*This brought actual tears to my eyes!!* YES YES YES!! Five yrs ago I fell, breaking my heel in 6 places. While the surgeon said it healed perfectly, the pain wouldn’t go away. He didn’t believe me. It was because I was "babying the injury"… it’s "all in my head". Kept saying to take Tylenol, walk more, etc. NO! Water hurts it! Air hurts it! Don’t touch it! It burns! It’s freezing! - Take an extra Tylenol. He finally got tired of me because the x-rays showed it was "fine" & there was nothing else that could be done… it was an "imaginary pain" - so to basically placate (& get rid of) me, he sent me to a Pain Management doc… who THANKFULLY was aware of CRPS. He sent me to have bone scans & various (horribly painful) nerve testing done and I was finally diagnosed by someone who took the time to listen & BELIEVED ME!! I had never heard of CRPS but now I know about it all to well. I’m still in a wheelchair as I can’t use my left foot/leg *BUT* ….. my socks last longer (can only wear 1 on my right foot), I don’t have to shave my left leg (barely grows any hair), get to park closer to store entrances & most of all, *I HAVE A DOCTOR WHO BELIEVES ME!!!* I am a CRPS WARRIOR! 🧡🔥🧡 Our color is orange & our symbol is the flame~
I love how they say take several doses of Tylenol, take 800 mg of ibuprofen..meanwhile your liver gets destroyed by this when it’s better to actually use real (controlled) extended release opioids instead. It’s trading one problem for another and we will see how badly our bodies will suffer from the consequences of refusing to use opioids at all now for pain. They’ve actually brainwashed some doctors to not believe pain exists anymore
I relate to you so much. I was 11 now I'm 34 and still have it. I have only been able to listen to small bits of this trial as it's too distressing and brings back so many memories. The relief you feel Is unexplainable when you get a Dr who believes you. This Dr is unbelievable I wish I could have been seen by him when I was 11 instead of going to from hospital to hospital trying to get a diagnosis only to be laughed at and not believed.
My wife has CRPS. She is now 33 years into the disease. The only therapy that has worked is Ketamine infusion. Ketamine has been the state of the art treatment for the past 10 years. Hopkins should have known this. I am a physician. If I wasn't, my wife never would have gotten the care she needed.
By the way, the hospital did give her ketamine, just not at the coma inducing amounts that the mother demanded that had a significant odd of serious harm or death
@@Agtsmirnoff I have CRPS and I received a five-day Ketamine infusion. My doctor told me that he has been using using ketamine for "more than twenty years."
In L.A. I kept bring refered to the east west type of doctor that believes mindfulness is the cure for all pain. Don't punish the pain rally...it's leaving so many people needing to live in pain. I refuse to become disabled so if I can't take kratom there is no sense in living since my pain usually is an 8 and I can manage it to a 5 all because kratom and why I've been able to hold a job.
@@H37P5kY57💯💯💯 Don't punish pain gives me hope things will change. They're forcing all of us to suffer so they feel better... About their stupid policies. We deserve a quality of life that's acceptable to US!!
I have watched several of Dr. Pradeep Chopra's talks and lectures on TH-cam. Glad to see he was a treating doctor for this young patient. He is highly knowledgable with CRPS, Ehler-Danlos, Connective Tissue Disorders, POTS, Mast Cell Activation, Dysautonomia, LDN for pain, Pain Management, Pediatric Pain, and more. He contributes his time and knowledge with patient organizations, also. He is humble, and is a role model for compassionate cate, diagnosis investigation, continual education, and sharing information/educating.
I would love to have him as my doctor but all I get referred to are east west doctors at UCLA and told mindfulness cures everything. Apparently mindfulness heals bacteria infections, prevents pregnancies, and cancer patients. UCLA does have some brilliant doctors but they tell me they are restricted to giving any pharmaceutical unless it's covid vaxx.
Refreshing to hear such a humble and knowledgeable doctor - usually Drs are so arrogant and rude, having no time to even listen to what the symptoms are before making a decision. It may be cos they're really busy and have lots of patients to see BUT it's not helpful when they're arrogant, rude and don't listen
This doctor sounds so empathetic and understanding of his patients' pain.. It must be difficult for him as well at times, watching people in such horrific distress and often not being able to help them.
Excellent explanation by Dr. Chopra. He is a world-renowned & well-respected thought leader in CRPS. The diagnostic criteria he is referring to is called the Budapest Criteria (Harden, 2004). I had almost all of the signs/symptoms/criteria when I was Dx'd with CRPS/RSD in 2014 after a distal fibula fracture & surgery. Burning pain, freezing pain 2 yrs later w/ distinct temperature difference, swelling, discoloration, mottled skin, lesions, muscle spasms, and sweating (limb covered in sweat even when rest of body is normal) 😢affected my entire lower left leg, foot and ankle. I can't imagine what Maya went through having full body CRPS and being taken away from her parents as a young child. This poor girl! 💔😢❤
Looks like they hired the best of the best of pediatric chronic pain specialists. This family should get millions. Nothing will bring back what they lost, but the hospital should pay for all the harm they caused. I have studied and treated CRPS for many years and this case is beyond a travesty. Justice for Maya and her family
My son was diagnosed with CRPS 4 years ago at the age of 18 after a work accident it’s destroyed his life, I became his carer. Here in Australia I found it’s not very known here, not may doctors have even heard of it let alone know how to treat it. He could barely walk up stairs, was on a lot of meds, had numerous procedures and operations all to be told, there’s nothing else we can do, just take pain meds for the rest of your life. He became very depressed and overweight, lost most of his friends. He even asked me to cut his foot off at one stage. Now he still can’t wear shoes, walks with a limp and still depressed. As his mum I cry ever day because of how much pain he is in EVERY day.
Can you get him a dr that uses ketamine? It’s a miracle drug. Maybe start a go fund me to get him to Germany or Mexico where they use it or to see this dr.
I wish you could find a doc who could offer help for your son. As someone who has chronic pain, (not the kind your son has), pain medications are pretty much of no use. I was able to get a procedure called RFTC (radio frequency thermo-coagulation). It has helped me tremendously.
Thank you doctor for explaining the pain. Nothing totally alleviates the pain. One is reminded daily that they have CRPS. At its worse the fetal position is the norm. My initial diagnosis was made by a Army surgeon who saw injuries from war.
So glad you were diagnosed & yes I bet that dr has seen it all too often, may I ask if Ketamine was used to help you ? I have chronic severe intractable pain treated with opiates, just recently I was given ketamine for the first time by paramedics in an ambulance as well as fentanyl & wow it was so effective I actually slept in the emergency room ! My pain has never subsided so quickly, it was amazing ! But very difficult to access here in NZ
@@nikkimclay5474 nothing helped because they thought I was faking my pain levels. I then was fortunate to have a doctor see the color changes himself…right before his own eyes. You can’t fake CRPS. I’d never heard of it prior to injury.. I’ve suffered daily since 2007. Some days better than others, No ketamine therapy. I was robbed of proper treatment because they thought I was faking. I’d gladly stop the pain if I was faking it. I’m 70 now so God will be there for me.
I fell, broke both wrists and left forearm in 2021 and this doctor seems to be the only person who understands the pain and what CRPS truly feels like. I need to see him as no one else in the medical field seems to know about how painful and debilitating this is. God bless all of you out there who are suffering from this. I can’t keep going on like this 😢
That sounds really bad! Be blessed! I hope you find a doc and therapie you need - don ´t give up! I was at the point to suicide but Jesus helped me. I still have difficulties and really bad days but now I know that better days will follow. I promis to pray for you that night. ❤
A mother who witnessed her child in sever pain and not being able to comfort her child and be with the child - I could only imagine her anguish. For anyone who said that the mother was unstable - how could any mother be stable when she knew her child was in such pain? Maybe Ruby Frank!
