It’s so amazing. I’ve had it for 35 years, and I still feel guilty when I can’t do things. Thank you for sharing. You feel with so many of us do, and what can’t be explained to other people. God bless you! And saying a prayer for you.
Jude, thank you so much for your kind words, it means the world to me. That guilt is something so many of us carry, even though we know deep down it’s not our fault. 35 years is such a long time to be battling this, and the fact that you’re still here supporting others and sharing kindness is truly inspiring. You’re absolutely right, so much of what we go through can’t be explained to others, but having this space to connect with people who get it makes it a little lighter, doesn’t it? Thank you for your prayers and for being part of this community. God bless you too!
Thank you so much for this video. 100% speaking to me today! The strategies of heat, distraction and rest are ones I have learnt work for me too. Well sometimes. Nothing works every time! Also prioritising sleep and taking my pain killers at night. I really love your channel 😊
Karen, I’m so glad the video resonated with you! Heat, distraction, and rest can be lifesavers. It’s like we’ve gotta have a whole toolbox of tricks and hope at least one of them helps when we need it most. Prioritizing sleep is huge too. s Thank you so much for your kind words about the channel. It really means the world to me!
I feel so seen by this. Everything you say is like you are reading my mind. I am just now coming out of a two month flare (the longest I’ve ever experienced) and all the progress I had made after months of excercising is gone. But just like you, I try to not lose my mind. It is hard though. Thanks for speaking about this.
My pain has been in high gear for the same length of time. I understand how discouraging it can be. I think I’m stuck on a merry-go-round that’s not a bit of fun. Heat and escapist entertainment, plus staying very lightly active, have helped sustain me through the longest flare I can remember.
@ It will eventually get better and things will not seem so terrible anymore. But I get it, it can be so tiring and overwhelming. I wish you a soon recovery, stay strong.
Marisa, I’m so glad this resonated with you, though my heart breaks knowing how hard this flare has been for you. Two months is such a long time to be stuck in that level of pain and to feel like all your progress has been undone. I know how discouraging that can be. It’s okay to feel frustrated or defeated, it’s so human, but know that even if it feels like you’re back at square one, your effort and resilience are still there. They’ll carry you forward when your body starts cooperating again. Sending so much love your way as you recover from this storm.
I completely sympathize with you as I have fibromyalgia that has disrupted my entire life. I can’t even stand to be touched by anyone and that’s when people want to hug you. Flare ups keep me from even walking because the pain is so great. Fatigue and loss of energy is so hard to deal with. Pain keeps me from sleeping as well. I developed fibromyalgia from trauma of having a surgical thoracotomy. Took me a year and a half to recover from that surgery with lifelong nerve pain. You must maintain a positive attitude no matter what. I have a lot of hobbies like knitting, crochet, reading,spinning yarn, sewing and try to stay as active as I can. I can only sit in one place for no more than an hour. However flare ups are to be taken care of and always be kind to yourself emotionally on those days you just can’t get out of bed. Much love ❤️
Dory, your comment hits so deep. Thank you for sharing your journey, it’s so clear how much strength and resilience you’ve had to find in the face of everything fibromyalgia has thrown your way. Recovering from such a major surgery must have been so hard. And yet, your hobbies show such a beautiful side of how you’ve made space for creativity and joy even within the limits fibro imposes. It’s inspiring to see how you’ve channelled your energy into those outlets while honouring your body’s need for rest. You’re so right, being kind to yourself on those hard days when just getting out of bed feels impossible is everything. That self-compassion is a lifeline when the flares hit hard. Sending you so much love and gentle hugs. You’re an incredible example of what it means to keep going with courage and heart, even when it’s tough. ❤️
This was me yesterday. Thankfully I knew why - the day before I was at the hospital, long queues, long standing times, long distances to walk, many stairs because the elevators were packed, then I went grocery shopping, bags were too heavy but I pushed on through ... then waking up next day? I don't call it a truck but a small electric car - a Citroen Ami just ran me over and reversed and did it again, 4 times. Not only pain, fatigue, but the depression and hopelessness is what gets me really down. We get punished for trying to live a 'normal' life. I'm doing better today, still not fully healed, but anyone in this place, it's ok, take it easy, listen to your body. Sending everyone a soft warm hug.
Oh wow, I can feel the weight of your day just reading this. It’s that combination of physical pain and the mental toll of hopelessness that’s truly the hardest to carry. The fact that you pushed through all of that, though? That’s strength, even if it doesn’t feel like it in the aftermath. But it’s also okay to acknowledge that it was too much. It’s so hard to balance doing what needs to get done with not overdoing it, and honestly, it’s a battle we face every day. Be gentle with yourself as you recover from that truck, I mean, electric car 😉 and know you’re not alone. Sending you love, rest, and hope for brighter moments ahead. 💜
Hello from Scotland. I just found your channel. I have had fibromyalgia and chronic fatigue syndrome over 10 years and I agree, it's a completely debilitating condition. I like you have good weeks and then bam.... Hit with a flare. People who are unawares just don't get it. Even family struggle. My husband poked my arm yesterday as a joke and it felt like he deeply bruised me. The pain felt like when you bump a bruised area and it lingered. Nausea and dizziness is bad and noise. Brain fog memory is dreadful and depression. To name just a few. I am so very sorry you have to travel this road as well. Doing these videos brings awareness and the knowledge that it's not in our heads is helpful. I did question at times was I over dramatic, too sensitive, etc. That's simply not the case. It's real and our feelings physically and emotionally are very real. ❤
Thank you so much for sharing your story. First of all, hello to you in Scotland! I’m so sorry you’ve been dealing with this for over a decade, it’s such a long, exhausting road, and I know exactly what you mean about the ups and downs, the flares that hit out of nowhere, and the way even those closest to us can struggle to fully understand. I’m really glad these videos are helping you feel seen and validated because you are not being overdramatic or “too sensitive.” Everything you’re feeling, physically and emotionally, is real and valid. Fibromyalgia and CFS are so complex and relentless, and having someone recognize that means the world when so often the world brushes it off. Thank you for your kind words and for bringing your voice here. You’re helping to build awareness and connection too, just by sharing. You’re stronger than you probably feel most days, and I hope you have more of those good weeks ahead. Sending you all my love and understanding!
Thank God, I have this page...Thank you for sharing your journey of fibromyalgia..I wished i had found you earlier...I have had fibromyalgia for 23 years and I am on one of my worse flare ever...I just subscribed to your page..so I will be following along with you and other to share our experiences together...God be with you and all who are here suffering this dreadful disease! Thank you again for sharing! We will get through this together...💜🙏💜
Carrie, welcome to the channel! I’m so glad you found it, even though I’m so sorry you’re in the middle of one of your worst flares. After 23 years of battling fibromyalgia, I how hard it is. I have had it for 33 years. Please know that you’re not alone, this space is all about connecting, sharing, and lifting each other up through the storm. Your faith and positivity are beautiful reminders of the strength we hold even when we’re at our lowest. You’re absolutely right, we will get through this together. Having a community that truly understands what it’s like makes such a difference. Thank you for subscribing and being a part of it. It means so much. 🙏♥️ Sending love and prayers your way for comfort, strength, and better days ahead. You’ve got this, and we’re here for each other. 💕
It’s one of those things that we don’t even realize we’re doing. I’ve been there so many times, reaching for comfort food because the pain feels unbearable and I just need something to feel better in the moment. It’s such a natural response.
That "Oh yeah, I remember now" moment when a flare hits is SO real. I think sometimes when we're feeling a bit better, our brain just wants to protect us and forget the worst parts, but then BOOM!
Your honesty is always admirable. I went through the longest and most painful flare I have ever experienced from August to December 2024. I was doing so well, I lost 70lbs, was exercising daily and other than minor aches and pains, I was happy and relatively well. I began to think I was gaslighting myself into believing I was sick before because how could I feel so good for months on end?! That all went down in August. I could barely function. The pain was unbelievable. The weakness and brain fog too were unbearable. Everything hurt. I don’t know how we all get through this, but here we are to see another day. Thinking of you friend, thank you sharing such a huge part of your life in an informative and insightful way.
