Dan Neuffer's Framework for Recovery (ME/CFS, POTS, FM, Long Covid)
ฝัง
- เผยแพร่เมื่อ 30 พ.ค. 2024
- In this video, Dan Neuffer (author of CFS Unravelled, founder of ANS Rewired) shares his framework for ME/CFS (chronic fatigue syndrome + similar conditions such as POTS, long Covid, fibromyalgia) recovery that involves 'rewiring' the autonomic nervous system to enable healing.
USEFUL LINKS FROM THIS VIDEO:
The 4 free ANS REWIRE lessons: ansrewire.com/info-request/
The book details: cfsunravelled.com/cfs-unravel...
The podcast with the research and physical brain training: cfsunravelled.com/episode7
Dan Neuffer's TH-cam Channel: / cfsunravelled1
Dan Neuffer on Instagram: / danneuffer.cfsunravelled
Dan Neuffer's podcast: / danneuffer.cfsunravelled
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TIMESTAMPS:
00:00 intro
01:13 What is the autonomic nervous system (ANS) and can we control it?
03:34 Where we’ve been confused about how our nervous system impacts healing
05:57 The zombie theory
07:34 When calming the nervous system isn’t the issue
09:34 When we might need increased sympathetic nervous system response to heal
10:32 Are we stuck in the ‘freeze’ state?
11:42 What contributes to nervous system issues?
15:00 Do you need to pace with brain training?
18:21 When pacing can be unhelpful for recovery
20:02 How POTS, ME/CFS, and other similar syndromes are one condition
22:28 How do we calm our nervous system?
25:15 How to reverse central nervous system desensitization
26:11 How trauma impacts the ANS
29:01 The best brain training exercises / when to switch your recovery approach
36:53 How hard should you push with recovery?
39:26 What is ANS Rewire and what is it suitable for?
45:49 How to reach Dan and learn more (and access the 4 free intro lessons of ANS Rewire)
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue #me/cfs
TIMESTAMPS
00:00 intro
01:13 What is the autonomic nervous system (ANS) and can we control it?
03:34 Where we’ve been confused about how our nervous system impacts healing
05:57 The zombie theory
07:34 When calming the nervous system isn’t the issue
09:34 When we might need increased sympathetic nervous system response to heal
10:32 Are we stuck in the ‘freeze’ state?
11:42 What contributes to nervous system issues?
15:00 Do you need to pace with brain training?
18:21 When pacing can be unhelpful for recovery
20:02 How POTS, ME/CFS, and other similar syndromes are one condition
22:28 How do we calm our nervous system?
25:15 How to reverse central nervous system desensitization
26:11 How trauma impacts the ANS
29:01 The best brain training exercises / when to switch your recovery approach
36:53 How hard should you push with recovery?
39:26 What is ANS Rewire and what is it suitable for?
45:49 How to reach Dan and learn more (and access the 4 free intro lessons of ANS Rewire)
I'm on day 12 of Dan's ANS Rewire program. It's elegant, articulate, well-presented and provides some of the best explanation for the root cause of CFS I have ever heard. After 22 years, I'm finally feeling encouraged. I will have a good story for you when this is all behind me!
Hi Amanda - glad you are feeling supported by ANS REWIRE. 👍🏻😊
Love this!! ❤️
@Amanda How has it gone these past few weeks? I’m considering doing the course
How are you doing now?
@@haidarbadran2634 how r u now?
I am here to support Dan's ANS Rewire. I started the program in October 2020 and give it my all. I watched the videos so many times that Dan is such a familiar figure. But of course watching the videos is not enough, we need to "work" towards health. Dan gave me a blue print for recovery at a moments where I was overwhelmed by all the options. Before Dan, Raelan gave me the hope that recovery is possible.
As I said I put everything in my recovery, I was soooo desperate to get back to complete health. I was at around 25% functionabilty when I started and now I am back to 100%.
Thank you, Dan, from all my heart!
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This is great to hear, I'm about to start the programme in January, been planning and saving for it for a while and also getting my life (finances, housing, etc) into place and stable before starting it, there was no chance of me stabilising my crashes before that. I love reading comments from People who've had success with this programme though x
@@EndersWorlds I wish you good luck. Be gentle with yourself. Set up your own consistent path. Reply here if/when along the program you have any questions for someone that follweded that process.
Thanks for sharing your experience Alexandra - hope to share your story one day soon. Enjoy your Christmas! The first one recovered is always extremely special
What did you do in order to heal?
