Giving Up On Diabetes | Diabetes Daily Vlog 363
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- เผยแพร่เมื่อ 14 ต.ค. 2024
- Just as a disclaimer, these thoughts of my rant come and go a lot but I have not verbalized them yet until vlog 363, this is my art and this is how I express my emotions. Thank you for watching
My name is Ali ABDUL-Kareem, I am 21 years old, I do daily vlogs on my journey towards achieving great health with diabetes. I've had type 1 diabetes for about 3 years now. Comment and say hi! I wanna get to know YOU and how you live with this disease. Be sure to SUBCRIBE to stay updated on DAILY vlogs!
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Disclaimer: While we share our experiences with diabetes, nothing we discuss should be taken as medical advice. Please consult your doctor or medical professional for your health and diabetes management
No you look like a normal person to me! I feel this way especially this year! I watch I don't comment on every vlog bc, I'm in this daily struggle too & I get tired of it - thank you so much for taking us with you! We appreciate you! 🙏🙏🎉👌
Forget about needs and insulin pens. I tried it for two years and I'll never go back to such a barbaric ritual. Get a close-loop pump.
Miranda O'shea 🙏🙏🙏🙏
MrStephantch bro relax I hear you, this is not how you help someone
Thanks you for sharing this man. I know how you feel man.
W of course, thank you for watching ♥️
Ali. At the end of the day the truth is you can't "give up" whether you like it or not. The problem with T1D is that it's an unpredictable disease that can cause many different complications from peripheral neuropathy, to diabetic retinopathy, to even premature kidney failure. The most well-controlled diabetics out there suffer complications, some suffer none, and for other's it's a mixed bag. I'm in my mid-30s and have had this disease for roughly three years (I was probably a pre-or-full blown diabetic many years prior). As soon as I was diagnosed I started doing what the doctor's said within the 1st month and brought my A1C down to 6.0. Then I was told I had early-stage retinopathy and didn't care for one year (no complications), and subsequently saw my father with diabetes suffer kidney failure. I then decided to make a monumental move and control my A1C "once and for all." I immediately cut my diet, controlled my insulin doses better, bought a Freestyle Libre, and subsequently achieved an A1C of 6.0 consistently, but it was a nightmare on Lantus insulin with so many "highs and lows." I searched for solutions endlessly for six months thinking WTF can I do. I hit up your blog and a few other's and searched for the best medical technology out there to make this disease more bearable. Well, the only and best solution was a hybrid closed-loop pump such as the Medtronic 670G that lower's the A1C of even the worst diabetics to a 7.0, and for those that are careful can get results in the 6-6.5 range. I myself have even more stringent goals and am maintaining an A1C of 5.5-6.0. The problem is even with the best A1C control we can't necessarily know what complications we may suffer, and which one's are preventable, and if they'll be slowed down - we just hope for the best. And even with diabetes you can develop other autoimmune conditions such as thyroid, etc. The good thing in your case is that you're young and newly diagnosed - these complications can take 10 years to develop with uncontrolled blood sugars. You have the chance to permanently turn it around, but have to understand that MDI just won't work -even if you maintain an A1C below 7 with these highs and low's you're killing yourself. Your only option is a close-loop system like LOOP or OpenAPS that will keep you in control 80-90% of the time. For the 1st time in your life you'll be able to experience close to normal blood sugars. Does it mean you can eat anything you want or binge? Absolutely not, but coupled with the technology and Bernstein's diet you could achieve results such as 99% time in range with only 1% low's and an A1C achieved of 5.3-6.0. But you need to stick to this plan stringently and never deviate. Look at my case, I started noticing early-signs of neuropathy in my legs - which was minor. However, after I started leveling my sugars even more, achieved over 96-99% time in range with highest BGs reaching 160 and average sugar's ranging from 75-140 99% of the time the neuropathy went away; even my eyes got better and I no longer get blurry vision, because your body needs time to heal. Look man, we need to face it that Dr. Bernstein's micromanaging approach worked 30 years ago when medical advances were not at the point they are today. But if you substitute his low carb diet along with an insulin pump (closed loop) you'll worry about this disease 50-75% less, will be able to sleep better without worrying about hypoglycemia, and will live a more carefree life. Upon waking this morning I noticed my sugar was rising from 115 gradually to 140 - continuing, I immediately took action and now it's 118 and should stay in this range for the entire day. Give up on the MDI, get the 670G or Loop and enjoy low and controlled A1Cs.
