I'm sorry to report that this supplement approach did not seem to help me much, but maybe it was because it was early in my treatment and I was real acute at the time. What did help me the most was AIP diet, caring for leaky gut, reducing stress, getting more sleep. I found avoiding gluten and sugar to be the biggest triggers for me. I found eating lots of salmon an brocolli helped a lot. On top of that, the supplements might help, but in my experience, the other diet and lifestyle changes were the most important.
I had already been gluten free for years. I have been on 90% of this protocol for over a year and it definitely helps. I agree on the diet changes, but I would say that this is a whole person approach, diet and supplementation. I have had to eliminate all grains 100% of sugar, and if I miss my supplements I have a flare up. Especially the saliva stim. I also have found I can't take every supplement. It took 30 days to see results. I also take folate and methelated b vitamins because after years of being gluten free I had low folate and low b12 (though I think the low b12 has another cause.) I added 1 supplement at a time for a week then another when I saw I had no reaction. The ones I reacted to I stopped taking. I need to find a functional medicine doctor because I have held off on the ones that can mess withy liver enzymes untill then.
Diet is good. But Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future. Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN. Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
Listened to this again. I have researched Sjogrens for about 20 years...no kidding. This guy has it all in a nutshell and ABSOLUTELY knows his stuff. My goal is always to take the natural or intergrative route rather than harsh pharmaceuticals that damage even more stuff and get you into more health trouble and discomfort. I am about to connect with an intergrative Dr who I’m sure will get on board with all he says. 2020 IS going to be the year I make leaps and bounds with helping to heal myself because at 64 and having this for over 30 years..... enough. I’m pulling the plug. I can’t thank this guy enough. It all makes sense and I know how much time and effort he would have put into this and putting the jigsaw puzzle together to get the RIGHT information to us all. A HUGE THANK YOU SO MUCH. Sandy near Byron Bay Australia
Sandy Clark I'm suffering badly and I don't understand anything he's explaining can you please dump down this for me ? All the big words are so complicated
Hi Sandy, I’m very interested in your message! I’ve been suffering with Sjögren’s for almost fifty years and I was diagnosed with Sjögren’s for seven years. Like you said enough! I’m very grateful for this Dr as well! And thank you for your message! Could you please tell me if you are on the therapy and how you feel now? I believe we will all get healed as long as we keep seeking! Thank you and bless you!
[Edit:6.29.24 I have been taking this product for about a year and it works for me. I buy it from Amazon. Very grateful I found this video. 12/22/23-I have been using salivastim daily since my last post and the product has greatly improved my quality of life, it works for me.] I started using salivastim with success. Food no longer gets stuck in my esophagus and my eyes no longer feel like they have ground glass in them. I've since ordered the other items mentioned in the video and have started using them as well, we'll see how things go. Thanks for this information!
@@jorm2528 I have been using salivastim every day since I last posted and my symptoms have improved. I notice it right away if I forget a day. For me the product works. Thanks for asking
Do NOT use the BERBERINE! It’s proven to destroy the gut microbiome. Look up Dr Jason Hawrelak’s research and video’s and he explains why NEVER to use it!
I put castor oil on my eyes nightly after cleaning them. Most helpful thing I have ever done. Had to create my own lip formula, too. Nothing on the market works, even natural products.
I’m finding “Oil pulling” with castor oil - 1tsp in the mouth for 1 minute daily is helpful for dryness and dental health! I heard about it regarding dental health, but it’s helping too with mouth dryness
BULLSHIT period. Natural Products DO NOT cure autoimmune disease. Stop giving people false hope. So people who take this concoction will have negative ANA and negative SS-A and negative SS-B ??? This is an insult.
@@bful-q7g pop all the petrochemical pharmaceuticals you want, but stop encouraging others to join your downward spiral. Every autoimmune disorder can be managed with alternatives to the point of being an inconvenience, rather than consuming your life. Unlike the false claims of Western medicine there's no one-size-fits-all pill for any disease, so it takes some experimenting with diet and alternatives, but anyone who puts the time and research in will benefit and improve their quality of life indefinitely. Did you try this regimen and have it fail you or were you just making unobservational accusations?
I was forced to take a hep B vax 💉for a medical procedure in 2015. 2 weeks later, I had Rheumatoid Arthritis and Sjorgens. Never had this ever before 💉. Be very careful of vax folks. I 🙏someone finds an answer for us all. Love to everyone. ❤️
I was diagnosed with Sjögren’s syndrome, about 26 years ago. I had blood, urine test. And then a lip biopsy from a rheumatologist. It was confirmed. I am taking b12, c, and d vitamins. And using the moisture mouthwash. That seems to be working, for me. And I also saw a hematologist too. Dolores JD
Thanks for info. Dr. Andrew Weil has a You Tube video on Sjogren's. It is easier to understand and he recommends some of the same nutritional info. Hope this is helpful.
I'm not sure why some people would give this a thumbs down ... I guess they expected just to see a commercial telling them to run out and buy this one product ?
Thank you for the video. Just a helpful hint...I use an organic ,coconut oil mouth rinse just before bed,which has really minimized dry mouth and throat. Also use in nostrils, and wherever else things are dry, really helps. I'm just learning myself, and have had fibro for 24 years as well. Very hard to get a diagnosis. I'm very sensitive to drugs, and just use x st. tylenol. Nettles and other herbs really help. Belladonna eye drops are awesome, and I use 5 times a night. It's a journey to find balance, and joy, such is life. Good luck to all.
I agree cordyceps are excellent. These and reishi give me energy mentally and physically.This video is 5 years old. There's lots of time for research on the internet these days folks. Make sure your sources are pure. Check out the company that makes a product. Much adulteration is going on for profit. Check out American Botanical Council for latest work.
Also, I'm going to look into all the suggestions in the video that I'm not using yet. Sometimes we need to break from a supplement for a month or so and start again. I have found NAC was the only thing so far to help with chronic candida and sore throat. This truly feels like a miracle.
@@michelle-gc1ut I just use the Nature Made Tumeric. You can swallow it but I like to open the capsule and add to my activit yogurt. That’s the only thing it seems to cling too one a day l sometimes I miss it’s #1 pharmacist recommended . The autoimmune dr said the vitamin d3 is very important too. Mine was below normal now it’s above average I take 3000 to 5000 IU a day.. they had me on diflocenic. Which is hard on kidneys . I just know I haven’t had anything like I had 4 years ago a few months after doing this. I still am positive for Sjogreans but the levels have not been as bad.
Thank you, I am so sad , I was diagnosed one month ago but I think I was suffering for many years but the dr didn't pay attention what symptoms I had .I had to change the dr .Thanks
@@irmazoto9215 ka shumë shenja , por sëmundjet autoimmune prekin çdo pjesë të trupit dhe vetëm një reumatolog duhet të bëj analiza specifike .Unë mbas 2 vjet dhimbje te muskujve , marrje mendsh , dhimbje koke , hypothyroid, syte te veshura e shumë të tjera , nuk e doja të ftohtit , e ndjeva diçka ishte ndryshe në trupin tim dhe kapakët e syve i ndjeja të rënda etj. UROJ mos ta kesh 🙏🙋🏻♀️
I've discovered one thing. When you point to a condition or state a symptom and there is no response (ever) it is because they don't know anything. They can't even refer you to someone who might know. Changing doctors is the only way.
You know what? Dry mouth & eyes are the least of my issues. Pain, numbness, difficult mobility, multiple broken bones & head injuries from falls hence-post concussion syndrome...& on & on & on. I am ready to give up the ghost willingly . I used to be on onions but took myself off after 12 years of pain clinics. Now on medical cannabis & Ultram. None of them sufficient. I've has a Takotsubo heart failure from excess adrenalin from pain. Don't let anyone tell you that you can't have a heart attack from pain.
You need to be tested for Sjogren's syndrome with neuropathy. It took me 7 years to get a diagnosis. I had to go to UCLA to find a Neurologist that was familiar with Sjogren's. I have had multiple broken bones, numbness and pain as well.
Fasting 30 days from 5Am to 6PM , No water ,No drinking, No foods ,No things at all, within months all my autoimmune disease gone 🎉🎉🎉 No spending a penny. Muslim fasting Ramadan.
Does seronegative Sjogren's syndrome exist? the glandular biopsy is negative. Due to the symptoms (one year ago) of dry mucosa, dry skin, abundant hair loss, mild joint pain in hands and feet, mild muscle pain and fatigue, they told me it was Sjogren's syndrome and 5 months ago I started a paleo diet (because of that I have lost weight), the symptoms are now very mild, although they have not completely disappeared, especially insomnia and hair loss. Do you think it is possible that there is another diagnosis? Can I be a candidate to follow that protocol? Thanks!! Dulce Ocampo
Have they looked into RA, or lupus? These can be present along with Sjogren's. It's common to have more than one autoimmune disease along with Sjogren's. I have both RA and Sjogren's.
You know the problem with most of those big Pharma drugs is they hog the receptors in the body and brain so that when you take a natural healer it will NOT BE ABLE to get in the receptors and actually HEAL you . Those synthetics only mimic . You should scroll up a couple threads and see the comments section where a bunch of us are talking about some natural healers and then I chimed in about what made my unbearable dry eyes completely go away ... it was all natural and dirt cheap .
