My Bladder Cancer Symptoms: "They Initially Thought it was a UTI" - Ebony | The Patient Story
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- เผยแพร่เมื่อ 25 พ.ค. 2023
- Ebony was 45 when she first noticed blood in her urine. But after different scans and scopes, doctors couldn't find anything. They initially thought it was a UTI. After more than year, she was diagnosed with stage N2 bladder cancer.
She then underwent MVAC chemotherapy and an 8-hour surgery to remove her bladder. As part of this surgery, part of Ebony's small intestines were used to create a neobladder.
In this conversation she shares her cancer journey, including taking control of her hair loss, the importance of self-advocacy and support and using her story to be a light for others.
Full story & transcript → www.thepatientstory.com/patie...
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You have a wonderful man for sure. I was diagnosed with breast cancer and within a month my husband said I can’t do this. So we decided to divorce and I had to except that not everyone can handle this diagnosis but I certainly will and have slayed cancer like a warrior ❤
Where that ninja at now?
@@streettalknews he is dust in the wind and boy my life is so much better without him in it. It was a gift from God that he flaked
@@deanawells4395 💯 stay blessed
Amen sister.. God bless you and keep you. God removed him, as the stress from the relationship probably would’ve killed you. Let this me a testimony and serve God. God made this possible
Your x was a complete coward
Glad your doing fine
It's a shame doctors are so dismissive with patients who seek help from them. When my bestfriend started complaining to me about symptoms he was having, I immediately made an appointment for him. I just knew he had bladder cancer, yet his doctor doubted it; but because I wouldn't allow her to be so dismissive, she referred him to a urologist. A week later we found out he had a tumor the size of a golf ball and other small ones...Cancer was starting to spread! Thankfully, they were able to remove all cancerous tumors, and chemo shrunk the rest. He's been cancer free 7 yrs now!
Thank you for saving your friend ❣️ blessings to you and your dear friend 🙏🏽💜❤️
Amen!!! Thank you for sharing your story.
Praise God almighty 🙌
Jesus. Praise the Lord, he had a friend like you, to advocate for his health w/ discernment, care/concern, wisdom and love. 💯🙏🏽❣️
Where do you get dismissive from, they were running test.
I was misdiagnosed for two full years. My doc kept saying it was IBS and that stress was causing my symptoms (basically, he thought I was imagining them). When it got to the point where I was having nose bleeds, sick to my stomach, and passing out, he was still saying the same (talking about women and “emotions” and “female stress”). I said I have never heard of stress causing nose bleeds or losing consciousness - he said you would be surprised what symptoms stress can cause. I was having blood taken weekly for tests and he kept telling me that everything came back fine. I was getting these super dark marks under my eyes and I was barely making it through my days - I went to one of my (weekly at this point) appts one day. My normal doc forgot to cancel my appt before he went out of town so they said they had a new female doc that could see me if I was ok with that and I said that was fine. That doc saved my life!!! She found all through my med records where all those blood tests they had been running for literally two years showed my counts all over the place. The lab kept highlighting the results and saying that he needed to meet with the patient (me) - my doc would sign off that he saw the results but then never signed off as having contacted me regarding them. This was a Friday - so that female doc had a female oncologist friend from med school that was top in their class. She called her that day, faxed her my records, and had me set up with an appointment that following Monday. They had me rushed in for surgery 2 weeks later - they didn’t think I would survive the surgery, much less any chance of any years. My oncologist said it makes her so angry these male docs that don’t take women seriously and just assume that we are being “so emotional” when what she finds is that we tend to pay attention to our bodies. She made me promise that if I ever questioned a doctors diagnosis, that I seek a 2nd, 3rd, or however many opinions that I need to - because we know our bodies best. (Because it was in my med records a bunch of times that I had already had cancer before and I kept thinking the cancer was back - I thought surely my doc knew better than me since he had all the blood tests). Since all of this, I have trusted my instincts because you are right - they are “practicing”/learning as they go.
Like you, I also had a very aggressive cancer. I think anyone who has ever had a cancer diagnosis remembers the moment of being told. It’s like everything they say after that just falls away. I remember asking her if I was going to die and she said she just honestly didn’t know. One thing I unfortunately learned after my cancer diagnosis was who my friends truly were. I thought I had so many friends, but once I was diagnosed, they just disappeared from my life (including my guy, who I wouldn’t have thought would have just walked away). I had very few people left in my life when it was all said and done. I was in my late twenties at the time - it was the hardest time of my life… I will never forget putting together my will so my little boy would be taken care of. But I’m now a 3-time cancer survivor, and I have made it through!!!
💜💜💜💜💜
God bless you dear heart ! I'm so very sorry you didn't have the support that you needed and deserved...your perspective is highly encouraging and know that you are a BLESSING to many, even though they may not know it. 🎉❤
❤🙏🏽❤
A true warrior!! What happened to the jerk Dr? Did he apologize?
@@CelestialChef90yes 👏🏽👏🏽👏🏽exactly what I want to know…report him to AMA…😒😖😤
Doctors with dimissive atitudes who treat sick people like mere bussiness transactions are sickening.
that’s the majority. Yet in reality they are legalized drug dealers for pharmaceutical companies & have no idea what health is nor how to restore it
I had an ectopic pregnancy & my doctor did not even ask me to take my coat off!! I went two days later to another doctor who looked at my face & phoned the hospital there in front of me & made an emergency appointment for 0845 the next morning. I shudder at the treatment i initially got. I bled as if I was competing with Niagara Falls. I recovered & had two children a few years later., All good.
