I just had septoplasty and turbinate reduction I pray I don’t feel like this
Thank you for shedding light on this horrible condition.
moonrice555 how are you
@@atulbudakoti4216 Not good.
moonrice555 condition is i'm thinking of suicide what kind you surgery done turbinoplasty septoplasty
moonrice555 your working
moonrice555 acupuncture help you
Thank you for making this. It makes me feel a little bit better that you are trying to spread the word about this!!!
Thank you for doing what you are doing ma’am. I was considering a sinus surgery before watching this video but not anymore.
Nice work Barbara, and thank you for work to spread awareness of ENS. Very much appreciated.
Micah Sklut how are you
Excellent video and information. Thank you Barbara
Just read about Chris Supalla... my god what a horrible experience you all must deal with. So good of you to make these videos to bring awareness and also support to those suffering from this tragic debilitating disorder.
Thanks for your advocacy. Excellent work.
Thank you. I haven't been happy with my results resulting from a turbinate reduction, especially the post nasal drip. I was just starting to look into the new cryotherapy. I won't be doing it, after your educational video. Greatful.
thank you very much for your effort. i hope one day i get relief and live like a normal person
Mark Nasri how are you bro
Thank you for this video Barbra.
Thanks! Today ,ENS is big problem in the world.
God bless you for having strength to do this job! ❤️
Good job ! We need to raise awarness ,more videose please
I didn’t know about this until today. In the late nineties I had turbinate reduction along with Septoplasty. Seems I have dealt with sinus related issues for over two decades and this morning I read about ENS before my ENT appointment. During my appointment the physician tells me that’s what I have. Great! I have it for over twenty years and had no clue! I just though my left side wasn’t done very well and it always my right was decent. Come to find out my turbinates were done too well. Nothing like having wide open passages with the feeling you aren’t breathing very well. It can be miserable at times. Thanks for the video and I share your pain.
Marcus Claudius Marcellus probably most, Marc.
Yes barbara thanx for explaining how horrible ens feels like 24/7 and explaining ens is a risk from turbinate reductions
So what a person do if he had Deviated Septum and difficulty in breathing at some time in a day.
He should always avoid Septoplasty for better fuction and Rinoplasty for Asthetics ? And live with less breathing nose ?
Barbara Schmidt is there any where to reach you???
I hope all the ent doctors knows this
They do but they don't give a f about us
Wow thank you lady and God bless you
Thank you for sharing about this torturous condition. There are so many people still getting this, myself included. It is an evil and unrelenting condition to live with.
Omg i got my surgery a year ago at first i can breathe but now im always stuff up cant sleep. My mouth and nose always dry. I need help. Im a stroke victims. Paralize on my right side and cant even help myself. I seriously thinking how hard it's gonna be that should just end my life. Im reaching for someone to help me before i think about killing myself. Thank you for your kindness and keep on telling the world of this surgery.
Having problems sleeping because my nose closes up on me started 3 years ago. Turbinates enlarged, read up on it, looking for help. Saw an ENT he said deviated septum and swollen turbinates and he could do surgery. He said healing take a couple days, after reading up on nose surgery knew it was not that easy. Have decided spray my nose put a nose strip on it and hope for the best. So sorry for all the people who had surgery and the ENT DRS weren't honest to tell them what might happen. Susan
Thank you for educating us about ENS.
Thank you for talking about this I wish I would have seen this years ago before getting ENS. This surgery should be illegal or we should be told what the risks for this horrifying syndrome truly is.
What surgery did you have ?
@@reefytide. Hello! It doesn't matter because all interventions inside the nose are bad, including cauterizations, radiofrequencies or others! 😢
thank you, my dr burned mine on purpose saying it wouldninprove breathing
did your doctor give you money back or get punished by the medical community somehow?
Barbara,
I live in NJ and I recently had surgery without being fully aware of the possible consequences. Is it possible that you could please let me know who your surgeon was?
Thank you.
Dear Barbara, I wanted to ask you if after having tissues regenerative therapy can you sense the air flow through the nose? Thank you for the video!
8 dislikes come from the butchers who do these surgeries.
