My take is that in many cases there IS something wrong in the body but that by putting our nervous system into rest and digest we give ourselves a much better chance to heal and get back to homeostasis. Very much a believer in this type of work. 👏
I agree. I haven't watched the whole interview but it seems like they're saying it's all just a perception by the brain. I don't agree with that at all. I agree with you in that there is something wrong with the body. The nervous system is over taxed by stress, trauma, viral infections, concussions etc. and the body gets into a defensive mode and shuts everything down in order to recover. It could be that at a later point one becomes scared to slowly start to get back into the real world, but I do believe there is a mechanism that the body is going by in order to protect itself from damage.
Yes! My take on it too. Mild cfs here before vax created a storm in my body. Now NS stuck and brain also stuck. This side of it harder to understand and easier for people to think it means ‘just think happy thoughts’ - also let’s not fob off the impacts of viruses etc
We also know that a lot of people with me/cfs DO have actual structural damage if you look at the right tests- CCI, tethered cord, weak connective tissue caused by MCAS from viruses and hypermobility. I think there is a place for autonomic reconditioning, but it usually isn’t the WHOLE picture
I kept thinking, because I got sick in a motel room in 1981 that I lived in for 6 months that used a well for a water source. Fast forward to now....I just found out my home town of Saskatoon,saskatchewan, Canada has high levels of lead in the city water supply...higher than Flint Michigan!! No wonder I flunked gr 7 and gr 9 and dropped out of school. I too believe there is still a common denominator that the science hasn't found ...YET. I think my hunch lies in vaccines. One look at gulf war illness...yes ,the soldiers were subjected to high levels of burning oil wells etc. ...BUT....they were also given up to 15 or more vaccines. As you may know...gulf war illness is sooo much the same symptoms as ME/CFS.
@@kaseyahlstrom9189yes! They're now finding differences in muscles, mitochondria and immune cells! But the autonomic immune system and digestive system are connected to the other systems and we have more immediate control over them than the others.
WOW, a doctor who actually educates herself about chronic conditions and WANTS to work with us?? In 20 years with ME/CFS and seeing dozens of practitioners, I have never met a doctor like that.
There are thousands of doctors who LOVE working with desperate patients willing to give every cent they have, especially when their treatments don't work and you can milk them for a long time
To me, as someone who has been through this for 20 years, I think this is what was called a nervous breakdown in the past. All doctors did was send the person to a sanitarium to live out their lives, never getting better enough to return to regular life. Now we understand neuroplasticity and have figured out how to apply it to the nervous system, which actually did have a breakdown. Now we have a breakthrough. We aren’t crazy, we have an overactive nervous system. And we have a way out!
Very refreshing to hear that some doctors are now embracing this information, the realization of how powerful our minds are and how profoundly healing deep relaxation, brain retraining and habits / lifestyle change can be in not only getting fully better but becoming a even better healthier version of you!! Loved every moment of that, great interview Raelan and Rebecca, well done!!
6:00 Absolutely agree. When I first went to a doctor, because I was feeling unwell, I thought he would come up with a plan, a solution, but instead I got nothing else than a big bill. I had to find solutions myself.
Wow, what an exceptional, empathetic women!! To be so totally devoted actually had me fighting back tears . After nearly dying from the vaccine as well as having long term CFS ,Covid 3x and Long Covid there is understandably a fear factor in me. Thank you both so much from the bottom of my heart as what I have further learnt from this interview will help my brain retraining I’m presently doing. “ Bit by bit “
Good luck Brenda, there is so much out there these days to be able to help ourselves Raelan has so many wonderful interviews where you can learn a lot, just go easy so you don’t get overwhelmed with all the information 🥰@@brendabrenner2891
I listen to this with such mixed emotions. Relieved and encouraged that medical pioneers like Dr Kennedy are really putting it out there in terms of new discoveries, revelations and research while at the same time depressed and frustrated that in the UK at least, there remains a culture of dismissing and gas-lighting patients like myself with no mention or knowledge of any of these new developments. It is like inhabiting an alternate reality which is why like so many, I see this channel as a real life-saver and beacon of hope and possibility. I hope you realise just how essential your work is, Raelan and how you shine a light in the darkness for so many like myself. So so grateful.
I am in the UK too and don't see doctors unless it is an acute problem. It was this channel that introduced me to the possibility of recovery, and I chose ANS Rewire. After 7 weeks I am back out running after a 19 year break with delightful Fibromyalgia and CFS 🙂
@@AliWade1971 I think we're singing from the same song sheet, as they say. I learnt very early on not to do the 'head against a brick wall' thing with the NHS, my GP or neurologist. And interestingly, I'm two thirds through ANS Rewire as we speak but I would have heard of none of these possibilities without Raelan and if I could give her a dame-hood I would! Wonderful to hear you are rising above and doing so well.
@@stevebarlow1959 Yes, it was Raelan who introduced me to the idea of actually recovering too. I agree, she deserves a Dame-hood! She's a real heroine! Are you making any improvements doing ANS Rewire?
Thank you so much for this interview! This has become my go-to channel for actionable intel on Long COVID. I can see a path forward based on what Dr. Kennedy described (and it's a joyful, peaceful path). I'm also finding the Curable app to be a useful, low-cost tool. Thanks for introducing that to us as well. I've gotten more from this podcast in a couple of weeks than I've gotten from the medical establishment in over a year. Your work here is truly a gift.
Yes, we need more doctors to do this....and more that also take insurance so we can afford them!!!!! I saw Dr. Kennedy on a q and a from PPDA Dr. David Clarke. and so glad to see this!
I did the Be Your Own Medicine course with Rebecca Tolin and it uses all the techniques discussed here. We even had a Q and A session with Dr Rebecca Kennedy as part of the course! This approach is working for me!
@user-kq7ks5dn6j What fantastic news! I'm so happy that you're making such progress after taking my Be Your Own Medicine program! Slow, steady progress is the most lasting kind. Keep at it, my friend! To those who asked about my Be Your Own Medicine program, it's a mind-body recovery program. We use neuroscience, somatic meditations, brain retraining, nervous system regulation, emotional processing, graded exposure and other techniques to recover from Long Covid, ME/CFS and other symptoms. You can learn more on my website (which is my name) or watch Raelan's interviews with me! Indeed, I do feature guest experts like Dr. Kennedy!
The "Lords prayer" will dial down the fear. I had insomnia at 8 yrs old and my Dad taught me the Lords prayer. From that evening on i realized that i could slept and I had a heavenly Father that would keep me safe. I'm 70 now and still love the Lords Prayer.
💯 Amen! I love hearing how your dad taught you that. I’m an ex-new ager who was well meaning but lost & deceived. There’s nothing better than the comfort & safety found in God’s grace, mercy & love… and salvation through Jesus by he did on the cross for us to pay the debt of our sins. Eternal security in this fallen world is priceless. ✝️🙏🏻💟
What a beautiful, genuine, intelligent woman! Thanks so much Raelan for inviting such a precious gem on your channel. I was with you on wanting to hug her! She just exuded empathy and hope!
Refreshing to hear doctors validate this whole nervous system approach. Especially now with the amount of recovery programs out there. We really just need the right information from a trustworthy source.
Thank you Raelan and Dr Kennedy for a great interview. I have listened to some podcasts by Dr Howard Schubiner but how you explain whats going on is much more understandable (to my brain anyway)!so thank you. Thank you for saying that as a patient its not my job to figure out whats going on, which is what have been doing for the past 3 years+ with long covid.
Thank God Dr. Kennedy had the courage and integrity to leave her practice with Kaiser to develop real cures for her patients! She is a pioneer and a true healer. 🙏
Love this interview! Dr Rebecca Kennedy and Raelan are the super stars of this Chronic Illness world! ✨🌟✨ Many thanks to you both! Appreciate the links to the studies, Raelan! 💛🧡💜
I suffered with bouts of CFS for 4 years. After Covid my son and I went downhill slowly. We both continued to get worse and worse until we found mold in our apartment and heavy doses of EMF from a bunch of smart meters. Once we moved out and implemented a mold detox we have slowly improved over the last 9 months. We are both almost back to normal. Sometimes this can be triggered by environmental toxins and not some spontaneous disease. Relieving the stressors, no matter where it’s coming from is necessary for healing. There is a lack of awareness is the most important part of finding a road to healing.
Such a brilliant interview. Dr Kennedy has such a clear way of explaining these concepts. This is what I’m using to recover from long covid with POTS and PEM etc since 2020. I’m making great progress!!
Loved this interview. I cried with relief at hearing a medical doctor so clearly explaining the scientific basis for the mind body model. I will listen again. Thank you. ❤
This is so clearly explained. A relatively new concept and Dr. Kennedy explains it perfectly. She brings the concepts to the layman so well. A great communicator! Thank you so much.
WOW YES!!!! This is the best interview. How great to hear her mention that some just had the vaccine and had these issues -me and many others fall into this category and have been so desperate for answers in healing - so this is sooooo helpful
I have been to so many doctors and they all say the same thing. "Well, we just don't understand Long Covid." AHHH, it drives me crazy every time I hear that. Its nice to see a doctor who is saying something different.
Thanks for the combat. I got that book early on and tried everything. It was good, but it didn't take care of the problem, sadly. @@loveishappiness7330
Start reading the research papers about covid and long covid. This gives you more understanding than drs have....(Those drs haven't bothered to look at the research.) It may not have treatments but most research papers try to answer questions...trying to understand the disease. Many academic research papers have free access. If not, click around til you find free access. Google scholar should have info too.
This doctor is a rare breed, she’s broken out of the mould! I don’t agree entirely with , getting better is just the doctors job though! I believe we all are responsible for educating ourselves, being our own advocates, taking control to feel empowered! I have learnt much over the years and if I’d listened to doctors would be medicated up to my eyeballs! I take no pharmaceuticals and have taken charge of myself! There is hope for everyone and Raelan you are inspiring!
The missing link for me has been understanding the nervous system!! Game changer! I recommend learning as much as you can on this! Deb Dana (book) How To Befriend Your Nervous System is a good start! Polyvagal Theory ! Dysregulated nervous system makes complete sense!
This is such a fantastic interview and it really made it click for me. Dr. Kennedy has a TH-cam channel where she goes more in depth with this and I highly recommend watching it.
In my opinion it IS the body because I believe it's metabolic. 28 years of severe ME/CFS suffering. Bedridden for most of my life. More than 10 years of rehab. With every type of therapy imaginable. I'd just have to live with it. Changed my diet. Now I have a better quality of life. I want to become a coach so that I can help others, so they don't have to go through the same hell I went through. Imo, this doctor, though well intended, might not to understand ME/CFS/LC to a deeper degree. Her theory of the unconscious brain is old theory, but from my 28 years of experience with many of my peers nowhere close to high success rate.
@@sjwells04Okay… then what do they have if not ME/CFS? They have all the same symptoms. I am sure there is no one-size-fits-all approach to recovery but what pushes you to make this categorization? I’m curious.
@@sjwells04speaking of invalidating. Wow. When they say rest. It's not overnight. The healing from rest comes from years of healing and in small increments. Resting is not only physical, its the mental rest and emotional rest aswell, it's a battle. Please don't invalidate others, especially not after complaining that someone else is a little.
Agree, ME/CFS is the body. Some went wrong. Now, many people reach cfs for different reasons and LC people, some seem to be able to recover so her approach could help some or a specific subset but most cfs people it won't do anything. Mine fluctuates for not reason at all. I've paid attention. We don't do this with cancer.
