Update! Cholangio Clinical Trial
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- เผยแพร่เมื่อ 10 พ.ย. 2022
- It’s been way too long since my last update! My video recording equipment is currently down, so please excuse my rough phone recording. But I’m now in a clinical trial at UPenn which I talk about. Thanks for sticking with me!
So glad to hear about your clinical trial!! You look great, and your oozing positivity!!!
It’s so good to hear from you & see you looking so good. I’ve been checking everyday for an update. You look great.
You are so beautiful inside and out.
God bless you from the UK. ❤️💙❤️🙏
Love the hair 💓. Much love to you and good luck with the clinical trials!
Thank you for the update, Megan. I love your curly hair, super cute. How amazing that your treatment is right in the city! Sending love 😘
Thank you for the update! Sure hope you do super well on this trial! Hugs~
My husband is on immune therapy for esophagus cancer and doing very well.
I was so worried that I hadn’t seen anything from you lately so I was thankful to see your smiling face. So happy for you that you’re in this new trial. You’re such an example of courage!!
I am so happy to see you😊😊😊I think of you often, so glad to see an update but just started the video so I'll come back to comment!
I’ve been concerned for quite a while. But I am so glad that finally found an update here! Fantastic. And I agree with everyone you look great! And very very positive.
So great to see you back! You look awesome! 🙏🏻🙏🏻🙏🏻 that this clinical trial works. Sending all positive vibes your way.
I was curious which drugs are in your clinical trial. Did you mention them in your video and I missed it? My husband is currently on immunotherapy (checkpoint inhibitors: Opdivo + Yervoy initially, but now just Opdivo) for his stage 4 cholangiocarcinoma and hepatocellular carcinoma. So far, they've been keeping him in near complete remission since when he ended GemCis in Februrary of last year. PET scan upcoming, so fingers crossed. Hoping for great success for you.
Glad you updated on your clinical trial! Sending you love from Kentucky.
That’s amazing news🤞🤞🤞❤️and your hair is friggin gorgeous xoxo
How’s it working out? 🤞🤞❤️
Wonderful. I sincerely hope you have great results,
Thinking of you, Megan.
Hey Megan! Great to see you. You look wonderful. So glad to hear you are in a clinical trial. Am excited for you and surely hope it does what you need it to do!
So happy you got in clinical trial. I will keep you in my prayers. I wish I could be as positive as you. I recently finished treatments for breast cancer, but have other illnesses that cause chronic pain and I tend to stay home because if the pain is bad I am miserable. How I would love to get out and be with friends and family, but don't because I know I will pay for it. I wish I could push myself. Only good thoughts for you. ❤🌹🙏
You’re looking good- I hope the clinical trial are going well I’m sure we’ll hear about it on your next post! Thank you! 🙌
Ohmigosh! 🎉 It’s so great to see you. You look amazing - so wonderful. I agree you have to live your life as best as you can. It’s easy to get sucked into the vortex. And I’ve been there. Love to you from Toronto ❤
The video quality is very good and love your new hair
Ohh! You look great ! Keep fighting!
I’ve been following you and your evolution :)
My father was diagnosed with cholangiocarcinoma too :(
Could you please talk a bit more about how you overcame ascites?
Hi my name is Jenna and I have cholangiocarcinoma aka bile duct cancer. I have not heard of acities. Could u explain?
My story is different because I did have the braca gene. So I was able to do a y90 procedure. It's had the best effect. But this is aggressive. So more chemo (cyspalatin and I can't remember the other) and pet scan end of Jan. Y90 is nuclear med so I did get really sick.
Correction: I do not have braca gene
Hi, yes cysplatin and the other one u said too. Also y90 got rid of my 7 tumors but I still have to do chemo.
It's aggressive so another 4 chemotherapy sessions into January are scheduled and a pet scan end of January. Just hard. I'm alone. My son goes to school 1500 miles away. I go every other week for chemo but my numbers have also prevented me from therapy. Mainly potassium and mag. I'm glad u are doing well. So so glad for you! You look good too.
Honestly Meghan you’re just so comedic when you said, “what I’m just supposed to sit here and die now?” … I just laughed out loud. You’re just too funny.
🍀🐞💚🍀🐞❤🍀🐞💚🍀🐞❤🍀
This was a year ago. I’m praying you’re doing WELL. 🙏🏻🙏🏻🙏🏻
Unfortunately she passed last Oct 4 😢
is there neuropathy from immunotherapy?
My particular one does not. I’m not sure if it’s the same across all immunotherapy.
some skin rashes are not fine, beware everyone. Immunotherapy sounds like the way of the future! hurrah!
😊
Are some on the trial getting a placebo?
No thankfully! It’s a small trial and we’re all getting the same two immunotherapy drugs.
It’s a shame that you dumped all your followers when things improved for you. When you were fist diagnosed you posted regularly. Then little by little it became months at a time.
I’m not going to invest my feelings and prayers into any more cancer patient’s, even though I fought for two yrs to survive.
I think the thoughtful thing to do for those who have prayed and invested in your recovery, would be to tell everyone you will only be checking in every four months. The kind thing to do. Continued healing, may your clinical trial be a success.
She passed last Oct 4, so you won't have to "waste your time" on her videos anymore. Happy?
Look at your hair! Beautiful
Christmas check in 💕🌷⛄️