Thank you for exposing this information to us, this has helped me not to go ahead and do surgery.
I had a Septoplasty over a year ago. Whilst anaesthetised, and without consent, the surgeon performed a Turbinoplasty to one side of my nose. This has caused ENS on one side. Symptoms and disabilities are exactly the same but at least I have one clear side, producing 50% lung capacity, as the affected side is constantly blocked. Were it not for the other sufferers from this condition posting on here, I would not have an explanation as to what had happened to me, as surgeons in the UK will not admit this condition exists and “cover” for each other’s work. It was only by recently seeking a second opinion that I was told I’d had Turbinate surgery - which explained everything. Don’t believe it when the professionals say it’s rare - it’s not. Out of three people I’ve met who’ve also had nose surgery, two have it.
So what a person do if he had Deviated Septum and difficulty in breathing at some time in a day.
He should always avoid Septoplasty for better fuction and Rinoplasty for Asthetics ? And live with less breathing nose ?
@@jawadahmed.official You really have to make the decision on your own. It’s between you and your doctor. These films are here to show you that there can be serious risks with these operations.
@@jawadahmed.official Its a case by case basis. If a Ent or rhinologist is trying to push for a surgery when your symptoms can be treated naturally, then this is a huge warning sign. The issue with these turbinate surgeries is that they are over routinely performed and should only be done if someones life depended on it, which frankly is not the case. We are conditioned to think " Dr. knows best" when in reality those days have faded with corruption, greed, and quotas needing to be met in the medical system.
Did you sue the surgeon?
@@chickennugget3392 I tried, but the compensation you might achieve proved too little for solicitors to be interested. Although the impact of this surgery is devastating and life shortening.
Barbara thank you. Do you has all your turbinates? ..ENT doctors removed your turbinates??..thank you
I’m a victim of this same situation can you please help me how can I contact your organization
You look like a very brave woman, thank you for speaking on this devastating topic. I've been trying to find out what is wrong with me for over 7 months now... I had some trauma to my inferior turbinates and the next day I had massive breathing problems, felt like I was suffercating constantly. Had massive sweats at night where my face would just be dripping with sweat, could never sleep - went for weeks even months without sleeping through the night, I only managed to get sleep through the day. Had huge panic attacks and blurred vision, horrible brain fog.. Could this be Empty Nose Syndrome? Do you know anyone who had got this condition through trauma to their turbinates?
So what a person do if he had Deviated Septum and difficulty in breathing at some time in a day.
He should always avoid Septoplasty for better fuction and Rinoplasty for Asthetics ? And live with less breathing nose ?
@@jawadahmed.official bro i have also done septoplasty 10 days ago
@@anmolgoel_15 how's you now bro
@The Hope no bro
How did you survive it? Was your case mild to the point you could go on? But others couldn’t do the same do too the severity of their ENS. How did you get better??
How long have you had it for
I had septoplasty only with rhinoplasty. I didn’t experience ENS maybe cause my turbinates were not touched
I’m having a Sphenoidotomy and Ethmoidectomy. My ENT is not doing anything to my turbinates or doing a Septoplasty either. I’m wondering if I’m at risk for this. I’m scared…
Nah fam, this right here is torture
Wow I have been looking for this. I believe I have ENS after getting turbinate surgery. I am seeking for help. Could you point me in how you seeked your help? Literally have a foggy head as we speak and can't even think straight :(
Hi Billy, in case you don't know the main Empty nose syndrome group is this one on facebook facebook.com/groups/44406735710/ . There I hope you can find help and understanding
@@Joker-jv7uq Do u know how long after surgery do people develop EMS?
@@user-cj4sq6pb1c I don't know but people say some can develop up to 3 years
My most debilitating problem with ENS is Nerve pain, constant nerve pain (I don't hear of other sufferers having this issue). I do suffer sleep and suffocation problems, but the nerve pain is the worst. For 20 years I was diagnosed with chronic migraines although no migraine medication or procedure ever worked. I still haven't been able to get approved for disability. I was just diagnosed with ENS and heard about it last year. I've had 6 sinus surgeries...I no longer have turbinates...