@@gardensofthegods LDN only blocks opiod receptors for a few hours (ie 2-4). The other 20-22 hours of the day those receptors are free. That's how it works. It works harmoniously with other natural remedies. .
Good choice. Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future. Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN. Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
@@TheTinamarie11 As an RN, there are not a lot of studies done on natural products as there is no money to be made on natural. no patents are allowed on natural products This kind of herbal/natural products is why they killed witches & shamans and ridiculed naturalpathic oractioners The big pharma has had a stranglehood on the medical assc. and tried to kill or ridicule natural because they have a business model based on illness. They treat symptons, not cure. Allopathic doctors know what the pharma companies tell them, even if it is a lie. No more harsh chemical for me, I am a biological being. These doctors who subscribe natural make no money or kickbacks on these protocols. Your insurance company will not pay for your natural products, but you just might get better. I watched for years as people were given chemicals, and watched system after system fail.
Honestly lady's why would she care what her consultant said ... Can you imagine if her consultant said not to try this protocol ? If her consultant is a big pharma doc she would be really suffering
I for sure would like to try it in stead of immunosuppressors of course !!! But the antibodies react very strangely on even 'NAtural plants and immuno stimulants as aswaghanda .. tumeric .. artemisinim..triphala .. artimisinim gives flare up with a feeling of deep depression and fears e.g Hope somewhere to find right natural protocol witthout these side effects
Hello. First we have to change. Diet.especialy.red beef.caw.beef.hambuegues..only chiken.fish.eat well. U sufer..inflamation inside body..drink.ORANGE JUICE.2 CARRIOTS.AND PINAPLE.JUICE.4 PILL OD TURMERIC.
Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future. Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN. Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
I dunno. Ask some rich person. I didn't even try to find out the cost of all of this because it's hopeless to afford it as a disabled low-income senior. And now that "The Stupids" have elected a fascist dictatorship in the US, there NEVER will be Nationalized Healthcare and I'll NEVER have access to any protocols other than DEATH. That's the Republican prescription for people like me.
Anyone tried sea buckthorn supplement? It helps the immune system to calm down so the glands dont clog up with auto immune protein and can moisturizer the body better. I am buying it today.
Hi Adela, we do not offer consultations. If you live in Southern California, you are welcome to make an appointment to become a patient. www.ifsmed.com
@@ifsmedThank you so much for answering. I'm desperate and have no quality of life. I live in Miami, Florida and I have several autoimmune conditions. Can you recommend a clinic or doctor in my area that offers the kind of natural treatments that you give your patients. The information that you offered about your treatments were so complete that it feel me with Hope. Thank you again and God Bless you and your staff for helping people like me. Thanking you in advance for your assistance.....
Adela Fiallo hi Adele. I live in Miami as well! I think they sale all the products in their website. If you need to speak with anyone please contact me as I am also fighting fir my life :)
@@Data_-xw7yw hi sjogren treated by pilocarpine..it's a desease.by exocrine glads that prouce.humidity.on body.theres a herb.called JABORANDY. u can find at KALUTIANS herb store in website. Usee makes for.for sweat.
61 years old... Sick for 35 years. Been in bed 9 years. So sick, so weak, dying Misdiagnosed for years, ruined my endocrine system. Since they had no clue and after I visited another dr they labeled me as munchausen syndrome saying I am doing this to myself. Mother had same died at 59, youngest daughter has this now too. And now I have stage four cancer with no hope since the most cruel diagnosis was labeled on me and passed through the grapevine without my consent!
I was diagnosed with AML. I don't like to say I have AML. That's not who I am. I'm made in the image of God. Ginseng is doing wonders for me. There's research on going about ginseng, avocado, a Peruvian tree bark called lapacho, and feverfew, high levels of vitC. Also play Rife frequencies on YT. I'm sure there's other useful herbs. You're not hopeless. Research the Gerson Therapy, Dr. Young, Dr. Morse. Best wishes. Spread the knowledge. Big pharma doesn't want us healed!!!
@@johnoneill5452 probably a naturopath ... 3 years ago I was actually lucky enough to have a naturopath who was actually paid for by regular health insurance ... no expensive co-pays none of that stuff . you probably don't even really need a doctor for this I would imagine what you really need is to get the ingredients for the protocol and start administering it to yourself and see what's working and see what doesn't. So how are you doing now a year later
@@johnoneill5452 Try a natural path, or functional medicine doctor. These are natural remedies and the pharm. compaines and hospital go by a lot of protocols and many a doctors hands are tied to pharm. companies.
AI'm interested in this , as I'm having lots of the symptoms. I doubt I'll get an answer but I do have a question - Are there any statitiscics on the numbers of people diagnosed with this syndrome pre introduction of the standard American Diet as compared to now .
I could only grasp two ingredients in this video krill oil and black currant oil. Is there a tablet or solution that contains all the ingredients doctor has mentioned in this video. Can someone pkease suggest where to buy this stuff.. Thank you doctor for this video.
Hi Musti, there should be captions that will help you understand what supplements he speaks of. You can find a table of these on our blog www.glutenfreeremedies.com/natural-remedies-for-sjogrens-syndrome/ All of these are for purchase on our ecommerce store.ifsmed.com
There is a lot of research and articles online that suggest there is an association with low levels of estrogen and Sjogren's so using IC3/DIM is conflicting with that information. Are there any medical professionals that can address this?
They are totally different esters. DIM helps your body shed the esters responsible for breast and other BRACA gene cancers, so they are bad esters. Not the estradiol's needed to maintain your body after say hysterectomy or menopause.
Does anyone know if this treatment protocol is available as a packaged product? I'd so much rather buy a prepackaged protocol then buying all these separately.
Właśnie, z obserwacji mojego ciała wynika, że chorobę spowodował wirus ospy. W Polsce szczepi się dzieci przeciw temu wirusowi i niestety ja też zostałam zaszczepiona.
Hi A.H., there was a 2019 study that suggests this can be the case. journals.lww.com/annalsofsurgery/Citation/2019/01000/US_FDA_Breast_Implant_Postapproval_Studies_.7.aspx Many women can experience some form of breast implant illness causing the body to launch and immune response. www.glutenfreeremedies.com/breast-implant-disease/
@@ChristinaJLHill still sick one year later after explant unfortunately. i think the implants started the cascade of disease though and i did the right thing removing them.
These are supplements idiot. No one cares if you can or can not afford it. He is sharing valuable knowlege for the vast that everyone else since has copied and shared it too. You can go deal with your head, Bye! 👋
Where can I get help o have chronic symptoms including digestive disorders chronic constipation poor vision i need assistance to start on this treatment and should I be on a Gluten free diet ?
Hello, I was just diagnosed with it and was told to go on wholefoods diet, nothing with gluten take a good probiotic, digestive enzymes and couple of other stuff.. if you interested in knowing the full protocol I was given let me know will share with you
@@lesleyhouston22 hello. Firstly no sugar, oil or gluten allowed in the diet. Half an hour before breakfast take 1tsp herbal fiberblend in a glass water. 10 minutes before breakfast take a tbsp good apple cider vinegar in a glass water. Have breakfast, having eggs fry in an organic coconut oil. I have double cream plain yoghurt with live culture. No wheat cereals allowed, I also have a smoothie, handful of baby spinach, blueberry, blackberry and I add 4 tsp barley life extra. Then take 1 prepzymes,2 omega 3 fish oil,1 liver tonic and 2 probiotic with a glass water. No inbetween eating, want to have tea, no dairy allowed I have black tea with zylitol. Half hour before lunch 1 TSP herbal fibre blend in glass water, 10 minutes before lunch tblsp Apple cider vinegar in water, have lunch, remember what ever you eating there must not be any sugar oil or gluten.. whole chicken, beef or must be grilled or fried in coconut oil and have lots of raw salad and steamed veg. After lunch have 1 prepzymes. Supper, 10 minutes before have 1tbsp apple cider vinegar in glass water, have supper .. always remember no oil, sugar , gluten, wheat in what ever you having. After supper with water have 2 omega 3 fish oil, 1 liver tonic and 1 prepzymes. Have to be disciplined in times, like breakfast everyday at 8, at 12 lunch, at 5 supper. Don't change, give it like a month or more and see. Hope that helps, what you don't understand, ask me .
I was diagnosed in 2020 took Ayuvedic treatment for 3 months felt better. Now in 2023 after having cold for two months now having dry mouth i think the antibiotic i consumed for treating my cough cold is causing me dry mouth. I think need to visit the ayurvedic doctor again.Also having shoulder pain.
