I just experienced my first one this morning and it was absolutely horrific. As someone who regularly gets migraines I didn't think it could get much worse, but it did!
@@samantharubinger9157 I am so sorry you ever had to go through that. Trust me it can get worse The worst I ever had was in many mock stroke twice. it's terrifying no matter what experience you're having these migraines are absolutely no joke
I used to get these all the time I started taking coQ10 its like an omega 3 and I haven’t gotten any since I started taking one a day someone else with hemiplegic migraine recommended it and I’m sooo thank full
These are absolutely terrifying. The “not being able to talk right and form words” is scary as hell. I really thought I was having a stroke. Also the cluster headaches afterward were the most excruciating pain I’ve ever had in my life. I’m so scared it will happen again and I have anxiety attacks because of it
I fucking had my first yesterday. Doctors found nothing wrong in MRI or CT scan so no idea. One doctor just casually suggested it might be a migraine and then sent me on my way. Fucking scary shit
@@DrCanarley I just had my second one today and it’s so scary omg. It’s hard to believe that it’s just a damn migraine. I was weak on my right side, my right hand was shaking involuntarily, my words were extremely slurred and I had the most horrible pressure on my left temple. Now again they just sending me on my way because MRI and CT scan came back good 🥺
I'M NOT CRAZY!!!! THIS HAS HAPPENED TO ME AND I FELT LIKE I WAS CRAZY even though I shouldn't have, but I feel so much relief in knowing that this IS a thing
For anyone looking for relief, I have some personal experience to share. I believe my migraines are cause from a chronic forward head posture and result from muscle spasm in the muscles just underneath the back of the skull. This explains why there is no cause for my migraines in my environment and I have never been able to pinpoint the cause of my migraines. Seriously, look at your head posture if you cant find the source of migraines in your environment. (I found this out after taking a test online where I had this extreme forward head posture when looking at my computer for about an hour and a half)
You are spot on! Posture can make a huge difference to these conditions. Improving the posture alone can be beneficial, and working in conjunction with hands on treatment can have wonderful effects on this condition.
@@an00biszer06 The test was one for a class I had. I just had extreme forward head posture to look at my tiny laptop which gave me another migraine. I haven't had a migraine since I've figured out what the issue is and consciously correct for forward head posture throughout the day.
@@kristintoth6626 Sorry this is a little late, I didn't know that anyone replied to my comment. Symptoms are an aura starting in the center of vision that spreads to right visual field for 45 minutes, then pain worsened by light and sound along with nausea, then the aura disappears but the pain persists for 3 hrs or so with fatigue the rest of the day.
Just been diagnosed with this. I was told 3 years ago it was panic attacks but always knew it wasn’t. They’re terrifying but I’m much happier now I can learn more with my diagnosis
I can imagine that it isn't! I would recommend firstly speaking with your GP about seeing a neurologist to make sure there isn't anything more sinister happening. If that's all clear, I would recommend having your cervical spine assessed to determine whether a sensitised brainstem is contributing to your condition. Hopefully treating that will help you live a life free from hemiplegic migraines.
I thought I was the only one I feel so much better after seeing comments where they share their opinion.as a 14 year old I want to do all the things but I am not able to do some things I hope and pray that everyone gets better and healthy 💖
I had my first hemiplegic migraine at the age of 32 and I thought I was having a heart attack or stroke as the whole left side of my body froze before the massive headache hit. As I lived alone, it was terrifying and thus far, I am the only person in my family who have these migraines
I can imagine that would be a terrifying experience. You're not alone. Most people believe they are having a stroke during their first hemiplegic migraine attack, as many of the symptoms can be similar.
I have had these for a few years now. The first time Doctors thought I was having a stroke. I started to get them everyday at one point and couldn’t get out of it. I’ve Tried various different medications, until CGRP injections came out. Now they occur about once a month. I am having one now and I am so tired of these. Thanks for bringing awareness.
You're not alone. Many medical professionals will suspect stroke when a patient first presents with a hemiplegic migraine attack, as many of the symptoms can be similar. It's great to hear the the CGRP injections have substantially decreased your frequency of attacks. I would suggest having your cervical spine assessed to determine whether your brainstem has become sensitised, as treating this may help to further reduce or alleviate your attacks.
I had an ischeamic stroke 1 year ago and today I had a hemeplegic migraine. The experience of a stroke hit my facial and left side nerves instantly and everything went black. My heart was racing and slurred speech etc. Today when I had a migraine I had the face drop like the stroke and the numbness and tingling. But something was different. I was unable to breathe properly and swallow for an hour. I’m now walking with a limp and my left side feels like it’s ok fire. I didn’t get slurred speech like my stroke. I was dancing to rock music shaking my hair about 3 nights ago and I think this triggered my neck. I feel comforted knowing it’s not another stroke and as long as I take my blood thinning meds and don’t go head banging I can hopefully avoid any more of either.
That's a long time to not know! This condition is often difficult to diagnose, and many people misdiagnose it. The symptoms often feel like you're having a stroke, so I can imagine 20 years of not knowing would have been a terrible experience.
Thank so much for the video! Super helpful! I've gotten migraines since I've was 10. I really think at 12 I had a hemiplegic migraine. My while right body was numb, I could barley walk and I couldnt speak. Went to the hospital and came out like nothing happened. I've continued to get migraines since, w/ auras. Doctors dont know what's wrong. Went to another doc recently to see what's up. He said it was low blood pressure. Gave me medicine, took it, still had migraines. So I stopped. A couple days ago I woke with a migraine. Auras as usual. I get them so much I have it down. I tell my mom she gets me a wet towel, I close my blinds, eat, take medince, lay down in agony. After 20 minutes I was fine. Odd. I usually have them for an hour. When I sit down and look at my phone, my foot goes numb. Followed by my hands and tounge. I laid down in a panic. It gotten so numb I was terrfied my tounge was going to block my throat cause it was hard to move. My fingers were moving on their and I was blind. What was weird was my left side was all good. This went on for 5 hours, then it was gone. My head hurts and I'm very nauseous. I have no idea what caused it. Is there anything I can do to prevent this again?
Dear Derp Derp, it can sound quite terrifying when sufferers present with conditions and symptoms such as yours. A way moving forwards to prevent this from occurring is to try and find the root and underlying cause, as to why you are suffering from migraines. Getting scans of the brain is a step moving forwards to see if there are any red flags. Preventative medications are another step in trying to reduce attacks. Being consulted by a headache practitioner is another good step forwards, in understanding your condition better. More research is pointing to the brainstem and the neck as an underlying cause for headaches and migraines. So if you haven't had your neck assessed, that would be another avenue.
I deeply feel your pain as well.😖😞😞Mine always start with visual disturbance, then the numbness of body part followed by an excruciating headache. But regular exercise and eating vegetable helps, since I started hitting the gym I hardly have it in a year.
I know exactly how u feel I had them from around your age I just gots severe visual symptoms then numbness I said this to my doctor and I also have static vision. If I get these numbness it usually reduces each day little by little hope we both can get better
My first attack was almost 2 years ago and was hospitalised and diagnosed as TIA. A week later same happened and this time they spent more time eliminate all other possibilities and i was diagnosed with this. Australia's public system is a joke. My next follow up appointment post emergency was 5 months later and in between on average i had 1 episode every 5 days both at home and work. Knowing what it is I didn't bother calling ambulance instead Ifound somewhere to laydown and wait it out. It was absolutely worst 2 month of my life I just wasn't sure how to live like this for rest of my life. 2 month later my GP asked me if I wanted to try Isoptin while waiting for my neurologist appointment and I am glad I did. Since I was on Isoptin 80mg twice a day, I never had a full hour episode for almost 18 month now and the only 2 short episode I had lasted less than 5 mins and I was able to move again. I still don't know the extact trigger but dehydrated seems to be one of the triggers for me. Hope everyone suffer from this condition find a way to manage it just like i did. Good luck, all the best!
Hi there, that's great to hear that you've found something that worked for you! I can imagine getting those attacks every 5 days would have been very unpleasant. Here's to hoping it stays away!
So I've suffered from Migraines since I was 8 years old(I'm 34 now), but when I was diagnosed they were called Complicated Vascular Migraines which I understand now is an outdated term. However, I'm pretty sure I suffer from Hemiplegic Migraines. I usually don't get them very often and there were occasions where I would go almost 2 years without getting one, but all the symptoms are there and all I've been taking for it is Sumnatriptapan which really only takes the edge off now. I used to only need one and now I take two. There's gotta be a better way because this is pure torture. I honestly would not wish this on my worst enemy.
I was diagnosed with a TIA at the hospital, so I was admitted. I was given an anticoagulant shot to the stomach, and tests were run. The next night, suddenly, I had the worst, excruciating headache you'll ever feel. I temporarily lost my ability to speak and even write. I also experienced sensitivity to light. This happened in front of my nurse. She took me to a secondary MRI, and it showed no blood spill in my brain. She explained it was a severe migrain, and I was given a strong pain medication. Thank God within about half-hour, I was able to regain my faculties back. I finally found out the name of that horrible episode.
Hi Joe, that sounds like it could have been quite scary, I'm sorry to hear that you had to go through this. It's great to hear that they were able to help relieve your symptoms at hospital. Are these migraines something you have continued to experience?
