Omg my shower chair was a life changer. My university accommodation bought it for me because they gave the "disabled" bedroom to someone else. I went from not showering for days because I was tired to being able to shower daily.
My top five spoonie items 1. My owl quilt or pretty much any blanket because I also have issues with temperature regulation. 2. My phone, used for social media and hospital distraction. 3. My totally awesome ultralight wheelchair, because I need to get around somehow right? 4. Music, music, music. I could not live a chronically L life without a lot of different genres of music. 5. My “ circle of support” which in clued people on the Internet, in real life and in my hospital. I couldn’t l couldn’t take this journey without and the Many types of support they give me. I I loved this upbeat video and look forward to watching more of them. Fellow spoonie
I need to get a cane... I'm someone who's chronic pain was also shrugged off as growing pain, and told to exercise, which only made it worse. The past few months have been the most painful that I have ever been, and I still have no idea why. But I literally can't walk without my knees giving out 2-3 times a day, so a cane would help so much.
I have a WALKER! It was quite embarrassing for me for a while I am actually a grandma and well he by heart too lol my son made me a grandma at 33! I use all of the things you use except no can yet a walker !
@@tardislizard The most important thing about walkers is safety and ability to participate more. You are much less apt to fall and you always have a place to sit down for parties, etc. People don't see your walker after awhile. If they do, that's their problem. Do you think people who use aides are weird?
I have a heating pad instead of a blanket :) And I agree with you about the pill organizer (which reminded me to take mine while I was watching your video! lol). My PT is trying to get me a TENS unit (fingers crossed). Great video! Thanks for sharing.
I love this video! I’m a spoonie too. I have POTS, OH, and possible Fibromyalgia and MCAD. I figure why get the other stuff diagnosed if I already have the other stuff. Lol. I totally understand getting over the whole taking the cane out in public, and using a shower chair, but I am so over it now. They are life savers!
@@ashirab1909 Nope, not at all. Am a chronically ill guy, too. Been that way for a while now. I think there's more of us around than most people know...the difference is that chronic women are more willing to speak about their conditions publicly than we are. I just talk about my chronic stuff online; in real life the only ones I've ever discussed it with are medical personnel. Old-school masculinity can be hard to shake.
I would like to add about the tens units, some insurances won't cover them because they are too expensive. I needed one several years ago and insurance denied it . The sales lady told me that since I already have a prescription for it, and my insurance denied it, I could buy it myself as uninsured. The cost to my insurance was $500 but for a private sale it was $50. It was well worth it.
My heating pad, a good water bottle with straw (I use a camelbak eddy one), my pill organiser/meds basket which is always within arms reach, and lastly my custom made splint and compression sleeves for my joints!
Blood pressure monitor, pill organizer, Medisafe app (you gotta check it out!), emergency meds in my purse and WATER. Drinking lots of water is a game changer!
My top five gotta haves 1) supplements and protein drinks. I live on them 2) pain management. I love my Lyrica 3) warm blankets and heat packs . Temperature deregulation 4) my IPad. As someone who is housebound, it’s my link to the world 5) sunshine and nature I spend outside in the sun and connect with nature in gratitude. It keeps me grounded WOW. Limiting it to five is really hard. Thanks for the challenge 💕✌🏻
My top 5; #1 - Ergobaum Crutches (can not use my cane anymore cause of wrist, elbow and shoulder pain and weakness) has built in shock absorbers, #2 - ADA toilet and grab bars in toilet and shower, #3 - Shower chair with back support, #4 - Converted task chair for sitting in bathroom to use sink and complete ostomy care, #5 - MY IPAD with mobile stand - helps me order necessities and groceries, keeps track of important stuff, Netflix, YouTUBE. Bonus- My new Alexa, to help with lights, alarms, timers, reminders (doctor's apts, shot schedule, and infusion dates with other schedules, and music. Got to have music.) Will be getting a electric zero gravity chair and bed in the next year and if approved put on a service dog waiting list.. blankets, rock lamp, air filtration, cpap, mobility grab bars for bed and easy chair. Let alone my dollar tree organizer for syringe, woundcare and ostomy supplies. Yes the medication organizers too, have two very large ones. Lol. I guess it is more than 5 for me, 😂
Thank you - very helpful video. I can really relate to you. I have all of these 5 items - but I must try to remember to use them all when needed. I love your sense of humor and individual style. Bless you
I really need a shower chair. I think a cane might be useful or braces for every part of my legs. I need to get a TENS unit as well. Turns out, when I don’t take my pain med, I can barely breathe. So thank God that I have it! Also, Mueller brand has saved me so many times.
namu pokemanchan Definitely understandable, my friend! I hope you’ll be able to get one soon! I was finally able to get one after a year of fighting insurance. They still wouldn’t cover the one I actually need, so I still dislocate my shoulders getting it in and out of my car. But it’s definitely worth it if I’m going to be up and walking around for any amount of time.
Me too. I use a cane at home sometimes. eye patch & sleep mask, heating pads, muscle mesagor, my grab bars are just sitting here...no one will install them for me? WTF This sucks.
I just found your youtube and your list is identical to mine. The tens unit I use is the quell though. My cane is covered in little kid stickers that you get at the urgent care or when you get your blood drawn. So it is just a cane covered in disneyness lol. I also have a walker that we call "the flash". I'm glad I just found this channel so now I just need to look at other ones I've missed!
I absolutely adore your personality! lol Thank you for this video! You have made me feel more comfortable with things that may need to be on my must have list.
My top 5 for arthritis! 1. My pill organizer. Gosh, I can’t imagine not having one! I take too many meds to open them each day 2. My medication timer! Although I have a pill organizer, I started taking meds in the morning too and I won’t take them if I’m not reminded, basically. It’s a little electronic device I got at Rite Aid that beeps at the time you set 3. My cane! I just got one today and I already love it 4. Shoe inserts! I have flat feet and these have really helped out, even though they hurt at first 5. My support group of friends, family, and my dog HAPPY PRIDE MONTH!!!
My 5 spoon must haves are my pill container for all my pills, my heating pad for my scoliosis pain, my tens unit for my hip pain for my congenital hip issues, my walker and my cane for making walking easier.My physical therapist wants to start looking in to a wheelchair to make things easier on me. Hopefully I can get my wheelchair once I can afford it once I get my Able Account up and started. My humidifier to help keep my lungs clear since I have asthma and damage to my lungs due to my congenital heart defects. I have a shower bench which makes things easier on me when showering. Those are the things I use for my chronic illnesses.