@@bizonc But the brain and nervous symptom are the body.. I'm bedridden with mecfs and just don't get why we are not finding any bigger structural clues for those conditions. Imo medicine is just focusing on the symptoms instead the root cause to sell pills. But maybe that's not the way, at least not entirely. I'm sure Diet helps as well as some medicine, but how do we recover (should be possible if there's no bigger damage?) 😔
Post-Exertional Neuroimmune Exhaustion (PENE) is a neuroimmunological response of the body to exercise that is characteristic of ME. It can follow even low levels of physical, cognitive or sensory stress because the body is unable to provide enough energy on demand. PENE manifests itself in an aggravation of the basic symptoms, which can occur immediately after exertion, but also after a delay of days. Recovery time varies depending on the level of illness and from person to person. It usually lasts more than a day and can last for weeks. Any deterioration in condition can be the new baseline condition. The PENE manifests itself in proportion to the exertion, i.e. the heavier the exertion, the greater the subsequent aggravation of symptoms. You fulfill the PENE if you feel noticeably worse than usual after a day in which you were more active than usual. The deterioration is not only expressed in exhaustion, but also in symptoms such as pain, difficulty concentrating, sensitivity to light, noise, smells and chemicals, flu-like symptoms or other neuroimmunological symptoms.
@@mpcu225 this is because you’re adding more stimuli to the body / nervous system because: more movement is in the beginning still interpreted as danger. So you sleep worse and feel worse. But I know a lot of people that did overcome this. You just need to start really really small so you don’t notixe this to much. Maybe 5 waves with your arms a couple days. Then 6, 7, 8. Just really slowly progressing. Or if you have no POTS then start cycling a few sec reallly slow on on hometrainer and increase a sec per 2 days or 3 days if u can. Slowly moving forward and getting more succes moments in the moving progress.
It was such a gift when I got sick as I reevaluated my whole life. The way I had been living (in survival) for a long time created the symptoms as I lived in fear. I used dr joe dispenza and Wim hof to calm everything back down. Takes time but we are meant to heal ourselves and these illnesses allow us to learn now 🙏
Just when I was feeling so helpless , after having another set back, this video has given me hope and the strength to go on. I am going to recover and know that these set backs are part of the journey. It is so easy to start to overdo things once you are feeling a little better. So I must learn to walk before I can run again.
Before I retired, as a manual therapist I studied the "pain in the brain" models of Lorimer Moseley and David Butler. This was in the context of acute-turned-chronic musculoskeletal pain and recovery. I'd like to say they do have some application -- acute muscle pain can chronify and widen into regional pain syndromes, physically changing both facilitating and dampening nociception pathways in the spinal cord and brain. This can also involve inflammatory markers at the original site of injury and beyond. But this is a very specific pain processing model. It does have demonstrated value for some chronic musculoskeletal pain patients, but it does not begin to explain all the effects of frank insult to the body from -- for example -- viral infections. As a tool, "brain retraining" may be quite helpful. There's no harm in trying it out. But it's not, and never was, a one-size-fits-all model, and is more likely (imo) to emerge as one potential approach in a larger toolkit.
I loved watching this video. More validation. I am so on this page, but still struggling with the fine balancing act of doing vs doing too much. Can't quite find my pathway out. Or, maybe I am on it, it's just slower than I like!!
This video made my day❤ Thank you Raylan, thanks to you I am so full of hope and are slowly getting better🥰 I watch every video, an this is my favorite ☺️
I think a mind body approach can help, in conjunction with appropriate treatment. There's a thorough Nature article on the physiological effects and symptoms of Long Covid. I think a mind body approach can help healing. But most people I know who are recovering are using a combination. The spike protein disrupts acetylcholine receptors and gut dysbiosis disrupts neurotransmitters like serotonin... these are two physical reasons for nervous system dysregulation that can be addressed.
This is such great news! Mind/Body research must be brought into the main stream. Unfortunately, the kick back has been intense up until now, even though their us scientific evidence. There is no profit in people healing themselves with these techniques, which will always mean there is kick back from those benefitting from us staying sick.
A little more than half way in and this makes so much sense and here's why- I used to suffer from severe anxiety until I found a method that used behavior (I'm a canine behaviorist so that caught my attention) to let the primitive brain know that the anxiety wasn't needed as opposed to telling the brain through relaxation, centering etc. In three days, I was living normally again and in 3 months, I was over my anxiety completely. Now, I'm dealing with long COVID and can't wait to try this.
@@jog5289 I don't think it has a name and there seemed to be a lot of people using it but I wrote the steps and the way I used them. This is from a pdf that I created- 1. Welcome- there is no reason to fear anxiety. Realize that your anxiety is trying to help you by doing its job keeping you safe. Your job is going to be to let your anxiety know that its services are not needed. Welcome your anxiety to change your anxiety. 2. Separate- when anxiety or panic strike, you must remind yourself that your anxiety and panic are not you. It is the reaction of the primitive part of your brain. You can separate yourself from it and put the modern brain in control very easily by recognizing that it’s just the primitive part of your brain causing your anxiety. 3. Challenge- Once you acknowledge your primitive brain is creating anxiety and panic, you need to start teaching it that it’s not needed and you will be safe and secure without its help. You do this by staying where you are and challenge your anxiety to do its worst. Remember, anxiety and panic can't kill you. Take each feeling as it comes and let your anxiety to make it as bad as possible. Allow yourself to feel nauseated, to faint or to have a heart attack. Allow your heart race faster, your throat to close up, your heart to burst out of your chest. Allow yourself to feel faint or even like you're going to die- remember that anxiety and panic can't kill you. It’s not easy but you need to hold steady and encourage those feelings until they start to subside. 4. Enjoy- After the feelings of anxiety start to pass, reward yourself and your modern brain by doing something enjoyable. It could be as simple as going back to what you were doing but, whatever it is, you want to get your mind off the anxiety and back onto something positive. 5. Intensify- As you gain control over your primitive brain and its anxious reactions, you have to continue the lessons by putting yourself in more and more situations where you would normally feel anxiety or experience panic to work the Control Process. You should be making the situations more intense too. In the beginning, it may mean putting on clothes that were a problem before or not opening a door that is causing anxiety but you want to find situations that would have been even more difficult for you to handle before you understood how to deal with your anxiety. Eventually, you’ll need to move on to more and more difficult situations. Whether you’re afraid of traffic, elevators or even flying, you need to start finding opportunities to experience them and work through them.
@@jog5289 It doesn't have a name that I know of and there were lots of people who had made videos about it when I was looking. Here's the steps that I wrote down- The following are the steps to the Control Process- 1. Welcome- there is no reason to fear anxiety. Realize that your anxiety is trying to help you by doing its job keeping you safe. Your job is going to be to let your anxiety know that its services are not needed. Welcome your anxiety to change your anxiety. 2. Separate- when anxiety or panic strike, you must remind yourself that your anxiety and panic are not you. It is the reaction of the primitive part of your brain. You can separate yourself from it and put the modern brain in control very easily by recognizing that it’s just the primitive part of your brain causing your anxiety. 3. Challenge- Once you acknowledge your primitive brain is creating anxiety and panic, you need to start teaching it that it’s not needed and you will be safe and secure without its help. You do this by staying where you are and either silently and allow your anxiety to do its worst. Take each feeling as it comes and allow to become as bad as possible. Allow yourself to feel nauseated, like your going to faint or have a heart attack. Feel your heart race faster, your throat close up, your heart feeling like it's going to burst out of your chest. Let yourself feel like your going to die because anxiety and panic can't kill you. It’s not easy but you need to hold steady and encourage those feelings until they start to subside. (contued)
@@jog5289 4. Enjoy- After the feelings of anxiety start to pass, reward yourself and your modern brain by doing something enjoyable. It could be as simple as going back to what you were doing but, whatever it is, you want to get your mind off the anxiety and back onto something positive. 5. Intensify- As you gain control over your primitive brain and its anxious reactions, you have to continue the lessons by putting yourself in more and more situations where you would normally feel anxiety or experience panic to work the Control Process. You should be making the situations more intense too. In the beginning, it may mean putting on clothes that were a problem before or not opening a door that is causing anxiety but you want to find situations that would have been even more difficult for you to handle before you understood how to deal with your anxiety. Eventually, you’ll need to move on to more and more difficult situations. Whether you’re afraid of traffic, elevators or even flying, you need to start finding opportunities to experience them and work through them.
Noticing a lot of negative and skeptical comments in this thread. It's really ok for there to be many approaches to these conditions. Some work for some while others need something else. It should come as no surprise that the nervous system when highly dysregulated can produce dozens of symptoms. This doesn't mean it's "all in our heads" . It's all real. But for quite a few of us it isn't about a damaged body. Maybe it is for some but certainly not all. I am almost 100 percent recovered from a hellish experience of long covid using these methods. And it can be very cheap or even free. Dan Buglio and Jim prussack have incredible TH-cam videos that honestly is all anyone needs. All free. The curable app is very low cost. Please don't discount this approach wholesale. All the folks for which this has worked at not lying.
Google PENE and PEM! 99% of all doctors have no idea of what it is about. I always bring my papers with me to every doctor, and until today ( since 2010 ) I found ONE doctor who knows about it it’s just incredibly what a nice feeling! I found a doctor who knows my illness!
i remember taking a class in hypnotherapy 25 years ago. the teacher was retraining his brain after a stroke to create new pathways to regain lost functions. he talked about neuro-plasticity being the key. this sounds similar. can this work for someone with a 'comorbidity'? like adhd, where the brain physically has frontal lobe problems? thank you for this video.
I just recently found your channel. Thank you so much for all that you do. Can you tell me if this brain training, nervous system regulating stuff can help people who do have tests that come back positive with Diagnoses or do have damage? Will it still work or help some?
I’m curious if Sarah Myhill would agree w this .She is very much in the belief that our mitochondria ,the powerhouses In our cells are dysfunctional.and I believe I have dysfunctional mitochondria.but I also believe it’s very possible I have central nevetous system dysfunction.Ive just never heard dr myhill talk about cfs from this angle and I so respect dr myhill
In my bizarre journey with LC what I found very strange is that the first thing suggested to me by my doctors was olfactory training which is a form of brain training but they stopped there and went a lot of medical tangents after that.
Would the GPCR autoantibodies against the adronerge ß1 and ẞ2 receptors of the autonomous nervous system that are found with most of long covid and me/cfs patients also be considered downstream effects rather than causing the symptoms and condition?
Good question. I would think so. We in the west have an almost crazy view on healing and the medical world. We think its just the body or just the brain or just the nervous system. Mostly we think its the body having some damage or issue causing it all. While in eastern countries they have way less of people like us suffering from this. Because they know its al intertwined. They have a more holistic approach. Also top level athletes always recover by holistic approaches. The nervous system being hypersensitive causes us to slowly recover or not at all. Rafael Nadal had an injury causted by over sensitive nervous system caused by parent divorce. So yess there were things found in his body not properly functioning and making him hyperactive and sensitive for stimuli. Of course there are always chemicals that are released in the brain or organs because of this state and of course this has an effect on adronerge receptors. Man we in the west are thinking so wrong about these kind of issues. Always looking for things in the body, for symptoms, never for the root cause of problems, we always under value the effect of the nervous system on all our chemicals. And yess over time, as this over active state of the nervous system withholds us from getting a recovery, from sleep and when not properly treated getting worse and worse recovery every day. Of course you are going to find things in the body not functioning well. Ya’ll underestimate this do much because of our western minds thinking always its a or b. Never its a and b while both are a problem. But with nervous system issues, the word itself says it all, its the nervous system. And we need to calm in down and spirituality and calming words alone wont help when you’re severe. Its the slowly moving that gives the subconscious the believe that moving is safe, even though you experience debilitating symptoms. You can start with 1 second sitting up, 2 seconds sitting up (if with POTS). Or if u can walk through house but that’s it, then start with 5 sec cycling on a home trainer, when severe light sensitive like me, do it in the dark. Gradually improve with second. Not with minutes. That’s the mistake most people make. They thinks: im gonna move 10 min and be positive about it. No!!!! Your subconscious thinks this is way over its boundaries and thinks its unsafe. You need to start really small. Its not pushing hard and thinking positive. Its almost not pushing but doing so little improvement that the body barely notices and can adjust more easy. Just like tapering off a medicine for 2 years instead of 2 months have drastic better results and succes rates and less nervous system damage because of the super slow daily taper of 10% per month divided over 30 days. Only this is the other way around, now your building something up and you dont want extreme reactions which makes your subconscious feel unsafe and then throw in symptoms which makes your conscious brain also feel unsafe and this amplifies the signal even stronger back into the nervous system causing more symptoms, more feeling of unsafety, panic etc. Causing less proper sleep, less recovery, more systems in the brain out of whack because yess, all we feel is chemicals so ofcourse they will find small changes in the brain. But it’s the holistic picture. Y’all think to black-white and take to big steps because were used to respond acute on acute symptoms. Understanding this makes a life saving difference!