Thank you so much for sharing this, it really resonates with me because I’ve been there too. When you have those stretches where you feel good, it’s almost like you start questioning everything. And then when the flare comes back, it’s like the rug gets pulled out from under you in the most brutal way. It’s so hard, especially after working so hard to feel better and doing all the right things. I’m so sorry you went through such a long and painful flare, that’s a lot for anyone to handle. But losing 70 lbs, exercising daily, and having those good months…that’s a testament to your strength and resilience. Even in the midst of setbacks, you’ve proven how much you’re capable of. I hope brighter days are ahead for you, and please know you’re not alone in these ups and downs. Sending you so much love and encouragement. 💜
Distraction is what saves me. I’m 75, and I’ve got 4 of my adult kids living with him 5 miles of my house. Seven of my grandkids, as well. (Ages three years to 22 years). If I’m really bad, I don’t wanna see anyone. But many times, if I come out to say hi, my adrenaline kick in. My saving race.
Jude, I love that you’ve found distraction as your saving grace. It’s such a powerful tool when the pain feels overwhelming, sometimes just redirecting our minds can make a world of difference. And wow, what a beautiful blessing to have your family so close by, especially your grandkids. I bet their energy can be so uplifting when you’re up for it. It’s so relatable not wanting to see anyone when things are really bad, those moments of retreat are sometimes necessary to recharge. But I love that when you do decide to step out and say hi, that adrenaline gives you that little extra push. It shows how much love and connection can still break through the tough times. Thank you for sharing this, you’re inspiring, and it’s a reminder that even in the midst of struggles, there’s joy to be found. Sending hugs and hoping you keep finding those bright moments! 🫶
Good video! Keeping hope in what feels like a hopeless moment (fibro flare) is important. It's easy to fall into depression. Be encouraged my fibro friends, we are survivers!!! Also, stay warm, the cold is a killer😢
You’re absolutely right, keeping hope alive during those dark moments is everything. Flares can feel so heavy and endless, and it’s so easy for that hopelessness to creep in, but just hearing words like yours is such a powerful reminder that we’re not alone and we can survive this. And yes, the cold, ugh! It really is brutal on fibro bodies. Sending lots of love and warmth your way. We’ve got this, fibro warrior! 💜
Sarah, your words are like a warm hug, thank you so much for this! Sometimes it’s hard to see it when we’re in the thick of things, but hearing encouragement like yours reminds me to hold onto hope. You’re amazing too, for lifting others up like this.❤️
I am actually doing much better. The fact that this flare did not last as long as the previous one means what I am doing is helping. I am feeling pretty fatigued, though, but we are in the middle of winter and I haven't seen the sun shine in a while.
@ that’s good to hear. I am sure that by eating wholesome, organic food really does help and your flares although horrid won’t last as long. Be kind to yourself. Recover at the pace you need. 💕💕
Over 5 yrs ago I stopped eating meat. 2 yrs ago I took Salt, Oil, and Sugar out of my diet. I only eat Whole food plant based foods. This way of eating has totally healed my arthritis and my body ache that I would have every now and then. I was never told I had Fibromyalgia but, I believe that I did. It kept me from going to work. I use to think it was the barometric pressure that effected me. I kept a journal but there was no correlation for my body ache. Anyway, If you look up Forks over Knives you will find lots of WFPB information. Good luck in your journey, I wish you success in getting your body feeling 100% pain free.
That’s incredible to hear how much healing you’ve experienced from changing your diet, what an inspiring journey! I was vegan for 4 years and was highly inspired by Fork Over Knife (I also watched the documentary. I even have their app. Though I am no longer vegan I do agree that a whole foods diet is the best way to go. Keeping a journal is such a smart move too, even if the patterns weren’t obvious at first, it shows how dedicated you are to finding what your body needs. Thank you so much for sharing this! Stories like yours remind me there’s always hope for improvement and new things to try. Wishing you continued success and so much good health ahead. ❤️🌱
Feel better soon! I give you tons of credit being able to film while having a flare, I’m knocked flat on my butt when I’m in a flare. So, once again, great job and get well soon. 💕💕💕
Thank you so much, Cheryl! That means a lot coming from someone who truly understands how hard flares can hit. Trust me, there are plenty of times when I’m knocked flat too, it’s definitely not easy to push through. But I think we all find our own ways to keep going, even if it’s just little steps at a time. I’m sending you so much love and strength for your flares. It’s such a battle, but you’re doing amazing even when it doesn’t feel like it. You’re a warrior, and your kindness and encouragement just made my day! 💕💕 Rest up and take care of yourself, you deserve it! 😊
I can totally understand why you wanted to do some laundry and just washed six things. Lately I’ve needed to take breaks after just feeding the cats, warming up the car, doing a few dishes. Oh how leaning over the sink and washing my hands can put me into my recliner with a heating massager on my back! And I’ve turned up the heat in our house because the weight of an extra blanket hurts way too much.
Oh my gosh, I totally get this. The smallest tasks can feel monumental some days, and it's so validating to hear someone else say it. That heating massager sounds like a lifesaver! I have also turned up the heat in my house, those little adjustments can make such a big difference when everything feels like too much. You’re doing what you need to take care of yourself, and that’s such a win. Sending you so much love and encouragement. Keep being kind to yourself. ♥️
Thank you for posting this video. Do relate to the struggles we battle when in a flare, then to try and bounce back to your normal is a definite challenge. Wanted to share that I found that light physio and myofascial release massage helps the tense muscles and reduces pain. Maybe something to consider as another tool for pain management if you have not tried this before. Hope your flare ends very soon sending you warm hugs, God bless you! ❤
Thank you so much for your kind words, Mena, and for sharing what’s helped you! I completely relate to how challenging it is to crawl out of a flare and get back to even a hint of “normal.” It’s a battle every time. Light physio and myofascial release are such great tools! I have a great physiotherapist. Sending warm hugs right back to you! I hope you’re finding relief too and that we can both keep finding little things to help along the way. God bless you, too! ❤️
Thank you so much, Amanda! I’m so sorry you’re having a bad day too, it’s such a tough road sometimes. But you’re right, we’re not alone in this, and knowing that brings a little comfort on those hard days. I hope tomorrow is kinder to you and that you find a small moment of peace or relief to hold onto. Sending love and hugs your way, take it one moment at a time. We’ve got this. 💜
I have been experiencing a consistent flaire since Christmas. The fatigue has been relentless! I have managed hotels for the past 35 years and am finding it impossible to get up & go! Thankfully, my owner has been so patient. However, it makes me feel like such a failure professionally. 😢 Praying you are feeling better ! 🙏
Tami, I’m so sorry you’ve been in such a relentless flare since Christmas, that’s such a long time to be fighting this kind of fatigue and pain. The fact that you’ve been managing hotels for 35 years while dealing with this is incredible. Please don’t let that awful feeling of being a “failure” creep in, you’ve already accomplished so much, and just getting through these tough days is a win in itself. I’m so glad your employer has been patient, that kind of understanding is rare and makes a huge difference when you’re struggling. But I know that doesn’t always quiet the self-doubt. You’re not alone in feeling that way, but you are absolutely not a failure. You’re a fighter, and that strength shines through even when it doesn’t feel like it. Thank you for your prayers, I’m sending them right back to you. Wishing for some relief and energy to find their way back to you soon. 💜 Hang in there!
Thank you so much for subscribing and for sharing a bit of your story. I know how tough back and nerve pain is. It’s such an exhausting and invisible battle. It means a lot to me that you found the video helpful. Just know you’re not alone, and we’re all here navigating these storms together. Sending you so much love and gentle hugs today! 💜
You’re so welcome, Terisa! 🙏 Thank you for your kind words and beautiful energy. Here’s to healing and better days ahead for all of us. Take care, and sending you so much love and strength!
My sweet sweet pup always helped me feel better. Loved her so very much. She was like a sweet, perfect, little human. She just passed this December. Probably not a coincidence that I have been in a terrible flare, and got sick. Just realized this. :/
Oh, I feel this so deeply with you. I’m so sorry for your loss. I know how much that hurts because I’ve recently been through it too. My dog of 16 years passed not long ago, and it’s like losing a part of your heart. They’re there for every flare, every tear, every little moment where you feel like the world is too much. And when they’re gone, it leaves such a huge, raw emptiness. It’s not surprising that your health has taken a hit, grief like this can do that, especially when you’re already managing something like fibromyalgia. Your sweet girl was so lucky to have you, just like you were lucky to have her. Sending you all the love and strength I can. 💔🐾
I too have fibromyalgia. I switched my diet to the Carnivore. My flare ups have been reduced by not eating the high oxalate vegetables. Research the effects of oxalates in the body and how they affect so many autoimmune issues. Hope this helps. Praying for your relief. 🙏🙏
Thank you so much for sharing this, Teresa! 🙏 It’s always helpful to hear what’s worked for others who are also dealing with fibromyalgia. I’ll definitely look into oxalates more deeply. Thank you for the tip and for offering that encouragement.
