Empty Nose Syndrome w Ashley Gavin | Sal Vulcano & Chris Distefano present: Hey Babe! - Clips
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- FULL EP 👉@NoPreshNetwork 👈 We had the hilarious @ashgavs on the poddy and she learned from Chris about how she ALMOST got Empty Nose Syndrome !!!
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we live in a society in which the truth is spoken in Comedy .
thanks you so much for telling the truth about empty nose syndrome
Thank you for spreading awareness I have ENS and it’s literally hell on earth and the best part is nobody around you understand at all what your going threw.
I have this condition and it is a living hell. Thank you for brining awareness to this issue.
You still have the ability to type TH-cam comments so there's that.
@@LaughinLoneStarI have no authority to request some empathy from you, but it is a torturing reality for ENS patients, something like that shouldn’t exist, or at least doctors should be held accountable for ruining lives, it’s an invisible suffering that only the ones who experience it are able to comprehend and try to explain!
May I know how soon after your procedure did you experience it?
Thanks for bringing this topic up i had just turned 20 when i got my "septum" fixed only to realize months after surgery while healing that i have missing turbinates. No discussion. No warning. PLEASE do your research before you do any surgery guys. Your life depends on it.
Even conservative procedures on the turbinates can cause ENS. It is a very dangerous surgery that Ear Nose and Throat doctors do every week and they do not disclose the risks before surgery. They also lie and say it’s rare but it’s definitely not. It ruined my life and now there’s no treatment that can help me. (Already tried experimental treatments). Some people suffer worse than others and there is a very long list of different symptoms that you cannot even imagine. Many people with this cannot feel any air due to nerve damage and damage to the receptors in the nose responsible for sensing air…. Many people cannot sleep because of constant suffocation. It also affects your heart rate because turbinates directly communicate with the brain and your autonomic breathing….. long story short don’t get the surgery. You do not want to end up like me and others. You become disabled but no one believes you because it is all invisible.
Horrible to hear that, Mark! My heart goes out to you. Do you suspect the same damage could take place with balloon sinuplasty?
Thank you for speaking out about this!
YESSSS THANK YOU SO MUCH! for saying “you ran a risk that doctors didn’t tell you about” bc they probably didn’t. They take the extra insurance money and when they just fix the septum and let the turbinates go back to their normal size & shape everyone will be better off
Actually, the chance is more than 1.5%. According to different studies is around 20%. Not a laughing matter, specially for the people that have to live with that condition.
It's not 20%. Unless a doctor is incompetent, there would be no discernible difference between one man's successful surgery and another man's ens. In other words, it very much depends on the individual. If you are particularly sensitive and conscious of every little thing, you are obviously not a good candidate for the surgery. All cases can potentially be interpreted as ens.
@@kazman_6899 Its been estimated at 20% by one of the leading ENT's in ENS. Alot of doctors ARE incompetent. Being sensitive and conscious of every little thing has nothing to do with it, the difference is physical - not mental - why some get ENS and some don't. Trust me, it is not mental... its very real.
Sincerely,
An ENS sufferer
@@kazman_6899 www.sciencedirect.com/topics/medicine-and-dentistry/empty-nose-syndrome
www.ncbi.nlm.nih.gov/pmc/articles/PMC8474723/
It’s between 8-22%. ENT’s downplay the risk and automatically recommend it to anyone seeking a septoplasty as they get paid out for another insurance code. No one knows the true prevalence due to the onset taking an average of 3-5 years and ENT’s referring stricken patients to neurologists. This has nothing to do with a patient’s “sensitivity.” This surgery causes irreversible damage to an autonomic process and leaves patients feeling like they’re being water boarded in perpetuity.
Its likely more common than you think, as sympyoms can develop over years and there is no definitive test or metrics that are collected. The 'rareness' of the condition is purely an assumption. Coupled with the fact that most ENT docs do not acknowledge it, do not follow up with their patients past the initial month or two and refuse to admit there is a connection, because there is a heavy conflict of interest. That surgery is how they make a living, so clearly there is no incentive for them. The condition is ruining lives, causing suicides and is absolutely catastaphic for those unfortunate to fall prey. There us a much bigger story here and a heinous wrong doing that needs to be corrected on an indistry level.
Michael Jackson had ENS
You cannot get Empty Nose Syndrome having your septum straightened.
Can you get it without surgery?