@@maudeboggins9834 Sorry for what you went through & very happy for you now, 2 kids later 😊🌻
@@jtv848 Thank you. Very kind of you.
Thank you for sharing your story . It was very helpful and informative.
🇯🇲Bladder cancer is seldomly thought to be a possibility with:
1) women
2) young, women
3) young, black, women
4) young, black, women who neither drink, smoke or work with certain chemicals
I was quickly diagnosed in my very early 20s via an ultrasound that showed the tumor lodged inside the bladder.
Take courage. God is able. He still heals. I'll be 60 this year. No issues. No cancer.
By the way, not many wear a bald well. You did so gorgeously.😊
Few things if you don't mind:
1) Be mindful about your diet
2) Try as best to maintain a positive mind and deal with things in a pragmatic way
3) Deal with all hurts, regrets and disappointments of the past
4) Develop a healthy relationship with the Lord
5) Speak life, words are powerful. Do not personalize it. It's "the" cancer not "my" cancer
6) Be careful about what you say(your conversations), watch, read and to what you listen
7) Be very mindful about your conversations and the persons with whom you share the deep detail while on this leg of the journey.
All the very best.....blessings.
How did you fight it? Was it because you caught it early? What was your symptoms
Great life advice in general...heed the words
Love yourself, first.
Good luck, prayers for you sis
Amen 🙏🙌
🙏
Ladies, please if you have any concerns about bladder problems make sure you make a lot of noise with the medical profession. My daughter had UTIs for 20 years and constantly fobbed off with antibiotics, long and very painful story later she died on April 10th 2021 aged 39 leaving 5 children behind. She would be 42 tomorrow. May God bless you all and keep you safe.
I'm so sorry, Karen. May your daughter rest in peace.🙏🕊❤
@@sunshine9122 thank you, that means so much to me. God bless.
@@karenwright2695 God bless you, your grandchildren, and daughter.🙏🕊❤
wow I have been having back to back bladder infection for about 20 years now always treated with antibiotics only for it to come back with in a month or less
@THEGREATANDMIGHTY!🌹 that was the scenario with my daughter, please shout louder to your doctor, probably nothing but they should be investigating further. They have the mindset that younger people cannot get bladder cancer but I have seen so many reports stating otherwise. For your peace of mind ask your doctor to investigate further. God bless and keep you safe and thank you for sharing that with me.
I speak Jesus over you and your family Ebony. I'm going through treatment for Breast cancer, it's not easy but with God all things are possible.❤
Prayers going up for your recovery 🙏❤️🙏
Amen! The Lord is with you!
The lord is in the vessel
❤🙏
It feels like being misdiagnosed and given antibiotics is everyone's story 😢
I was 29 years old when I was diagnosed
I am 31 now
I am so glad I came across this video 🙏❤️
Hope you got better
Did you have the same symptoms?
Please try gratitude. I've read one Jewish book about gratitude: people wrote about how they didn't have something, wanted it so much, and they started practicing gratitude for about half an hour/hour each day. And they got what they wanted! Heavens are very generous. Remember this please: Rejoice always, pray without ceasing, give thanks in all circumstances; for this is the will of God in Christ Jesus for you.
Please read the comment under Martina McBride's ' In My Daughter's Eyes' video: My mom recorded a cover of this song for me and it took years before I could listen to it. Then it took a long time for me to be able to listen without crying. She got H1N1 back in 2009 when there was a huge break out of it. She was hospitalized and pit in the ICU 6 weeks before my 6th birthday and my little sister was only 1 1/2 at the time. The doctors told my dad and my grandparents to start preparing for her funeral because they didn’t think she was going to make it. So we prayed. Then not long after that on my birthday (September 27) she slipped into a coma. So we continued to pray and a few days later our prayers were answered as she began to get better. About a week or two after that she was home and on the mend. It was a true miracle and I don’t have a doubt in my mind that God had heard our desperate cries and answered them. I don’t know what I would do if I didn’t have her today. Praise the Lord.
One lovely comment, not mine: My husband had a stage 4 lung cancer, and doctor said he would only have few months to live. We have changed our live style together by changing our diet (Whole food plan base diet), exercise, and be in the sun for about 1 hr/day. To our surprise, his tumor in the brain shrink then disappear in just 2 short months. His doctor had no words on how we could reverse cancer naturally.
A clap 👏 for your husband who understood your situation.
My sister died from the same type of cancer, and she was misdiagnosed for 2 years. She died at 60, my sister was an angel.
God bless you.
RIP to your sister and my condolences
I'm so sorry for your loss.I'm Praying that The Heavenly Father strengthens you& your family in Jesus Name 🙏❤️.
I’m so sorry for the loss of your sister. 2 years of misdiagnosis. Such a shame … my sincere condolences to you and yours .
My sincere condolences 🙏🏿 ❤
This video popped up randomly and I immediately recognized her from our alma mater.💙💛 Grateful that she shared her story to help others be vigilant about their bodies/health.
