What to Expect as Dementia Progresses
ฝัง
- เผยแพร่เมื่อ 2 พ.ค. 2023
- In this session: Dementia causes progressive impairment and is a terminal illness. However, it affects everyone differently. As the disease changes so will the symptoms, behaviors, and care needs. Learn the 3 stages of dementia and the common changes that occur in each.
James L. West Center for Dementia Care provides free education programs for the entire community as part of our mission to improve the lives of everyone affected by dementia.
James L. West Center is a faith-inspired, not-for-profit organization serving persons impacted by dementia. As a trusted expert, we provide personalized, innovative care and support for families, as well as specialized education for caregivers, healthcare professionals and the community at large.
For more information please contact us at 817-877-1199, caregiver@jameslwest.org, or visit us at 1111 Summit Ave., Fort Worth, TX 76102
@jameslwest1
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This video is such an excellent overview although it skates over how terrible the moderate (difficult) stage is for many carers. As an isolated caregiver, I am burned out, lonely, and depressed while my spouse is ten years into his dementia, and likely to outlive me. He is the healthiest person I know, and has become the meanest. The stress caused by dementia is a killer for caregivers.
Feel so bad for you. Most sadly is the fact that many folks with dementia outlive their caregivers bc they have turned into self centered selfish mean folks and don’t care a wit about others. Thus all their energy is about them and the caregiver is the one who suffers!!!
I am at my wit's end for this very reason. My spouse is nine years into his dementia..I have several health problems of my own. His dementia is moderate so neither one thing nor the other. Gone are the days when we can spend quality time together. Even carers in homes get breaks but the demands on a home carer are 24/7 and relentless.
I long for the days when I will get my life back but unfortunately he is likely to outlive me.
I am isolated, lonely and fluctuate in and out if severe depression.
No one seems to care for the health of the carer and " friends" drop away and don't want to visit when you are caring.
How much longer I can carry on I do not know
You are not alone. The last few years have been a nightmare for me (as a caregiver for my father), but this burden and responsibility has led me back to prayer and bible study, which has given me renewed hope and seeing the glorious Light at the end of the tunnel. I don't feel alone anymore, May you find that Light as well.
Amen. Jesus is the light of the world. He has a plan for us, and cares for his children. @@bessiesiamas1225
I am the patient in this case. I'm sending this video to my kids. I love the way you explained explained every stage. I'm mild stage but I'm having a lot of difficulty difficulty with my words. If I close my eyes I can se a full frase but it won't come out and frustration will take over. I have good days and bad days. All I want to do is sleep. I was a heavy reader. I can no longer read. In order to do it I have to read the last chapter all over to get an idea what it was. I don't like audible books. I fall sleep. I clor on my tablet, I watch TV. You made my day. I will continue watching your videos. You made a difference . God bless you all and continued helping g people like me and caregivers. God bless you all ❤
We are so thankful to have made a difference in your journey!
Thank you so much for your voice coming from the other side I’m so sorry you’re having to suffer from this disease and having to deal with the frustrations that come along with it. Wishing you and your family well❤️🩹
If you don’t mind me asking I found it interesting when you said if you close your eyes you can see a phrase in your mind that you want to express but you can’t- did I understand that correctly? And if so, could you elaborate a little bit for me on that? I was also curious if this happens quite often or just from time to time. I found this interesting because when I’m talking to my mom I sometimes wonder if she’s sitting there silent but truly wants to say something or comment to what I’m saying, but she can’t. Is this what you were trying to say? I also find it interesting that you can possibly express your thoughts in writing much easier than you can speaking them outloud- did I understand that correctly as well?
Honestly, what an amazing presentation. My mum is in late stage Alzheimer's, and you really hit the nail on the head. Some things just didn't make sense to me but now I understand. Also, mum is non-verbal so we often just sit and hold hands. I actually felt guilty that I didn't know what to say and it's so true, there is no need to say anything at all. Mum actually relaxes and sits with me as opposed to non-stop walking, day and night, when I'm not around. No-one goes to see her anymore, even our immediate family. I understand why they find it difficult but education is key, hence why I found your presentation so helpful. Thank you for sharing.