I did the lightning process and it is the biggest mistake I've made. I was gaslighted into believing I wasn't really ill, it's been 13 years now and I'm still not back to the level of health i had before doing it. Brain retraining doesn't work for many people.
Good on you to point out the dangers of the terrible ‘Lightning Process’, which has damaged so many with ME/CFS, especially children ‘treated’ by the clinic in Bristol.
And it’s not just brain retraining. I see that most people who suffer from this illness a long time are very pessimistic in their reactions. And u know, I understand because you’re so sick for a long time. But this is not about brain retraining with positivity. The key about this is understanding the science and eventually movement is the key. But not starting to move like 10 minutes instantly and trying to be positive about if afterwards. This is wayy to overstimulating and you need to start so so small. I started with 5 secs of cycling in the dark and improving with 1 sec per 1 to 2 days. Now i’m almost on a minute and feeling a little better already. I’m getting more confidence in the moving part. But im severely light sensitive so i cycle on a hometrainer in the dark with as less stimulus as possible. No moving object. Also restricting stimulus is so important and focus on moving. I feel more safe by the day and i felt like dying for months with all the worst symptoms from getting visual snow to tinnitus, constant fight or flight, insomnia. You just need to start really small. And like she says in the video you cant change your subconscious with positivity or affirmations, its the slowly progressing in moving that makes you feel save. Even if you can’t cycle it could be just 5 seconds out of bed. And slowly second by second getting more and being convinced by the science helps your conscious mind staying out of panicking which helps the nervous system and de subconscious to feel more and more safe. Its more about the moving and understanding the concept. But only positive thinking and stress management will likely keep you stuck. Not all programs are the same, there many out there that do not know what this doctor knows and have only the “spiritual brain retraining” approach to a cure, which of course doesn’t cure at all. There is more pieces to the puzzle and It’s mostly the slowly building of movement over time and understanding that this will make you feel safe more over time! It eventually starts to improve sleep, improving relaxation and your nervous system, giving more room and speed to recovery, increasing hrv, its upward spiral. It’s possible, but i dont have any blood or urine results that look bad at all.
These interviews start to feel like advertisements for services and not as new strategies at getting back to full health. I take a lot of notes on these interviews and my notes at 25 minutes are Dr. Schubiners Work is used here. Neural Reprocessing Therapy Retraining the Nervous system Moving will help but it needs to be within the right mindset. A sense of ease and safety and joy. A feedback lookp needs to be created to feed that back to the brain. Wow, stuff I heard like in 10 interviews. A little more depth would be nice.
I am using low dose nicotine patches for some time now, which make a difference. Nicotine is said to block the nicotine receptors of the nervous system making it hard for any Pathogens like the virus to get active. Also Nicotine restores a very important anti inflammatory pathway in your vagus nerve. PEM got better, walking is easier. Mood is a lot better. Relaxation is a lot better.
@RaelanAgle This is the best interviewee! I'm going to share it with everyone I know, even though unfortunately your microphone is rather poor for some reason.
I think for one the education piece that you're actually safe and explaining the science behind it and why the brain creates symptoms. There are different type of brain retraining and styles. Some are about circumventing negative patterns or emotions and going right into joy by using your imagination to generate positive chemicals, while others (more the Schubiner style approach) are about bringing love and holding space for the symptoms while knowing that they're a messenger, but they are not damaging you (and connecting to the emotional piece). This is really simplifying it though! The people who have the most success with brain retraining often realize intuitively or with help from the program or teacher that it's not just thinking positive, it's about bringing in the felt senses/emotions, connecting it to the body. Hope that helps!
I too thought I was thinking very positively, because I associated being positive with a strong desire to get my life back, and an optimistic outlook that things would be good and I wouldn't crash. And I meditated twice a day, which was very supportive. But then I took a course and realized that I had a lot of thought patterns and lifestyle choices that were keeping me in fight or flight. This included self-criticism, would-of-could-of-should-ofs, blame spirals, scanning for my key symptoms, googling my symptoms and going on disease forums (helpful in first year, but not by year 3), high-adrenaline TV shows, scary documentaries, TV news, online news sites, Twitter, detailed conversations with friends and family about their health stuff (I was concerned my friends would get ME/CFS), trying to save people on the internet, are some examples. Also, brain retraining often involves tools like one hour of visualizations per day, making the imaginations come alive in your body at the felt sense level. Somatic brain retraining programs include somatic tracking and holding space for or when the time is right going into the emotion which can be powerful stuff. The somatic programs are often about encouraging people to hold space for healthy emotions like anger rather than suppressing their feelings, very different than more positivity focused ones.
THANK YOU. 🌷SO ... HOW DO YOU KNOW WHEN THESE SYPTOMS ARE MESSAGING YOU THAT THERE IS DANGER AND YOU MUST BE MINDFUL OF YOUR ACTIVITIES MAKING SURE YOU DO NOT OVERDO IT? @@HealwithLiz
@@wildgardens You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system. Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause. With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you. I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low. When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way. The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me. Hope you guys can alternate your perspective so you can heal too! Coming from an academic educated person! Good luck :)
So what you are saying is you can cure people with severe ME by changing their mindset. People are dying of ME. Leaks have been found in the blood brain barrier in long covid patients. So much research is coming out showing brain injury in these patients. Positivity does not cure brain injury. It may make you feel more cheerful but its very doubtful it’s a cure. Is this treatment free or is this a sales pitch ? If it’s a cure, help the dying for free!
Maybe consider that this works for some but not for others. It has worked brilliantly for me and I had severe brain fog and neurological symptoms of long covid. It's so much more than positive thinking. Be open minded. This approach is helping so many people.
It’s not about only positivity at all. Did you listen at all? Its about slowly getting in to moving again which signals the subconscious after many times of performing it that it is save. Even though you have these constant symptoms. I’m severe light sensitive with a lot of debilitating symptoms like severe tinnitus, insomnia, anxiety, not being able to function or work or read, visual snow. Slowly starting cycling on my hometrainer in the dark and only adding a second a day really helped me getting out of this situation. I started with 5 seconds. Adding a second a week, now i’m on 45 secs. Feeling a little better. And yea I almost died. The things you mention: "The identified and potential effects on the brain, where certain functions are impaired”, are due to the nervous system being extremely overactive, preventing the body from recovering. If you don't fix this, after a really long long time you will eventually die from all the systems that start to fail. No shit they find some things in the body eventually. The cause is the nervous system. Just as we long thought that mitochondria were the problem for long COVID, we now see that they function properly again when people address the overactive nervous system. You're confusing cause and effect, my friend. And yes be aware of sales pitching. But I don’t find her program and classes to be expensive and reasonable: Not low but reasonable. The problem for the price aren’t mostly doctors like this but insurance company’s and pharmaceutical companies that only want to cover drugs as medicine because they don’t cure the root cause and they earn trillions of dollars because of it. If this science is getting more and more spread through the world and more people are aware en standing up then eventually they need to follow. But I think this will take a lot of years before this changes. The money they earn is so high that i doubt they will change their vision untill the moment arrives that so many people are sick that companies are suffering from a too high percentage of sick employees that it becomes a expensive problem of society. Then it will change. So unfortunately, a lot more people need to get sick before it will change. That’s the fact. But i don’t think this doctor is out there for the big bag. But I could be wrong. I do know that your theory lacks a lot of foundation and your confusing the effect of hypersensitivive nervous system (issues in brain, mitochondria etc) with the cause of it, namely the hypersensitive nervous system.
35:50 the testing is normal. Earlier in the interview it's been said that a lot of processes in the body change and the tests are not normal after all. It's the wrong things that are being tested. I think it's important to mention this.
I agree. They are just performing the wrong tests. Dr.Bruce Patterson has developed a new diagnostic test measuring specific cytokine levels. He claims he can differentiate between Long COVID from acute infection, Long COVID from vaccine, and CFS/ME. Patterson believes the symptoms of these diseases result from inflammation of the blood vessels of the Brain. Specific Immune System Cytokines result in the different symptoms. He has developed a 6 week treatment protocol based on Cytokine Antagonists that has recently been accepted by Insurance Companies.
Agree 💯.. all my tests from. PCP are Normal" that because we don't have the right TRSTS, nor the updated machines to " see" clots, brain damage, etc.. mt Sinai , top clinics do.. my neuro is sending me fir an MRI, but will show nothing, as not hi tech .. continual merry go round🙏❤️
@@brendabrenner2891 Hey Brenda, if you're not seeing someone who has expertise in success rates for ME/CFS or Long Covid, then I question the benefit of spending your morning or afternoon in an MRI tube getting your brain scanned. Also, I question the benefit of looking for damage all together, because it won't likely inform treatment just scare you or make you feel like you wasted your time. There is no magical healing pill if one would have damage. I've yet to see any recovery stories out of Mt. Sinai, but perhaps there are. That said I agree with @Forisma as many people with ME/CFS and Long Covid are helped by thorough functional tests, that might reveal other things like heavy metal exposure, mold exposure, and severe vitamin and mineral deficiencies. I myself was helped by finding I had severely low Vitamin D, low Magnesium RBC, results from a Genova GI effects test, and a urine test revealed 107 times the safe limit of exposure to a mycotoxin produced by a certain species of mold later found throughout my house (the lab was called Great Plains Lab and is called Mosaic). My PCP found nothing and just weighed me and also brushed off my EBV acute reading. That said to ultimately get better (beyond leaving moldy house, getting more sunlight / Vit D and Mg), the stuff that Dr. Kennedy is talking about was what helped heal me. The neuroplasticity / nervous system work and lifestyle stuff. I did not spend the rest of my life getting vitamin IVs in the functional medicine clinic or go down many rabbit holes you can go there, I chose to focus on truly healing the root, my nervous system.
They can’t acknowledge the non liable experimental emergency authorisation(no three states of clinical trials)Genetic jab.I really hope you get better but you have to be looking in the right place
As an md even if I’d like to implement this I would not be allowed by my medical college. I fully believe in it and it breaks my heart I am not allowed to use it
@@genevievebaril4746 That’s disheartening. Like so many institutions, the medical system needs a massive transformation. Whatever happened to First do no harm? That’s a rhetorical question. I am glad there are doctors like you who are at least aware of the limitations in the current approach to chronic conditions.