I’m have been a healthcare professional for over 30 years. I had an abdominal surgery in 2008. I continued to have pain while recovering in the hospital. I was discharged after 3 days still in a lot of pain in a Sunday around 3pm only rushed back to the hospital at 10pm because I collapsed & couldn’t urinate & still in severe pain with every breath & movement I made. I was held in ER until 5am when the gynecologist came in & ask me why I didn’t call with my issues. I was very upset, I told him that I couldn’t pick up the phone to call 911, my 12 year old daughter called. I guess he was upset because that’s a bad for him & the hospital for a patient to return within 12 hrs. I was in the hospital for 14 days with a perforated bladder from a thermal burn. I had an ultrasound & CT scan every other day & the radiologist kept reporting negative for perforated bladder on every study. My diagnosis according to my gynecologist was UTI, even though the ER nurse catheterized me upon my arrival and got 500cc grossly bloody urine. I was in so much pain that I couldn’t advocate for myself & couldn’t communicate with my children because of the pain. The nurses said I was noncompliance because I didn’t want to walk or get out of bed because of the severity of the pain. Two nurses decided to force me out of bed to walk I was only 120 pound & 4’11”, being pulled out of bed & pleading to them that I’m in a lot of pain which they ignored. I blacked out from the pain. Finally on the 14th day a urologist was consulted & did a cystoscope and those results again was read by the radiologist with another negative results. Later that day the doctor came in and said that I had a perforated bladder and the films didn’t transfer to the PAC’s system which is radiology equipment. I was given only 1 Percocet for pain because the healthcare system always treat African Americans as though they are seeking pain medicine. Once the nurses found out I had a perforated bladder they apologized for getting me out of bed. A psychiatrist was consulted because they said I was depressed. He came in and asked me what type of work did I do at the hospital and before I could answer he said housekeeping, which was also an insult. I told him I wasn’t depressed but just in severe pain and couldn’t make any movements to eat or anything. My childhood friend came to visit me in the hospital & said I was groaning in so much pain that he went to the desk to tell the nurse to please give her something to knock her out. Everyone that knows me know that I’m a patients advocate but couldn’t advocate for me. This trauma that I went through still has affected me today in 2023 especially with my bladder. If I had passed away the doctors were going to lie to my kids. It happens all the time. When I left the hospital there was a nurse that said don’t let them getaway with this. She knew and others too the wrong that was done to me and the negligence. Thank God I’m better but still haunted by what happened to me, and I was an employee at one of the many hospitals this company has. Please be aggressive with your care. If you feel your body isn’t right follow up with your doctor. Do your research. I don’t have much trust in the healthcare system of today. Doctors are sometimes very dismissive. God bless everyone that going to through health issues. I put all of my trust in God🙏🏽
My mom also was told that maybe she was depressed. Symptoms: out of breath when going up stairs. Dismissive Dr but thankfully his staff was RUDE to her 1X and that’s all it took for my mom to go see another DR. She only had 9mo left. Stomach Cancer
You should sue these fools!!
I believe you should advocate for yourself now. Sadly, you went through all of that, and then biases were thrown upon you. The HIPPI laws still apply “treated with dignity and respect. “
I was Dx last year with LGLL. Went for a second opinion and felt unheard. I changed doctors this year and still felt unheard and lost. My last spot was this month and I told them my concerns and what I would do if I am not heard again. Things changed for the better! 😊
This story is maddening! I'm so glad you came out of it. I'm sorry you experienced that as I'm sure it has caused a lot of anger and grief. You deserved to be treated with kindness and humanity at such a vulnerable time!
Women please advocate for yourselves. We know our bodies better than the doctors.❤
I feel this. I had stage 1 bladder cancer two years ago now. I spent 6 months trying to get someone to listen to me. They kept checking me for UTIs and, when I finally got an appointment with the urologist, they basically told me I was probably imaging things. Just as they said that they turned the camera and there was a huge tumor. I’ll never forget their, “That’s not supposed to be there.”
Thank you for sharing your story.
How were you treated?
I’m facing this same issue right now and I have suffered for nothing! A urologist told me I was imagining things, that I should go to a psychiatrist home
Please tell me did you do a surgery and how are you feeling now? And how was the tumor found? I have done several test but all of them keep coming that I’m okay and I can’t forget how the last urologist I went to shouted at me for trying to explain to him how I feel
I’ve been suffering with this for the past 8 months now
Please help me out with information!
I’m dying, I’ve lost control of my bladder , I pee like 19+ times a day
I have a pain inflamed in my back sometimes and most times
I have a biting pain inside the centre of my bladder most times like I’m pee filled when I’m not 🤦♂️
WOW ‼️
@@willythekid-js5mqhey how are you ?
@@willythekid-js5mqi hope you’re doing well now!
Ebony, thank you for sharing your story. I’m going to make an appointment with a urologist next week. I’m 74, retired RN with systematic lupus. I’m having bladder infections several times a year now and I need to have another cystoscopy. I’ve had several colleagues die from bladder cancer. They were old white women, retired RNs like me. Again, Ebony, thank you for encouraging me. I needed it.
yep I am going to Dr on Monday , am 75 and have had 2 UTIs this year and have never had UTIs in the past ..thanks for this info .
I hope you got the care you need and deserve. If you want to share more, please reach out to me - stephanie@thepatientstory.com.
@@josiedickson6959in the ER
I had bladder cancer to. I went into surgery for a hysterectomy. They found the bladder cancer stage 2. 6 months chemo . 5 days a week for 4 weeks radiation. I go for my 3 month check up in June. Hopefully everything is good. but I control my bladder
GOD'S BLESSINGS
🙏🏾
My husband went to ER because he was having kidney stone pain. So they CAT scan and surprise, a tumor the size of a lemon! Went to urologist and surgery scheduled immediately. Surgery and at follow up, clear. 4 mos later, another check, cancer back. He said it was aggressive. Sent to cancer center and started clinical trial. He got Merck BCG treatment for the next 3 years. When he finished that it appears gone! So a couple more years of cystos and if he stays clear, he'll finally saybits gone. So good luck but it can be cured. Prayers for you.
I sure do love Ebony. She is gorgeous, smart, and resourceful. She sure did go through hell before she was finally listened to. Thank goodness she kept saying, “Something is NOT right here”. I hope you have fully recovered, and are doing well.