GOD MEANT FOR YOU TO DO THIS AND NONE OF US COULD BE MORE GRATEFUL 💓🙏❤️🙏 THANK YOU 💞💕
Ty I love my wife and our children and grandchildren and great children so very much so does my wife she is a saint I love her so much she is the hero of our family it breaks my heart I feel so helpless and scared we love each other and kids and grandkids my wife is the hero not me but I love. Her , ty you for helping us not be alone, God has blessed us with these beautiful people who have dementia and our turn ain't come yet so please love them God is blessed me to know and love people with this part of life ty😊
Through my tears, thank you for such an informative and compassionate overview of the dementia process.
I've been a professional in the dementia support field for 23 yrs & this is one of the best presentations I've ever seen.
and me ive worked in a dementia home for 23 years best video i have watched have to be a care giver when the time comes lucky i have a part time job not full time can not just get time of work kids are just taking exams bad times when it should be our family time now uni and college kids lost out growning up because his mother took control i was not included in any of it looking back now she has alzhimers
Thank you so much for this kind and compassionate explanation of the stages of dementia.
I have a very dear old friend (actually my 1st true love! Last time we saw each other was 30 years ago), and we have recently been reunited because his daughter saw my message to him on his Facebook page. He has dementia, along with several other health conditions. The dementia is so heartbreaking, because it is hard to see that hardworking, vibrant person he used to be, now unable to think clearly or do most things for himself anymore.
He is living with one of his sons and daughter-in-law in home hospice. I am so grateful to the Lord that he has a very loving family (5 children and lots of extended family) and they are all participating in his care. There is no way they would put him in a nursing home, ever!
I am over the moon that he still remembers me very clearly, and he knows exactly who I am. I'll never forget the way his face lit up when we talked on a Facebook video call, and a week later, when I got to finally visit him in person. He is all smiles whenever I am around, and he tells me constantly that he loves me, and I am beautiful.
They say he's in end-stage dementia, but he continues to talk a lot. He does repeat himself over and over on certain subjects, and he forgets that I know his children. But so far he hasn't forgotten who the important people are in his life, and he still has a great sense of humor! His memory is strong on certain things, but not on others. He needs a lot of assistance with ADL, like hygiene and eating. He's lost a lot of weight, because he loses interest in food after a few bites. I've noticed smaller portions more frequently seem to work better for him than a whole plate of food.
I'm so sad that this has happened to my long-lost love, but I am grateful to be able to be here for him at this time. He lives only a few hours drive from me, so I have been going every week since before Christmas, and I stay a few days each visit. I know that God has brought us back together at this particular time for a purpose. His daughter said 5 years ago he asked her to help him find me, and interestingly that was about the same time I started searching for him, too.
I stupidly broke up with him 30 years ago, and I regret it. I wish I could change the past, but I can't. God is giving me a chance now, though, to help him and be there for him. I am grateful for that, thank you Jesus!
I love to hear your way of explaining this disease. You help me so much understand.
I concur.
I have witnessed this disease in two close friends and it was hard to accept the changes in people who were once vibrant and energetic.
This video is so informative and I thank you for it. As a health care worker and also dealing with a loved one with early stage dementia, you can never have enough information of this kind.
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
God bless you, I have gotten more answers from you than the doctor. I've been struggling to figure out everything on my own. I'm so grateful for finding this channel. 🙏🙏🤗👍
My Mother is 92.5 and is in a Nursing Home with Dementia. She is very healthy she never got Covid or tested positive for it while all residents on her floor got sick. She is not mean or a handful to take care of she is very happy 99% of the time and loved by the staff.
She is 13 years into her dementia. i took care of her in her home for 8 of those years.
covid for me was a horrible experience working in a home
Exceptionally informative slide show with intense videos. Thank you for this overview. Mom is 82 with late stage dementia and I am caring for her in my home after taking her out of a Memory Care facility plagued with Covid. We have a gentle routine and hoping she will find peace in her final days.