I was diagnosed with CRPS. The State of Washington did a great disservice to me and fought the diagnosis. Injured 2007 and still suffering. Nobody fakes a disease this long.
@@kelseykaye7269many times it is triggered by an injury, I developed chronic severe intractable pain after a surgery, I don’t have CRPS but the same nerve/ brain pathways caused severe pain in me after this organ was cut.
@@kelseykaye7269mine developed from an operation that went wrong when I was 11. I'm 34 now and still have it. For years I was laughed before I was diagnosed. It's awful. No opioids work. I'm on ketamime morphine 2 types of palexia which is a strong opioid, Fentanyl and other pain meds, sleeping tabs etc etc and nothing works. It's a very debilitating diseases and every isolating as no one understands it.
What this poor girl went through is horrible. Then to be kept from her family is just rotten mean bullshite. I hope this family get every thing they are sued for. And then some. I wish love and luck little lady.💕
I only wish it was true, that adults are taken seriously when presenting with CRPS. It’s been years since my diagnosis, my pain is still not controlled. One day without pain would be wonderful! Mine is bilateral, so you can’t compare one limb to the other for symptoms (temperature,color changes,etc.) Mine was post surgery pain that never went away, instead it increased. I have better days but never pain free.
I wish i could've seen this Dr. He has an awesome way of explaining this diagnosis. At 52 I've still not found a doctor that agrees with the issue. Oh Mr. Please stop with the paper shuffle....😠
Our son was in the 6th grade when he was pushed off the top of a slide. It took quite awhile for the Drs to diagnose what was wrong. He was diagnosed with Cervical RSD another name for this. He was in bad shape for three years. Because he was a child he was not given any pain meds except Ibuprofen. He eventually recovered which we are all grateful for. Not everyone does.
This man is so cool and well informed! Professor/lecturer material right there! He explains so well, he is entertaining, engaging, has a sense of humor all while relaying this difficult information! He explained the condition so well
I had RSD/CRPS… it’s so unbelievably painful!! Narcotics don’t touch it, something I had to learn. Begging for HELP, medics paint you as a drug seeker. It is unbelievable, unimaginable pain!! I still cry when I describe it!!
Thank you for a sensible explanation of the extreme pain of CRPS and drawing everyone’s attention the McGill Pain Chart. My husband has had CRPS for almost 3 decades since a crush injury of a lower limb. He was diagnosed very early on because the consultant had seen it before but despite frequent physiotherapy, Guanethidine blocks and surgical spinal nerve bocks, nothing has diminished his pain, weakness, exhaustion and sense of loss. Before this he was a very hard worker and was actively involved with sports and play activities with our young children. He lost out on all of these activities.
CRPS is no joke. I got it in 2016 after a botched surgery and it’s the absolute most painful 8 years of my life. I had to get bi-lateral spinal lumbar synthetic injections every week. It tore my family apart. My husband and I just got divorced as he was tired of waiting for me to get healthy. I have weekly and injections it saves my feet from being amputated. At the worst I have 50 open lesions, massive bruises all over my body for NO reason. Quite frankly the ER kept asking me if I’m being abused by my husband. I’m sad I lost my soulmate, my 27 years career, I’ve lost everything! I’m so happy she finally got Justice! Please listen to anyone having pain and complaining. It’s sucks! Pregabalin doesn’t work BTW! At this point just sedate me it’s so painful. Thanks for reading! I’m so happy she was patient and WON!
I'm sorry about your situation but this case will hopefully bring it to the forefront and more will be done to find treatments and maybe even a cure!! I'm glad you shared your experience
I wonder. Back in 2018, six months after my son was born, my gallbladder failed, and it had to be removed by emergency. I was sent home, and 24 hours later, I was back at ER because I couldn't breathe, and I had a horrible pain under my rib, right side. They kept me at ICU for 5 days, and the diagnose was liver hemorraghe. Since then, here and there I still feel the pain, in less dregree but it is there. I have mentioned to my PCP and they have run tests, but everything shows fine. It could be a nerve got damaged or else, and it really takes me breath away all of the sudden, I have to lean to left side slowly while trying to breathe carefully. Sometimes, the pain can last for a couple of days or a few minutes. I don't want to take Tylenol anymore, so now I am applying cataplasm (clay or soil mixed with water to make a paste). Desperation calls for these home remedies.
I have CRPS. It started after a knee injury and surgery. That was over 20 years ago. I see a specialist now, who is through the UCLA Medical network. He has a CRPS clinic in LA. But for years before I found him I was treated like a whiny baby and hypochondriac. I actually knew was this disorder was because of what I do for a living. I knew people didn’t think it was real. But that still didn’t prepare me for how horrible I was treated. Like this doctor said, you can see many of the symptoms. My leg was swollen, it would turn dark blue and purple, almost to black. All the hair fell out. And my leg and foot were shiny and cold. But I was exaggerating. The pain isn’t just a high level, the type of pain is indescribable. The best way I found to describe my pain is deep frostbite. It’s cold and hot pain at the same time. It spread from my leg to the other, my groin, bladder, internal organs, my back, and then my arms. My left is worse than my right and I have vision problems and migraines also. I no longer take opiates because my pain tolerance level is so crazy high after 20 years that I have no real idea how bad it really is. I have been suicidal twice, which is low for people like me. Our support groups announce deaths literally each week. We spend our days simply trying to keep our heads above water. I have such admiration for children who have this, as it forever changes your life. I have tried ketamine infusions by IV and it was miraculous. But the insurance has denied me any further. Because ketamine is dangerous and nobody thinks CRPS is as crushing as it is. I am so tired of people telling me I should be glad I’m not terminal with cancer. I laugh and tell them at least they allow cancer patients to have suitable pain management. They don’t give us that and that’s why we are dying.
Every doctor I've had thats tried to fight my CRPS diagnosis has been some doctor who thinks they know better than all of medicine. I've literally had a doctor say she didn't believe that the pain described with CRPS was accurate.
This man in my opinion this man was telling the jury the type of pain that MAYA was in. He did this without mentioning her name at all. I believe that he wanted TRUTH and justice for Maya if found warranted. The world needs more People like this DOCTOR.
Please held accountable everyone involved in hurting the kowalski family and many other families, hospital John Hopkins and this evil twisted “Dr” Sally Smith. All of them belong in prison
When i was 13 I was caught in a house fire. I had 3rd degree burns over 70 percent of my body and the pain was unbearable. 15 years later i broke my foot and developed R S D which is no called C.R.P.S like i said the pain from the burns unreal but here's the big difference it got better. After a couple months and a lot of surgeries the pain started to go away but with C.R.P.S the pain is always there 24/7. I went through the ketamine coma treatment like this girl and it helped a lot but i still deal with pain every day but ive learned to live with it. If not for my wife fighting for me just like this mother did I most likely would have died years ago from this disease. Maya mother being a RN nurse new if her daughter didn't get the right treatment she would most likely lose her daughter. Because she was confrontational the hospital labled her with a mental illness and took her daughter. What they did to this family is criminal and someone needs to go to prison for it.
This doctor is amazing 👏 well said it's true any stress what's so ever can cause a massive flare up of this desease and this family have truely suffered , thank you doctor for being honest and straight to the point , truth will always prevail , for mayas family ❤ yous did your wife and mother proud she certainly guided this court case for justice ❤❤❤
When this case is over and Mayer and her family have won. Those so called Doctors and social workers should be arrested and charged with abuse. Tried and put in prison.
This Dr. is an amazingly intelligent human, with compassion rarely seen in medicine in the United States anymore. He actually gives me hope for humanity. ☮️🌠🎶✨🌜🎠☯️
This is a lovely man who is clearly devoted to his patients. I have CRPS. Luckily I have a wonderful pain management Dr. And team that helps me lead a somewhat normal life. But I can tell that this man is the real deal as well. Thank goodness for doctors like this.
