Living With Hemiplegic Migraine | Stroke-Like Symptom | Is It A Stroke Or A Migraine? | The Solution
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- เผยแพร่เมื่อ 27 ก.ค. 2020
- Hemiplegic Migraines often have quite an alarming presentation, due to the symptoms being similar in nature to those of stroke, multiple sclerosis, epilepsy or various metabolic disorders. brisbanemigraine.com.au/hemip...
One of these bad boys sent me to the ER, thought I was having a mild stroke. So now here I am doing a little research.
The symptoms can be very scary. As you mentioned, they present just like a stroke. Hopefully that research is coming along nicely. I would recommend having your neck assessed to determine whether you have a sensitised brainstem.
@Vee Dragon Are you taking medicine?
Jszje die dos zod.skdmdr f tctbg
Suuznzjznsksosnxow zoe soa zksndkz
I thought I was dying. I had to drive myself to the er. My husband was mad because he had just gone to bed when it happened.
@@cw2830 are you feeling better? I’m just getting discharged I had a CT scan and mri scan and it was negative
Thank you so much for putting put this information video. My boyfriend just the other day was driven home from work because his speech was slurred and they were worried he was having a stroke. We got to the ER and had a catscan and the doctor there said to see a headache specialist. It was so concerning. I had never seen him respond so slowly, like when you're internally gutting through pain. Thank you so much for putting this out there foe others to know.
Finally I'm seeing a neurologist tomorrow. Today, I had a terrible migraine with weakness on my left arm. I've been in bed all day 😣 Thank you for this video.
Same here your not alone ..make some exercise like walking
Hopefully that appointment was useful to you! Good luck with your recovery and I'm glad to hear that the video has helped with your understanding of your condition.
I got terrified the day it messed with my throat the only thing that happened to t was it felt weird I couldn't do anything on one side but it making my throat feel weird scared me apparently I forgot my mom one time when I had one when they told me that I almost cried luckily it only happened once
If any of those happen to you just know they can last a week I heard but it stops I just want you to know it's never known to permanently do that
Thank you. I was so concerned when I started getting hemiplegic migraines. I had a realllllly bad one recently and it's so helpful to learn more about them and to know it's normal that it feels like this
I had an MRI done 2 years ago but they never really went into detail on the type of migraines I was having so I'm very thankful
Literally felt like u were taking to me directly. I have over 30 illnessess that 8 have gained in the last 8yrs because the gp's dont have the time to know u. Ive been given prescription after prescription for an illness I dont have diabetes because it also has said to work for a skin condition or an epileptic medication given to me to pain. I am researching and fighting for my own health now. I have a very complicated medical history due to missed diagnosis. I had my first episode of paralysis and no speech on the 17th sept 20. The day after my 36th birthday!
I'm sorry to hear about that, that's not exactly what you'd want for your 36th birthday! I would recommend that you have your cervical spine assessed, to look for signs of a sensitised brainstem. It can be a cause for MANY different symptoms, so hopefully having that treated can at least provide you with answers to some of your questions. It sounds to me like the medications that you've had prescribed are not cutting it for you.
Dear Sarah,
Hope you are feeling better now and is speedily recovering. I do empathize with you, you are very young and have your whole life ahead of you, just like you I too suffered a mini stroke in November of 2020, although I had no prior underlying issues, I am in my early 40s, I had margrine and I experienced slurred speech, was taken to the ER and MRi said there was a stroke, however the cause was never identify. This has left me very confused and anxious. Although thankfully I did not suffer any paralysis, I still have the numbness and tingling in face and hands. I am send prayers for you from the creator. May God heal us and know that I don't know you but I still care about you. Your sister ken.
Glad you made this. I suffer with anxiety and when I got this I was freaking out. I have this but it’s very minimal I believe, very subtle face numbness and I can still feel but only about half as much as I can feel on my other side of my face.
Hi there. Sometimes, knowledge of what's happening to you can be quite empowering. I'm glad we could help.
Thanks for this clear description. My first episode started in 1965 a few days after an apendectomy. Over the years I have been misdiagnosed and dismissed by many physicians.
The research for migraines has vastly improved in the last ten years, and a lot of physicians have been trained before then, sadly. That's a long time to be having hemiplegic migraines, Helen! In my opinion, it would be a good idea to have your brainstem assessed to see if the brainstem is the cause of your paralysis/numbness.
Yep mine started after surgery immediately. But I had a terrible reaction to anesthesia also .. Anaphylaxis. Terrible Migraines and neck pain started on that day. Its no telling how rough they are during surgery because by neck had bulging disc one week later when I had a ct scan. So.... Something happened.
You hit that video is spot on! I also have mild epilepsy after having had a grand maul seizure. Great job with the video it really helped out a lot even for me after all these years to see with some of the other causes are. Thanks
Hi Christine, you're most welcome. I'm so glad you found the video helpful!
Bertand, thanks for this great video. I had Familial Hemiplegic Migraines several times a year for about 23 years. I had all of the symptoms you described, to a greater or lesser degree, with the hemiplegia beginning as pins and needles in my left fingertips that then progressed slowly up my arm to the top of my head and then down the entire left side of my body to my toes. This parasthesia moved in narrow bands (about 5-10 millimetres in size) as it progressed, so that previously affected sections recovered within 5 or so minutes.
Seven years after my FHMs began, I was diagnosed with an inherited Cerebral Small Vessel Disease called CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). Migraines (with or without aura) is a symptom in a significant number of people with CADASIL.
Anyone with a family history of FHM, especially where no other cause can be determined, should consider whether they may have CADASIL.
Hey! Hope you're well. What happens during the time in-between these episodes? Do you experience lingering symptoms but to a much lesser degree?