What a wonderful video of a difficult illness. The presenter is so pleasent to listen to and very knowledgeable.
Wow! Best video out there about Dementia, what to expect, how to accept and adapt as a caregiver. Thank you 🙏🇨🇦
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
This was the BEST video I have come acrossed since I became a caregiver. THANK YOU❤
I NEEDED THIS! 💯❤️🙏
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
Thank you. The video helps my understanding. I have been diagnosed with moderate
Alzheimers. I own a business but no longer run it. I wish i had been diagnose earlier. I was only convinced by an MRI
of my shrinking brain. God bless.
God bless you! I am so sorry. I’m caring for my husband who has Young Onset Alzheimer’s. I hope you have loved ones around you.
I'm so sorry to hear of your diagnosis and hope you have found support for PLwD(Person Living w Dementia). God Bless
God bless you for making this video. My Mom was just diagnosed today ! I’m so scared. You have helped me realize so much!!!
Same here friend 😢..my heart just hurts for my mom..she is scared and slipping away from me daily..take care dearheart ❤
Thank you sweet Becky. God bless you, your Mom, and family.
Having listened and watched this video, I feel a lot more educated and compassionate towards the patient. Last month it was my dearest friend, and now another dear friend. Thank you for this invaluable and honest meeting. I really appreciate you.
Thank you, your kindness shines through. I'm very grateful for this information, thank you again.
I am a 57 year old woman, but did not except my diagnosed yet for me I am just forgetfull but my 🧠 scan is telling my husband a different story😢😢I feel lost and are living in denial
❤
Excellent, excellent, informative video! So informative yet CONCISE, something all caregivers really appreciate. Thank you!
I believe my mom is in the 7th stage she sleeps 16/ 20 hrs a day. 😢 She keeps asking me to çall her Mom and Dad to let them know that she's ok. She's lost so much weight down to 113.9 lbs from a size 18 to a 6😢 sundowning starts early about 3:30 /4:00 pm best hours start around 4 am. She only will eat ice cream, get up in the middle of the night and dresses to go home. bananas with coffee and watermelon, and other fruits is all I can get her to eat.
There are protein shakes that is in ice cream form. I can't recall the name but Teepa Snow suggests it
I just watched a video from Pat Snyder she covers Lewy Body Dementia but her tips cover caregivers. Maybe something there can help you in some way 😊🤗
P.s it's called Magic cup ice cream
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
In this case I will be the patient. Already diagnosed with cognitive decline, I truly think it's coming so I'm getting ready. I review all the findings I have with my husband who will be my caregiver. I'm still waiting for the results from all my tests etc. to determine what's next. It's scary but you give me hope.
7:42 7:42 7:45 7:52
Your presentation is exceptional - THANK YOU!! I'm on this journey with my father. Many caregivers will relate to the stress, anxiety, worry and burn-out that this illness takes its toll on the family.
Thank you so much.
My Mom just got diagnosed with "Vascular" Dementia at 85 years old. This video is like a healing salve on a wound for me. Thank you.
So grateful it was helpful for you!
I'm in the middle of navigating this system ..every time I do what's right all hell breaks lose...mom refuses to eat and drink and no one will help because she's got no money..what do they expect me to do?
my mother in law has no money either does not even talk to me all i get is hi tracy walks of with her dearest son
This truly the best , factual and helpful video on Dementia I have ever seen. Your compassionate and kind explanations frankly have me in tears, because I watch my mother, a once very smart in charge of of running a large retirement home decline over the years. It broke my heart when she forgot who I and my siblings were to her.
But now I am watching the love of my life, my husband suffer with Parkinson’s, and and resulting dementia stealing him from our family. It has been long slow journey .
Thank you for your excellent and kind video.
😢
ZAZ DS😊
❤😊
😮
Thank you so much for this. There's always so much to learn about dementia.