Just my Fibromyalgia experience. I was diagnosed with it at the age of 35. I followed everything the doctors was saying, but then they didn't know much. I'm 63 now and no more Fibromyalgia. Six years ago I ran into a doctor who said it is the food causing the sickness. Interesting thought, I thought. Well if it is only food, surely I can change what foods I eat, specially to get out of all the pain I was having. This doctor went on explaining the sicker you are the more stricter you have to be of your food intake. I started keto and within a few weeks I notice changes, less pain. As time went on I was definitely not having as many flare ups. About almost a year into doing strict keto not dirty keto, I notice the pains I had remaining didn't seem to subside at all. I wanted to heal fully so, I took the next plunge! I eliminated all veggies and fruits, so I was just eating beef mostly, some turkey. and ribs and EGGS galore, only the yolks. Doing this all my fibromyalgia is gone, but if I bring back some foods I fare up in so much pain. I'd eat 1 strawberry a day and by the end of the week you could see how inflamed I was. Turns out Fibromyalgia is caused by the chemical foods being consumed. Most foods people buy today are full of chemicals. Veggies alone are a chemical factory. FDA does not care what chemicals you consume long as they get their bonuses! People it is only food give it a try what could it really hurt? If you'd like to learn more about the Proper Human Diet (PHD) check out these doctors then you'll learn of more doctors teaching it, but here is a good start for learning,. Dr. Anthony Chaffe, Dr. Ken Berry, Dr. Shawn Baker, and if you looking to get prego then Dr. Kiltz, and if you are struggling with cancer check out Professor Dr. Thomas Seyfried. This way of eating cured more then my Fibromyalgia, my A1C went from 12 to 4.2 after a year just eating beef. I was able to stand and walk again, restless leg gone, and seizure that started when I was 57 that the doctors could not explained why I was having them are now also gone! I have to say the last 6 yrs journey has been amazing. I take no medications for any of the illness I had cuz they are all gone. The freedom of pill popping is amazing! I went from feeling like 105 yrs to feeling like I'm 25 yrs young again! Many people have been curing all kinds of illness that doctors told them they had to take the meds, there was no cure. 25 yrs diabetic and all I did was change my food and it is gone! It is the foods causing all the issues, dig down dig deep! Good luck in your journey for health.
Wow, Lisa, your journey is so inspiring! Thank you for sharing all of that. It’s amazing how making such intentional changes to your diet has brought you so much relief and transformed your health. I totally get how life-changing it feels to find something that works when you’ve been struggling for so long. It’s wild how much food can impact our bodies, especially with chronic illnesses like fibromyalgia. Your dedication to digging deep, trying new things, and sticking to what worked is seriously impressive. I love how you broke it down step by step. It must feel like such a huge victory to be off medications and free from symptoms you dealt with for years. I can only imagine how good it feels to walk again and to get your energy back. Thank you for sharing the resources and doctors that helped guide you, too. It’s so generous of you to want to help others find hope and healing. I know your story will inspire so many people who feel stuck in their own struggles. You’re living proof that it’s never too late to feel better. 💜 Sending you so much love on this amazing health journey you’ve created for yourself! Keep thriving! 🙌
This was me Thursday and Friday. Today (Saturday) i was able to work at a kingdom hall construction site and that was a big deal! But i suspect that tomorrow and Monday will be like Thurs and Fri. We'll see. It is still really frustrating. I'm so tired that i can't even think straight now, but i may edit this comment after i've had some sleep. The next morning: I feel soooooo horrible. As tired as I was, I didn't sleep well: I was hot and woke up sweaty, kept waking up, weird dreams, kind of anxious. This morning my pain is almost off the charts. Working for Jehovah was totally worth it yesterday, but I still wish that I didn't have to pay such a high price to do great things.
Oh man, I feel every word of this. It’s so hard when you push through for something meaningful, only to wake up the next day paying for it in pain and exhaustion. That balance between wanting to do good and not overdoing it is such a tough line to walk with fibro. Not sleeping well just adds to the frustration, too. Those weird dreams and restless nights leave you feeling even more drained. But you know what? The fact that you gave your energy to something so important is incredible. It shows your strength and heart, even if it comes with such a high price. 💜 I hope you’re able to rest and recover over the next couple of days. Be kind to yourself, okay? You deserve to take it slow after pouring so much of yourself into such meaningful work. Sending gentle hugs your way. You’re doing amazing things. ❤️
@@tt_looking_glass Thank you. And yes, rest is definitely on the menu today and tomorrow. I'm really feeling the frustration today, but trying to be kind to myself.
You hit the nail on the head, there really is no rhyme or reason sometimes, and that unpredictability can be so maddening. Thank you for the kind words and encouragement, it means so much. Taking it easy is definitely the best (and sometimes only) plan. Hoping for a better stretch soon for both of us. Sending love and hugs your way! ❤️
Sounds like the RA flare I went through around Christmas and unfortunately I had to use steroids to knock it back. I hope you feel better.❤❤❤❤ Also I love your encouragement ❤
Ugh, those holiday flares are the worst. I’m so sorry you went through that! It’s tough when steroids are the only thing that can get things under control, but sometimes we just have to do whatever it takes to survive the storm. I really hope you’re feeling better now, or at least catching some breaks between the hard days. And thank you so much for your sweet words, they mean a lot! ❤️ It’s all about encouraging each other through this unpredictable, messy ride, right? Sending you lots of love and hoping for calmer days ahead for both of us!
Yeah, same. Sometimes I start like for a couple of days , then go back down for 10 days. But have to keep going in good times. And the heating pad that you are using, i ordered similar. It's the best thing I did for sanity!
I feel you on that rollercoaster, those short bursts of “okay” days, followed by being knocked down again, can mess with your head. It’s so hard, but you’re absolutely right: holding onto the good times when they come is such a lifeline. And yes, heating pads are a must. They’re like a little hug for your pain. I’m so glad you got one, it’s honestly one of the best self-care tools I’ve found too. Sending hugs and hope that those good days start showing up more often!
I feel you! I was doing great as well until the cold hit us in the south, I fought and ignored for the first two days but then I crashed and had to leave work and laid in bed the rest the of the day. ❤
The cold has such a way of creeping in and making everything harder, and I know how much strength it takes to push through those first couple of days. But when the crash comes, it’s like your body just forces you to stop. I’ve had those days where I had to leave everything behind and just lie down, and honestly, it’s such a humbling reminder of how unpredictable this is. Please don’t be hard on yourself for needing that rest, you’re doing what you can, and that’s enough.
I can empathize. I’ve been in a flare forever, but this past week has been rough. Distraction helps me as well. So tired, achy, and headaches. I made banana bread and that gave me a dose of joy. 😊
I get it! flare-ups are exhausting, both physically and mentally. It’s awesome that you found a little joy in baking banana bread! There’s just something so comforting about doing something simple and creative like that. Distraction is such a lifesaver during those tough moments. Sending you gentle hugs and hoping things ease up for you soon! 💜
That’s awesome, Sanja! I completely agree, cutting out sugar can make such a difference. It’s wild how much it can impact inflammation and overall pain levels. I’ve noticed the same thing. Whenever I have sugar, everything just feels worse. Thanks for sharing what’s worked for you, it’s so encouraging to hear! ♥️
It didn't happen overnight. It happened 2 or 3 days ago. Your body gave you hints but you didn't listen. And you had a flair. I know this because I have had fibromyalia since 1991, when only chiropractors and DOs believed fibro was even legitimate. And I do the same thing. It is so easy to take advantage of good days. So you keep going, until your body makes you stop. You need to take these breaks. Slow down. Very gentle exercise. Simple cleansing diet. Stretching. Chair yoga can be helpful. And, if you can, sleep. We have to live with this. Don't beat yourself up.
Patty, you hit the nail on the head, it really doesn’t happen overnight. Our bodies are always giving us those little warnings, but it’s so easy to push them aside, especially when we’re feeling good for a moment. I can absolutely relate to that cycle of taking advantage of good days and then realizing too late that we’ve pushed too far. It’s such a tough balance. Your advice is so thoughtful and grounded, those reminders to slow down, take breaks, and focus on gentle care is wise. I love how you emphasized not beating yourself up, too, because guilt just adds another layer to what we’re already dealing with. We’re doing the best we can, right? Thank you for sharing your experience and wisdom. Having lived with fibro for so long, you’ve clearly learned a lot about what works, and I appreciate you sharing it with such kindness. 💜 You’re a reminder that we can manage this, even if it takes patience and compassion with ourselves. Sending you lots of gentle hugs! 😊
Mary, you are so right, fibromyalgia is sneaky, and it loves to show up out of nowhere just when you think you’re doing okay. Hurting since October is absolutely exhausting,, I’m so sorry you’re going through this. It’s such a long time to carry that weight. Sending you so much love and strength to get through the tough days. Hoping for a break and better days ahead for you soon. 💜
@tt_looking_glass thank you so much 💕 I finally went to a pain specialist. He said the muscle are tight. Physical therapy next. I feel so guilty because I don't feel like working out.