What a genuinely authentic, pragmatic and raw lady. I am so sorry you had to go through this.😪. We need more solid families like this who share the endurance, strength and extended and family support.
My mother had bladder cancer. Although she was over 60, the doctors originally overlooked things because she was Black, a non smoker, and non drinker. Unfortunately, she lost her battle with the disease. We also had never heard of bladder cancer.
I’m so sorry for your loss!!! Sending you love and light!!!! ❤
I got sick one day out the blue. The pain knocked me to my feet. I started vomiting and was taking to the hospital. They referred me to urologist because unspecified blood was found in urine. I had the ct scan done and the scope which both showed no sign of cancer. Still having a little pain but no blood this is an eye opener to not just let doctors dismiss what mconcerns you and your body. Thank you Ebony
My mother passed away this year from small cell bladder cancer. They removed her bladder but it had metastasized into her pelvic area a few months later. I miss her every day.
My cancer was also not diagnosed for almost a year and a half despite all the signs. All it took eventually was a CT scan that picked up my cancer. By that time it had gone to Stage 4. I was diagnosed with non hodgkins lymphoma. I was treated successfully but cancer returned after 18 months. I had more intensive treatment ending with stem cell transplant. Horrible side effects - I would not wish this on anyone. I never used to go to the doctor but when I started feeling unwell I was seeing him often. I was losing a lot of weight, having night sweats, losing hair, could not eat a lot and any mouthfuls I managed to eat did not stay in me for long as I was being sick. Doctors need to keep up to date with the symptoms of cancers so treatment can be given quickly.
This is my first TH-cam comment and I feel like i need to let you know that you’re strong and courageous!
I’m sending you love and light . You’ve come so far and God will take you even further. I’m praying for you and anyone else going through something similar❤
All the best dearest!
@@sandramartha47 Thank you very much for your kind words. I am doing well - sure chemotherapy has left neuropathy in my feet which causes some issues and my hair did not grow back welll, but these are minor issues compared to what a lot of people are going through in their lives. I am alive and enjoying life. My prayers and kind wishes are with everyone who is going through lives trials
Love and light to you
My sister is battling stage 4 bladder cancer… my love and prayers are with her, you and everyone fighting this horrid disease. 🙏🏻❤️🙏🏻
I'm sorry to hear your sister is battling blatter cancer 💛
Praying for you and your family Jeana!
Hi, you are not alone. Unfortunately. 😢
@@kanikagupta2456 NO ONE TALKS ABOUT - 1] what happens down the years with those hard medications. 2] Currently doctors’ practices changed to be standard typical treatments which they apply to every patient - They themselves do not know how to think outside the box. Which is harming so many people? 3] Many agriculture and meat contains Pesticides and now-a-days these type of things diseases like cancer and dementia, muscular, Tendonitis etc. are popping up like popcorn. Nobody is taking any action against those people who are providing these foods in market. Those who get the diseases - they get occupied with their internal health issues so their ability to fight gets limited with outside world. Those who survives for little longer they will think I have just touched near death experiences so let me live my life to fullest and matter for original cause of problems are not address. IN NJ they have found 500 plus cases of dementia in kids. Those kids parents should take action . This has become a game and for some doctors a play book game. I guess that is why they call they are practicing on you. At cost of your health they are practicing on you. 4] IT shocks me when doctors tell that all medicine has side effects and if you do not follow the rules which they created they cannot help. Clearly they do not want to think outside the box. 4] Radiation has so much issues with it - while taking even if you breathe it changes the position and wrong side get radiation - which means if you have on left side under you heart - your heart muscle can get damaged. Why can not do Open surgery to burn the lump or tumor etc....Why they are risking patients life to get damaged to other organs. WHY???? They are brain washing you with each medicine they put out in market - So pharma co makes profit at cost of your health.
She’s absolutely stunning
Oh Ebony ❤ your story, strength, and courage are amazing testimony!🙏🏻
I cried and blessed the Lord that I came across your story today. I needed to hear this message! My doctors and specialists have put me aside due to age (67), pandemic grief (lost 5 loved ones), inconclusive diagnosis, and more. But now I take courage to speak up for myself and not give up. God bless your family❤️🙏🏻👏🏻👍🏻🌸 Thank you!
yes!! please advocate for yourself!! YOU are worth it and deserve attention if you know in your mind things aren't adding up with what medical professionals are telling you❤❤❤
My mother was misdiagnosed with a UTI for one year . She was in her early 70's had no other health problems what so ever. She had blood in her urine and burning upon urination. Once diagnosed with bladder cancer they removed the bladder and gave her a urostomy bag. They didn't give her any chemo etc so the cancer came back a year later. Then they gave her chemo therapy and radiation because it had spread. She ended up dieing a year or so later and her journey with chemo was horrendous. You are so blessed to be here and I am so happy that you are sharing your story with others... ladies/gentlemen if a uti doesn't go away within a couple weeks insist that your doctor check you for bladder cancer and don't take no for a answer.
When I had my cystoscopy, I watched the t.v monitor & we instantly saw my 4 bladder tumors. You shouldn't have had to wait for any results!
Some urologists use the monitor, and some use a different type of scope that only has an eye scope. I've been checked both ways and much prefer being able to see what's in there. Best wishes for you, Ebony.
@@VSThibodeau Interesting- I didn't know that, thank you!
I was 49 years old when I was diagnosed. I came out of the bathroom & showed my sister the toilet paper which had a very faint look of diluted watermelon juice on it, and immediately told her "i have bladder cancer". I diagnosed myself- i just knew & I was correct. This was not the 1st time that I diagnosed myself. I am 63 now.