This lady is a wonderful! I’m sharing this with my children to educate them.
Compassion fatigue- yes, I am there. She is no longer my mom that I knew and loved so much! She doesn’t recognize or favorite Christian songs or the singers or the concerts we attended and has such a good time. We always joked and laughed, I miss all that very much. I am thankful for the wonderful memories I have. I am so tired now. We have had hospice for 2 years and just started 12 hour nurse shifts. We did adult day care for a while, she called it Old Age School! That was funny! I miss her so much.❤
Wishing you strength. It's a hard journey to experience. Hang on to those memories!
My wife is 2 years into dementia, very hard to grasp the full scope of what's ahead. Thank you for this video.
You're welcome!
Thank you so much for this! As a wife of a husband with young onset dementia, I have found this so helpful. My husband is in the later phase of middle phase. 😢 and yes the frustration, sense of loneliness and burnout as a caregiver is very real.
One symptom I don't think you mentioned is bad decision making. I think this should be a symptom,, but I only realized this after the fact. My dad suddenly decided to sell his house and sold it fast. Even though we had no clue he was getting dementia. It caused some big issues because he didn't think it through. He wanted to move to his hometown even though he had no family there anymore. This was dad's most blatant symptom we didn't recognize.
I wonder if that would fall under judgement? Reasoning?
This is my first time ever being a caregiver, my family has history of nursing however I’ve always been in the background working in the office scene. And this is really hitting me hard, thank you so much for your information. This is so hard for me however she captured my heart the day I met her and I will be here to rejoice with her when it’s her time! Again thank you so much
I'm just finding your channel. I will share it with my ALZ support group.
What I am finding with my loved one is that in her care home they seem to be more hands off the more hospice becomes involved. There is a great need for staff to have continuing education on dementia care because in the past not as much was known when many nurses were in training. I feel my loved one is treated as less of a person because of her deficits. I hope in the future administrators and owners of care facilities invest in training for their staffs.
I have been diagnosed with early stage mixed dementia. You have made me feel terrible about my future. Please don't summise, do not underestimate how the patient feels and thinks.
Thanks for reaching out to us. I’m so glad that you found our TH-cam page.
We recommend you reach out to the Alzheimer’s Association at 800-272-3900 or www.alz.org, where you might consider finding a support group for early stage dementia.
Please understand that our programming is specific for family and professional caregivers. We apologize if you found some of the content difficult to hear. We never intend to underestimate the patient, but our goal is to prepare the family for what could happen.
I am so glad that I listened to this information.
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
I needed that. I'm sure I'll come back to this again and again.
All I can say is thank you, this was so,helpful xx
Thank you! I am new to all this!
Thank you so much.
Thank you so much!#
Thanks.
This is excellent! Going to share with as many as possible.
Usually at late stage, there put on hospice and a nurse is coming to check on them. Make them as comfortable as possible.
Great video. Glad I found you. Thanks. ❤
I send peace expressions.
Journey comforts.
Softness when its hard. Get what you need. Find what you're looking for.
Relief from suffering
This is the best video I’ve seen so far!
This is so helpful. I’ve shared with my adult sons. We’re all in this together.
There's strength in numbers!
Very informative. Thank you !
thank you so much This helped me tremendously to understand ❤
Love never fails.--1 Corinthians 13:8. God is love.-- 1 John 4:8. Two greatest commandments: Love God, love neighbor as yourself.--Matthew 22:36-40. Thank you so much.
I am a nurse in LTC and I have family member with dementia. This was an excellent presentation. I love what you said about not dying because they stpped eating, they stopped eating because they are dying.
Very informative and so easy to understand. Thank you
Thank you so much for sharing this information.
Thank You! This is an amazing sharing of information.
Well Done! Thank you.
I love your videos. I just wish you had more to watch
Thank you.
Keep going!# Much love!#
Thank-you for so much helpful information.
