STRUGGLING WITH LONG VIDEOS? ✅ Subscribe to my weekly newsletter for a bullet-point summary from our latest recovery interview 💌 mailchi.mp/3bd95045319b/raelan-agle
Susanna’s story and journey could be describing my own CFS journey word for word. I feel like I could finish her sentences for the entire interview and knew what she was going to say. It really resonated with me on so many levels. There was sooo much profound wisdom, teachings and learnings in this interview. Thanks for the honesty, courage, vulnerability, wisdom and insight. Maybe I’m at a point of my recovery journey where this made complete sense. It’s amazing to hear someone go through an almost identical journey and come out in a better place on the other side. 😊
I’m so glad it resonated with you, John! 🧡🧡 Thank you for sharing your experience-ME/CFS recovery truly is quite a journey. We come out the other side almost as new people!
Thanks John for your kind response. I'm glad it resonated with you and hope this gives you hope that you can get back to full health too!! Keep going, you can do this:))
Sounds like 'the dark night of the soul' to me.....something so important to go thru...and in Susanna's case showing her tru character that she always exhibited but had not been mindful enough to recognize what a great individual she truly was ....and is...
This is a very open, honest video, giving deep insights into struggles often not spoken about. Thank you very much Susanna. I can relate and your words and wisdom have helped me on my journey!! Much appreciated ❤
Wired and tired, reintegration bit by bit and to staying under 70% of resting heart rate in activities is very helpful. Great point: healing, rest and recovery are a package deal. ( I think that's what I heard?) What one naturopath told you: If you don't rest, you'll never recover. 😮 Impactful and what I needed to hear. I suppose it doesn't matter WHY my central nervous system is hypertensive, I just need to believe it is and stop fighting to make it obey me. I don't know if I can treat it like the precious system it is but I will try long enough to succeed. Thank you so very much. I'm very grateful for you sharing. 💖 AND CONGRATULATIONS 🥳🥳🥳
@@aprilmay6166 hey I couldn't make sense of the 70% of resting heart rate, do you know say what would be best to stay under if resting heart rate is 64?
So glad she's doing so much better. I don't want to invalidate her experience but LDN is unlikely to have caused her crash, whoever prescribed it was genuinely trying to help because it's not easy to get a hold of it, even if you have cancer or MS. I'm finally on it for CFS and it's given me 5-10% of my energy back.
I respectfully disagree. Anything that one's brain perceives as not safe can cause a crash. So LDN can definitely cause a crash. It depends on the association the brain makes when taking things like this.
@@thedatepro I'm not entirely sure I understand your point, I was commenting about whoever prescribed it for her. We will never know if she would have crashed with or without meds, but it's reasonable to assume that her pushing herself would have eventually led to a negative outcome.
I think I was bound to crash regardless of whether I had been put on LDN or not but it definitely didn't agree with me. And I agree, the doctor was trying to help and meant no harm. So glad it has helped you:) I definitely don't think any of this is a one size fits all. So, I'm not saying LDN is not helpful, it just wasn't for me.
💗this video. Really hit me and reminded me too. I also just pust to much. I on my own and being on my own I had to go out when. It’s all made me so much worse. I really do need help in now. I part bed bound. Band have fibomalyagia. To i struggling and get very overwhelm. Love you to be my guild. And knowing and understanding so much with cronic fatigue. 💕
A consistent pattern of these videos is that the guests all seem to be some of the kindest, smartest, sensitive people. What a cruel disease to target these amazing people
Way to go, Susanna! 🎉🎉 Thank you for sharing your wonderful progress with us all. Very well-spoken! Wishing you the best ❤ And thank you Raelan for another awesome interview!!
This was a great interview! Susanna said so many wise things regarding the mindset of recovery. I would love to know more about the 70% heart rate with exercise and recovery. I am sort of emerging from the cocoon stage, but a little stuck between cocoon and moving around. I have a way to go before fully exercising, but interested in the ideas of exercise in recovery. I believe she will be so impactful with all of her clients through her personal experiences. They will be so lucky to have her.
Glad you enjoyed it! David Acklam spoke about using HRV to prevent crashes, you can find the link in the description below Susanna's interview. Just click 'show more' to see it.
I think this is what Susanna was talking about when she mentioned Zone 2 training. th-cam.com/video/qWSMTbg0P3U/w-d-xo.html (This guy has quite a bit about it on his cycling channel.)
