Sjogren's Strong "Lupe's Story"

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  • เผยแพร่เมื่อ 18 ก.ย. 2024
  • I was diagnosed in 2008. But I did have symptoms way before that. I'm going to say maybe 10-15 years, maybe more.
    ~Links
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ความคิดเห็น • 8

  • @PhyllisAnderson777
    @PhyllisAnderson777 2 ปีที่แล้ว +6

    Hello - I'm just hearing this Vlog you posted from January 15, 2019. We sound exactly alike! Always good to hear someone else who can relate to similar Sjogren's symptoms. Blessings......

  • @florabraswell9744
    @florabraswell9744 ปีที่แล้ว +1

    I am sorry about loosing your doc ! They are hard to find especially when you have an illness thats hard to diagnose, l am a74 year old lady that has had the same symptoms as you l found a pretty good doctor he’s checking for a number of autoimmune disorders, l also have dry mouth n eyes skin , hair pain everywhere, numbness pain n tingling In fingers extremely painful at times l am at my wits end, so hoping l can get a diagnosis soon,thank you both so much for the information Your great 👍 🙏💕🙏❤️

  • @SobrietyandSolace
    @SobrietyandSolace 4 หลายเดือนก่อน +1

    I’m shocked at how much of this I relate to. I was thinking EDS, thyroid eye disease, etc I’ve seen so many rheumatologists and they’ve never commented on my dry fragile skin, constant dry gritty eyes, bad teeth etc I have also tested positive for other autoimmune antibodies

    • @kerriskaraoke
      @kerriskaraoke 3 หลายเดือนก่อน

      I have EDS, and was just diagnosed with Sjogrens yesterday.

  • @resortvillaslandscaping
    @resortvillaslandscaping ปีที่แล้ว

    Thanks for sharing. So relatable (even though this sucks) and a fun delivery.

  • @lucyl2770
    @lucyl2770 ปีที่แล้ว +1

    Hello from Texas - you reinforced things I already knew, but I still learned from comments you made. For example, salt in your water. I’ll have to try that. Do you mind telling what medications you were on, along with what help they gave? I’m taking two, but I’m not sure they are helping. I was initially diagnosed with arthritis, with Fibromyalgia following, and Sjogren’s about a year ago. I’m looking forward to listening to more videos. Thank you

    • @trish2687
      @trish2687 ปีที่แล้ว

      Did u ever get a reply to what meds she's on?? Desperate for some help. 🙏

  • @charvankerck3426
    @charvankerck3426 3 หลายเดือนก่อน

    just to have a DOC give me a diagnosis. SS just does not register with many. i have most symptoms that you have shared
    including lack of energy to be social, go shopping, or go anywhere. 😮.