I have that and another lady at the forum has it. I have to take medication for it. Maybe you should make a video warning people as well. I think we all should.
@@moonrice555 I would love to, but I am not currently set up to record video....
I'm so sorry for your suffering. I also have nerve pain. Try CBD oil and any way possible get to Dr. Das in Columbus, Ohio to discuss your options. I am glad I went to see him and have a lot of hope for recovery. All the best.
I tried CBD oil with no success. Due to financial issues I cannot go to Dr. Das. Thanks
Gail Pearce how are you
I have turbinates that are swollen more than normal. Years of medication have made little difference and my doctor recommended the very simple, consequences-free surgery of turbinates reduction. After doing very little research on the risks of the surgery (which my doctor assured were nonexistent), I came across ENS. I am now completely discouraged from doing the surgery, but also feeling quite helpless as I see no possibility for improvement of my condition...
If your doctor is telling you is risk free then he is an idiot...no surgery is risk free. RUN! many of us went into surgery thinking it was a safe procedure and ended up with ENS. Count your lucky stars that you found out about it before surgery. this is my video th-cam.com/video/2jRkPruv6Bs/w-d-xo.html
My doctor told me it could grow back and that gave my brain the green light to undergo it. Later on down the road i learned the hard way that they never grow back as per my google search. and yet they insolently tell you "DON'T LISTEN TO GOOGLE".
@@theuncanspan Hello I did radiofrequency procedure years ago and it grew back, maybe it depends on doctor, some doctors don't know their job or are lazy and they damage nerves or you had it completly cut out ?
Try moving sometimes it's something in your environment that if affecting your sinuses
Radiofrequency COBLATION - not radiofrequency ablation - drastically reduces the risk of ENS. Coblation does not trim or remove tissue from the turbinates like ablation does, it ‘dehydrates’ them and shrinks them down ever so slightly like raisins, no cutting or burning anything off
Is this all turbinates removed or just 2 lower ones ?
Any surgical procedure to the turbinates can lead to ENS.
Did.you ens only happen at night? Or was it happening during the day?
I'd say you're breathing thru your esophagus instead of trachea
From many years of nasal problems you can't differentiate
Is it possible to have it on just one side of your nose and is it possible to have times throughout the day where the side that feels congested is actually able to breathe for a couple of hours and the side that feels congested is it possible to feel cold air coming in but not hot air
A year ago I had a turbinate reduction surgery and I was left with a lot of nerve pain. I have been prescribed tegretol but have not taken it yet. Someone has tried? If you have any recommendations, I'd appreciate it.
Im sorry but i did surgery and im just fine and im gratefull for that
Hello r u still good
Hopefully it stays that way. Ens can occur even several years after surgery. Not all people heal the same.
i'm supposed to get my turbinates reduced next week and after researching ens i'm terrified and contemplating canceling my procedure. do you know how common ens is? or what percent of patients develop it? there is not much info on the web on it. thank you! edit: ended up getting it done almost a month ago and i feel fine so far.
@ActionMantra my doctor says that he removed just a litle of my turbinetes, almost nothing, is the a chance that a get ens? how much is the chance 0 to 100%?
@ActionMantra I cannot breath now via my nose . I have to wait my nose to reverse the swelling. I have to say that I regret that I did these the rinoplasty, sectoplasty and turbinectomy surgeries.
@ActionMantra Before surgery, I told him to not touch on my turbines, but after it he says that he cut just a bit, this insane act is driving my crasy , because this simdrome is terrible. I will need more 10 days to recovery my nose then I will ne able to found if I get this surgery. Here in Brazil, the turbinectomy is a frequent surgery done in here, I dont know, but I believe that on a few % gets it.
if the doctor removes to much tissue then u are screwed... If doctor removes the right amount then u are good ... I had it done in Mexico turbinate reduction and mine were a success ... my brother had it in the US and he has ENS ... both doctors studies in US ... I guess experience is the Key if u are gonna get the Surgery. My doctor has had more than 5000 and was familiar with ENS .... my brothers doctor had less surgeries done ...
