How I found out I had Ovarian Cancer and symptoms you shouldn't ignore
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- เผยแพร่เมื่อ 27 เม.ย. 2024
- Never ignore your body when it tells you something is wrong!
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Keywords: PET scan death with dignity ovarian cancer terminal cancer peritoneal carcinoma MAID medical aid in dying Vermont US cancer vlog cancer journey
I was a "complainer"
Right now I hear you perfectly!
YAY!
Yay!!!
I want to thank you so much for the information,I’ve been putting my many symptoms down to having my gallbladder removed but after ticking too many boxes on your list I’ll be bringing this up with my doctor this week,could be nothing but I don’t want to take the chance so once again Thank you 🙏🏻
Good for you girlfriend! 💟
Wishing you all the best that your results are negative ❤
Oh Francine, I'm so sorry you had to go through this terrible experience in the health care system. So many people have fallen through the cracks of a broken system. Finding a good doctor in a reasonable amount of time is almost non-existent these days. Getting a doctor to actually listen and give you their full attention is difficult. Now...I'm on ZOOM calls with my stomach doctor. 🤦♀️ You are so right about listening to your body. We KNOW when something is not right, yet we get told; " Well, this is part of getting older," " I believe this is stress related, " blah, blah, blah. Thank you for sharing your journey. This may help someone to get the help they need and save a life. You are such a gracious and lovely woman. You help me to be a better person and soldier on my everyday life of health issues. Much love to you. ❤️🌻🦋
Awww, thank you so much. I hope you get the proper care you need! ❣️
Thank you Francine! Cancer has taken a lot of my family, but I don’t know if they types they had were able to be passed down. I’ve had so many issues with my uterus and ovaries that I was unable to have children and I had a hysterectomy when I was 34, (I’m 49 now) I think it’s very important to stay on top of your health. After losing my mom to GBM at the age of 66 and my dad to lung/bone cancer at the age of 58, I find it so important to keep what family I have left healthy. Both of my parents were healthy and active. I wish you and your family nothing but love, happiness and peace in this hard time ❤
I'm sorry for all your losses :( . There is great genetic testing these days you might want to consider getting.
@@FrancineHasCancer ya know, I think I just might! When my dad was sick, my mom was his caregiver along with hospice. But when my mom got sick, I was her sole caregiver and had hospice to help even though I have two brothers and one sister. I remember asking the oncologist’s at all the appointments if these diseases were hereditary and they said no. I have to stop believing everything that comes out of a doctors mouth, just because they have an md after their name.
Oh my gosh, Francine! My story is almost identical to yours! I was diagnosed in 2013. Went to the Mayo Clinic for the debulking surgery..... the same thing..I was opened up, they took a hard look and closed me back up. Both surgeons, (in their early 40's )said it was the "largest tumor load they had seen in their careers in a patient with no symptoms. I went through 8.5 years of Carbo, Taxol, Avastin, Cytoxan, Faslodex, etc. before Mayo thought they could do the surgery. It was rough and they told me they could only remove 80% of what they could see. Just a few months ago, a PET scan revealed many new spots on my liver and throughout my pelvic area. I have been put on Letrozole and Ribociclb (Kisqali). I have just finished my first month. The biggest side effects are insomnia and fatigue. My CA-125 went down just two points, so the jury is out on whether this will be successful or not. All my very best to you, sweet girl. We definitely are a "small club" of low-grade warriors. Not enough research yet for so few of us, right? Bless you...Mary
Wow, I thought we had a lot in common from previous comments! My onc wanted me to go for the Letrozole and Ribociclb trial with Dr. Grisham, but I would have to go to NYC by myself for several visits, so I'm hoping something opens up in Phila that might look promising, but I have no plans for further treatments otherwisise. She took me off Mekenist for so many bad side effects, but keeps talking about trying Letrozole. Some people have awful side effects, but then there are people like yourself. It looks like I have plenty of time to reconsider that. Keep me posted on your experience. There is a Facebook support group just for us. "Low-Grade Serous Ovarian Cancer Peer Support" Stay strong soul sister!