Please don’t feel guilty about not working out right now! Your body is already carrying so much, physical therapy can be such a great next step, but remember, just showing up for it is enough, you don’t have to push yourself beyond what feels doable. Be kind to yourself, you deserve that grace. Sending you lots of encouragement and hoping you start feeling some relief soon! 💕
Have you tried the carnivore diet? I also have fibromyalgia and I am slowly lowering my carbs until I am just eating meat to see if it will alleviate the pain. I hope it works for me
I have tried the carnivore diet before, but honestly, it just wasn’t for me. That said, I completely agree that lowering carbs makes such a big difference! I’ve found that sticking to a low-carb way of eating helps with energy and inflammation quite a bit, so I really hope it works for you too. It’s all about finding what makes your body feel even a little better, right? Sending you lots of encouragement as you try this out. 💜
Please look into mold-toxicity. I was diagnosed with Fibromyalgia, but it was actually my living environment which was poisoning me due to toxic mold in the house.
Environmental factors are such an important point and something that often gets overlooked. Toxic mold can wreak havoc on the body, and it’s heartbreaking to think how many people might be misdiagnosed or suffering without realizing their environment could be the cause. I can’t imagine how hard it must have been for you to figure that out, but I’m so glad you did. Your experience might be a lightbulb moment for someone else going through similar struggles, so thank you for speaking up. 💜
I really relate to your pain.Fibro has taken over my body over since I was 42.It's horrible how overnight a nasty flare can come on.My doctor put me on Lyrica it seems to help.I take it at bedtime.I also take Tylenol 3 and amitriptyline at bedtime.Have you tried dr.teals hemp or the sleep melatonin bath soak.They really help me before bedtime.
I hear you, and I know exactly what you mean, fibro can just take over your whole life. It’s wild how one moment you’re managing, and the next, a flare completely knocks you off your feet. I’m glad Lyrica is giving you some relief, and that bedtime routine you’ve built sounds so comforting. I haven’t tried the Dr. Teal’s hemp soak, but now you’ve got me curious. Thanks for sharing your tips with us.
I had to up my prozac dosage 10mg hoping it would get me out of this fatigue thinking maybe it’s my depression. It’s been five weeks and I’m still tired and wanting to sleep all the time. I’m dealing with vaginal atrophy at the moment and that’s not helping. It’s always something. A day after Christmas I couldn’t use my right arm much, it just quit working so much pain with movement, and the only thing I did was clean clean clean the day before Christmas as I had guest coming. It is better my arm now but it took awhile to get better. Now it’s the dam fatigue and anxiety.
Deborah, I can feel the weight of what you’re carrying right now, and I’m so sorry it’s been such a tough stretch. It really is always something, isn’t it? Just when you think you might get a break, something else comes crashing in. That level of fatigue, mixed with pain and anxiety, is exhausting in ways people don’t understand unless they’ve been there. I’m glad your arm is doing a bit better now, but I know how hard it is when it takes so long to see even small improvements. And on top of all that, trying to navigate medications and everything else, it’s just a lot. I am officially in menopause, and I know its challenges. Hormone Replacement Therapy helped me a lot, though I know they are not for everyone. Please know you’re not alone in this. Sending you so much love and strength as you keep pushing through this storm. ❤️
I’m so sorry you’ve been stuck in a flare for that long, it’s so hard when it feels like there’s no break. I know how draining it is, both physically and emotionally, to keep pushing through day after day. Please remember that you’re doing an incredible job just holding on through this. I hope so much that relief finds you soon. 💜
I had never seen your channel before. You came up in my suggestions and I just to click on the video...why? I 100% looked just like your thumbnail as I was scrolling. Laying in bed...lots of removable clothing layers...1 light weight blanket and 1 weighted blanket on top. With a fan blowing straight on me. I'm sure I'm not the only one who does this lol
First off, welcome to the channel. I’m so glad the thumbnail caught your eye and brought you here! 😊 And I’m cracking up because yes, that “layered up with a fan blowing straight on you” setup is so relatable. You’re definitely not alone in that, managing fibromyalgia is an art. Thanks for stopping by and sharing this, I love hearing how others manage their flare 💜
@tt_looking_glass me too! You actually reminded me that I needed to get a heated blanket. I moved back in the spring and forgot we got rid of them because they broke. I'll be watching back your older videos to find out more tips
Vitamin D, Magnesium, Potassium, Benfotiamine (fat soluble B1) I was deficient (as many are) in them & not taking my D3 correctly (with fat). Magnesium is needed to utilize vitamin D and I guarantee most of us with Fibromyalgia are deficient in Magnesium!! Started taking Methylene Blue. And drinking SourSop tea 👍🏼
You’re so on point with this! It’s amazing how deficiencies in things like Vitamin D, Magnesium, and B1 can wreak havoc on the body, especially with fibro. That fat-soluble Vitamin D tip is golden, so many people don’t realize it needs fat to absorb properly. You’re clearly putting in the effort to give your body what it needs, and I hope you’re feeling the benefits. Keep doing what works for you, and thank you for sharing these tips, they’re so helpful for anyone on a similar journey.
It is so hard to go over the flare, specially the Nerve pain, its incredibly painful. I've been diagnosed with fibromialgia, the other doctor diagnosed me with Complex PTSD and somatoform disorder, then the ruled out the fibro, am so confused. The doctor said that i can get rid off the pain by changing my mind thinking from negative to positive (bad habits, negative thoughts😮) But, all the symptoms of the fibro are persist. Just wondering can I have a fibro too or its the pain coming from my brocken mind🤔 so confused. I wonder if your doctors ever tells you that you might have that Somatoform disorder?
Trauma can actually be a cause of fibromyalgia. I have cptsd and fibromyalgia as well. From what I understand, fibromyalgia is your nervous system being fried, which, like i said, can be caused by cptsd/ptsd. Thanks a lot to my late narcissistic husband.
I can feel the frustration and pain in your words,it’s so exhausting to be stuck in this cycle of uncertainty and suffering. The suggestion to “think positive” can feel so dismissive when you’re in the middle of real, unrelenting pain. Of course, mindset matters, but it doesn’t erase the physical symptoms, and it’s not a magic fix. I totally get why you’d feel confused and even a little disheartened by that. You’re not alone in wondering if fibro might still be part of the puzzle. Hang in there, and keep advocating for yourself, you deserve answers and support. Sending you so much love and strength as you navigate all of this. 💜
I haven’t been diagnosed with ME/CFS, but I do deal with PEM, and it’s so brutal sometimes. I also have POTS, so it can be tricky to tell where one condition ends and another begins because they all overlap so much. It’s like this tangled web of symptoms that keeps you guessing!
I haven’t personally tried Ivermectin for fibromyalgia, but I’ve been hearing about it lately that it cures a bunch of illnesses. I. Ean it was used for Covid so it may also help for Long Covid. Fibro is such a wild ride, and it seems like we’re all constantly looking for something that might help take the edge off the storm. Have you had any experience with it? I’m always open to hearing what others have found helpful on this crazy journey.
It’s so amazing. I’ve had it for 35 years, and I still feel guilty when I can’t do things. Thank you for sharing. You feel with so many of us do, and what can’t be explained to other people. God bless you! And saying a prayer for you.
Jude, thank you so much for your kind words, it means the world to me. That guilt is something so many of us carry, even though we know deep down it’s not our fault. 35 years is such a long time to be battling this, and the fact that you’re still here supporting others and sharing kindness is truly inspiring.
You’re absolutely right, so much of what we go through can’t be explained to others, but having this space to connect with people who get it makes it a little lighter, doesn’t it? Thank you for your prayers and for being part of this community. God bless you too!
Thank you so much for this video. 100% speaking to me today! The strategies of heat, distraction and rest are ones I have learnt work for me too. Well sometimes. Nothing works every time! Also prioritising sleep and taking my pain killers at night. I really love your channel 😊
Karen, I’m so glad the video resonated with you! Heat, distraction, and rest can be lifesavers. It’s like we’ve gotta have a whole toolbox of tricks and hope at least one of them helps when we need it most. Prioritizing sleep is huge too. s
Thank you so much for your kind words about the channel. It really means the world to me!