@Brisbane Headache and Migraine Clinic Thank God I haven't experienced that again. I seriously thought I was experiencing a full-blown stroke. Again, I was able to recover after about 30 to 45 min, but it was a scary experience.
Just got over 2hrs of excessive right side head, neck, eye, jaw pain and severe left arm leg weakness. Slurred speech and cognition. Almost completely debilitating. I think it's from horrible posture from sitting on the floor in one position for an hour. I've had this before after excessively long work in front of a computer or very poor sleeping positions.
Worste part of it is the impairment of vision drives me mad when it happens, head ache I can stand as I just go to sleep and wake up and 99% of the time it's gone so wired
I've had this since I was 12. Got nausea along with numbness in part of the body thevfirst time. MRI was clear but I'm 32 now and still haven't been able to figure out the Triggers. Effects my speech for a day due to the numbness.
I got this suddenly after an epidural shot in my neck. It would always get triggered by motion ( walking, driving, ferry). It scared the heck out of me. I'd get this excruciating headache & then my right leg would have paralysis. I'd have to drag myself to safety. Many times this would happen getting off the ferry or walking through the city (where I worked). After a few x I knew what to expect & just tried to get to a place I could hold on to something until it passed (a minute or 2). I went to a neurologist & was put on topamax. The doctor who gave me the epidural would take 0 responsibility. Ik it had to be because of the shot cause I was fine prior to that. Thank God it subsided after several months but it is terrifying when it first occurred. Prayers up for all of you who are suffering from this🙏
Thanks for the video. I started with HM after meningitis and yet HM is genetic in my family. I've had so many scans its ridiculous. I had a bad fall recently because when I have an HM I'm clumsy. The doctor still insisted on a brain scan :(
Hi Jan Maria Blackwell. Having HM can definitely affect the coordination of the body. It seems it affected you to such a great extent that you had a fall and injured yourself. If you have had many scans and all of them show there is nothing wrong with your brain, we recommend assessing the upper cervical spine and the brainstem as a potential cause of your HM.
@@brisbaneheadacheandmigrain3863 Thanks for your reply. I've had contrast MRI and have regular PeT/CT and nothing shows up. I do have NHL though and my HM got a lot worse with that. I do wonder if autoimmune response works as a trigger for HM.
@Metanoia I am in the UK. The difference is, I'm already under a Haematologist who takes my health very seriously. The Neurologists were a waste of time.
I’ve had these for years, and I never understood the “hemi” part, because I always get everything on both sides (numbness, tingling, visual disturbances, and the actual head pain and pressure) I was wondering if anyone experienced the same?
i had same thing 2 months ago, it was so scary 😟 but thank god nothings wrong it’s just migraine attack, also i heard that it can happen only once in lifetime 🙏
I’ve been getting these kind of headaches for years and both my eyes get blurred and both my arms and hands get numb and tingly and both sides of my face go numb so you are not alone
Yesterday my husband went to hospital with these same symptoms and slurring speech. He's had these episodes about 5 times over 40 years. After a brain scan and other tests it was determined that he had not had a stroke, but they couldn't put a label on what happened to him. Today is the first time I have been able to think that it was a Hemiplegic Migraine.
My husband has these I’m trying my best to understand these and also praying my kids don’t get it as it’s 50 percent chance, it is so sad and scary he started getting them as a teenager he is the only one in his family
I have this. Apparently my mom has these migraines also. Just got the diagnosis after being sick for 11 days now. Still won’t go away!!! It’s horrible! Doctors treated me as if I had a stroke. Then we found out that wasn’t so.
They're pretty debilitating, and you're right, it is a horrible condition. But I'm happy to hear it wasn't a stroke! Research has shown that headaches are more common in people whose mothers also headaches. Some tips I could give would be to stop from looking down with your neck and look down with your eyes, bring your work to be at eye level instead of down at chest or waist level, and bring your shoulders back so it's not putting too much pressure on your neck. These are the basis of the first exercises we give our patients!
I’ve just been diagnosed with these migraines By my neurologist as I’ve been having rather scary symptoms. I told her everything and she’s sending me for MRI to rule out MS as my GP thought I had this rather than fibromyalgia. Im having like motion feelings too vertigo, plus today I had frightening thing happen where my right eye went blurred and wouldn’t move for few minutes. Then went normal again??? Worrying 😕
I was treated like i just have mental illness for over 20 years. Turns out i have the ATP1a2 mutation and it was hemiplegic migraines and DEE (epilepsy) all along 😡
I had 5 of these attacks yesterday where one side of my body went numb. I woke up to the first one ever yersterday morning and had them throughout the day. I went to the er and got to know i have hemiplegic migraine.
Hello. I was recently hospitalized with stroke like symptoms but starting with my head feeling heavy. All my MRI and CT came back fine. My blood work came back fine. They had told me I may have Hemiplegic mirgraine. I still have left side weakness in my hand and leg. Is there a way to get properly diagnoised? I still have attack but i start to convulse now when i have the attacks along with left side numbness in face arm and leg with dizzness and confusion. I get two at a time. They last about 15 minutes and about 20 minutes apart. Could these be hemiplegic migraine attacks?
I have a friend that started recently started having the involuntary limb movement too. Do you have any idea if there was anything different when those started happening?
Hi Jamie, we are sorry to hear you are suffering from hemiplegic migraines. Noting the fact that migraines can cause central sensitisation and a neurological disorder, it definitely has the potential to cause temporary motor and neurological disorders such as convulsing. Are you still having these symptoms? Convulsing are definitely more severe and rare to have with migraine attacks. Have you had recent investigations since having convulsing attacks?
Ive been experiencing these attacks more often, im in a high stress job in metal health and gett very little head space, when I get the attacks i cant write properly, i get disorientation and confusion, left arm weakness and left tempal headache, the funny thing is the pain isnt that bad, just a sensation of heat on the side of my head snd slight knumbness, is stress a cause of my attacks
I've had HM since childhood but because my grandmother and mother got the same symptoms as me (paralysis down one side of the body), I always just thought that was part of a migraine. For days I'd be walking round falling over things, dropping things and getting pins and needles in my face. HM was diagnosed a year ago but I was also diagnosed with cardiovascular disease. Calcium channel blockers for my heart have stopped the HM migraines which I find interesting.
Hi Jan, that's fantastic that you've found something that works for you. Calcium channel blockers are actually a common treatment for migraines nowadays, so it's great to hear that it's provided you with relief.
I have been having these since I was about 26. Starts with either super sensitive smell or hearing, then it goes to numbness in my left hand. I take 2 advil and chill. I get the auras and blind spots and can't drive or see. I can read a sentence and half of it is invisible. Can only see half of the person's face I am talking too! Last time I had one I did a youtube video as it was occurring. Normally I get about 4 or 5 a year, Lately in 2022 I have already had 7. I have tried to eliminate everything in my diet been doing keto for over a year and it has not helped so not sure any food is a trigger. Starting to think maybe it is neck related. Love the video and good luck to anyone having these type of migraines. First time you get one all you think is I am having a stroke!
Usually people do not get scared because they sre used to migraines, i have got aura migraines with mild hemiplegic symptoms such as the numbmess, tingling and visual problems, but i developed a horrible hemiplegic migraine the other day where i literally forgot how to read or speak, it was frightening because i was like no way this is just a migrane, but i got a CT and it was all clear, im trying so hard to find a treatment but doctors are dismissive and people do not take a migraine seriously, i have gotten the casual “its just a headache grow up” from people who were even close to me, i dont blame them for not understanding, but i blame them for not empathizing
I'm so scared that my son will be in a coma or die or be permanently effected by this ..He had a bad one that had him out for days ,we were scared he had brain damage or was going to not wake ..He has only had 3 in his lifetime, and he is 9 years old...One when he was 5 ,and two when he was 8...They varied in severity..I'm so scared ..
For everyone who might feet like they have this . You might . However get with your doctor and neurologist and get mri ‘s and CT’s because they might be something else you have unfortunately, somethings more sinister underlying. I have this and experience this much but that’s only cuz I have a rare auto immune disease neurosarcardosis
I was diagnosed with hemiplegic migraine in December 2020. But I have had it for a long long time (I think) one day I got “paralysed” in the left side of my body. I went to the hospital feeling worse then I had ever felt in my whole life. After countless blood tests, X-rays and stuff I was diagnosed with hemiplegic migraines. I get a migraine attack once (or more) a day, and it just sucks
I had my first one at 29. My vision went blurry, my face hand and leg went numb, I couldnt speek properly, forgot my date of birth and name and it lasted for a few hours. I was rushes to hospital with suspected mini stroke but the doctor gave me tablets for hemepleglegic migraine and an hour later it went. I had a really big headache, worse I have ever felt. Will this be an isolated case or is it likely to occur again? It's really scary.
Hi Aaron. It has the potential to occur again. It can be a once off for some people, but many people have them recurring. It's great to hear that you were given a medication that was effective for you.
Everything you just described happened to me today. I am a long time migraine sufferer but never ever experienced anything like this until today. I never want to experience this again.