@@nkululekomtolo2539, sorry, I’ve just seen your comment. CADASIL also causes lacunar strokes, of which I’ve had several. So hard to know what in particular causes my lingering symptoms, which are: chronic pain; chronic headache; chronic and strong fatigue. I rarely have the hemiplegic migraines anymore (they used to be horrific and could last for up to two weeks). I’m now 59 years old, so perhaps my advancing age has made a difference 🤷🏻♂️.
Thanks for sharing I've been a chronic migraine sufferer for many year and been treated reasonably well with epilium but noticed in the last couple of years has steadily got worse... thanks for the explanation in an understandable way👍👍👍
Hi Phil, You're most welcome!
May God bless you for sharing your knowledge on this topic.
You are so correct!! Here's my issue: Smells trigger terrible migraines with auroas such as physical things.... Left eye gets quite larger, facial pulling, see brighter colors, numbness, lose control, can't thing of right words to say, and of course severe pain ..ONE SIDED. Have had no strokes but have had brain bleeds during migraines which left lesions. The sensitivity to smells and migraines started 25 years ago after a terrible reaction to anesthesia. Immediate symptoms started. But u are right about vertebrate. Although this was not initial cause.... Due to me holding my head and neck a certain way for 25 yrs to relieve pain on nerves it has caused bulging disks in c1 thru c4 which made it worse over time. Tried to physically adapt to it yet body changes made it worse because no doctor wanted to treat causes but only symptoms. Pharmaceutical $$ rebates have driven treatment for symptoms versus source treatments.
Unfortunately the medications are ineffective for many sufferers, such as yourself. If we continue to only treat the symptoms, all we're doing is putting a bandaid on the problem, rather than discovering and treating the underlying cause. I'm glad you've brought that up. Hopefully you can find someone that is willing to take the time to thoroughly assess and treat your cervical spine and provide you with the relief that you deserve!
Same here
I god dearest, I honor you. You know what suffering is.
I see a headache specialist and this has never been addressed. I have migraine daily and anything I have been treated with eventually stops working or provides minimal relief. Thank you for your video as I know what to try and advocate for myself!
Hi Robin, I'm sorry to hear that this has happened. You're most welcome- I'm so glad you found the video helpful! You may benefit from seeing a Watson's headache practitioner, if this isn't something you have already done.
Such a wonderful video. I wish you were closer! I have Hemiplegic Migraines as well as Chiari 1 Malformation. Would Chiari Malformation cause a sensitized brainstem? I have been trying to avoid surgery to correct this but may have not other choice.
I've been thinking I'm having a stroke for the last 3 years... 😩. It's so annoying
Right? The stroke symptoms describe my migraines.
It really is scary as hell. Hope yours get better.
I'm so sorry to hear this! They can indeed be very frightening and debilitating. I hope you've since been able to find some resolution for your symptoms!
Don't know if this will help anyone, but I went on a healthy keto diet and totally cured myself of these. I started getting these when working midnight shifts typically once a month. First time I had one I went to the hospital because I was worried I was having a stroke. Just saying look into it, typical high carb insulin spiking diet is the root cause of a lot of problems. I didn't know this until i researched it. Good luck!
Hi Brian, thanks very much for your comment and input.
I started getting them from the age of 11. Sometimes once a week. Excruciating pain on one side, paralysis on the other. Couldn’t see out of my right eye, hear out of my right ear. It would start with numbing in the fingertips of my right hand, then creep up until I couldn’t move my lips, numb tongue. Tunnel vision. Right side paralysis.
I’m now 54 and rarely suffer from them, 1 every 2 years about.
Unfortunately, my daughter who is 17 suffers from this now too. But at least she knows what it is. I wasn’t diagnosed until I was 35.
So you didn't get medical... oh god I'm sorry that happened I have them I was told I have them at 4. And we are switching medicine now I really do hope you two have found medicine that works and I'm sorry that happened to you❤
I have Hemiplegic Migraines. Didn't know I had them until my friend asked if I had a Migraine. I said yeah, why? She said, "Because the right side of your face is drooping."
I had one today set off by a really strong smell. Mine are sporadic. My migraines began after a TBI. Botox for Migraine and Aimovig have drastically helped!!!
Hi Sar, I'm so sorry that you've experienced this. I'm glad to hear that botox and aimovig have been helping your symptoms!
I have chronic migraines and I had this happen last night I also have a history of strokes so I thought I was having a stroke but it’s weird both sides tingled almost like a humming in my arms and legs then they just went limp. I never knew this was a thing I also have lupus and a mechanical mitral valve. Thanks for this video!
You're most welcome- I hope you found this video helpful! Please feel free to get in touch if you have any questions.
Ive had these since i was 5. Got really bad end of my pregnancy and while breatfeeding. Found out my vitamins were low (D & b12) i take a multivitamin (that also has coq10 ) and it has helped so much
'Folbic' daily is good for the B deficiency. It has to be prescribed where I live.
I started taking the coq10 and it has made a huge difference I too have had them along with pregnancy and breast feeding. The dr said the hormones were a trigger.
Folbic is a great multi-B vitamin.
I’m on week 38 of my pregnancy and they’ve just started 😩 I don’t really know what to do with myself
@@jasminetootill3099 yes I had bad bad migraines towards last 3 months of my pregnancy also. Back in 70s they could give prescribed darvocet but of course now they will probably not do that. Had no effects on my child or my pregnancy. I doubt now a doctor will do that with medicine liability crisis. . Ask your doc. Its sad people have to suffer. Ice on my neck works very well with me now.
A year ago I had an ice pick headache from hell, and went to bed to sleep it off. The next morning I noticed weakness on my left side, and by lunchtime I had trouble swallowing, so I went to the ER where they imaged and tested me six ways from Sunday, finding nothing except some cervical stenosis. No one in my family has this and it has not happened since. Might ask my doctor for referral to headache specialist. Thanks for this video.