@@denismoraes5673 how u feeling?
Can you provide info about the treatment Dr Nas preformed on you and the improvements you have seen? My surgery was done a week ago and the dr overagressively removed about 80% of my lower turbinates and i have a consultation with Dr Nas on Friday to see if there is any hope of mitigating my feelings of suffocation and inhailing glass with every breath. I would love to speak with you about joining you for advocacy against this surgery.
@Weedymad I had several injections done into my mangled turbinates. The plasma injections were not bad, but One blew out the side of my Remaining turbinate on one side which was a blessing because it increased the size and it grew back better. But the last fat injection I got, went too deep in my cheek and left me with debilitating headaches for about a year. So I quit the injections. I have issues still with dry weather and cold weather. But my body has mildly adjusted to the lack of turbinates as my lungs are not on fire anymore from the air, but I still have a huge lack of feeling in my nose and can't feel my breathing in my sinuses. I have to cover my nose in cold weather and constantly moisten my sinuses in dry weather.
@Weedymad I've been there at my witts end thinking I can't go on or live with my condition because I was having panic attacks and feeling like I was drowning or unable to breathe. I also suffer from hypothyroidism which is accompanied by severe anxiety if my medication is the slightest bit off. I had horrible anxiety after my original surgery because of the damage it did. I started wearing an n95 mask to just restrict and warm the air. I also bought sinus sprays, a personal steam humidifier to use several times a day because the warm heavy air helps. I would also spend a lot of time in a steamy shower several times a day. I honestly used alcohol and tramadol to get through my rough times because Dr's didn't want to listen.
Time is what makes it better, your body needs time to adjust, I did 3 blood cell injections and 2 fat injections over a period of 6 months. It's not instant results, so you have to stick it out and get medication or what you need to help you through.
I understand your desperation, but it will get better. Contact Dr Das. His office is fantastic. Not many Dr's will treat this condition or understand it. But he is great. The fat wasn't great for me, the blood cell only was better, but everyone is different. Don't give up. It takes time to improve.
@Weedymad also, I did other random things like shoving moistened cotton pieces in my nose leaving just enough room to breathe through. I would use a qtip and shove it as far up my nose as I could rubbing it all around the sides to irritate them to produce mucus. I mean like the entire length of the qtip barely enough hanging out to hold with my fingers.
I bought a tivic health ClearUp device, it shocks and vibrates the nerves in your face/sinuses, I still use it when I have a cold/sinus infection or headache.
@@crystalgr2318 how's you now have any benefits from prp injection and how's your breathing now
@@RohitKumar-tu3hb I did 3 prp and 2 fat injections. My turbinates are definitely slightly bigger than they were after surgery, but the results are minimal, maybe 5% is the one side that didn't get blown out and about 10% in the other, but with the dr removing 80% of my lower turbinates I'll take any improvement. The buggest difference i got was when the dr over injected the prp solution and it literally exploded out the side of my turbinate but when that healed, it was definitely bigger than before.
It did cost me 10k out of pocket for everything including 5 flights to Ohio since it's considered experimental surgery and my insurance refused to cover it. I think mostly time helped too. It took my body over a year to really adjust to the changes from the surgery. I honestly wish I could get a couple more prp injections in my one side still, but im scared to after my last fat injection left me with debilitating headaches because it went too deep in my face and I'm really sensitive to pressure in my sinuses and face.
help. me. please please .. I did 3 surgeries. in my sinus I suffer every minute I'm 19 year old disabled because of this.
How are u doing now?
I am suffering from Turbinate Hypertrophy, my nasal passages of both sides are blocked, I cannot breath. I was planning to undergo turbinoplasty along with septoplasty. Now after watching few videos about ENS, I'm frightened. I don't know what to do. I'm fully addicted to nasal sprays such as Afrin. I wanna get rid of it and lead a normal life. What should I do? Is it possible to treat enlarged turbinates without surgery?