Had my first one at 16 in high school, went to the nurse and she didn’t even let me go home so I just stayed in the bathroom for like 4 hours until the day was over, walked home not being able to see anything and throwing up the whole way there I literally thought I was dying, I find that these migraines kick in when I eat certain foods. Also I get the splotchy vision first so right away I take Tylenol and but a cold rag over my eyes and try to go to bed, the headache is so bad probably the worst pain I’ve ever felt and then ny fingers go numb, if you can sleep before the headache gets bad I usually wake up with a slight headache but no nausea
Hi there. There are many medications that can potentially help with the pain, but it can be a bit of trial and error to find one that works for you. Unfortunately, they just treat symptoms, and don't always work well. In order to treat the underlying condition, I recommend that you have your neck and brainstem assessed by someone that is trained in treating a sensitised brainstem.
I was diagnosed with hemplegic migranes last year (uk) after 2 episodes, typical stroke like symptoms but no pain/headache. 1 April 2019 (minor) and 1 major july 2019. No history of headaches or migranes. Scans were clear. Ive still have permanent numbness down my left side (face/arm/leg) and ongoing confusion/memory loss. Never had another episode since, so strange
Dear Gem B, we are sorry to hear your situation. Having permanent numbness down the left side of your face, arm and leg is usually not a feature of hemiplegic migraines. Usually symptoms resolve after the attack has subsided. Have you had further investigations to find why you are still having permanent numbness down your left side of your body?
@@brisbaneheadacheandmigrain3863 the stroke clinic wouldnt see me, i was told i was too young to have one and its 'likely migrane'. Im now on 150mg dose of toprimate daily which doesnt seem to be doing anything. Since the comment i had another 'episode'. Lasted a few minutes and disappeared. Same symptoms. Referred back to TIA clinic and told the same thing as previous. Going round in circles 😂
@@gemb9893 We are sorry to hear about your situation. It seems it would be best that you visit a dedicated headache and migraine clinic to have a further assessment to understand why you are still suffering from this condition. We can assist in recommending potential clinics that may be near you if you would like.
@@brisbaneheadacheandmigrain3863 thanks for getting back to me. Im waiting for a follow up at neurology. Due to covid everythings delayed/cancelled which is understandable so its a waiting game! Ill get there eventually!
I suffered with migraines with aura from the age of 8. I also have a congenital heart defect. I recently developed hemiplegic migraine after my PVR surgery. I have no idea what's safe to take or how to manage it
I am 25 female and have numbness and pain on the right eyebrow and temple area. It has lasted full two days but it has not accompanied a head ache at all. It happened the morning I woke up. I had no trauma no stimulus no injury. It happened suddenly over night. I do not have any other coordination, nausea, flashing light issues. None. But I have a recent history of migraine with aura. I have had about 4-5 episodes so far in the best 8 months. I have orthostatic hypotension and bp of 110/78. I have frequent back pain and neck pain from posture when awake and even when asleep. My grandfather had stroke a few years ago and my mother had chest pain and loss of consciousness once when she was in her 20s. Do you think it could be hemiplegic migraine? or stroke? which type of doctor should I consult?
Hi there, if you're concerned about a stroke, then you should definitely be visiting the emergency room in your local hospital. However, a 25 year old female with normal blood pressure, I would expect migraine is more likely. I expect that your condition would still be considered to be migraine with aura, and this has just presented differently to the previous attacks. To be safe, though, I suggest that you visit your local doctor in order to rule out anything more serious.
Hi Sandhia, Yes, it can. We tend to still refer to it as "hemiplegic" (I can see the irony in that), but for some sufferers, it can affect both sides of the body.
Hi ive had this since 1995 and nothing works for me, it only presents after working out so i cant do any exercise like playing basketball, is there any profilactic treatment thath i can have for preventing attacks because i like to do exercise?
Although i havent been diagnosed with hemoplegic migraines, im atleast 80% sure i have them. Onetime in class, i noticed my left arm felt numb, like pins and needles- but it didnt feel weird like if you tapped my arm and it when all fuzzy, but instead It felt really week and i was struggling to even get my pencil out of my pencil case. Then the left side of my face went numb, and i had trouble speaking and i was slurring my words. I ended up gwtting sent home at p1 and when i got home to rest, i felt nauseous and had a pounding headache. Though i was having a stoke lol, but it faded after maybe about 3 hours. It sucked.
I suffered from this for about 3 years but it suddenly stopped but my brother is suffering from it now. I would first go half blind in one eye then I would get throbbing headache only on one side in my head then my left arm would go numb and I would lose my speech.. The headaches were terrible.
I've seen 2 people who had hyperactive deep tendon reflexes on the affected side when recovering from a hemiplegic migraine episode (still having residual weakness, etc.). Would that indicate an upper motor neuron involvement? I'm a bit thrown off on the anatomy/physiology of these migraines (like, for example, if the forehead would be spared like in a stroke, or if there are no clear "rules" like that).
Numbness blooms in my hands and face after I take pain killers when I start not being able to see everything which is before my auras. I started having migraines with aura at 11 and the numbness at 15. Along with nausea for days and sometimes months, with throwing up the first day of the attack. I'm 21 right now.
Hi Cristianna, It sounds like you've had a terrible time of it. Hopefully they're not coming on frequently. If you haven't already, make sure you see your doctor about having some scans done to check for something more sinister, but if that's all been cleared, then I recommend having your neck and brainstem assessed.
I'm just starting to look into doctors, I'm 21 and realized recently that I could possibly not have to live with this. I appreciate your advice, I hope it's nothing scary. It's infrequent, every 6 months when I go to a chiropractor and masseuse regularly. I think it's my neck, I had a bad fall when I was young and think it's related. Not eating processed meat and cheese or artificial sugar also helps.
IT HAS A NAME!!!!! I've been suffering this shit since my second day of 8th grade (2010), but it's so rare, and I get them so infrequently, doctors couldn't really figure out what the heck was going on! It always starts with numbness on one side of my body (i.e. right hand, right side of face, right butt cheek, etc.), often accompanied with confusion, blurred vision, and slurred speech. Once that fades, the OPPOSITE side of my head starts hurting real bad, incapacitating me for at least 24 hours. Even getting up just to use the bathroom hurts. Sometimes, I throw up. Seriously, I wouldn't wish this type of migraine on anyone. NGL, I used the lack of knowledge of this disorder to ditch school a few times. 😅 My mom had no clue what it was like, just that I was suffering, so it was really easy to fake.
I have many of them symptoms bit no one believes. My right side of body is so stiffed and weak that i can't do light work sometimes. Headaches and ear- eye pain is horrible. But all reports are normal. How can i get a help. 😭
It’s been almost 4 years now since I had my first attack I now have them 2 or 3 times a month which are so intense that I pass out almost every time anyone got any advice?
I am 33 yo i had near 10 times in my whole life, starting from when i was 15 yo, now what works for me is to reduce stress , and take easy on everything also to do exercise everyday , avoid direct sunlight and heat to your head and extreme tempreture changes from hot to cold, and also to seat streight allways . I hope my expreience will help you, its the worst feeling ever for me!
I had several a month for quite awhile, they found it was triggered by diabetes that had never been diagnosed. After I received help I only had 8 last year, and only 2 so far this year! If you don't already do so, sleep as soon as you start to notice symptoms sometimes the migraine would progress as far, and if they do you sleep through most the pain.
Look into the keto diet- When your brain uses ketones for fuel instead of glucose, migraines are triggered a lot less, plus other health benefitsand 100% natural. God bless 🙏❤️✝️🙏😌
Hi, is it normal to have up to 15 a month or more? Because I went from having 2 or 3 a month or year and now 15 ish a month. It would be really useful if you could answer this, Thank you!!
Hi there. That definitely is a lot of attacks, but also not unheard of. I can understand that would be scary and frustrating though! This is definitely worth mentioning to your local doctor, as they may want to send you off for some scans to double check there's nothing else going on.
Hi Quin, thank you for your question. Hemiplegic migraines rarely cause permanent consequences or damage to the body. Some people can continue experiencing the symptoms for an extended period (depending on the severity of their migraine), though this is not indicative of long term consequences. I'm sorry to hear you've experienced a hemiplegic migraine- is this something you have discussed this with your doctor?
Iv had mine since I was 7 , hospitalised twice was in coma for 2 weeks on an off . I am now 43 next week and have them constantly this month alone I have had 2 a week . Sometimes I car.t recall .y own kids names . My life is not my life anymore I wake up with fear and fo to sleep with fear 😪
I have never had help x just loads of medication that I can honestly say has never helped I have constantly had pherpy to help with the fear of having one which will work untill the session has finished x I am sending hugs to u all ❤
There are certainly genes that can be passed down that make you more susceptible to these sorts of conditions, but unfortunately not having these genes doesn't make you immune. Hopefully you can find some help.
Thanks for sharing it's a great video. I have been told I have a constant 24/7 silent and non silent hemiplegic migraine after presenting to an emergency room with a suspected stroke. They found on a scan I have a very flat pituarity gland but told me it means nothing and is incidental and not much helps. I have tried several preventers. The symptoms never go away and I get headache migraines 2-4 times a week on top of the constant symptoms. Watching this I have questions I can ask my new nurologist I am booked into see. I don't feel other conditions have been ruled out for me. I constantly fall over, drop things, have pins and needles on my face, arms, legs, fingers and toes and now wake up in the middle of the night with symptoms but the worst for me is the hand and now leg tremors. I enjoy reading the comments to see what has helped other people. My last appointment with my nurologist he told me he wouldn't try anything else as maybe the body would fix itself but I am seeking another opinion. I am now researching what I can to know what to ask and find your video great. I wish I was closer to be able to see your clinic.