Apart from it being a wonderful interview (As all Raelans interviews are - you're awesome Raelan! Thank you for all that you do and your effort to help the patient group of chronically ill people) with this amazing, insightful and agreeable young woman, I also have to give two out of topic compliments to Susanna : great audio quality - which is not always the case in many interviews, but it makes listening so much more pleasant. 😊👍 And that shirt looks amazing on you - it is soo your colour! 😀👌
I wonder if Susanna would be open to sharing the therapist who had recovered from CFS and uses IFS, that sounds so helpful! most therapists and coaches I've tried to work with don't have this key perspective
Hi Clarissa, unfortunately the therapist I spoke about is at full capacity at the moment. I would definitely recommend looking for someone who uses the IFS model though:) Sorry I can't be of more help. All the best on your journey.
Such an interesting interview. When we really look back on our lives from birth to now and really look at who we are, and how and why did we get to this place, for me it’s an obvious multi faceted journey as to why my life went down this road, a road of deep self discovery. Would of preferred an easy road mind you 🥰
I understand but I also don't understand. I fight every morning just to get out of bed. I fight just to put food in my mouth. I fight trying to find out how to overcome my ME/CFS. I understand my sympathetic nervous system is out of whack and I need to fight to re-initialize my para-sysmathetic nervous system. The only way I understand to re-initialize my para-sympathetic nervous system is to pay someone hundreds to dollars to learn some technique. So I need to fight to learn and implement the technique because if I fail, I will remain stuck in ME/CFS. I understand that constantly fighting drains my body and causes the ME/CFS but if I don't fight I will always be stuck in ME/CFS. The only way I see to stop fighting is to stop all brain function or pay someone bunches of money for pixie dust. How do I get this to actually work?
Watch more of Raelan'd videos to hear what worked for different ppl and start implementing those things. There's plenty of free tips in those interviews. You are in control of your brain but sometimes the brain begins to perceives danger over the slightest things and that keeps you in a fight/flight mode. You really have to practice the methods they talk about each day to begin helping the brain learn that you are not in danger. Dan Buglio does short daily vids that can help get you jumpstarted. Again, plenty of free resources and info are being shared in Raelan's interviews. You can also find Somatic Tracking vids meditations vids for anxiety on Ytube, practice breathwork which helps calm the brain, get a good sleep routine (I know, easier said than done but critical to make improvement), positive affirmations to reassure your brain that you are safe and not in immediate danger of being eaten by a lion. As the brain calms and realizes you are safe, the symptoms become less and less often. You don't need an expensive program to get started and see improvement. There's also the Curable app that can help as it explains a lot and offers tools all in one place. They're currently having a holiday sale. (I have no affiliation with them, just been helpful for me). You can do it! I've realized improvement just from using suggestions from Raelan's interviews, Dan Buglio'd book, Ytube vids, and the Curable app.
I would look first at stopping fighting and find a place of acceptance which will put your body in a better state to heal. When I first heard the word” acceptance “ I nearly choked! “You have to be kidding me”, but then learnt that acceptance will stop me continually pushing, getting angry and frustrated with myself and start to show love and compassion to myself and putting myself first. Listen to some of Raelans interviews with curiosity rather than putting pressure on yourself. One interview that resonates with me was Julie from Toulosse ( from memory, it’s been around a while). You can do this! 🥰
@masha1414k That isn't true. Many CFS patients have had it for over a decade and tried extensive diet, rest, supplements to no avail. Advising someone to quit meds is dangerous. Just telling them not to stress is also not helpful.
@bugglebe I'm not a doctor I'm just sharing my own experience, stay away from all the medications and your body will heal itself, maybe that's the reason you're stuck in this for so long because you've been taking medications, they are the ones that are not letting you heal and no doctor will tell you that of course. And naturally getting off of all medications has to be very slow I'm the one that got messed up by benzos in the 1st place, had I continued to listen to my doctors I would be dead.
There are tons of free EFT/tapping resources online! You can always reach out to Susanna if you want to know more. Pretty sure Niki Inglis and Lalita Holmes have talked about EFT/tapping too-plus lots of others!
Same :) I understand a mind body approach and healing the nervous system is such a big part of recovery, learning to rest, to work on unhelpful patterns and traumas is important but what about addressing possible toxic « physical » causes like mold, Lyme or heavy metals? …i ve seen quite a lot of recovery stories online where that was also part of the issue.
@@LovelyBalkichou I totally relate! I kind of feel like both? Or perhaps starting with the limbic retraining bc it is the cheapest option and then adding things as able and if we still feel we need to. I know for me I have actually noticed that if I do look things up for health I start GETTING THOSE SYMPTOMS now I know for sure that if I can make myself sick I can do the opposite. Really takes me back to Neo and how 'none of this is real' lol
Low dose neltrexone needs to be started at a very very low dose. It can really help people, so we can’t just write it off as bad… did she start at .5 or at 4.0?? I’m still at 3.0 and not moving up any more.