@@FrancineHasCancer Francine....As far as needing to go to NYC for the trial.....that is not true. My oncologist put in an appeal to Novartis (who makes Kisqali) to allow me to take their drug "off trial". Not only did they agree, but they are 100% paying for every cent of the Kisqali! It gets shipped to me once a month. Novartis has a Grant program for folks who cannot travel to certain locations long-term. It was a pretty easy application. They do ask for income, but in my state, they allow your income to be 8 times whatever the poverty amount is. I am retired (age 71) so that was no problem qualifying. I urge you to pursue (if you are willing to try Kisqalli). What do you have to lose? There are some incredible NED stories out there from women to have tried this Letrozole/Kisqali combination. We never know what our "silver bullet" may be, right??? Keep the faith, girlie! Hugs from Alaska!
Thank you for your video.
Hearing you fine, Francine ❤
TY :)
I can hear you wonderfully!!!
TY!
Hello Francine! Thank you for sharing your story and symptoms. It’s so important for to be proactive in our health. I do believe the doctors dismissed you because you didn’t have insurance. My Mom was on Medicare and she wasn’t always treated well. I know you said you don’t always feel well but you look amazing in this video! Have a wonderful week! Hugs from NJ ❤
Thank you fellow Jersey Girl! 💕
Thank God for our NHS
Great information to all ladies! Thank you for sharing!
Yes I can hear you now! Thank you. Hugs to you!
Awesome! Thank you!
I’m here from your video, Taking a break from cancer to enjoy your cats. Francine, Thank you for sharing your story. I’m so glad you were blessed with 20 more years. Our mom had the fast ovarian cancer. She started to complain of insomnia and I insisted she go back to her doctor. From the time she was finally diagnosed and had her surgery (i stayed with her in hospital and after the nursing home she stayed with my sister) then was to begin her chemo, in total was less than a year. The day I brought her to start chemo, but her Dr. admitted to the ER then less than 2 weeks she was gone. I feel like I took it for granted that she had been healthy and I didn’t understand what was happening. I’m grateful you sharing your journey. 🙏🏻
I'm sorry you all had to go through that. My mother past of breast cancer, in less than a year as well. I hope there's a cure for all cancers soon. 💟
I can hear you, and it’s great. I could hear before, but sometimes it was difficult. This is perfect. Thanks.
Thanks for letting me know!
Thank you for sharing your story, Francine. I'm so sorry that this has happened to you. You're an incredible person to use your experience and knowledge to educate others. You may well have saved some lives today. ❤ Love and hugs, as always. -Honna
From your lips to God's ears. I would love that, Honna! 💕
Thank you for sharing. Great information. I wish you the best❤
Thank you!
Thank you so much for sharing - these videos are so invaluable -
Glad you like them! TY 💕
Thank you this is so helpful, you are so brave. God bless you ❤
Glad it was helpful. Thanks for being here!
You are such a gracious lady ❤❤❤ I wish you nothing but happiness love and peace for the rest of your life. God bless you and your family. Your attitude towards cancer is breathtaking you will be able to help a lot of people just by talking about it never stop talking you are amazing ♥️♥️♥️♥️♥️
Awww. Thank you so much! 💕
FYI...to let you know, you are loud and clear! 👍 Wonderful topic for this video. Great to hear from you 🌺
Thank you! 💟
Good morning beautiful lady. I am hard of hearing and the new 🎤 is wonderful. Thank you so much for sharing your story. Sending ❤ and hugs 🤗 to you beautiful lady.
Thanks for listening. I'm glad this has helped!
I can hear you much better in this video🙂. Thank you for the information in this video.
Yay! Thank you! 💟
Thank you for sharing your journey.You are also blessed with a beautiful face too . Love from Australia
You are so kind. Thank you for being here.
I wonderful person named hospice nurse Julie. Teach you so much about what hospice care is. What palliative care is. It’s something you might want to look up if you start feeling very ill and in a lot of pain.
Yes, I love her, and I have four different meds for nausea, but they aren't perfect sometimes. 😔
Gosh I just adore you. Thank you for being a class act 👏 ✌️🫶
TY!
I really appreciate you.