Hi Danielle, thankyou for your comment! It sounds like you've had a pretty rough time, and I'm sorry to hear about all the associated symptoms, like the pins and needles, falls and tremors. If you're too far from our clinic, have a go at typing this into google: "Find A Practitioner - Watson Headache" to see if any Watson practitioners work close to you. They employ our approach and it could be a good alternative to seeing the neurologist! I'm glad that you enjoyed the video :)
Will a nerve block to the cervical work for hemiplegic migraines? Im about out of choices. Medrol dose pack is the only thing that works. CGRP pills didnt work, the symptoms got worse. Can you recommend a nerve block of any type ? Thank y ou.
Hii I have problems with muscle spasm, double vision, right now I feel little pain in left side of the head can you recommend me anything so I can go with the treatment.
So what happens to me is I get a dot in my vision like if I looked at a bright light for to long, then it grows and grows, then fades away then I get tunnel vision and then it goes away and at this point is where I start to get a migraine, but in the tip of my pinky on my right hand I get pins and Needles then it grows all the way up to my neck then my lips get pins and Needles and at this point I have a really bad migraine with nausea and it allways lasts a few hours and the next day my head will still hurt, I am 15 and have been having the same thing for about a year now, I find if I'm outside for to long or if it's to bright, but I'm not really sure
Hi there, Bright lights are one of many common triggers for migraines (as well as glare). There are glasses that you can get to filter out certain types of light, which may help in your case. I would definitely recommend seeing your doctor about having some scans done (MRI of the brain), if you haven't already, but the next step after that (if nothing is found) is to have your neck and brainstem assessed.
I've been having left side facial numbness that comes and goes but no real migraine headache with it. Is this unusual? All tests so far are normal so my neurologist thinks I'm having hemiplegic migraine attacks. I do have some floaters in my vision when I have a headache and my older brother had cluster headaches in the past and younger brother had typical migraines.
This may or may not be a hemiplegic migraine. Numbness and pins and needles are common symptoms for migraines, regardless of whether they're hemiplegic migraines or not. There are also a whole host of other conditions that can cause numbness in one side of the face. It may be worth having your cervical spine assessed to determine whether your brainstem has become sensitised.
I started having these 7 years ago when i was pregnant with my son. The doctors give me Tylenol. What is the best way to relieve the migraine, especially while pregnant?
If everything has already been cleared through scans, I would recommend having your cervical spine assessed to determine whether a sensitised brainstem is contributing to your condition. Hopefully treating that will help you live a life free from hemiplegic migraines. The treatment for that is medication free, and therefore should be safe while pregnant.
I’m going to assume keto probably wouldn’t work while pregnant, but there are a lot of studies that when the brain uses ketones instead of glucose as fuel, migraines are lessened considerably- Look into it, - lots of literature online and info on TH-cam- I recommend Dr. Berg Good luck and God bless 🙏❤️✝️
I’m not sure what I have, I had a migraine a couple days ago, I got knumness on my right side, my arm wrist and pinky and face. I have and I’ve had a long lasting headache for 4 days now and I’ve tried everything to get rid of it, I’m only 13, if anyone can give me some tips or info plz comment on this. Thanks
Hi Bray, Hopefully by now your migraine has stopped. The most important thing you can do is speak to your doctor about your symptoms. They'll likely want to do some tests to make sure it's nothing too serious. If that's all clear, I recommend having your neck assessed by someone trained in treating a sensitised brainstem. It's typically physiotherapists that train in this, but you may find some doctors as well.
I get these after i play sport, but its not all the time, they come on so randomly, first time i got one i was playing fifa and my mum thought i was having a stroke, they arent fun
What is available when head trauma causes these? Blood pressure, epilepsy, dementia meds all fail, calcium blockers and botox all fail. I wish my neurologist would really exam my file. All the men neurologist tell me when I enter my 50's and go through menopause it will be over. I am in my mid 50's and had a hysterectomy. These guys don't even read any part of my file whatsoever.
We see patients everyday that say similar things, DorkyPorky Doodles. It can be extremely frustrating to try as hard as you can down the medical pathway and not get results. Head trauma and ongoing postural issues are the two main causes for these conditions, so if neurologists can't find the answer, I would be inclined to direct you to see a trained headache practitioner, especially if they are trained in assessing and treating the brainstem. Check for Watson headache practitioners in particular, that's the method we use at BHMC and we have great results with head trauma migraineurs.
Me too. I've started B vitamins, especially B6, B12 and take Migrelief daily. I use feverfew for triggers and have prism lenses now among other things. I pray you get relief soon.
Hi Madhura, that doesn't sound good at all, hopefully they're not affecting your work or life too drastically. If you haven't already, make sure you see your doctor about having some scans done, but if that's all been cleared, then I would recommend having your neck and brainstem assessed.
They haven't been shown to do that in the research we've read, Jasmine - I would be inclined to visit your GP for an MRI to check if there are any space occupying lesions.
My migraines seem strange in comparison to others. The symptoms change, but I have no idea on the cause. 1st one when I was about 8. They can be as simple as visual aura which starts off small and grows which seems to dissappear much faster than it arrived. To as extreme as numbness which starts in my lip on one side, then slowly spreads to the rest of that side of the body. For example when it gets to my hand, it will be the tip of my little finger that starts to tingle, heading down the finger until it reaches my palm, then it will start on the next in line finger tip and so on. The numbess/tingling episodes are much less frequent, but still happen. Each time i get one the combination symptoms seems to change. I've had just the visual with no headache, then I've also had 3 days where every time I would start to feel better the aura would come back send start the cycle all over again. Migraines are truly horrible! I've tried 4 different prescribed medications, none of which worked. So nowadays I just take the max dose of ibuprofen and paracetamol and hope it's not gonna be a bad one!
Hi Laureen, That is appalling behaviour from your doctor. I would recommend that you don't see him again. There are many wonderful, caring and sincere doctors out there, but unfortunately there are some, like yours, that are really in the wrong profession. Hopefully your next doctor is more helpful.
What a jerk- sickening and outrageous behavior... I’m so sorry 😓 If it may help you at all, I’d recommend you look into the keto diet - a natural, drug-free way to possibly lessen the frequency and severity of this type of migraine. God bless 🙏❤️✝️😌🙏
I've only had 2 of these migraines and they are terrifying. It makes me feel more at ease knowing I'm not alone in this
I just experienced my first one this morning and it was absolutely horrific. As someone who regularly gets migraines I didn't think it could get much worse, but it did!
@@samantharubinger9157 my whole right arm seized up last night followed by the worst head , this is scary stuff
@@samantharubinger9157 I am so sorry you ever had to go through that. Trust me it can get worse The worst I ever had was in many mock stroke twice. it's terrifying no matter what experience you're having these migraines are absolutely no joke
I used to get these all the time I started taking coQ10 its like an omega 3 and I haven’t gotten any since I started taking one a day someone else with hemiplegic migraine recommended it and I’m sooo thank full
@@Craftsandcats1 I will definitely have to start trying this. Thank you
These are absolutely terrifying. The “not being able to talk right and form words” is scary as hell. I really thought I was having a stroke. Also the cluster headaches afterward were the most excruciating pain I’ve ever had in my life. I’m so scared it will happen again and I have anxiety attacks because of it
I fucking had my first yesterday. Doctors found nothing wrong in MRI or CT scan so no idea. One doctor just casually suggested it might be a migraine and then sent me on my way. Fucking scary shit
@@DrCanarley I just had my second one today and it’s so scary omg. It’s hard to believe that it’s just a damn migraine. I was weak on my right side, my right hand was shaking involuntarily, my words were extremely slurred and I had the most horrible pressure on my left temple. Now again they just sending me on my way because MRI and CT scan came back good 🥺
I just went to the er last night. I thought I was having a stroke. It was so scary. I really thought I was out of here. I’m still weak af this morning
Ugh when I had my first I was sure I was having a stroke too.
@@MiaBxo8 hey, my wife just had two this week. Did you find a solution. We are at ER and they want to send her home but we need a plan
I'M NOT CRAZY!!!! THIS HAS HAPPENED TO ME AND I FELT LIKE I WAS CRAZY even though I shouldn't have, but I feel so much relief in knowing that this IS a thing
❤ yes. It feels like I’m having a stroke
For anyone looking for relief, I have some personal experience to share. I believe my migraines are cause from a chronic forward head posture and result from muscle spasm in the muscles just underneath the back of the skull. This explains why there is no cause for my migraines in my environment and I have never been able to pinpoint the cause of my migraines. Seriously, look at your head posture if you cant find the source of migraines in your environment. (I found this out after taking a test online where I had this extreme forward head posture when looking at my computer for about an hour and a half)
Thanks Furd. What kind of symptoms do you have and how long do your migraines last?
You are spot on! Posture can make a huge difference to these conditions. Improving the posture alone can be beneficial, and working in conjunction with hands on treatment can have wonderful effects on this condition.
Can you post the link to that test to see if it will help me.
@@an00biszer06 The test was one for a class I had. I just had extreme forward head posture to look at my tiny laptop which gave me another migraine. I haven't had a migraine since I've figured out what the issue is and consciously correct for forward head posture throughout the day.