@@goldensilver349 Dr Varma from Dombivli Kotakkal Ayurveda Lekin puri tarah cure nahi hua thoda aram mila. Abhi Functional medicine ya fir homeopathy try karne ka soch rahi hu
@@diacuiri6844 you can take all of these items. Most of them are easily found online. However; the SalivaStim item is only sold on our ecommerce store at store.ifsmed.com
My Dr. wi jit diagnose me so I tesearched and stsrted taking a low dose of aspirin a day and it heloed tremendously. It has to do with the aspirin and resolvin and the aspirin repairs the tossues and glands. O was do relieved, I felt a bad thzt I thought I was dying. Six Dr.,s later, after multiple visits with them and no help. Only a couple routine blood tests which, after three weeks, started showing the hit my symptoms had on my body. I have lost faith in humanity and definitely in the Medical PRACTICE!!! Thank you Dr. fir your expertise and help. God Bless You. The aspirin helped me the most. I take really good supplements and they aren't helping much at all. I haven't been taking them long. The aspirin hurts my belly, thins blood, can cause anemia and hurt kidneys and liver. I need a diagnosis. I need a homeopathic Dr.
Mine isn't genetic. No autoimmune diseases have ever been in my family and especially Sjorgens. Wouldn't I have to be the "lucky" one? Mine was brought on my mold and a horrible diet and lifestyle that fed the mold and high and chronic stress for years & years. Ironically I never had a single symptom of sjorgens until this last year and at that the only symptom was a feeling the air was dry. I was holding my own until I made the horrific mistake of allowing a ct scan on my neck and although I wasn't told by the Dr. or the radiologist, my head. Within 20 hours of that scan my WBC skyrocketed from 7.5 to 13.68! Four days later I had lost my tears, saliva, sweat and sebum, and even earwax production. I still had all these until the ct scan. It gets worse each day and I don't understand how a human body can survive this dry. I can't eat and have lost so much weight I look skeletal. I am in misery and beg God to bring me home. This isn't life. This is an excruciatingly cruel existence. I hate living now and just last year I was still loving life. 😢😢😢 I wish someone could tell me why, of all diseases out there, I had to get the worst, most horrific and cruel one.
Catherine Nicole Howland Hi, I just had a question how did the CT scan give you Sjögren syndrome were you given iodine contrast dye and is it possible for this disease to be drug induced?
where is the product with all this in it we don't want to buy another 20 products that probably won't work i'm sure many of us can relate buying stuff in the past with false claims or stuff that did not work it be nice to have all that money back we don't want to spend over 100 dollars on supplements and find they don't work
I am only going to buy a cheap sea buckthorn supplement because it helps to calm down the auto immune system which will avoid clothing of the glands and help with moisture.
Could you explain to some of these people here how you prepared these for their Sjogren's and can you please tell us how you are doing now compared to before
I recently lost 2 children two weeks apart during Covid-19. Since those events, I have all the symptoms of Sjogrens. Can stress trigger Sjogrens? This is the last thing I needed right now. My dry mouth seems to be worse at bedtime. Is that typical?
With stress all sorts happen but another trigger is H Pylori go get a stool test to rule out that and then ask for an anti body test for sjorgens syndrome then you’ll know if you have it or not. I have long covid and have been through this and found I had H Pylori this virus is racking lives for sure x
@@fionaandrews991 very weird that you mention h-pylori because I had that for decades ... when i was only 18 i had a bleeding ulcer and lost so much weight because i couldn't really eat that i looked like something out of a prison camp . The problem with those tests is the one where you breathe into the little cardboard thing and they send it out is not very effective . Yes most doctors will not tell a patient how h-pylori can ruin their health . Personally I did not get Sjogren's from it well let me put it this way if i did i must have had it only in a mild form but i did back in my college days have both Epstein-Barr and also Lyme disease ... i was not well for a very long time . I was in constant pain . I healed a lot of my problems through mostly ayurvedic medicinal herbs that i get at my local Indian Grocers .
Westminster , i am really so sad for you and as a parent of a grown man could only just begin to imagine your deep pain and sorrow from such a heavy loss . Prayers and blessings for you ; Light and Healing at all levels are my wishes for you . I'm so sorry for everything that is happening . Anytime you want to talk i am here ... I don't know if you were in the UK ... I am in Dallas Texas about 6 hours behind time zone there .
I am sooo very sorry for your loss. Yes, stress is toxic and can definitely cause Sjogren’s which is a toxicity syndrome. You may want to also check for environmental factors such as mold and heavy Metals.
Sero negative sjogren ... its very difficult to find it from blood tests... lip biopsy can may help ... but as far as no medicine is there , I don’t find it relevant to find it or not ... sorry if my words r negative bcs I have been suffering from this cursed disease for years ... more than dryness lots of other psychological neurological and other issues r also associated with this damn disease
I have no heat control and perspire only from head and neck at the same time as shedding jumpers etc am applying microvave heated pads to my legs which are cold and painul !!! Intolerant to dairy and ALL foods have an unpleasant reaction in my mouth !!! Nothing seems to help ,using cod liver oil and multi vitamins .to supplinent almost non existent diet ,
Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future. Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN. Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
That's a good question please try to ask him again for those who are in the same situation as you . You are much more likely to get an answer if you look to where he has given a response and click on to his name and then he is sure to see your question
I could not take fish oil either the regular fish oil pills. But I could take salmon oil. Which is very high in omega-3‘s and sixes. So salmon oil is very very good. In my digestive system I could handle that. Take it at night time before you go to bed. I don’t know if you’re allergic to it or is it just upset your stomach so badly that you can’t handle it through the daytime. Everybody I talk to said they had to take it at night time. But salmon oil is to me good for me because it doesn’t. Make me sick and I can handle it
I dont know english alot😢.. i want any on write what he said ..i want translate..pleas try to write all even what he said about dryness and lemphoma''and the wight?🌺 🌺
@@LilyRoseChannel01 i think theres an app you can translate this with. You screenshot and import it and it translates everything. I guess the advices are ok, like apples improve saliva production and cucumbers applied on eyes relieves the tiredeness etc.
@@diannewhab Thanks Dianne, but I was addressing Gaby Brown. The video is already in English, so it's not a problem. We can benefit from each other's replies so I was asking her for her comment in English.
Interesting you said Cmv virus. My second child was born with cmv and only survived 3 months. Iv had 2 other children after this . Now i have been diagnosed with Sjodens
Wow , bless you , i'm really sorry for what you have gone through ... very sorry about the loss of your baby . Please watch this video and listen to what he says about the protocol because he really has worked hard
I have a few other suggestions for him myself that i hope he will add to the list of healers . Please look into shatavari powder which you can by at almost any Indian Grocers cheaply . They have used it for thousands of years and Ayurvedic medicine and it is said to keep us young and juicy ... you supposed to take it with us were gone. Which is very good for many things as it is an adaptogen and also considered a nootropic ... they both are said to balance the hormones for men and women alike but you will see people here on the tube giving wrong information . I mix them with water and drink them and then take about a half a teaspoon of ghee ... as they are supposed to be taken with ghee . I have also asked the doctor to consider putting ghee on his list because it is said to nervous all of the organs joints muscles and to keep us lubricated . good quality gay is supposed to be yellow not a whitish color . and you want to try taking Moringa powder mixed with water but if you can access Moringa oil then you will really be helping yourself towards wellness and being pain free . If you live in America there is a company in Plant City Florida that makes their own Moringa oil and they're here on the tube , i just can't recall their name .
@@everardofields616 see dear take golden milk do some relaxing yoga poses like savasana ...take sun charged water ....for sun charged water take unpolished earthen pot fill it with water and place it under the sun in terrace and take it back in the evening and drink that water ...avoid allergic foods ...take the help of holistic approach release stress by getting close to nature ... Eat apple per day if you dont want to take apple cider vinegar ... Take fruits everday.... To increase the amount of antioxidants in your body....
@@everardofields616 if you dont have turmeric root then take dry turmeric from market and keep it in the water if it swells completely and ready to eat ,, then eat it ....and take the help of fasting then in that period eat only fruits ....it will help you ... You can also prepare food diary ok
Have had all the symptoms over the past 25 yrs but my blood work doesn’t show that I have it. I interact with the Sjogrens Foundation and they said about 30% of Sjogrens people’s blood work doesn’t reveal anything. Anybody out there experiencing this?
Hi Mehmet, I don't have any specific references for you, but we do have quite a few people who continually repurchase this product because they have found relief.
@@ifsmed Why is Artemisinin no longer available along with I3C/DIM ? By the way I ordered the products for Dryness and will give it a try. Will post my feedback.
I have stess and depression for 30 years but nothing working i have all the separation of sjogrens syndrome not all Dr's now how to treat this trying to get a dr who does
@@julieling1212 Julie it sounds like this doctor has worked really hard to put together a protocol for people who have Sjogren's . Have you tried it and if so please tell us how you are feeling and what is working for you and what you feel isn't working for you
Silly Jilly , please ... 3 years ago you said this helps me super and so we're wondering if you've tried the protocol for Sjogren's and what you tell people here what is working for you and what isn't . There are many people who have this illness and need feedback from others who have already tried the protocol
Folks, I have Sj. This channel / person provides zero documented evidence of info. No responses to crucial questions asked by all of you. Only time I see a response is WHEN they want you to buy their products. My heart aches💔for all here what we are going through. I just discovered a healing frequency for Sj. Just started it, ( it’s not mine). Hopeful. If anyone wants the info on it., I will post. Bless you all
I have friend that had a non-operable brain tumor. She started frequency therapy. Along with some natural supps. The tumor is now almost gone. So how is freq therapy doing on your SJ ? My wife has SJ for over 30 years.