Dr. Chopra is such a good doctor. He explained the symptoms and how it affects the patient so well. I have crps and it is like having a monster breathing down your neck. I was lucky to find an md who listens to me but did have to through the mill with others who did not.
This Dr is fantastic! I found one fantastic Dr, my cardiologist. He saved my life. Multiple ER and hospital stays said I was just having anxiety. I followed up with a cardiologist under the long COVID clinic. He looked at all my stuff and said something isn't right here. He ordered a cardiac function MRI and told me I am not crazy and don't ever say that again. That MRI showed that I had 2 congenital heart defects that if I didn't have open heart surgery quickly I would have complete heart failure within 6 months. He saved my life after multiple hospitals dismissed me as having bad anxiety. Now I am having neuro complications from the surgery. My neurologist is no good and I cry all the time. Trying to find a new neuro but they are all scheduled out until March/April. The medical field is a disaster but there are bright spots. My Cardiologist is a hero and what Dr's should be.
Yes a Dr. Can be Sued for not properly treating pain patients. There are actually attorneys that their practice is all they do. Things have changed since 2016 and the outlines and guidelines of the CDC changed in 2022 where they admitted with they did to Pain patients and doctors following their guidelines were absolutely wrong.
The CDC Finally changed their unacceptable, ignorant and horrific stance on pain and pain management?! I become so overwhelmed with it all (plus what we've all been dealing with for 3 plus years) that I stopped closely following and have just been trying to survive.
This poor family went through SO MUCH! Praying they win this case! Hospitals need to be held liable for their actions. Just because somebody else tells a doctor to do something doesn't absolve them of responsibility for their actions!
It’s Mayas suffering of horrific pain exacerbated by the idiots who didn’t believe her, that is the worst part, not only physical abuse but emotional abuse sent this child into constant levels of pain with NO mother to at least comfort her. My sister witnessing pain in me as an adult begged the doctors to let me die, so imagine how desperate Beaata was watching her child suffer ? She sacrificed her life to save Maya. Over the years doctors have also tortured me by abruptly stopping pain medication, at least do no harm ??
@@nikkimclay5474My neurologist recently increased my meds for full body tremors. When I went to refill I had to call the office because they didn't correct the dosage on the script. My neurologist told me she never raised my meds. I always have someone with me and they write everything down for me so I don't forget. She absolutely raised my dosage. She ended up putting me through withdrawals because the med is very serious and must be titrated up and down slowly. Currently trying to find another neurologist. I had open heart surgery recently so going through a withdrawal was dangerous
@@nikkimclay5474💯💯💯💯 You nailed it! Waiting for the compassion to catch up to our suffering. For the love of humanity, just prescribe enough to give a quality of life that's acceptable to the PATIENT. The prohibition is killing us lawful patients who are being tortured... So you feel better in your mind. Suffering forever, so you feel better about your stupid policies. At least someone got relief. Might I propose.. the wrong person. End the controlled substances act End the drug war Stop punishing Doctors and Patients in pain Advocacy : Doctors and Patients of courage The Doctor Patient Forum God bless, gentle hugs and prayers for compassionate care that works for you! 💜💙💜🦋☺️🙏🏻🦋💜💙💜
One thing that stands out to me IF all the staff at J.H totally and utterly believed the mother was hurting Maya by M .B .P how come J.H was charging the Kowalski family insurance company all the way through this time for her being treated for CRPS???
Cant believes living in this world and never heard of this CRPS if not for Maya's case, now that will forced the doctors to open there eyes more .Justice to Maya ,her late Mum and the rest of her family .God bless you ...
Maybe the "un-informed" talking heads with ZERO medical expertise from COURT TV @marieperiera reporting on this subject from should listen to a doctor that specializes in pain medicine and listen to this.
I love how compassionate this do to is especially when he said he won't send his patients to for research studies, saying they are already in so much pain & already suffering so much. I wish all doctors are like him because from my experience as someone suffering from chronic pain, most doctors who doesn't specialize in pain tend to question their patients if it's only in our heads just because we tend to look normal & presentable when we meet them. To doubt us is even more painful than what we battle every single day of our lives.
This is very interesting to me. When I took neuroscience more than twenty years ago, the general thought was that the glial cells had no ability to process anything. In my own reading, I came across a couple sentences in a book or journal article that indicated that they may do some processing. When I asked my prof about that, he clearly didn't give any credence to such an idea.
❤ this testimony. Compassionate, provides for dignity and BELIEVES patients/family who have been told they are crazy/ enabling. Such an emotional and psychological safety net while treating the pain patients as human, deserving of sympathy, and benevolence. These physicians who believed Maya, treated her with consideration for her humanity, and reassured her that what she is experiencing is so touching. It is beyond the pale how JHACH staff and physicians, Dr. Sally Smith, CPS, Ms. Nies (harsh lady in pink) treated Maya and her family. I wonder if they should have to provide sensitivity training after this lawsuit, win or lose.
Subjective pain is rarely taken seriously in the medical field, as it's something that can't really be measured. And most times they think you are exaggerating it, or making it up, especially thinking that you're drug seeking.
Exactly, and it's heartbreaking! As someone in public health who is interested in social disparities of health, the amount of scientific literature which shows that pain is taken more seriously in some groups than others in clinical settings. Women are more likely to have their pain dismissed or minimized by physicians than men in ER settings, and this results in worse outcomes for women than men.
Maybe if they fired these people….it’s apparent to me, who has been to many Drs. before anyone believed me, they were “using hurt their egos” to show they weren’t to be questioned…. That mother…the entire family has suffered way too much!! The social worker STILL thought it was funny at times when her deposition was taken! I’m just sick by all of this pain that was inflicted!
So true👍 most Drs are arrogant and don't listen to patients. This doctors brilliant, so humble and so knowledgeable. The social worker behaviour on that video was shameful, quite what she had to laugh and smile about only that narcissist would know😡
allodynia was missed from the symptom/ diagnostic list- important for the trail as the staff kept touching her, trying to prove she was faking-.our magill pain scale reading has gone up 4 points since i last looked,
Oh I can’t imagine what Maya went through, especially being a young child separated from her parents, family, etc. Every medical personnel that she dealt with at that hospital is liable.
This is to Maya; Honey, your Mother is an Angel. She made the most difficult choice to give you life and the treatment you needed and look at the number of other people she helps in the process! As a human she wasn’t being heard which is horrible.. but now no one can ignore her! Her love is strong and she is STILL with you. I send nothing but love and compassion and hope that you know there are so many others sending you and your family healing and love. ❤
This is such a beautiful, heartfelt comment. I doubt sweet Maya will be reading these comments but I’d love to give her a hug. She went through pure hell and this hospital got in a pissing contest with this family because they didn’t believe in the treatments the family had discovered through much trials and tribulations
I pray this doctor brings awareness to this painful disease. Hopefully somebody that is suffering from this can now go to their doctor and figure it out. My heart goes out to everyone that is suffering from this disease.🙏🏼🙏🏼🙏🏼
What an amazing doctor, he's so humble and so knowledgeable. Doctors are usually so arrogant and *they* want to diagnose a medical issue, and don't listen to the patient or their family - hence at @1.10 this Dr confirms that the first Dr makes a decision and the rest follow like sheep *even when the fist Drs diagnosis is wrong* - which happened here. Just see the significant number of cases where mother's have taken their unwell babies to the doctors and these babies have been misdiagnosed, possibly fobbing the parents off with the usual 'its a virus' {Dr speak for 'I haven't got a clue'}, and left them to leave the surgery, only for the baby to later die of melingitus🚩🚩🚩 Good luck to this family, when you get incompetent Drs misdiagnosing kids, resulting in social workers joining in, it leads to this result *and this colluded incompetence needs to be highlighted by this case*. Good luck to them👍
An Indian doctor saved my live in India on a medical visa visit. Love them all! They are so people focused and family focused. They care about the full 360 of care. American doctors could use some lessons in practicing humble, caring, careful and cautious Medicine from Mexico or India.