Hi Eleanor, it's great that they did all of those tests, as that rules out many of the more life threatening conditions that present in a similar way. Good luck with the headache specialist!
What’s the difference between a neurologist and a headache specialist?
WONDERFUL thank you
Hi Elle, you're most welcome!
Have you ever seen spasmodic torticollis tied to these type of migraines? Was diagnosed in my teens now 40s. I haven’t heard of vertebral involvement till this video. Thank you so much!
Hi Jennifer- apologies for the delayed response. Though this isn't something that has been researched thoroughly yet, it is a possibility that this could be tied to headaches and migraines.
I've just been referred to neurology after getting the all clear from the stroke unit at my local hospital, they believe I'm having a hemiplegic migraine. It's been very painful and debilitating, I have numbness and extreme weakness down my right side, face, tongue, torso, arm, and most of the way down my leg. I also have blurred vision in my right eye, episodes occurred speech, stammering and inability to get my words out, dizziness, nausea, I struggle to walk and when I can I sometimes veer right. My fine motor skills have been retained so small specific movements eg Holding a phone and typing I can manage, larger tasks like walking, lifting anything large/heavy like a kettle of water or a big carton of milk, or just raising my arm to chest height are not possible.
I have several pre-existing conditions, both neurological (epilepsy) and autoimmune (MCAS, Grave's, being investigated for sarcoidosis, Sjorgen's and Raynaud's), I'm also hypermobile, have fibromyalgia and polycystic ovarian syndrome. I also have degenerative sclerosis of the sacroiliac joint. One particular issue I wonder if it can be involved or even the cause of my migraine is a syrinx at T2, stretching to T3/T4 (I'm awiting neurosurgeon assessment), could that be possible? The stroke nurse and physiotherapist told me that would be impossible, although I know a syrinx can cause many issues (I've just been diagnosed with dysmotility too), are they right in saying it couldn't affect any area above it even indirectly? Even if it altered the CSF pressure which it is fully capable of doing that could surely affect function? I'd be very interested to hear your thoughts on this!
This is exactly me!! I can copy most of what you wrote here..now i need to find a doctor.who will listen. Thanks
Thanks very much for your question. Unfortunately, there hasn't been much research in this area to determine whether or not a syrinx contributes to migraines, so I am sadly unable to answer this question. However, it's great that you've been undergoing testing for your conditions. I'm so sorry you've been experiencing these symptoms- it sounds very difficult! I hope you have since been able to gain some more information and relief from your symptoms!
I recently started having complex migraines. It was the worst day in my life. I was paralyzed for like 6 hours in my left side. I also learned that I have a small irregularity in my brain stem where my spine and brain stem connect.
Hi John, I'm very sorry to hear that- that sounds like it would have been very difficult. It's a good thing you got this assessed- hopefully it's something your doctor can keep monitoring. I hope you've since been able to find some relief for your symptoms.
Hi. My primary thinks I have hemiplegic migraine. 3 times last year I had what looked like a mild mini stroke; weakness on one side, pins/needles in the weak leg, slurred speech but no facial drooping. I get chronic headaches and sometimes migraines. Stress set off the last “mini-stroke”. Did MRI, no MS, MRI looks clean, would be sporadic hemiplegic cause no other family member has what I get (that I know of). Also suffer from chronic motion sickness/dizziness/vertigo. Neurology thinks complex migraine. Thoughts?
Hi Blue, thanks for your question. Currently, the research indicates that the key signs of hemiplegic migraine are: head pain on one side of the head/face, fully reversible muscle weakness/paralysis, fully reversible vision/speech/sensory changes. It's great that you've had additional testing done to rule out the presence of underlying conditions. If these continue to come back negative, because you have had a history of chronic headaches and migraines, you may benefit from seeing a Watson's headache practitioner. I hope this helps! Please feel free to get in touch if you have any questions.
It would be helpful to make a video about the three vertebrae assessment of brain stem you're referring to on this video
What's the treatment for the brain stem? I get very confusional hemiplegic migraine without head pain. Before botox in for head and neck got very painful neck and lower back spasms when starting . Botox halfed the migraine. Head fracture age five trigger and additional anoxic brain injury didn't stop for over five years. Botox halved the amount and lowered acuteness. Mild excersise is my trigger, so mostly in bed.
Any correlation with excersice and complicated migraines? Also has there been any new research with migraines with aura and heart issues like pfos?
HM sufferer for 20 years, now 61. Which type of doctor, and what tests are necessary to find out if I have CADASIL as root cause, or brain stem excitation, or perhaps both?
I live in Los Angeles, I have neurologist, neurosurgeon ( previous anterior distectomy and fusion C5:C7), has multiple MRI and MRA over the years.
My neurosurgeon says I have "Catastrophic" degenerative disc disease root cause hEDS. C3:C5 are definitely impinging in nerves and blood vessels.
There is also underlying vascular anomalies. Finestre for entire L back carotid. Majority of cerebral arteries & blood vessels are "torturous", small. Midline artery stops at 1/2 normal length, also missing 1/3 of blood vessels back R side of brain.
2 recent Lacunar Infarcts Dec 2023. Diagnosis after 2 months unusable R hand, post 16hr HM episode where paralysis moved L to R and back again. MRI to check for accumulated HM cerebral damage showed the Lacunar Infarcts. I've had dozens of changing sides HM over the years, but usually it's L side paralysis. My HM almost never have pain.
Many complex root causes it seems, but NO ONE ever diagnosed CADISIL, nor discussed brain stem excitation, nor ANY possible treatment other than spinal surgery.
Which type of Doctor/Specialist do I need to see for root cause diagnoses and treatment??
Thank you in advance, and thank you very much for this TH-cam video!
