Love the wheelchair analogy!! As a chronic illness warrior, I understand how hard it is to accept help. For those of us who were completely independent and self sufficient, It’s a huge daily struggle. And...you’ve seen my stubbornness first hand!! 🙄
I have so much respect for you and Kelly. I recently had a heart attack so my diet has to change drastically. I am going to have to take an aggressive approach to what is heart healthy. My hat off to both of you.
As a medical professional, TBI is still a silent epidemic but with people like you Ms. Debra and Ms. Kelly sharing the everyday struggles and certain flare up challenges, helps ALL understand this debilitating life. You are Walking Angels to share and enlighten yourself and others who suffer. I wonder if there is a TBI Nomads Support Network. So many triggers of TBI flare ups on the road. Blessed you guys. ❤️❤️👍👍🙏🙏.
Glorious will be the day when we can make space for, support, assist, celebrate all humans regardless of ability, etc. without it being seen by giver or receiver as an act of charity. Thank you for educating us.
I can so relate! Thank you Debra and Kelly for helping to bring this topic to light. My disability(s) are invisible and physical, but I see we share many of the same experiences and feelings whether it’s a brain injury or physical illness disability. I am considered “permanently disabled” but most people would never guess if they see me on a good day or hour. We get good at faking it when we socialize. Often to our own peril and paying the price in recovery days weeks or longer. We want people to feel comfortable, so we often put their needs above our own - at least I used to. It is so true about the battery scenarios. In CA, Sec 8 housing wait list is and has been closed for years. Other housing list is more like a 10 year wait list. I’ve been on one 8 years so far. I have a many stories to tell and may some day write about it all. I’m such an independent person at heart, it’s been really hard to ask for and get help when I need it the past almost 20 years, but there are times there is no choice. It’s survival. We’ve got this! KOKO. 👍🏼😊✨🌻💜
Soulmadic Thank you for being this up. Yes, in every city in a climate I can live in the waiting lists are ALL CLOSED. You can’t even get ON the waiting list and last I heard it’s up to ten years. Budget cuts while homelessness is rising to record highs.
As a MSer i relate to the challenge of feeling like a burden. Asking for help and accepting help can be frustrating, depressing and confusing. A lot of conversations with God helped me understand that i sometimes need to change my thinking about help. I love to crochet for charity. It allows me to express love for those in need. God helped me understand when i receive help from others im providing them the opportunity to express love too. Some days its still frustrating depressing and challenging to lose the independence i have always took pride in. But now i challenge myself to humbly and graciously accept the help i and blessed to receive. You are so right about your honest assessment of the challenges we face. Hugs and much success in the van build.
What a tremendous support you are, Debra. Considering your TBI you have made a great letter for Kelly Doyle. I am so happy you have help and hopefully Kelly will be as fortunate. I hope the RTR designates a special quiet place for those who need it. It needs to serve everyone, especially those who have disabilities. Strength in numbers.
People can be so cold hearted selfish. DONT GIVE UP KEEP ON DOING WHAT YOU BOTH DO SO WELL. Both have more guts an heart than these other know it alls.
Kelly an Debra are my heros.. You two are amazing .Kelly makes me laugh till I have tears..But still so down to earth.BOTH HAVE SO MUCH TO GIVE JUST DOING WHAT YOUR DOING. ITS SO IMPORTANT AN "NEEDED"YOU HEAR ME,➡️YOU GUYS ARE NEEDED.⬅️ STAY SAFE, DONT STOP AN THANK YOU..GOD BLESS.
Very great job on the open letter to Kelly without editing. You did a wonderful uplifting video for the disabled community!! God Bless all Nomads healthy & disabled. May your roads be clear and your destinations always bring you to new & old FRIENDS! 😀 💛
Thank you Debra for the open letter to Kelly and to all of us with a disability. Every video I watch of your's and/or Kelly's both inspire and educates me. I don't know if it is a lack of awareness, acceptance, inability to focus or stay focused or is it my lack of short term memory, but each time I hear you speak I hear things that seem brand new to me. I am grateful to you both for sharing your lives so openly. You are truly a blessing. Thank you
What an inspiration you are. Yes, we’ve got this. We have to pace ourselves and sometimes retrace and that’s ok. It’s so nice there are so many kind people here. There should be a big piece of land somewhere where everyone could gather and have their quiet, solitude, beauty, and a close helping hand from others who understand.
Kelly is such an amazing soul. 💞 We just love her and her sweet little Sophie. 💕 She’s always in a battle with her TBI and still finds the energy to encourage & support others.