Shawon Khan Hi Sharon, I would not get the turbinite surgery done because the risk is too high. You should go to a top notch dr and see what he says. And leave any type of sinus surgery as a last resort. I had the least invasive which was a baloonplasty and I’m suffering nerve damage tinnitus and constant dryness. I didn’t have my turbinites removed but I’m suffering and it has changed my life.
@@dkayrotach Thanks for your suggestion dear. Yeah, Nose seems to be a more sensitive organ than we think it is. We shouldn't do damage to that organ without severe need. I saw a few doctors, most of them suggested surgery where only one doctor suggested me to do exercise, avoid allergic food etc.
@@shawonkhan4640 same problem don't understand what to do 😐
I took Nasonex/Avamys and my nose is normal again. I was supposed to have the surgery this year and it seems that these meds helped me alot. I also use marine spray every day, because the nose is supposed to be washed as often as we wash our faces. It's a lot of pollution in the air
@@dkayrotach bro plz help me 10 days ago i don septoplasty i think i have develop ens but i am not sure how can i be 100% sure that i am having ens
try to find out a possible solution with a good cosmetic surgeon. If they perform a bilateral osteotomy of the nasal bones and the nasal dorsum is lowered a little, the turbinates will automatically be close to the septum since as they arise from the walls of the nasal bones, as they narrow, the nasal cavity becomes smaller. That way you should improve the air pressure and feel the flow. At the same time, the humidity should improve a little.
Yaa same mam , It happens me alot just somehow i am breathing but sometimes brain just gave a wrong thoughts about not able to breathe , feeling like me suffocicating in chest , unthinkable vibration coming from body and nose start feeling like it is heavy .but didn't have idea it was ens just a unusal act of brain . I am relif now hope so i would stop getting bad feelings.of getting surgery. So from now
And i wouldn't choose doing ens surgery!
Hey how u now?
My nose is so fucking deviated that it feels like I have ENS already so I’m gonna risk it for the high reward
Btw i just got the surgery done two weeks ago and i can breathe perfectly 👍
@@PK-47 ens can happen months or years after surgery. Don't sing victory yet!
@@piamcdowell1 well i still can breathe perfectly
Can you say your doc's name please
@@PK-47how bout now?
Barbara, how are you now?
What if its only septoplasty without turbinates?
what can be done to bring more awareness? There has to be change! too many people are suffering. there has to be a lot of research and funding for ENS how can that be achieved?
POV: you just watched Derek on Rogan
I had septoplasty turbinoplasty with microdribder. I am having trouble sleeping. I am feeling burning in my lungs. I am feeling lumps of dust in my throat. It has been 2 months now.Is this empty nose syndrome? I am feeling very scared There was fluid accumulation in my ear, the doctor said that DNS or Inferior turbinate enlargement should be done and he advised me to undergo septoplasty turbinoplasty with microdribder.😢
How you survive ens, barbara?
What should I do? I am a single mom with two children, my life is a hell, I just want this to be over, there is no doctor in my country who knows about this syndrome, doctors think I'm crazy, I barely make any money for living, what did I do for God punishing me such a way!
Where are u from?
Where are you from?
@@virskovskiy7894 I'm from Latvia
@@ivetamuceniece4071 try to make money out of Only Fans and then use that money for implants or injections inside the nose. It might help.
@@ivetamuceniece4071 зарегистрируйся на Only Fans, можешь там подзаработать денег. Попродовать свои видосы, фотки. Потом можешь попробовать инъекции сделать в место там где удалили раковины, или импланты. Некоторые отоларингологи делают такое.
The major issue people have is the decrement in the quality of life. People with ENS should be taught how to handle the anxiety that comes with it. I have similar symptoms like ens but never had any surgery. It gets very frightening sometimes when I try to sleep.
It's easier said than done, don't you think.....?
@@shankar0cr exactly ...it's the hardest part that why it needs to be acknowledged and talked about because people with ens can not go out of their own heads and everyday it's a fight. I myself dont know the solution but there has to be one or it needs to be found in order to stop people commit suicide.