MrStephantch I hear ya friend
Totally relatable. Like this most days.
The Di Guy 🙏
Soooo been there! Just had this frustration with a nutritionist! People watch and you are making a difference! Oh my gosh, I hear you! The problem is people don't really know that you can actually be normal, there is a way, I'm way later to trying to get there myself but, I will get there. I find it's hard that so many people equate "normal" with wanting to eat like everyone else. It's what is easier and doesn't look different but, what says that that is "normal". I chased normal and trying to prove that I could eat what everyone else eats for years trying to prove that I was "normal" and could control my bg with just insulin. Then I chased other things trying to get "normal" bg's and my whole life I was on that low to high roller coaster thinking that is what was "normal" being a diabetic. I'm sooooo over it!!! I feel in my soul that I'm finally on the right path, and most if not all right paths are narrow. I'm struggling but now I'm struggling with swings that aren't nearly as wide. It's like you, and a lot of others, have said...it's what we can or cannot eat... it's what we choose to eat and do. I'm done letting others guilt me into being "normal" as in go ahead eat ice cream/potatoe chips/crapton of blank... it's not normal for anyone to eat all these things and will lead to problems for people regardless of diabetes or not, it's just we see it's harm faster when trying to gain control of blood sugars. Just don't beat yourself up too much, the definition of defeat is getting knocked down and not getting back up, not caring and clearly you care! Youtu can only make a better next decision not change your last one. :) Sorry for the loooong ...rant!
At the end of the day "food is just fuel" and doesn't control your life. We Americans are idiots because we base our lives on food; there are plenty of delicious foods out there that we can enjoy as diabetics. The rest of the world is healthier than us because they don't eat to the extent we do.
Call Me Scout thank you Reagan I’m grateful to have you in my life
MrStephantch exactly! I'm trying to choose eating to live more than living to eat!!!
Call Me Scout that’s the goal! 🙌
I hate it to everyday my friend.😢😢
You may hate it but the good thing is we're only 2-3 years ago from a functional cure like Viacyte - islet cell implant and the BG vaccine. Diabetes will become a treatable disease like HIV or AIDs - even the 1st gen close-loop pumps are a miracle compared to what diabetics had to previously go through.
Guys, it isn't difficult. I spent seven months trying to pick out the best formula. An A1C is not good enough, you need at least 90% time in range with practically no highs. If you combine Dr. Bernsteins approach along with a close-loop pump, the right meds, and Dr. visits you'll be fine. Make sure to do the following. Use Humalog U-100 insulin and use it in conjunction with an automated CGM-based pump like the Medtronic 670G and Loop. Eat no more than 40-60 carbs per day with no more than 2-5 grams of sugar per meal. Space your meals evenly about five to fix hours apartment. Consume no less than 5-8 carbs in in the morning, fifteen in the afternoon around twelve, and 30 carbs at night along with moderate protein; do not snack. Set you highs and low's between 85 and 145 to take action, and when you get to 85 consume no more than four grams of a sugar tablet every fifteen minutes not to overcorrect. Take Gynemna Sylvestre which is a hypertransport stimulator, 1000 grams in the morning and at night. Make sure to be on beta-blockers and ACE Inhibitors to protect your kidneys and heart. If you follow this strategy you can easily maintain a stable A1C of 6.0 or less. Also, make sure to cut out all fruit, dairy products, and gluton breads out of your diet and you will be fine.
That doesn’t even sound like a life worth living, all those hoops you have to jump thru just to stay healthy
@@zues2011 This comment doesn't even sound like the person who thought of it knows what they're talking about.