@@jonathangraham6412 No. I don't see how.
thanks for speaking about this, from a sufferer of ENS! you have no idea how you may have saved peoples lives watching this video who may not be as lucky to not get it. it’s definitely not that rare though sadly :( cutting/lasering/coblating such a vital organ, no matter how conservatively, can have devastating consequences to so many people out there. Dr Houser in the US says 20% though it’s thought that it’s a lot higher by the amount of people in ENS support groups out there. awareness is everything! so glad someone warned you about it beforehand
The turbinate reduction surgery I had done is clearly the biggest mistake of my life...I wouldn't wish this hell on earth on my worse enemy
To anyone considering turbinate reduction surgery please carefully research this out...I don't think the risk of getting ens is worth it
Did you do Vivaer ?
@morm2173 I'm not sure what vivaer procedure is but I had radiofrequency and outfracture done
There are a myriad of techniques doctors use to reduce turbinates but be advised: all types of turbinate reduction surgeries have the potential of causing ens
My advice if your considering turbinate surgery is to think long and hard before proceeding
@bobfloyd6216 go to ENT Dr Paul Nassif in Beverly Hills it's expensive but he knows how to fix empty nose syndrome. It'll be worth your money
@bobfloyd6216 my doc said I need a submucosal resection for my sleep apnea also I got the night laser
@morm2173 maybe you should consider a second opinion....surgery should be the last resort....maybe you have a food or environmental allergy you're not aware of causing congestion issues....testing for allergies would be a good start
Also, maybe nasal strips for nighttime sleeping would be beneficial as nasal strips will open up nasal airwaves for better breathing
Whatever choice you make regarding treatment I wish you the very best 🙂
You can get this even with conservative surgeries. Existing treatments are very experimental and very hit or miss. The incidence rate is very hard to be know, since ENS is for sure under reported. Also, ENS is more of a spectrum of symptoms. Not everybody who has ENS has the worst symptoms. For example, there are milder cases where usually just sleep is an issue. But other times there are people who have constant dryness, hyperventilation, tachycardia, depression, anxiety, and severe insomnia.
Hi,
The cardinal symptoms of ENS are inability to warm/humidify inspired air and intermittent or complete suffocation.
Comorbid conditions are those associated with damage to the nervous system. They include, POTS, Fibromyalgia and Reynauds to name a few. These conditions, especially POTS, cause Tachycardia, breathing issues, and much more.
I was one of the first people to get experimental treatments of ACell/PRP injections. They saved my life.
Agreed. All current treatments are experimental.
Can you get this from a nasal endoscopy? Can you get it without surgery? How do ents know if you have ens
No, by definition ENS is a post turbinate reduction surgery complication. An endoscopy may iritate the mucosa, but shouldn't cause any long term concerns@@jonathangraham6412
I've had a deviated septum (left nostril) since I was a kid. I'm 68 now. In September, I thought I was coming down with a cold when both nostrils became inflamed. I can see that the turbinate's are a bit swelled. No sinus pressure or nasal discharge. I can breathe fine. It just sounds like I have a cold. I'm due to see an ENT in a week and I'm glad I found out about ENS before going. I'll never have any surgery. I've read numerous stories of suicide after the procedure. Thank you.
Yup it’s absolutely horrible, had a turbinectomy last year. Surgeon was too aggressive and left me with ENS even after I mentioned my concerns.
Now looking at a coastal cartilage implant to reduce symptoms. Great to hear awareness being spread.
Its hell
Thank you for spreading awarness. My self and thousands of others suffer terribly 24/7. Your quality of life is next to none.
One thing to note is that turbinate reduction injury has not been adequately tracked. Mainly due to ent community hiding the fact that there is no options regeneratively to restore an injured turbinate whether its done aggressively or conservatively.
There are thousands out there suffering and ENT specialists have made it a mission to spread disinformation about ens and the severe long term injuries that can be caused.
Never have a turbinate reduction or septoplasty procedures if you do not have a life threatening reason to do so. These organs are extremely important and the host only scratched the surface on how important turbinates are.
PS it’s not as bad as you think otherwise they wouldn’t be multiple people every day joining our group with a new diagnosis. There are thousands of us out there, and it is more common than you think. And sometimes you don’t get the condition until 7 to 10 years down the road and then you have no idea it’s connected to the surgery.
My turbinates were out fractured, but my doctor did it so aggressively that he damaged the nerves but I think God I was able to improve my condition and I am now hoping to find cures for people.