I suffer from famial hemiplegic migraines and have been tested. I have gotten them since I was eight and could never go for massages in my neck BC I would get them. Apparently this place is in Brisbane and I am just on the sunshine coast. Do you need a referral by the go or can you just call the clinic to come in to get my neck assessed? Or do I need to go somewhere else to get my neck assessed?
Hi Danielle, thanks very much for your questions! We're based in Brisbane and the Gold Coast. You don't need a referral to come and see our clinicians, you can book straight in and you will have your neck assessed in the first consultation. I hope this helps! Please feel free to get in touch with our team on 1800 43 23 22 if you have any other questions or concerns!
Got my first while I was at work 8 years ago at 18. My left foot went number and the numbness went up from there, then I got really nauseous, had a terrible headache (worst ever), and had extreme light sensitivity. Ever since it takes me out every single time. I have only prevented a few with excedrin migraine, when taken at the first sign and with lots and lots of water. I have had many neurological symptoms since these started. No other family members have it. I have to tell each workplace about it because these are never anything that can be worked through.
No one in my family either, but now my daughter does horribel she is 20.
Do you get any facial drooping with yours? I get weakness one side of my body, pins and needles in the weak peg and slurred speech but no drooping. I also can still walk but it feels week.
I'm very sorry to hear you've been experiencing this. I recommend discussing these symptoms with a GP to rule out the presence of any other underlying conditions. Provided that this is clear, you may benefit from seeing a Watsons headache clinician. I hope this helps and that you've since been able to find some relief for your symptoms!
I've been having them since 7th grade (5 years ago) and they've happened less and less severe
The biggest comfort is that its been even though its random, it has the same routine every time, I've been able to accuratly predict the timeline of whats going to happen every time i feel the first symptom which is a delay in hand movement. They suck but the routine is comforting.
Can I speak to u?
@@mrcontentclipss yes?
@@cascade92 someone ik has hemiplegic migraine and I wanna know what I can do to help them. Also can u die from hemiplegic migraine? I'm just worried for the person and I wanna take care of them
@@mrcontentclipss My experience has been that the first and most important thing you can do is to get relaxed and cover your eyes from light.
The second most important thing is to always have a place to throw up. I have puked nearly every single time, even waking up if I fall asleep, and I always have felt better right after.
As far as the worst syptom, eye pain, the only thing that helps is a cold rag, breathing deep breathes, and thinking about something else.
I doubt you can die from anything related to it, but it is also a very rare disease and there could always be more symptoms from person to person.
Let me know if you need anything else about them.
@@cascade92 the person says they pass out so is this normal? And also what should u do if u have an attack?
Used to get this kind of migraine as a teenager. Nobody knew what it was and if they knew, nobody (doctor) told me the name. The doctor prescribed ergot, which worked like magic. I hear that ergot is not used anymore. Don't know the story there. It stopped for years and returned once, in a mild form at a time of great stress. They were frightening because of the speech disturbance (gibberish) and the numbness/tingling on l side of the body. Vision disturbance where I could only see half of whatever. The scary symptoms were worse than the headache. So now I know the name "hemiplegic migraine". I don't miss you and I don't want you back.............
Mine is kind of familial I would say. But its a little odd. My dad gets the spots and then the throbbing headache and thats what I started getting around age 15. Then around age 20 I got for the first time this hemiplegic type one where I had spots, aphasia and hand numbness followed by the bad headache. Now I seem to only get the latter when it happens -_- . We usually get it a few times a year. Always ruins the whole day unfortunately. Im 27 now. Its weird how my dad only gets the spots and headache yet it seems like I got the upgrade :/
Hi Chris, there is a genetic component in headaches and migraines and it can be common for them to change/morph as you grow older. I'm sorry you've been experiencing these symptoms and hope you've been able to find some relief!
I have been diagnosed with this recently however I have weakness and lack of coordination in both hands not just one. Is this still hemiplegic migraine?
Hi guys do you know if there is a forum or community group for hemiplegic migraine patients?
Hi Bertrand I'm Sam I often suffer from this migraine after playing football for an hour or by other physical exertion I am not able to communicate properly,my vision is blurry,numbness of my hands and face lips continued by a serious headache of my right part of brain.Have I got any cure for this.I have consulted many doctors but they are considering this as a simple headache...
Hi there... I am on the same boat as you, after a few hours of working out I am 100% I'll have some time of migraine attack with aura or without.
So far no medication has work to help with the attacks just Emgality helps reduce the pain in the headache I had to change neurologist cause I felt I wasn't taken seriously.
Study shows excersice is indeed a migrain trigger I am now learning about migraines and vascular [heart] being related. This mostly only applies for people with migraines with auras, after getting a stroke it was discovered thet had a PFO.
I myself have yet to be diagnosed with it, I am currently getting tested and waiting for insurance to approve of tge echogram, since not many doctors consider this route.
I would recommend to go check out a cardiologist and neurologist who are willing to work together.
As for a temporary treatment for the headache pain medication that contains aspirin and caffeine like excerdrine work best to help reduce pain
I have post concussion syndrome from a bad fall 3 years ago and third nerve palsy. I’ve had 4 or 5 of these either Hemiplegic or migraine strokes. How do I know the difference? And I get a lot of swelling too with them. Just recovering from one that caused a 10-13lb weight gain in two days or less.
A 10-13lbs weight gain is an unusual symptom. This is definitely something that you should investigate more. The difference between hemiplegic migraine and stroke are both the mechanism, and the after effects. While the symptoms are very similar, following a migraine you should really return to normal function. Stroke can lead to permanent impairments and can be very dangerous.
I’ve suffered from these since I was 6. Diagnosed in 2006. These migraines are terrifying. I hate them!!!