I admire you both for taking charge of your health and making lives for yourselves, outside of the system. You are educating so many people about TBI. I do worry about both of you but know you have friends out there who look out for you. I hope you are able to continue your nomadic lives for a long time.
Debra, what a beautiful open letter to Kelly! Thank you so much for sharing more perspectives of a TBI. While I don't have a TBI, I'm an introvert, and tend to go on sensory overload pretty easy. Crap, TBI folks multiply that by a metric fu*k ton with way more complications! As far as hou$ing assistance, yeah, it's a real catch 22, and such a bummer about the long wait list. Thank you, Debra, for acknowledging that it's ok to ask for help, and that goes for YOU, too! You did a fantastic job making this video! Peace, love and healing light to you both!! You know, within the last year or so, a TBI assisted living place called BrainSpace opened up only about a mile from our house. It's in Shoreline, WA. After learning about TBI and watching you and Kelly, I feel proud and honored to have such a place in our neighborhood. Corny, I know, but that's me, lol.
Well said about Disabilities! Im retired now, as I was a Caregiver for over 20 yrs as my Job...Took care of clients with TBI ,Alzheimers, Cancer ,Aids and Hospice care...I fully get what your saying...God Bless You and Kelly!
I cannot tell you how grateful I am to you for this vlog. I may have mentioned this before. I deal with Depression. Different from TBI, but similar in many ways. Sometimes, I am okay and can do things like shopping and cooking and seeing friends and just doing the everday things that people do. But other times, like rigjt now, I can't even scramble an egg. Not because I forget how, but because the energy and motivation just isn't there. Hell, I could not even mske toast this morning. And I can't edit this like I usually would to get all the typos. I have an incredibly hard time asking for help. The shame is paralyzing. Truly it is. But...I am inspired by you, Debra, because even thougj I don't know all of what you are dealing with, my experience reminds me just how hard it is to KOKO. Annway, just wanted to say thank you. I am all teary and need to blow my nose. And that's ok.
Debra ~ this is my favourite of all of your videos. Unedited, with the glorious blinding sunshine! You continue to be such an inspiration, and not just because you are a TBI Thriver, but mostly because you are such a tenderheart, with a generous and kind-hearted soul. You are a dear one ❤ Thank you for all that you share. And with regards to asking for help ~ I like this Zen perspective: When we ask for help, we are allowing the other person the opportunity to give. ✌🌻 KOKO ☮💜🕉✌ ~ Lorelei
I admire you & Kelly both for showing real life & you are both an inspiration to so many. Keep on keeping on Debra. I'm glad you have been blessed with friends but am so sorry you can't live life as you want too. You are both a blessing to so many.
Well done Debbie. I love Kelly and Her pup. Keep digging deep for what you want, how you want it. Only you guys know what’s best for you. Love to meet up someday.
Debra...thank you for addressing the issues of the disabled...whether it's a TBI, PTSD, or many other debilitating chronic diseases that challenge us on a daily basis. The analogy of "A, B, & C Batteries" is spot on! I'm struggling overpaying on a "Wheelchair Accessible" apartment (I'm on the waiting list for 5 different apartment communities that may or may not really be "wheelchair liveable" but do have a lower rent) that's only accessible thru the front door. I've had maintenance take off doors and figured out a path thru the apartment...to go into the bathroom, I must go thru the living room, down a narrow hallway, make a u-turn in the kitchen, a sharp turn into my bedroom followed by a three point turn and cross back over the hallway into the bath. My shower chair barely fits in the shower and there are no grab bars to assist getting out of shower. That being said...I'm trying to figure out how to adapt a RV/Van so that I can travel on the road and enjoy life outside instead of this apartment. Your videos keep me looking for the answers to living a better life. Thank you for your courage and vulnerability in discussing sensitive subjects. Loved the "Hell No" response...I'm a Texas woman that responds in similar fashion...just like my current housing situation...it's temporary because I'm going to find the answer! Blessings to you. ♥️
This was absolutely lovely Debra. So gracious and kind of you to reach out to Kelly. You are two of the bravest and most genuine women out there, and the information you covered in this video is so important for others to understand. Asking for and accepting help when we need absolutely does suck and is so hard to do, but unfortunately life always seems to throw us some curve balls. Take care, Koko.❤❤❤
You and Kelly both are an inspiration! That was a beautiful letter! There are so many people on the road that love y'all and would love to help when and where we can. You both got this! Love you guys!