@@kristintoth6626 Sorry this is a little late, I didn't know that anyone replied to my comment. Symptoms are an aura starting in the center of vision that spreads to right visual field for 45 minutes, then pain worsened by light and sound along with nausea, then the aura disappears but the pain persists for 3 hrs or so with fatigue the rest of the day.
Just been diagnosed with this. I was told 3 years ago it was panic attacks but always knew it wasn’t. They’re terrifying but I’m much happier now I can learn more with my diagnosis
Whoever told you they were panic attacks is a clown
I’m only 15 but I have this and I must admit it isn’t enjoyable, for me it’s on my left side
I can imagine that it isn't! I would recommend firstly speaking with your GP about seeing a neurologist to make sure there isn't anything more sinister happening. If that's all clear, I would recommend having your cervical spine assessed to determine whether a sensitised brainstem is contributing to your condition. Hopefully treating that will help you live a life free from hemiplegic migraines.
For me it changes sides (not during the attack)
I am 26 now but had my first attack around 15. They used to be about once a year but I've had 2 in the past month! The pain is traumatic.
same im 15 to and i got my first one two days ago it's trash and i have it on my left side to.
@@brettpeterson2333 sorry to hear that, I've learned to manage it pretty well now
I thought I was the only one I feel so much better after seeing comments where they share their opinion.as a 14 year old I want to do all the things but I am not able to do some things I hope and pray that everyone gets better and healthy 💖
Look into keto-
Migraine can be lessened when the brain uses ketones as fuel instead of glucose.
🙏❤️✝️✌️🙏
I had my first hemiplegic migraine at the age of 32 and I thought I was having a heart attack or stroke as the whole left side of my body froze before the massive headache hit. As I lived alone, it was terrifying and thus far, I am the only person in my family who have these migraines
I can imagine that would be a terrifying experience. You're not alone. Most people believe they are having a stroke during their first hemiplegic migraine attack, as many of the symptoms can be similar.
@brisbaneheadacheandmigrain3863 my leg went freezing cold and numb since then its not felt the same..is this common
I have had these for a few years now. The first time Doctors thought I was having a stroke. I started to get them everyday at one point and couldn’t get out of it. I’ve Tried various different medications, until CGRP injections came out. Now they occur about once a month. I am having one now and I am so tired of these. Thanks for bringing awareness.
You're not alone. Many medical professionals will suspect stroke when a patient first presents with a hemiplegic migraine attack, as many of the symptoms can be similar. It's great to hear the the CGRP injections have substantially decreased your frequency of attacks. I would suggest having your cervical spine assessed to determine whether your brainstem has become sensitised, as treating this may help to further reduce or alleviate your attacks.
what injections are those?
I had an ischeamic stroke 1 year ago and today I had a hemeplegic migraine. The experience of a stroke hit my facial and left side nerves instantly and everything went black. My heart was racing and slurred speech etc. Today when I had a migraine I had the face drop like the stroke and the numbness and tingling. But something was different. I was unable to breathe properly and swallow for an hour. I’m now walking with a limp and my left side feels like it’s ok fire. I didn’t get slurred speech like my stroke. I was dancing to rock music shaking my hair about 3 nights ago and I think this triggered my neck. I feel comforted knowing it’s not another stroke and as long as I take my blood thinning meds and don’t go head banging I can hopefully avoid any more of either.
I have suffered from this more than 30 years and didn't know what it was for the first 20 years
That's a long time to not know! This condition is often difficult to diagnose, and many people misdiagnose it. The symptoms often feel like you're having a stroke, so I can imagine 20 years of not knowing would have been a terrible experience.
Thank so much for the video! Super helpful! I've gotten migraines since I've was 10. I really think at 12 I had a hemiplegic migraine. My while right body was numb, I could barley walk and I couldnt speak. Went to the hospital and came out like nothing happened. I've continued to get migraines since, w/ auras. Doctors dont know what's wrong. Went to another doc recently to see what's up. He said it was low blood pressure. Gave me medicine, took it, still had migraines. So I stopped. A couple days ago I woke with a migraine. Auras as usual. I get them so much I have it down. I tell my mom she gets me a wet towel, I close my blinds, eat, take medince, lay down in agony. After 20 minutes I was fine. Odd. I usually have them for an hour. When I sit down and look at my phone, my foot goes numb. Followed by my hands and tounge. I laid down in a panic. It gotten so numb I was terrfied my tounge was going to block my throat cause it was hard to move. My fingers were moving on their and I was blind. What was weird was my left side was all good. This went on for 5 hours, then it was gone. My head hurts and I'm very nauseous. I have no idea what caused it. Is there anything I can do to prevent this again?
Dear Derp Derp, it can sound quite terrifying when sufferers present with conditions and symptoms such as yours. A way moving forwards to prevent this from occurring is to try and find the root and underlying cause, as to why you are suffering from migraines. Getting scans of the brain is a step moving forwards to see if there are any red flags. Preventative medications are another step in trying to reduce attacks. Being consulted by a headache practitioner is another good step forwards, in understanding your condition better. More research is pointing to the brainstem and the neck as an underlying cause for headaches and migraines. So if you haven't had your neck assessed, that would be another avenue.
I deeply feel your pain as well.😖😞😞Mine always start with visual disturbance, then the numbness of body part followed by an excruciating headache. But regular exercise and eating vegetable helps, since I started hitting the gym I hardly have it in a year.
I know exactly how u feel I had them from around your age I just gots severe visual symptoms then numbness I said this to my doctor and I also have static vision. If I get these numbness it usually reduces each day little by little hope we both can get better
it’s happening now and i’m at work i don’t wanna leave but i’m starting to forget everything and becoming numb
sorry to hear this
My first attack was almost 2 years ago and was hospitalised and diagnosed as TIA. A week later same happened and this time they spent more time eliminate all other possibilities and i was diagnosed with this. Australia's public system is a joke. My next follow up appointment post emergency was 5 months later and in between on average i had 1 episode every 5 days both at home and work. Knowing what it is I didn't bother calling ambulance instead Ifound somewhere to laydown and wait it out. It was absolutely worst 2 month of my life I just wasn't sure how to live like this for rest of my life. 2 month later my GP asked me if I wanted to try Isoptin while waiting for my neurologist appointment and I am glad I did. Since I was on Isoptin 80mg twice a day, I never had a full hour episode for almost 18 month now and the only 2 short episode I had lasted less than 5 mins and I was able to move again. I still don't know the extact trigger but dehydrated seems to be one of the triggers for me. Hope everyone suffer from this condition find a way to manage it just like i did. Good luck, all the best!
Hi there, that's great to hear that you've found something that worked for you! I can imagine getting those attacks every 5 days would have been very unpleasant. Here's to hoping it stays away!
I haven't had one of these since I quit smoking but I do think forward head posture played a part I still have neck issues
You are absolutely spot on, Sean. Improving posture is an important step in the treatment of these sorts of conditions.
So I've suffered from Migraines since I was 8 years old(I'm 34 now), but when I was diagnosed they were called Complicated Vascular Migraines which I understand now is an outdated term. However, I'm pretty sure I suffer from Hemiplegic Migraines. I usually don't get them very often and there were occasions where I would go almost 2 years without getting one, but all the symptoms are there and all I've been taking for it is Sumnatriptapan which really only takes the edge off now. I used to only need one and now I take two. There's gotta be a better way because this is pure torture. I honestly would not wish this on my worst enemy.
I was diagnosed with a TIA at the hospital, so I was admitted. I was given an anticoagulant shot to the stomach, and tests were run. The next night, suddenly, I had the worst, excruciating headache you'll ever feel. I temporarily lost my ability to speak and even write. I also experienced sensitivity to light. This happened in front of my nurse. She took me to a secondary MRI, and it showed no blood spill in my brain. She explained it was a severe migrain, and I was given a strong pain medication. Thank God within about half-hour, I was able to regain my faculties back. I finally found out the name of that horrible episode.
Hi Joe, that sounds like it could have been quite scary, I'm sorry to hear that you had to go through this. It's great to hear that they were able to help relieve your symptoms at hospital. Are these migraines something you have continued to experience?
@Brisbane Headache and Migraine Clinic Thank God I haven't experienced that again. I seriously thought I was experiencing a full-blown stroke. Again, I was able to recover after about 30 to 45 min, but it was a scary experience.
Just got over 2hrs of excessive right side head, neck, eye, jaw pain and severe left arm leg weakness. Slurred speech and cognition. Almost completely debilitating. I think it's from horrible posture from sitting on the floor in one position for an hour. I've had this before after excessively long work in front of a computer or very poor sleeping positions.
Worste part of it is the impairment of vision drives me mad when it happens, head ache I can stand as I just go to sleep and wake up and 99% of the time it's gone so wired
We agree, visual issues can be debilitating as it will stop you from performing your daily activities.
I've had this since I was 12. Got nausea along with numbness in part of the body thevfirst time. MRI was clear but I'm 32 now and still haven't been able to figure out the Triggers. Effects my speech for a day due to the numbness.