I’ve been having a similar symptoms recently. A bad headache, numbness, etc. They gave me a CT scan on the 26 of May and they said I was okay and that there was no sign of a stroke, but my numbness had been happening with minor head pain and dizziness. I’m told it’s not a stroke but I’m trying my best to believe that it’s not
Been getting hemiplegic Migraines since 5. I have 2 first cousins & 1 3rd cousin. It has become less intense as I grew older (now 49) Did not have an attack for years, but returned with a vengeance in 2021. Luckily I only lose sight & balance problems, occasionally I will lose my language for a minute or 5. It is VERY SCARY!!!
Hi there iv been suffering the last week with these symptoms of full body numbness the first time and then it’s my right side arm and leg and face tounge and then the left
Side. Also get the blurry vision and migraines some of the time. Been to the hospital and the doc as well
Hi there, Just be sure to get checked out for anything more sinister that may be happening. While migraines are not life threatening, there are conditions that present in a similar way that definitely can be. Wishing you a speedy recovery.
my girlfriend has this condition and I was wondering is there anything I can do to help her while it is happening
They're scary 😢 I have slurry speech drooling loss of vision and loud tinnitus along with strong nausea too! I have other conditions that flare up with it mainly Dystonia 😢
Thank u....medical people always think.its a stroke....its ruining my life....i never found a cure.....anxiety cronic
Hi Pat, you're most welcome! I'm glad I could provide some information for you. I'm sorry to hear it's been impacting your life so significantly. You may benefit from seeing a Watson-trained headache clinician for your hemiplegic migraines. This is something you could discuss further with your GP.
I've had hemis for quite some time but just got my first lower occipital nerve block and it's the first time I've been neck and shoulder pain-free in over a decade. What treatments are options for cervical involvement? Would it be physical therapy and nerve blocks/steroids/botox?
Great to hear you're finally pain free. That's a long time to be in pain. Nerve blocks and botox will help for some. They are temporary though. In order to treat them in a more permanent or long lasting fashion, physical therapy is generally the way to go. However, you'll be looking for someone that is trained in treating a sensitised brainstem.
@@brisbaneheadacheandmigrain3863 Very little to no good neurologists in my southeastern state. They are drug rebate pushers and hand out tons of samples that I found DO interact with each other. These docs here hand out so many free samples and do not even blink an eye to what kinds of adverse reactions or interactions may occur. Its ridiculous and driven by $$ rebates. Medical community is full of greed in the south!!!
My migraine symptoms are not seeing properly flashing lights zig zags,then my hand and arm goes numb and my lips and tounge,I can't speak properly sound all slurred,then my leg and foot goes numb,I feel confused,then vomit then get a banging sore headache,then I go into a deep sleep for a few hours they know the stuffing out of me,I suffer now from panik attacks always frightened about it happening again scary stuff
I suffer from this type of migraine. I get tingling in my hand. It travels up my arm into my mouth and tongue. Then the headache from hell! Confusion and sometimes bad speech. I throw up about 8 times. Very scary everytime. None of the tablets GPS have given me work. I've also tried morphine and codene and it doesn't touch it. Mine started around the age of 15 and I'm now 26 and still suffer. Doctors seem to not care when I say the tablets they prescribed don't work. The pain is so bad with the headache I'd rather be dead...only way to get rid of it is sleep for 4-5+ hours if I can manage to get to sleep that is! No doctor cares. Wish I could get something that helps 😢
Sending prayers and hugs...ditto my son suffers from this...I had to take him to a physiatrist who ordered physical therapy and gave him a nerve block injection.
Hi Josh, thank you for your comment. Wow, I'm so sorry to hear this! That sounds like it would be extremely difficult to experience. We see many patients who have had similar stories to yours. You may benefit from seeing a Watson-trained Headache clinician . They may be able to assess and treat the root cause of your migraines. Is this something you have already tried in the past?
I think I'm having this but the fear of stroke is so strong. I am sick of rushing to ER but I don't want to die. My left arm and leg get very weak and shaky. My left neck starts to hurt and my left face has a weird feeling. Sometimes I get pain in the left temple but its not bad and scary like the other symptoms.
Is there a clear way to test at home whether I am having a stroke?
Hi TK, thanks for your question. If you're scared you may be having a stroke, the best option is to call emergency services and present to ER- so you have been doing the right thing! Though I know that this must be quite frustrating for you. I recommend discussing these symptoms with your GP to rule out the presence of any underlying conditions. Please feel free to get in touch if you have any other questions!
This sounds similar to my experiences. The only difference I was unable to speak. I couldn't move at all. It was temporary, and I could finally and slowly speak and move. Would you know if there is another condition causing this? My doctor only mentioned panic attacks. I know I was in no way panicked.
Hello,
hemiplegic migraines have a difference in severity of symptoms. Inability of speach and movement could be caused by HM. Especially if the lack of movement was on one side. During an episode slow-wave activity (EEG) test show abnormal activity most of the time.
Genetic testing might show (around 50% of people with HM have the familial type) that you have a gene mutation which would show you have HM. The onset age of HM is often in the first two decades of life, but it can start later in life.
I have had episodes where I could not speak and I had a loss of motor control and weakness, along with other symptoms.
A Tia could also cause these symptoms. If you can it would be helpful to get an MRI during the episode, to exclude more serious causes.
I hope you can find the cause of your symptoms and get effective treatment.
I have this but I only lose feeling on the left side of my body with the bad migraines and once with paralysis the day after a massive migraine. My solution after 10 years of experimentation is the take aspirin and Tylenol PM with the Benadryl as soon as the aura begins. Hopefully the Benadryl knocks you out for a few hours to sleep off the migraine. I took one of the -triptans when I was younger and it didn't help.
I’ve called my mom thinking I’m having a stroke during a headache. I could barely talk, my left side was numb and I was drooling. I was 27 at the time. In a migraine I can’t tell hot or cold which can be tricky. I’ve had these headaches since 6 and there’s been no real solution .
