Surviving Bladder Cancer | From Symptoms to Diagnosis - What I Learned Along the Way

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  • เผยแพร่เมื่อ 22 ธ.ค. 2024

ความคิดเห็น • 65

  • @thedisappointedoptimist6916
    @thedisappointedoptimist6916 ปีที่แล้ว +36

    Dealing with dismissive doctors has been the most painful part of this process. It is SO important to advocate for yourself. Be rude. Be pushy. Do not take no for an answer.

    • @annabellejaynesaunders5930
      @annabellejaynesaunders5930 8 หลายเดือนก่อน

      I'm going through the same I've had blood in my urine for a few years and now I'm bleeding and I've pushed it through to a doctor ,
      They have been working on it as they lost a few urine a few times and lost blood tests I'm sat here thinking about it for years so I had to tell them to do something

  • @fjb2986
    @fjb2986 หลายเดือนก่อน +3

    You definitely have to be your own advocate. My blood tests had no markers for cancer. I pushed to have a CT scan and they found I had a rare high grade Urothelial Carcinoma tumor. I’m fortunate It’s early stage and has not invaded the bladder muscle. I’m currently going through the BCG therapy.

  • @Taylor-ix3om
    @Taylor-ix3om 4 หลายเดือนก่อน +4

    I think it’s crazy that as patients we need to tell the doctor to do these tests during a physical. You’re looking happy and healthy congrats!! I’m going in for bladder turbt surgery on Aug. the 20th.

  • @mollylenyo1407
    @mollylenyo1407 ปีที่แล้ว +9

    My mother had Bladder Cancer. God Bless you. ❤

  • @jayjacqueline615
    @jayjacqueline615 11 หลายเดือนก่อน +5

    I just began a third year of maintenance treatment for NMIBC, but I relate to going through all the cystoscopies and chemo treatments alone. I wish you complete recovery and wellness.

  • @sherrillcornett4212
    @sherrillcornett4212 ปีที่แล้ว +10

    Really good advice...be your own advocate especially if you're an old lady...we know our own bodies better than they do... 🥰

  • @Legittoquit1
    @Legittoquit1 ปีที่แล้ว +27

    I’m a lawyer at a Heath company. All they do is delay till patients are too sick to show up at court then die. I’m quitting . It’s disgusting.

  • @tangho
    @tangho ปีที่แล้ว +15

    i've come to the revelation that once you shave your head, you can really do anything lol.
    another amazing story.
    hodgkin's survivor here, in remission for a month now :)

  • @melware3752
    @melware3752 2 หลายเดือนก่อน +1

    Thanks you. Your story is very encouraging. Wishing you well.

  • @Biggerbyte
    @Biggerbyte ปีที่แล้ว +11

    Doctors are killing me. I've had symptoms of bladder cancer for a long while. I finally got a cat scan, then a cystoscopy. Both were confirmation. Surgery is coming in a few days. I'm not sure if I should scream or cry.

    • @Biggerbyte
      @Biggerbyte ปีที่แล้ว +1

      @@pamphlet3560 I'm so sorry.

    • @Heavnsangel79
      @Heavnsangel79 10 หลายเดือนก่อน

      @@pamphlet3560😢

    • @Heavnsangel79
      @Heavnsangel79 10 หลายเดือนก่อน +1

      😢

  • @jeffszmiett2600
    @jeffszmiett2600 ปีที่แล้ว +6

    Good for you for standing up for yourself. I didn't and I am dying with advanced cancer

    • @kimmygibson3461
      @kimmygibson3461 ปีที่แล้ว

      See Dr. John Mcdougall. He's on utube for cancer please

    • @Pr0ph3cy-k5z
      @Pr0ph3cy-k5z ปีที่แล้ว +1

      Are you still with us?

    • @jeffszmiett2600
      @jeffszmiett2600 ปีที่แล้ว +1

      ​@@Pr0ph3cy-k5zyes I am but just waiting to die. Never stood up for myself.

    • @Pr0ph3cy-k5z
      @Pr0ph3cy-k5z ปีที่แล้ว +1

      @@jeffszmiett2600 What is your age?

    • @jeffszmiett2600
      @jeffszmiett2600 ปีที่แล้ว +2

      @@Pr0ph3cy-k5z I Am 64 been dealing with bladder issues for two and a half years.

  • @dgr212
    @dgr212 ปีที่แล้ว +1

    Your story is very familiar. I’m going through the process myself and it’s very overwhelming. I’m glad you are doing well and succeeding in your journey to rid this burden from your life. I hope to have the upper hand as well as I move forward with my treatments. Thanks for the informative video and stay the course!

  • @karenjordan7118
    @karenjordan7118 ปีที่แล้ว +9

    You’re not an old lady - you are a mature brave woman ❤ in 20 years call yourself an old lady 😊

    • @californiadoll6273
      @californiadoll6273 ปีที่แล้ว +1

      Stop lieing for no reaon! She is almost 70, yes she is old!