I got this suddenly after an epidural shot in my neck. It would always get triggered by motion ( walking, driving, ferry). It scared the heck out of me. I'd get this excruciating headache & then my right leg would have paralysis. I'd have to drag myself to safety. Many times this would happen getting off the ferry or walking through the city (where I worked). After a few x I knew what to expect & just tried to get to a place I could hold on to something until it passed (a minute or 2). I went to a neurologist & was put on topamax. The doctor who gave me the epidural would take 0 responsibility. Ik it had to be because of the shot cause I was fine prior to that. Thank God it subsided after several months but it is terrifying when it first occurred. Prayers up for all of you who are suffering from this🙏
Thanks for the video. I started with HM after meningitis and yet HM is genetic in my family. I've had so many scans its ridiculous. I had a bad fall recently because when I have an HM I'm clumsy. The doctor still insisted on a brain scan :(
Hi Jan Maria Blackwell. Having HM can definitely affect the coordination of the body. It seems it affected you to such a great extent that you had a fall and injured yourself. If you have had many scans and all of them show there is nothing wrong with your brain, we recommend assessing the upper cervical spine and the brainstem as a potential cause of your HM.
@@brisbaneheadacheandmigrain3863 Thanks for your reply. I've had contrast MRI and have regular PeT/CT and nothing shows up. I do have NHL though and my HM got a lot worse with that. I do wonder if autoimmune response works as a trigger for HM.
Hi Jan that’s how my HM started I contracted Meningitis and that’s why I now suffer HM it’s awful
Metanoia I agree from scotland
@Metanoia I am in the UK. The difference is, I'm already under a Haematologist who takes my health very seriously. The Neurologists were a waste of time.
I’ve had these for years, and I never understood the “hemi” part, because I always get everything on both sides (numbness, tingling, visual disturbances, and the actual head pain and pressure) I was wondering if anyone experienced the same?
i had same thing 2 months ago, it was so scary 😟 but thank god nothings wrong it’s just migraine attack, also i heard that it can happen only once in lifetime 🙏
I’ve been getting these kind of headaches for years and both my eyes get blurred and both my arms and hands get numb and tingly and both sides of my face go numb so you are not alone
Yes me too! I usually have a headache on both sides and extreme weakness in both legs
Yesterday my husband went to hospital with these same symptoms and slurring speech. He's had these episodes about 5 times over 40 years. After a brain scan and other tests it was determined that he had not had a stroke, but they couldn't put a label on what happened to him. Today is the first time I have been able to think that it was a Hemiplegic Migraine.
My husband has these I’m trying my best to understand these and also praying my kids don’t get it as it’s 50 percent chance, it is so sad and scary he started getting them as a teenager he is the only one in his family
I have this. Apparently my mom has these migraines also. Just got the diagnosis after being sick for 11 days now. Still won’t go away!!! It’s horrible! Doctors treated me as if I had a stroke. Then we found out that wasn’t so.
They're pretty debilitating, and you're right, it is a horrible condition. But I'm happy to hear it wasn't a stroke! Research has shown that headaches are more common in people whose mothers also headaches. Some tips I could give would be to stop from looking down with your neck and look down with your eyes, bring your work to be at eye level instead of down at chest or waist level, and bring your shoulders back so it's not putting too much pressure on your neck. These are the basis of the first exercises we give our patients!
@@brisbaneheadacheandmigrain3863 just found out my mother was diagnosed with the same thing 2 years ago. Thanks for the tips. Much appreciated
I’ve just been diagnosed with these migraines By my neurologist as I’ve been having rather scary symptoms. I told her everything and she’s sending me for MRI to rule out MS as my GP thought I had this rather than fibromyalgia. Im having like motion feelings too vertigo, plus today I had frightening thing happen where my right eye went blurred and wouldn’t move for few minutes. Then went normal again??? Worrying 😕
I was treated like i just have mental illness for over 20 years. Turns out i have the ATP1a2 mutation and it was hemiplegic migraines and DEE (epilepsy) all along 😡
I had 5 of these attacks yesterday where one side of my body went numb. I woke up to the first one ever yersterday morning and had them throughout the day. I went to the er and got to know i have hemiplegic migraine.
I also suffer aphasic symptoms . Never had that much trouble reading or writing😂
I can imagine that all came as quick the shock! Aphasia is a common symptom of hemiplegic migraines.
Thank you
Hello. I was recently hospitalized with stroke like symptoms but starting with my head feeling heavy. All my MRI and CT came back fine. My blood work came back fine. They had told me I may have Hemiplegic mirgraine. I still have left side weakness in my hand and leg. Is there a way to get properly diagnoised? I still have attack but i start to convulse now when i have the attacks along with left side numbness in face arm and leg with dizzness and confusion. I get two at a time. They last about 15 minutes and about 20 minutes apart. Could these be hemiplegic migraine attacks?
I have a friend that started recently started having the involuntary limb movement too. Do you have any idea if there was anything different when those started happening?
Hi Jamie, we are sorry to hear you are suffering from hemiplegic migraines. Noting the fact that migraines can cause central sensitisation and a neurological disorder, it definitely has the potential to cause temporary motor and neurological disorders such as convulsing. Are you still having these symptoms? Convulsing are definitely more severe and rare to have with migraine attacks. Have you had recent investigations since having convulsing attacks?
Same here 48 year old left side of my body weak..help
Ive been experiencing these attacks more often, im in a high stress job in metal health and gett very little head space, when I get the attacks i cant write properly, i get disorientation and confusion, left arm weakness and left tempal headache, the funny thing is the pain isnt that bad, just a sensation of heat on the side of my head snd slight knumbness, is stress a cause of my attacks
I've had HM since childhood but because my grandmother and mother got the same symptoms as me (paralysis down one side of the body), I always just thought that was part of a migraine. For days I'd be walking round falling over things, dropping things and getting pins and needles in my face. HM was diagnosed a year ago but I was also diagnosed with cardiovascular disease. Calcium channel blockers for my heart have stopped the HM migraines which I find interesting.
Hi Jan, that's fantastic that you've found something that works for you. Calcium channel blockers are actually a common treatment for migraines nowadays, so it's great to hear that it's provided you with relief.
I have been having these since I was about 26. Starts with either super sensitive smell or hearing, then it goes to numbness in my left hand. I take 2 advil and chill. I get the auras and blind spots and can't drive or see. I can read a sentence and half of it is invisible. Can only see half of the person's face I am talking too! Last time I had one I did a youtube video as it was occurring. Normally I get about 4 or 5 a year, Lately in 2022 I have already had 7. I have tried to eliminate everything in my diet been doing keto for over a year and it has not helped so not sure any food is a trigger. Starting to think maybe it is neck related. Love the video and good luck to anyone having these type of migraines. First time you get one all you think is I am having a stroke!
I only get it in the 1st trimester of pregnancy! Anyone know why?
I am in my first trimester too and I’m experiencing the same thing! I’m trying to find the answer right now currently in er
Yes I suffer from these and it’s TERRIFYING
Usually people do not get scared because they sre used to migraines, i have got aura migraines with mild hemiplegic symptoms such as the numbmess, tingling and visual problems, but i developed a horrible hemiplegic migraine the other day where i literally forgot how to read or speak, it was frightening because i was like no way this is just a migrane, but i got a CT and it was all clear, im trying so hard to find a treatment but doctors are dismissive and people do not take a migraine seriously, i have gotten the casual “its just a headache grow up” from people who were even close to me, i dont blame them for not understanding, but i blame them for not empathizing
I'm only 14 and I have this and I got it from my mom and it scared my whole family at 1st because they thought I was having a stroke.
I'm so scared that my son will be in a coma or die or be permanently effected by this ..He had a bad one that had him out for days ,we were scared he had brain damage or was going to not wake ..He has only had 3 in his lifetime, and he is 9 years old...One when he was 5 ,and two when he was 8...They varied in severity..I'm so scared ..
For everyone who might feet like they have this . You might . However get with your doctor and neurologist and get mri ‘s and CT’s because they might be something else you have unfortunately, somethings more sinister underlying. I have this and experience this much but that’s only cuz I have a rare auto immune disease neurosarcardosis
I was diagnosed with hemiplegic migraine in December 2020. But I have had it for a long long time (I think) one day I got “paralysed” in the left side of my body. I went to the hospital feeling worse then I had ever felt in my whole life. After countless blood tests, X-rays and stuff I was diagnosed with hemiplegic migraines. I get a migraine attack once (or more) a day, and it just sucks
Look into the keto diet as a natural way to combat these...
Check out Dr. Berg on YT-
Also tons of literature online
God bless 🙏❤️✝️🙏😌
Praying you are healed of these daily migraines. God can heal!!! 🙏💕
I had my first one at 29. My vision went blurry, my face hand and leg went numb, I couldnt speek properly, forgot my date of birth and name and it lasted for a few hours. I was rushes to hospital with suspected mini stroke but the doctor gave me tablets for hemepleglegic migraine and an hour later it went. I had a really big headache, worse I have ever felt. Will this be an isolated case or is it likely to occur again? It's really scary.
Hi Aaron. It has the potential to occur again. It can be a once off for some people, but many people have them recurring. It's great to hear that you were given a medication that was effective for you.
Everything you just described happened to me today. I am a long time migraine sufferer but never ever experienced anything like this until today. I never want to experience this again.