Hey, one queation please: my Kid ist really sick with severe me CFS. We tried a lot but in September her autoimmune antibodies were still in the ris e like crazy. Then we got introduced to lifewave patches and added them to our therapy approach. And now her blood work shows that her autoimmune antibodies are coming back to normal range and her Glutathione as well. Has anyone ever talked about using lifewave to help the recovery. Our kid is still extremely sick. Can I lay do something for an hour or so. But that is still better then before. We Are wondering whether we are onto something with those lifewave patches or whether it is just an expensive placebo effect...
I had medication messed me up this way it was benzos I'm wondering if your bad injury had actually more to do with that medication that you were put on, I mean obviously your body was predisposed to getting sick at that point because you've been running too hard for too long, but at the same time medication definitely put you over the edge.
Honestly if I were you I would never be running marathons again I think it's just really dangerous for us who have been through things that we have been through, it can really put us over the edge. I'm a huge believer in having to pace ourselves for the rest of our lives and be very careful with our health, why not find yourself a sport that's less demanding on your body swimming for example.
STRUGGLING WITH LONG VIDEOS?
✅ Subscribe to my weekly newsletter for a bullet-point summary from our latest recovery interview 💌 mailchi.mp/3bd95045319b/raelan-agle
Susanna’s story and journey could be describing my own CFS journey word for word. I feel like I could finish her sentences for the entire interview and knew what she was going to say. It really resonated with me on so many levels.
There was sooo much profound wisdom, teachings and learnings in this interview. Thanks for the honesty, courage, vulnerability, wisdom and insight.
Maybe I’m at a point of my recovery journey where this made complete sense. It’s amazing to hear someone go through an almost identical journey and come out in a better place on the other side. 😊
I’m so glad it resonated with you, John! 🧡🧡 Thank you for sharing your experience-ME/CFS recovery truly is quite a journey. We come out the other side almost as new people!
Thanks John for your kind response. I'm glad it resonated with you and hope this gives you hope that you can get back to full health too!!
Keep going, you can do this:))
Sounds like 'the dark night of the soul' to me.....something so important to go thru...and in Susanna's case showing her tru character that she always exhibited but had not been mindful enough to recognize what a great individual she truly was ....and is...
This is a very open, honest video, giving deep insights into struggles often not spoken about. Thank you very much Susanna. I can relate and your words and wisdom have helped me on my journey!! Much appreciated ❤
Glad it was helpful!
Wired and tired, reintegration bit by bit and to staying under 70% of resting heart rate in activities is very helpful.
Great point: healing, rest and recovery are a package deal.
( I think that's what I heard?)
What one naturopath told you: If you don't rest, you'll never recover. 😮 Impactful and what I needed to hear.
I suppose it doesn't matter WHY my central nervous system is hypertensive, I just need to believe it is and stop fighting to make it obey me.
I don't know if I can treat it like the precious system it is but I will try long enough to succeed.
Thank you so very much. I'm very grateful for you sharing. 💖
AND CONGRATULATIONS 🥳🥳🥳
@@aprilmay6166 hey I couldn't make sense of the 70% of resting heart rate, do you know say what would be best to stay under if resting heart rate is 64?
So glad she's doing so much better. I don't want to invalidate her experience but LDN is unlikely to have caused her crash, whoever prescribed it was genuinely trying to help because it's not easy to get a hold of it, even if you have cancer or MS. I'm finally on it for CFS and it's given me 5-10% of my energy back.
I respectfully disagree. Anything that one's brain perceives as not safe can cause a crash. So LDN can definitely cause a crash. It depends on the association the brain makes when taking things like this.
@@thedatepro I'm not entirely sure I understand your point, I was commenting about whoever prescribed it for her. We will never know if she would have crashed with or without meds, but it's reasonable to assume that her pushing herself would have eventually led to a negative outcome.
@@thedatepro exactly
I think I was bound to crash regardless of whether I had been put on LDN or not but it definitely didn't agree with me. And I agree, the doctor was trying to help and meant no harm.
So glad it has helped you:) I definitely don't think any of this is a one size fits all. So, I'm not saying LDN is not helpful, it just wasn't for me.
@@susannajohnson3736 I’m glad you made this clear. I would hate for people to be afraid to try LDN, as it is a game-changer for so many.