I have EDS therefore I, too am a Spoonie! I have a cane, I have blankets my favorite one is got dogs on it. I use a ice/ heat pad that I put in the freezer or microwave and I use a pain relieving cream called Voltaren and it works wonders at knocking out the pain! I need a pill organizer, Unfortunately I also have Epilepsy and I can’t use a TENS unit because it could cause me to have a seizure.
I have 2 heating pads I use every morning for my neck and back. Shower chair is a good idea. I have been thinking about talking with my doctor about a cane and a handicap sing to hang from my rear view mirror, but then I feel like I am giving into the disease.
What the fuck! I had to pause the video to write this. I have never met someone who said what you just said. I too had really sore knees as a kid and my mum took me to the doctors and they said growing pains and after the age of 21 I realised they weren’t! It would be amazing if you could get in touch 💛🦋
I had a TENS unit that I LOVED but I was only allowed to get it for a month. I have no clue how I was going to accord a $1,000.00 awesome used more than twice a day and felt better but guess what. I'm not rich & pay a lot for awesome insurance and used to get tons of chiropractic care that vanished from our PPO last year so we got screwed by my going to the chiropractor (the pain clinic chiropractor) who did a TENS & ultrasound-heated for the muscles behind my shoulder blades where I get unbelievable knotting... & very carefully controlled touch for the Fibromyalgia. I have never been to any other chiropractor who is as careful about making sure we only go to the edge of what my level for the day is, but he can still unlock joints that are big and small and I have a new level of hatred for my expensive health insurance plan that is supposed to cover those costs specifically because we wanted to give me a level of life while I still have one. I have Crohn's and surprise PSC... a disease that has no cure and no treatment beyond getting a liver transplant if the disease goes the cirrhosis version instead of the cancer side of the disease. And because I have been using Suboxone long term for pain management... 2 separate doctors said that I'm pretty much screwed for getting on a UNOS list plus there's high recidivism as well as the fact that I've had 4 major surgeries to deal with the surprise that Crohn's disease was. So, I'm trying to feel well so I can do before I lose options for a life.
There is an awesome app called Medisafe that tracks when you should take medicines, if you did, and why you didn't. It also tracks interactions with other pills, what to do with pills (don't take with alcohol, no grapefruit, take with food, etc), and can get you coupons for them! It's honestly a life saver.
1. My cane. I didn't get one until my last knee surgery, but it's a blue floral print with a glow in the dark silicone handle and tip. Also collapsible. And SO useful! Especially for longer hauls or airplanes. 2. Pill organizer. I use this not for organizing my "daily" pills but rather for carrying around several options of pain / other "take as needed" medicine. I never know when a bad vertigo flare, allergy attack, or pain moment will hit. Now I'm prepared. 3. Icy Hot. I have the roll on kind because it's the only topical thing I've found that works to lessen the pain when needed. I have one at home by my bed and one in my purse because I also love smelling like menthol all the time. 4. Organizer / Calendar. How else would I keep track of all of my appointments? I mostly use the one at work on my desk, but I have a dry erase calendar on my fridge and a large planner in my desk drawer at home. 5. Rocktape. I recently discovered this magic thing that's better than the cute purple KT tape I've been sporting when I had physical therapy yesterday. I don't feel like I have to mentally remember to hold my shoulder in place anymore (darned hypermobile EDS). ^_^ Thanks for your video!
Hey lady. It's been awhile since I checked in. Hope you are feeling decent as can be expected. 😊 Still in a bad P.O.T.S. flare of over 2 yrs, can't stand for more than 15- 20 minutes without whoaaa ... timber. Or a black out. So I'm cheering myself up with your videos they always give me strength and support. You rock! If I wasn't in the weeds I would totally help you on Patreon, because I definitely enjoy your approach to your being chronically ill. For me it's been 15 yrs now. Boo hiss. I am exhausted! Lol P.S. I have gotten a cane for when I need it, you gave me the courage. 💪My spoonie list:1.heating pad, for hiernated Discs+ 2 pillows, 3. Neck pillow for hiernated discs, 4. I have one of the physical therapy long beanbag I heat for pain bendy stretchy cloth cotton things I use for all my surgeries, I've had 102 I & D's and radical biopsies/ staph infections, and cellulitis 5. Ice packs 6. Gatorade always 7. salt 8. Pill organizer ( i take over 20 meds a day 9. Oxymeter -measures heart rate mines too fast when i stand or stand too long it will keep rscimg higher till i drop10. Blood pressure monitor, mine is too low 11. Blankets - temp regulation12. my tabby 🐹🐾who thinks he's a dog, my sick bud, 15 yrs old- a humane society rescue 14. My family and loved ones 15. People that listen and don't question me when I am advocating for myself and my illnesses. That means doctors, emergency rooms, and general public and even friends I've lost which have been a lot because these are invisable chronic illnesses and No one seems to comprehend how you don't get better. They think it's a choice.
Canes come in handy indeed. It's not something I would advise for just any chronically ill person, but I built mine. When you walk with a custom cane, you do get attention...but it's the good kind. 😎 The one I walk with now is the 5th one I've made so far (the others I lost. Long story) & I have at least two more planned. One needs a certain amount of strength to make a cane, not to mention some basic woodworking savvy. I don't always have the former (used to be more active in my projects but not so much anymore) but I do possess the latter. If anyone you know likes the challenge & goes for it, (s)he has my encouragement. Keep in mind that if you have sufficient skill & choose your raw materials wisely, you won't have to bust your butt to put the cane together. The one I have now has a shaft of hickory, but that is not absolutely necessary--hickory is tough stuff, but there are plenty of other hardwoods to choose from that are easier to work with. White ash & birch are other good choices, & they don't usually cost much per board-foot. The only other materials needed are spring steel rod ("wire") from a hobby store, & metal tubing to make the end cap from...I use 3/4" o.d. stainless steel. Online sources for metal stock are legion. I bought my end cap materials from onlinemetals.com & so far, I have no complaints. But for anyone who wants to make a walking cane, I would advise shopping around to compare prices. That goes for wood sources as well. To build a cane, the most important skill is joinery. You have to know how to cut the shaft & handle pieces so they fit together tightly, & in such a way that they stay together under the stress of normal use. It's not complicated to do--carpenters, cabinetmakers & furniture builders have done it for over a millennium now--but it does take precision & a good eye. The saying "measure twice, cut once" definitely applies. I normally go with an open-slot mortise & tenon & pin the joint with spring steel rod after I've put it together. Once you've done that you can rasp & file down or otherwise reduce the shaft & handle, until the cane is light enough to carry & comfortable in your hand. After that, all that's left is sanding & applying the finish.
first of all,,, how dare you be so gorgeous? Second, this video is really nice and helpful. I have juvenile arthritis and I should definitely invest in these things. Thank you!