Mam use herbs And natural medicines Apple cider vinegar Indian gooseberry with warm water Aswagandha Giloy tablets Take Turmeric powder and black pepper together mix it well in warm water and consume this...
I just got diagnosed this week with it. So it's all completely new to me. One thing I would like to know is was I born with this or did I get this disease by something I done or was around? I have so many questions but that's my first one. Second question is my eyes are in agony what helps this the most with helping the eyes? I just started Plaquaneal this week. My otc lubricating drops are NOT helping Any at all!
Kelly, Systane has 2 new OTC Eye Drops that contain LIPIDS (oil) so they help to replace the missing oily layer of tears that slow the evaporation of the aqueous layer beneath. Systane COMPLETE - has support for both layers of tears, and Systane BALANCE has primarily the Oily Tear support. Personally, I found the BALANCE to be the most helpful. The night time ointments for Dry Eye, almost 100%, contain a mixture of Mineral Oil & Petrolatum (Vaseline). These obviously are the strongest at slowing evaporation, but do cause blurred vision for at least a little while after use. On the worst days, I have find myself using these ointments >4 times per day - but NOT before driving, or having 10-15 minutes before "sharp" vision is needed. Amy C. Pharm. D.
@@miksipoksi hey. I know there is. Im not sure how many are now addmiting it. But its known that gardasil injured tons and killed kids as well. Its known for causing fainting and auto immunity. Research a bit i wish I put it together sooner. They're still paying out on like 44 million dollars for gardasil injury. Some say owell it prevents cancer. But cancer can het into remission and yes you're compromised but some are okay feeling. Auto immune is basically cancer of your immune system in a way. People don't look at auto immune illnesses that bad unless they live it. Its a whole picture. I test positive now on CDC basic western blot for lyme. I kinda think the HPV kicked it all in gear. And due to it all my system is a mess. Also my spine and joints are. Diet and movement and positivity can help and high d3 ommega 3 and b12 magnesium a bunch. But its still awful. How old are you? Ive had this now since 25 or 26 10 years!
I'm sorry to report that this supplement approach did not seem to help me much, but maybe it was because it was early in my treatment and I was real acute at the time. What did help me the most was AIP diet, caring for leaky gut, reducing stress, getting more sleep. I found avoiding gluten and sugar to be the biggest triggers for me. I found eating lots of salmon an brocolli helped a lot. On top of that, the supplements might help, but in my experience, the other diet and lifestyle changes were the most important.
Try DHEA
I had already been gluten free for years. I have been on 90% of this protocol for over a year and it definitely helps. I agree on the diet changes, but I would say that this is a whole person approach, diet and supplementation. I have had to eliminate all grains 100% of sugar, and if I miss my supplements I have a flare up. Especially the saliva stim. I also have found I can't take every supplement. It took 30 days to see results. I also take folate and methelated b vitamins because after years of being gluten free I had low folate and low b12 (though I think the low b12 has another cause.) I added 1 supplement at a time for a week then another when I saw I had no reaction. The ones I reacted to I stopped taking. I need to find a functional medicine doctor because I have held off on the ones that can mess withy liver enzymes untill then.
@@jason-sonyafontenot4039 they are few and far between. I guess it's easier, more financially rewarding and less hassles to use traditional medicine.
@@mariabenjamin8018 what is that?
Diet is good. But Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future.
Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN.
Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
Listened to this again. I have researched Sjogrens for about 20 years...no kidding. This guy has it all in a nutshell and ABSOLUTELY knows his stuff. My goal is always to take the natural or intergrative route rather than harsh pharmaceuticals that damage even more stuff and get you into more health trouble and discomfort. I am about to connect with an intergrative Dr who I’m sure will get on board with all he says. 2020 IS going to be the year I make leaps and bounds with helping to heal myself because at 64 and having this for over 30 years..... enough. I’m pulling the plug. I can’t thank this guy enough. It all makes sense and I know how much time and effort he would have put into this and putting the jigsaw puzzle together to get the RIGHT information to us all. A HUGE THANK YOU SO MUCH. Sandy near Byron Bay Australia
Sandy Clark I'm suffering badly and I don't understand anything he's explaining can you please dump down this for me ? All the big words are so complicated
Any progress???
Vvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvv:vvv:vvvvvv:v::vvvvvv n
Hi Sandy, I’m very interested in your message! I’ve been suffering with Sjögren’s for almost fifty years and I was diagnosed with Sjögren’s for seven years. Like you said enough! I’m very grateful for this Dr as well! And thank you for your message! Could you please tell me if you are on the therapy and how you feel now? I believe we will all get healed as long as we keep seeking! Thank you and bless you!
Ye my parasite detox has these herbs.visit my. Ig: alkalineluxe
[Edit:6.29.24 I have been taking this product for about a year and it works for me. I buy it from Amazon. Very grateful I found this video. 12/22/23-I have been using salivastim daily since my last post and the product has greatly improved my quality of life, it works for me.] I started using salivastim with success. Food no longer gets stuck in my esophagus and my eyes no longer feel like they have ground glass in them. I've since ordered the other items mentioned in the video and have started using them as well, we'll see how things go. Thanks for this information!
Any update to what you bought and have been using???
@@jorm2528 I have been using salivastim every day since I last posted and my symptoms have improved. I notice it right away if I forget a day. For me the product works. Thanks for asking
Any update
Do NOT use the BERBERINE! It’s proven to destroy the gut microbiome. Look up Dr Jason Hawrelak’s research and video’s and he explains why NEVER to use it!
I put castor oil on my eyes nightly after cleaning them. Most helpful thing I have ever done. Had to create my own lip formula, too. Nothing on the market works, even natural products.
May I ask how you put in, is it just transferring from finger tip? Thank you
I apply it with my fingertips.
I’m finding “Oil pulling” with castor oil - 1tsp in the mouth for 1 minute daily is helpful for dryness and dental health! I heard about it regarding dental health, but it’s helping too with mouth dryness
I use vaseline for my lips only thing helps they get do dry and chaffed! They have an awful flaking skin upon waking its so gross😢
@@alchemylover7444 On not "in"
SalivaStim, black currant seed oil 2g/d, krill oil 2g/d, artemisinin 100-600mg/d (from wormwood), cordyceps sinensis 750-1500mg 2x/d, n-acetyl cesteine (NAC) 2400mg/d, I3C/DIM 1600mg/day, TMG Plus 600-1200mg in morning.
How do I get all these products it's gone over my head he talks to fast
BULLSHIT period.
Natural Products DO NOT cure autoimmune disease. Stop giving people false hope. So people who take this concoction will have negative ANA and negative SS-A and negative SS-B ???
This is an insult.
@@bful-q7g pop all the petrochemical pharmaceuticals you want, but stop encouraging others to join your downward spiral. Every autoimmune disorder can be managed with alternatives to the point of being an inconvenience, rather than consuming your life. Unlike the false claims of Western medicine there's no one-size-fits-all pill for any disease, so it takes some experimenting with diet and alternatives, but anyone who puts the time and research in will benefit and improve their quality of life indefinitely.
Did you try this regimen and have it fail you or were you just making unobservational accusations?
Thank you
@@lowfatmofat2152 Reduce the speed of the video under Settings. I always have to do that.
I was forced to take a hep B vax 💉for a medical procedure in 2015. 2 weeks later, I had Rheumatoid Arthritis and Sjorgens. Never had this ever before 💉. Be very careful of vax folks. I 🙏someone finds an answer for us all. Love to everyone. ❤️
And "they" can't figure out why there is such a huge rise in autoimmune diseases.🤔
I got Raynaud's after my HPV vaccine that they are forcing upon teenage girls instead of teaching them to keep their legs closed and pick men better.
Same here 😢
@@helenaricharddon’t males cause pregnancy???
Yes thank you for video i have sĵodrens & debilitating bed bound 3 months. No help from many Dr's.
Thank you, useful video. Do you have any special recommendations regarding diet?
I was diagnosed with Sjögren’s syndrome, about 26 years ago. I had blood, urine test. And then a lip biopsy from a rheumatologist. It was confirmed. I am taking b12, c, and d vitamins. And using the moisture mouthwash. That seems to be working, for me. And I also saw a hematologist too. Dolores JD
Thanks for info.
Dr. Andrew Weil has a You Tube video on Sjogren's. It is easier to understand and he recommends some of the same nutritional info. Hope this is helpful.
Sjogren's can also cause debilitating fatigue, strokes, connective tissue damage, migraines, vascular damage, etc etc etc. it's very debilitating!
I can no longer sweat and have no tears I’ve become a desert
I'm not sure why some people would give this a thumbs down ... I guess they expected just to see a commercial telling them to run out and buy this one product ?
Thank you for the video. Just a helpful hint...I use an organic ,coconut oil mouth rinse just before bed,which has really minimized dry mouth and throat. Also use in nostrils, and wherever else things are dry, really helps. I'm just learning myself, and have had fibro for 24 years as well. Very hard to get a diagnosis. I'm very sensitive to drugs, and just use x st. tylenol. Nettles and other herbs really help. Belladonna eye drops are awesome, and I use 5 times a night. It's a journey to find balance, and joy, such is life. Good luck to all.