Thank you
Thank you aloha🌺 all the way from Kona, Hawaii
So thankful Ma'am!# God bless you!#
Very good video, thank you so much. I have a good friend going through this right now. I think she is in the moderate stage at this point. I appreciate all of the information you've shared.
Watching this movie prepares me for what I will and am going through. This is the best one I have seen. I am a Young Onset Dementia person.
God Bless You Friend!! This is so informative for me, I helped take care of my grandmother with dementia, now my 77 yr old mother is suffering from dementia..she still lives alone which is causing me sleepless nights..Take care friend..sending you a virtual hug❤
I am early onset as well.. vascular dementia. This video was very helpful.
Double speak…how brilliant
Thank you, so helpful, please post to deal too!#
Thank you. My mom is in the nursing home.. I kept trying to tell myself she was going to be able to go home.. She's not.
Thank you so much. This has been extremely helpful. So much unanseered questions you have all answered. God bless you for sharing.
Thank for giving us the knowledge
You're welcome
Thank you for this video
Our pleasure.
This video was such a gift to families who have a loved one with dementia! Thank you, Thank you, Thank you! I’m so glad you discussed hospice, because I’ve been so hesitant to seek their care. People keep telling me that it will hasten her passing… so I felt guilty.
It won’t hasten her passing, it will give you a network of assistance and resources that you will benefit from. My mom is almost at the 5 yr diagnosis mark and she has had hospice for about 2 1/2 years.
Thanks for sharing this video . I need to know these to help me take care of my hubby with this health issue . ⭐️⭐️⭐️
Thank you so very much for this video & for sharing your knowledge & experience in this heart-breaking disease of the mind. God bless you.
Thank you.
My aunt is in the paying bills five days a week stage.
Fantastic presentation. A wealth of information and knowledge provided. Thank you
Very informative
Glad it was helpful!
Very informative and helpful, thank you❤
Thank you for explaining this so clearly and compassionately.
You're very welcome!
I just found this. Been looking for good information on Dementia. We are caring for an elderly father who has several signs and we are trying to get a diagnosis at this time. Such a good video and thank you for the information.
I'm so glad you were able to figure out that you have Dementia and what helps you can do for it.😊
We are too.
Helpful information.
Glad it was helpful!
Great presentation!
Thank you kindly!
Thank you so much for this.
You are so welcome!
Excellent video, we lost our precious Mom to this disease three weeks ago. Absolutely heartbreaking.
My condolences 🙏 ❤
@@nancystack4661 thank you!🙏🏻
I’m so sorry you’ve lost your mom, 😿❤️… it is the hardest experience. God bless you and your family with peace and all the good memories of your mom.
Losing a loved one is very difficult, whatever the cause. Your mom's memory is always in your heart.
@@bakokat6982 thank you so much!🙏🏻
They also can become very aggressive towards their loved ones! Than do not remember doing it!!!😢
Many Thanks✨I appreciate this knowledge sharing…!!!
You are very welcome. So glad you enjoy the videos.
God bless you 🙏 I've learned so much. Thank you ❤️
I'm so glad!
Thank you for this from Singapore! The tone is dignifying to sufferers and so so helpful to families. "Love is not a memory but a feeling."
You're so welcome!
I lost my wife I lost my wife Martha after 49 years of marriage Because of Dementia last August and she passed the very same way . and it’s true you never do lose your love for them, and I never will.
Thank you so much! Tears of learning.
Glad it was helpful!
Thank you for the wealth of knowledge that you give. My dad was just diagnosed....
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
I have watched many, but this has helped the most. Thank you.
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope! Have FAITH not fear 🙏🙏🙏
So very informative & compassionate. Thank you so very much!!
You are so welcome!
This is a wonderful teaching.
I would love to see this taught in every facility.
Excellent video - very helpful
Glad it was helpful!
Thank you so much for this video. I am a caregiver for my beautiful husband with vascular dementia. The stages are confusing for me because so many overlap for him. He's needed help with personal grooming, toileting and so many other things for a couple of years now. This video has helped me understand so much. Thank you again
You are so welcome.