I love my office chairs on wheels. I have three located in strategic places. One was mine, the others I found for free online. The kitchen one really helps a lot, as I can't stand very much. I also love my walkers. One is in my car, one in my house and one outside. The last one is great for taking things out of the car, and the indoor one is for the same idea of loading it up and moving stuff. I know, the chairs can do the same. I love my parakeet. I leave the cage door open so Ernie can fly to his favorite spot by the window where he chatters all day with the birds. He flies back into his cage when he's done and hangs out where I am. He's not trained by me at all...we just get along well and I don't have to worry about exercising him. I love my shower bench as well. K Dramas keep me well entertained (viki.com). Full fat cottage cheese--tons of protein, low on sugar and salt. Thank you for your video.
My must haves are joint supports/braces, pain killers, allergy meds, food I can actually eat, a blanket and my lizards for support (jk I wish I could take them with me everywhere tho)
I also have a shower chair, because my balance is now terrible. My cane is a shillelagh that I can wave at people who give me evil looks for using a handicapped space even though I have a sticker. My doctor wants me to start using a walker, but that's a lot harder to threaten people with. I also do medieval reenactment, and I'm fairly certain they didn't use rolling walkers in the 12th century. I can"t find my pill organizer either (I blame the cats). I use those disposable tens units you can get at the pharmacy, and I have a super fuzzy warm robe that comes on and off frequently! Fibro and early menopause is a lovely thing.
I am 30 and have a cane too, but I have it for my as. I also have fibro too, and totally get it. And shower chairs and electric blankets. You have a dog named Davey? After Davey Havok?
No seriously!! This list 😂 I need a shower chair and cane and they’re on my list but I can’t afford them yet! I have a pill organiser because my brain fog is awful!! And I have an electric blanket to help the pain in my hips and legs! And I have a husky(cold weather dog) this is weird , wtf I’m allergic to cats too, this is creepy😂😂
1. My wheelchair 2. Shower chair all the way 3. The app Medisafe, sends me notifications for me to take my meds and lists all my meds 4. My go bag (a bag if everything I need to go out so I can grab it in a hurry and not forget anything! 5. My heated blanket
Oh good i'm not the only one that loses thier pill organizer lol. I also need my medical ice pack, ginger ale, and sunglasses. I have Crohn's Disease 😪
if you’re ok talking about it, what disabilities do you have? i have POTS, fibromyalgia, and i also have quite a few things that we haven’t figured out yet. my old doctor told me i need to push through the pain but when i do my body literally collapses. whenever i go out i have to have someone help me keep my balance, and can’t be out for more than 25 minutes or so. i so badly want a mobility aid so i don’t have to rely on people all the time, but i’m also really insecure. i also feel kind of invalid, so it’s really nice finding people with similar disabilities.
I'm sorry you're having such a rough time, and that your doctor isn't more supportive :( I know it's not always an option for everyone, but if it's possible I would definitely recommend finding another doctor. I hope to make a video about it soon, but my current diagnoses are: Ehlers-Danlos Syndrome(h), full Dysautonomia with POTS subtype, Myalgic Encephalomyelitis, Convex Scoliosis, TMD, MCAS, Gastroparesis, and Dysphagia. Strongly suspected are Interstitial Cystitis, Small Fiber Neuropathy, and Sleep Apnea - just waiting for the various appointments to test and confirm. My very first diagnoses was Fibromyalgia, which prevented me from getting proper diagnoses for about 8 years, because all my symptoms were written off as "just the fibro." After an accident in 2016, I developed POTS, and middle of 2018 I was finally properly diagnoses with hEDS, which confirmed Fibromyalgia as a misdiagnosis for me. Everything I had done to try to help the fibro - the physical therapy, the gabapentin, the nortriptyline, etc - it all made my EDS and comobidities worse. Because the physio for fibro tends to be VERY different from the physio for EDS, and it ended up damaging my shoulders to the point that they're permanently subluxated, and fully dislocate easily. To an extent, chronic illness means there will always be symptom/pain that we have to live with and "push through" every day. But a doctor's first response to your pain and symptoms should NOT be to just push through it. They should offer lifestyle change advice, physical therapy referrals, imagine referrals, etc. At the very least. You deserve better care than "just deal with it."
thanks for explaining the tens unit...the pain I have with my condition, I take CBD oil & it works so much better than any med my Dr's try to give me. I personally want to decrease the amounts of meds I take & if CBD helps me get rid of some I am all in but some of my other meds I have to take. Oh I have MS & I can fully relate to the cog-fog & am so thankful for the reminder alarm on my smart phone but with my cog-fog I can walking into the other room to tell someone something & when I get there I look at them and end up saying " yeah, it's gone" & walk away. Thing that helps me most is I turn the most messed up moments into something funny so I disarm my MS in a way & don't have the negative emotional response that can and will head right to any active symptom or create a new symptom.
What on earth is happening in your country? I thought they wanted to cut back on opioid use, but they're making TENS units cost such a lot of money? I'm in the UK and my TENS unit cost £26.00. It's scandalous that you have to pay so much. Mine is the same model a physiotherapist lent me from the hospital.
I'm so glad I stumbled on this. I had not yet seen another person with an Empi TENS unit and I'm hoping that someone can tell me where I can find replacement electrodes? I had a huge supply but felt like I had to ration them when Empi went out of business and have no idea where to find compatible pieces now that I've run out... Would be really grateful for any help!
OOOOoo I actually just talked to my insurance people about this a couple weeks ago, in the same position! They said if you get a prescription for the electrodes from a doctor (they said physical therapist, but my physical therapy place wouldn't write me one, even though insurance got the TENs unit THROUGH them), then take the prescription to a Durable Medical Equipment place, you can get them that way. If you have insurance, I would call and double check (and they could also give you DME addresses in your area). If not, there are options on eBay and Amazon. I don't think they're Empi brand, but so long as the hookups are the same, it'll be fine. (I'm still waiting on a callback from my doctor, so I can't 100% backup the DME thing. But that's what CareSource said to do.)
