Introduction to NADF

The National Adrenal Diseases Foundation is a Non-profit organization Dedicated to the adrenal disease community. NADF’s Vision is A world without suffering or death from adrenal disease. NADF’s Mission is to Advance education, support, and research to improve the lives of those affected by adrenal disease.
Through the dedication of the NADF board of directors, staff & volunteers, individuals with Adrenal Disease have a highly respected resource to find life preserving information and treatment guidance, approved by esteemed medical advisors.
Newly diagnosed patients can rely on NADF for essential information from our Facts you need to know pamphlets, as well as a wealth of resources provided to all adrenal disease patients and their caregivers.
NADF also serves as a vital voice to important Endocrine Organizations. The foundation works with The Endocrine Society, the American Association of Endocrine Surgeons, the Pediatric Endocrine Society, the American Association of Clinical Endocrinologists and others to bring focus to adrenal diseases and patient needs.
NADF also works closely with other patient organizations like NORD, Gene Alliance, Autoimmune Association among others focused on adrenal diseases to provide the best possible support to adrenal patients, caregivers and families.
In 2021, NADF initiated an international network of adrenal disease organizations, forming the International Adrenal Disease Patient Organization Consortium. This historic alliance aims to strengthen our response to new information or crises affecting the adrenal disease community and to create a unified voice for improving awareness and education for patients, caregivers, and the medical community.
robust program of support groups is led by volunteers who share information and provide support to patients across the US. Support group leaders are trained to facilitate meetings and disseminate important information, serving as the heart and soul of our foundation.
NADF responds to inquiries by phone, email, or mail, with all information verified by medical advisors. Photo of contact information: Adrenal patients can reach NADF through various channels, including our website, nadf.us, by calling 847-726-9010, emailing [e-mail], or writing to our headquarters at P.O. Box 95149, Newton, MA, 02495.
If you're not already a member, we make it easy to join on our website at nadf.us. Membership fee of $25 includes benefits such as our quarterly newsletter, NADF e-news, and other important updates. We also offer a professional membership for the medical community. The membership fee covers a selection of pamphlets, which serve as excellent educational tools for patients.
Our newsletter features current information about adrenal research, clinical studies, Q&A sessions with NADF Medical Director, Dr. Paul Margulies, and updates on current NADF projects. Individual members also have the opportunity to share experiences and symptoms in the members' corner.
Together, we can create a better world for individuals living with adrenal disease.

[@1aliveandwell]

How does one know if this may be a problem? Dr did serum cortisol and was hi IN range but saliva (active) was low morning and noon and high evening and night (will see how to retrain my circadian rhythm). Can the adrenals effect BG ? An ACTH lab was 16 so in lab range but wondered if not really optimal.

[@nadf_adrenal]

Thank you for reaching out to us. I forwarded your question to our Medical Director, Dr. Margulies. In his reply he stated that at this point in time there is no conclusive data on cortisol and ACTH levels that could be used as a guide to manage Addison’s disease. Dr. Regan’s My AI Cortisol study (www.nadf.us/myai-cortisol-study.html) includes analyzing cortisol data to see if it is helpful. For now, I would discourage individuals from checking cortisol or ACTH levels and simply rely on clinical well-being and the lowest dose that prevents adrenal insufficiency symptoms. Please discuss the results with your endocrinologist who ordered them.
Thank you again for contacting us, Kalina ([e-mail] )