I diagnosed myself also. We know our bodies better than anyone else.
Wow, I’ve had that for years due to chronic bladder and kidney infections and Interstitial Cystitis. Good thing you noted that symptom because it was not normal for you. I do try to be mindful that my chronic symptoms could mask new symptoms.
Never be afraid to drop a doctor once you do not trust them drop them.
Did you use Pau d Arco, Red Clover, Turkey tail mushrooms, Essiac Tea , other Herbal medicine for Cancer
@@Awareoftruthfacts
As a veteran nurse and a woman with various challenging health problems, a therapist who I had been working with told me something no doctor NP, PA, DC or DO ever said to me before. He said “you are the expert on you”. It was tremendously liberating to finally be emancipated after so many others had never understood nor accepted that construct.
What a story x what I've been through and going through today is nothing compared to what you have been through x I send my ❤ and prayers x
Doctors over the years forget preventive medicine is the best x so many of us end up doing DIY x my experience is a lottery x you win or lose x if only they would listen more and not always think they know best as we know our bodies x it used to be about healthy patients x nowcis more about money x we can go to the moon so why cant every hospital have a machine that shows everything x so as to prevent things getting worse over months and even years x
The reality is not as easy as we think..I’m dealing with 2 Dr. That only seems to care about collecting insurance payments for surgeries.
As time is passing , my bladder cancer is going from low risk , 0 grade to 3 more high risk tumors and there isn’t discussions for treatment. ..What do Drs. are waiting for ? For my cancer to worsen . ?
Now I’m going to see a new urologist on Oct. , I hope he cares and give a treatment to stop this disease from spreading 🙏🏻🙏🏻🙏🏻
@@mirthab.7576 sending prayers your way , please let us know how you are going?? My mom is going through this right now too.
I started not to click on your video... But i did and im going to make an appointment thank you thank you im glad i heard you❤❤❤❤
Same. I'm glad I decided to watch.
Another bladder issue needs to be checked for and ruled in or out: Interstitial Cystitis. Orphan disease of the bladder. Mistaken for chronic UTI'S. It's an insidious little symptom presenter and a lot of urologists don't care to deal with it. Men can get it, too; but as with many other conditions, we girls/women tend to get it more so. We have to stand up for ourselves; we just have to. Ebony is one big inspiration.
Leticia, really appreciate you bringing this to the attention of our community! Couldn't agree more - Ebony is amazing :). -Stephanie
@@ThePatientStory thank you, Stephanie, glad I could offer a little insight into something that I've been diagnosed with since 1988...no, actually 1990--symptoms started in '88. Different folks with IC have their own individual outcomes. And there are no actual cures. It can affect daily life pretty unhappily. One of the biggest sacrifices in my case is sexually, because those organs down there are so close and connected. IC can cause flares of pain during and after sex--and the feeling of having to empty your bladder every five minutes for relief of discomfort. Uro-gynocologists are more prominent now, makes sense due to women's anatomies. Sorry to take up space about IC, but Ebony's story made me speak up!🙏👏🤗 And what she went through for the right diagnosis -- Time frame, I felt her frustration. It can take several specialists and tests to find the truth with urological symptoms.
I see now why I clicked this video! I’ve had microscopic blood in my urine for the last 2 years. No symptoms aside from the pee test. Figured it was stress from my horrifically drama filled divorce. Got a kidney ultrasound, cystoscopy and more. They found nothing. But when you said CT scan I almost chipped a toof logging into my medical portal to request one. Dr seems pretty good. But she too said that I may be one of the small percentage of ppl that have microscopic blood in my urine. Even the urologist told me she has excess blood in her urine too and nothing was found. Thank you for sharing, I’m requesting a CT scan ASAP. ❤❤
Same here but for the last 15-16 years. It started after I got pregnant or after I had my 1st kid. I have had the same procedures done. But I have not progressed to visible blood or other symptoms. 1 of the 1st questions I try to ask is "how serious can this be? Is there a possibility of cancer?"
Sending love and light your way!!
I was diagnosed with stage 1 aggressive bladder cancer in March. I had no symptoms but also had blood in my urine but like yours was not visable . I had kidney stones in the past so l thought l had another stone but my urologist sent me for a CT scan which showed a tumor. It was removed but still needed treatments. I had 6 BCG treatments. & next week will have cycsosopy to see if any cancer has come back. This is so scary. Im so glad your husband is there helping & supporting you. Im hoping my cancer hasn't spread. Bless you l hope you will continue to improve.
🙏❤️🙏
Def send you well wishes and keep you in my prayers🙏🏾
I was laying in my bed & came across your page.
I just went to urologist 1/22/24 due to microscopic blood in urine. I had a cystoscopy. He said I have a small tiny stone on left kidney that just sit there but sending me to have another scan 1/25/24. And said he look at me in 6 months. I will not wait 6 months I will listen to my body. I’m truly sorry u had to endure this & it’s really good to see u have such a wonderful husband that stands by u through it all. May God place his hands over all of us & strengthen & heal us through all of our challenges. We are healed in Jesus name❤️🙏🏽 Thank you for sharing your story ❤🙏🏽
Thank you Ebony for sharing your story. I am having a dull abdominal pain on my left side and I have women incontinence issues for years, so my primary doctor suggested that I do exercise to help strengthen my bladder - kegel exercises and I will but I am going to see a urologist to make sure that I don’t have an infection or something worse is wrong. I do believe the doctors are practicing physicians and I have been telling my family this for years. Nobody knows your body better than you when something is off and not right. Most doctors do just dismiss us and when they do if you don’t challenge them then it’s time to get a new doctor, thank you again for sharing
Im 36 and i had blood in me urine for a whole year before i was diagnosed with low grade bladder cancer, the drs. Kept saying i had a uti also until i went to a urologist. Keeping you in my prayers, ive had 6 cystocopys, never felt pain but the tumors keep coming back.
