Excellent source of information.I recently found out that I have MG, but it took so long to be diagnosed that I’m 74 and most likely have had this well 0ver 30 years. I’m starting on some treatments but no help from this yet. I will be having IVIG sometime soon but I’m really apprehensive because of the feedback. My thymus glad tested negative for tumors. I have ocular, with my vision being impaired because my left eye is totally closed, plus a year or so ago I had a bout of total body muscle weakness that I wasn’t able to walk or use my arms and hands for daily life. Doctors thought I was depressed and that’s what I was diagnosed. Through out my younger years I also had bouts with walking and always being tired. Having has 3 children and running a household was extremely difficult because I was told I was depressed, in my later 30s they told me I had MS. No treatment! I have always had trouble swallowing even as a child but it continues to get worse with age plus have experienced choking episodes more often and lose my breath. I have been seeking as much knowledge about MG as I can. Do you have any advice on where to obtain some good quality material? Thank you! Lynda Lanko
I am sorry to know you've been through all the symptoms without diagnosis. We're all searching for more information. The thymus gland tumor finding led to my MG diagnosis.
Excellent. I suffer from all the cognitive symptoms you mentioned from childhood and muscle weakness. I am 65, recently diagnosed with Thymoma and going for bloodwork to test for MG.
Great video! Informative and helpful for the layperson. Any thought on updating the video with more recent studies or findings? As it is, video is hugely helpful and shows sensitivity to patients’ needs👍. Thank you, Dr. Sullivan!
I’ve had symptoms for over 25 years and they have progressed as I’ve aged. Finally a hematologist testing me for the ACHR antibody test & I was told yesterday I have MG. I will now start my journey with a neurologist & hopeful for living a normal life!
Absolutely insightful is your research and analysis and your version of the Einstein method of explaining science, thank you so very much! In fact, all your explanations on brain and body sciences are the best of the best. You are doing work that enlightens science, society and helps the betterment of health of humanity, seriously.
My oldest sister has this. She was diagnosed at 3. She is 71 yr old now. Has some dementia. Her daughter had it when an infant but went into remission. Drs told her that she would be lucky to live past 50. My sister also had her thymus gland removed . My mom had a cousin with it too.
May I say that I was diagnosed with M G at age 59.I am female and had just started a search for my birth father who I found in Italy ,he had it too and we both were in different countries ,Im in England I started with exhaustion then double and blurred vision.one sided ptosis to start.If I hadnt been aware of my birth fathers diagnosis and passed this info on to the eye doctor I would never have been offered the M G blood test.It is inherited in some people.
I was Blessed to live across from a friend and retired Dr, and had a crises in front of him, he sent me to E R and called a friend of his now My Neurologest, I have general M G
Excellent source of information.I recently found out that I have MG, but it took so long to be diagnosed that I’m 74 and most likely have had this well 0ver 30 years. I’m starting on some treatments but no help from this yet. I will be having IVIG sometime soon but I’m really apprehensive because of the feedback. My thymus glad tested negative for tumors. I have ocular, with my vision being impaired because my left eye is totally closed, plus a year or so ago I had a bout of total body muscle weakness that I wasn’t able to walk or use my arms and hands for daily life. Doctors thought I was depressed and that’s what I was diagnosed. Through out my younger years I also had bouts with walking and always being tired. Having has 3 children and running a household was extremely difficult because I was told I was depressed, in my later 30s they told me I had MS. No treatment! I have always had trouble swallowing even as a child but it continues to get worse with age plus have experienced choking episodes more often and lose my breath. I have been seeking as much knowledge about MG as I can. Do you have any advice on where to obtain some good quality material? Thank you! Lynda Lanko
I am sorry to know you've been through all the symptoms without diagnosis. We're all searching for more information. The thymus gland tumor finding led to my MG diagnosis.
Excellent. I suffer from all the cognitive symptoms you mentioned from childhood and muscle weakness. I am 65, recently diagnosed with Thymoma and going for bloodwork to test for MG.
Great video! Informative and helpful for the layperson. Any thought on updating the video with more recent studies or findings? As it is, video is hugely helpful and shows sensitivity to patients’ needs👍. Thank you, Dr. Sullivan!
I searched tiredlessly to find the conection with cognative issues
Thank you.❤
I’ve had symptoms for over 25 years and they have progressed as I’ve aged. Finally a hematologist testing me for the ACHR antibody test & I was told yesterday I have MG. I will now start my journey with a neurologist & hopeful for living a normal life!
Absolutely insightful is your research and analysis and your version of the Einstein method of explaining science, thank you so very much!
In fact, all your explanations on brain and body sciences are the best of the best.
You are doing work that enlightens science, society and helps the betterment of health of humanity, seriously.
Wow, you made my day! Thank you!
My oldest sister has this. She was diagnosed at 3. She is 71 yr old now. Has some dementia. Her daughter had it when an infant but went into remission. Drs told her that she would be lucky to live past 50. My sister also had her thymus gland removed . My mom had a cousin with it too.
When you were talking about the eyes, i have always been light sensitive
Visitors of this channel, pls share the video, like and comment. Spread to encourage personal experiences.
May I say that I was diagnosed with M G at age 59.I am female and had just started a search for my birth father who I found in Italy ,he had it too and we both were in different countries ,Im in England I started with exhaustion then double and blurred vision.one sided ptosis to start.If I hadnt been aware of my birth fathers diagnosis and passed this info on to the eye doctor I would never have been offered the M G blood test.It is inherited in some people.
I was Blessed to live across from a friend and retired Dr, and had a crises in front of him, he sent me to E R and called a friend of his now My Neurologest, I have general M G
My M G showed its self after a sholder replacement
This would carry more credibility if the picture were not turned on its end. 2:22