@@abhyudaimishra2835 I think the first step begins with the doctors warning the people that ENS is a potential complication with most nasal surgeries. However, I don't see many doctors doing that.....in fact a few doctors(like my ENT) in fact promote complete Turbinate removal, without warning about consequences of ENS. Why? It's business at the end of the day for them. If they warn you beforehand, you will not go ahead with the surgery, and if you don't do surgery then the doctor and hospitals don't generate revenue.
This mentality needs to change first, before an awareness can be put forward.
Agreed.... What I am saying is completely for those who are suffering from ens. Awareness needs to be spread for preventing people from getting this disease. But those who are in already stuck in this vortex, help needs to reach them as well.
@@abhyudaimishra2835 Absolutely......In order to promote awareness, shrinks and therapists first need to know that there's something called ENS that exists, and is driving people mad and making them crazy. Most doctors don't even acknowledge this condition.
Is it possible to have ens in one nostril ?
Hi I had polyp surgery about 2 years ago and I developed scar tissue between inferior turbinate & septum which I had a repeat surgery which the surgeon cut it. I have been suffering with dryness and crusting and pain in my left nostril ever since. Could this be ENS? Please someone reply thanks
I had septoplasty turbinoplasty with microdribder. I am having trouble sleeping. I am feeling burning in my lungs. I am feeling lumps of dust in my throat. It has been 2 months now.Is this empty nose syndrome? I am feeling very scared There was fluid accumulation in my ear, the doctor said that DNS or Inferior turbinate enlargement should be done and he advised me to undergo septoplasty turbinoplasty with microdribder.😢
I can hear how cavernous your nasal passages are in each word you say. I'm so angry right now
Привет всем! У меня тоже ens. Но английский не понимаю, Переводите на комментарии,я спереводом читал блогадорю Зарание те у кого время будет. (Спасибо)
How can I avoid having this surgery? My turbinates are so swollen and I dont have allergies. Nasal sprays and rinses aren't working. 😕 I'm so afraid of ENS
nasal steroid drops or injections
DON'T DO THE SURGERY you still have your turbinates intact, ours are operated on and if you don't like it after surgery there's no back to default settings buttons.
Hey fall out man...my nasal turbinates are swollen do...did u have dry nose after awhile...and did they ever go down
@@xSinHunchox hello my turbinates went down yes
@@falloutman1843 how long do u say it took before they started going down
Barbara, I am from India and I am also suffering from this problem. But there is no treatment of Empty Nose Syndrome in India. I want to know how are you now after taking treatment from Dr Das. Because I am also looking forward for stem cells therapy treatment. And Can you suggest me any home treatments which are doing and which are helping you.
I am also from I am suffering from this problem last 2 months
Sagar Patil sagar plz send me your number im also suffering
Sagar Patil send me your number bro plz
@@sgp479 hii
@@atulbudakoti4216 hello
My ent doctor requested I have this surgery along with a septoplasty and endoscopic sinus surgery.I also did a scan and my turbinates are of normal size according to the report so I don’t know why they push for it money I guess.I’m not having the turbinoplasty just the other two there’s no way after all the stories I’ve heard
Did you get the turbinates reduced? And how did the septoplasty go?
@@aleemsmith34 so I had the surgery done 3 months ago had a septoplasty and my turbinates reduced .I still mouth breathe and snore at night so for me it didn’t really do anything I can breathe through my nose during the day though better but I did the surgery so I can sleep better unfortunately I still can’t .
subinoy Das have completely ruined my life. I can breathe after his procedure and have had so much issue. I don’t know how to go on with life every day is a lIving hell
well I had the surgery 3 times.... 2014, 2016,2018.... Thank goodness I didnt develop it... Well I guess I'm done going under the knife...
I’ll spray nasal spray in my nose for the rest of my life then get ENS
Smelling and tasting issue?
Me too- the sprays help a lot but not 100% plus I gained 10lbs from the steroid sprays but my husband is not complaining🙏 I had surgery scheduled and I just canceled! So thankful for these videos raising awareness.
Ragnarok which sprays are you using ?