I feel so seen by this. Everything you say is like you are reading my mind. I am just now coming out of a two month flare (the longest I’ve ever experienced) and all the progress I had made after months of excercising is gone. But just like you, I try to not lose my mind. It is hard though. Thanks for speaking about this.
My pain has been in high gear for the same length of time. I understand how discouraging it can be. I think I’m stuck on a merry-go-round that’s not a bit of fun. Heat and escapist entertainment, plus staying very lightly active, have helped sustain me through the longest flare I can remember.
@ It will eventually get better and things will not seem so terrible anymore. But I get it, it can be so tiring and overwhelming. I wish you a soon recovery, stay strong.
@@marisaacosta3369 Thank you. Blessings and peace to you. Stay strong too.
Marisa, I’m so glad this resonated with you, though my heart breaks knowing how hard this flare has been for you. Two months is such a long time to be stuck in that level of pain and to feel like all your progress has been undone. I know how discouraging that can be.
It’s okay to feel frustrated or defeated, it’s so human, but know that even if it feels like you’re back at square one, your effort and resilience are still there. They’ll carry you forward when your body starts cooperating again. Sending so much love your way as you recover from this storm.
I completely sympathize with you as I have fibromyalgia that has disrupted my entire life. I can’t even stand to be touched by anyone and that’s when people want to hug you. Flare ups keep me from even walking because the pain is so great. Fatigue and loss of energy is so hard to deal with. Pain keeps me from sleeping as well. I developed fibromyalgia from trauma of having a surgical thoracotomy. Took me a year and a half to recover from that surgery with lifelong nerve pain. You must maintain a positive attitude no matter what. I have a lot of hobbies like knitting, crochet, reading,spinning yarn, sewing and try to stay as active as I can. I can only sit in one place for no more than an hour. However flare ups are to be taken care of and always be kind to yourself emotionally on those days you just can’t get out of bed. Much love ❤️
Dory, your comment hits so deep. Thank you for sharing your journey, it’s so clear how much strength and resilience you’ve had to find in the face of everything fibromyalgia has thrown your way.
Recovering from such a major surgery must have been so hard. And yet, your hobbies show such a beautiful side of how you’ve made space for creativity and joy even within the limits fibro imposes. It’s inspiring to see how you’ve channelled your energy into those outlets while honouring your body’s need for rest.
You’re so right, being kind to yourself on those hard days when just getting out of bed feels impossible is everything. That self-compassion is a lifeline when the flares hit hard. Sending you so much love and gentle hugs. You’re an incredible example of what it means to keep going with courage and heart, even when it’s tough. ❤️
This was me yesterday. Thankfully I knew why - the day before I was at the hospital, long queues, long standing times, long distances to walk, many stairs because the elevators were packed, then I went grocery shopping, bags were too heavy but I pushed on through ... then waking up next day? I don't call it a truck but a small electric car - a Citroen Ami just ran me over and reversed and did it again, 4 times. Not only pain, fatigue, but the depression and hopelessness is what gets me really down. We get punished for trying to live a 'normal' life. I'm doing better today, still not fully healed, but anyone in this place, it's ok, take it easy, listen to your body. Sending everyone a soft warm hug.
Oh wow, I can feel the weight of your day just reading this. It’s that combination of physical pain and the mental toll of hopelessness that’s truly the hardest to carry.
The fact that you pushed through all of that, though? That’s strength, even if it doesn’t feel like it in the aftermath. But it’s also okay to acknowledge that it was too much. It’s so hard to balance doing what needs to get done with not overdoing it, and honestly, it’s a battle we face every day.
Be gentle with yourself as you recover from that truck, I mean, electric car 😉 and know you’re not alone. Sending you love, rest, and hope for brighter moments ahead. 💜
Hello from Scotland. I just found your channel. I have had fibromyalgia and chronic fatigue syndrome over 10 years and I agree, it's a completely debilitating condition. I like you have good weeks and then bam.... Hit with a flare. People who are unawares just don't get it. Even family struggle. My husband poked my arm yesterday as a joke and it felt like he deeply bruised me. The pain felt like when you bump a bruised area and it lingered. Nausea and dizziness is bad and noise. Brain fog memory is dreadful and depression. To name just a few. I am so very sorry you have to travel this road as well. Doing these videos brings awareness and the knowledge that it's not in our heads is helpful. I did question at times was I over dramatic, too sensitive, etc. That's simply not the case. It's real and our feelings physically and emotionally are very real. ❤
Thank you so much for sharing your story. First of all, hello to you in Scotland! I’m so sorry you’ve been dealing with this for over a decade, it’s such a long, exhausting road, and I know exactly what you mean about the ups and downs, the flares that hit out of nowhere, and the way even those closest to us can struggle to fully understand.
I’m really glad these videos are helping you feel seen and validated because you are not being overdramatic or “too sensitive.” Everything you’re feeling, physically and emotionally, is real and valid. Fibromyalgia and CFS are so complex and relentless, and having someone recognize that means the world when so often the world brushes it off.
Thank you for your kind words and for bringing your voice here. You’re helping to build awareness and connection too, just by sharing. You’re stronger than you probably feel most days, and I hope you have more of those good weeks ahead. Sending you all my love and understanding!
Thank God, I have this page...Thank you for sharing your journey of fibromyalgia..I wished i had found you earlier...I have had fibromyalgia for 23 years and I am on one of my worse flare ever...I just subscribed to your page..so I will be following along with you and other to share our experiences together...God be with you and all who are here suffering this dreadful disease! Thank you again for sharing! We will get through this together...💜🙏💜
Carrie, welcome to the channel! I’m so glad you found it, even though I’m so sorry you’re in the middle of one of your worst flares. After 23 years of battling fibromyalgia, I how hard it is. I have had it for 33 years. Please know that you’re not alone, this space is all about connecting, sharing, and lifting each other up through the storm.
Your faith and positivity are beautiful reminders of the strength we hold even when we’re at our lowest. You’re absolutely right, we will get through this together. Having a community that truly understands what it’s like makes such a difference. Thank you for subscribing and being a part of it. It means so much. 🙏♥️
Sending love and prayers your way for comfort, strength, and better days ahead. You’ve got this, and we’re here for each other. 💕
Eating junk food to counteract the pain is a really good point. I never made the connection until you pointed this out. Thank you so much. ❤
It’s one of those things that we don’t even realize we’re doing. I’ve been there so many times, reaching for comfort food because the pain feels unbearable and I just need something to feel better in the moment. It’s such a natural response.
I get it! When you are doing better ou forget how bad it gets when you get a flare, it is llike "Oh yeah, now I remember how bad it can be"
I know exactly what you mean and I say the same the thing when I get those bad flares.
That "Oh yeah, I remember now" moment when a flare hits is SO real. I think sometimes when we're feeling a bit better, our brain just wants to protect us and forget the worst parts, but then BOOM!
Your honesty is always admirable.
I went through the longest and most painful flare I have ever experienced from August to December 2024. I was doing so well, I lost 70lbs, was exercising daily and other than minor aches and pains, I was happy and relatively well. I began to think I was gaslighting myself into believing I was sick before because how could I feel so good for months on end?! That all went down in August. I could barely function. The pain was unbelievable. The weakness and brain fog too were unbearable. Everything hurt. I don’t know how we all get through this, but here we are to see another day.
Thinking of you friend, thank you sharing such a huge part of your life in an informative and insightful way.
Thank you so much for sharing this, it really resonates with me because I’ve been there too. When you have those stretches where you feel good, it’s almost like you start questioning everything. And then when the flare comes back, it’s like the rug gets pulled out from under you in the most brutal way. It’s so hard, especially after working so hard to feel better and doing all the right things.
I’m so sorry you went through such a long and painful flare, that’s a lot for anyone to handle. But losing 70 lbs, exercising daily, and having those good months…that’s a testament to your strength and resilience. Even in the midst of setbacks, you’ve proven how much you’re capable of. I hope brighter days are ahead for you, and please know you’re not alone in these ups and downs. Sending you so much love and encouragement. 💜
Distraction is what saves me. I’m 75, and I’ve got 4 of my adult kids living with him 5 miles of my house. Seven of my grandkids, as well. (Ages three years to 22 years). If I’m really bad, I don’t wanna see anyone. But many times, if I come out to say hi, my adrenaline kick in. My saving race.
Jude, I love that you’ve found distraction as your saving grace. It’s such a powerful tool when the pain feels overwhelming, sometimes just redirecting our minds can make a world of difference. And wow, what a beautiful blessing to have your family so close by, especially your grandkids. I bet their energy can be so uplifting when you’re up for it.
