I’m sorry I missed this live webinar, I’ve been dealing with Cushing’s disease for almost 15 years. I’ve had 3 pituitary brain surgeries. I’m 5 months post op from the last surgery and don’t feel any better. I’m looking into getting my adrenals removed and hope this will get rid of Cushings and get to have my life back. I appreciate hearing from professionals doctors who seem to truly understand what we the patients are going through. You all are absolutely correct on how it’s important to seek a doctor that’ll listen to us and know which tests and how to perform them accurately. I’m happy with my Endocrinologist after going through more than 5 different ones, including traveling to another city; I found one that assured me she be my best friend and with me.
I have been taking my morning dose of Hydrocortisone 10mg with an empty stomach. I hope this is ok and I will not develop any problem because of this. Been gaining so much weight already and I develop fatty liver, im doing intermitent fasting now to cure my fatty liver and manage my weight.
I have Addison's. My doctor a naturapath tests my yearly with the 24 hour urinalysis. I have no adrenal out put from the entire cortex. The only hormone that registers is my daily oral dose of Hydrocortisone. I struggle daily. I have a lot of pain and have to stress dose or I go into crisis then coma. I know how to ward off a crisis but it is a battle. Our local doctors don't have a clue what to do. I have been on the edge of death and they do nothing. Only by God's mercy I am even here today to tell my story. I have many. If it were not for my Naturapath I would be dead. I live rural and there are no Endocrinologist here and the ones far away don't take patients out of county. Maybe in the bigger cities. I am so sick I can not travel and my car is old. I can not tolerate stress or I end up going into crisis. I have to think whether a situation merits more HC. I had a bad cold, BAD; and had to up dose. I am already up-dosed due to high pain levels. I supplement salt and electrolytes. I take DHEA and Pregnenalone. I eat well, no sugar and no caffeine. My life is consumed with trying to stay alive. I am very tired.
To manage my pain these are the things I try to do daily: 0 Sun Bathing 20 mins daily or buy Infrared lights. 0 Ice Bathing 10 to 15 mins ( Dont do this if you have high BP) or If I have access to ocean I submerge my body for the same period. 0 Grounding, better if you can lie down on the ground while the palm of your feet is planted on the ground, do this as long as you can. 0 Foam rolling 5 mins, I focus on my back and legs only. 0 Tapping the 5 points of our lympthatic drainage for 10mins.
Hello ! Yeah, would love me. I have Renal cell carcinoma. I have one kidney. I have both adrenal gland, but I had cancer treatment and it ruined my adrenal gland forever. Have a small spot of cancer on my adrenal gland so far everything‘s fine and stable. put my question is the adrenal insufficiency is really tough every morning. I wake up very emotional crying and pain until I take my steroid and pain medication. I’ve been stress dosing has helped some. I’m pretty much achy and weak and sore muscles all day. I cannot just sit around. It makes things worse so I have to get up and move. Any advice?
These are the things I do to reduce my pain without taking any pain killers. Grounding better if you can lie down on the grass or sand (as long as possible), Sun bathing 20mins/day (you can also buy portable Infrared lights, Ice bathing (dont do this if you have high BP), if you have access to ocean 10 to 20 mins also helps, Foam rolling 5 mins just do your back and legs, 10 mins of tapping your 5 lymphatic points. All I mentioned can be research in the net. I do 2 or 3 of this activity daily.
I’m sorry I missed this live webinar, I’ve been dealing with Cushing’s disease for almost 15 years. I’ve had 3 pituitary brain surgeries. I’m 5 months post op from the last surgery and don’t feel any better. I’m looking into getting my adrenals removed and hope this will get rid of Cushings and get to have my life back. I appreciate hearing from professionals doctors who seem to truly understand what we the patients are going through. You all are absolutely correct on how it’s important to seek a doctor that’ll listen to us and know which tests and how to perform them accurately. I’m happy with my Endocrinologist after going through more than 5 different ones, including traveling to another city; I found one that assured me she be my best friend and with me.
I have been taking my morning dose of Hydrocortisone 10mg with an empty stomach. I hope this is ok and I will not develop any problem because of this. Been gaining so much weight already and I develop fatty liver, im doing intermitent fasting now to cure my fatty liver and manage my weight.
I have Addison's. My doctor a naturapath tests my yearly with the 24 hour urinalysis. I have no adrenal out put from the entire cortex. The only hormone that registers is my daily oral dose of Hydrocortisone. I struggle daily. I have a lot of pain and have to stress dose or I go into crisis then coma. I know how to ward off a crisis but it is a battle. Our local doctors don't have a clue what to do. I have been on the edge of death and they do nothing. Only by God's mercy I am even here today to tell my story. I have many. If it were not for my Naturapath I would be dead. I live rural and there are no Endocrinologist here and the ones far away don't take patients out of county. Maybe in the bigger cities. I am so sick I can not travel and my car is old. I can not tolerate stress or I end up going into crisis. I have to think whether a situation merits more HC. I had a bad cold, BAD; and had to up dose. I am already up-dosed due to high pain levels. I supplement salt and electrolytes. I take DHEA and Pregnenalone. I eat well, no sugar and no caffeine. My life is consumed with trying to stay alive. I am very tired.
Stay strong Linda, I will pray for you. 🙂💚
To manage my pain these are the things I try to do daily:
0 Sun Bathing 20 mins daily or buy Infrared lights.
0 Ice Bathing 10 to 15 mins ( Dont do this if you have high BP) or If I have access to ocean I submerge my body for the same period.
0 Grounding, better if you can lie down on the ground while the palm of your feet is planted on the ground, do this as long as you can.
0 Foam rolling 5 mins, I focus on my back and legs only.
0 Tapping the 5 points of our lympthatic drainage for 10mins.
Hello ! Yeah, would love me. I have Renal cell carcinoma. I have one kidney. I have both adrenal gland, but I had cancer treatment and it ruined my adrenal gland forever. Have a small spot of cancer on my adrenal gland so far everything‘s fine and stable. put my question is the adrenal insufficiency is really tough every morning. I wake up very emotional crying and pain until I take my steroid and pain medication. I’ve been stress dosing has helped some. I’m pretty much achy and weak and sore muscles all day. I cannot just sit around. It makes things worse so I have to get up and move. Any advice?
These are the things I do to reduce my pain without taking any pain killers. Grounding better if you can lie down on the grass or sand (as long as possible), Sun bathing 20mins/day (you can also buy portable Infrared lights, Ice bathing (dont do this if you have high BP), if you have access to ocean 10 to 20 mins also helps, Foam rolling 5 mins just do your back and legs, 10 mins of tapping your 5 lymphatic points. All I mentioned can be research in the net. I do 2 or 3 of this activity daily.