I can’t recommend Dan’s program enough! From watching the first four intro videos he offers for free, you can really see the value he brings to recovery and the rest of the program doesn’t disappoint either! I believe the principles Dan teaches have helped me achieve the level of success in recovering that I have so far. I appreciate both of you so much!
Thanks for the kind words Erik -glad the program is supporting you with your recovery.
Love this!! ❤️
I have found that "Grounding" really helps my body to relax when I am at my worst......I try to go outside barefoot and just stand on the dirt. It almost seems to calm the electricity in my body.
Very calming.
I just realized that my closest sister is also ill with the same problems. We both had very violent childhoods. Our parents were alcoholics. My Dad was violent and my Mom was passed out most of my memories....crazy stuff.
This is vagus nerve stuff. We need a balance between sympathetic (involved in fight, flight stress response but also things like exercise) dorsal vagal (part of parasympathetic nervous system and involved in freeze stress response, but also rest and digest) and ventral vagal (social interaction and pleasure, combo of sympathetic nervous system and parasympathetic nervous system). A flexible nervous system and vagal tone allows us to respond to the demands of life without going outside our window of tolerance, and ending up in either sympathetic or dorsal (parasympathetic) dominance, leading to syndromes such as CFS, POTS and fibro etc. Vagal tone requires combo of top down neuroplasticity eg brain training and bottom up, specific body based exercises and techniques, eg tapping, breathwork etc.
I am very thankful for every person who makes an effort to help others with this disease. And I am not doubting that Dan has had ME/CFS and that a lot of people have had success with his programme. Nevertheless I think that he, at least in this interview, is oversimplifying things. There are a lot of people with Ehlers-Danlos-Syndrome who have POTS which can be definitely linked to their weak connective tissue. Jen Brea (from the movie "Unrest") had all the typical symptoms of ME/CFS and is in remission after a neck fusion. It could very well be all nervous system related, but the reasons why nervous systems don't work correctly could vary a lot from person to person ("broken software" vs. "broken hardware"). So I would be very careful with this sort of "theory of everything". Thanks a lot for your interview:)
Great point you make - indeed we can fall prey to over simplifying it, as well as overcomplicating it - hard to strike the balance at times. The EDS connection is definitely there, which can make recovery more complicated and difficult for some people. This is because the connective tissue dsyfunction creates a direct stressor on the ANS which tries to compensate. And yes, some people who have such a dysfunction in their spine can benefit from treatments, but I would think there is often more involved than surgery alone because the 'software' issue still plays a part, even when a 'hardware' issue is involved. What I wanted to convey is the general feeling that most of us have that we are 'broken' is likely not the case. You are right of course, in some people there are additional physical complications that. Thanks for your comment.
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Jen Brea actually went on to have a massive relapse and went missing not long after her neck surgery so I don't think that was what was causing her CFS symptoms.
@@clairchetwood9777 yeh just placebo
In terms of recommendations of approaches to recovery, everything he said is spot on with what I’ve noticed is helping me recover, and surprisingly quite quickly over the last week alone. I personally don’t feel the need for his program since I already have a trauma informed background professionally, but I’m simply sharing to let people know this absolutely makes sense and is rooted in science. Happy healing!!
As long as you are making good progress, you don't need a program, supplement, treatment or anything else! Just keep going! If your recovery ever slows or plateaus, then seek whatever resource best resonates with you. Hope to share your story of recovery one day (or hear it on Raelan's channel) .
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@@CFSUnravelled1 Thanks Dan! I appreciate you taking the time to respond and do these interviews with Raelan!
@@AnrupB I'm here in India, suffering from last 8 months. If you can help me with this I'm ready to pay your fees for the same. Please suggest. I'll always be thankful 🙏
@@lalitupadhyay9271bro I'm also from India have your recovered?
Thanks a lot Raelan and Dan, that's very informative and it matches my experience as I am slowly recovering from long covid: not doing too little, but not too much either, finding my personal way to recovery, etc. Actually I am becoming more myself, because the disease has made me notice much better what makes me feel good and what doesn't. That's a wonderful outcome of such a scary experience that these diseases are. 🧡
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19:30 - soo you want to avoid avoidance?! 🤣 It's hard to wrap our heads round but thanks so much Raelan & Dan for all you do to help people stuck in this confusing fog! 💕✨ Sounds like ME/CFS gets set up in childhood as our brain's are developing (I had cancer, accidents, parental divorces etc) then triggers fully at some point... I'm halfway through listening, looking forward to the rest 💜🌟
Yes, it's confusing, isn't it?! The illness and recovery process is full of paradoxes with lots of subtleties that are very important, which frankly I find a little annoying. I guess we all want things to be simple, me included.