How did you perform graded exercise? I felt also worse and worse because i added to much time every week to my “cycling” on the hometrainer. I added a minute or 2 and it was getting harder and harder. It was just wayyy to fast for my nervous system to get used to. Then I understood that how more severe our nervous system is over stimulated, the slower you need to go. Like tapering off a AD. The slower you go, the less withdrawal symptoms, the less panic and overstimulation of the nervous system, better sleep and higher chance of success and the nervous system gets the chance to actually adjust. But with taking to big steps you just smash it out of whack and that’s why most people can’t taper off and feel worse and worse. The brain doesn’t know anymore what is up and down. You develop so many symptoms in that you feel in the conscious mind that you can’t calm yourself anymore and people stop tapering and believe they need to take it for a lifetime. The neuropathways of failure and danger with tapering off is getting reinforced because of this. Thats why people start to believe they can’t. But they just go way to fast! Like the western society, we all keep running and running even when we need to slow down we always go to fast. Its the problem of this age. Its the same case with graduated exposure for movement but then reverse engineered. You start with seconds cycling on a hometrainer (for me in the dark because of extreme light sensitivity) and you add not a minute but a second a day. Just not like most people who taper off instantly 10% at the end of every week. No not 10% on a single day but 10% in a month, take it way slower, and then divide it by 30 days and then taper it off by minimal amounts every day which’s lowers the impact on the nervous system so so much. I have been there and done that. The same is for moving. Add a second a day. Or if bed ridden move your arms for 10 sec, than 12 sec, then 14 sec. Or sit up straight when POTS for 5 sec. Then 6 sec. 7 sec. 8 sec. And believe in the science. Try to keep your consciousness calm and not go to far because then the subconscious will amplify the pain because it feels the step is to big and considers it as danger. It won’t notice mini steps. And then you increase the feeling of safety and success. That is key. Combine this with brain retraining, positive thinking, laying down for 20 minutes in the dark every 2 hours with slow and nice stress relief music, positive affirmations and knowing there is no wrong in the body and that you can handle more than u think. But you need to go REALLY slow. Extremely slow. Because if u add instantly 1 minute, then u reacting like the doctor said in an Acute way and the subconscious will respond in an acute way with danger and you will get worse and worse. The close statement: the most people follow way to quick build up schedules that constantly keeps activating the danger system again and again and then develop neuropathways that gets reinforced with failure and danger, making your nervous system worse and worse and giving more and more symptoms, like you. You can do this! :D
Interesting discussion but the question still remains. What is it about the Covid virus and/or the vaccine that has caused the mal functioning of the sub conscious brain? And why do only some people get Long Covid, specifically among highly active people. Most people have had many types of infections but not ended up getting long Covid. In short, something altered the nervous system or brain, but what is or was the trigger?
I guess active people carry certain behaviours and personality patterns (overachievers, people pleasers, perfectionists etc) which keep them in a chronic stress cycle. Covid or other viruses cause another stressor on the body on top of the many other existing stressors which ultimately lead to the ongoing activation of danger signals by the brain and these chronic conditions. I hope that helps.
Research is showing a leak in the blood brain barrier, think it was done in Ireland on long Covid’s patients. It could explain the cognitive dysfunction, due to the area of the brain that is damaged
My question too, because I know friends that are more people pleasers, overarchievers and perfectionists than me and don’t get long covid. I’m even pretty laid back and still long covid. There had to be a genetic component in getting long covid. I believe in all the nervous system stuff but it’s still strange that some people get it and some not. I wonder why.
@@Yentl-gx2cm I think you are right about genetics. I had my genetics done and it came back that Im more prone to inflammation and break adrenoline down quite slowly which presumably means I tend to sympathetic.
@@Yentl-gx2cm... also my detox and energy pathways are a bit rickety not functioning great. Ive noticed that some other people with long covid had symptoms before the illness like Intolerance to chemicals and mcas symptoms.
Yes it seems to be. GET can be extremely harmful and it further disabled me. There is a VERY GOOD reason the NICE guidelines don't recommend GET for MEcfs anymore. This is NOT any different than what ever NHS physio has been using for decades. It's also no different than GUPTA or the Lightening processes- just rebranded to make 💸 from 'long covid' patients. If a LC patient has no PEM however then graded exercise may be appropriate, and these are the patients most likely to recover spontaneously anyway (and then put it down to brain retraining, yoga, or whatever).
You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system. Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause. With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you. I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low. When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way. The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me. Hope you guys can alternate your perspective so you can heal too! Coming from an academic educated person! Good luck :)
With LC the whole thing is kicked off by a viral infection which damages any cell with ACE2 receptors, afaik. We've seen nerve damage in the form of smell, taste and hearing (I have tinnitus caused by covid). So it makes sense the nervous system would be attacked in other ways. Nerve damage is going to take some time to heal, but the symptoms caused by the damaged nervous system prevent healing. I've found anything that reduces stress on the body will result in space for the body to heal, so you hear of extremely variable success stories. People are affected differently so something that works for one person may not work for all. I disagree with the assertion the body is fine, the virus has potential to cause real damage, and there may be some forms of viral persistence, which isn't at all uncommon. Even doctors that fully deny long covid is real have some amount of success diagnosing it as anxiety and treating it as such.
Definitely something missing from this explanation. I've been nearly better more than once, felt no fear at all about activity and have relapsed when I did too much. Moving when still unwell goes very much against my experience.
I've experienced exactly the same thing. When I'm not flaring, I totally forget that I ever had an issue and I happily go about my life. I'm doing some of this brain retraining at the moment and I'm hoping that the answer is that although my conscious brain wasn't fearful anymore, my subconscious got triggered by the exercise. Who knows...
You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system. Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause. With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you. I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low. When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way. The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me. Hope you guys can alternate your perspective so you can heal too! Coming from an academic educated person! Good luck :)
Mine started November 2020 post Covid. Going on 4 years of yo-yo healing from relapses via virus or vaccine. My Dr is supportive but does not really get the whole picture.
This sounds like a load of shit to me I’ve been feeling like hell since February of 2023, I was trying a lot of vitamin b12 and D3 that didn’t seem to help much, now I’m trying NAC, Quercetin/with Bromelaine and Nattokinase. But I will try to do more exercise thank you.
@@dawnsummers6189 copy from another post: You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system. Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause. With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you. I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low. When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way. The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me. Hope you guys can alternate your perspective so you can heal too! Coming from an academic educated person! Good luck :)
Any mammal will sit in a corner, rest, sleep and wait until recovery. Us humans however will do a thousand things, from yoga classes to taking medication to fighting symptoms. Eat, rest and sleep and waiting should be applied way more often than we think.
Long COVID feel like Symptoms ---- Extreme tiredness (fatigue) feeling short of breath. problems with your memory and concentration ("brain fog") heart palpitations. What 3 systems help maintain homeostasis. The human body maintains stability or homeostasis through the coordinated work of all organ systems, regulated by the nervous and endocrine systems. Homeostasis involves constant adjustments to maintain a stable internal environment, with examples including the respiratory, excretory, and endocrine systems. Biological homeostasis is the ability to maintain relative stability and function as changes occur in the internal or external environment. Organisms are viable under a relatively narrow set of conditions. Examples of homeostasis include the regulation of body temperature, and the balance between acidity and alkalinity. It is a process that maintains the stability of the organism's internal environment in response to fluctuations in external environmental conditions. Three examples of homeostasis are: Body temperature regulation. Blood pressure regulation. Blood sugar regulation. Homeostasis is not static and unvarying; it is a dynamic process that can change internal conditions as required to survive external challenges. What happens when homeostasis Cannot be restored? Sometimes, however, the mechanisms fail. When they do, cells may not get everything they need, or toxic wastes may accumulate in the body. If homeostasis is not restored, the imbalance may lead to disease or even death. How do I get my body back to homeostasis ---- Modifiable lifestyle habits such as diet, exercise, sleep and stress management greatly impact homeostasis and overall metabolic health. Measuring blood glucose levels can provide insights into your body's response to different stimuli. Adopting healthier habits can improve metabolic health and conditions like PCOS. What diseases affect homeostasis? Diabetes, a metabolic disorder caused by excess blood glucose levels, is a key example of disease caused by failed homeostasis. In ideal circumstances, homeostatic control mechanisms should prevent this imbalance from occurring.
My take is that in many cases there IS something wrong in the body but that by putting our nervous system into rest and digest we give ourselves a much better chance to heal and get back to homeostasis. Very much a believer in this type of work. 👏
I agree. I haven't watched the whole interview but it seems like they're saying it's all just a perception by the brain. I don't agree with that at all. I agree with you in that there is something wrong with the body. The nervous system is over taxed by stress, trauma, viral infections, concussions etc. and the body gets into a defensive mode and shuts everything down in order to recover. It could be that at a later point one becomes scared to slowly start to get back into the real world, but I do believe there is a mechanism that the body is going by in order to protect itself from damage.
Yes! My take on it too. Mild cfs here before vax created a storm in my body. Now NS stuck and brain also stuck. This side of it harder to understand and easier for people to think it means ‘just think happy thoughts’
- also let’s not fob off the impacts of viruses etc
We also know that a lot of people with me/cfs DO have actual structural damage if you look at the right tests- CCI, tethered cord, weak connective tissue caused by MCAS from viruses and hypermobility. I think there is a place for autonomic reconditioning, but it usually isn’t the WHOLE picture
I kept thinking, because I got sick in a motel room in 1981 that I lived in for 6 months that used a well for a water source.
Fast forward to now....I just found out my home town of Saskatoon,saskatchewan, Canada has high levels of lead in the city water supply...higher than Flint Michigan!! No wonder I flunked gr 7 and gr 9 and dropped out of school.
I too believe there is still a common denominator that the science hasn't found ...YET. I think my hunch lies in vaccines.
One look at gulf war illness...yes ,the soldiers were subjected to high levels of burning oil wells etc. ...BUT....they were also given up to 15 or more vaccines. As you may know...gulf war illness is sooo much the same symptoms as ME/CFS.
@@kaseyahlstrom9189yes! They're now finding differences in muscles, mitochondria and immune cells! But the autonomic immune system and digestive system are connected to the other systems and we have more immediate control over them than the others.
WOW, a doctor who actually educates herself about chronic conditions and WANTS to work with us?? In 20 years with ME/CFS and seeing dozens of practitioners, I have never met a doctor like that.
She's been amazing to work with
There are thousands of doctors who LOVE working with desperate patients willing to give every cent they have, especially when their treatments don't work and you can milk them for a long time
@@ratfacekickso you are saying she is milking patients with her treatment?
I'm taking Dr. Kennedy's Long Covid course right now and it's been the last key to get me to full recovery- she's amazing
To me, as someone who has been through this for 20 years, I think this is what was called a nervous breakdown in the past. All doctors did was send the person to a sanitarium to live out their lives, never getting better enough to return to regular life. Now we understand neuroplasticity and have figured out how to apply it to the nervous system, which actually did have a breakdown. Now we have a breakthrough. We aren’t crazy, we have an overactive nervous system. And we have a way out!
Very refreshing to hear that some doctors are now embracing this information, the realization of how powerful our minds are and how profoundly healing deep relaxation, brain retraining and habits / lifestyle change can be in not only getting fully better but becoming a even better healthier version of you!!
Loved every moment of that, great interview Raelan and Rebecca, well done!!
I guess the storm is all about becoming a better version of our self!
You nailed it! absolutely it is@@germanside7890
Wow. I am in tears. Wonderful to hear a doctor talking so much sense.
This is my doctor!! Dr. Kennedy is amazing:)
@@FRL2445 did she help you recover?
@@Dylan-od2mpyes highly recommend her online class!
@@FRL2445 I applied so I will inform my progress later her in the comments
6:00 Absolutely agree. When I first went to a doctor, because I was feeling unwell, I thought he would come up with a plan, a solution, but instead I got nothing else than a big bill. I had to find solutions myself.
Wow, what an exceptional, empathetic women!! To be so totally devoted actually had me fighting back tears . After nearly dying from the vaccine as well as having long term CFS ,Covid 3x and Long Covid there is understandably a fear factor in me. Thank you both so much from the bottom of my heart as what I have further learnt from this interview will help my brain retraining I’m presently doing. “ Bit by bit “
❤️❤️❤️
I am same.. just starting w this blog.. it's gold🙏❤️
Good luck Brenda, there is so much out there these days to be able to help ourselves Raelan has so many wonderful interviews where you can learn a lot, just go easy so you don’t get overwhelmed with all the information 🥰@@brendabrenner2891
The vaccine has caused huge harm to many!! Wishing you better!
Many thanks 🥰@@mirandaandrea8215
I listen to this with such mixed emotions. Relieved and encouraged that medical pioneers like Dr Kennedy are really putting it out there in terms of new discoveries, revelations and research while at the same time depressed and frustrated that in the UK at least, there remains a culture of dismissing and gas-lighting patients like myself with no mention or knowledge of any of these new developments. It is like inhabiting an alternate reality which is why like so many, I see this channel as a real life-saver and beacon of hope and possibility. I hope you realise just how essential your work is, Raelan and how you shine a light in the darkness for so many like myself. So so grateful.