💗this video. Really hit me and reminded me too. I also just pust to much. I on my own and being on my own I had to go out when. It’s all made me so much worse. I really do need help in now. I part bed bound. Band have fibomalyagia. To i struggling and get very overwhelm. Love you to be my guild. And knowing and understanding so much with cronic fatigue. 💕
A consistent pattern of these videos is that the guests all seem to be some of the kindest, smartest, sensitive people. What a cruel disease to target these amazing people
Way to go, Susanna! 🎉🎉 Thank you for sharing your wonderful progress with us all. Very well-spoken! Wishing you the best ❤ And thank you Raelan for another awesome interview!!
This was a great interview! Susanna said so many wise things regarding the mindset of recovery. I would love to know more about the 70% heart rate with exercise and recovery. I am sort of emerging from the cocoon stage, but a little stuck between cocoon and moving around. I have a way to go before fully exercising, but interested in the ideas of exercise in recovery. I believe she will be so impactful with all of her clients through her personal experiences. They will be so lucky to have her.
Glad you enjoyed it!
David Acklam spoke about using HRV to prevent crashes, you can find the link in the description below Susanna's interview. Just click 'show more' to see it.
@ Thank you ☺️
I think this is what Susanna was talking about when she mentioned Zone 2 training. th-cam.com/video/qWSMTbg0P3U/w-d-xo.html (This guy has quite a bit about it on his cycling channel.)
@@TheEmdubbleu Thank you for the link!!
Beautiful. This reflects my own dark night of the soul.❤
Apart from it being a wonderful interview (As all Raelans interviews are - you're awesome Raelan! Thank you for all that you do and your effort to help the patient group of chronically ill people) with this amazing, insightful and agreeable young woman, I also have to give two out of topic compliments to Susanna :
great audio quality - which is not always the case in many interviews, but it makes listening so much more pleasant. 😊👍
And that shirt looks amazing on you - it is soo your colour! 😀👌
So inspiring and so so helpful. Thank you ❤
Beautiful story filled with wisdom and insight - thank you as always
Thank you so much to both of you for this insightful interview. Heard many things that will help me on my way. Warm hugs and much gratefulness. ❤😊
I wonder if Susanna would be open to sharing the therapist who had recovered from CFS and uses IFS, that sounds so helpful! most therapists and coaches I've tried to work with don't have this key perspective
Hi Clarissa! You can find resources in the description below the video. Just click 'show more' to find it. I hope this helps!
@@RaelanAgle
Hi Clarissa, unfortunately the therapist I spoke about is at full capacity at the moment. I would definitely recommend looking for someone who uses the IFS model though:) Sorry I can't be of more help. All the best on your journey.
Fantastic Susanna, very inspiring.
Such an interesting interview. When we really look back on our lives from birth to now and really look at who we are, and how and why did we get to this place, for me it’s an obvious multi faceted journey as to why my life went down this road, a road of deep self discovery. Would of preferred an easy road mind you 🥰
Really inspiring video. Thanks guys.
Gorgeous interview 🤍 Mother Nature 🌬️ is beautiful 😌
I understand but I also don't understand. I fight every morning just to get out of bed. I fight just to put food in my mouth. I fight trying to find out how to overcome my ME/CFS. I understand my sympathetic nervous system is out of whack and I need to fight to re-initialize my para-sysmathetic nervous system. The only way I understand to re-initialize my para-sympathetic nervous system is to pay someone hundreds to dollars to learn some technique. So I need to fight to learn and implement the technique because if I fail, I will remain stuck in ME/CFS. I understand that constantly fighting drains my body and causes the ME/CFS but if I don't fight I will always be stuck in ME/CFS. The only way I see to stop fighting is to stop all brain function or pay someone bunches of money for pixie dust. How do I get this to actually work?
Watch more of Raelan'd videos to hear what worked for different ppl and start implementing those things. There's plenty of free tips in those interviews. You are in control of your brain but sometimes the brain begins to perceives danger over the slightest things and that keeps you in a fight/flight mode. You really have to practice the methods they talk about each day to begin helping the brain learn that you are not in danger. Dan Buglio does short daily vids that can help get you jumpstarted. Again, plenty of free resources and info are being shared in Raelan's interviews. You can also find Somatic Tracking vids meditations vids for anxiety on Ytube, practice breathwork which helps calm the brain, get a good sleep routine (I know, easier said than done but critical to make improvement), positive affirmations to reassure your brain that you are safe and not in immediate danger of being eaten by a lion. As the brain calms and realizes you are safe, the symptoms become less and less often. You don't need an expensive program to get started and see improvement. There's also the Curable app that can help as it explains a lot and offers tools all in one place. They're currently having a holiday sale. (I have no affiliation with them, just been helpful for me). You can do it! I've realized improvement just from using suggestions from Raelan's interviews, Dan Buglio'd book, Ytube vids, and the Curable app.