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Thanks for this. Something I can do is cut back on visual stimuli around the place. A few years ago I decided to wear the same every day. All my socks are the same, jeans and T-shirt s all the same and 2 pairs of shoes and one jacket. Amazing how it took the edge of preparing for my day with CFS. So taking from what Dan was saying I can take it to the next level and throw out or put away things I'm not using. Tidy and organise my shed . Get my car cleaned. I can see how that could help. The ans getting triggered be external stimuli . As far as passing goes, it's summer here now and I've had a few flare ups. And the psychologist I used to see warned me about not doing enough and how it can make it worse. But I've also found that if I over do it, it s not the end of the world and at least I achieved something and enjoyed doing it. Probably inhibits my progress but yeah , I try. Oh how I try lol. Anyway thanks ,I'll watch again ,as there is alot to take in. Cheers 😎👍
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I love you two, doing so much good for the world ❤️
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Thank you Raelan for this Interview. Dan has the exact explanation for CFS. His Program is brillant and works. I am looking forward to your next Interview with Dan. His advices help me a lot.
Thank you so much, Jacqueline. Stay tuned for it! ❤️❤️
Thank you two so much
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Thanks again Raelan, Dan is so so good and as usual you get the very best from him.
My pleasure, Graham. Thank you so much! ❤️❤️❤️
This is so fascinating and informative. Thank you for sharing this science.
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Such an interesting interview! Thank you so much Raelan and Dan. Ans rewire has been my life saver.
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Great to hear Mariam
Great video, Raelan. I love your content soooo much!
Thank you so much ❤️❤️❤️
Thanks so much again for this wonderful video🌷 i would love to see another video about the stages of recovery (like Dan said). Sending a lot of love, Anika 🥰🥰🥰
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@RaelanAgle I came across your channel very recently. Fellow Canadian here! I was diagnosed with CFS over 6yrs ago. I believe I've suffered from it even few years before that. I also believe I've CPTSD from of childhood neglect and abuse. Anyway, your channel has wealth of information! I'm finding Dan Neuffer's information very informative and interesting. I feel that Dan and you should check out Dr Aimie Apigian's work (if you haven't done so already). Her work isn't about CFS but her explanation on trauma and how it affects ANS might be interesting to you and Dan. I feel that there is some kind of connection here. I want to end saying that I'm thankful for your channel and please keep dong all the great you're doing!
I agree that there's more to it than just calming the ANS down or strengthening the parasympathetic so we can heal. I partly got into trouble for trying to control my state too much. I can now see that often my body was activating a sympathetic response and I was thwarting it for the sake of "remaining calm". I can now see that that was put in so much stress and strain on my nervous system. Like my body wanted to run (my legs pumped with blood) and I was forcing an unnatural state of calmness in myself. I can see now how sometimes even using all my might to overpower panic attacks was the worst thing I could've done at that moment. It would've been a lot better to just allow my body to breathe as it needed to breathe and do what it needed to do to regain balance instead of trying to force the calmness with my willpower in in such a repressing way.
Thanks
Thank you, Graham! ❤️
Hey Dan. When I was riding racehorses, I used to be very sore the second day, then gradually get through the soreness over two weeks, then fully fit after six weeks depending on how tough the particular horses were. Some were real mongrels. You had to start off being fit or whoops! Goodbyeeeee! That’s when you think, ‘oh the best place to bolt is a racetrack!’ I used to laugh a lot when that happened. Sorry about going off track there. Annie🇦🇺
I'm on video 21 in ANS Rewire and I think it's a really lovely programme! Just like your book Raelan! Full of tips around recovery, wether it's about dietary changes, our mental state or graded exercise :)
Thank you both for your work, love you guys!
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Hi Raelan, thanks to you and Dan for this great video. I was wondering if you were going to make one about the different stages of recovery, as Dan mentions in this video? Or is this topic already being discussed in another video of yours?
Glad you enjoyed it! I don't have one specifically with Dan speaking to this, but Alex Howard does go over this in this video: th-cam.com/video/szq7nnYIht8/w-d-xo.html
@@RaelanAgle Brilliant, thank you! 🙏🙏
Thank you!! Is there a difference between the Gupta Programm and the programm of Dan?
Great question. I don't know the specifics of the Gupta so I'm not sure :)
Hi had fibo and cronic fatigue. For years hi Dan how do I join your program please how do I contact you x
I agree. Sometimes I need a little sympathetic so to speak to feel better. Too much rest actually makes me worse. Is the program Dan offers good for PTSD by chance?