I have been thinking about getting a tens unit. I am pre diagnosis but I have severe pain in all of my joints most recently my hips have been hurting so much that I can’t stand for longer then 10 minutes but sitting hurts a lot too so I spend a lot of my time in a hot bath or laying down. Should I wait until after my genetic testing and talk to a doctor about getting one or should I just go for it? (I can buy them from amazon)
I would check with your doctor just to be sure it's okay (even just a primary doctor), but as long as you get the go ahead I don't think awaiting a diagnosis should hold you back
OMGosh! I, too, as a child of 5 y/o remember laying on the couch with head on moms lap crying my heart out because my lower back (sacroiliac region), hips & legs hurt SO bad. Dr visit after dr visit (also to b seen for bed wetting) only to b told "growing pains", "nothing wrong with her, she's just spoiled" or "you have too many kids (6), shes crying for attention"....and the list of reasons r too long to repeat using an onscreen keyboard. As for the bedwetting mom was told to stop giving me liquids after 6pm, that i was too lazy to get out of bed & go to the bathroom. I wet the bed til i was 10! (@ 30 y/o a chiropractor did an MRI & discovered spinal stenosis & he said that would b the cause of my bed wetting!) To this day I still have problems with urgency & holding my urinary impulse for longer than a few min. Like you, the older i got, the more symptoms i felt. Flash forward to 35 Y/O...memory problems set in & the feeling I was going crazy...brain felt like it was all jumbled up & racing 50MPH..couldn't complete my thoughts & brain telling me to do a 100 things at once & not being able to complete even one of those tasks. $350,000 & a years worth of tests revealed nothing except an abnormal RA lab value. Was sent to a Rheumatologist, he took a history, drew lab & asked a million questions. He also did the tender point test which hurt to the point of bringing tears. He determined i didn't have RA but i did have FM. He gave me meds for it but they didn't help. Flash forward...I'm 55 now & have recently been DX ADHD predominantly inattentive type & mild dementia. I cried like a baby with both DX finally discovered. The ADHD was a surprise for me (I really did think i was just a highly functioning lunatic, lol). I have a PD (SPD--DX 15 yr ago during an SSDI determination interview) & I attributed my symptoms to seriously thinking i was misdiagnosed & was just plain going crazy. So they were tears of joy that I wasn't going crazy it was the ADHD making me think I was & for finally getting a DX for my declining memory. Since i no longer work, FM symptoms are more manageable, I've tried all the meds for it to no avail. I do take meds for the ADHD & memory and am in a much better place mentally & pain wise than i've been my entire life! When i told her my urinary history she put me on a med for that & now that issue is resolved also! Sorry-not-sorry for the book penned here!
My top 5 r: my 4 wheeled seated walker (so i can remain active outside of the home), my cervical & extra long/wide heating pad, netflix/hulu & games on my iPhone that help take my mind off my pain, a walk-in shower with a built in seat...helps to relieve painful joints & aching muscles & most importantly, a husband who is totally supportive in any role i need him to b. I also go through BioFreeze like crazy. It really helps the low back, hip & joint pain, much better than the shower.
Hey I am the same as you.do you mind me asking what causes your temp problems. I've been to many drs and I have the memory loss too. I have some diagnosis but not all. I get really really hot and get super flushed when I move around or carry some things or even try to feed my dog .everyone things my house is am eskmoo but I can't do heat and will pass out. There has been rare times I couldn't get warm but it's the moving that gets me. But my drs keep telling me nothing I have explains that. Ok I have fibromyalgia, innapropraite sinus tachycardia, endometriosis, gerd, ibs, gastroparesis, gastritis, terrible migraines, restless leg syndrome. Anxiety and some depression. But right now I am trying to find a another opinion for an infectious disease dr. My immulogoist told me that I def have some autoimmune disease that is attacking my immune system but no one can find it. I have to admit the first infectious disease Dr kinda sucked. My immflamtion rate is through the roof. No one knows why. And yes I am on anti inflammatory. Just wondered I've been looking at some people that are super similar to me and it's like that's me. I use everything you mentioned only I add heating pads to extra sore areas. Just very curious
I'm so sorry you're dealing with all of that! My temp problems are caused by Dysautonomia. I would definitely recommend looking into it, especially with everything you've got going on. Unfortunately, I don't think there's really anything that actually helps with the temperature regulation, other than trying to control external factors like we already do :/
Great advice..thank you. Just some feeback for future videos... The background music was super annoying, & overstimulating..it actually made my heart race, and gave me a headache. The constant swivelling on the chair was also very distracting. Things that would be ok for people that don't have chronic illnesses, are overwhelming for people who do....please keep things simple, as your ideas were great, and helpful, and the rest was very distracting.
![MY FIRST SPOONIE ESSENTIALS BOX [CC]](http://i.ytimg.com/vi/13tlg5n64es/mqdefault.jpg)
Omg my shower chair was a life changer. My university accommodation bought it for me because they gave the "disabled" bedroom to someone else. I went from not showering for days because I was tired to being able to shower daily.
My top five spoonie items
1. My owl quilt or pretty much any blanket because I also have issues with temperature regulation.
2. My phone, used for social media and hospital distraction.
3. My totally awesome ultralight wheelchair, because I need to get around somehow right?
4. Music, music, music. I could not live a chronically L life without a lot of different genres of music.
5. My “ circle of support” which in clued people on the Internet, in real life and in my hospital. I couldn’t l couldn’t take this journey without and the Many types of support they give me.
I
I loved this upbeat video and look forward to watching more of them.
Fellow spoonie
I need to get a cane... I'm someone who's chronic pain was also shrugged off as growing pain, and told to exercise, which only made it worse. The past few months have been the most painful that I have ever been, and I still have no idea why. But I literally can't walk without my knees giving out 2-3 times a day, so a cane would help so much.
i love the video! i'm a spoonie as well, but the music in the background was a bit too loud so i couldn't hear everything at all times 💔
Own that pimp cane!
and to anyone judging you for it just yell "Styna Lanes hoes better be making money!"
My planner! It really helps me to stay on track and plan for future events. (When to try and carry over spoons from one day to the next)
I have a WALKER! It was quite embarrassing for me for a while I am actually a grandma and well he by heart too lol my son made me a grandma at 33! I use all of the things you use except no can yet a walker !
I have a walker too! But I left it at my mom's house when I moved. :'( Deciding if I should buy another or get mine from her at some point. ^_^
@@tardislizard The most important thing about walkers is safety and ability to participate more. You are much less apt to fall and you always have a place to sit down for parties, etc. People don't see your walker after awhile. If they do, that's their problem. Do you think people who use aides are weird?