So happy to hear you found this useful, Steve!
Fingers crossed you take these insights and jump into an happier and brighter part of your journey ❤️❤️
I am in the UK too and don't see doctors unless it is an acute problem. It was this channel that introduced me to the possibility of recovery, and I chose ANS Rewire. After 7 weeks I am back out running after a 19 year break with delightful Fibromyalgia and CFS 🙂
@@AliWade1971 I think we're singing from the same song sheet, as they say. I learnt very early on not to do the 'head against a brick wall' thing with the NHS, my GP or neurologist. And interestingly, I'm two thirds through ANS Rewire as we speak but I would have heard of none of these possibilities without Raelan and if I could give her a dame-hood I would! Wonderful to hear you are rising above and doing so well.
@@AliWade1971 Wow, Ali! Congrats! Thanks for sharing this!
@@stevebarlow1959 Yes, it was Raelan who introduced me to the idea of actually recovering too. I agree, she deserves a Dame-hood! She's a real heroine! Are you making any improvements doing ANS Rewire?
Thank you so much for this interview!
This has become my go-to channel for actionable intel on Long COVID. I can see a path forward based on what Dr. Kennedy described (and it's a joyful, peaceful path). I'm also finding the Curable app to be a useful, low-cost tool. Thanks for introducing that to us as well.
I've gotten more from this podcast in a couple of weeks than I've gotten from the medical establishment in over a year. Your work here is truly a gift.
Watch Dan Buglio on TH-cam as well. Amazing info that helped me heal from long covid
Yes, we need more doctors to do this....and more that also take insurance so we can afford them!!!!!
I saw Dr. Kennedy on a q and a from PPDA Dr. David Clarke. and so glad to see this!
I did the Be Your Own Medicine course with Rebecca Tolin and it uses all the techniques discussed here. We even had a Q and A session with Dr Rebecca Kennedy as part of the course! This approach is working for me!
Thanks for sharing. Are you seeing improvements? How long did it take?
@@delitecreative I have been slowly, slowly improving for about 5 months now. All the progress has been going up.
What exactly does that treatment entail?
@@tanyawieczorek6603 exactly my question!
@user-kq7ks5dn6j
What fantastic news! I'm so happy that you're making such progress after taking my Be Your Own Medicine program! Slow, steady progress is the most lasting kind. Keep at it, my friend!
To those who asked about my Be Your Own Medicine program, it's a mind-body recovery program. We use neuroscience, somatic meditations, brain retraining, nervous system regulation, emotional processing, graded exposure and other techniques to recover from Long Covid, ME/CFS and other symptoms. You can learn more on my website (which is my name) or watch Raelan's interviews with me!
Indeed, I do feature guest experts like Dr. Kennedy!
Doctors are learning to help us. Prayers!🎉
The "Lords prayer" will dial down the fear. I had insomnia at 8 yrs old and my Dad taught me the Lords prayer. From that evening on i realized that i could slept and I had a heavenly Father that would keep me safe. I'm 70 now and still love the Lords Prayer.
💯 Amen! I love hearing how your dad taught you that. I’m an ex-new ager who was well meaning but lost & deceived. There’s nothing better than the comfort & safety found in God’s grace, mercy & love… and salvation through Jesus by he did on the cross for us to pay the debt of our sins. Eternal security in this fallen world is priceless. ✝️🙏🏻💟
I still do the Lords Prayer to settle down.
That's a good one. i have another verse that I recite in my head to calm me down. Works really well!
I used the Serenity Prayer ALL THE TIME during my long covid recovery. Totally agree!
What a beautiful, genuine, intelligent woman! Thanks so much Raelan for inviting such a precious gem on your channel. I was with you on wanting to hug her! She just exuded empathy and hope!
thanks Raelan, had my first consultation with Dr Kennedy two weeks ago. Very special person. Hoping for the best.
Were are she location
Portland Oregon
Thanks ! Do you got help is is medication or what
What did she say?
What is her website, how can I connect with her. She is hard to find on the internet
Refreshing to hear doctors validate this whole nervous system approach. Especially now with the amount of recovery programs out there. We really just need the right information from a trustworthy source.
Grateful to these two incredible hearts serving and healing the world of chronic suffering!
Thank you Raelan and Dr Kennedy for a great interview. I have listened to some podcasts by Dr Howard Schubiner but how you explain whats going on is much more understandable (to my brain anyway)!so thank you. Thank you for saying that as a patient its not my job to figure out whats going on, which is what have been doing for the past 3 years+ with long covid.
Thank God Dr. Kennedy had the courage and integrity to leave her practice with Kaiser to develop real cures for her patients! She is a pioneer and a true healer. 🙏
Love this interview! Dr Rebecca Kennedy and Raelan are the super stars of this Chronic Illness world! ✨🌟✨
Many thanks to you both! Appreciate the links to the studies, Raelan! 💛🧡💜
Aw so sweet of you to say!! Thanks for sharing and I'm glad you found this helpful
I suffered with bouts of CFS for 4 years. After Covid my son and I went downhill slowly. We both continued to get worse and worse until we found mold in our apartment and heavy doses of EMF from a bunch of smart meters. Once we moved out and implemented a mold detox we have slowly improved over the last 9 months. We are both almost back to normal. Sometimes this can be triggered by environmental toxins and not some spontaneous disease. Relieving the stressors, no matter where it’s coming from is necessary for healing. There is a lack of awareness is the most important part of finding a road to healing.
One of the best interviews to date! Though, the recovery stories hit different too !
Such a brilliant interview. Dr Kennedy has such a clear way of explaining these concepts. This is what I’m using to recover from long covid with POTS and PEM etc since 2020. I’m making great progress!!
Loved this interview. I cried with relief at hearing a medical doctor so clearly explaining the scientific basis for the mind body model. I will listen again. Thank you. ❤
This is so clearly explained. A relatively new concept and Dr. Kennedy explains it perfectly. She brings the concepts to the layman so well. A great communicator! Thank you so much.
WOW YES!!!! This is the best interview. How great to hear her mention that some just had the vaccine and had these issues -me and many others fall into this category and have been so desperate for answers in healing - so this is sooooo helpful
I have been to so many doctors and they all say the same thing. "Well, we just don't understand Long Covid." AHHH, it drives me crazy every time I hear that. Its nice to see a doctor who is saying something different.
And that they say its all in your head drives me crazy, even telling hypochondria.
I know right@@germanside7890
Get the book medical medium - he understands how to heal and hundreds of thousands have. Read the amazon reviews!🙏
Thanks for the combat. I got that book early on and tried everything. It was good, but it didn't take care of the problem, sadly. @@loveishappiness7330
Start reading the research papers about covid and long covid. This gives you more understanding than drs have....(Those drs haven't bothered to look at the research.) It may not have treatments but most research papers try to answer questions...trying to understand the disease. Many academic research papers have free access. If not, click around til you find free access. Google scholar should have info too.
This doctor is a rare breed, she’s broken out of the mould! I don’t agree entirely with , getting better is just the doctors job though! I believe we all are responsible for educating ourselves, being our own advocates, taking control to feel empowered! I have learnt much over the years and if I’d listened to doctors would be medicated up to my eyeballs! I take no pharmaceuticals and have taken charge of myself! There is hope for everyone and Raelan you are inspiring!
The missing link for me has been understanding the nervous system!! Game changer! I recommend learning as much as you can on this! Deb Dana (book) How To Befriend Your Nervous System is a good start! Polyvagal Theory ! Dysregulated nervous system makes complete sense!
This is such a fantastic interview and it really made it click for me. Dr. Kennedy has a TH-cam channel where she goes more in depth with this and I highly recommend watching it.
In my opinion it IS the body because I believe it's metabolic. 28 years of severe ME/CFS suffering. Bedridden for most of my life. More than 10 years of rehab. With every type of therapy imaginable. I'd just have to live with it. Changed my diet. Now I have a better quality of life. I want to become a coach so that I can help others, so they don't have to go through the same hell I went through. Imo, this doctor, though well intended, might not to understand ME/CFS/LC to a deeper degree. Her theory of the unconscious brain is old theory, but from my 28 years of experience with many of my peers nowhere close to high success rate.
So what was the biggest thing that helped you heal? How much improvement have you had?
@@sjwells04Okay… then what do they have if not ME/CFS? They have all the same symptoms. I am sure there is no one-size-fits-all approach to recovery but what pushes you to make this categorization? I’m curious.
@@sjwells04speaking of invalidating. Wow. When they say rest. It's not overnight. The healing from rest comes from years of healing and in small increments.
Resting is not only physical, its the mental rest and emotional rest aswell, it's a battle.
Please don't invalidate others, especially not after complaining that someone else is a little.
Agree, ME/CFS is the body. Some went wrong. Now, many people reach cfs for different reasons and LC people, some seem to be able to recover so her approach could help some or a specific subset but most cfs people it won't do anything. Mine fluctuates for not reason at all. I've paid attention. We don't do this with cancer.
@@bizonc But the brain and nervous symptom are the body.. I'm bedridden with mecfs and just don't get why we are not finding any bigger structural clues for those conditions. Imo medicine is just focusing on the symptoms instead the root cause to sell pills. But maybe that's not the way, at least not entirely. I'm sure Diet helps as well as some medicine, but how do we recover (should be possible if there's no bigger damage?) 😔
Thank you both! You are saving lives!!
Such a great video Raelan! Dr. Becca Kennedy makes it very easy to understand!
Now I just need patience with the process!
Thank you both so so much! This is our lives and the help and validation means everything 🙏🏻🙏🏻🙏🏻
Post-Exertional Neuroimmune Exhaustion (PENE) is a neuroimmunological response of the body to exercise that is characteristic of ME. It can follow even low levels of physical, cognitive or sensory stress because the body is unable to provide enough energy on demand.
PENE manifests itself in an aggravation of the basic symptoms, which can occur immediately after exertion, but also after a delay of days. Recovery time varies depending on the level of illness and from person to person. It usually lasts more than a day and can last for weeks. Any deterioration in condition can be the new baseline condition. The PENE manifests itself in proportion to the exertion, i.e. the heavier the exertion, the greater the subsequent aggravation of symptoms.
You fulfill the PENE if you feel noticeably worse than usual after a day in which you were more active than usual. The deterioration is not only expressed in exhaustion, but also in symptoms such as pain, difficulty concentrating, sensitivity to light, noise, smells and chemicals, flu-like symptoms or other neuroimmunological symptoms.
Great explanation 👏
@@mpcu225 this is because you’re adding more stimuli to the body / nervous system because: more movement is in the beginning still interpreted as danger. So you sleep worse and feel worse. But I know a lot of people that did overcome this. You just need to start really really small so you don’t notixe this to much. Maybe 5 waves with your arms a couple days. Then 6, 7, 8. Just really slowly progressing. Or if you have no POTS then start cycling a few sec reallly slow on on hometrainer and increase a sec per 2 days or 3 days if u can. Slowly moving forward and getting more succes moments in the moving progress.
It was such a gift when I got sick as I reevaluated my whole life. The way I had been living (in survival) for a long time created the symptoms as I lived in fear. I used dr joe dispenza and Wim hof to calm everything back down. Takes time but we are meant to heal ourselves and these illnesses allow us to learn now 🙏
And who's responsible for putting fear into us? One look at the fake news tells of stories made up to put fear in us all.
Just when I was feeling so helpless , after having another set back, this video has given me hope and the strength to go on. I am going to recover and know that these set backs are part of the journey. It is so easy to start to overdo things once you are feeling a little better. So I must learn to walk before I can run again.
You've got this, Nicola! 🧡 🧡
Thanks for all your interviews!
I really appreciate your support, Sachin! 🧡 🧡
Fantastic interview ❤️ A doctor full of compassion and true wisdom!