He does speak about using this program for PTSD!
Some people who have had PTSD report that they have had some benefits but the program is not designed for that. If you have PTSD you should be working with a specialist therapist to support you.
@@CFSUnravelled1 the PTSD I deal with is actually centered around the illness
@@melissapowell5592 same for me... I believe his program can help. I completed it and I'm in a much better place than I was a year ago. Also look into EMDR for ptsd. It helped me. I wasn't even able to leave my house without a total panic attack... which would crash me of course.
Is Dans program easy to follow as I find just listening to this interview so much to take in?
I've just started it, you can watch the videos as many times as you want to, so that helps because you don't need to take it all in at once, he also breaks things down into small steps, and only releases one video at a time, he doesn't release the next one until you feel happy and have completed the first one. You can go at your own pace that way.
He recommends watching video's again if it's a struggle to take in. Although they're pretty simple. I've also watched them in 2 parts- so I just watched the first half of the video then the following day I'd watch the other half of the video to break it up further, for my fatigue.
I recommend giving it a go, he's really clear and straight forward with things. Also there's 3 or 4 free videos to begin with, which give you an overview of what how cfs me works and some interesting basics that then lead into the programme itself, they're a good watch and give you a chance to hear how he speaks etc. They're on his ans rewire website.
Hello Raelan! Thank you for sharing this! I'm a long hauler and would love to contact you if possible, I really need your help
Hello Haidar ❤️ I'm sorry to hear you are facing this. I don't do any coaching personally, but here is a list of people who do: healwithliz.com/cfs-health-coaches/
Liked before watching? Ofc ☺️☺️☺️☺️☺️
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Oh I needed to say that I’m so computer stupid that I don’t have one. The emails you sent me came through on my phone, and I can’t figure out how to get started. It doesn’t seem to work on the phone. Infuriating yes. I’ll have another go, or I’ll send them to my lawyer who does stuff for me. I really want to get started. I keep looking at my saddles and my boots. It excites me.... I think I should start a bit more slowly than that.🏇🏿🏇🏿
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Love you guys
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I’m always sharing Dans program
Love you too, Sylvia! ❤️❤️❤️
what's this gentleman's professional background and/or expertise in CFS, besides being a recovered patient?
He’s beyond knowledgeable as a scientist background 💜 his program saved me 💥
@@BelovedShift So glad it helped you.
@@BelovedShift Glad the program supported you Sylvia - hope to share your story soon. ;)
His program helped me recover as well
Do some research. You're an MD? Use Google much?
Hi Alexandra, how are you doing now? If you have a moment, please let me know. 💐
We do it with young horses. If we didn’t pace their training, they’d end up more mental than otherwise. 🏇🏿🇩🇪🇦🇺
on a crash day .. and i forced my self to lift 80lb dumblells should presses as much as i can till my arms gave out ... give me liberty or give me death ! lol .. Raelen we love you do a live stream .. lets hang out !
@Nicholas Champeau i get nothing out of it though .. in past i would explode the next days later after a hard workout with muscle mass , and energy beyond belief .. now nothing no muscle gain , or endurance at all ... its definate not mental
its almost impossible for me to stay still ... since i was a baby they use to say in itallian this kid could run circles around the ceiling ... i cant stay still cannot mentally lay down .. have to be 24/7 on the go ... i dont know why ... when i was a kid i wanted to be Rocky , rambo , jean cluad van dam all in one ... school could not physically sit in chair in school ...now what ?! the truth is i dont think i could be happy any other way ... im not happy calm lol ... im truly happy out of breath climbing a steep hill , i dont like taking rest its like my subconsious wants to push it self till my body epxplodes .. it has no thought or aknowledgment of its bodys limits it doesnt care ... cant PACE just cant it sucks
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I used to be a school teacher before ME, and how you describe yourself as a child springs the possibility of ADHD to my mind-the INABILITY to not be doing and to not stay still and to never feel able to relax in a rested state. That inner sense of urgency to be DOING is very typical of ADHD. Perhaps that could be worth asking advice about from a medical professional, especially if it's preventing you from pacing effectively and causing you issues now you have ME. Obviously if you were happy before you sick trekking up hills and mountains, and felt no negative outcomes from this then it would be fine, but since you have ME, And we Only get ME if we've had an issue to begin with, and we will Only recover if we slow down, then perhaps it might be worth considering?
I’m sorry, this interview was very hard to listen to or understand. Doesn’t seem like there was any practical advice, just complex ideas that only make sense to him.
Where are u from?
I agree…😬
I have sooo much to say about this. Won’t fit here. ;)