I have a heating pad instead of a blanket :) And I agree with you about the pill organizer (which reminded me to take mine while I was watching your video! lol). My PT is trying to get me a TENS unit (fingers crossed). Great video! Thanks for sharing.
I hope they're able to get you one soon!
Carma Haley Shoemaker my heating pad is my best friend
I love this video! I’m a spoonie too. I have POTS, OH, and possible Fibromyalgia and MCAD. I figure why get the other stuff diagnosed if I already have the other stuff. Lol. I totally understand getting over the whole taking the cane out in public, and using a shower chair, but I am so over it now. They are life savers!
Omg another chronically ill guy. I thought I was alone among all these women.
@@ashirab1909 Nope, not at all. Am a chronically ill guy, too. Been that way for a while now. I think there's more of us around than most people know...the difference is that chronic women are more willing to speak about their conditions publicly than we are. I just talk about my chronic stuff online; in real life the only ones I've ever discussed it with are medical personnel. Old-school masculinity can be hard to shake.
I would like to add about the tens units, some insurances won't cover them because they are too expensive. I needed one several years ago and insurance denied it . The sales lady told me that since I already have a prescription for it, and my insurance denied it, I could buy it myself as uninsured. The cost to my insurance was $500 but for a private sale it was $50. It was well worth it.
My heating pad, a good water bottle with straw (I use a camelbak eddy one), my pill organiser/meds basket which is always within arms reach, and lastly my custom made splint and compression sleeves for my joints!
Blood pressure monitor, pill organizer, Medisafe app (you gotta check it out!), emergency meds in my purse and WATER. Drinking lots of water is a game changer!
TENS units are good, but less relevant when everything is hurting 😂😭
My top five gotta haves
1) supplements and protein drinks. I live on them
2) pain management. I love my Lyrica
3) warm blankets and heat packs . Temperature deregulation
4) my IPad. As someone who is housebound, it’s my link to the world
5) sunshine and nature I spend outside in the sun and connect with nature in gratitude. It keeps me grounded
WOW. Limiting it to five is really hard. Thanks for the challenge 💕✌🏻
What kind of protein drinks?
My top 5; #1 - Ergobaum Crutches (can not use my cane anymore cause of wrist, elbow and shoulder pain and weakness) has built in shock absorbers, #2 - ADA toilet and grab bars in toilet and shower, #3 - Shower chair with back support, #4 - Converted task chair for sitting in bathroom to use sink and complete ostomy care, #5 - MY IPAD with mobile stand - helps me order necessities and groceries, keeps track of important stuff, Netflix, YouTUBE. Bonus- My new Alexa, to help with lights, alarms, timers, reminders (doctor's apts, shot schedule, and infusion dates with other schedules, and music. Got to have music.) Will be getting a electric zero gravity chair and bed in the next year and if approved put on a service dog waiting list.. blankets, rock lamp, air filtration, cpap, mobility grab bars for bed and easy chair. Let alone my dollar tree organizer for syringe, woundcare and ostomy supplies. Yes the medication organizers too, have two very large ones. Lol. I guess it is more than 5 for me, 😂
Update : #1 is zero gravity bed. Yep now definitely a big need. Ergobaum has come out with lighter and better crutches, so now I need those too.
You had me at your channel name🙌 Love how open and honest you are! 💕sending a lot of spoons!
Thank you - very helpful video. I can really relate to you. I have all of these 5 items - but I must try to remember to use them all when needed. I love your sense of humor and individual style. Bless you
I don't have a TENS unit, but I agree with all of these! I have a cane that suits my personality! And OMG! Electric blanket is a must have!
I really need a shower chair. I think a cane might be useful or braces for every part of my legs. I need to get a TENS unit as well. Turns out, when I don’t take my pain med, I can barely breathe. So thank God that I have it! Also, Mueller brand has saved me so many times.
Hello! thanks for your video, Im in the hospital so its a great distraction! I am also a fellow spoonie and just started a vlog as well!
I really really want a wheelchair. It's so hard to get out of bed with scoliosis sometimes
namu pokemanchan Definitely understandable, my friend! I hope you’ll be able to get one soon! I was finally able to get one after a year of fighting insurance. They still wouldn’t cover the one I actually need, so I still dislocate my shoulders getting it in and out of my car. But it’s definitely worth it if I’m going to be up and walking around for any amount of time.
Other than the cane we’re like the same person. One thing is a must have for me is a sleep mask.
Me too. I use a cane at home sometimes. eye patch & sleep mask, heating pads, muscle mesagor, my grab bars are just sitting here...no one will install them for me? WTF This sucks.
Thank you for sharing this! You are incredible! We are always cheering you on!
I just found your youtube and your list is identical to mine. The tens unit I use is the quell though. My cane is covered in little kid stickers that you get at the urgent care or when you get your blood drawn. So it is just a cane covered in disneyness lol. I also have a walker that we call "the flash". I'm glad I just found this channel so now I just need to look at other ones I've missed!
I absolutely adore your personality! lol Thank you for this video! You have made me feel more comfortable with things that may need to be on my must have list.
You are so much fun. Love dark humor with a delicate voice🤣🤣🤣 diferent Chronicle ilnesses but the tips pin point to me. Thanks
"Meat suit"😂
My top 5 for arthritis!
1. My pill organizer. Gosh, I can’t imagine not having one! I take too many meds to open them each day
2. My medication timer! Although I have a pill organizer, I started taking meds in the morning too and I won’t take them if I’m not reminded, basically. It’s a little electronic device I got at Rite Aid that beeps at the time you set
3. My cane! I just got one today and I already love it
4. Shoe inserts! I have flat feet and these have really helped out, even though they hurt at first
5. My support group of friends, family, and my dog
HAPPY PRIDE MONTH!!!
"In my meat suit" Haha!! Thanks for this video. It helped cheer me up. I go through all this stuff.
LOL I own all of these things! 🤣 My top items not on your list are lavender Epsom salts, my giant water bottle, and electrolyte tabs/liquid magnesium
My 5 spoon must haves are my pill container for all my pills, my heating pad for my scoliosis pain, my tens unit for my hip pain for my congenital hip issues, my walker and my cane for making walking easier.My physical therapist wants to start looking in to a wheelchair to make things easier on me. Hopefully I can get my wheelchair once I can afford it once I get my Able Account up and started. My humidifier to help keep my lungs clear since I have asthma and damage to my lungs due to my congenital heart defects. I have a shower bench which makes things easier on me when showering. Those are the things I use for my chronic illnesses.