Our healthcare system needs to change this and stop touching peoples turbinates. They are essential organs.
And I hear time and time again when people get it and reach out to their doctor for help. They gaslight them and call them crazy. I feel like there’s more going on with us and I’m really glad you spoke out about it. I think more people need to, and I think CNS patients have prevented a lot more people from going down that road or at least if they do get the surgery, they can tell the doctor do not under any circumstances touch my Gd sinuses
so what if ppl with daviated septum?
Upper jaw expansion
@@claytonrust7103 I’m seeing a jaw doctor tomorrow actually! Wild that you commented this .
What will that do???
I’m about it!!!
Anyone ever get disability for empty nose syndrome?
No because ENTs work hard to not having it recognized
That girl is insufferable. ENS is real, I have it and it’s hell.
I think I’m developing it, and I don’t want to live!
@@timcepin3386 what kind of surgery?
The doctor works for you. You can get the septoplasty and you tell the doctor in writing to not have the turbinates touched. And voila.
Can septoplasty cause ENS? And do the turbinates shrink back after septoplasty?
It's a terrible condition but people have to understand is much more rare than an internet/youtube search get you to believe.
Tens of thousands of this surgeries take place every day all over the world.
It's like saying i don't want to take a surgery cause general anesthesia has a tiny percent to cause some problems or even death during it.
Every surgery has a tiny risk even the most routine ones. Even to take a medicine can cause serious side effects to a very tiny percentage of people.
Everything has a risk in this life. Every time you get to the shower there is a risk to slip and brake your neck. Every time you get out of your house and drive there is risk for a fatal or cripple car accident.
Someone tell @vice to make a documentary on this
It’s very common with turbinectomy
This is like 3 monkeys trying to figure out what a coconut is..
Your information is not entirely correct. Empty Nose Syndrome can result from ANY type of surgery done on the Inferior Turbinates.
The cardinal symptoms of ENS include; inability to warm or humidify inspired air and intermittent or complete suffocation.
I had both severe ENS and a comorbid condition called POTS. I eventually descended into a state of constant suffocation and dysregulated organ systems.
I was one of the first people to receive an experimental treatment.
Thank you for the coverage.
what is the experimental treatment, did it help you?
Yes can you please let us know what helped your condition. I have ens and already have tried tissue implants but no luck 😞
What did you do?
im getting ballon reatment done next week for a breathing poblem at Advent sinus. ahould i stop.
From the research I’ve done, there are numerous people with ENS. Feel badly for all who struggle with this. I’ve had several ENT’s suggest this procedure, and none of them have mentioned ENS as possible risk.
That suicide statistic was pulled out of nowhere, but yes, empty nose syndrome is a horrible condition. What should also be pointed out is the fact that Ear Nose and Throat surgeons make more money when they can bill your insurance for a surgery instead of issuing you a prescription. Always get a second opinion before allowing a doctor to operate, because yes there are many doctors who are in it for the money. Not all deviated septum cases require surgery. Turbinates can often be reduced in size by simply using a steroid nose spray and eliminating the use of Afrin is often the main cause of many chronic congestion sufferers.
For anyone who knows a lot about this - can the septoplasty alone without the turbinate reduction still cause ENS?
I have been struggling to breathe through my nose, was always a little bit of an issue but has gotten a lot worse, deviated septum surgery was on the table but now I am fearful of this but also struggling everyday breathing. Feels like a no win situation or a literal gamble with odds
deviated septum suregry is fine No ENS risk at all the only risk is when the turbinate are removed or cauterized or other methods of turbinate reduction so. ask dr to only do deviated septum suregry nothing else
Can this happen with just getting deviated septum?😢
No. ENS only happens IF you get the surgery. Good, ethical doctors would first recommend nasal sprays like Flonase, etc. and/or allergy medications to have the turbinates reduce via medication without surgical intervention. If any doctor immediately pushes/prods you to get surgery from the get-go.....RUN!
ENS does not always make you suffocate, in some instances yes, but for some, you end up with extreme dryness and constant inflammation that makes it hard to sleep or operate. Suffocation is the worst-case scenario, although all of it changes your quality of life forever.
They need to get more research on ENS and figure out exactly what causes it.
Research and literature on turbinates is already out there. It's a combination of many things, though to make it simple ens is caused by both conservative and invasive techniques that have injured turbinates to the point of these organs becoming completely non functional. Just think of any other important organ immediately shutting down or slowly losing its functions.