I can completely relate to your situation. I had a pelvic tumor at 16 and 20. Due to radiation in 1990 it destroyed my bladder and I had inlander leakage and inflammation in the bladder. In 1995 I had the Indiana Pouche which sounds a lot like what you had done. They removed my bladder and made a new bladder out of bowel and connected by kidneys to the new bladder and I have a pencil size hole of my right side. I cath myself and have had a few complications over the years. It is still the best decision I made. You don’t realize how quick you used to release your bladder versus now. I was getting bladder infections symptoms and would have to be on sulfate meds every 2-3 weeks and it was miserable plus dealing with the leakages. The Indians pouche was the best decision I made and it’s been 28 years. When I had my surgery in 1995 there was only 1 doctor who did that kind of surgery and he had only been doing it for 10 years. I’m glad it’s becoming more available as an option. Thank you for sharing your journey.🙂
If you don't mind, what caused your radiation??
Wow…what an impressive lady she is. Everything! So articulate, smart, engaging, her courage….(and she’s absolutely gorgeous!)
As expected👌🏾
You & your husband lucky to have each other during this difficult times.
You are so knowledgeable about your problem with cancer. I wish I could have been like you, all I know is I was so bitter and angry that I ended up with cancer that I completely shut down. God bless you and I pray you continue to be healthy and long life. ❤ And you both will be ok as long as you stay positive. And I took the natural holistic way to heal my body after surgery and change my diet because just about everything we eat is toxic and manage my emotions.
This is weird that this just showed up. I just had my first UTI ever. I’m 59. I have been having stomach problems. Thank you so much!!💜 I am going to the doctor and making them check me out very well!!
I had lymphoma and was gaslit for 1 year. It doesn't matter what you look like. I had lymphoma, and my airway was blocked. When i told my male doctor that i couldn't breathe or swallow, he prescribed me anti-anxiety meds
It does matter. There are literally stats to prove biases I healthcare! Sorry that you did not get the attention you deserved, but you don’t have to dismiss a real problem just to prove your point. Also, some cancers are more prevalent in certain groups. Bladder cancer mostly affects men. Most are in their 70s and are white.
True my dad got it and he was all things
I’m so sorry you had to travel this long journey. In my 50’s I was lucky my bladder cancer was diagnosed very quickly thanks to a switched on doctor. Consequently my tumours were non invasive and contained in the bladder and could be removed fairly easily. My recovery was quick and I give thanks when I hear cases such as yours. I sincerely hope you go forward and thrive 😊
My God is the healer the great physician He can move mountains.
What is your age now
@@sadiarahim2640 72 😊. I’ve have had several reviews since the last bout out of chemo and still ok. 👏👏
"Don't be fearful of what the outcome can be." Yhew Ebony, you just said what I needed to hear.
Your story is amazing. God bless you and your family.
Amen. I'm dealing with possible bladder cancer. I've had some terrible doctors up until recently. I hate each and every one of them as I'm waiting to be told it's too late.
I have to say what a natural beauty you are inside and out. What a blessing to your boys and husband you must be❤
This lady is a real treasure for sharing her story so candidly ❤ thank you so much for posting this video. I’m floored at how the doctors dismissed her issues for so long; I know that women get dismissed more by Drs, and it’s probably even worse for WOC. I couldn’t help but wonder if she could have saved her bladder, if it had been found earlier.
Praying for divine healing for you, Sister.🙏🏾🤗❣️
God bless you ebony. May you live a long and healthy life. I stumbled on this after just having a cystoscopy today. Went through breast cancer that had spread to lymphnodes and have had slight blood in urine for 5 years. Doc says things looked great and to be checked regularly. I will be bringing up this issue. Thank you!!❤
Thank you for sharing. My Grandmother (RIP) passed away in 2010 from bladder cancer. Unfortunately when she started developing symptoms and was diagnosed it was aggressive and at a higher stage so while treatment and surgery was done it was in essence too late. Sharing your journey has and will shed a light on not just bladder cancer but healthcare in general as you remind us on the importance of self advocacy. Continued Light, Blessings, and Prayers
This is a prime example why I always advocate to get a second opinion. Sometimes, you may have to get a third opinion. Things don't always show up on scans. It happens. I don't fault your doctor because nothing showed up on the scans. A doctor nor nurses are perfect. I am a nurse. We just try to do our best. A doctor usually looks at your tests and symptoms. If nothing is seen, what do we want them to do? I hate that it happened to you. However, I am glad that you are still here to talk about it!
I’m sure you have helped so many people with this video. You look so healthy now it will be extremely encouraging to so many! Thank you for your courage, your clear information and your desire to help others. You went through so much and I’m glad God gave you a loving husband to be at your side.
Wow.... you were literally speaking to me in this video! I've been dealing with the same things for the same amount of time... and I'm 45. I'll be 46 in Aug. They keep giving me antibiotics for uti. I got goose bumps listening to your story.
I'm making an appt to schedule a CT scan!!
Notably, bladder cancer took my father (an older white male who smoked most of his life) in 2008-- when I was 7 months pregnant with my last child, which coincidentally was also my last surgical procedure as it was c section delivery-- yet it never occurred to me that this could be what's going on until this video... wow.
Thanks for sharing your story. ❤
Double thank you ..
@@lucyleftthebuilding99 are you feeling the same thing?