It’s so relatable not wanting to see anyone when things are really bad, those moments of retreat are sometimes necessary to recharge. But I love that when you do decide to step out and say hi, that adrenaline gives you that little extra push. It shows how much love and connection can still break through the tough times.
Thank you for sharing this, you’re inspiring, and it’s a reminder that even in the midst of struggles, there’s joy to be found. Sending hugs and hoping you keep finding those bright moments! 🫶
Good video! Keeping hope in what feels like a hopeless moment (fibro flare) is important. It's easy to fall into depression. Be encouraged my fibro friends, we are survivers!!! Also, stay warm, the cold is a killer😢
You’re absolutely right, keeping hope alive during those dark moments is everything. Flares can feel so heavy and endless, and it’s so easy for that hopelessness to creep in, but just hearing words like yours is such a powerful reminder that we’re not alone and we can survive this.
And yes, the cold, ugh! It really is brutal on fibro bodies. Sending lots of love and warmth your way. We’ve got this, fibro warrior! 💜
You are still amazing. You have not loss the progress. You can do this. ❤❤❤❤❤❤❤❤
Sarah, your words are like a warm hug, thank you so much for this! Sometimes it’s hard to see it when we’re in the thick of things, but hearing encouragement like yours reminds me to hold onto hope.
You’re amazing too, for lifting others up like this.❤️
@ how are you today?🙏💕
I am actually doing much better. The fact that this flare did not last as long as the previous one means what I am doing is helping. I am feeling pretty fatigued, though, but we are in the middle of winter and I haven't seen the sun shine in a while.
@ that’s good to hear. I am sure that by eating wholesome, organic food really does help and your flares although horrid won’t last as long. Be kind to yourself. Recover at the pace you need. 💕💕
Over 5 yrs ago I stopped eating meat. 2 yrs ago I took Salt, Oil, and Sugar out of my diet. I only eat Whole food plant based foods. This way of eating has totally healed my arthritis and my body ache that I would have every now and then. I was never told I had Fibromyalgia but, I believe that I did. It kept me from going to work. I use to think it was the barometric pressure that effected me. I kept a journal but there was no correlation for my body ache. Anyway, If you look up Forks over Knives you will find lots of WFPB information. Good luck in your journey, I wish you success in getting your body feeling 100% pain free.
That’s incredible to hear how much healing you’ve experienced from changing your diet, what an inspiring journey! I was vegan for 4 years and was highly inspired by Fork Over Knife (I also watched the documentary. I even have their app. Though I am no longer vegan I do agree that a whole foods diet is the best way to go.
Keeping a journal is such a smart move too, even if the patterns weren’t obvious at first, it shows how dedicated you are to finding what your body needs. Thank you so much for sharing this! Stories like yours remind me there’s always hope for improvement and new things to try. Wishing you continued success and so much good health ahead. ❤️🌱
Feel better soon! I give you tons of credit being able to film while having a flare, I’m knocked flat on my butt when I’m in a flare. So, once again, great job and get well soon. 💕💕💕
Thank you so much, Cheryl! That means a lot coming from someone who truly understands how hard flares can hit. Trust me, there are plenty of times when I’m knocked flat too, it’s definitely not easy to push through. But I think we all find our own ways to keep going, even if it’s just little steps at a time.
I’m sending you so much love and strength for your flares. It’s such a battle, but you’re doing amazing even when it doesn’t feel like it. You’re a warrior, and your kindness and encouragement just made my day! 💕💕 Rest up and take care of yourself, you deserve it! 😊
I can totally understand why you wanted to do some laundry and just washed six things. Lately I’ve needed to take breaks after just feeding the cats, warming up the car, doing a few dishes. Oh how leaning over the sink and washing my hands can put me into my recliner with a heating massager on my back! And I’ve turned up the heat in our house because the weight of an extra blanket hurts way too much.
Oh my gosh, I totally get this. The smallest tasks can feel monumental some days, and it's so validating to hear someone else say it. That heating massager sounds like a lifesaver! I have also turned up the heat in my house, those little adjustments can make such a big difference when everything feels like too much. You’re doing what you need to take care of yourself, and that’s such a win.
Sending you so much love and encouragement. Keep being kind to yourself. ♥️
Thank you for posting this video. Do relate to the struggles we battle when in a flare, then to try and bounce back to your normal is a definite challenge. Wanted to share that I found that light physio and myofascial release massage helps the tense muscles and reduces pain. Maybe something to consider as another tool for pain management if you have not tried this before. Hope your flare ends very soon sending you warm hugs, God bless you! ❤
Thank you so much for your kind words, Mena, and for sharing what’s helped you! I completely relate to how challenging it is to crawl out of a flare and get back to even a hint of “normal.” It’s a battle every time.
Light physio and myofascial release are such great tools! I have a great physiotherapist.
Sending warm hugs right back to you! I hope you’re finding relief too and that we can both keep finding little things to help along the way. God bless you, too! ❤️
Thank you for video I'm having bad day too we are not alone hope today was a better day for you xx
Thank you so much, Amanda! I’m so sorry you’re having a bad day too, it’s such a tough road sometimes. But you’re right, we’re not alone in this, and knowing that brings a little comfort on those hard days.
I hope tomorrow is kinder to you and that you find a small moment of peace or relief to hold onto. Sending love and hugs your way, take it one moment at a time. We’ve got this. 💜
Love .hugs and prayers . I hope your flare is over soon. I do my meds the same way because I have so much trouble sleeping. stay strong !
Thank you so much, Anisa! Sending love, hugs, and prayers right back to you.
Your welcome!
I have been experiencing a consistent flaire since Christmas. The fatigue has been relentless! I have managed hotels for the past 35 years and am finding it impossible to get up & go! Thankfully, my owner has been so patient. However, it makes me feel like such a failure professionally. 😢 Praying you are feeling better ! 🙏
Tami, I’m so sorry you’ve been in such a relentless flare since Christmas, that’s such a long time to be fighting this kind of fatigue and pain. The fact that you’ve been managing hotels for 35 years while dealing with this is incredible. Please don’t let that awful feeling of being a “failure” creep in, you’ve already accomplished so much, and just getting through these tough days is a win in itself.
I’m so glad your employer has been patient, that kind of understanding is rare and makes a huge difference when you’re struggling. But I know that doesn’t always quiet the self-doubt. You’re not alone in feeling that way, but you are absolutely not a failure. You’re a fighter, and that strength shines through even when it doesn’t feel like it.
Thank you for your prayers, I’m sending them right back to you. Wishing for some relief and energy to find their way back to you soon. 💜 Hang in there!
Thank you for the encouragement!@@tt_looking_glass
Hi i suffer from back and nerve pain. This was a nice video. I just subscribed 💜
Thank you so much for subscribing and for sharing a bit of your story. I know how tough back and nerve pain is. It’s such an exhausting and invisible battle. It means a lot to me that you found the video helpful. Just know you’re not alone, and we’re all here navigating these storms together. Sending you so much love and gentle hugs today! 💜
Thanks for sharing! God HEAL us All!! 🙏🏼 Take care 🙂✌️🙏🏼🌹
You’re so welcome, Terisa! 🙏 Thank you for your kind words and beautiful energy. Here’s to healing and better days ahead for all of us. Take care, and sending you so much love and strength!
My sweet sweet pup always helped me feel better. Loved her so very much. She was like a sweet, perfect, little human. She just passed this December. Probably not a coincidence that I have been in a terrible flare, and got sick. Just realized this. :/
Oh, I feel this so deeply with you. I’m so sorry for your loss. I know how much that hurts because I’ve recently been through it too. My dog of 16 years passed not long ago, and it’s like losing a part of your heart. They’re there for every flare, every tear, every little moment where you feel like the world is too much. And when they’re gone, it leaves such a huge, raw emptiness.
It’s not surprising that your health has taken a hit, grief like this can do that, especially when you’re already managing something like fibromyalgia. Your sweet girl was so lucky to have you, just like you were lucky to have her. Sending you all the love and strength I can. 💔🐾
I too have fibromyalgia. I switched my diet to the Carnivore. My flare ups have been reduced by not eating the high oxalate vegetables. Research the effects of oxalates in the body and how they affect so many autoimmune issues. Hope this helps. Praying for your relief. 🙏🙏
Thank you so much for sharing this, Teresa! 🙏 It’s always helpful to hear what’s worked for others who are also dealing with fibromyalgia. I’ll definitely look into oxalates more deeply. Thank you for the tip and for offering that encouragement.