It really sucks to have a disease or sickness no one can see. I was hit by a car in 07, 2 years later body with nerve pain, burning, numbness and other stuff. Finally had a great doctor and many many test later I have Fibromyalgia. Family, didn’t believe always said crap to me that I was just being lazy, until my Mom was diagnosed with it as well and now they believe and now so does she cause she now knows how I’ve been feeling these years. Too be a kid with something like Fibromyalgia just sucks.
I have CRPS 2 from accident from a disfunctioning door cutting of part of my finger at work. It's freaking horrible. It's known as the highest suicide rate illness. Howard Hugh's suffered from CRPS.
This doctor didn’t want to use noone else’s notes he wanted to have his own decision about the patient! Glad he was forth coming and understanding the patient. He was the only truthful witness
My spouse developed CRPS after stepping on a nail. It's SO hard to find regular physicians who understand it. Even in some pain clinics, they don't have this level of understanding and resort to "just take your Lyrica" arguments. Lyrica and gabapentin made her lips and throat swell instantly, so that's not a treatment option. We're still struggling to get some means of finding a measure of relief for her. It's shocking how many medical professionals just. don't. believe. you.
Good for this patient for making Dr’s in the hospital responsible for not covering in treating her pain. Fish be something that is going to be happening in the future.
I too suffer from crps 2, since 2015. Over time, has spread full body to include some organs. I wish I could find a doctor like this! PRAYERS that this trial will help the medical field and others accept this is a real disease. Warriors need help and understanding. 🙏😪🧡🔥🧡 I don't want to die, but this is no way to live. Praying for Maya and her family.
The paper shuffling is really annoying. Anyway, I do like this doctor. He makes things so clear and seems to have such a great understanding of his work. He comes across very different to a lot of doctors and "experts". He thinks for himself, basically and is realistic. How refreshing! and gives me hope.
Why were these doctors not called into the JH Hospital by the parents when Maya was held there? Surely she must have been in treatment by a specialist, if she kept getting the ketamine. Why was this doctor not called into the hospital to explane her illness?
I have the trigeminal neuralgia pain for 13 1/2 years and it is suicide, pain level. Thankfully, after going through about four special neurologist, waste of time and money, I was given the name of Dr. Lew Disney In Southern California, and had surgery that none of the other doctors Mention , a surgery to relieve the pain . this surgery worked!!
I can’t believe with all his knowledge and all her symptoms,that hospital thought she was faking ,and believed the social worker ,it had to be a scam they were running not only to get money ,but maybe also to steal the kids from the families ,this is beyond crazy
They were not stealing kids but might have gotten kick backs. And it sounds like this is a tough disease to find a good doctor willing to do the work!!
My heart aches for people with chronic physical pain. Old age is hard enough - but chronic pain when you are a child? Although I don't have CRPS, I have had my share of poor medical care over the years. Spent the last 20 years with KP, which was a mistake. Don't let medical "professionals" gray rock you or wave you off as if your chief complaint is no big deal, or they resort to the "take some aspirin/tylenol" babble. In the end, it's all about the $$$ - either you have it and they want it, or they want to deny service to you (thus keeping their costs down). Praying for a WIN here.
Hey he's a great Doc!! Dr. Chopra was my confirming diagnosis of RSD/CRPS. Horrible dx.. humbled to be confirmed! I hope the Kowalski's get what they deserve! Exactly what they're asking for!!
As someone with an unknown chronic condition for the past 20 years, the type of pain/sensations that I experience have been an anomaly and hard to put into words, especially at the time it started when I was a preteen. But I'll share something that stuck out with the descriptions of Maya's ability to functions doing one thing, and then feel pain when they poke her. The coping mechanisms my brain acquired and physical shielding of suffering throughout this ordeal are difficult to make sense of. When I kept getting undermined and gaslit at such a young age and finding out no one could help me, you just learn to adapt and survive. Maya's ability to be able to play with her toys might have been one of those distraction antidotes that helps her in the moment to deflect her brain from the pain. But in the position where people are prodding at her, it refocuses her brain back to her situation and the pain is flared up. The stress of people poking at you may have exacerbated that as well. All in theory. The left hand doesn't know what the right hand is doing" expressed through my functional adaptations and coping was quite common in my experience with a chronic condition that I am still trying to figure out the source to this day. I think it is neurological. Unfortunately, I lost faith at a young age in doctors and the medical system. Please listen to your patients and meet them where they are at. It was not fun breaking into tears as a 13 year old just by one look from a dermatologist that looked at me as if I was insane or the most sickening person he has ever met. I was with my mom at the time. I waited for him to even leave the room to do that, not to look weak.
You can clearly tell that he knows what he's talking about because he tried to explain everything in a way that people with no medical knowledge understand.
This doctor's describing the state offices and vendors of DE. The doctor explains the pain. All I keep thinking is, this young woman was 9 years old experiencing this....
MORE HERE: www.courttv.com/news/kowalski-v-johns-hopkins-take-care-of-maya-trial/?
This guy won the case for Maya!!!! Thank you to this doctor!!!
No, Beata won the case for maya. It was her meticulous documentation that was used to prove malpractice.
*This brought actual tears to my eyes!!* YES YES YES!! Five yrs ago I fell, breaking my heel in 6 places. While the surgeon said it healed perfectly, the pain wouldn’t go away. He didn’t believe me. It was because I was "babying the injury"… it’s "all in my head". Kept saying to take Tylenol, walk more, etc. NO! Water hurts it! Air hurts it! Don’t touch it! It burns! It’s freezing! - Take an extra Tylenol. He finally got tired of me because the x-rays showed it was "fine" & there was nothing else that could be done… it was an "imaginary pain" - so to basically placate (& get rid of) me, he sent me to a Pain Management doc… who THANKFULLY was aware of CRPS. He sent me to have bone scans & various (horribly painful) nerve testing done and I was finally diagnosed by someone who took the time to listen & BELIEVED ME!! I had never heard of CRPS but now I know about it all to well. I’m still in a wheelchair as I can’t use my left foot/leg *BUT* ….. my socks last longer (can only wear 1 on my right foot), I don’t have to shave my left leg (barely grows any hair), get to park closer to store entrances & most of all, *I HAVE A DOCTOR WHO BELIEVES ME!!!* I am a CRPS WARRIOR! 🧡🔥🧡 Our color is orange & our symbol is the flame~
So happy you finally got a diagnosis. ❤
Classic case of CRPS yet you still suffered until a dr believed you, you are a warrior !
@kengengler6327are you being sarcastic ?
I love how they say take several doses of Tylenol, take 800 mg of ibuprofen..meanwhile your liver gets destroyed by this when it’s better to actually use real (controlled) extended release opioids instead. It’s trading one problem for another and we will see how badly our bodies will suffer from the consequences of refusing to use opioids at all now for pain. They’ve actually brainwashed some doctors to not believe pain exists anymore
I relate to you so much. I was 11 now I'm 34 and still have it. I have only been able to listen to small bits of this trial as it's too distressing and brings back so many memories. The relief you feel Is unexplainable when you get a Dr who believes you. This Dr is unbelievable I wish I could have been seen by him when I was 11 instead of going to from hospital to hospital trying to get a diagnosis only to be laughed at and not believed.
My wife has CRPS. She is now 33 years into the disease. The only therapy that has worked is Ketamine infusion. Ketamine has been the state of the art treatment for the past 10 years. Hopkins should have known this. I am a physician. If I wasn't, my wife never would have gotten the care she needed.
Can you please share where Ketamine infusions are FDA approved for CRPS?