Empty nose syndrome rare i can breathe chest pain soldier pain back pain
I believe that MD imbued in the theory of evolution is more likely to commit ENS. I had met a good ENT MD having no experience of his patient having ENS, for his 40 years of surgeries. And he is religious, esp., a believer in Jesus Christ. He did nose surgeries in the least invasive way and is cautious in treating all his patients. I'm thankful to God and to him both. I wish you all may meet a good MD as I did.
I might have it i just got surgery😢
@Weedymad i'm doing great :)
Is there anyone who can do Russian subtitles for this video?
How are you doing ?!
@@kaya2939 Not enjoying my time on earth, really. How is it for you?
@Iveta Muceniece it's been hell living with this . And in tired of this
Never had surgery on my nose but the last two years have been agony. It may be due to an injury I had a while ago but I CANT BREATHE. I go to sleep suffocating and unable to breathe every single day. I can’t do activities, I can’t even go up stairs without being completely gassed. I went to my ENT and they recommended turbinate reduction/septoplasty, then I do research on it and OF course, it sounds awful. But a part of me thinks it can’t get any worse than it is already. I’m stuck and don’t know what to do.
how are you doing now? i’m experiencing similar things!!
@@alexprisco6792 horrible. Same thing different day
Kardiff you never had surgery though? me neither, but i have the weird suffocation feeling and i get out of breath. i’ve spent all night researching ENS and through i’ve never had any sinus surgeries, i’ve convinced myself i have it and i’m terrified
@@alexprisco6792 I’m scheduling surgery today. Wish me luck.
@@HunterD619 how's you now bro had you done surgery
I've seen youtube videos that stem cell therapy can cure ens is it real?
no
I have been holding off this surgery for about two years. Two years I’ve been in pure agony. Can’t breathe, can’t do activities, can’t go up a flight of stairs without being gassed. I have been holding it off because of what I keep hearing about ENS. It didn’t faze me at first until I joined a ENS Facebook group. It came to my attention about 3 people in that group within the last year committed suicide because of ens. The things they say about it seems like hell. I just don’t know if it’s worth the risk. If ens is 1000x worse why would I risk it right? I’m so stuck in what to do.
Look into palatal or maxillary(upper jaw) expansion instead of nasal surgeries. If the skeleton is deficit, soft-tissue surgeries by the ENT won't help much.
Solution: change your diet, and move to a rural area where there's not much allergies all year round and no POLLUTION, I used to live in Texas and it's the worst state for allergy sufferers, after i moved out to Colorado spring my symptoms improved by 70%-80%
Simply try mewing within one year you will be improved
@@walidzein1 I have ENS and live in Texas ☹️.
@@joyd4238 I’m sorry 😞, try using a humidifier, also I’ve heard that Manuka honey is very effective in treating any sinus issues, I’ve been taking manuka honey with a UMF of 15+, it’s a bit expensive but totally worth it
radiofrequncy and septoplasty gave me ens empty nose syndrome
I am sorry to hear that. I had my surgery 10 days ago (radiofrequency, Celon). Only later I found this syndrome... The doctor told me there were no risks. I'm afraid to develop this syndrome.
@@Gedakt8 How did it work out? Are you feeling okay? Doctor recommended this procedure.
@@HeavyDukes22, hello. I lost air resistance on my right nostril and pain on my left nostril. Cold air makes painful to breathe
does that radiofrequency ablation not cause ENS. Seems like that might be the safest.
I hav ens. Its detrimental to life
Please reply.....i never had surgery on mY nose in my life ...last year December month i have strong flu my trubunate swelling doctor prescribed me nasal spray i only use this spary one week and i lost my air sensation...i am scared what happen with me please reply...i consult with a ent doctor she says my lest nose turbinate swelling and right nose dry mucous i tried everything but i not got any relief what should I do for dry mucous....please reply😭
😞
Wide range of ssymptoms. Also atypical trigeminal neuralgia (and trigeminal neuralgia) inside the nose also causes people to take their lives.
All surgery has risk and is risk v reward, you can't blame the doctors, although they should advise of the risk.