Just my Fibromyalgia experience. I was diagnosed with it at the age of 35. I followed everything the doctors was saying, but then they didn't know much. I'm 63 now and no more Fibromyalgia. Six years ago I ran into a doctor who said it is the food causing the sickness. Interesting thought, I thought. Well if it is only food, surely I can change what foods I eat, specially to get out of all the pain I was having. This doctor went on explaining the sicker you are the more stricter you have to be of your food intake. I started keto and within a few weeks I notice changes, less pain. As time went on I was definitely not having as many flare ups. About almost a year into doing strict keto not dirty keto, I notice the pains I had remaining didn't seem to subside at all. I wanted to heal fully so, I took the next plunge! I eliminated all veggies and fruits, so I was just eating beef mostly, some turkey. and ribs and EGGS galore, only the yolks. Doing this all my fibromyalgia is gone, but if I bring back some foods I fare up in so much pain. I'd eat 1 strawberry a day and by the end of the week you could see how inflamed I was. Turns out Fibromyalgia is caused by the chemical foods being consumed. Most foods people buy today are full of chemicals. Veggies alone are a chemical factory. FDA does not care what chemicals you consume long as they get their bonuses! People it is only food give it a try what could it really hurt? If you'd like to learn more about the Proper Human Diet (PHD) check out these doctors then you'll learn of more doctors teaching it, but here is a good start for learning,. Dr. Anthony Chaffe, Dr. Ken Berry, Dr. Shawn Baker, and if you looking to get prego then Dr. Kiltz, and if you are struggling with cancer check out Professor Dr. Thomas Seyfried. This way of eating cured more then my Fibromyalgia, my A1C went from 12 to 4.2 after a year just eating beef. I was able to stand and walk again, restless leg gone, and seizure that started when I was 57 that the doctors could not explained why I was having them are now also gone! I have to say the last 6 yrs journey has been amazing. I take no medications for any of the illness I had cuz they are all gone. The freedom of pill popping is amazing! I went from feeling like 105 yrs to feeling like I'm 25 yrs young again! Many people have been curing all kinds of illness that doctors told them they had to take the meds, there was no cure. 25 yrs diabetic and all I did was change my food and it is gone! It is the foods causing all the issues, dig down dig deep! Good luck in your journey for health.
Wow, Lisa, your journey is so inspiring! Thank you for sharing all of that. It’s amazing how making such intentional changes to your diet has brought you so much relief and transformed your health. I totally get how life-changing it feels to find something that works when you’ve been struggling for so long.
It’s wild how much food can impact our bodies, especially with chronic illnesses like fibromyalgia. Your dedication to digging deep, trying new things, and sticking to what worked is seriously impressive. I love how you broke it down step by step.
It must feel like such a huge victory to be off medications and free from symptoms you dealt with for years. I can only imagine how good it feels to walk again and to get your energy back.
Thank you for sharing the resources and doctors that helped guide you, too. It’s so generous of you to want to help others find hope and healing. I know your story will inspire so many people who feel stuck in their own struggles. You’re living proof that it’s never too late to feel better. 💜
Sending you so much love on this amazing health journey you’ve created for yourself! Keep thriving! 🙌
This was me Thursday and Friday. Today (Saturday) i was able to work at a kingdom hall construction site and that was a big deal! But i suspect that tomorrow and Monday will be like Thurs and Fri. We'll see.
It is still really frustrating. I'm so tired that i can't even think straight now, but i may edit this comment after i've had some sleep.
The next morning: I feel soooooo horrible. As tired as I was, I didn't sleep well: I was hot and woke up sweaty, kept waking up, weird dreams, kind of anxious. This morning my pain is almost off the charts. Working for Jehovah was totally worth it yesterday, but I still wish that I didn't have to pay such a high price to do great things.
Oh man, I feel every word of this. It’s so hard when you push through for something meaningful, only to wake up the next day paying for it in pain and exhaustion. That balance between wanting to do good and not overdoing it is such a tough line to walk with fibro.
Not sleeping well just adds to the frustration, too. Those weird dreams and restless nights leave you feeling even more drained. But you know what? The fact that you gave your energy to something so important is incredible. It shows your strength and heart, even if it comes with such a high price. 💜
I hope you’re able to rest and recover over the next couple of days. Be kind to yourself, okay? You deserve to take it slow after pouring so much of yourself into such meaningful work. Sending gentle hugs your way. You’re doing amazing things. ❤️
@@tt_looking_glass Thank you. And yes, rest is definitely on the menu today and tomorrow. I'm really feeling the frustration today, but trying to be kind to myself.
Stay strong 🤕💪
You too. Thank you so much. ♥️
There is no rhyme or reason a lot of the time ❤ so frustrating! Take it easy and hopefully pick up again soon x
You hit the nail on the head, there really is no rhyme or reason sometimes, and that unpredictability can be so maddening.
Thank you for the kind words and encouragement, it means so much. Taking it easy is definitely the best (and sometimes only) plan. Hoping for a better stretch soon for both of us. Sending love and hugs your way! ❤️
Sounds like the RA flare I went through around Christmas and unfortunately I had to use steroids to knock it back. I hope you feel better.❤❤❤❤ Also I love your encouragement ❤
Ugh, those holiday flares are the worst. I’m so sorry you went through that! It’s tough when steroids are the only thing that can get things under control, but sometimes we just have to do whatever it takes to survive the storm. I really hope you’re feeling better now, or at least catching some breaks between the hard days.
And thank you so much for your sweet words, they mean a lot! ❤️ It’s all about encouraging each other through this unpredictable, messy ride, right? Sending you lots of love and hoping for calmer days ahead for both of us!
@@tt_looking_glass thank you so much!!! Will keep you in my prayers 🙏🏽 ❤️
Yeah, same. Sometimes I start like for a couple of days , then go back down for 10 days. But have to keep going in good times. And the heating pad that you are using, i ordered similar. It's the best thing I did for sanity!
I feel you on that rollercoaster, those short bursts of “okay” days, followed by being knocked down again, can mess with your head. It’s so hard, but you’re absolutely right: holding onto the good times when they come is such a lifeline.
And yes, heating pads are a must. They’re like a little hug for your pain. I’m so glad you got one, it’s honestly one of the best self-care tools I’ve found too. Sending hugs and hope that those good days start showing up more often!
Thank you for sharing😊
Thank you so much for watching. ♥️
I feel you! I was doing great as well until the cold hit us in the south, I fought and ignored for the first two days but then I crashed and had to leave work and laid in bed the rest the of the day. ❤
The cold has such a way of creeping in and making everything harder, and I know how much strength it takes to push through those first couple of days. But when the crash comes, it’s like your body just forces you to stop. I’ve had those days where I had to leave everything behind and just lie down, and honestly, it’s such a humbling reminder of how unpredictable this is.
Please don’t be hard on yourself for needing that rest, you’re doing what you can, and that’s enough.
I can empathize. I’ve been in a flare forever, but this past week has been rough. Distraction helps me as well. So tired, achy, and headaches. I made banana bread and that gave me a dose of joy. 😊
I get it! flare-ups are exhausting, both physically and mentally. It’s awesome that you found a little joy in baking banana bread! There’s just something so comforting about doing something simple and creative like that.
Distraction is such a lifesaver during those tough moments. Sending you gentle hugs and hoping things ease up for you soon! 💜
Keto Diet helped me a lot. I stayed away from sugar.
That’s awesome, Sanja! I completely agree, cutting out sugar can make such a difference. It’s wild how much it can impact inflammation and overall pain levels. I’ve noticed the same thing. Whenever I have sugar, everything just feels worse. Thanks for sharing what’s worked for you, it’s so encouraging to hear! ♥️
It didn't happen overnight. It happened 2 or 3 days ago. Your body gave you hints but you didn't listen. And you had a flair. I know this because I have had fibromyalia since 1991, when only chiropractors and DOs believed fibro was even legitimate. And I do the same thing. It is so easy to take advantage of good days. So you keep going, until your body makes you stop. You need to take these breaks. Slow down. Very gentle exercise. Simple cleansing diet. Stretching. Chair yoga can be helpful. And, if you can, sleep. We have to live with this. Don't beat yourself up.
Patty, you hit the nail on the head, it really doesn’t happen overnight. Our bodies are always giving us those little warnings, but it’s so easy to push them aside, especially when we’re feeling good for a moment. I can absolutely relate to that cycle of taking advantage of good days and then realizing too late that we’ve pushed too far. It’s such a tough balance.
Your advice is so thoughtful and grounded, those reminders to slow down, take breaks, and focus on gentle care is wise. I love how you emphasized not beating yourself up, too, because guilt just adds another layer to what we’re already dealing with. We’re doing the best we can, right?