Before I retired, as a manual therapist I studied the "pain in the brain" models of Lorimer Moseley and David Butler. This was in the context of acute-turned-chronic musculoskeletal pain and recovery. I'd like to say they do have some application -- acute muscle pain can chronify and widen into regional pain syndromes, physically changing both facilitating and dampening nociception pathways in the spinal cord and brain. This can also involve inflammatory markers at the original site of injury and beyond.
But this is a very specific pain processing model. It does have demonstrated value for some chronic musculoskeletal pain patients, but it does not begin to explain all the effects of frank insult to the body from -- for example -- viral infections.
As a tool, "brain retraining" may be quite helpful. There's no harm in trying it out. But it's not, and never was, a one-size-fits-all model, and is more likely (imo) to emerge as one potential approach in a larger toolkit.
I loved watching this video. More validation. I am so on this page, but still struggling with the fine balancing act of doing vs doing too much. Can't quite find my pathway out. Or, maybe I am on it, it's just slower than I like!!
This video made my day❤ Thank you Raylan, thanks to you I am so full of hope and are slowly getting better🥰 I watch every video, an this is my favorite ☺️
Much appreciated, Passepartur! ❤️❤️❤️
I think a mind body approach can help, in conjunction with appropriate treatment. There's a thorough Nature article on the physiological effects and symptoms of Long Covid. I think a mind body approach can help healing. But most people I know who are recovering are using a combination. The spike protein disrupts acetylcholine receptors and gut dysbiosis disrupts neurotransmitters like serotonin... these are two physical reasons for nervous system dysregulation that can be addressed.
wonderful. thank you
Raelan I wonder if clinical hypnotherapy would help ? Can you do an interview at some point on this ?
Thank you for the description of how the brain training works
“If seventeen things don’t work, try the eighteenth.” What a beautiful message of hope. ❤
So true! 🧡 🧡
This is such great news! Mind/Body research must be brought into the main stream.
Unfortunately, the kick back has been intense up until now, even though their us scientific evidence.
There is no profit in people healing themselves with these techniques, which will always mean there is kick back from those benefitting from us staying sick.
A little more than half way in and this makes so much sense and here's why-
I used to suffer from severe anxiety until I found a method that used behavior (I'm a canine behaviorist so that caught my attention) to let the primitive brain know that the anxiety wasn't needed as opposed to telling the brain through relaxation, centering etc. In three days, I was living normally again and in 3 months, I was over my anxiety completely. Now, I'm dealing with long COVID and can't wait to try this.
Thanks for sharing. Can you please tell us what this behaviour method is?
@@jog5289 I don't think it has a name and there seemed to be a lot of people using it but I wrote the steps and the way I used them. This is from a pdf that I created-
1. Welcome- there is no reason to fear anxiety. Realize that your anxiety is trying to help you by doing its job keeping you safe. Your job is going to be to let your anxiety know that its services are not needed. Welcome your anxiety to change your anxiety.
2. Separate- when anxiety or panic strike, you must remind yourself that your anxiety and panic are not you. It is the reaction of the primitive part of your brain. You can separate yourself from it and put the modern brain in control very easily by recognizing that it’s just the primitive part of your brain causing your anxiety.
3. Challenge- Once you acknowledge your primitive brain is creating anxiety and panic, you need to start teaching it that it’s not needed and you will be safe and secure without its help. You do this by staying where you are and challenge your anxiety to do its worst. Remember, anxiety and panic can't kill you.
Take each feeling as it comes and let your anxiety to make it as bad as possible. Allow yourself to feel nauseated, to faint or to have a heart attack. Allow your heart race faster, your throat to close up, your heart to burst out of your chest. Allow yourself to feel faint or even like you're going to die- remember that anxiety and panic can't kill you. It’s not easy but you need to hold steady and encourage those feelings until they start to subside.
4. Enjoy- After the feelings of anxiety start to pass, reward yourself and your modern brain by doing something enjoyable. It could be as simple as going back to what you were doing but, whatever it is, you want to get your mind off the anxiety and back onto something positive.
5. Intensify- As you gain control over your primitive brain and its anxious reactions, you have to continue the lessons by putting yourself in more and more situations where you would normally feel anxiety or experience panic to work the Control Process.
You should be making the situations more intense too. In the beginning, it may mean putting on clothes that were a problem before or not opening a door that is causing anxiety but you want to find situations that would have been even more difficult for you to handle before you understood how to deal with your anxiety.
Eventually, you’ll need to move on to more and more difficult situations. Whether you’re afraid of traffic, elevators or even flying, you need to start finding opportunities to experience them and work through them.
@@jog5289 It doesn't have a name that I know of and there were lots of people who had made videos about it when I was looking. Here's the steps that I wrote down-
The following are the steps to the Control Process-
1. Welcome- there is no reason to fear anxiety. Realize that your anxiety is trying to help you by doing its job keeping you safe. Your job is going to be to let your anxiety know that its services are not needed. Welcome your anxiety to change your anxiety.
2. Separate- when anxiety or panic strike, you must remind yourself that your anxiety and panic are not you. It is the reaction of the primitive part of your brain. You can separate yourself from it and put the modern brain in control very easily by recognizing that it’s just the primitive part of your brain causing your anxiety.
3. Challenge- Once you acknowledge your primitive brain is creating anxiety and panic, you need to start teaching it that it’s not needed and you will be safe and secure without its help. You do this by staying where you are and either silently and allow your anxiety to do its worst.
Take each feeling as it comes and allow to become as bad as possible. Allow yourself to feel nauseated, like your going to faint or have a heart attack. Feel your heart race faster, your throat close up, your heart feeling like it's going to burst out of your chest. Let yourself feel like your going to die because anxiety and panic can't kill you. It’s not easy but you need to hold steady and encourage those feelings until they start to subside.
(contued)
@@jog5289 4. Enjoy- After the feelings of anxiety start to pass, reward yourself and your modern brain by doing something enjoyable. It could be as simple as going back to what you were doing but, whatever it is, you want to get your mind off the anxiety and back onto something positive.
5. Intensify- As you gain control over your primitive brain and its anxious reactions, you have to continue the lessons by putting yourself in more and more situations where you would normally feel anxiety or experience panic to work the Control Process.
You should be making the situations more intense too. In the beginning, it may mean putting on clothes that were a problem before or not opening a door that is causing anxiety but you want to find situations that would have been even more difficult for you to handle before you understood how to deal with your anxiety.
Eventually, you’ll need to move on to more and more difficult situations. Whether you’re afraid of traffic, elevators or even flying, you need to start finding opportunities to experience them and work through them.
@@jog5289 I've posted it twice but it seems to have been removed both times. Oh, well.
What is the actual treatment, noone has said yet!!!!!
The treatment is, teaching your brain that you are save. A brain retraining program.
She mentions pain reprocessing therapy (aka neural reprocessing therapy). Howard Schubiner's free course is linked in the show notes.
not saying much about anything. nice ladies but it is nice to be on videos real ego boost but didnot help anyone
Noticing a lot of negative and skeptical comments in this thread. It's really ok for there to be many approaches to these conditions. Some work for some while others need something else. It should come as no surprise that the nervous system when highly dysregulated can produce dozens of symptoms. This doesn't mean it's "all in our heads" . It's all real. But for quite a few of us it isn't about a damaged body. Maybe it is for some but certainly not all. I am almost 100 percent recovered from a hellish experience of long covid using these methods. And it can be very cheap or even free. Dan Buglio and Jim prussack have incredible TH-cam videos that honestly is all anyone needs. All free. The curable app is very low cost. Please don't discount this approach wholesale. All the folks for which this has worked at not lying.
Well said, Legohouse! Much appreciated 🧡 🧡
Google PENE and PEM! 99% of all doctors have no idea of what it is about. I always bring my papers with me to every doctor, and until today ( since 2010 ) I found ONE doctor who knows about it it’s just incredibly what a nice feeling! I found a doctor who knows my illness!
I agree with you and would love to hear more bai it your recovery!
i remember taking a class in hypnotherapy 25 years ago. the teacher was retraining his brain after a stroke to create new pathways to regain lost functions. he talked about neuro-plasticity being the key. this sounds similar.
can this work for someone with a 'comorbidity'? like adhd, where the brain physically has frontal lobe problems? thank you for this video.
Wonderful talk. Thank you.
Raelan is absolutely right , like this post for example if you felt you were dying or going to die at LEAST once…
This doctor is clearly an empath, so kind and compassionate, sadly totally lacking in, many doctors who are shut down and just following the script!
❤ Awesome Interview.. Thank you so much for sharing and getting this information out there..
WOW... a doctor that gets it...
I just recently found your channel. Thank you so much for all that you do. Can you tell me if this brain training, nervous system regulating stuff can help people who do have tests that come back positive with Diagnoses or do have damage? Will it still work or help some?
Every Monday, we have our free recovery program, with Raelan Agle and the CFS Health Podcast!
I’m curious if Sarah Myhill would agree w this .She is very much in the belief that our mitochondria ,the powerhouses In our cells are dysfunctional.and I believe I have dysfunctional mitochondria.but I also believe it’s very possible I have central nevetous system dysfunction.Ive just never heard dr myhill talk about cfs from this angle and I so respect dr myhill
@@juliegoff1731 Why are you writing a totally unrelated answer here? Spam?
I enjoyed this content thank you abd Rebecca
In my bizarre journey with LC what I found very strange is that the first thing suggested to me by my doctors was olfactory training which is a form of brain training but they stopped there and went a lot of medical tangents after that.
Interesting. I hope you can find the right path for your healing.
She gets it
i AGREE WE HAVE TO DIG DEEPER , INVESTIGATE AND EXPERIMENT .
I have a chronic fever with the long covid. How would this help? I do understand where she is coming from!
Would the GPCR autoantibodies against the adronerge ß1 and ẞ2 receptors of the autonomous nervous system that are found with most of long covid and me/cfs patients also be considered downstream effects rather than causing the symptoms and condition?
Good question. I would think so. We in the west have an almost crazy view on healing and the medical world. We think its just the body or just the brain or just the nervous system. Mostly we think its the body having some damage or issue causing it all. While in eastern countries they have way less of people like us suffering from this. Because they know its al intertwined. They have a more holistic approach. Also top level athletes always recover by holistic approaches. The nervous system being hypersensitive causes us to slowly recover or not at all. Rafael Nadal had an injury causted by over sensitive nervous system caused by parent divorce. So yess there were things found in his body not properly functioning and making him hyperactive and sensitive for stimuli. Of course there are always chemicals that are released in the brain or organs because of this state and of course this has an effect on adronerge receptors. Man we in the west are thinking so wrong about these kind of issues. Always looking for things in the body, for symptoms, never for the root cause of problems, we always under value the effect of the nervous system on all our chemicals. And yess over time, as this over active state of the nervous system withholds us from getting a recovery, from sleep and when not properly treated getting worse and worse recovery every day. Of course you are going to find things in the body not functioning well. Ya’ll underestimate this do much because of our western minds thinking always its a or b. Never its a and b while both are a problem. But with nervous system issues, the word itself says it all, its the nervous system. And we need to calm in down and spirituality and calming words alone wont help when you’re severe. Its the slowly moving that gives the subconscious the believe that moving is safe, even though you experience debilitating symptoms. You can start with 1 second sitting up, 2 seconds sitting up (if with POTS). Or if u can walk through house but that’s it, then start with 5 sec cycling on a home trainer, when severe light sensitive like me, do it in the dark. Gradually improve with second. Not with minutes. That’s the mistake most people make. They thinks: im gonna move 10 min and be positive about it. No!!!! Your subconscious thinks this is way over its boundaries and thinks its unsafe. You need to start really small. Its not pushing hard and thinking positive. Its almost not pushing but doing so little improvement that the body barely notices and can adjust more easy. Just like tapering off a medicine for 2 years instead of 2 months have drastic better results and succes rates and less nervous system damage because of the super slow daily taper of 10% per month divided over 30 days. Only this is the other way around, now your building something up and you dont want extreme reactions which makes your subconscious feel unsafe and then throw in symptoms which makes your conscious brain also feel unsafe and this amplifies the signal even stronger back into the nervous system causing more symptoms, more feeling of unsafety, panic etc. Causing less proper sleep, less recovery, more systems in the brain out of whack because yess, all we feel is chemicals so ofcourse they will find small changes in the brain. But it’s the holistic picture. Y’all think to black-white and take to big steps because were used to respond acute on acute symptoms. Understanding this makes a life saving difference!