Do u ever tried to excercise regularly, balance diet and sleep better? Its my 3 times having this aura migrain, I have history with epilepsy
I was diagnosed with this 3 years ago.I get a weakness down my left side and muscle twitches and dizzness and confusion that lasts about 15minutes then goes , this can happen up to 10 times a day.But I never get any pain.It leaves me feelikg like a zombie .
Curious how a doctor would test or see if the brainstem is part of the hemiplegic migraine issue and how would they treat the brainstem or desensitize it? I understand you can't give medical advice but can you shed more light on what you are talking about? Doesn't make sense to post a video but not give details? I have seen a neurologist for my hemiplegic migraines for over 20 years and never had them mention brainstem at all? Thanks for more information.
Thank you.keep thinking of mystatis gravia or stroke😢
I have herniated discs in my neck from car accidents. Had one of these February 2019. Thought it was a stroke. Tested negative.
Thanks very much for your comment. Many of our patients have reported experiencing migraines after a car accident so you're definitely not alone! I hope you've since been free of migraines!
With me I don't know how I can put it but it only comes once in a while were by I will have a bad headache n one side of my body I can't feel it the numbness itx even last like 4 hours or so .... please help me what can I do
Hi there. I recommend first speaking to you doctor. If you haven't had any scans done, I would recommend that is the first place to start. From there, if that is all clear, I would recommend finding a practitioner that is trained is treating a sensitised brainstem, in order to desensitise yours. Hopefully this helps you restore you life back to normal!
😢 I have enough problems and these just top the charts as the most terrifying thing that happens to me besides my panic and anxiety. Personally, I don’t know which is worse!!! I’m always so tortured!
Hi Natasha, I'm so sorry to hear that you have had so much on your plate. You're absolutely right, hemiplegic migraines can be quite scary to experience. I hope you have since been able to find some relief for them!
I have had this type of migraine for years usually when I'm under a lot of stress it is so weird
Hi Bob, I'm so sorry to hear you've been experiencing this, it can be very debilitating!
FHM - YUP mother's family all had it. Yet the neurologist I went to asks me I've had a test...had it since I was 12. It's very hard dealing with it ALL my life.
Hi Dianne, it's a terrible condition to have had your whole life. I would recommend having your neck assessed, looking for a sensitised brainstem. Hopefully that sort of treatment can be more useful than what you've experienced with the neurologist.
I have all the symptoms of hemiplegic migraine.In 2018 i had an attack and after that attack i end up paralysed on one arm and face.I cant walk more than 20 steps and i will see double and i pass out.I cant stay out in the light i cant hear people talking loud as i start having headache straight away and gets more severe.The diffrent treatment that i tried never helped me or made me worse some of them such as loosing my taste for 2 years now or i see an orange colour every time i jump up.I dont know what to do some doctors say is hemiplegic migraine and others say is hemiplegic migraine.All i know i end up same as a disabled person that needs help even going up the stairs
Hi Ana Maria, wow I'm so sorry to hear you have been experiencing this. It sounds like it would be quite difficult! Please don't hesitate to reach out if you have any questions about hemiplegic migraines. I hope you're able to find some answers about your condition and that you find relief from your symptoms!
We need help my wife has had this in the past once 5 years ago but went away right away but Sunday jan31 2020. she had a huge migraine then her whole body shut down and her speech as well should I suggest this video to her nurse since they have no idea what she has it’s been almost 3 full days doing different tests she isn’t getting better someone help
Hi Edgar, apologies for the slow reply. You could certainly try suggesting hemiplegic migraine. Hopefully she has recovered by now. I'm sure the doctors have done all kinds of tests by now to rule out any other more sinister possibilities, but if they haven't, make sure they do.
Could Chiari Malformation and muscle spasms play a part in getting hemiplegic migraines?
Hi Jessica, it is possible. Unfortunately I don't have enough information about this to give confirmation so I would highly recommend discussing this with a doctor or neurologist!
I wonder this too, I have chiari malformation and hemiplegic migraines! I wonder if there is a correlation
I get these migraines and have done so since the age of 32 (am 45 in December.) I have had a couple of episodes where I have gone to bed feeling fine and woke up in the throes of a hemiplegic migraine attack. Any idea how or why that happens??
Hi Megan, it may have something to do with your pillow. Posture can play a big part in this condition, so make sure your posture while you're sleeping is the best it can be. That means getting yourself a pillow that supports the neutral curve of your spine.
@@brisbaneheadacheandmigrain3863 Thanks. I have a Tempur Neck pillow that has a curve for my neck which helps hugely.
TLDR: 7 years of migraine may not be all in my head, but all in my neck. And a TH-cam Video knew it before all my doctors did.
I started having migraines7 years ago. First started as sun sensitivity not just to light, but the sun would feel like it was burning my skin, but only on the left side of my body, on my arm, leg, face, any exposed skin. I had terrible headaches, where my head first felt like I had 9volt batteries attached to my skull or wave of lava like heat would pour through my skull beneath my skin. The headache manifested as pressure shaped like a batters cap, all over my head, and across my forehead over my ears and down to the base of my skull.
After having these symptoms for so long, had a bit of physio therapy for unrelated neck pain from being a driver, the migraines evolved to one day I went home, sat down in my chair and felt like I was having a stroke. I was unable to move my left side, it was painful and numb at the same time, I was nauseated, dizzy with vertigo, my head was splitting and I could barely talk straight. After expecting I'd be paralize for life since I could not get up for hours to get help, it eased and I was able get an appointment for an MRI. I'd already been told I was psycosomatic for having the initial migraines with no way to prove it's cause, so I did not think the E.R. would be welcoming at all.