Thank you for sharing your experience and wisdom. Having lived with fibro for so long, you’ve clearly learned a lot about what works, and I appreciate you sharing it with such kindness. 💜 You’re a reminder that we can manage this, even if it takes patience and compassion with ourselves. Sending you lots of gentle hugs! 😊
Fibromyalgia is sneaky. I was doing so well then boom! I've been hurting since Oct
Mary, you are so right, fibromyalgia is sneaky, and it loves to show up out of nowhere just when you think you’re doing okay. Hurting since October is absolutely exhausting,, I’m so sorry you’re going through this. It’s such a long time to carry that weight. Sending you so much love and strength to get through the tough days. Hoping for a break and better days ahead for you soon. 💜
@tt_looking_glass thank you so much 💕 I finally went to a pain specialist. He said the muscle are tight. Physical therapy next. I feel so guilty because I don't feel like working out.
Please don’t feel guilty about not working out right now! Your body is already carrying so much, physical therapy can be such a great next step, but remember, just showing up for it is enough, you don’t have to push yourself beyond what feels doable.
Be kind to yourself, you deserve that grace. Sending you lots of encouragement and hoping you start feeling some relief soon! 💕
Have you tried the carnivore diet? I also have fibromyalgia and I am slowly lowering my carbs until I am just eating meat to see if it will alleviate the pain. I hope it works for me
I have tried the carnivore diet before, but honestly, it just wasn’t for me. That said, I completely agree that lowering carbs makes such a big difference! I’ve found that sticking to a low-carb way of eating helps with energy and inflammation quite a bit, so I really hope it works for you too. It’s all about finding what makes your body feel even a little better, right? Sending you lots of encouragement as you try this out. 💜
Same here. Carnivore has helped me immensely. Hope you have continued success.
Please look into mold-toxicity. I was diagnosed with Fibromyalgia, but it was actually my living environment which was poisoning me due to toxic mold in the house.
Environmental factors are such an important point and something that often gets overlooked. Toxic mold can wreak havoc on the body, and it’s heartbreaking to think how many people might be misdiagnosed or suffering without realizing their environment could be the cause.
I can’t imagine how hard it must have been for you to figure that out, but I’m so glad you did. Your experience might be a lightbulb moment for someone else going through similar struggles, so thank you for speaking up. 💜
I really relate to your pain.Fibro has taken over my body over since I was 42.It's horrible how overnight a nasty flare can come on.My doctor put me on Lyrica it seems to help.I take it at bedtime.I also take Tylenol 3 and amitriptyline at bedtime.Have you tried dr.teals hemp or the sleep melatonin bath soak.They really help me before bedtime.
I hear you, and I know exactly what you mean, fibro can just take over your whole life. It’s wild how one moment you’re managing, and the next, a flare completely knocks you off your feet.
I’m glad Lyrica is giving you some relief, and that bedtime routine you’ve built sounds so comforting. I haven’t tried the Dr. Teal’s hemp soak, but now you’ve got me curious. Thanks for sharing your tips with us.
Also try NyQuil!!!
I had to up my prozac dosage 10mg hoping it would get me out of this fatigue thinking maybe it’s my depression. It’s been five weeks and I’m still tired and wanting to sleep all the time. I’m dealing with vaginal atrophy at the moment and that’s not helping. It’s always something. A day after Christmas I couldn’t use my right arm much, it just quit working so much pain with movement, and the only thing I did was clean clean clean the day before Christmas as I had guest coming. It is better my arm now but it took awhile to get better. Now it’s the dam fatigue and anxiety.
Deborah, I can feel the weight of what you’re carrying right now, and I’m so sorry it’s been such a tough stretch. It really is always something, isn’t it? Just when you think you might get a break, something else comes crashing in. That level of fatigue, mixed with pain and anxiety, is exhausting in ways people don’t understand unless they’ve been there.
I’m glad your arm is doing a bit better now, but I know how hard it is when it takes so long to see even small improvements. And on top of all that, trying to navigate medications and everything else, it’s just a lot. I am officially in menopause, and I know its challenges. Hormone Replacement Therapy helped me a lot, though I know they are not for everyone. Please know you’re not alone in this. Sending you so much love and strength as you keep pushing through this storm. ❤️
Thank you your words help more than you know❤️
You are most welcome. Thank you for being part of this community.
I've been in a flare since October still in one
I’m so sorry you’ve been stuck in a flare for that long, it’s so hard when it feels like there’s no break. I know how draining it is, both physically and emotionally, to keep pushing through day after day. Please remember that you’re doing an incredible job just holding on through this.
I hope so much that relief finds you soon. 💜
@tt_looking_glass thank you so much
Flare ups ..I do that same thing
Cyndee, it’s like we’re all part of the same club no one wanted to join.
I had never seen your channel before. You came up in my suggestions and I just to click on the video...why? I 100% looked just like your thumbnail as I was scrolling. Laying in bed...lots of removable clothing layers...1 light weight blanket and 1 weighted blanket on top. With a fan blowing straight on me. I'm sure I'm not the only one who does this lol
First off, welcome to the channel. I’m so glad the thumbnail caught your eye and brought you here! 😊 And I’m cracking up because yes, that “layered up with a fan blowing straight on you” setup is so relatable. You’re definitely not alone in that, managing fibromyalgia is an art.
Thanks for stopping by and sharing this, I love hearing how others manage their flare 💜
@tt_looking_glass me too! You actually reminded me that I needed to get a heated blanket. I moved back in the spring and forgot we got rid of them because they broke. I'll be watching back your older videos to find out more tips
Vitamin D, Magnesium, Potassium, Benfotiamine (fat soluble B1) I was deficient (as many are) in them & not taking my D3 correctly (with fat). Magnesium is needed to utilize vitamin D and I guarantee most of us with Fibromyalgia are deficient in Magnesium!! Started taking Methylene Blue. And drinking SourSop tea 👍🏼
You’re so on point with this! It’s amazing how deficiencies in things like Vitamin D, Magnesium, and B1 can wreak havoc on the body, especially with fibro. That fat-soluble Vitamin D tip is golden, so many people don’t realize it needs fat to absorb properly.
You’re clearly putting in the effort to give your body what it needs, and I hope you’re feeling the benefits. Keep doing what works for you, and thank you for sharing these tips, they’re so helpful for anyone on a similar journey.
It is so hard to go over the flare, specially the Nerve pain, its incredibly painful. I've been diagnosed with fibromialgia, the other doctor diagnosed me with Complex PTSD and somatoform disorder, then the ruled out the fibro, am so confused. The doctor said that i can get rid off the pain by changing my mind thinking from negative to positive (bad habits, negative thoughts😮)
But, all the symptoms of the fibro are persist. Just wondering can I have a fibro too or its the pain coming from my brocken mind🤔 so confused. I wonder if your doctors ever tells you that you might have that Somatoform disorder?
Trauma can actually be a cause of fibromyalgia. I have cptsd and fibromyalgia as well. From what I understand, fibromyalgia is your nervous system being fried, which, like i said, can be caused by cptsd/ptsd. Thanks a lot to my late narcissistic husband.
I can feel the frustration and pain in your words,it’s so exhausting to be stuck in this cycle of uncertainty and suffering.
The suggestion to “think positive” can feel so dismissive when you’re in the middle of real, unrelenting pain. Of course, mindset matters, but it doesn’t erase the physical symptoms, and it’s not a magic fix. I totally get why you’d feel confused and even a little disheartened by that.
You’re not alone in wondering if fibro might still be part of the puzzle. Hang in there, and keep advocating for yourself, you deserve answers and support. Sending you so much love and strength as you navigate all of this. 💜
Go low carb, keto, carnivore. Supplement with Vita D, Magnesium, Zinc and vita C.
Thanks for the tips!
Do you think you have ME/CFS? Flu-like symptoms are a hallmark of PEM (post-exertion malaise).
I haven’t been diagnosed with ME/CFS, but I do deal with PEM, and it’s so brutal sometimes. I also have POTS, so it can be tricky to tell where one condition ends and another begins because they all overlap so much. It’s like this tangled web of symptoms that keeps you guessing!
Have you tried ivermectin???
I haven’t personally tried Ivermectin for fibromyalgia, but I’ve been hearing about it lately that it cures a bunch of illnesses. I. Ean it was used for Covid so it may also help for Long Covid. Fibro is such a wild ride, and it seems like we’re all constantly looking for something that might help take the edge off the storm. Have you had any experience with it? I’m always open to hearing what others have found helpful on this crazy journey.