We have the same cane, although in England I call it a stick 👌🏻
Your voice is so soothing 🙂🙂
I really really need to use my pill organizer so thanks for the reminder!
I have EDS therefore I, too am a Spoonie! I have a cane, I have blankets my favorite one is got dogs on it. I use a ice/ heat pad that I put in the freezer or microwave and I use a pain relieving cream called Voltaren and it works wonders at knocking out the pain! I need a pill organizer, Unfortunately I also have Epilepsy and I can’t use a TENS unit because it could cause me to have a seizure.
I have 2 heating pads I use every morning for my neck and back. Shower chair is a good idea. I have been thinking about talking with my doctor about a cane and a handicap sing to hang from my rear view mirror, but then I feel like I am giving into the disease.
What the fuck! I had to pause the video to write this. I have never met someone who said what you just said. I too had really sore knees as a kid and my mum took me to the doctors and they said growing pains and after the age of 21 I realised they weren’t! It would be amazing if you could get in touch 💛🦋
Return Of Reb all my childhood pain was blamed on growing pains - it suuuucccckkkkksss that nobody believes kids when they say they're in pain
Your voice is very soothing. :)
I had a TENS unit that I LOVED but I was only allowed to get it for a month. I have no clue how I was going to accord a $1,000.00 awesome used more than twice a day and felt better but guess what. I'm not rich & pay a lot for awesome insurance and used to get tons of chiropractic care that vanished from our PPO last year so we got screwed by my going to the chiropractor (the pain clinic chiropractor) who did a TENS & ultrasound-heated for the muscles behind my shoulder blades where I get unbelievable knotting... & very carefully controlled touch for the Fibromyalgia. I have never been to any other chiropractor who is as careful about making sure we only go to the edge of what my level for the day is, but he can still unlock joints that are big and small and I have a new level of hatred for my expensive health insurance plan that is supposed to cover those costs specifically because we wanted to give me a level of life while I still have one. I have Crohn's and surprise PSC... a disease that has no cure and no treatment beyond getting a liver transplant if the disease goes the cirrhosis version instead of the cancer side of the disease. And because I have been using Suboxone long term for pain management... 2 separate doctors said that I'm pretty much screwed for getting on a UNOS list plus there's high recidivism as well as the fact that I've had 4 major surgeries to deal with the surprise that Crohn's disease was. So, I'm trying to feel well so I can do before I lose options for a life.
There is an awesome app called Medisafe that tracks when you should take medicines, if you did, and why you didn't. It also tracks interactions with other pills, what to do with pills (don't take with alcohol, no grapefruit, take with food, etc), and can get you coupons for them! It's honestly a life saver.
1. My cane. I didn't get one until my last knee surgery, but it's a blue floral print with a glow in the dark silicone handle and tip. Also collapsible. And SO useful! Especially for longer hauls or airplanes.
2. Pill organizer. I use this not for organizing my "daily" pills but rather for carrying around several options of pain / other "take as needed" medicine. I never know when a bad vertigo flare, allergy attack, or pain moment will hit. Now I'm prepared.
3. Icy Hot. I have the roll on kind because it's the only topical thing I've found that works to lessen the pain when needed. I have one at home by my bed and one in my purse because I also love smelling like menthol all the time.
4. Organizer / Calendar. How else would I keep track of all of my appointments? I mostly use the one at work on my desk, but I have a dry erase calendar on my fridge and a large planner in my desk drawer at home.
5. Rocktape. I recently discovered this magic thing that's better than the cute purple KT tape I've been sporting when I had physical therapy yesterday. I don't feel like I have to mentally remember to hold my shoulder in place anymore (darned hypermobile EDS). ^_^
Thanks for your video!
Hey lady. It's been awhile since I checked in. Hope you are feeling decent as can be expected. 😊 Still in a bad P.O.T.S. flare of over 2 yrs, can't stand for more than 15- 20 minutes without whoaaa ... timber. Or a black out. So I'm cheering myself up with your videos they always give me strength and support. You rock! If I wasn't in the weeds I would totally help you on Patreon, because I definitely enjoy your approach to your being chronically ill. For me it's been 15 yrs now. Boo hiss. I am exhausted! Lol P.S. I have gotten a cane for when I need it, you gave me the courage. 💪My spoonie list:1.heating pad, for hiernated Discs+ 2 pillows, 3. Neck pillow for hiernated discs, 4. I have one of the physical therapy long beanbag I heat for pain bendy stretchy cloth cotton things I use for all my surgeries, I've had 102 I & D's and radical biopsies/ staph infections, and cellulitis 5. Ice packs 6. Gatorade always 7. salt 8. Pill organizer ( i take over 20 meds a day 9. Oxymeter -measures heart rate mines too fast when i stand or stand too long it will keep rscimg higher till i drop10. Blood pressure monitor, mine is too low 11. Blankets - temp regulation12. my tabby 🐹🐾who thinks he's a dog, my sick bud, 15 yrs old- a humane society rescue 14. My family and loved ones 15. People that listen and don't question me when I am advocating for myself and my illnesses. That means doctors, emergency rooms, and general public and even friends I've lost which have been a lot because these are invisable chronic illnesses and No one seems to comprehend how you don't get better. They think it's a choice.
Canes come in handy indeed. It's not something I would advise for just any chronically ill person, but I built mine. When you walk with a custom cane, you do get attention...but it's the good kind. 😎 The one I walk with now is the 5th one I've made so far (the others I lost. Long story) & I have at least two more planned.
One needs a certain amount of strength to make a cane, not to mention some basic woodworking savvy. I don't always have the former (used to be more active in my projects but not so much anymore) but I do possess the latter. If anyone you know likes the challenge & goes for it, (s)he has my encouragement. Keep in mind that if you have sufficient skill & choose your raw materials wisely, you won't have to bust your butt to put the cane together. The one I have now has a shaft of hickory, but that is not absolutely necessary--hickory is tough stuff, but there are plenty of other hardwoods to choose from that are easier to work with. White ash & birch are other good choices, & they don't usually cost much per board-foot. The only other materials needed are spring steel rod ("wire") from a hobby store, & metal tubing to make the end cap from...I use 3/4" o.d. stainless steel. Online sources for metal stock are legion. I bought my end cap materials from onlinemetals.com & so far, I have no complaints. But for anyone who wants to make a walking cane, I would advise shopping around to compare prices. That goes for wood sources as well.