What the fuck. You can absolutely blame the doctors. Idiot. They dont tell risks and the cause it
Hello wish you all the best not saying this is a solution but applying a few drops of black seed oil in your nose definitely helps you might feel a sting
You all reply on this video wrong...you only think nose trubunate reduction can cause of ens....i got ens using of nasal spray and my life hell last 3 months
Spam
pare de usar o spray nasal e veja como você reage, você pode voltar a ter o funcionamento normal..já tentou parar de usar o spray??
ENS has a high correlation with mental health disease (anxiety, depression), and there is no proven correlation with turbinoplasty.
This is a lie told by those who falsely spread misinformation about ENS like yourself. Anxiety and depression dose not have a correlation with Ens as a primary reason for suffering. Any disease that takes away a person's ability to breathe normally is going to suffer. The depression/ anxiety narrative is a scapegoat to retract from the reality of a patients severely compromised nervous system and irreversible damage done to the turbinates.
@@user-ef3ns8io5u } I’m a doctor, Otolaryngologist, please read the leathes review about this topic, there is NO evidence that the surgery plays a roll in this syndrome pathophysiology , and that is science not my opinion
@@juandabid26Your comment is erroneous. Even worse commenting on a video made to raise awareness for a growing community of victims and families that are going through the devastation of turbinate reduction injury.
Being a so called "professional" you should know that nasal turbinates are highly sensitive organs that do more then just secret mucus.
Even if you claim to be a youtube "Dr." of Otolaryngology, it dose not give you the authority to dictate how a patient suffers.
Instead of looking at your biased misinformation, I suggest you research Dr.s such as Yong Ju Jang and many others who understand how serious Ens is.
To conclude, I have met several honest ENTs and facial plastic surgeons who have confessed that they do not perform turbinate surgeries due to the lack of real scientific backing, followed by the irreversible complications that can occur.
@@user-ef3ns8io5u There is no prove that the surgery is the etiology for the ENS, and that’s a scientific fact. That’s the scientific fact whether you like it or not.
There are patients who had received more complex surgical procedures for nasal tumors or pituitary diseases and they do not develop ENS, moreover when we compare the ENS patients with other patients in whom we performed turbinoplasty with or without septoplasthy the anatomical outcomes are similar, but the patient who develop ENS with normal anatomy all have mental health comorbilities and they should receive appropriate treatment by a Mental Health specialist.
@@juandabid26 This will be the last reply from me as it's clear where you stand. Not once have you mentioned a reputable publication. If you happen to do so I wouldn't be surprised if you chose one that fits your narrow minded narrative. I truly hope you can be evaluated as there are some characters like yourself on TH-cam that take pleasure in harrasing people with severe health problems.
The Ens community does not need your validation as we know what our truth is. Fortunately we have the backing of REAL Dr.s/researchers who keep their hippocratic oath and take the time to learn the truth about Ens. You commenting on this video again shows not only your arrogance but your lack of understanding to a health condition you would never personally understand unless it were to happen to you.
I also would highly recommend you reread what the scientific method is about as you skipped the first step.
May you also find a sensible colleague,friend,loved one who can inspire you to do better as a human being. Otherwise, I hope you or any of your loved ones never have to expirence being gaslighted and left in indescribable suffering without any help to alleviate a damaged organ.
Rhinitus of recumbancy. Is were your turbinates pinch off your air when you sleep. I would rather have ens than stop breathing in my sleep. Ens is rare.rhinitus of recumbancy is more common. Get a rf turbinate reduction. Ens is not a reason to not get nasal surgery.
Wrong. ENS is a devastating outcome. It not only renders a patient unable to warm/humidify inspired air, it can cause constant and unremitting suffocation. That means you stop breathing altogether. That’s what happened to me. I am an ENS survivor. Please do not speak for us.
Shut up you sound like a idiot. Not breathing is much worse than having iritated sinuses. Ens survivor? Give me a break.
@@yorocco1 hi ..how are you?
This guy is a joke. Has no idea what he's talking about. Neither someone who suffers from it. How strange people are these days to speak on topics they do not even experience.
Clown.. You have no idea what you are talking about. Weak is what you are trolling videos of people who have a devastating surgery caused condition. You wouldn't last a minute with this condition.