MRI came back normal and I was just given the typical meds and told to basically go away. I had "migraines" every day, but no one believed that to be true. How many migraine days do you have in a month? All of them. When the CGRPs came out it didn't reduce the frequency but reduced some of the intensity. more meds and more humiliation and dismissal of anything I'd bring up to move forward with diagnosis or treament.
I was already a geek about nutrition science so I put that energy into learning about migraines and it pretty much seems hopeless. The only thing that seemed like a glimmer was that people don't continue to have HM as they age, so if I could stand it that long, maybe...
watching almost every video I can find on the subject, I came across this one and it seemed like it was just a simple video defining what it is. i only half listened while doing some other task until...
5:00 Sensitized Brain stem, 1st few vertibrae of the neck. Wait aminute? I've always had some sort of neck issue on and off but no one ever suggested it had any connection.
YOu just described my symptoms almost exactly, I've had 2 MRI's and no one ever looked at my neck. I've had the same list of medication, except pain meds because who cares if I am in pain. My Neurologist gave up on me, and my insurance botched the referral to a more specialized headache specialist out of town. After watching this video I asked for a new MRI of my head AND my neck.
My head MRI came back normal, just like all my tests do, but then my neck MRI they didn't say anyting but wanted to refer me to a neurosurgeon to "Look at it" . Oh yeah That seems like ti's gonna go somewhere (heavy sarcasm implied)
After a month of imcompetence tween two offices and insurance provider and 2 reschedule appointments I finally get to see the neurosurgeon. who asks me questions about my symptoms and things no one esle has asked. He does a strange thing to my fingers brushing and pulling them gently and asking me about previous neck stuff, my work activities, exercises, sleep. Them he pulls up a picture of what looks like a spine and shows me a desk model of a neck. the neck model is curved like a C but the MRI picture on the screen looks like the lower case letter "L" . He says "That's your neck, can you see the difference?"
He then scrolls the MRI section up and down through the neck and shows me where my neck bones, because the curve is gone, are pressing against my spinal cord and pushed away the spinal fluid so they are directly impinged. I mention how my neck is always a bit uncomfortable so I've done things like push my shoulders back alot, I curl my pillow into a roll under my neck so my head falls behind it and I recently move my moniter on top of a block because it feels better to look at it up higher. He suggested that Posture, poor sleeping, and looking down at desks all day can contribute to this lack of curvature and I was on the right track with these modifications ( and I didn't even know it!)
I am relieved that there may be an actual REASON for my pain and suffering. I'm mad because nobody ever thought look and just wrote me off as "it's all in the head" The only problem now is that I have no treatment plan. Just go away for six months, do some neck exercises and see if that fixes it and if not, then surgery. I expected with something so huge that I'd be referred for physical therapy or guided exercises specific to those vertebrae but nope. I'm still sitting at home scouring the Interwebs looking for solutions to problems that other people know but won't tell me.
BUT I can give a big THANK YOU for even hinting at looking at the neck. it was likely the hidden issue all along, and it would continue to be until I kick the bucket if anyone in my medical team had any say in it.
Have u got anywhere closer? Just had one again now. Had my first one a year ago very scary, AnE hospital didn't find anything after doing MRI
I had one this morning. Runs in my family. So does Ataxia.
There is often a genetic component with these things. However that doesn't mean you're doomed. There is treatment for this condition!
I suffer from these and the first one had me in the back of an ambulance and into an MRI. Because I have high cholesterol there is a little fear that these can be a mini-stroke. I am going to give up processed food and go completely plant-based. Familial. These are scary because I slur my words and people think I am drunk! I don't even drink any alcohol and am giving up coffee. Changing my diet I was told can help. Any little bit helps with these.
Sir I had a pain in my neck below ear and I get start headaches its been a long and now I can feel tingling sensation and headaches and pain in my arms
What should I do ??
Thanks very much for your question. I recommend first discussing this with your GP to rule out the presence of any underlying conditions. If this is rules out, then you may benefit from seeing a headache clinician. I hope this helps, please feel free to get in touch if you have any other questions.
My friend sarah took me to hospital I was blinded by it, face was numb on one side speech slurred VIOLENT PAIN, sumatriptan is 👍 😊
Will chiropractic neck adjustments help?
For some, they do help. But unfortunately it's usually temporary if it does. Generally a physiotherapist trained in treating a sensitised brainstem will have the best outcomes for this condition.
Yes I was diagnosed with Hemiplegic migraine in last August and have been hospitalized several times with them. More recently 2 weeks ago where I was kept in the hospital for 6 days while they did every test they could think of to do on me including a CT and an MRI. Findings on the MRI was Mild Chronic small vessel white matter Ischemia also sighted on an MRI done in January this year and am being treated on a medication for mood disorder and Epilepsy. There were no other abnormalities detected on the MRI scans. I am still recovering from this recent episode.
So got headache one side of head and weakness on your and face??
I'm so sorry to hear you've been experiencing this. It's great that you have been having thorough medical testing done to rule out any presence of underlying conditions.
Can this cause 1 side of your face to feel numb and tingling? Or numbness throughout 1 side of your body?
Hi Alex, yes- it indeed can!
When I get them, I either get vision problems or tingling in the hands that travel to the mouth and tongue, then the back of the eye pain kicks in and it's vile 😂 wonder if it's because of my charcot Marie tooth illness
Hypersensitive brainstem......wow.....its all making sense know! That would then explain the tremors I get for weeks afterwards.
Hi Susan, I'm glad this information was helpful for you. Please feel free to get in touch if you have any questions or concerns.
I have them i was curious on how many people on TH-cam know of them 😂❤
Lol same, as horrible as it sounds I am so happy I am not alone, trying to explain the pain and auras to someone literally made me think it was all in my head...literally
I take salt daily and it helps, but also b2, b12,b6, magnesium oxide, magnesium gluconate, L-arginine, taurine. Turmeric, diazapam, benadryl. All helps.