I agree cordyceps are excellent. These and reishi give me energy mentally and physically.This video is 5 years old. There's lots of time for research on the internet these days folks. Make sure your sources are pure. Check out the company that makes a product. Much adulteration is going on for profit. Check out American Botanical Council for latest work.
Also, I'm going to look into all the suggestions in the video that I'm not using yet. Sometimes we need to break from a supplement for a month or so and start again. I have found NAC was the only thing so far to help with chronic candida and sore throat. This truly feels like a miracle.
What has saved my teeth is swishing and letting sit, with fresh wheatgrass every night for 10 min. I get the frozen shots from whole foods
check Coimbra protocol vitamin D... works really well fro fibro and sjogrens
christina broadhead, what the heck are beeldonna eyedrops and how can i get them.
All of this sounds very interesting and logical, but can you please add the citations/literature review so that we can review the outcome data?
My god... CRITICAL..... And I still don't see any
@@TheTinamarie11 psst., it’s unsubstantiated.
Vitamin d and Tumeric is what I take and haven’t had a major flair up with joints in 5 years
What formula of Tumeric, if you don't mind?
How much of each do you take if you don't mind me asking
@@michelle-gc1ut I just use the Nature Made Tumeric. You can swallow it but I like to open the capsule and add to my activit yogurt. That’s the only thing it seems to cling too one a day l sometimes I miss it’s #1 pharmacist recommended . The autoimmune dr said the vitamin d3 is very important too. Mine was below normal now it’s above average I take 3000 to 5000 IU a day.. they had me on diflocenic. Which is hard on kidneys . I just know I haven’t had anything like I had 4 years ago a few months after doing this. I still am positive for Sjogreans but the levels have not been as bad.
Make sure you take with a full glass of water and with food or not on empty stomach
Then you really don't have SD
Thank you, I am so sad , I was diagnosed one month ago but I think I was suffering for many years but the dr didn't pay attention what symptoms I had .I had to change the dr .Thanks
Ju lutem cfare shenjash te theksuara ka kjo sëmundje autoimune dhe cfare ushqimi duhet te marrim.
Not surprised
Happened to me for years. Lupus also
@@irmazoto9215 ka shumë shenja , por sëmundjet autoimmune prekin çdo pjesë të trupit dhe vetëm një reumatolog duhet të bëj analiza specifike .Unë mbas 2 vjet dhimbje te muskujve , marrje mendsh , dhimbje koke , hypothyroid, syte te veshura e shumë të tjera , nuk e doja të ftohtit , e ndjeva diçka ishte ndryshe në trupin tim dhe kapakët e syve i ndjeja të rënda etj. UROJ mos ta kesh 🙏🙋🏻♀️
Much appreciation for you sharing this valuable information. Thank you
I've discovered one thing. When you point to a condition or state a symptom and there is no response (ever) it is because they don't know anything. They can't even refer you to someone who might know. Changing doctors is the only way.
You know what? Dry mouth & eyes are the least of my issues. Pain, numbness, difficult mobility, multiple broken bones & head injuries from falls hence-post concussion syndrome...& on & on & on. I am ready to give up the ghost willingly . I used to be on onions but took myself off after 12 years of pain clinics. Now on medical cannabis & Ultram. None of them sufficient. I've has a Takotsubo heart failure from excess adrenalin from pain. Don't let anyone tell you that you can't have a heart attack from pain.
"I used to be on onions (sic) but took myself off after 12 years of pain clinics."
You need to be tested for Sjogren's syndrome with neuropathy. It took me 7 years to get a diagnosis. I had to go to UCLA to find a Neurologist that was familiar with Sjogren's. I have had multiple broken bones, numbness and pain as well.
I hear that. Yes, the dry eye/mouth do suck, but the attacking of the joints, especially in my hands is the worst problem.
If you can tolerate ginger and turmeric , give it a try also lemon juice.
so generous to share the protocol, very thankful! and Dr S has amazing knowledge in both allopathic and natural medicines.
I agree!! 🤩
What's at "11:36" is very important to note.
LDN is good
OK.. you' got my attention... I need citations.....ALL of them....
Fasting 30 days from 5Am to 6PM , No water ,No drinking, No foods ,No things at all, within months all my autoimmune disease gone 🎉🎉🎉 No spending a penny.
Muslim fasting Ramadan.
How do you fast as a diabetics?
But what about staying hydrated
Impressive explanation doc. Than you!
Thank you for this
I wonder if omega xl suppliment will help,its supposed to help with inflammation ,it worth a try
Omega 3 trzeba brać razem z omega6. Omega 3+6=😊
interesting. thank you.
At the very least, does anyone know the dosage size and dosing recommendations? Maybe it's in the video and I missed it?
Este în video pe la sfarsit
Does seronegative Sjogren's syndrome exist? the glandular biopsy is negative. Due to the symptoms (one year ago) of dry mucosa, dry skin, abundant hair loss, mild joint pain in hands and feet, mild muscle pain and fatigue, they told me it was Sjogren's syndrome and 5 months ago I started a paleo diet (because of that I have lost weight), the symptoms are now very mild, although they have not completely disappeared, especially insomnia and hair loss. Do you think it is possible that there is another diagnosis? Can I be a candidate to follow that protocol? Thanks!! Dulce Ocampo
Have they looked into RA, or lupus? These can be present along with Sjogren's. It's common to have more than one autoimmune disease along with Sjogren's. I have both RA and Sjogren's.
🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩🥩
@@Prawnstar.thanks!😊
Low dose Naltrexone (LDN) is an antagonist that I am taking to help my Sjogren's and other autoimmune diseases.
Hows LDN working with u now ?
You know the problem with most of those big Pharma drugs is they hog the receptors in the body and brain so that when you take a natural healer it will NOT BE ABLE to get in the receptors and actually HEAL you .
Those synthetics only mimic .
You should scroll up a couple threads and see the comments section where a bunch of us are talking about some natural healers and then I chimed in about what made my unbearable dry eyes completely go away ... it was all natural and dirt cheap .
@@gardensofthegods what cured your eyes?
@@gardensofthegods LDN only blocks opiod receptors for a few hours (ie 2-4). The other 20-22 hours of the day those receptors are free. That's how it works. It works harmoniously with other natural remedies. .
Good choice. Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future.
Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN.
Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
Is there any reviews for this products ? Has anyone use this ?? And did it work !
Take homemade apple cider vinegar
Up your game.. we need citations to controlled studies.... I'm not seeing a-one
@@TheTinamarie11 As an RN, there are not a lot of studies done on natural products as there is no money to be made on natural.
no patents are allowed on natural products This kind of herbal/natural products is why they killed witches & shamans and ridiculed naturalpathic oractioners The big pharma has had a stranglehood on the medical assc. and tried to kill or ridicule natural because they have a business model based on illness. They treat symptons, not cure. Allopathic doctors know what the pharma companies tell them, even if it is a lie. No more harsh chemical for me, I am a biological being. These doctors who subscribe natural make no money or kickbacks on these protocols. Your insurance company will not pay for your natural products, but you just might get better. I watched for years as people were given chemicals, and watched system after system fail.
Th and you for such an informative video. I am going to ask my Consultant here in England if this will help me too.
What did your consultant finally say?
Im curious too as I live in Uk
There are a number of us that want to know what happened
Honestly lady's why would she care what her consultant said ...
Can you imagine if her consultant said not to try this protocol ?
If her consultant is a big pharma doc she would be really suffering
Where are you located?
San Diego, CA
@@ifsmedwhy does that not surprise me
I'm on: HRT, Testosterone cream and progesterone - could they all be increasing my SSA-B Antibododies? I also now have: ILD/IPF.
I live in Miami, is there a doctor that practice your concept? I am really interested in obtaining a second opinion.
i am a certified master herbalist and have these herbs ! IG:alkalineluxe
@@icdantribe1352 estoy interesada en tus hierbas, puedo obtener tu informacion? Vivo em miami tambien
This all sounds good, but I also have confirmed classical ehlers danlos so I dont absorb b vitamins well. 😢
Thats why they are methyl form recomended
I'm wondering if my hypoglycemia and Sjojgrens are related. Doctors don't seem to help much.
Wow! Mikala. You're like the 4th person on here saying the Exact same thing about this natural dr healing. Exactly. Like cut and paste Exactly.
Also can use coconut oil (cooking type) for a mouth and nose moisturizer.
How do you use it for mouth, you drink it ?
I for sure would like to try it in stead of immunosuppressors of course !!! But the antibodies react very strangely on even
'NAtural plants and immuno stimulants as aswaghanda .. tumeric .. artemisinim..triphala .. artimisinim gives flare up with a feeling of deep depression and fears e.g
Hope somewhere to find right natural protocol witthout these side effects
Cost of treatment? Where to go to be treated? What about being weaned off treatments already receiving from doctors?
Hello.
First we have to change. Diet.especialy.red beef.caw.beef.hambuegues..only chiken.fish.eat well. U sufer..inflamation inside body..drink.ORANGE JUICE.2 CARRIOTS.AND PINAPLE.JUICE.4 PILL OD TURMERIC.