And is yours biting you like you are pee filled ?
First and foremost you are beautiful!!! I admire your strength and determination to fight through the challenges you were faced. Thank you for sharing your story! You’re helping so many people and that’s a huge blessing
I am so very happy I came across this video. I literally felt like you was telling my story. I am a young African American women diagnosed at 37 and went through 5 yrs of tx before I finally decided/ had to lose my bladder March 22nd 2023 neobladder, home for a week back witn Sepsis and kidney failure. I documented my journey as well to help educate others and bring awareness. You are blessed and so glad you are thriving!! Continued blessings to you.
Thank you for sharing your story here. We'd love to feature your voice on our platforms, as well, if you are interested.Please reach out: stephanie@thepatientstory.com
Anyone with bladder cancer, or undiagnosed bladder issues.. I have a story for you.. Ebony, I am so glad you were able to finally get a diagnosis and treatment!!! I am not trying to hijack your story, just want to add more info for anyone who may be in the same situation...
I have had bladder cancer twice! First time I was 33 years old. Mom with 2 little kids. Same thing, no tests showing anything. Non smoking, healthy, no other red flags! My only symptom was some blood in my urine. BUT I luckily had randomly chosen the BEST urologist! (I never went to the dr, was completely healthy so I didn't really even know where to go - picked a urologist from the phone book - this was back before the internet was as useful as it is now!) We also had no health insurance. Young, active, healthy and starting a new business - money needed elsewhere (boy did I learn a lesson!). It was a blessing, though. I did not have to wait for a referral or approval - I just went right to a specialist. And my urologist helped me find other doctors would take an uninsured patient. Because I was white and married, did not qualify for any govt assistance.. (another LONG story). Anyway, he never gave up. We had test after test. Over the course of 2 months I think I had a test/scan/scope/xray etc every week. My tumor was finally found with a strange xray where you have to take the xray 'as you pee'. Surgery scheduled and I credit that wonderful man (and God for sending me to that doctor!) to have saved my life! He never gave up. He was doing every single test in the book until he found out what was going on! I The tumor was of uracheal origin, but had broken into the bladder. So even though the source was not the bladder, its considered a bladder / urological cancer. The cancer I had was very rare, and I was lucky to have found it. However, my odds of survival were low.. Very LONG story short, tumor removed (I was able to keep my bladder even though the tumor had gone through all layers of the bladder wall)- radiation and chemo .. A few side effects have lingered from the chemo, but other than that I have been able to live a normal healthy life...
27 year cancer-free years later .. I was diagnosed with a different form of bladder cancer. Totally not related to the first. Still not a smoker, still healhty, but older now. In a way it was a blessing to have that instead of some other cancer, because I knew the signs to look for. Caught it early enough that the cancer had not even formed a tumor yet. After 2 weeks of blood in my urine, antibiotics did nothing.. I knew something was wrong! My Urologist is fantastic, Saw the suspicious cells during the cystoscopy. A week or so later (as soon as I could get all the pre op stuff done) I had surgery and he removed it and now I am doing BCG immunology treatments and outlook is good. Cancer is not a death sentence. Every person is different, and even if your odds of survival are low - dont give up! Keep fighting! If something feels weird, if you have unresolved medical issues, fight for yourself. You are the ONLY one who knows what is normal for you.. Go to as many doctors as need be. Find out what the issue is, so you can fight it!
I have a channel where I talk about other things, but plan on doing a series about my entire cancer journey soon.
Thank you for sharing your story, Ebony. It’s very timely.
My tests have shown microscopic haematuria for the past year and I’m due to have a cystoscopy soon. I actually postponed it because my doctor said “maybe you’re just one of those people who have blood- it’s probably benign”. After hearing your story, I will make sure I undergo the test.
It was unsettling to hear that you underwent these tests and your doctors didn’t find the cause initially. I pray the same doesn’t happen to me.
I hope this finds you recovering well. You are a brave & inspiring woman & I pray you have many more healthy years ahead of you to spend with your husband & sons.
I hope you're no longer seeing the doctor that brushed off the blood in your urine. omg
Ebony, thank you for telling your story! You are such a strong, brave woman! I had a cystoscopy last year and the dr removed a tumor that was malignant, but it had not spread. Thank God! I have cystoscopies every 6 months. Your husband is amazing and may you be blessed with a long life to spend with him and your sons. 🙏🏻
Has your doctor ordered urine cytology for malignancy?
Please go to a top hopsital/urologist and not someone that says it's some peoples normal.
@@joycemartinez4718 is your urine have blood that’s why the doctor decided to perform cystoscopy
Geez, I’ve had blood in my urine as well. I’ve been on antibiotics over and over again. I went to a urologist and they didn’t see anything else wrong, just told me drink more water. Maybe, I need to go back for a different opinion. Thank you for your story.
They need to do fresh urine microscopy and follow the Malone-Lee Protocol for chronic UTI... if it’s not cancer, it’s an infection of some type
Hey, you like true crime! Me too! I’m in the uk, on Shetland Island and also have chronic uti. Do you have pain too?
Definitely doesn’t hurt to get a second opinion! All the best to you!
You should definitely get a second opinion. Don't wait. Do it now.
@@Ida-Adrianawhat type of pain are you having?
Glory Hallelujah ❤
God is an awesome God. Thank you for sharing. I've had blood in urine for 15 years. Seen urologist, had scans and scopes. I'm going to ask for a CT scan. Thank you a million times. I know 15 years is a long time, but things can change overnight. You are so strong. I pray that God continues to bless you and your family.