    • @karenjordan7118
      @karenjordan7118 ปีที่แล้ว +2

      @@californiadoll6273 not nice

    • @kloatlanta
      @kloatlanta ปีที่แล้ว

      @@californiadoll6273lying

    • @Onelightoftheworld
      @Onelightoftheworld ปีที่แล้ว

      @@californiadoll6273 if you want to get technical learn how to spell. Don’t be a complete jerk. How about those beans?

    • @truthorconsequences7769
      @truthorconsequences7769 9 หลายเดือนก่อน

      I myself know what is considered old as I am also turning 67. The term I prefer is older woman/lady. Older than many but it makes me smile. There's something harsh calling someone an old lady. Older lady is sweeter sounding; kind of like saying old with flowers 🙂

  • @deborahmeyers551
    @deborahmeyers551 ปีที่แล้ว +2

    This lady is amaizing with great advice too thank you for sharing 💜

  • @Tindaree
    @Tindaree 11 หลายเดือนก่อน

    Thank you!!! I have to get stronger!! I need to advocate more!!
    Thank you🥰💜

  • @sandilobianco6734
    @sandilobianco6734 ปีที่แล้ว +5

    A urine sample doesn’t always show abnormalities especially a UTI you might need a swab test.

  • @dennishassler605
    @dennishassler605 ปีที่แล้ว +4

    Sorry to see this was not discovered sooner. The kicker here is the muscle-invasive issue, because I had T1 and things performed well for me - unlikely I'll have a reoccurrence, but God help anyone that has the muscle-invasive more serious situation. These Urologists often have you wait a month to get in the door and that's just much too long!!!! Patients must push to get seen, but waiting a month is much too long and one cancelled after a few weeks so the next one would also take a month. I returned to my primary and he advised me to go to emergency for immediate treatment - THAT thankfully went very well and I had it operated on that same night.

    • @suzy7773
      @suzy7773 9 หลายเดือนก่อน +1

      @dennishassler605
      I had muscle invasive bladder cancer. In 2018.

    • @dennishassler605
      @dennishassler605 9 หลายเดือนก่อน +1

      @@suzy7773 That is the kicker - the muscle invasive type. Thankfully, I caught mine early as a T1 and it's over a year and it's not coming back yet, but I get inspected every three mos. and I've changed my diet, etc. Good luck to you!!!!

    • @crystalhale9018
      @crystalhale9018 6 หลายเดือนก่อน

      @@suzy7773Are you alright and can yo u tell us about your treatment I had my surgery for noninvasive and have to go back and hope it hasn’t spread

    • @suzy7773
      @suzy7773 6 หลายเดือนก่อน

      @@crystalhale9018 I’m ok-ish.
      I did 5 rounds of MVAC chemo that was pretty horrible. Gave me a blood clot in my lung, and threw my platelets way off. So I needed blood transfusions. Had my bladder, appendix, uterus and 22 lymph nodes removed. Neo bladder created. I have to self cath to empty my neo bladder and now have chronic kidney disease stage 3b/4. My GFR was 25.7 last time it was checked. Both my kidneys are ruined. & I have a chronic UTI I can’t get rid of. It’s so scary! But I am 5 years out and thankful for every single day! I feel decent most days. A lot of pain in my back and hips, muscle pains like crazy. I drink a lot of water, walk most days. I aim for at least 10,000 steps because it has tons of health benefits!
      I don’t know what the future holds & cancer forever has changed me. But I try and just be positive and not get stuck too badly in my head about things.
      Thank you for asking! ❤️
      If you ever want to talk I’m here for you! I hope you’re doing well.
      I’m in a bladder cancer survivor group on Facebook too. It’s a great place for support

  • @deflo56
    @deflo56 29 วันที่ผ่านมา

    Ditto here as far as what you survived through. Mild autonomous cortisol secretion from a tumor in my adrenal gland was excised leading to a full metabolic recovery. The battle was convincing my professional healthcare providers. The big difference between us is that I was more concerned about the tumor on my right adrenal. I was pretty much passive throughout the chemotherapy and bladder removal. They kept trying to treat the depression I didn’t have. lol I was completely ignored from incidental discovery through excision.
    At 68 I’ve learned you have to get old but you can leave frailty behind.
    Just saying.

  • @carolineszepessy5331
    @carolineszepessy5331 ปีที่แล้ว +4

    You look great now!

  • @have_faith_
    @have_faith_ ปีที่แล้ว +2

    You mentioned surgery- what type did you have, if you don’t mind? I have bladder cancer also

  • @MSDOGS1976
    @MSDOGS1976 6 หลายเดือนก่อน

    I wish she had discussed what she ending up doing in the way of surgery. I’m have a low grade noninvasive type. I took 6 weeks worth of BCG immunotherapy and initially it cleared it all up. But after a year a couple of small spots appeared and he burned them off. Not sure what it’s called but I watched on the monitor and it looked like a cloud covered the spots so chemically burning them off I suppose. He says he does that all the time. I go back in 3 months for another scope. I hope to have BCG maintenance treats over a couple of years but the drug is in a short fall mode right now. Merck is building another plant but it won’t be ready for awhile. They do have a chemo product that can be shot directly into the bladder so may have to do that if the BCG drug remains unable. So if my cancer can be controlled and not enter the walls of the bladder I will be in an ongoing maintenance mode it appears. Beats going belly up tho.