By the way, the hospital did give her ketamine, just not at the coma inducing amounts that the mother demanded that had a significant odd of serious harm or death
@@Agtsmirnoff I have CRPS and I received a five-day Ketamine infusion. My doctor told me that he has been using using ketamine for "more than twenty years."
She obviously needed it & she wasn’t in a coma now, was she?
@@Agtsmirnoff
You don't know what you're talking about.
This pain management doctor is awesome 👍 we should all be lucky enough to have a doctor like him👍
In L.A. I kept bring refered to the east west type of doctor that believes mindfulness is the cure for all pain. Don't punish the pain rally...it's leaving so many people needing to live in pain. I refuse to become disabled so if I can't take kratom there is no sense in living since my pain usually is an 8 and I can manage it to a 5 all because kratom and why I've been able to hold a job.
@@H37P5kY57I’m happy you found something that helps you. If you don’t mind me ask how do you take kratom, like pill form or herb?
@@H37P5kY57💯💯💯
Don't punish pain gives me hope things will change.
They're forcing all of us to suffer so they feel better... About their stupid policies.
We deserve a quality of life that's acceptable to US!!
He’s amazing one of the best on the planet for CRPS.
I have watched several of Dr. Pradeep Chopra's talks and lectures on TH-cam. Glad to see he was a treating doctor for this young patient.
He is highly knowledgable with CRPS, Ehler-Danlos, Connective Tissue Disorders, POTS, Mast Cell Activation, Dysautonomia, LDN for pain, Pain Management, Pediatric Pain, and more. He contributes his time and knowledge with patient organizations, also.
He is humble, and is a role model for compassionate cate, diagnosis investigation, continual education, and sharing information/educating.
I would love to have him as my doctor but all I get referred to are east west doctors at UCLA and told mindfulness cures everything. Apparently mindfulness heals bacteria infections, prevents pregnancies, and cancer patients. UCLA does have some brilliant doctors but they tell me they are restricted to giving any pharmaceutical unless it's covid vaxx.
❤❤
Refreshing to hear such a humble and knowledgeable doctor - usually Drs are so arrogant and rude, having no time to even listen to what the symptoms are before making a decision. It may be cos they're really busy and have lots of patients to see BUT it's not helpful when they're arrogant, rude and don't listen
Thank you so much for letting us know his lectures are on TH-cam! Just added a bunch to my Playlist. Where's his practice located?
@@susansmith4784glad you can acknowledge that maybe it's not you, but the gravity of being a doctor.
This doctor sounds so empathetic and understanding of his patients' pain.. It must be difficult for him as well at times, watching people in such horrific distress and often not being able to help them.
Excellent explanation by Dr. Chopra. He is a world-renowned & well-respected thought leader in CRPS. The diagnostic criteria he is referring to is called the Budapest Criteria (Harden, 2004). I had almost all of the signs/symptoms/criteria when I was Dx'd with CRPS/RSD in 2014 after a distal fibula fracture & surgery. Burning pain, freezing pain 2 yrs later w/ distinct temperature difference, swelling, discoloration, mottled skin, lesions, muscle spasms, and sweating (limb covered in sweat even when rest of body is normal) 😢affected my entire lower left leg, foot and ankle. I can't imagine what Maya went through having full body CRPS and being taken away from her parents as a young child. This poor girl! 💔😢❤
Looks like they hired the best of the best of pediatric chronic pain specialists. This family should get millions. Nothing will bring back what they lost, but the hospital should pay for all the harm they caused. I have studied and treated CRPS for many years and this case is beyond a travesty. Justice for Maya and her family
👍
Where's your practice if you don't mind? Looking for a new specialist. ❤
They got 220 millions 🎉
I agree. My husband has had this for nearly 30 years.
My son was diagnosed with CRPS 4 years ago at the age of 18 after a work accident it’s destroyed his life, I became his carer. Here in Australia I found it’s not very known here, not may doctors have even heard of it let alone know how to treat it. He could barely walk up stairs, was on a lot of meds, had numerous procedures and operations all to be told, there’s nothing else we can do, just take pain meds for the rest of your life. He became very depressed and overweight, lost most of his friends. He even asked me to cut his foot off at one stage. Now he still can’t wear shoes, walks with a limp and still depressed. As his mum I cry ever day because of how much pain he is in EVERY day.
Can you get him a dr that uses ketamine? It’s a miracle drug. Maybe start a go fund me to get him to Germany or Mexico where they use it or to see this dr.
I wish you could find a doc who could offer help for your son. As someone who has chronic pain, (not the kind your son has), pain medications are pretty much of no use. I was able to get a procedure called RFTC (radio frequency thermo-coagulation). It has helped me tremendously.
Praying for your son…My heart goes out to you. God can help him🙏🏻
Shame on John's Hopkins and med staff!!!
Agree 💯💯💯
My adult daughter fell down the stairs in the backyard and hurt her ankle. She developed CRPS. It is NO JOKE! The pain is excruciating.
I hope maya gets every last penny from that hospital
Thank you doctor for explaining the pain. Nothing totally alleviates the pain. One is reminded daily that they have CRPS. At its worse the fetal position is the norm. My initial diagnosis was made by a Army surgeon who saw injuries from war.
So glad you were diagnosed & yes I bet that dr has seen it all too often, may I ask if Ketamine was used to help you ? I have chronic severe intractable pain treated with opiates, just recently I was given ketamine for the first time by paramedics in an ambulance as well as fentanyl & wow it was so effective I actually slept in the emergency room ! My pain has never subsided so quickly, it was amazing ! But very difficult to access here in NZ
@@nikkimclay5474 nothing helped because they thought I was faking my pain levels. I then was fortunate to have a doctor see the color changes himself…right before his own eyes. You can’t fake CRPS. I’d never heard of it prior to injury.. I’ve suffered daily since 2007. Some days better than others, No ketamine therapy. I was robbed of proper treatment because they thought I was faking. I’d gladly stop the pain if I was faking it. I’m 70 now so God will be there for me.
Did you know rsd/crps was originally seen in civil war patients?
@@sharynkoren2054 yes. CRPS also can develop from a paper cut. The name fits this disease well….COMPLEX.
@@Jeri-nh3ph I developed rsd/crps from injuries sustained in home invasion.
Stab wound and fractures to my spine
I fell, broke both wrists and left forearm in 2021 and this doctor seems to be the only person who understands the pain and what CRPS truly feels like. I need to see him as no one else in the medical field seems to know about how painful and debilitating this is. God bless all of you out there who are suffering from this. I can’t keep going on like this 😢
Same here. I need to find this guy!!
I watched the whole trial live. Kirkpatrick, Hanna and Cantu seem to be all good doctors who are really patient/family centred. Good luck
Keep going! I hope you can find good and compassionate care.
That sounds really bad! Be blessed! I hope you find a doc and therapie you need - don ´t give up! I was at the point to suicide but Jesus helped me. I still have difficulties and really bad days but now I know that better days will follow. I promis to pray for you that night. ❤
I understand as much as I understand what I’ve seen my husband go through. Thinking of you.
A mother who witnessed her child in sever pain and not being able to comfort her child and be with the child - I could only imagine her anguish. For anyone who said that the mother was unstable - how could any mother be stable when she knew her child was in such pain? Maybe Ruby Frank!
This doctor loves his work and can explain it very well on our level .
he cares for his patients
I was diagnosed with CRPS. The State of Washington did a great disservice to me and fought the diagnosis. Injured 2007 and still suffering. Nobody fakes a disease this long.
Did you develop it from an injury? I'm curious how this comes about in people
@@kelseykaye7269many times it is triggered by an injury, I developed chronic severe intractable pain after a surgery, I don’t have CRPS but the same nerve/ brain pathways caused severe pain in me after this organ was cut.