Thanks
Much appreciated, Graham! ❤️❤️
I did the lightning process and it is the biggest mistake I've made. I was gaslighted into believing I wasn't really ill, it's been 13 years now and I'm still not back to the level of health i had before doing it. Brain retraining doesn't work for many people.
Good on you to point out the dangers of the terrible ‘Lightning Process’, which has damaged so many with ME/CFS, especially children ‘treated’ by the clinic in Bristol.
@@nancyblake1679 plz tell me im suffering and was looking into the lightning process
What is the lightning process?
And it’s not just brain retraining. I see that most people who suffer from this illness a long time are very pessimistic in their reactions. And u know, I understand because you’re so sick for a long time. But this is not about brain retraining with positivity. The key about this is understanding the science and eventually movement is the key. But not starting to move like 10 minutes instantly and trying to be positive about if afterwards. This is wayy to overstimulating and you need to start so so small. I started with 5 secs of cycling in the dark and improving with 1 sec per 1 to 2 days. Now i’m almost on a minute and feeling a little better already. I’m getting more confidence in the moving part. But im severely light sensitive so i cycle on a hometrainer in the dark with as less stimulus as possible. No moving object. Also restricting stimulus is so important and focus on moving. I feel more safe by the day and i felt like dying for months with all the worst symptoms from getting visual snow to tinnitus, constant fight or flight, insomnia. You just need to start really small. And like she says in the video you cant change your subconscious with positivity or affirmations, its the slowly progressing in moving that makes you feel save. Even if you can’t cycle it could be just 5 seconds out of bed. And slowly second by second getting more and being convinced by the science helps your conscious mind staying out of panicking which helps the nervous system and de subconscious to feel more and more safe. Its more about the moving and understanding the concept. But only positive thinking and stress management will likely keep you stuck. Not all programs are the same, there many out there that do not know what this doctor knows and have only the “spiritual brain retraining” approach to a cure, which of course doesn’t cure at all. There is more pieces to the puzzle and It’s mostly the slowly building of movement over time and understanding that this will make you feel safe more over time! It eventually starts to improve sleep, improving relaxation and your nervous system, giving more room and speed to recovery, increasing hrv, its upward spiral. It’s possible, but i dont have any blood or urine results that look bad at all.
Wonderful video!
These interviews start to feel like advertisements for services and not as new strategies at getting back to full health.
I take a lot of notes on these interviews and my notes at 25 minutes are
Dr. Schubiners Work is used here.
Neural Reprocessing Therapy
Retraining the Nervous system
Moving will help but it needs to be within the right mindset. A sense of ease and safety and joy.
A feedback lookp needs to be created to feed that back to the brain.
Wow, stuff I heard like in 10 interviews.
A little more depth would be nice.
get a free consultation , she can't treat everyone from a small interview , every person is different
Read dr. Schubiner's book. It's very detailed. Also Alan gordon's The Way Out is very good also and would fill in a lot of gaps for you
I am using low dose nicotine patches for some time now, which make a difference. Nicotine is said to block the nicotine receptors of the nervous system making it hard for any Pathogens like the virus to get active. Also Nicotine restores a very important anti inflammatory pathway in your vagus nerve. PEM got better, walking is easier. Mood is a lot better. Relaxation is a lot better.
Your going to have get her on again 😊awesome 😁👍
That's the plan! ❤️❤️
@RaelanAgle This is the best interviewee! I'm going to share it with everyone I know, even though unfortunately your microphone is rather poor for some reason.
I'm so glad you found it helpful 🧡 🧡 And so sorry for the tech glitch!
Raelan that sweater is so beautiful and cool! :-D
Thank you.
This makes me cry. And make me Want to study medicine. Kind regards Long covid +2 years
Anthony William - medical medium books are a must for anyone with chronic fatigue and chronic health conditions 🙏
Loved this interview ❤
Thank you Raelan god bless you 🙏🏾
WHAT IS THE DIFFERENCE BETWEEN THIS THERAPY (BRAIN RETRAINING) AND POSITIVE THINKING AND MEDITATION?
I think for one the education piece that you're actually safe and explaining the science behind it and why the brain creates symptoms. There are different type of brain retraining and styles. Some are about circumventing negative patterns or emotions and going right into joy by using your imagination to generate positive chemicals, while others (more the Schubiner style approach) are about bringing love and holding space for the symptoms while knowing that they're a messenger, but they are not damaging you (and connecting to the emotional piece). This is really simplifying it though! The people who have the most success with brain retraining often realize intuitively or with help from the program or teacher that it's not just thinking positive, it's about bringing in the felt senses/emotions, connecting it to the body. Hope that helps!
Literally no difference!
I too thought I was thinking very positively, because I associated being positive with a strong desire to get my life back, and an optimistic outlook that things would be good and I wouldn't crash. And I meditated twice a day, which was very supportive. But then I took a course and realized that I had a lot of thought patterns and lifestyle choices that were keeping me in fight or flight. This included self-criticism, would-of-could-of-should-ofs, blame spirals, scanning for my key symptoms, googling my symptoms and going on disease forums (helpful in first year, but not by year 3), high-adrenaline TV shows, scary documentaries, TV news, online news sites, Twitter, detailed conversations with friends and family about their health stuff (I was concerned my friends would get ME/CFS), trying to save people on the internet, are some examples. Also, brain retraining often involves tools like one hour of visualizations per day, making the imaginations come alive in your body at the felt sense level. Somatic brain retraining programs include somatic tracking and holding space for or when the time is right going into the emotion which can be powerful stuff. The somatic programs are often about encouraging people to hold space for healthy emotions like anger rather than suppressing their feelings, very different than more positivity focused ones.
THANK YOU. 🌷SO ... HOW DO YOU KNOW WHEN THESE SYPTOMS ARE MESSAGING YOU THAT THERE IS DANGER AND YOU MUST BE MINDFUL OF YOUR ACTIVITIES MAKING SURE YOU DO NOT OVERDO IT? @@HealwithLiz
@@wildgardens You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system.
Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause.
With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you.
I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low.
When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way.
The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me.
Hope you guys can alternate your perspective so you can heal too!
Coming from an academic educated person! Good luck :)
So what you are saying is you can cure people with severe ME by changing their mindset. People are dying of ME. Leaks have been found in the blood brain barrier in long covid patients. So much research is coming out showing brain injury in these patients. Positivity does not cure brain injury. It may make you feel more cheerful but its very doubtful it’s a cure. Is this treatment free or is this a sales pitch ? If it’s a cure, help the dying for free!
🎯
Maybe consider that this works for some but not for others. It has worked brilliantly for me and I had severe brain fog and neurological symptoms of long covid. It's so much more than positive thinking. Be open minded. This approach is helping so many people.
It’s not about only positivity at all. Did you listen at all? Its about slowly getting in to moving again which signals the subconscious after many times of performing it that it is save. Even though you have these constant symptoms. I’m severe light sensitive with a lot of debilitating symptoms like severe tinnitus, insomnia, anxiety, not being able to function or work or read, visual snow. Slowly starting cycling on my hometrainer in the dark and only adding a second a day really helped me getting out of this situation. I started with 5 seconds. Adding a second a week, now i’m on 45 secs. Feeling a little better. And yea I almost died. The things you mention:
"The identified and potential effects on the brain, where certain functions are impaired”, are due to the nervous system being extremely overactive, preventing the body from recovering. If you don't fix this, after a really long long time you will eventually die from all the systems that start to fail. No shit they find some things in the body eventually. The cause is the nervous system. Just as we long thought that mitochondria were the problem for long COVID, we now see that they function properly again when people address the overactive nervous system. You're confusing cause and effect, my friend. And yes be aware of sales pitching. But I don’t find her program and classes to be expensive and reasonable: Not low but reasonable. The problem for the price aren’t mostly doctors like this but insurance company’s and pharmaceutical companies that only want to cover drugs as medicine because they don’t cure the root cause and they earn trillions of dollars because of it. If this science is getting more and more spread through the world and more people are aware en standing up then eventually they need to follow. But I think this will take a lot of years before this changes. The money they earn is so high that i doubt they will change their vision untill the moment arrives that so many people are sick that companies are suffering from a too high percentage of sick employees that it becomes a expensive problem of society. Then it will change. So unfortunately, a lot more people need to get sick before it will change. That’s the fact. But i don’t think this doctor is out there for the big bag. But I could be wrong. I do know that your theory lacks a lot of foundation and your confusing the effect of hypersensitivive nervous system (issues in brain, mitochondria etc) with the cause of it, namely the hypersensitive nervous system.
It's funny to call "New Medicine" the principles that Sarno was applying half a century ago, but yes, medical world is a bit slow.
Exactly what I was thinking.
35:50 the testing is normal. Earlier in the interview it's been said that a lot of processes in the body change and the tests are not normal after all. It's the wrong things that are being tested. I think it's important to mention this.
I agree. They are just performing the wrong tests. Dr.Bruce Patterson has developed a new diagnostic test measuring specific cytokine levels. He claims he can differentiate between Long COVID from acute infection, Long COVID from vaccine, and CFS/ME.
Patterson believes the symptoms of these diseases result from inflammation of the blood vessels of the Brain. Specific Immune System Cytokines result in the different symptoms. He has developed a 6 week treatment protocol based on Cytokine Antagonists that has recently been accepted by Insurance Companies.
Agree 💯.. all my tests from. PCP are Normal" that because we don't have the right TRSTS, nor the updated machines to " see" clots, brain damage, etc.. mt Sinai , top clinics do.. my neuro is sending me fir an MRI, but will show nothing, as not hi tech .. continual merry go round🙏❤️
@@brendabrenner2891 Hey Brenda, if you're not seeing someone who has expertise in success rates for ME/CFS or Long Covid, then I question the benefit of spending your morning or afternoon in an MRI tube getting your brain scanned. Also, I question the benefit of looking for damage all together, because it won't likely inform treatment just scare you or make you feel like you wasted your time. There is no magical healing pill if one would have damage. I've yet to see any recovery stories out of Mt. Sinai, but perhaps there are. That said I agree with @Forisma as many people with ME/CFS and Long Covid are helped by thorough functional tests, that might reveal other things like heavy metal exposure, mold exposure, and severe vitamin and mineral deficiencies. I myself was helped by finding I had severely low Vitamin D, low Magnesium RBC, results from a Genova GI effects test, and a urine test revealed 107 times the safe limit of exposure to a mycotoxin produced by a certain species of mold later found throughout my house (the lab was called Great Plains Lab and is called Mosaic). My PCP found nothing and just weighed me and also brushed off my EBV acute reading. That said to ultimately get better (beyond leaving moldy house, getting more sunlight / Vit D and Mg), the stuff that Dr. Kennedy is talking about was what helped heal me. The neuroplasticity / nervous system work and lifestyle stuff. I did not spend the rest of my life getting vitamin IVs in the functional medicine clinic or go down many rabbit holes you can go there, I chose to focus on truly healing the root, my nervous system.
Medical gaslighting is still alive and well. 😢 I suspect it’s an ego defense mechanism when they have no clue how to help.
They can’t acknowledge the non liable experimental emergency authorisation(no three states of clinical trials)Genetic jab.I really hope you get better but you have to be looking in the right place
As an md even if I’d like to implement this I would not be allowed by my medical college. I fully believe in it and it breaks my heart I am not allowed to use it
@@genevievebaril4746 Thanks! I am now getting the help I need after over 40 years. 🙏🙏🙏
@@genevievebaril4746 That’s disheartening. Like so many institutions, the medical system needs a massive transformation. Whatever happened to First do no harm? That’s a rhetorical question. I am glad there are doctors like you who are at least aware of the limitations in the current approach to chronic conditions.