To build a cane, the most important skill is joinery. You have to know how to cut the shaft & handle pieces so they fit together tightly, & in such a way that they stay together under the stress of normal use. It's not complicated to do--carpenters, cabinetmakers & furniture builders have done it for over a millennium now--but it does take precision & a good eye. The saying "measure twice, cut once" definitely applies. I normally go with an open-slot mortise & tenon & pin the joint with spring steel rod after I've put it together. Once you've done that you can rasp & file down or otherwise reduce the shaft & handle, until the cane is light enough to carry & comfortable in your hand. After that, all that's left is sanding & applying the finish.
Within the first 2 minutes..........(talks about knee pain), Hey! That's exactly what I've been saying to people forever! *good vibes*
I have all these things, except the shower chair. I did however, install a safety bar in my shower.
first of all,,, how dare you be so gorgeous? Second, this video is really nice and helpful. I have juvenile arthritis and I should definitely invest in these things. Thank you!
I love my office chairs on wheels. I have three located in strategic places. One was mine, the others I found for free online. The kitchen one really helps a lot, as I can't stand very much. I also love my walkers. One is in my car, one in my house and one outside. The last one is great for taking things out of the car, and the indoor one is for the same idea of loading it up and moving stuff. I know, the chairs can do the same. I love my parakeet. I leave the cage door open so Ernie can fly to his favorite spot by the window where he chatters all day with the birds. He flies back into his cage when he's done and hangs out where I am. He's not trained by me at all...we just get along well and I don't have to worry about exercising him. I love my shower bench as well. K Dramas keep me well entertained (viki.com). Full fat cottage cheese--tons of protein, low on sugar and salt. Thank you for your video.
My must haves are joint supports/braces, pain killers, allergy meds, food I can actually eat, a blanket and my lizards for support (jk I wish I could take them with me everywhere tho)
I also have a shower chair, because my balance is now terrible. My cane is a shillelagh that I can wave at people who give me evil looks for using a handicapped space even though I have a sticker. My doctor wants me to start using a walker, but that's a lot harder to threaten people with. I also do medieval reenactment, and I'm fairly certain they didn't use rolling walkers in the 12th century. I can"t find my pill organizer either (I blame the cats). I use those disposable tens units you can get at the pharmacy, and I have a super fuzzy warm robe that comes on and off frequently! Fibro and early menopause is a lovely thing.
I am 30 and have a cane too, but I have it for my as. I also have fibro too, and totally get it. And shower chairs and electric blankets. You have a dog named Davey? After Davey Havok?
No seriously!! This list 😂 I need a shower chair and cane and they’re on my list but I can’t afford them yet! I have a pill organiser because my brain fog is awful!! And I have an electric blanket to help the pain in my hips and legs! And I have a husky(cold weather dog) this is weird , wtf I’m allergic to cats too, this is creepy😂😂
I use a $7 plastic yard chair from Wal-mart for my shower chair. It works great!
I really liked this video. Thank you
1. My wheelchair 2. Shower chair all the way 3. The app Medisafe, sends me notifications for me to take my meds and lists all my meds 4. My go bag (a bag if everything I need to go out so I can grab it in a hurry and not forget anything! 5. My heated blanket
My forkie must-haves seem way less must...y now. heh.
I think I need a cane but I feel really embarrassed about using it in public and about my roommates seeing it
Oh good i'm not the only one that loses thier pill organizer lol. I also need my medical ice pack, ginger ale, and sunglasses. I have Crohn's Disease 😪
if you’re ok talking about it, what disabilities do you have? i have POTS, fibromyalgia, and i also have quite a few things that we haven’t figured out yet. my old doctor told me i need to push through the pain but when i do my body literally collapses. whenever i go out i have to have someone help me keep my balance, and can’t be out for more than 25 minutes or so. i so badly want a mobility aid so i don’t have to rely on people all the time, but i’m also really insecure. i also feel kind of invalid, so it’s really nice finding people with similar disabilities.
I'm sorry you're having such a rough time, and that your doctor isn't more supportive :( I know it's not always an option for everyone, but if it's possible I would definitely recommend finding another doctor.
I hope to make a video about it soon, but my current diagnoses are: Ehlers-Danlos Syndrome(h), full Dysautonomia with POTS subtype, Myalgic Encephalomyelitis, Convex Scoliosis, TMD, MCAS, Gastroparesis, and Dysphagia. Strongly suspected are Interstitial Cystitis, Small Fiber Neuropathy, and Sleep Apnea - just waiting for the various appointments to test and confirm. My very first diagnoses was Fibromyalgia, which prevented me from getting proper diagnoses for about 8 years, because all my symptoms were written off as "just the fibro." After an accident in 2016, I developed POTS, and middle of 2018 I was finally properly diagnoses with hEDS, which confirmed Fibromyalgia as a misdiagnosis for me. Everything I had done to try to help the fibro - the physical therapy, the gabapentin, the nortriptyline, etc - it all made my EDS and comobidities worse. Because the physio for fibro tends to be VERY different from the physio for EDS, and it ended up damaging my shoulders to the point that they're permanently subluxated, and fully dislocate easily.
To an extent, chronic illness means there will always be symptom/pain that we have to live with and "push through" every day. But a doctor's first response to your pain and symptoms should NOT be to just push through it. They should offer lifestyle change advice, physical therapy referrals, imagine referrals, etc. At the very least. You deserve better care than "just deal with it."
I have vision problems hearing problems ankle/leg problems and autism not as bad as other people but still very annoying
thanks for explaining the tens unit...the pain I have with my condition, I take CBD oil & it works so much better than any med my Dr's try to give me. I personally want to decrease the amounts of meds I take & if CBD helps me get rid of some I am all in but some of my other meds I have to take. Oh I have MS & I can fully relate to the cog-fog & am so thankful for the reminder alarm on my smart phone but with my cog-fog I can walking into the other room to tell someone something & when I get there I look at them and end up saying " yeah, it's gone" & walk away. Thing that helps me most is I turn the most messed up moments into something funny so I disarm my MS in a way & don't have the negative emotional response that can and will head right to any active symptom or create a new symptom.
Yea Im about to turn 43 and I now have a cain as well never thought Id need one but it is what it is
ty but after 3 near death accidents and 2 traumatic brain injury's , I truly dont remember this video
Same... brain fog is not easy
Your awesome, Great tips!
What on earth is happening in your country? I thought they wanted to cut back on opioid use, but they're making TENS units cost such a lot of money? I'm in the UK and my TENS unit cost £26.00. It's scandalous that you have to pay so much. Mine is the same model a physiotherapist lent me from the hospital.