@@kelseykaye7269mine developed from an operation that went wrong when I was 11. I'm 34 now and still have it. For years I was laughed before I was diagnosed. It's awful. No opioids work. I'm on ketamime morphine 2 types of palexia which is a strong opioid, Fentanyl and other pain meds, sleeping tabs etc etc and nothing works. It's a very debilitating diseases and every isolating as no one understands it.
I'm sorry you weren't heard and respected.
It's sounds like such a horrible illness. I hope they find a cure soon and make ketamine readily available for patients.
What this poor girl went through is horrible. Then to be kept from her family is just rotten mean bullshite. I hope this family get every thing they are sued for. And then some. I wish love and luck little lady.💕
God bless this man.
I only wish it was true, that adults are taken seriously when presenting with CRPS.
It’s been years since my diagnosis, my pain is still not controlled. One day without pain would be wonderful!
Mine is bilateral, so you can’t compare one limb to the other for symptoms (temperature,color changes,etc.)
Mine was post surgery pain that never went away, instead it increased. I have better days but never pain free.
I wish i could've seen this Dr. He has an awesome way of explaining this diagnosis. At 52 I've still not found a doctor that agrees with the issue.
Oh Mr. Please stop with the paper shuffle....😠
To many of us with CRPS have suffered from the medical community lack of empathy and understanding. It’s devastating
Dr Chopra is amazing Angel sent. He is my daughters Dr. Ketamine changed her life and her family
This Doctor is fascinating!
Our son was in the 6th grade when he was pushed off the top of a slide. It took quite awhile for the Drs to diagnose what was wrong. He was diagnosed with Cervical RSD another name for this. He was in bad shape for three years. Because he was a child he was not given any pain meds except Ibuprofen. He eventually recovered which we are all grateful for. Not everyone does.
This man is so cool and well informed! Professor/lecturer material right there! He explains so well, he is entertaining, engaging, has a sense of humor all while relaying this difficult information! He explained the condition so well
I had RSD/CRPS… it’s so unbelievably painful!! Narcotics don’t touch it, something I had to learn. Begging for HELP, medics paint you as a drug seeker. It is unbelievable, unimaginable pain!! I still cry when I describe it!!
You wrote that you HAD this does that mean yours went away?
Are you in remission? Are you in remission?
Are you in remission? I was told it's 24/7
Thank you for a sensible explanation of the extreme pain of CRPS and drawing everyone’s attention the McGill Pain Chart. My husband has had CRPS for almost 3 decades since a crush injury of a lower limb. He was diagnosed very early on because the consultant had seen it before but despite frequent physiotherapy, Guanethidine blocks and surgical spinal nerve bocks, nothing has diminished his pain, weakness, exhaustion and sense of loss. Before this he was a very hard worker and was actively involved with sports and play activities with our young children. He lost out on all of these activities.
CRPS is no joke. I got it in 2016 after a botched surgery and it’s the absolute most painful 8 years of my life. I had to get bi-lateral spinal lumbar synthetic injections every week. It tore my family apart. My husband and I just got divorced as he was tired of waiting for me to get healthy. I have weekly and injections it saves my feet from being amputated. At the worst I have 50 open lesions, massive bruises all over my body for NO reason. Quite frankly the ER kept asking me if I’m being abused by my husband. I’m sad I lost my soulmate, my 27 years career, I’ve lost everything! I’m so happy she finally got Justice! Please listen to anyone having pain and complaining. It’s sucks! Pregabalin doesn’t work BTW! At this point just sedate me it’s so painful. Thanks for reading! I’m so happy she was patient and WON!
I'm sorry about your situation but this case will hopefully bring it to the forefront and more will be done to find treatments and maybe even a cure!! I'm glad you shared your experience
I hope you find healing 🙏
I wonder. Back in 2018, six months after my son was born, my gallbladder failed, and it had to be removed by emergency. I was sent home, and 24 hours later, I was back at ER because I couldn't breathe, and I had a horrible pain under my rib, right side. They kept me at ICU for 5 days, and the diagnose was liver hemorraghe. Since then, here and there I still feel the pain, in less dregree but it is there. I have mentioned to my PCP and they have run tests, but everything shows fine. It could be a nerve got damaged or else, and it really takes me breath away all of the sudden, I have to lean to left side slowly while trying to breathe carefully. Sometimes, the pain can last for a couple of days or a few minutes.
I don't want to take Tylenol anymore, so now I am applying cataplasm (clay or soil mixed with water to make a paste). Desperation calls for these home remedies.
I have CRPS. It started after a knee injury and surgery. That was over 20 years ago. I see a specialist now, who is through the UCLA Medical network. He has a CRPS clinic in LA. But for years before I found him I was treated like a whiny baby and hypochondriac. I actually knew was this disorder was because of what I do for a living. I knew people didn’t think it was real. But that still didn’t prepare me for how horrible I was treated. Like this doctor said, you can see many of the symptoms. My leg was swollen, it would turn dark blue and purple, almost to black. All the hair fell out. And my leg and foot were shiny and cold. But I was exaggerating. The pain isn’t just a high level, the type of pain is indescribable. The best way I found to describe my pain is deep frostbite. It’s cold and hot pain at the same time. It spread from my leg to the other, my groin, bladder, internal organs, my back, and then my arms. My left is worse than my right and I have vision problems and migraines also. I no longer take opiates because my pain tolerance level is so crazy high after 20 years that I have no real idea how bad it really is. I have been suicidal twice, which is low for people like me. Our support groups announce deaths literally each week. We spend our days simply trying to keep our heads above water. I have such admiration for children who have this, as it forever changes your life. I have tried ketamine infusions by IV and it was miraculous. But the insurance has denied me any further. Because ketamine is dangerous and nobody thinks CRPS is as crushing as it is. I am so tired of people telling me I should be glad I’m not terminal with cancer. I laugh and tell them at least they allow cancer patients to have suitable pain management. They don’t give us that and that’s why we are dying.
I love this witness. He is one of two that I have seen so far that actually are professional and seems to know what they are talking about
I hope like h**l they win this case and that hospital has to pay out of their a**!
Every doctor I've had thats tried to fight my CRPS diagnosis has been some doctor who thinks they know better than all of medicine. I've literally had a doctor say she didn't believe that the pain described with CRPS was accurate.
This man in my opinion this man was telling the jury the type of pain that MAYA was in. He did this without mentioning her name at all. I believe that he wanted TRUTH and justice for Maya if found warranted. The world needs more People like this DOCTOR.
Please held accountable everyone involved in hurting the kowalski family and many other families, hospital John Hopkins and this evil twisted “Dr” Sally Smith. All of them belong in prison
When i was 13 I was caught in a house fire. I had 3rd degree burns over 70 percent of my body and the pain was unbearable. 15 years later i broke my foot and developed R S D which is no called C.R.P.S like i said the pain from the burns unreal but here's the big difference it got better. After a couple months and a lot of surgeries the pain started to go away but with C.R.P.S the pain is always there 24/7. I went through the ketamine coma treatment like this girl and it helped a lot but i still deal with pain every day but ive learned to live with it. If not for my wife fighting for me just like this mother did I most likely would have died years ago from this disease. Maya mother being a RN nurse new if her daughter didn't get the right treatment she would most likely lose her daughter. Because she was confrontational the hospital labled her with a mental illness and took her daughter. What they did to this family is criminal and someone needs to go to prison for it.
This doctor is amazing 👏 well said it's true any stress what's so ever can cause a massive flare up of this desease and this family have truely suffered , thank you doctor for being honest and straight to the point , truth will always prevail , for mayas family ❤ yous did your wife and mother proud she certainly guided this court case for justice ❤❤❤
After reading the comments it appears that everyone that had CRPS had some type of injury
When this case is over and Mayer and her family have won. Those so called Doctors and social workers should be arrested and charged with abuse. Tried and put in prison.