I would look first at stopping fighting and find a place of acceptance which will put your body in a better state to heal. When I first heard the word” acceptance “ I nearly choked! “You have to be kidding me”, but then learnt that acceptance will stop me continually pushing, getting angry and frustrated with myself and start to show love and compassion to myself and putting myself first.
Listen to some of Raelans interviews with curiosity rather than putting pressure on yourself. One interview that resonates with me was Julie from Toulosse ( from memory, it’s been around a while). You can do this! 🥰
Your body will heal itself just give it enough time rest good food and no stress, and stay absolutely away from all the medications
@masha1414k That isn't true. Many CFS patients have had it for over a decade and tried extensive diet, rest, supplements to no avail. Advising someone to quit meds is dangerous. Just telling them not to stress is also not helpful.
@bugglebe I'm not a doctor I'm just sharing my own experience, stay away from all the medications and your body will heal itself, maybe that's the reason you're stuck in this for so long because you've been taking medications, they are the ones that are not letting you heal and no doctor will tell you that of course. And naturally getting off of all medications has to be very slow I'm the one that got messed up by benzos in the 1st place, had I continued to listen to my doctors I would be dead.
That's my Girll! ❤
Wonderful interview. Resonates a lot with me. Severe vax injury. Like so damn many.
Loved this! So similar to my story 😊
Where can we find the tapping/excercise classes pleeease?! Just did the tapping in the link and what an amazingly safe and releasing experience 😮😮
There are tons of free EFT/tapping resources online! You can always reach out to Susanna if you want to know more.
Pretty sure Niki Inglis and Lalita Holmes have talked about EFT/tapping too-plus lots of others!
@RaelanAgle thank you, I had heard about it but I never tried it before
A wonderful channel for tapping is Tap with Brad :) has been a huge part of my recovery as well.
I would love to sign up for her EFT class. Is that possible? I don't see a link.
If you go to the title of this podcast. Underneath, you can click on the word "more" and go to the resources. His name is Dr. Shubinger
I got the name wrong. It's Dr. John Doran. And two other resources also mention EFT.
Me too!
would love to see more mold and lyme stories
Same :) I understand a mind body approach and healing the nervous system is such a big part of recovery, learning to rest, to work on unhelpful patterns and traumas is important but what about addressing possible toxic « physical » causes like mold, Lyme or heavy metals? …i ve seen quite a lot of recovery stories online where that was also part of the issue.
@@LovelyBalkichou100%
@@LovelyBalkichou I totally relate! I kind of feel like both? Or perhaps starting with the limbic retraining bc it is the cheapest option and then adding things as able and if we still feel we need to. I know for me I have actually noticed that if I do look things up for health I start GETTING THOSE SYMPTOMS now I know for sure that if I can make myself sick I can do the opposite. Really takes me back to Neo and how 'none of this is real' lol
Susanna how can i access your tapping/excercise classes?
Hi Arlene! You can DM Susanna via her Instagram - link is in the description below the video. Just click 'show more' to see it.
I hope this helps!
Susanna seems as cute as a button ❤ Another great interview, which I listened to while driving. I'd like to losten again and take a couple of notes 😊
Low dose neltrexone needs to be started at a very very low dose. It can really help people, so we can’t just write it off as bad… did she start at .5 or at 4.0?? I’m still at 3.0 and not moving up any more.
Hey, one queation please: my Kid ist really sick with severe me CFS. We tried a lot but in September her autoimmune antibodies were still in the ris e like crazy. Then we got introduced to lifewave patches and added them to our therapy approach. And now her blood work shows that her autoimmune antibodies are coming back to normal range and her Glutathione as well. Has anyone ever talked about using lifewave to help the recovery. Our kid is still extremely sick. Can I lay do something for an hour or so. But that is still better then before. We Are wondering whether we are onto something with those lifewave patches or whether it is just an expensive placebo effect...
LDN also pushed me into severe cfs. It was the last straw for my body
I had medication messed me up this way it was benzos I'm wondering if your bad injury had actually more to do with that medication that you were put on, I mean obviously your body was predisposed to getting sick at that point because you've been running too hard for too long, but at the same time medication definitely put you over the edge.
it says the link to her IG is wrong..?
Could you try again Lea? I just clicked on it, and it worked for me.
I need this in german
Honestly if I were you I would never be running marathons again I think it's just really dangerous for us who have been through things that we have been through, it can really put us over the edge. I'm a huge believer in having to pace ourselves for the rest of our lives and be very careful with our health, why not find yourself a sport that's less demanding on your body swimming for example.