I know exactly how you feel. I have Choroideremia, long story short, the nerves in the back of my eye dont get enough blood flow so they die off overtime. This gives me night blindness, light sensitivity, and is eroding my peripheral vision. Im at less than 5 degrees now which is like looking through a paper towel roll. I feel your pain as I already have to sit in the back of the theatre just to see enough of the screen to know whats going on and adding subtitles, especially when theyre not in the same place everytime really makes it hard to enjoy a film. When I do read them its all I see so like you I miss everything else happening on screen. Next time you go, ask the theatre if they have audio discriptor equipment a lot of theatres do, but dont make it known for some reason. Essentially its a headset that explains whats going on. Kind of like listening to an audiobook about the film while watching the film. It helps. It still takes you out of the film a bit, but if the film has subtitles or is filmed very dark, the audio discriptor does a good job of filling in what you dont see. I hope they do, and I hope this helps. Thanks for sharing, knowing others feel your struggle always seems to help. Best regards.
I also have Stargardts and the struggle is real! I can't go to the theaters anymore and if I play my favorite video game Skyrim I have to be extremely close to the tv/pc screen. 😢
Hello there I'm Sam, I am also legally blind I can definitely relate to what you are saying when it comes to TV and video games I'm completely blind in my right eye and just a little more than halfway blind in my left eye I have very low visual acuity subtitles are impossible for me to read even if I'm looking at them at a distance I also miss a lot of action on the TV or the cinema screen because I too can only see one specific area at a time yes I can constantly scan by turning my head back and forth but that gets a little uncomfortable after a while. I also have nystagmus which is involuntary movement of the eyes that makes it very hard for me to focus on anything for a long time. what I would suggest for you in movie theaters and at home when it ever it's available use a service called audio description it's a narration track that describes everything that's on the screen including subtitles you might want to check with your local Cinema see if they offer that I know services like Netflix and Amazon Prime offer that on some content I also use adaptive devices magnification special glasses but yes take them into a movie theater would make you look suspicious so I also don't do that. Thanks for sharing.
Many people with low vision find the use of filters help. Making the movie/show black and white or even monochrome can sometimes help them make out what’s on the screen. Tutorial here: th-cam.com/video/-A7IBryoIwg/w-d-xo.html Another option is to use a gear VR and netflix or hulu. This of course with only help with nearsighted low vision impairments.
I know exactly how you feel. I have Choroideremia, long story short, the nerves in the back of my eye dont get enough blood flow so they die off overtime. This gives me night blindness, light sensitivity, and is eroding my peripheral vision. Im at less than 5 degrees now which is like looking through a paper towel roll.
I feel your pain as I already have to sit in the back of the theatre just to see enough of the screen to know whats going on and adding subtitles, especially when theyre not in the same place everytime really makes it hard to enjoy a film. When I do read them its all I see so like you I miss everything else happening on screen.
Next time you go, ask the theatre if they have audio discriptor equipment a lot of theatres do, but dont make it known for some reason. Essentially its a headset that explains whats going on. Kind of like listening to an audiobook about the film while watching the film. It helps. It still takes you out of the film a bit, but if the film has subtitles or is filmed very dark, the audio discriptor does a good job of filling in what you dont see. I hope they do, and I hope this helps.
Thanks for sharing, knowing others feel your struggle always seems to help. Best regards.
I also have Stargardts and the struggle is real! I can't go to the theaters anymore and if I play my favorite video game Skyrim I have to be extremely close to the tv/pc screen. 😢
You may want to consider a VR headset option.
Hello there I'm Sam, I am also legally blind I can definitely relate to what you are saying when it comes to TV and video games I'm completely blind in my right eye and just a little more than halfway blind in my left eye I have very low visual acuity subtitles are impossible for me to read even if I'm looking at them at a distance I also miss a lot of action on the TV or the cinema screen because I too can only see one specific area at a time yes I can constantly scan by turning my head back and forth but that gets a little uncomfortable after a while. I also have nystagmus which is involuntary movement of the eyes that makes it very hard for me to focus on anything for a long time. what I would suggest for you in movie theaters and at home when it ever it's available use a service called audio description it's a narration track that describes everything that's on the screen including subtitles you might want to check with your local Cinema see if they offer that I know services like Netflix and Amazon Prime offer that on some content I also use adaptive devices magnification special glasses but yes take them into a movie theater would make you look suspicious so I also don't do that. Thanks for sharing.
Many people with low vision find the use of filters help. Making the movie/show black and white or even monochrome can sometimes help them make out what’s on the screen.
Tutorial here: th-cam.com/video/-A7IBryoIwg/w-d-xo.html
Another option is to use a gear VR and netflix or hulu. This of course with only help with nearsighted low vision impairments.