Had my first one at 16 in high school, went to the nurse and she didn’t even let me go home so I just stayed in the bathroom for like 4 hours until the day was over, walked home not being able to see anything and throwing up the whole way there I literally thought I was dying, I find that these migraines kick in when I eat certain foods. Also I get the splotchy vision first so right away I take Tylenol and but a cold rag over my eyes and try to go to bed, the headache is so bad probably the worst pain I’ve ever felt and then ny fingers go numb, if you can sleep before the headache gets bad I usually wake up with a slight headache but no nausea
Help how can i stop having these HM attacks, they hurt so much 😔
Hi there. There are many medications that can potentially help with the pain, but it can be a bit of trial and error to find one that works for you. Unfortunately, they just treat symptoms, and don't always work well. In order to treat the underlying condition, I recommend that you have your neck and brainstem assessed by someone that is trained in treating a sensitised brainstem.
I was diagnosed with hemplegic migranes last year (uk) after 2 episodes, typical stroke like symptoms but no pain/headache. 1 April 2019 (minor) and 1 major july 2019. No history of headaches or migranes. Scans were clear. Ive still have permanent numbness down my left side (face/arm/leg) and ongoing confusion/memory loss. Never had another episode since, so strange
Dear Gem B, we are sorry to hear your situation. Having permanent numbness down the left side of your face, arm and leg is usually not a feature of hemiplegic migraines. Usually symptoms resolve after the attack has subsided. Have you had further investigations to find why you are still having permanent numbness down your left side of your body?
@@brisbaneheadacheandmigrain3863 the stroke clinic wouldnt see me, i was told i was too young to have one and its 'likely migrane'. Im now on 150mg dose of toprimate daily which doesnt seem to be doing anything. Since the comment i had another 'episode'. Lasted a few minutes and disappeared. Same symptoms. Referred back to TIA clinic and told the same thing as previous. Going round in circles 😂
@@gemb9893 We are sorry to hear about your situation. It seems it would be best that you visit a dedicated headache and migraine clinic to have a further assessment to understand why you are still suffering from this condition. We can assist in recommending potential clinics that may be near you if you would like.
@@brisbaneheadacheandmigrain3863 thanks for getting back to me. Im waiting for a follow up at neurology. Due to covid everythings delayed/cancelled which is understandable so its a waiting game! Ill get there eventually!
Gem B 🙏🏻❤️🙌
Nice sir
I suffered with migraines with aura from the age of 8. I also have a congenital heart defect. I recently developed hemiplegic migraine after my PVR surgery. I have no idea what's safe to take or how to manage it
Look into the keto diet- seriously
Good luck to you and God bless
🙏❤️🙏✝️
My first two attacks came while playing Megaman Battle Network games. lol
I am 25 female and have numbness and pain on the right eyebrow and temple area. It has lasted full two days but it has not accompanied a head ache at all. It happened the morning I woke up. I had no trauma no stimulus no injury. It happened suddenly over night. I do not have any other coordination, nausea, flashing light issues. None. But I have a recent history of migraine with aura. I have had about 4-5 episodes so far in the best 8 months. I have orthostatic hypotension and bp of 110/78. I have frequent back pain and neck pain from posture when awake and even when asleep. My grandfather had stroke a few years ago and my mother had chest pain and loss of consciousness once when she was in her 20s. Do you think it could be hemiplegic migraine? or stroke? which type of doctor should I consult?
Hi there, if you're concerned about a stroke, then you should definitely be visiting the emergency room in your local hospital. However, a 25 year old female with normal blood pressure, I would expect migraine is more likely. I expect that your condition would still be considered to be migraine with aura, and this has just presented differently to the previous attacks. To be safe, though, I suggest that you visit your local doctor in order to rule out anything more serious.
I had one where my left hand tingled, and my left side of the body felt numb when i was younger
Is it also occurs to the whole body.... Please reply....
Hi Sandhia, Yes, it can. We tend to still refer to it as "hemiplegic" (I can see the irony in that), but for some sufferers, it can affect both sides of the body.
it happened in my whole body too
Had numerous ones on my left side this year.
Hi Nick, I'm so sorry to hear that, it sounds like that would be very difficult to experience.
Hi ive had this since 1995 and nothing works for me, it only presents after working out so i cant do any exercise like playing basketball, is there any profilactic treatment thath i can have for preventing attacks because i like to do exercise?
There are many prophylactic medications you can try. Have you seen your local doctor or neurologist to enquire about these medications?
@The Curious Mind Thank you for your great contribution!
The Curious Mind What triggers your Hemiplegic Episodes if you don’t mind me asking.
Although i havent been diagnosed with hemoplegic migraines, im atleast 80% sure i have them.
Onetime in class, i noticed my left arm felt numb, like pins and needles- but it didnt feel weird like if you tapped my arm and it when all fuzzy, but instead It felt really week and i was struggling to even get my pencil out of my pencil case. Then the left side of my face went numb, and i had trouble speaking and i was slurring my words. I ended up gwtting sent home at p1 and when i got home to rest, i felt nauseous and had a pounding headache. Though i was having a stoke lol, but it faded after maybe about 3 hours. It sucked.
I have hemiplegia migraines my mom and my brother have it too
I suffered from this for about 3 years but it suddenly stopped but my brother is suffering from it now.
I would first go half blind in one eye then I would get throbbing headache only on one side in my head then my left arm would go numb and I would lose my speech.. The headaches were terrible.
I've seen 2 people who had hyperactive deep tendon reflexes on the affected side when recovering from a hemiplegic migraine episode (still having residual weakness, etc.). Would that indicate an upper motor neuron involvement? I'm a bit thrown off on the anatomy/physiology of these migraines (like, for example, if the forehead would be spared like in a stroke, or if there are no clear "rules" like that).
Numbness blooms in my hands and face after I take pain killers when I start not being able to see everything which is before my auras. I started having migraines with aura at 11 and the numbness at 15. Along with nausea for days and sometimes months, with throwing up the first day of the attack. I'm 21 right now.
Hi Cristianna, It sounds like you've had a terrible time of it. Hopefully they're not coming on frequently. If you haven't already, make sure you see your doctor about having some scans done to check for something more sinister, but if that's all been cleared, then I recommend having your neck and brainstem assessed.
I'm just starting to look into doctors, I'm 21 and realized recently that I could possibly not have to live with this. I appreciate your advice, I hope it's nothing scary. It's infrequent, every 6 months when I go to a chiropractor and masseuse regularly. I think it's my neck, I had a bad fall when I was young and think it's related. Not eating processed meat and cheese or artificial sugar also helps.
Can we get rid of these permanently or should we have medication only when occurs?
IT HAS A NAME!!!!! I've been suffering this shit since my second day of 8th grade (2010), but it's so rare, and I get them so infrequently, doctors couldn't really figure out what the heck was going on! It always starts with numbness on one side of my body (i.e. right hand, right side of face, right butt cheek, etc.), often accompanied with confusion, blurred vision, and slurred speech. Once that fades, the OPPOSITE side of my head starts hurting real bad, incapacitating me for at least 24 hours. Even getting up just to use the bathroom hurts. Sometimes, I throw up. Seriously, I wouldn't wish this type of migraine on anyone.
NGL, I used the lack of knowledge of this disorder to ditch school a few times. 😅 My mom had no clue what it was like, just that I was suffering, so it was really easy to fake.
When I first heard this I went to the er. I couldn’t talk to think straight and they told me I was dehydrated 😒 sent me home in 20 minutes
I have many of them symptoms bit no one believes. My right side of body is so stiffed and weak that i can't do light work sometimes. Headaches and ear- eye pain is horrible. But all reports are normal. How can i get a help. 😭
It’s been almost 4 years now since I had my first attack I now have them 2 or 3 times a month which are so intense that I pass out almost every time anyone got any advice?
I am 33 yo i had near 10 times in my whole life, starting from when i was 15 yo, now what works for me is to reduce stress , and take easy on everything also to do exercise everyday , avoid direct sunlight and heat to your head and extreme tempreture changes from hot to cold, and also to seat streight allways . I hope my expreience will help you, its the worst feeling ever for me!
I had several a month for quite awhile, they found it was triggered by diabetes that had never been diagnosed. After I received help I only had 8 last year, and only 2 so far this year! If you don't already do so, sleep as soon as you start to notice symptoms sometimes the migraine would progress as far, and if they do you sleep through most the pain.
Look into the keto diet-
When your brain uses ketones for fuel instead of glucose, migraines are triggered a lot less, plus other health benefitsand 100% natural.
God bless
🙏❤️✝️🙏😌
Hi, is it normal to have up to 15 a month or more? Because I went from having 2 or 3 a month or year and now 15 ish a month. It would be really useful if you could answer this, Thank you!!
Hi there. That definitely is a lot of attacks, but also not unheard of. I can understand that would be scary and frustrating though! This is definitely worth mentioning to your local doctor, as they may want to send you off for some scans to double check there's nothing else going on.
@@brisbaneheadacheandmigrain3863 thank you!!!
Do they have long lasting consequences? Had my first 2 this year in March
Hi Quin, thank you for your question. Hemiplegic migraines rarely cause permanent consequences or damage to the body. Some people can continue experiencing the symptoms for an extended period (depending on the severity of their migraine), though this is not indicative of long term consequences. I'm sorry to hear you've experienced a hemiplegic migraine- is this something you have discussed this with your doctor?
