For me it was several events in a row: death of a relative lead to some symptoms of anxiety and stress. After a year there was a period of 10-15 days of sleepless nights which caused some tiredness and persistent dizziness. Not CFS yet. Then in a span of 1-2 months after that I had a virus (Not covid). It lasted for three weeks. Having only barely recovered, I went to get Covid vaccine. The second day my Long covid/CFS symptoms have started and never went away. 😢 I have debilitating fatigue and malaise, fever or low body temperature, persistent nausea and loss of appetite, inability to concentrate even for 20 minutes, anxiety, muscles aches, inability to work, POTS like tachycardia etc. This chain of events has ruined my life and health.
Why add toxins on a stressed system? Cv virus has a high recovery rate; though true numbers are not known - the data has been compromised by fraudulent categorization and testing. No way anyone on YT can comment on the matter, especially against getting it... would be flagged as 'medical misinformation'.
It was just some one mentioned that because I have all three that it’s rare, I didn’t think it was as I know several people that have, just checking on some one else’s views. Thank you.
IF there is a toxic exposure, then the first question to ask is whether the person actually has ME/CFS or Fibromyalgia. If they do, then there may be additional issues due to the exposure. These type of things are not easily diagnosed and complicated further if the symptoms are the same as in standard ME/CFS/Fibromyalgia.
CFS Unravelled what are your thoughts on the latest research from Sweden and America having conducted separately, and found correlating testing evidence etc that fibro is NeuroBiological...i.e. Inflammation of the brain?
It's not about any single treatment, it's about a better approach for recovery. So I advocate for a multi-lateral recovery approach that focusses on ANS normalisation rather than just symptom treatment. Check out the book for more details if you like: cfsunravelled.com/cfs-unravelled
We see this a lot with the illness, although I think more research around this has been done in the ME/CFS space. I think low HRV better represents that parasympathetic expression is low, rather than sympathetic being high.
@@CFSUnravelled1 Do you think low parasympathetic expression in fibromyalgia is a cause or an effect? I'm guessing your ans reset system is to help with this?
Another question I have, what do you think causes this faulty stress respons in people with cfs? Because there are a lot of people with chronic stress, trauma etc. that don’t get cfs. So in a way this explanation always feels a bit incomplete to me.
Stress is complex - physiological, mental, neurological and emotional stress - they are not simply about the stimulus, but also how we respond to the stimulus. When the stress is chronic and/or severe enough to tip the system into dysfunction, the illness onset occurs. You might like to watch the 4 intro lessons of ANS REWIRE where I go into more detail.
@@CFSUnravelled1 Thank you for responding. Still not completely convinced. I feel like there is a step missing. What do you think of the genetics in CFS? I think Open Medicine Foundation started an interesting research about it a couple of years ago and the first results seemed to point strongly in that direction, if I remember correctly. I always assumed that there must be something genetic about CFS because me and my mother both have it and her brother has fybromyalgia. And I hear that quite often. So I assumed that there must be a gene and if you have it and when it gets triggered by physical or psychological stress it manifests. What do you think of this? (English is not my native language, so I might be not very clear) I will watch more of your video’s. Up until now I booked a lot of progress (and still progressing) by pacing.
For me it was several events in a row: death of a relative lead to some symptoms of anxiety and stress. After a year there was a period of 10-15 days of sleepless nights which caused some tiredness and persistent dizziness. Not CFS yet. Then in a span of 1-2 months after that I had a virus (Not covid). It lasted for three weeks. Having only barely recovered, I went to get Covid vaccine. The second day my Long covid/CFS symptoms have started and never went away. 😢 I have debilitating fatigue and malaise, fever or low body temperature, persistent nausea and loss of appetite, inability to concentrate even for 20 minutes, anxiety, muscles aches, inability to work, POTS like tachycardia etc. This chain of events has ruined my life and health.
Hey Dan. What are your thoughts on the covid vaccine for CFS sufferers? Is it better to get the vaccine than risk getting covid? Thank you
Same querries dd u get the vaccine?
Why add toxins on a stressed system? Cv virus has a high recovery rate; though true numbers are not known - the data has been compromised by fraudulent categorization and testing. No way anyone on YT can comment on the matter, especially against getting it... would be flagged as 'medical misinformation'.
May I ask is it odd to have all three illnesses together. FM, CFS, ME. Which is what I’ve been diagnosed with several years ago .thank you
Hi Julie - not at all - it's my view that they are NOT different illnesses. The same root cause, the same path to recovery!
It was just some one mentioned that because I have all three that it’s rare, I didn’t think it was as I know several people that have, just checking on some one else’s views. Thank you.
But if it is toxic exposure, isn't that then physical damage creating a cascade, and not just stress response?
IF there is a toxic exposure, then the first question to ask is whether the person actually has ME/CFS or Fibromyalgia. If they do, then there may be additional issues due to the exposure. These type of things are not easily diagnosed and complicated further if the symptoms are the same as in standard ME/CFS/Fibromyalgia.
CFS Unravelled what are your thoughts on the latest research from Sweden and America having conducted separately, and found correlating testing evidence etc that fibro is NeuroBiological...i.e. Inflammation of the brain?
What treatment do you recommend please?
It's not about any single treatment, it's about a better approach for recovery. So I advocate for a multi-lateral recovery approach that focusses on ANS normalisation rather than just symptom treatment. Check out the book for more details if you like: cfsunravelled.com/cfs-unravelled
Thank you so much.
Can people with fibromyalgia have low HRV scores? I use an app for this and my sympathetic system is always dominant and my scores are scarily low.
We see this a lot with the illness, although I think more research around this has been done in the ME/CFS space. I think low HRV better represents that parasympathetic expression is low, rather than sympathetic being high.
@@CFSUnravelled1 Thank you. It is worrying and does seem to tally with how I am feeling.
@@CFSUnravelled1 Do you think low parasympathetic expression in fibromyalgia is a cause or an effect? I'm guessing your ans reset system is to help with this?
Another question I have, what do you think causes this faulty stress respons in people with cfs? Because there are a lot of people with chronic stress, trauma etc. that don’t get cfs. So in a way this explanation always feels a bit incomplete to me.
Stress is complex - physiological, mental, neurological and emotional stress - they are not simply about the stimulus, but also how we respond to the stimulus. When the stress is chronic and/or severe enough to tip the system into dysfunction, the illness onset occurs. You might like to watch the 4 intro lessons of ANS REWIRE where I go into more detail.
@@CFSUnravelled1 Thank you for responding. Still not completely convinced. I feel like there is a step missing. What do you think of the genetics in CFS? I think Open Medicine Foundation started an interesting research about it a couple of years ago and the first results seemed to point strongly in that direction, if I remember correctly. I always assumed that there must be something genetic about CFS because me and my mother both have it and her brother has fybromyalgia. And I hear that quite often. So I assumed that there must be a gene and if you have it and when it gets triggered by physical or psychological stress it manifests. What do you think of this? (English is not my native language, so I might be not very clear) I will watch more of your video’s. Up until now I booked a lot of progress (and still progressing) by pacing.