Hi Ebony, I came across your vlog & could relate to your story. I watch lots of vlogs of people sharing their cancer journey. Yours stuck out as you do not hear many about bladder cancer. Self cathertisation is not a nice thing to do, infact its evasive & can cause pain & frequent UTI's. I say this because I have been doing this for 22 years, 4 times daily every 6 hours & need to continue doing it for the rest of my life as my bladder does not empty & they have not been able to find a cause.
Anyway i just wanted to say 'Thank you' for sharing your story. I am happy you are now better & wish you all the best. Sending hugs 🥰💜❤️🩷
Ow ow I got hit ahhhhhh help
My aunt recently passed away from bladder cancer too.
GOD BLESS
It’s not rare my father died from it
Happened to my grandma to! They kept treating her for UTI and it was cancer.
If the cancer my mom had in her bladder had been invasive she would have died too because her tumor was large and had some small ones also! The docs kept treating her for UTI’s also! God was with her!
I don’t know anyone with bladder cancer although I have far too many with other types. I’m not sure why I clicked this link, but so glad I did. YOU are such an incredible inspiration. I pray YOU have your best Life going forward.
I’m 75 and had breast cancer twenty-four years ago. I know four people who had bladder cancer (all older white men, one of whom was a long-time smoker and one who was an alcoholic in recovery). I know that a cancer can develop in every part of the body.
I'm in the midst of battling bladder cancer....My partner decided to leave after my first surgery in 2021, so it's me and my mother. Thank you mom.
Wow! Her testimony is incredible! what an amazing woman!
Thank you tremendously. I’m so grateful!
Good for you calling your doctor out on the results.
Wow! You went through a lot. Amazing. Thanks for sharing 🌷
Fantastic story and I hope Ebony and her beautiful family are thriving. You went through a lot and I hope it's better.
God bless you ❤ I also had muscle invasive bladder cancer in 2019. 5 rounds of MVAC chemo which destroyed my kidneys. Bladder, uterus, appendix and lymph nodes removed 1/7/2019. Only symptom were chronic UTIs which I am STILL struggling with to this day. I have a neo bladder and have chronic infections still I have one now as we speak. & stage 3B chronic kidney disease now. I’m so scared 😟 f getting cancer again and not having help because of my kidney function. Sending so much love to you.
@suez5468 God bless and keep you strong and safe. Sending up a prayer.
@@KLeonardM Thank you so much ❤️ that is very sweet of you.
Praying for you! My kidney function has been impacted as well. I’m trying my best to monitor my water intake and emptying if neobladder every three hours all day long. Sending good vibes your way as well!!!!❤
Thank you for sharing your story.❤
I love how vocal she is about her body !!!!!!
Rare and very helpful contribution for women with bladder problems, and a diagnosis of bladder cancer.
Many thanks.
You’re absolutely welcome!
Oh my goodness!! Your story is my story. 😢😢❤
Praying for you Yolanda!!!!
Glad you shared! My aunt went through the exact thing for a year and than they diagnosed her
Thank you for sharing your story ❤. I wish you the best life forward 🙌🏾.
Congrats for fighting and overcoming this difficult experience and thank you for your testimony to help others who will have to go through the same.
You’re a wonderful women and I wish you and your family all the best.
Had a bladder cancer too that was about to invade the muscle wall and a gross hematuria helped to diagnose the problem just in time. That was my luck and I manage to keep my bladder but I feel you.. thank you and be blessed.
I’m so sorry this happened to you, prayers for healing. 🙏🏻♥️🙏🏻♥️🙏🏻♥️ Thank you for sharing your story.
Thank you... thank you, for sharing this empowering story.
Thank you for your story. God bless you and hope your doing better.
I know this wasn’t easy but I am so happy that you made it through! Sending lots of love and blessings to your family 💖🙏🏽💪🏽🫶🏾
OMG, you went through so much, bless your heart. I wish you all the best of health.
Thank you for sharing your story… I really learned so much 😊
Thank you for sharing your story, your soul with us. I felt all of it. God bless and keep you.
What an amazing, brave, kind and thoughtful young lady. She is an absolute inspiration.
Wow never heard of this and thank you for this information and I’m so happy you are doing better ❤️
Listening this at this time as i await my surgery for gastric ca on 5/7..gives me hope ill be victorious.. giving my testimony soon ❤
You are so strong! God bless you and thank you for sharing so others can be better informed.
Thank you for sharing. So glad you are still here with us. Very inspiring. Thank you
Wow, you are a warrior! Good for you and glad you won!😊
Thank you Ebony 🙏 God bless you and your family!
Thank you SOOO much for your testimony Ebony. You are a warrior and sure give a round of applause to your husband and family. Being surrounded by people ( that be your medical team, care team , family and friends) who genuinely want to do all in there power to make you well is half of the battle to recovery and luckily you have an outstanding support team. Best wishes on your road to full recovery. You got this. You got the inner strength, the will power and mind set to beat and overcome.
Thank you for putting this out, I’m sure it will definitely help others. Glad you were so persistent; because that has definitely saved your life. You seem to be an amazing, and very optimistic person also. May you and your family be blessed…❤
Thank you for sharing your story. It’s truly inspiring.
Wishing you all the best. Thank you telling your story.
Your are a very strong young woman and your husband has your back. Stay positive and prayerful. 🙏❤️
Thank you for being so brave in sharing your story. I’ve been concerned for a while, just need to “bite the bullet”. You are a ray on sunshine.😊
such a powerful story brilliantly articullated as well, bravo!
I'm so glad you are feeling better. ❤
Thank you for re-living this and being so open and honest in sharing your experience. I know that in doing so, you will help so many others to continue being an advocate for themselves too.