OrganisedPauper they are about $80 in Australia
I got an amazing one on amazon for like $25 and it’s been incredible for me
I'm so glad I stumbled on this. I had not yet seen another person with an Empi TENS unit and I'm hoping that someone can tell me where I can find replacement electrodes? I had a huge supply but felt like I had to ration them when Empi went out of business and have no idea where to find compatible pieces now that I've run out... Would be really grateful for any help!
OOOOoo I actually just talked to my insurance people about this a couple weeks ago, in the same position! They said if you get a prescription for the electrodes from a doctor (they said physical therapist, but my physical therapy place wouldn't write me one, even though insurance got the TENs unit THROUGH them), then take the prescription to a Durable Medical Equipment place, you can get them that way. If you have insurance, I would call and double check (and they could also give you DME addresses in your area). If not, there are options on eBay and Amazon. I don't think they're Empi brand, but so long as the hookups are the same, it'll be fine.
(I'm still waiting on a callback from my doctor, so I can't 100% backup the DME thing. But that's what CareSource said to do.)
Sick, Tired, and Alone
They also told me they may pay to get a newer unit.
I have been thinking about getting a tens unit. I am pre diagnosis but I have severe pain in all of my joints most recently my hips have been hurting so much that I can’t stand for longer then 10 minutes but sitting hurts a lot too so I spend a lot of my time in a hot bath or laying down. Should I wait until after my genetic testing and talk to a doctor about getting one or should I just go for it? (I can buy them from amazon)
I would check with your doctor just to be sure it's okay (even just a primary doctor), but as long as you get the go ahead I don't think awaiting a diagnosis should hold you back
Borrow one. I found them useless. If they help then buy
Watching this helped me remember to take my pills today!!
OMGosh! I, too, as a child of 5 y/o remember laying on the couch with head on moms lap crying my heart out because my lower back (sacroiliac region), hips & legs hurt SO bad. Dr visit after dr visit (also to b seen for bed wetting) only to b told "growing pains", "nothing wrong with her, she's just spoiled" or "you have too many kids (6), shes crying for attention"....and the list of reasons r too long to repeat using an onscreen keyboard. As for the bedwetting mom was told to stop giving me liquids after 6pm, that i was too lazy to get out of bed & go to the bathroom. I wet the bed til i was 10! (@ 30 y/o a chiropractor did an MRI & discovered spinal stenosis & he said that would b the cause of my bed wetting!) To this day I still have problems with urgency & holding my urinary impulse for longer than a few min. Like you, the older i got, the more symptoms i felt. Flash forward to 35 Y/O...memory problems set in & the feeling I was going crazy...brain felt like it was all jumbled up & racing 50MPH..couldn't complete my thoughts & brain telling me to do a 100 things at once & not being able to complete even one of those tasks. $350,000 & a years worth of tests revealed nothing except an abnormal RA lab value. Was sent to a Rheumatologist, he took a history, drew lab & asked a million questions. He also did the tender point test which hurt to the point of bringing tears. He determined i didn't have RA but i did have FM. He gave me meds for it but they didn't help. Flash forward...I'm 55 now & have recently been DX ADHD predominantly inattentive type & mild dementia. I cried like a baby with both DX finally discovered. The ADHD was a surprise for me (I really did think i was just a highly functioning lunatic, lol). I have a PD (SPD--DX 15 yr ago during an SSDI determination interview) & I attributed my symptoms to seriously thinking i was misdiagnosed & was just plain going crazy. So they were tears of joy that I wasn't going crazy it was the ADHD making me think I was & for finally getting a DX for my declining memory. Since i no longer work, FM symptoms are more manageable, I've tried all the meds for it to no avail. I do take meds for the ADHD & memory and am in a much better place mentally & pain wise than i've been my entire life! When i told her my urinary history she put me on a med for that & now that issue is resolved also! Sorry-not-sorry for the book penned here!
My top 5 r: my 4 wheeled seated walker (so i can remain active outside of the home), my cervical & extra long/wide heating pad, netflix/hulu & games on my iPhone that help take my mind off my pain, a walk-in shower with a built in seat...helps to relieve painful joints & aching muscles & most importantly, a husband who is totally supportive in any role i need him to b. I also go through BioFreeze like crazy. It really helps the low back, hip & joint pain, much better than the shower.
Hey I am the same as you.do you mind me asking what causes your temp problems. I've been to many drs and I have the memory loss too. I have some diagnosis but not all. I get really really hot and get super flushed when I move around or carry some things or even try to feed my dog .everyone things my house is am eskmoo but I can't do heat and will pass out. There has been rare times I couldn't get warm but it's the moving that gets me. But my drs keep telling me nothing I have explains that. Ok I have fibromyalgia, innapropraite sinus tachycardia, endometriosis, gerd, ibs, gastroparesis, gastritis, terrible migraines, restless leg syndrome. Anxiety and some depression. But right now I am trying to find a another opinion for an infectious disease dr. My immulogoist told me that I def have some autoimmune disease that is attacking my immune system but no one can find it. I have to admit the first infectious disease Dr kinda sucked. My immflamtion rate is through the roof. No one knows why. And yes I am on anti inflammatory. Just wondered I've been looking at some people that are super similar to me and it's like that's me. I use everything you mentioned only I add heating pads to extra sore areas. Just very curious
I'm so sorry you're dealing with all of that! My temp problems are caused by Dysautonomia. I would definitely recommend looking into it, especially with everything you've got going on. Unfortunately, I don't think there's really anything that actually helps with the temperature regulation, other than trying to control external factors like we already do :/
Sick, Tired, and Alone thank you so much. I'm going to ask my next Dr
I would use crutches but it hurts my arms but I won’t give in to a chair just yet
Elbow forearm crutches
ive had to start using a wheelchair this past winter and i am sadly becoming increasingly reliant on it..
Pretty cane, can you tell me where you bought it?
Walmart.com! :)
My tens unit was stinging me. Kinda hurt. For tiny thing, I felt electrocuted!
I found it useless for pain relief too. I have HEDS.
May I ask if you yourself have chronic pain condition
Music distracting!!
Great advice..thank you.
Just some feeback for future videos...
The background music was super annoying, & overstimulating..it actually made my heart race, and gave me a headache.
The constant swivelling on the chair was also very distracting.
Things that would be ok for people that don't have chronic illnesses, are overwhelming for people who do....please keep things simple, as your ideas were great, and helpful, and the rest was very distracting.
Looking better feeling better????