Thank you for being here
Thank you Francine for your very informative video. More people should talk about cancer as I am sure it helps. Sadly I lost my Sister to ovarian cancer and she too was dismissed by her doctor in the early stages. They told her she was a celiac and she believed them. By the time her cancer was discovered it had spread throughout her body. She had debulking surgery and then Chemo but she only lived 18 months after she was diagnosed. Interestingly you mentioned endometriosis which is something I had and consequently because of it I had a full hysterectomy in my thirties. I wonder sometimes if having that surgery saved me from a future diagnosis of ovarian cancer like my sister. Who knows but how right you are about visiting your doctor if you feel something isn't right with your body. Sending love & light to you and yours Jx
I'm sorry about your sister, but if it's genetic, you may have had some divine intervention that saved your life. Thanks for sharing. 💕
So kind of you to tell your story. It may encourage someone to visit a doctor rather than ignore an unusual symptom. Frequently, it turns out that we worry needlessly, but you can't guess what's going on inside your body. I had breast cancer in my mid-40s (2001). I felt a lump when I was taking a shower. I had a few breast cysts over the years, and it felt like a cyst, but it seemed to come up suddenly, so I called my doctor. Fortunately, it was caught early, but being a Her-2 positive cancer, I had chemotherapy. I chose a lumpectomy, so I needed radiation after the chemo was completed.
I'm certain you've made the right decision for yourself this time around. If the treatment is awful and not likely to improve your prognosis, I would choose quality of life for the time I have left. Of course, I'm hoping you have many years ahead. Some of us have just met you! Look forward to your next video!
aww, thanks Karen. I appreciate you sharing your story as well. I hope you are cancer-free and enjoy a long life filled with joy. 💟
@FrancineHasCancer Thank you, Francine! So far, cancer-free.
Francine thank you sharing this I’ve had a pain on my right side lower abdomen for the last year off and on and it’s getting more frequent and intense…my doctor has referred me to a GI specialist and am on the waiting list it’s been 10 months already but they said it will take up to 18 months to get in ( I’m in Canada 🇨🇦 ) I’m 60 years old but they are blaming this on my IBS but I’m not so sure!…I think because of your video I will go back to my doctor and ask for an ultrasound!❤️🙏🏻🌸🦋
I'm sorry for your pain and the fact that it takes so long! I hope it's your IBS and that they can do something to alleviate it Kathy! 💕
@@FrancineHasCancer Thank you Francine❤️
I am sorry the doctor dismissed you early symptom.
Hearing very good now. 😊
Great. Thanks for listening!
Sound is great
Thanks!
I can hear you fine.
TY! 💕
First, I love that word…wonky. I use it all the time. 😂
Medical care, ugh! It’s getting worse and I really think it started going downhill after ACA was put in place. But I could be totally wrong. I have so many chronic health conditions and I used to be able to get answers and plans of action. Now nope. Of course I lived in the DC/VA/MD area where medical care is pretty good. I was treated at John’s Hopkins and the likes.
At any rate, speed forward today. We are in Austin. TX and care is abysmal. Thankfully I’m one who doesn’t take bullshit and strongly advocate for myself. I feel I’ve finally got a good team.
Unfortunately my husband was just diagnosed with high-grade prostate cancer. We go for PET scan on 5/1 to see if there are any mets. So we will see what plan of action will be. We may need to go elsewhere for treatment.
Thanks for sharing your story. So many dropped balls. I’m so sorry that happened.
I'm glad you have managed to find a few good ones in the system. I'm sending prayers to you and your husband.
Sound is much better!
Yay! TY
I can hear you now ! BFF
Yay!
I have experienced your pain and issue. Unfortunately the doctor had to remove the entire system. Initially I was referred to USA bend Oregon for treatment then things got worst so that doc warned it may not last, that’s how in 6months everything was removed! Worst years of my life!
I'm sorry to hear that. My current onc said she would have needed to remove my entire large intestine just to reach more of the cancer, and then still no guarantees. She knew ahead of time my wishes. Quality over quantity. I wish you the best. 💟
Just a comment before I watch the whole video as I am chatting with my son as I watch. His mum-in-law, who is a friend of mine also, is at this moment dying from ovarian cancer. She has just turned 80 and her doctor, 4 months ago, did no follow up on her vague symptoms. This is in Australia so there is no issue with insurance etc. it may have made no difference as to the outcome but she wouldn’t have suffered as much with pain had she been diagnosed earlier.