This Dr. is an amazingly intelligent human, with compassion rarely seen in medicine in the United States anymore.
He actually gives me hope for humanity.
☮️🌠🎶✨🌜🎠☯️
This is a lovely man who is clearly devoted to his patients. I have CRPS. Luckily I have a wonderful pain management Dr. And team that helps me lead a somewhat normal life. But I can tell that this man is the real deal as well. Thank goodness for doctors like this.
Love this guy's humor
Dr. Chopra is such a good doctor. He explained the symptoms and how it affects the patient so well. I have crps and it is like having a monster breathing down your neck. I was lucky to find an md who listens to me but did have to through the mill with others who did not.
This Dr is fantastic! I found one fantastic Dr, my cardiologist. He saved my life. Multiple ER and hospital stays said I was just having anxiety. I followed up with a cardiologist under the long COVID clinic. He looked at all my stuff and said something isn't right here. He ordered a cardiac function MRI and told me I am not crazy and don't ever say that again. That MRI showed that I had 2 congenital heart defects that if I didn't have open heart surgery quickly I would have complete heart failure within 6 months. He saved my life after multiple hospitals dismissed me as having bad anxiety. Now I am having neuro complications from the surgery. My neurologist is no good and I cry all the time. Trying to find a new neuro but they are all scheduled out until March/April. The medical field is a disaster but there are bright spots. My Cardiologist is a hero and what Dr's should be.
excellent testimony
Yes a Dr. Can be Sued for not properly treating pain patients. There are actually attorneys that their practice is all they do. Things have changed since 2016 and the outlines and guidelines of the CDC changed in 2022 where they admitted with they did to Pain patients and doctors following their guidelines were absolutely wrong.
The CDC Finally changed their unacceptable, ignorant and horrific stance on pain and pain management?!
I become so overwhelmed with it all (plus what we've all been dealing with for 3 plus years) that I stopped closely following and have just been trying to survive.
This poor family went through SO MUCH! Praying they win this case! Hospitals need to be held liable for their actions. Just because somebody else tells a doctor to do something doesn't absolve them of responsibility for their actions!
It’s Mayas suffering of horrific pain exacerbated by the idiots who didn’t believe her, that is the worst part, not only physical abuse but emotional abuse sent this child into constant levels of pain with NO mother to at least comfort her. My sister witnessing pain in me as an adult begged the doctors to let me die, so imagine how desperate Beaata was watching her child suffer ? She sacrificed her life to save Maya. Over the years doctors have also tortured me by abruptly stopping pain medication, at least do no harm ??
@@nikkimclay5474My neurologist recently increased my meds for full body tremors. When I went to refill I had to call the office because they didn't correct the dosage on the script. My neurologist told me she never raised my meds. I always have someone with me and they write everything down for me so I don't forget. She absolutely raised my dosage. She ended up putting me through withdrawals because the med is very serious and must be titrated up and down slowly. Currently trying to find another neurologist. I had open heart surgery recently so going through a withdrawal was dangerous
@@nikkimclay5474💯💯💯💯
You nailed it!
Waiting for the compassion to catch up to our suffering.
For the love of humanity, just prescribe enough to give a quality of life that's acceptable to the PATIENT.
The prohibition is killing us lawful patients who are being tortured... So you feel better in your mind.
Suffering forever, so you feel better about your stupid policies.
At least someone got relief.
Might I propose.. the wrong person.
End the controlled substances act
End the drug war
Stop punishing Doctors and Patients in pain
Advocacy :
Doctors and Patients of courage
The Doctor Patient Forum
God bless, gentle hugs and prayers for compassionate care that works for you!
💜💙💜🦋☺️🙏🏻🦋💜💙💜
One thing that stands out to me IF all the staff at J.H totally and utterly believed the mother was hurting Maya by M .B .P how come J.H was charging the Kowalski family insurance company all the way through this time for her being treated for CRPS???
Cant believes living in this world and never heard of this CRPS if not for Maya's case, now that will forced the doctors to open there eyes more .Justice to Maya ,her late Mum and the rest of her family .God bless you ...
STOP shuffling papers please !
Maybe the "un-informed" talking heads with ZERO medical expertise from COURT TV @marieperiera reporting on this subject from should listen to a doctor that specializes in pain medicine and listen to this.
I love how compassionate this do to is especially when he said he won't send his patients to for research studies, saying they are already in so much pain & already suffering so much. I wish all doctors are like him because from my experience as someone suffering from chronic pain, most doctors who doesn't specialize in pain tend to question their patients if it's only in our heads just because we tend to look normal & presentable when we meet them. To doubt us is even more painful than what we battle every single day of our lives.
Unbelievably arrogant hospital staff. Malpractice, maltreatment, and abuse.
This doctor was incredible!! I could listen to him all day! 😘😍
Love this doc and I’m so happy for the family. I couldn’t help but be reminded of Jim Gafigans dad bit when he started coughing and talking omg 😅
This is very interesting to me. When I took neuroscience more than twenty years ago, the general thought was that the glial cells had no ability to process anything. In my own reading, I came across a couple sentences in a book or journal article that indicated that they may do some processing. When I asked my prof about that, he clearly didn't give any credence to such an idea.
❤ this testimony. Compassionate, provides for dignity and BELIEVES patients/family who have been told they are crazy/ enabling. Such an emotional and psychological safety net while treating the pain patients as human, deserving of sympathy, and benevolence. These physicians who believed Maya, treated her with consideration for her humanity, and reassured her that what she is experiencing is so touching. It is beyond the pale how JHACH staff and physicians, Dr. Sally Smith, CPS, Ms. Nies (harsh lady in pink) treated Maya and her family. I wonder if they should have to provide sensitivity training after this lawsuit, win or lose.
There is no training for stubborn, narcissistic idiocy!!!
Subjective pain is rarely taken seriously in the medical field, as it's something that can't really be measured. And most times they think you are exaggerating it, or making it up, especially thinking that you're drug seeking.
Exactly, and it's heartbreaking! As someone in public health who is interested in social disparities of health, the amount of scientific literature which shows that pain is taken more seriously in some groups than others in clinical settings. Women are more likely to have their pain dismissed or minimized by physicians than men in ER settings, and this results in worse outcomes for women than men.
Maybe if they fired these people….it’s apparent to me, who has been to many Drs. before anyone believed me, they were “using hurt their egos” to show they weren’t to be questioned….
That mother…the entire family has suffered way too much!!
The social worker STILL thought it was funny at times when her deposition was taken!
I’m just sick by all of this pain that was inflicted!
So true👍 most Drs are arrogant and don't listen to patients.
This doctors brilliant, so humble and so knowledgeable.
The social worker behaviour on that video was shameful, quite what she had to laugh and smile about only that narcissist would know😡
I agree with every word you said .
Excellent explanation from Dr re: nerves, inflammation etc
allodynia was missed from the symptom/ diagnostic list- important for the trail as the staff kept touching her, trying to prove she was faking-.our magill pain scale reading has gone up 4 points since i last looked,
Oh I can’t imagine what Maya went through, especially being a young child separated from her parents, family, etc. Every medical personnel that she dealt with at that hospital is liable.
This is to Maya; Honey, your Mother is an Angel. She made the most difficult choice to give you life and the treatment you needed and look at the number of other people she helps in the process! As a human she wasn’t being heard which is horrible.. but now no one can ignore her! Her love is strong and she is STILL with you. I send nothing but love and compassion and hope that you know there are so many others sending you and your family healing and love. ❤
This is such a beautiful, heartfelt comment. I doubt sweet Maya will be reading these comments but I’d love to give her a hug. She went through pure hell and this hospital got in a pissing contest with this family because they didn’t believe in the treatments the family had discovered through much trials and tribulations
Well said God bless❤
This dr is so interesting and intelligent
And can explain things where you can understand what is happening.