How do we so this at home? Live in Denmark...
Is there one pill with all these things in it or do I have to buy 20 different products to get all these different things for Sjögren syndrome?
Yes follow me on ig: alkalineluxe
So have you tried any of these protocols and if so please tell us what worked on you and what didn't so that we can help and tell others
Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future.
Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN.
Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
I dunno. Ask some rich person. I didn't even try to find out the cost of all of this because it's hopeless to afford it as a disabled low-income senior. And now that "The Stupids" have elected a fascist dictatorship in the US, there NEVER will be Nationalized Healthcare and I'll NEVER have access to any protocols other than DEATH. That's the Republican prescription for people like me.
@ if it matters, I heard your sincere frustration. 🌻
Thanks Dr, do you ship to Mexico?
Thank you, Dr!
Anyone tried sea buckthorn supplement? It helps the immune system to calm down so the glands dont clog up with auto immune protein and can moisturizer the body better. I am buying it today.
Did you buy the buck thorny supp. , is it helping you???
Thank you for all the information. How can I get in touch in order to request a consultation.
Hi Adela, we do not offer consultations. If you live in Southern California, you are welcome to make an appointment to become a patient. www.ifsmed.com
@@ifsmedThank you so much for answering. I'm desperate and have no quality of life. I live in Miami, Florida and I have several autoimmune conditions. Can you recommend a clinic or doctor in my area that offers the kind of natural treatments that you give your patients. The information that you offered about your treatments were so complete that it feel me with Hope. Thank you again and God Bless you and your staff for helping people like me. Thanking you in advance for your assistance.....
Adela Fiallo hi Adele. I live in Miami as well! I think they sale all the products in their website. If you need to speak with anyone please contact me as I am also fighting fir my life :)
@@mamirica1313 hi
@@Data_-xw7yw hi sjogren treated by pilocarpine..it's a desease.by exocrine glads that prouce.humidity.on body.theres a herb.called JABORANDY. u can find at KALUTIANS herb store in website. Usee makes for.for sweat.
61 years old... Sick for 35 years. Been in bed 9 years. So sick, so weak, dying
Misdiagnosed for years, ruined my endocrine system. Since they had no clue and after I visited another dr they labeled me as munchausen syndrome saying I am doing this to myself. Mother had same died at 59, youngest daughter has this now too. And now I have stage four cancer with no hope since the most cruel diagnosis was labeled on me and passed through the grapevine without my consent!
You can read about LDN ,lowdosenaltrexone.org
How are you doing !!!???
I am so sorry to hear this I totally understand. It’s horrible when doctors don’t believe you. Lots of blessings to you. 😘
How are you? 🙏
I was diagnosed with AML. I don't like to say I have AML. That's not who I am. I'm made in the image of God. Ginseng is doing wonders for me. There's research on going about ginseng, avocado, a Peruvian tree bark called lapacho, and feverfew, high levels of vitC. Also play Rife frequencies on YT. I'm sure there's other useful herbs. You're not hopeless. Research the Gerson Therapy, Dr. Young, Dr. Morse. Best wishes. Spread the knowledge. Big pharma doesn't want us healed!!!
Thank you VERY much!
Where would I find a doctor that would use this approach in St Louis, Mo? You encourage me, thank you!
@@johnoneill5452 probably a naturopath ... 3 years ago I was actually lucky enough to have a naturopath who was actually paid for by regular health insurance ... no expensive co-pays none of that stuff .
you probably don't even really need a doctor for this I would imagine what you really need is to get the ingredients for the protocol and start administering it to yourself and see what's working and see what doesn't.
So how are you doing now a year later
@@johnoneill5452 Try a natural path, or functional medicine doctor. These are natural remedies and the pharm. compaines and hospital go by a lot of protocols and many a doctors hands are tied to pharm. companies.
Re wormwood - are we needing Sweet Annie (Artemisia Annua) or Artemisia absinthium or vulgaris?
Sweet Annie
Does not work for my small fiber neuropathy and fatigue from primary sjogren...
AI'm interested in this , as I'm having lots of the symptoms. I doubt I'll get an answer but I do have a question - Are there any statitiscics on the numbers of people diagnosed with this syndrome pre introduction of the standard American Diet as compared to now .
I could only grasp two ingredients in this video krill oil and black currant oil. Is there a tablet or solution that contains all the ingredients doctor has mentioned in this video. Can someone pkease suggest where to buy this stuff.. Thank you doctor for this video.
Hi Musti, there should be captions that will help you understand what supplements he speaks of. You can find a table of these on our blog www.glutenfreeremedies.com/natural-remedies-for-sjogrens-syndrome/
All of these are for purchase on our ecommerce store.ifsmed.com
There is a lot of research and articles online that suggest there is an association with low levels of estrogen and Sjogren's so using IC3/DIM is conflicting with that information. Are there any medical professionals that can address this?
There are different types of estrogen. DIM helps increase the good.
They are totally different esters. DIM helps your body shed the esters responsible for breast and other BRACA gene cancers, so they are bad esters. Not the estradiol's needed to maintain your body after say hysterectomy or menopause.
@@Ev-vh3pfThank you for such clarifying information to a common confusion! 🙏
Does anyone know if this treatment protocol is available as a packaged product? I'd so much rather buy a prepackaged protocol then buying all these separately.
Tylko osobno lub po 2-3 razem😊
So, another post viral syndrome. You have shown a very interesting approach that might be applicable to other lingering viruses.
Właśnie, z obserwacji mojego ciała wynika, że chorobę spowodował wirus ospy. W Polsce szczepi się dzieci przeciw temu wirusowi i niestety ja też zostałam zaszczepiona.
Does this treatment cover neuro sjogrens?
Anyone tried the protocol? Any reviews or how you felt? Please share
Any information on Sjogren's brought on by breast implants?
i would like to know the same!
Hi A.H., there was a 2019 study that suggests this can be the case. journals.lww.com/annalsofsurgery/Citation/2019/01000/US_FDA_Breast_Implant_Postapproval_Studies_.7.aspx
Many women can experience some form of breast implant illness causing the body to launch and immune response. www.glutenfreeremedies.com/breast-implant-disease/
@@ifsmed thank you. now seeing the same. apparently women who had mentor silicone implants have 800x the risk of getting it. thats me.
Foreign objects in the body has been known to cause inflammation to "fight" the foreign object. I wonder if removal stabilizes the inflammation.
@@ChristinaJLHill still sick one year later after explant unfortunately. i think the implants started the cascade of disease though and i did the right thing removing them.
Useless information if I can't afford the products and if Medicare won't cover it. What's the actual out of pocket cost? Whats covered by insurance?
These are supplements idiot. No one cares if you can or can not afford it. He is sharing valuable knowlege for the vast that everyone else since has copied and shared it too. You can go deal with your head, Bye! 👋
Can Sjogren’s Disease cause sensitivity to over-heating? Can it be related to estrogen depletion caused by some cancer treatments?
Autonomic dysfunction/dysautonomia and small fiber neuropathy.
Where can I get help o have chronic symptoms including digestive disorders chronic constipation poor vision i need assistance to start on this treatment and should I be on a Gluten free diet ?
Hello, I was just diagnosed with it and was told to go on wholefoods diet, nothing with gluten take a good probiotic, digestive enzymes and couple of other stuff.. if you interested in knowing the full protocol I was given let me know will share with you
@@FD-iv6si yes please
@@FD-iv6si im interested as well!! Thank you 🥺
@@lesleyhouston22 hello. Firstly no sugar, oil or gluten allowed in the diet. Half an hour before breakfast take 1tsp herbal fiberblend in a glass water. 10 minutes before breakfast take a tbsp good apple cider vinegar in a glass water. Have breakfast, having eggs fry in an organic coconut oil. I have double cream plain yoghurt with live culture. No wheat cereals allowed, I also have a smoothie, handful of baby spinach, blueberry, blackberry and I add 4 tsp barley life extra. Then take 1 prepzymes,2 omega 3 fish oil,1 liver tonic and 2 probiotic with a glass water. No inbetween eating, want to have tea, no dairy allowed I have black tea with zylitol.
Half hour before lunch 1 TSP herbal fibre blend in glass water, 10 minutes before lunch tblsp Apple cider vinegar in water, have lunch, remember what ever you eating there must not be any sugar oil or gluten.. whole chicken, beef or must be grilled or fried in coconut oil and have lots of raw salad and steamed veg. After lunch have 1 prepzymes.
Supper, 10 minutes before have 1tbsp apple cider vinegar in glass water, have supper .. always remember no oil, sugar , gluten, wheat in what ever you having. After supper with water have 2 omega 3 fish oil, 1 liver tonic and 1 prepzymes. Have to be disciplined in times, like breakfast everyday at 8, at 12 lunch, at 5 supper. Don't change, give it like a month or more and see. Hope that helps, what you don't understand, ask me .
@@diannewhab 👍
I was diagnosed in 2020 took Ayuvedic treatment for 3 months felt better.