Hi Kina, glad to hear that's been helping with your symptoms!
I suffer with this , thankyou for making this video ❤
You're most welcome. Let us know if you have any questions.
I deeply feel your pain as well.😖😞😞Mine always start with visual disturbance, then the numbness of body part followed by an excruciating headache. Such a terrible experience 😖
I do feel for you as well I've suffered for over 20 years and it's debilitating it affects your quality of life when everyone's going out and your having to hide in a dark room suffering it's no fun so I really feel for sufferers...
@@jaybreezyofficialchannel9093 we got this!
@@philkennedy342 wow 20 years! It's awful and misunderstood. I hate that the word migraine is involved as people think its just a headache. In reality it's far worse than that. I wish it had a different name!
Hope your okay.
My doctor thinks I have this kind of migraine. Most of the symptoms match, but there is one big difference. My symptoms doesn't suddenly appear for hour or a day and after that completely disappear until next time. They are with me almost all the time. I would say I have good days when my symptoms are very light and I am able to do anything but there is days when all symptoms are so strong (strong pressure in the left side of the head and neck, dizziness, muscle weakness, shaking, brain fog, fever)that I think I won't make it and I gonna die.
Maybe in the near future there will be a new category for migraines call MUM? The name is longer but those are the initials haha
It's supposed to be this type of migraines but the difference symptoms can last for months.
www.ncbi.nlm.nih.gov/pmc/articles/PMC2077946/
Still so much unknown information about migraines but little by little the medical community is investing more time and resources
This is accurate..I have hemiplegic migraines. I'm on verapamil.
Hi Jeanne, I'm sorry to hear you've been suffering from hemiplegic migraines! I hope you're able to find some relief for your symptoms soon!
Vestibular migraines also suck :(((
It starts with becoming weak in the left side of my body, this can last for weeka. Then in get ringing in my ears and I see aura, blinding me. If it keeps progressing, I start convulsing. If it keeps progressing, I foget whoI am for uo yo two weeks, and am dead to the world.
Did you solve it or no because I have the same problem?
This is my 5th hemiplegic migraine this week... its been happening since Aug 22 2015.
Hi Amber, I'm so sorry to hear that. I hope you've since been able to find some relief for your symptoms. Feel free to touch base if you have any questions!
@@brisbaneheadacheandmigrain3863 I have tried so many injections, off label antidepressants for them, I'm going on year 7. I am completely at a loss how I started getting these when before it was just regular migraine, mine are sporadic vs familiar.
Whats best treatment meantime
In US for migraine headache reduction I must say emgality is a godsend but must be taken every 28 days or else pain will get you, as for auras still no treatment best thing that has been kind of working for me is keeping heart rate under 130 bpm, that includes controlling stress, excitement and anger
To be honest it's quite hard to maintain a low heartrate even with beta brokers due to causing low blood pressure in my case. But i gotta try my best if I want to have a "normal" life
For those migraine headache with pain that isn't hormonal related excedrin extra strength 2 -3 pills does the job
And for those hormonal triggered migraines nurtec is wonderful
@@frankiepez4470 never heard of nurtec where can I buy that, mine is hormonal
It’s STRUCTURAL ITS MY FREAKING NECK. Why oh why can’t we start THERE???!!!
Yes i get these. Been offered referal for botox injections dont even think this will help
Not a doctor just a person who likes to ask around, I have been noticing botox mostly helps migraine headache pain but not much with auras, I take emgality it does wonders helping ease the headache pain but saldy nothing on the auras, if you end up taking botox please let me know how you feel and if it helps your auras.
@@frankiepez4470 what is emgality
My daughter had all of this this week. At first they thought TIA, then MS, finally complex migraine was the diagnosis. VERY SCARY SYMPTOMS
Absolutely it is! Hopefully it's a once off attack for her. Wishing her a speedy recovery from them.
I got diagnosed with complex migraines today, but he also said the type of migraine it is shuts parts of your brain down temporarily and can appear like a stroke. So is it a complex migraine or hemiplegic migraine?
Another rare genetic disease to consider is Cadasil if someone is suffering from migraines.
Hi Jenshere, thank you for this information!
Do you know a good doctor you can refer me to for this treat ment
Hi Palmetta, unfortunately the world is a large place. However you would be looking for someone that is trained in treating a sensitised brainstem in order to effectively treat this condition.
When I have these, I can't even do the simplest of tasks. I pee myself. It's fucking awful
I've had it since I was 12
I'm so sorry to hear this, I hope you've since been able to find some relief for your symptoms!
@@brisbaneheadacheandmigrain3863 I have been trying to. I can only describe the experience as simply terrifying and for me it comes on randomly so sometimes I wake up in fear.
@@Riley095 That sounds like it would be very difficult to go through. You may benefit from seeing a Watsons Headache Practitioner, provided that the presence of any other underlying conditions have been rules out by your doctor.
OMGGGGGGG I have to PROVE THIS to ANOTHER DR. Thousands of $$$$$$ to start ALL OVER EVERYTIME a dr drops my insurance. Never looking at my HISTORY. Newsflash Mr med school, it IS HELPFUL to get to the ROOT CAUSE. My NECK
Hi Kathy, you're absolutely right, it's very important to get to the root cause of the issue because that's how you know how to help improve it. I'm sorry you've had to experience this in the past and I hope you've been able to find some relief for your symptoms!
They are killer, been suffering with them for 30 years.
Hi Carl, you're absolutely right, they can be very debilitating. I'm sorry you've been suffering with hemiplegic migraines for so long!
Call it what it is, man! Get a Neurology referral. The other cause of this level of pain is an AVM. Get seen, by any means. Dude's lovely but not that helpful.