  • @orlandofurioso7329
    @orlandofurioso7329 ปีที่แล้ว +8

    As a resident in urology, those doctors that dismissed you should be banned

  • @kellydean3497
    @kellydean3497 ปีที่แล้ว

    My dad died of bladder cancer; mastacized…
    I have constant uti’s
    Had the cat scan
    Bless you
    Have abnormal leukocytes, etc.
    We’ll see❤

  • @glendaamox7916
    @glendaamox7916 ปีที่แล้ว +2

    I would like to know what type was her bladder cancer

    • @ineedvyvanse3493
      @ineedvyvanse3493 ปีที่แล้ว +4

      I didn’t hear her say, but I work in urology. It’s most likely a muscle invasive urothelial carcinoma.

    • @Heavnsangel79
      @Heavnsangel79 10 หลายเดือนก่อน

      @@ineedvyvanse3493that’s what I read.

  • @cindybroders4531
    @cindybroders4531 9 หลายเดือนก่อน +1

    Did you end up having the bladder removed and a ureterostomy?

  • @ahava3838
    @ahava3838 ปีที่แล้ว +2

    TPS producers should instruct their guests to adjust the camera so they are not looking down at us. It feels like their guests are speaking to us like we are laying down and we are looking up their nose.

  • @greensombrero3641
    @greensombrero3641 5 หลายเดือนก่อน +1

    two super beautiful women - powerful and courageous. my first symptom was gross hematuria - completely painless - changed my life when you urinate red wine

  • @JoanSeibert
    @JoanSeibert 8 หลายเดือนก่อน

    What surgery did you end up doing

  • @debramcculloch4
    @debramcculloch4 11 หลายเดือนก่อน +3

    So you said no to neobladder. However you never discussed what you actually had & how your coping with whatever you have now.

    • @truthorconsequences7769
      @truthorconsequences7769 9 หลายเดือนก่อน +1

      Exactly... what did you have done in surgery? Or what did you do other than chemo/radiation?

  • @eviwarawiri2903
    @eviwarawiri2903 ปีที่แล้ว +1

    Same case with me here.61th got post menopause. For almost 2 months doctors always think I had UTI. And I was the one who akways think and say to the doctor that it might be a cancer, then doctor send me to obgyn and she also thinks that I had UTI until she did a vagina usg then she asked me to do curette and sen the blood to PA . Then the result I have an endometrium cancer grade 1.

  • @overton1963
    @overton1963 2 หลายเดือนก่อน +2

    They always blame smoking, yet millions of people don’t smoke and get cancer. Ugh

  • @RRR-ox9ud
    @RRR-ox9ud 7 หลายเดือนก่อน +2

    I think its women that wear their cell phone on them especially when driving.
    I'm going through this why my wife and its taking forever just to get a scan.

  • @glendaamox7916
    @glendaamox7916 ปีที่แล้ว +1

    she never said what type she mentioned narconchale corcinoma

  • @tanyadawnwalker3675
    @tanyadawnwalker3675 ปีที่แล้ว +1

    🙏🏼❤️

  • @northyland1157
    @northyland1157 ปีที่แล้ว

    I voted sticker on Face mask tell you everything!

  • @MegglesEST1983
    @MegglesEST1983 ปีที่แล้ว +1

    Why do you deserve to be moved ahead of all these people who may need their procedures too..or younger who could live longer..wow..

    • @khananme
      @khananme ปีที่แล้ว +7

      She's correct though. If you don't like what you're hearing, speak up, say something. Ask for a different test. I called every day to see if someone canceled so I could get in. I didn't like my doctor's non caring attitude, so I got a second opinion.

    • @GrandmaBirdy
      @GrandmaBirdy ปีที่แล้ว +17

      She didn’t! She simply advocated for herself! It’s innate: no judgement to “who deserves this or that based on perceived reality”! The beauty of her story is she spoke up & now is a survivor! When we age, sometimes we become invisible to the vast majority. Elders have so much beauty! Congratulations 🎉……

    • @theresa94010
      @theresa94010 ปีที่แล้ว +3

      @@GrandmaBirdy - great comment Rob.

    • @bookbeing
      @bookbeing ปีที่แล้ว +4

      @@GrandmaBirdy thank you! I so agree! All if us, no matter how old or young need to be heard when we report something is amiss in our bodies.
      Just because we can't produce people anymore doesn't mean we are irrelevant and should accept age discrimination from health care staff.