Now in 2023 after having cold for two months now having dry mouth i think the antibiotic i consumed for treating my cough cold is causing me dry mouth.
I think need to visit the ayurvedic doctor again.Also having shoulder pain.
@@goldensilver349 Dr Varma from Dombivli Kotakkal Ayurveda
Lekin puri tarah cure nahi hua thoda aram mila.
Abhi Functional medicine ya fir homeopathy try karne ka soch rahi hu
@@LongevityProsperity can you provide the ayurvedic doctor name and contact info who helped you with sjogren syndrome?
@@gauravk2582 yes
Where do I find these products?
You can find these on our ecommerce site at store.ifsmed.com/
@@ifsmed please, which one is recommended for sjogren syndrome?
@@diacuiri6844 you can take all of these items. Most of them are easily found online. However; the SalivaStim item is only sold on our ecommerce store at store.ifsmed.com
Why krill oil instead of fish oil?
What do you take for neuropathy caused by sjogrens?
Vitamin B1 helped with this for me.
Where do you buy all of this stuff? Where are you guys located
you can buy these on glutenfreeremedies.com we are located in San Diego, CA, but we ship across the US.
Appears to no longer be active link
@@echomitsvah5569 Hi Echo, www.glutenfreeremedies.com is still an active link. I just checked it and it is still working, perhaps you can try again?
Thank you.. Worked
@@ifsmed it's just a video, you have a phone number?
How much artemisinin is advised per day?
Spune în video la sfarsit
My Dr. wi jit diagnose me so I tesearched and stsrted taking a low dose of aspirin a day and it heloed tremendously. It has to do with the aspirin and resolvin and the aspirin repairs the tossues and glands. O was do relieved, I felt a bad thzt I thought I was dying. Six Dr.,s later, after multiple visits with them and no help. Only a couple routine blood tests which, after three weeks, started showing the hit my symptoms had on my body. I have lost faith in humanity and definitely in the Medical PRACTICE!!! Thank you Dr. fir your expertise and help. God Bless You. The aspirin helped me the most. I take really good supplements and they aren't helping much at all. I haven't been taking them long. The aspirin hurts my belly, thins blood, can cause anemia and hurt kidneys and liver. I need a diagnosis. I need a homeopathic Dr.
I didn't know this is a death sentence
Lupus, kidney transplant, rules out many supplements for me.
Which supplwments? I have LES too
I hear naturopaths talking about methylcobalamin, but it does nothing for me.
Then what?
Sogens can go after all internal organs as well - its gone after my lungs: ILD/IPF after NP missed Pneumonia!!!
Mine isn't genetic. No autoimmune diseases have ever been in my family and especially Sjorgens. Wouldn't I have to be the "lucky" one? Mine was brought on my mold and a horrible diet and lifestyle that fed the mold and high and chronic stress for years & years. Ironically I never had a single symptom of sjorgens until this last year and at that the only symptom was a feeling the air was dry. I was holding my own until I made the horrific mistake of allowing a ct scan on my neck and although I wasn't told by the Dr. or the radiologist, my head. Within 20 hours of that scan my WBC skyrocketed from 7.5 to 13.68! Four days later I had lost my tears, saliva, sweat and sebum, and even earwax production. I still had all these until the ct scan. It gets worse each day and I don't understand how a human body can survive this dry. I can't eat and have lost so much weight I look skeletal. I am in misery and beg God to bring me home. This isn't life. This is an excruciatingly cruel existence. I hate living now and just last year I was still loving life. 😢😢😢 I wish someone could tell me why, of all diseases out there, I had to get the worst, most horrific and cruel one.
Maybe research the fruitarian lifestyle.. don’t know, just a suggestion.
What a coincidence I had symptoms right after a sinus cat scan.
I am in my third week of taking low dose naltrexone and have had wonderful results already. Try it. It basically put your body back to normal.
Catherine Nicole Howland it can come from ur ancestors
Catherine Nicole Howland Hi, I just had a question how did the CT scan give you Sjögren syndrome were you given iodine contrast dye and is it possible for this disease to be drug induced?
Is it wormwood sweet wormwood ? Scientific second name? Thank you for this info.
It is a type of Artemesia - Sweet Wormwood
Recently I have same prob. I am from India bhilai yet not connected Drs ples adv.
How can i make an appt
Hi Saudia, you can find our clinic details for appointments at www.ifsmed.com
where is the product with all this in it we don't want to buy another 20 products that probably won't work i'm sure many of us can relate buying stuff in the past with false claims or stuff that did not work it be nice to have all that money back we don't want to spend over 100 dollars on supplements and find they don't work
I am only going to buy a cheap sea buckthorn supplement because it helps to calm down the auto immune system which will avoid clothing of the glands and help with moisture.
Rheumatoid arthritis is more common. 0:20
Oh my gosh! The wormwood has worked for me.. Plus a mixture with some other paradise killing herbs like, cloves... I am finally sweating! It works!!!
Maude Stephens can you explain how you prepare it and where do you buy it
Best botanicals has the most excellent bulk herbs. You’ll save a bundle. Top notch quality
Could you explain to some of these people here how you prepared these for their Sjogren's and can you please tell us how you are doing now compared to before
Also I am confused by what you mean when you say Paradise killing herbs ... do you mean Paradise healing herbs ?
Is that a name of a company ?
@@gardensofthegods I think she meant “parasite” killing herbs.
I recently lost 2 children two weeks apart during Covid-19. Since those events, I have all the symptoms of Sjogrens. Can stress trigger Sjogrens? This is the last thing I needed right now. My dry mouth seems to be worse at bedtime. Is that typical?
With stress all sorts happen but another trigger is H Pylori go get a stool test to rule out that and then ask for an anti body test for sjorgens syndrome then you’ll know if you have it or not. I have long covid and have been through this and found I had H Pylori this virus is racking lives for sure x
@@fionaandrews991 very weird that you mention h-pylori because I had that for decades ... when i was only 18 i had a bleeding ulcer and lost so much weight because i couldn't really eat that i looked like something out of a prison camp .
The problem with those tests is the one where you breathe into the little cardboard thing and they send it out is not very effective .
Yes most doctors will not tell a patient how h-pylori can ruin their health .
Personally I did not get Sjogren's from it well let me put it this way if i did i must have had it only in a mild form but i did back in my college days have both Epstein-Barr and also Lyme disease ... i was not well for a very long time .
I was in constant pain .
I healed a lot of my problems through mostly ayurvedic medicinal herbs that i get at my local Indian Grocers .
Westminster , i am really so sad for you and as a parent of a grown man could only just begin to imagine your deep pain and sorrow from such a heavy loss .
Prayers and blessings for you ; Light and Healing at all levels are my wishes for you .
I'm so sorry for everything that is happening .
Anytime you want to talk i am here ... I don't know if you were in the UK ... I am in Dallas Texas about 6 hours behind time zone there .
I am sooo very sorry for your loss. Yes, stress is toxic and can definitely cause Sjogren’s which is a toxicity syndrome. You may want to also check for environmental factors such as mold and heavy Metals.
@@gardensofthegods thank you for your kind thoughts and prayers xo
What if you have also got fatty liver?
Căutați care remedii au contraindicații pentru ficat gras. Cred ca artemisinina este contraindicata.
Stop eating carbs and sugar . Go carnivore it will be the best thing you ever do ..
Dr, do you see patients virtually?
Hi Denise, we do not see patients virtually. If you are in Southern California, we are based in San Diego.
Hello Dr, i live in Southern California only. How can I have an appointment? I already received salistim from your office.
Has this therapy helped anyone?
No. I have Sjogren for 28 years and tried everything. Have everything that this illness brings just waiting for lymphoma..all the best
How do I get the meds
i am a certified master herbalist and have these herbs. IG: alkalineluxe
Any help for sjogrens ILD?
I want this cough to stop! Any suggestions?
I have it to
certified master herbalist and i have these herbs !IG: alkalineluxe
Did the cough ever go away? And did u have this syndrome? I have the same cough rn.
@@Clayton9669 yes! Finely, fendbenzole works!
@@Clayton9669 I'm takeing the artemisia too
What bout the negative SSA and SSB but positive early Sjogren's profile paired with all the Sjogren symptoms
I same has happened for my sister negative for SSA ans SSB But has all the classic symptoms dry mouth and eyes
Sero negative sjogren ... its very difficult to find it from blood tests... lip biopsy can may help ... but as far as no medicine is there , I don’t find it relevant to find it or not ... sorry if my words r negative bcs I have been suffering from this cursed disease for years ... more than dryness lots of other psychological neurological and other issues r also associated with this damn disease
@@vampireforever6937 mines not seronegative. It showed in early sjogrens panel and salivary scintography
I have no heat control and perspire only from head and neck at the same time as shedding jumpers etc am applying microvave heated pads to my legs which are cold and painul !!! Intolerant to dairy and ALL foods have an unpleasant reaction in my mouth !!! Nothing seems to help ,using cod liver oil and multi vitamins .to supplinent almost non existent diet ,
Is there anyone who followed this protocol and cured??