So, how can we learn what is the way to heal?
How is this different from the graded exercise which ruined my life for years? I’m seriously asking, not critiquing.
How did you perform graded exercise? I felt also worse and worse because i added to much time every week to my “cycling” on the hometrainer. I added a minute or 2 and it was getting harder and harder. It was just wayyy to fast for my nervous system to get used to. Then I understood that how more severe our nervous system is over stimulated, the slower you need to go. Like tapering off a AD. The slower you go, the less withdrawal symptoms, the less panic and overstimulation of the nervous system, better sleep and higher chance of success and the nervous
system gets the chance to actually adjust. But with taking to big steps you just smash it out of whack and that’s why most people can’t taper off and feel worse and worse. The brain doesn’t know anymore what is up and down. You develop so many symptoms in that you feel in the conscious mind that you can’t calm yourself anymore and people stop tapering and believe they need to take it for a lifetime. The neuropathways of failure and danger with tapering off is getting reinforced because of this. Thats why people start to believe they can’t. But they just go way to fast! Like the western society, we all keep running and running even when we need to slow down we always go to fast. Its the problem of this age. Its the same case with graduated exposure for movement but then reverse engineered. You start with seconds cycling on a hometrainer (for me in the dark because of extreme light sensitivity) and you add not a minute but a second a day. Just not like most people who taper off instantly 10% at the end of every week. No not 10% on a single day but 10% in a month, take it way slower, and then divide it by 30 days and then taper it off by minimal amounts every day which’s lowers the impact on the nervous system so so much. I have been there and done that. The same is for moving. Add a second a day. Or if bed ridden move your arms for 10 sec, than 12 sec, then 14 sec. Or sit up straight when POTS for 5 sec. Then 6 sec. 7 sec. 8 sec. And believe in the science. Try to keep your consciousness calm and not go to far because then the subconscious will amplify the pain because it feels the step is to big and considers it as danger. It won’t notice mini steps. And then you increase the feeling of safety and success. That is key. Combine this with brain retraining, positive thinking, laying down for 20 minutes in the dark every 2 hours with slow and nice stress relief music, positive affirmations and knowing there is no wrong in the body and that you can handle more than u think. But you need to go REALLY slow. Extremely slow. Because if u add instantly 1 minute, then u reacting like the doctor said in an Acute way and the subconscious will respond in an acute way with danger and you will get worse and worse. The close statement: the most people follow way to quick build up schedules that constantly keeps activating the danger system again and again and then develop neuropathways that gets reinforced with failure and danger, making your nervous system worse and worse and giving more and more symptoms, like you. You can do this! :D
Interesting discussion but the question still remains. What is it about the Covid virus and/or the vaccine that has caused the mal functioning of the sub conscious brain? And why do only some people get Long Covid, specifically among highly active people. Most people have had many types of infections but not ended up getting long Covid. In short, something altered the nervous system or brain, but what is or was the trigger?
I guess active people carry certain behaviours and personality patterns (overachievers, people pleasers, perfectionists etc) which keep them in a chronic stress cycle. Covid or other viruses cause another stressor on the body on top of the many other existing stressors which ultimately lead to the ongoing activation of danger signals by the brain and these chronic conditions. I hope that helps.
Research is showing a leak in the blood brain barrier, think it was done in Ireland on long Covid’s patients. It could explain the cognitive dysfunction, due to the area of the brain that is damaged
My question too, because I know friends that are more people pleasers, overarchievers and perfectionists than me and don’t get long covid. I’m even pretty laid back and still long covid. There had to be a genetic component in getting long covid. I believe in all the nervous system stuff but it’s still strange that some people get it and some not. I wonder why.
@@Yentl-gx2cm I think you are right about genetics. I had my genetics done and it came back that Im more prone to inflammation and break adrenoline down quite slowly which presumably means I tend to sympathetic.
@@Yentl-gx2cm... also my detox and energy pathways are a bit rickety not functioning great. Ive noticed that some other people with long covid had symptoms before the illness like Intolerance to chemicals and mcas symptoms.
How does this "brain retraining" work on Viral persistence and microclotting??? Both of which I have
Is this not the same as Graded Exercise Therapy?
Yes it seems to be. GET can be extremely harmful and it further disabled me. There is a VERY GOOD reason the NICE guidelines don't recommend GET for MEcfs anymore. This is NOT any different than what ever NHS physio has been using for decades. It's also no different than GUPTA or the Lightening processes- just rebranded to make 💸 from 'long covid' patients. If a LC patient has no PEM however then graded exercise may be appropriate, and these are the patients most likely to recover spontaneously anyway (and then put it down to brain retraining, yoga, or whatever).
No - I don't think graded exercise pays any attention to subconscious fear responses. As such it can add fuel to the fire.
No.
You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system.
Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause.
With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you.
I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low.
When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way.
The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me.
Hope you guys can alternate your perspective so you can heal too!
Coming from an academic educated person! Good luck :)
With LC the whole thing is kicked off by a viral infection which damages any cell with ACE2 receptors, afaik. We've seen nerve damage in the form of smell, taste and hearing (I have tinnitus caused by covid). So it makes sense the nervous system would be attacked in other ways. Nerve damage is going to take some time to heal, but the symptoms caused by the damaged nervous system prevent healing. I've found anything that reduces stress on the body will result in space for the body to heal, so you hear of extremely variable success stories. People are affected differently so something that works for one person may not work for all. I disagree with the assertion the body is fine, the virus has potential to cause real damage, and there may be some forms of viral persistence, which isn't at all uncommon. Even doctors that fully deny long covid is real have some amount of success diagnosing it as anxiety and treating it as such.
I've treated my long covid like extreme anxiety and this has worked forbme
27:01 highlights it very well
Amazing ❤
Would the eye movement therapy be something that would help?
Nope
Definitely something missing from this explanation. I've been nearly better more than once, felt no fear at all about activity and have relapsed when I did too much. Moving when still unwell goes very much against my experience.
I've experienced exactly the same thing. When I'm not flaring, I totally forget that I ever had an issue and I happily go about my life. I'm doing some of this brain retraining at the moment and I'm hoping that the answer is that although my conscious brain wasn't fearful anymore, my subconscious got triggered by the exercise. Who knows...
You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system.
Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause.
With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you.
I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low.
When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way.
The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me.
Hope you guys can alternate your perspective so you can heal too!
Coming from an academic educated person! Good luck :)
Mine started November 2020 post Covid. Going on 4 years of yo-yo healing from relapses via virus or vaccine. My Dr is supportive but does not really get the whole picture.
Awesome Interview ❤❤❤
It's perfectly explained!
This sounds like a load of shit to me I’ve been feeling like hell since February of 2023, I was trying a lot of vitamin b12 and D3 that didn’t seem to help much, now I’m trying NAC, Quercetin/with Bromelaine and Nattokinase. But I will try to do more exercise thank you.
Fasting works for me and low histamine food
Please research anything by David Putrino of Mt Sinai. You could have PEM and graded exercise could be dangerous for you. I've had LC for 4 years.
@@dawnsummers6189 copy from another post: You are so totally wrong and i cant blame you. You just have a truly western mind. Of course things in the body change when u don’t recover and are in constant stress mode. But u need to work on the root cause. The things you adres are in eastern medicine considered effects or symptoms or failure of the body because of the over active nervous system. If you don’t sleep proper constantly and recovery is getting worse and worse then yea thinks in the body are probably also getting worse but u need to look very deeply. Like the things you mentioned. But the root cause is the nervous system.
Just like eating glutamate and processed foods is causing harm to the microbiome. This causes neurochemicals to work differently and the brain to function in another way, maybe if we look also deeply we find also other things that then are “damaged” in the brain. With your way of thinking we find some “damage” in the microbiome as well and then you would say” THERE IS SOMETHING WRONG WITH MY BODY, DOCTORS ARE IGNORING THIS” No, its the effect caused by something else. Threat the root cause.
With your way of thinking people with obesitas need meds for high blood pressure, meds for brain damage thats caused by the dysfunction in neurochemicals, also the energy of these people is lower so mitochondria produce maybe less energy so lets find a medicine for this as well oh yeah and they have a high heart rate so lets find a medicine for that also…. And not to forget maybe a medicine to lose weight. RATHER then changing the diet. The American way of thinking is crazy honestly. You’re so into the system of pharmaceutical companies want you in. While the cure is in you.
I also worsened a long time with graduaded exposure. Made me worse. My mitochondria where functioning not optimal and my urine test and citric acid were low.
When i realised that the more severe you’re nervous system is overstimulated en the more symptoms you have, the slower you need to go with graded exposure. I’m talking seconds!! I did add 5 minute to walking every week and it got worse and worse. Then at my lowest I discovered it is like tapering off anti depressants. The more overstimulated you are or out of balance the slower you need to go. Not like 10% a week like every pharmacy tells you but more like 10% a month divided over 30 days by a mini bit of tapering off every day. Then the nervous system gets the chance to adjust and feel safe while tapering off. And not getting s big slap in the face with a instantly 10% reduction! The succes rates increases dramatically this way.
The same way it is for moving. But then reversed engineered, you start with seconds cycling (for me in the dark because of extreme light sensitivity) and i increased a second per 2 days or a day and stopped in more stressful periods for some days but never lowered. Via this way my nervous system could adjust wayyyy more easy with mini symptom flare ups. When having POTS, start with 5 seconds arms waving sitting up or just sitting up. Then do that for 6 seconds. 7 second. Slowly, really slowly progressing and letting the brain and nervous system adjust. Why do people not see this or know this. We know this with tapering off (when doing good research because pharma’s don’t tell you, they want you on pills), but we don’t know this with graded exposure. Crazy to me.
Hope you guys can alternate your perspective so you can heal too!
Coming from an academic educated person! Good luck :)
Any mammal will sit in a corner, rest, sleep and wait until recovery. Us humans however will do a thousand things, from yoga classes to taking medication to fighting symptoms. Eat, rest and sleep and waiting should be applied way more often than we think.
Long COVID feel like Symptoms ----
Extreme tiredness (fatigue) feeling short of breath. problems with your memory and concentration ("brain fog") heart palpitations.
What 3 systems help maintain homeostasis.
The human body maintains stability or homeostasis through the coordinated work of all organ systems, regulated by the nervous and endocrine systems. Homeostasis involves constant adjustments to maintain a stable internal environment, with examples including the respiratory, excretory, and endocrine systems.
Biological homeostasis is the ability to maintain relative stability and function as changes occur in the internal or external environment. Organisms are viable under a relatively narrow set of conditions.
Examples of homeostasis include the regulation of body temperature, and the balance between acidity and alkalinity. It is a process that maintains the stability of the organism's internal environment in response to fluctuations in external environmental conditions.
Three examples of homeostasis are:
Body temperature regulation.
Blood pressure regulation.
Blood sugar regulation.
Homeostasis is not static and unvarying; it is a dynamic process that can change internal conditions as required to survive external challenges.
What happens when homeostasis Cannot be restored?
Sometimes, however, the mechanisms fail. When they do, cells may not get everything they need, or toxic wastes may accumulate in the body. If homeostasis is not restored, the imbalance may lead to disease or even death.
How do I get my body back to homeostasis ----
Modifiable lifestyle habits such as diet, exercise, sleep and stress management greatly impact homeostasis and overall metabolic health. Measuring blood glucose levels can provide insights into your body's response to different stimuli. Adopting healthier habits can improve metabolic health and conditions like PCOS.
What diseases affect homeostasis?
Diabetes, a metabolic disorder caused by excess blood glucose levels, is a key example of disease caused by failed homeostasis. In ideal circumstances, homeostatic control mechanisms should prevent this imbalance from occurring.
Has anyone has done the electroencephalogram ti scan brain activities with poor results before recovery?