The hospital literally was abusing her by touching her😡
Yes!!!
1,000 %
Sounds so much like fibro. Wow. Mine has been getting worse.
I pray this doctor brings awareness to this painful disease. Hopefully somebody that is suffering from this can now go to their doctor and figure it out. My heart goes out to everyone that is suffering from this disease.🙏🏼🙏🏼🙏🏼
Dr Chopra, Dr Hanna and the first Dr who diagnose Maya of CRPS should teach those Dr kwak from John Hopkins and that queen of Dr kwak Sally
What an amazing doctor, he's so humble and so knowledgeable. Doctors are usually so arrogant and *they* want to diagnose a medical issue, and don't listen to the patient or their family - hence at @1.10 this Dr confirms that the first Dr makes a decision and the rest follow like sheep *even when the fist Drs diagnosis is wrong* - which happened here.
Just see the significant number of cases where mother's have taken their unwell babies to the doctors and these babies have been misdiagnosed, possibly fobbing the parents off with the usual 'its a virus' {Dr speak for 'I haven't got a clue'}, and left them to leave the surgery, only for the baby to later die of melingitus🚩🚩🚩
Good luck to this family, when you get incompetent Drs misdiagnosing kids, resulting in social workers joining in, it leads to this result *and this colluded incompetence needs to be highlighted by this case*.
Good luck to them👍
How's it common, when its so unknown?? Why isn't it visible in media and people are not aware
And Cathi a child welfare person with NO training but ad hock crap tried to override this guy. She's an idiot in my book and needs to go to jail...
An Indian doctor saved my live in India on a medical visa visit. Love them all! They are so people focused and family focused. They care about the full 360 of care. American doctors could use some lessons in practicing humble, caring, careful and cautious Medicine from Mexico or India.
Dr.Chopra is an amazing human being.
It really sucks to have a disease or sickness no one can see. I was hit by a car in 07, 2 years later body with nerve pain, burning, numbness and other stuff. Finally had a great doctor and many many test later I have Fibromyalgia. Family, didn’t believe always said crap to me that I was just being lazy, until my Mom was diagnosed with it as well and now they believe and now so does she cause she now knows how I’ve been feeling these years. Too be a kid with something like Fibromyalgia just sucks.
I have CRPS 2 from accident from a disfunctioning door cutting of part of my finger at work. It's freaking horrible. It's known as the highest suicide rate illness. Howard Hugh's suffered from CRPS.
This doctor didn’t want to use noone else’s notes he wanted to have his own decision about the patient! Glad he was forth coming and understanding the patient. He was the only truthful witness
My spouse developed CRPS after stepping on a nail. It's SO hard to find regular physicians who understand it. Even in some pain clinics, they don't have this level of understanding and resort to "just take your Lyrica" arguments. Lyrica and gabapentin made her lips and throat swell instantly, so that's not a treatment option. We're still struggling to get some means of finding a measure of relief for her. It's shocking how many medical professionals just. don't. believe. you.
I have full body CRPS.. my heart break for maya I can’t imagine losing my mother the way she did 😢
Good for this patient for making Dr’s in the hospital responsible for not covering in treating her pain. Fish be something that is going to be happening in the future.
I too suffer from crps 2, since 2015. Over time, has spread full body to include some organs. I wish I could find a doctor like this! PRAYERS that this trial will help the medical field and others accept this is a real disease. Warriors need help and understanding. 🙏😪🧡🔥🧡 I don't want to die, but this is no way to live. Praying for Maya and her family.
I hope you find a doctor that can help you with this case being in the news!!! Maybe more doctors will educate themselves
@@kimberley1449 🙏🧡
You can see on Maya's face during this court hearing she was in pain. Her eyes were telling it.
She trust him ❤
I don’t want to listen to this John kopkins doctor but yeah gave her 210 million
I knew it. first question proves everything people have been saying about healthcare for years.
The paper shuffling is really annoying. Anyway, I do like this doctor. He makes things so clear and seems to have such a great understanding of his work. He comes across very different to a lot of doctors and "experts". He thinks for himself, basically and is realistic. How refreshing! and gives me hope.
Why were these doctors not called into the JH Hospital by the parents when Maya was held there? Surely she must have been in treatment by a specialist, if she kept getting the ketamine. Why was this doctor not called into the hospital to explane her illness?
You mean why weren't the quacks called in who nearly killed her prior to her coming to the hospital?
They won't listen to doctors that aren't their own which is bad for rare and complex patient.
I have the trigeminal neuralgia pain for 13 1/2 years and it is suicide, pain level. Thankfully, after going through about four special neurologist, waste of time and money, I was given the name of Dr. Lew Disney In Southern California, and had surgery that none of the other doctors Mention , a surgery to relieve the pain . this surgery worked!!
I can’t believe with all his knowledge and all her symptoms,that hospital thought she was faking ,and believed the social worker ,it had to be a scam they were running not only to get money ,but maybe also to steal the kids from the families ,this is beyond crazy
They were not stealing kids but might have gotten kick backs. And it sounds like this is a tough disease to find a good doctor willing to do the work!!
Thank you doctor. What happened at John Hopkins is negligent and egregiously appalling beyond belief!!!
I like this doctor he is really great at explaining things and making it sound interesting and he also quite comfortable up there on the stand
He’s the first doctor that talks sense .. compared to the nurse she was appalling ..
My heart aches for people with chronic physical pain. Old age is hard enough - but chronic pain when you are a child? Although I don't have CRPS, I have had my share of poor medical care over the years. Spent the last 20 years with KP, which was a mistake. Don't let medical "professionals" gray rock you or wave you off as if your chief complaint is no big deal, or they resort to the "take some aspirin/tylenol" babble. In the end, it's all about the $$$ - either you have it and they want it, or they want to deny service to you (thus keeping their costs down). Praying for a WIN here.
I’m going to have to read up on CRPS.
It’s absolutely horrible
Hey he's a great Doc!! Dr. Chopra was my confirming diagnosis of RSD/CRPS. Horrible dx.. humbled to be confirmed! I hope the Kowalski's get what they deserve! Exactly what they're asking for!!
As someone with an unknown chronic condition for the past 20 years, the type of pain/sensations that I experience have been an anomaly and hard to put into words, especially at the time it started when I was a preteen. But I'll share something that stuck out with the descriptions of Maya's ability to functions doing one thing, and then feel pain when they poke her. The coping mechanisms my brain acquired and physical shielding of suffering throughout this ordeal are difficult to make sense of. When I kept getting undermined and gaslit at such a young age and finding out no one could help me, you just learn to adapt and survive. Maya's ability to be able to play with her toys might have been one of those distraction antidotes that helps her in the moment to deflect her brain from the pain. But in the position where people are prodding at her, it refocuses her brain back to her situation and the pain is flared up. The stress of people poking at you may have exacerbated that as well. All in theory. The left hand doesn't know what the right hand is doing" expressed through my functional adaptations and coping was quite common in my experience with a chronic condition that I am still trying to figure out the source to this day. I think it is neurological. Unfortunately, I lost faith at a young age in doctors and the medical system. Please listen to your patients and meet them where they are at. It was not fun breaking into tears as a 13 year old just by one look from a dermatologist that looked at me as if I was insane or the most sickening person he has ever met. I was with my mom at the time. I waited for him to even leave the room to do that, not to look weak.
You can clearly tell that he knows what he's talking about because he tried to explain everything in a way that people with no medical knowledge understand.
I’m glad I listen to this doctor. It explained it so much better to me.❤
Exceptional testimony.
This doctor's describing the state offices and vendors of DE. The doctor explains the pain. All I keep thinking is, this young woman was 9 years old experiencing this....
I have fibromyalgia with sciatica. I know to some degree what shes going through.
Not at all
I have sciatica from a bad epidural. After hearing all this, I will never complain again.