There is already enough suffering in the world :( . 💟
You got to the scar tissue bit and my mind said, yes, been there with that. Second time round they went in to remove everything left ( I lost 1 ovary and both fallopian tubes to burst huge ovarian cysts when I was 33 fortunately benign, they saved a little bit of the other ovary). They thought the very suspicious mass on my remaining bit of an ovary was cancer, 6 hrs of peeling off adhesions and scar tissue off everything, and nearly giving up part way through, but they grabbed a 3rd surgeon to help, turned out to be endometrial cancer. I'm in the clear, but it can come back in the part of the vagina that is left. I see older women being fobbed off, scans even if for peace of mind should be the first thing offerred. I think more is being discovered about how different cancers can seed to other places and lay dormant for years before activating. My mum had the same endometrial cancer post menopausal, her symptom was a discharge that had an icky odour. Mine was an almost constant period for 12 months that I put down to my pcos body trying to go into menopause. Thankyou for giving so much info, maybe someone watching will realise that getting more opinions is important, and to not make up excuses... go to doctors and find out.
Thank you for sharing your story. I pray you will stay NED!
First thing i would of requested ultrasound vaginally and abdominal. Ive had it done before many times when i had endometriosis. So sad to know you want to die. Your lovely and very knowledgeable about things😢. So very sorry you didnt get the treatment you needed at the beginning.
Sadly, they didn't see the need for any tests until I got insurance ❣️ And I don't WANT to die. I'm just GOING to die, so what I want is to go on my own terms.
🌬🦋💫I never had a Problem hearing you. I been thinking about getting a mic. Myself. But I can't afford to pay 200.00 or more.. Would you mind telling me what you're Mic.is??
I look on Amazon they do have Several different one's cheap. But as my stepmother used to say you get what you pay for.
I have a Galaxy Se or Se 10 Something like that lol
It's a older phone.
No computer.
But it works for now.
Sending much love your way 😊Xo
My main issue was I couldn't find something compatible with my set up. Now I'm using my galaxy with the lavalier wireless. I think Amazon has them but Walmart was less expensive at $14 lol. This video convinced me to try it th-cam.com/video/nTWPb1-_pAQ/w-d-xo.htmlsi=T5lHstNdMvmke9I5 HOWEVER, you probably don't have the USB-c type on your phone to plug in the receiver which is required. You probably do have the 3.5mm headphone jack though, so you might want to find a mic that connects the receiver that way. If I'm wrong about that, then definitely try this mic. Now that I know this works, I will probably sell my webcam and upgrade to a better mic in the same brand ❣️
Look up nurse Julie. You can learn about palpitates care. It can help you give you medication for your nausea and pain medication when you get in pain.
Yes, I love her, and I have four different meds for nausea, but they aren't perfect sometimes. 😔
❤
Sorry, the mic sound is rough, lots of vibration & crackles, it was much better without it. Watch your own video & you'll see. Your videos were so much better without this mic anyway-so much so I can't watch beyond a few minutes though I wanted to...❤
Sorry about that. I have to have a mic, but I'll look into this. Thanks for the feedback.
This person is telling you the truth. I’m not sure why so many people are saying they can hear you great. Maybe they are just being nice? Yes, we can hear you but the sound is boxy, scratchy and crackly. Please look back at your video and you can hear the sound. I’m not sure what the issue is that’s causes the distorted sounds. Thanks.
I just diagnosed with overian cancer😢 years i been doctor also n they tell me its gas n Give me gas medication n now it gone bad
😢
I'm sorry 😔. I hope you went to someone new. I also hope your journey is a smooth one! 💟
Dr's want us to explain our symptoms away. Gas IBS is often used to often as our diagnosis without testing, unbelievable. I had a brother inlaw went to hospital in horrible pain they sent him away said eat more fiber and less then a year later he's stage 4 cancer
The system is broken 😔
Just starting to listen but mic works well
Thanks!
Have any of these doctors suggested HIPEC . ❤
Unfortunately, I'm not eligible for it. I hope they offer it for LGSOC one day though. Thanks for your thoughts. 💟
You had diabetes at age 36
..type 2?
Yes. And I was 36 too. In fact everyone on my father's side was 36. Odd?
What doctors are they to say that is gas for so many months? So not well educated.👎🏻👎🏻👎🏻
I know, right?
💉💉💉