They said I am to young for teatment
Iv had mine since I was 7 , hospitalised twice was in coma for 2 weeks on an off . I am now 43 next week and have them constantly this month alone I have had 2 a week . Sometimes I car.t recall .y own kids names . My life is not my life anymore I wake up with fear and fo to sleep with fear 😪
I'm so sorry for you I suffer every 3 weeks and I've lost my life as it was.Im desperate for help and a hm to contact me for support etc
I have never had help x just loads of medication that I can honestly say has never helped I have constantly had pherpy to help with the fear of having one which will work untill the session has finished x I am sending hugs to u all ❤
I suffer from them and none of my family has ever had it so I think mine is SHM as I get all the symptoms
There are certainly genes that can be passed down that make you more susceptible to these sorts of conditions, but unfortunately not having these genes doesn't make you immune. Hopefully you can find some help.
So im not alone.
Thanks for sharing it's a great video. I have been told I have a constant 24/7 silent and non silent hemiplegic migraine after presenting to an emergency room with a suspected stroke. They found on a scan I have a very flat pituarity gland but told me it means nothing and is incidental and not much helps. I have tried several preventers. The symptoms never go away and I get headache migraines 2-4 times a week on top of the constant symptoms. Watching this I have questions I can ask my new nurologist I am booked into see. I don't feel other conditions have been ruled out for me. I constantly fall over, drop things, have pins and needles on my face, arms, legs, fingers and toes and now wake up in the middle of the night with symptoms but the worst for me is the hand and now leg tremors. I enjoy reading the comments to see what has helped other people. My last appointment with my nurologist he told me he wouldn't try anything else as maybe the body would fix itself but I am seeking another opinion. I am now researching what I can to know what to ask and find your video great. I wish I was closer to be able to see your clinic.
Hi Danielle, thankyou for your comment! It sounds like you've had a pretty rough time, and I'm sorry to hear about all the associated symptoms, like the pins and needles, falls and tremors. If you're too far from our clinic, have a go at typing this into google: "Find A Practitioner - Watson Headache" to see if any Watson practitioners work close to you. They employ our approach and it could be a good alternative to seeing the neurologist! I'm glad that you enjoyed the video :)
The keto diet may help-
Please research it online and YT..
Dr Berg is a great place to start
God bless
🙏❤️✝️🙏😌
@@SBecktacular Thankyou, we have actually just started following Dr Berg and the Diet Doctor and starting Keto. 🙏
I have had these since i was 11. I am now 40.
Normally get 2 a year. More recently i been getting a lot in short succession. 😩
Hi Carl, I'm sorry to hear that! Please feel free to get in touch if you have any questions!
Will a nerve block to the cervical work for hemiplegic migraines? Im about out of choices. Medrol dose pack is the only thing that works. CGRP pills didnt work, the symptoms got worse. Can you recommend a nerve block of any type ? Thank y ou.
Hii I have problems with muscle spasm, double vision, right now I feel little pain in left side of the head can you recommend me anything so I can go with the treatment.
So what happens to me is I get a dot in my vision like if I looked at a bright light for to long, then it grows and grows, then fades away then I get tunnel vision and then it goes away and at this point is where I start to get a migraine, but in the tip of my pinky on my right hand I get pins and Needles then it grows all the way up to my neck then my lips get pins and Needles and at this point I have a really bad migraine with nausea and it allways lasts a few hours and the next day my head will still hurt, I am 15 and have been having the same thing for about a year now, I find if I'm outside for to long or if it's to bright, but I'm not really sure
Hi there, Bright lights are one of many common triggers for migraines (as well as glare). There are glasses that you can get to filter out certain types of light, which may help in your case. I would definitely recommend seeing your doctor about having some scans done (MRI of the brain), if you haven't already, but the next step after that (if nothing is found) is to have your neck and brainstem assessed.
I've been having left side facial numbness that comes and goes but no real migraine headache with it. Is this unusual? All tests so far are normal so my neurologist thinks I'm having hemiplegic migraine attacks. I do have some floaters in my vision when I have a headache and my older brother had cluster headaches in the past and younger brother had typical migraines.
This may or may not be a hemiplegic migraine. Numbness and pins and needles are common symptoms for migraines, regardless of whether they're hemiplegic migraines or not. There are also a whole host of other conditions that can cause numbness in one side of the face. It may be worth having your cervical spine assessed to determine whether your brainstem has become sensitised.
I started having these 7 years ago when i was pregnant with my son. The doctors give me Tylenol. What is the best way to relieve the migraine, especially while pregnant?
If everything has already been cleared through scans, I would recommend having your cervical spine assessed to determine whether a sensitised brainstem is contributing to your condition. Hopefully treating that will help you live a life free from hemiplegic migraines. The treatment for that is medication free, and therefore should be safe while pregnant.
I’m going to assume keto probably wouldn’t work while pregnant, but there are a lot of studies that when the brain uses ketones instead of glucose as fuel, migraines are lessened considerably-
Look into it, - lots of literature online and info on TH-cam-
I recommend Dr. Berg
Good luck and God bless 🙏❤️✝️
Mine wasn’t 1 side mine was my entire body
I’m 14 years old and I’ve had 3 in the last 5 months but my Nan and her mum suffered from them very badly is it hereditary?
Mine is. I got tested through ProbablyGenetic and they found the gene mutation that causes mine.
I’m not sure what I have, I had a migraine a couple days ago, I got knumness on my right side, my arm wrist and pinky and face. I have and I’ve had a long lasting headache for 4 days now and I’ve tried everything to get rid of it, I’m only 13, if anyone can give me some tips or info plz comment on this. Thanks
Hi Bray, Hopefully by now your migraine has stopped. The most important thing you can do is speak to your doctor about your symptoms. They'll likely want to do some tests to make sure it's nothing too serious. If that's all clear, I recommend having your neck assessed by someone trained in treating a sensitised brainstem. It's typically physiotherapists that train in this, but you may find some doctors as well.
I get these after i play sport, but its not all the time, they come on so randomly, first time i got one i was playing fifa and my mum thought i was having a stroke, they arent fun
Bro you to? I only get them when I play sports.
What is available when head trauma causes these? Blood pressure, epilepsy, dementia meds all fail, calcium blockers and botox all fail. I wish my neurologist would really exam my file. All the men neurologist tell me when I enter my 50's and go through menopause it will be over. I am in my mid 50's and had a hysterectomy. These guys don't even read any part of my file whatsoever.
We see patients everyday that say similar things, DorkyPorky Doodles. It can be extremely frustrating to try as hard as you can down the medical pathway and not get results. Head trauma and ongoing postural issues are the two main causes for these conditions, so if neurologists can't find the answer, I would be inclined to direct you to see a trained headache practitioner, especially if they are trained in assessing and treating the brainstem. Check for Watson headache practitioners in particular, that's the method we use at BHMC and we have great results with head trauma migraineurs.
Thank you, I will search for Watson Headache. Thank you.
Me too. I've started B vitamins, especially B6, B12 and take Migrelief daily. I use feverfew for triggers and have prism lenses now among other things. I pray you get relief soon.
How many times can YOU say, “Hemiplegic Migraine?!” 🤣🤣🤣🤣
Sorry just thought it was funny. Very informative, thank you for posting.
hello......am getting same problem from 15days ....i have migraine from 1year and and feeling numness on left side
Hi Madhura, that doesn't sound good at all, hopefully they're not affecting your work or life too drastically. If you haven't already, make sure you see your doctor about having some scans done, but if that's all been cleared, then I would recommend having your neck and brainstem assessed.
I get these migraines all the time they are awful
Can this cause long term memory loss of many years?
They haven't been shown to do that in the research we've read, Jasmine - I would be inclined to visit your GP for an MRI to check if there are any space occupying lesions.
My daughter has this and also is missing years of memories.
My migraines seem strange in comparison to others. The symptoms change, but I have no idea on the cause.
1st one when I was about 8. They can be as simple as visual aura which starts off small and grows which seems to dissappear much faster than it arrived. To as extreme as numbness which starts in my lip on one side, then slowly spreads to the rest of that side of the body. For example when it gets to my hand, it will be the tip of my little finger that starts to tingle, heading down the finger until it reaches my palm, then it will start on the next in line finger tip and so on. The numbess/tingling episodes are much less frequent, but still happen. Each time i get one the combination symptoms seems to change.
I've had just the visual with no headache, then I've also had 3 days where every time I would start to feel better the aura would come back send start the cycle all over again. Migraines are truly horrible!
I've tried 4 different prescribed medications, none of which worked. So nowadays I just take the max dose of ibuprofen and paracetamol and hope it's not gonna be a bad one!
I get these quite often, I also get confused with it as well, I told my doctor about it years ago and he laughed at me when I told him the symptoms.
Hi Laureen, That is appalling behaviour from your doctor. I would recommend that you don't see him again. There are many wonderful, caring and sincere doctors out there, but unfortunately there are some, like yours, that are really in the wrong profession. Hopefully your next doctor is more helpful.
@@brisbaneheadacheandmigrain3863 yeah I've not been back since, thank you 🙂
What a jerk- sickening and outrageous behavior...
I’m so sorry 😓
If it may help you at all, I’d recommend you look into the keto diet - a natural, drug-free way to possibly lessen the frequency and severity of this type of migraine.
God bless
🙏❤️✝️😌🙏
By far the worst migraine ever had, took tylenol and drank lots of water, went away in 5 hours.