Sjogren's Syndrome is an Autoimmune (AI) Disease. That means you presently are almost devoid of Endorphin Hormones which are the backbone to your immune system. Basically, your Immune System is severely compromised. This leaves you at big risk for getting more serious disorders in the future.
Recommend giving LDN therapy a try. See my post above. LDN is the ONLY way to get your Endorphin production/Immune System back. No other medication can do this -- Only LDN.
Been on LDN for over 10 years for my own AI disorder. I probably would not be still above ground if it were not for LDN.
I'm allergic to shell fish (krill oil); would calamari oil or other fish oil be ok.
That's a good question please try to ask him again for those who are in the same situation as you .
You are much more likely to get an answer if you look to where he has given a response and click on to his name and then he is sure to see your question
I could not take fish oil either the regular fish oil pills. But I could take salmon oil. Which is very high in omega-3‘s and sixes. So salmon oil is very very good. In my digestive system I could handle that. Take it at night time before you go to bed. I don’t know if you’re allergic to it or is it just upset your stomach so badly that you can’t handle it through the daytime. Everybody I talk to said they had to take it at night time. But salmon oil is to me good for me because it doesn’t. Make me sick and I can handle it
A very high quality cod liver oil can be used…
I dont know english alot😢.. i want any on write what he said ..i want translate..pleas try to write all even what he said about dryness and lemphoma''and the wight?🌺 🌺
the video has "cc" button which allows you to turn on the subttiles. Click it!
@@arthandsmassage English please
@@LilyRoseChannel01 i think theres an app you can translate this with. You screenshot and import it and it translates everything. I guess the advices are ok, like apples improve saliva production and cucumbers applied on eyes relieves the tiredeness etc.
@@diannewhab Thanks Dianne, but I was addressing Gaby Brown. The video is already in English, so it's not a problem. We can benefit from each other's replies so I was asking her for her comment in English.
@@arthandsmassage todo eso junto.o por separado
What was the broccoli vitman he said?
IC3 Indole 3 carbinol
@@ifsmed do you know how long one must take the artismin for to help w lupus?
@@ifsmed thank you💕
I would like to about Livestem
Interesting you said Cmv virus. My second child was born with cmv and only survived 3 months. Iv had 2 other children after this . Now i have been diagnosed with Sjodens
Wow , bless you , i'm really sorry for what you have gone through ... very sorry about the loss of your baby .
Please watch this video and listen to what he says about the protocol because he really has worked hard
I have a few other suggestions for him myself that i hope he will add to the list of healers .
Please look into shatavari powder which you can by at almost any Indian Grocers cheaply .
They have used it for thousands of years and Ayurvedic medicine and it is said to keep us young and juicy ... you supposed to take it with us were gone. Which is very good for many things as it is an adaptogen and also considered a nootropic ... they both are said to balance the hormones for men and women alike but you will see people here on the tube giving wrong information .
I mix them with water and drink them and then take about a half a teaspoon of ghee ... as they are supposed to be taken with ghee .
I have also asked the doctor to consider putting ghee on his list because it is said to nervous all of the organs joints muscles and to keep us lubricated .
good quality gay is supposed to be yellow not a whitish color .
and you want to try taking Moringa powder mixed with water but if you can access Moringa oil then you will really be helping yourself towards wellness and being pain free .
If you live in America there is a company in Plant City Florida that makes their own Moringa oil and they're here on the tube , i just can't recall their name .
Please also scroll down and see the comment by Maud Stevens , i think it will help you .
@@gardensofthegods hi. Do you have this illness too? For how long? How are you doing now?
Apple cider vinegar,,, turmeric
Aple vinager turmeric..what's isthat for?
How u prepare those remedies?.how u do that?
@@everardofields616 see dear take golden milk do some relaxing yoga poses like savasana ...take sun charged water ....for sun charged water take unpolished earthen pot fill it with water and place it under the sun in terrace and take it back in the evening and drink that water ...avoid allergic foods ...take the help of holistic approach release stress by getting close to nature ...
Eat apple per day if you dont want to take apple cider vinegar ...
Take fruits everday.... To increase the amount of antioxidants in your body....
@@everardofields616 take care of yourself take herbs like aswagandha if you are not allergic to eat and eat turmeric root per day
@@everardofields616 if you dont have turmeric root then take dry turmeric from market and keep it in the water if it swells completely and ready to eat ,, then eat it ....and take the help of fasting then in that period eat only fruits ....it will help you ...
You can also prepare food diary ok
I'm also suffering from sjogren' s syndrome 😒😒
I'm from India
Have had all the symptoms over the past 25 yrs but my blood work doesn’t show that I have it. I interact with the Sjogrens Foundation and they said about 30% of Sjogrens people’s blood work doesn’t reveal anything. Anybody out there experiencing this?
I also have all the symptoms and my bloodworm comes out negative. My doctor has still given me the diagnosis based upon my symptoms.
Same with me. Tests don't reveal.
Common for all autoimmune. Seronegative .
Yes, I was seronegative so had a lip biopsy and that was positive.
Diagnosis is based on a point system. Even is your rest is negative you can still be diagnosed based on other factors
Can you share a few references who are actually using these products with success ?
Hi Mehmet, I don't have any specific references for you, but we do have quite a few people who continually repurchase this product because they have found relief.
@@ifsmed Why is Artemisinin no longer available along with I3C/DIM ? By the way I ordered the products for Dryness and will give it a try. Will post my feedback.
@@matlihan how was it?
@@diannewhab did not work.
@@matlihan thank you!
Thank you hon! This helps me super.
I have stess and depression for 30 years but nothing working i have all the separation of sjogrens syndrome not all Dr's now how to treat this trying to get a dr who does
@@julieling1212 Julie it sounds like this doctor has worked really hard to put together a protocol for people who have Sjogren's .
Have you tried it and if so please tell us how you are feeling and what is working for you and what you feel isn't working for you
Silly Jilly , please ... 3 years ago you said this helps me super and so we're wondering if you've tried the protocol for Sjogren's and what you tell people here what is working for you and what isn't .
There are many people who have this illness and need feedback from others who have already tried the protocol
Folks, I have Sj. This channel / person provides zero documented evidence of info. No responses to crucial questions asked by all of you. Only time I see a response is WHEN they want you to buy their products. My heart aches💔for all here what we are going through. I just discovered a healing frequency for Sj. Just started it, ( it’s not mine). Hopeful. If anyone wants the info on it., I will post. Bless you all
Yes please 🙏
@@shireesmith2933 are you sincere(?), and a real person
What is the frequency
I have friend that had a non-operable brain tumor. She started frequency therapy. Along with some natural supps. The tumor is now almost gone. So how is freq therapy doing on your SJ ? My wife has SJ for over 30 years.
Yes this channel is total BS. I'm outta here.
Im 32years old im suffering with primary sjogren syndrom im taking hcq 200mg .but no use so pls suggested me best medicine
Mam use herbs
And natural medicines
Apple cider vinegar
Indian gooseberry with warm water
Aswagandha
Giloy tablets
Take Turmeric powder and black pepper together mix it well in warm water and consume this...
Priya Srivastava hi
Priya Srivastava m in usa and looking for treatment of this syndrome through aayurveda. Are you a aayurveda doctor?
I just got diagnosed this week with it. So it's all completely new to me. One thing I would like to know is was I born with this or did I get this disease by something I done or was around? I have so many questions but that's my first one. Second question is my eyes are in agony what helps this the most with helping the eyes? I just started Plaquaneal this week. My otc lubricating drops are NOT helping Any at all!
Kelly Sykes Epstein Barr virus aka Mono “the kissing disease”.
Kelly, Systane has 2 new OTC Eye Drops that contain LIPIDS (oil) so they help to replace the missing oily layer of tears that slow the evaporation of the aqueous layer beneath. Systane COMPLETE - has support for both layers of tears, and Systane BALANCE has primarily the Oily Tear support. Personally, I found the BALANCE to be the most helpful. The night time ointments for Dry Eye, almost 100%, contain a mixture of Mineral Oil & Petrolatum (Vaseline). These obviously are the strongest at slowing evaporation, but do cause blurred vision for at least a little while after use. On the worst days, I have find myself using these ointments >4 times per day - but NOT before driving, or having 10-15 minutes before "sharp" vision is needed. Amy C. Pharm. D.
Did you happen to have HPV VAX?
@@dee4379 Is there any connection between HPV vax and Sjøgrens S . I did get the Hpv vac 3 years ago .
@@miksipoksi hey. I know there is. Im not sure how many are now addmiting it. But its known that gardasil injured tons and killed kids as well. Its known for causing fainting and auto immunity. Research a bit i wish I put it together sooner. They're still paying out on like 44 million dollars for gardasil injury. Some say owell it prevents cancer. But cancer can het into remission and yes you're compromised but some are okay feeling. Auto immune is basically cancer of your immune system in a way. People don't look at auto immune illnesses that bad unless they live it. Its a whole picture. I test positive now on CDC basic western blot for lyme. I kinda think the HPV kicked it all in gear. And due to it all my system is a mess. Also my spine and joints are. Diet and movement and positivity can help and high d3 ommega 3 and b12 magnesium a bunch. But its still awful. How old are you? Ive had this now since 25 or 26 10 years!