When I became an empty nester, I sought to offer my home to a section 8 family. I was treated horribly by county officials, like I was a would-be slum lord trying to score an easy buck from the govt. I can't imagine what horrible treatment those applying for section 8 must meet with. My best to you and yours!
This was an awesome video, and you are awesome for doing it for Kelly Doyle. And Sophie Doyle. Because I cannot think of Kelly Doyle without also thinking of Sophie Doyle. Hope you are having a lovely day today, Debra.
Although my disability is not brain related, I definitely could relate to your response to Kelly Doyle - I heard you loud and clear Debra. Sometimes, our drive to be independent can cause more heartache to those around us than our asking for help. It's a fine balance. Kelly's video tore me apart but I had no words to respond to her transparent and brave video. Don't worry about editing btw, this unedited version is just fine. You spoke your truth with your usual eloquence.
Well said, Debra. BTW I love the colors in this video - your glasses and also the stained glass vase with white roses (which may not be yours) but it's gorgeous. Good luck with your journey. Helping others is always good for the heart - I saw how you perked up when you were faced with the ides of helping someone else. All my best, Cathy C.
Thank you, Cathy! Yes, that stained glass vase is mine and it actually was a gift from my friend, Lisa. It is foldable. Can you believe that?!?!! I love it! I can't find the exact one I have on Amazon but here is a similar one: amzn.to/2LBeQhu. The roses were from Robert. I am truly blessed. Thanks again!
For me, disability is frustrating. Not being able to attend functions, events is isolating , depressing. I had times I couldnt watch tv, talk to people go to a store. I am better again and trying to live life as full as I can before it happens again. Bless you
Element Gypsy, I hear you. There are times that I get very sad on things I have to miss out on socially. For the most part, my close family and friends understand, but I ache when I am unable to attend birthday parties, celebrations, outings, etc. My newfound earmuffs help A LOT. I am able to do more with them but am still limited. I am lucky and blessed in that I enjoy solitude. Always have. And even before my brain injury and diagnosis, I had not had a tv for years. Having it all mandated though, plus the tbi episodes, is entirely a different story somehow. To cope, I focus on all the good. And there is a LOT of good. I am very blessed and grateful. Blessings to you dear one. KOKO!
LOL autocorrect is the devil! With the TBI, I don't trust it at all, it's said things I didn't mean, embarrassed the dickens out of me, & I also have a thing about being independent. I do the earbud thing, so I can control the input. Music, or a book, whatever, it's the tone not the content. It helps prevent the brain swirl (what I call it). I think you meant HUD housing, you know that's an apartment in a place you cannot control the noise level, the neighbors, the maintenance, etc. I cannot do an apartment at all. I already know that. Plus the constant monitoring by the state make paranoia worse. It's ok that we need quiet. It's ok that we need a tribe that will allow us to park on the fringe. I even have a plan for a privacy sign. You are so kind. Thank you for this. Kelly Doyle brought me here.
Love to you, Debra, and also Kelly. You two are in my top 5 favourite TH-camrs. :) I love these videos. I'm disabled and I struggle a lot with needing help and feeling like a burden. But it's NOT a weakness to ask for help or to need help. No where is it written "we must all be able to take care of ourselves entirely". We are all worthy of love and care for others, and some of us need more than others.
Debra, that was so beautiful. I love how authentic and real it is without the editing. You are so brave. Kelly as well. I was hoping to meet you guys at WRTR. God bless you both. You are truly an inspiration. Love to you!
Super-inspiring!! My heart goes out to both you and Kelley as you both come to terms with life changes that are hard to accept. Thanks for educating all of us on what it’s like to live with a TBI so that we can be more sensitive and responsive with TBI-sufferers in our lives. KOKO! (Oh, and screw the editing, this video was awesome!!)
Debra, thank you so much. That was beautiful and very well done! Now I’m going to have to do an open letter to YOU! LOL I too made notes but for now I’d just like to say we love you. We feel a deep kindred spirit love for you and all that you do. You are amazing, brave, strong, and still the most inspiring person out there to me. Truly. You help me get through. Much love and big hugs from me and Sophie Doyle. 🤗🐶❤️
P.S. I would love to camp with you some day for night or two if ever we are in the vicinity of each other. And not just because I would love to for once not be the last person to get out the door in the morning. 😉
Thank you for that. I recently got cognitive testing done after a year and a half after my frontal lobe tumor removal. I didn't do well. I have been in a deep depression because of my brain just don't work like it use to. I have the same issues as a TBI. The doctors thought I had MS. Do you have lesions on your brain? I do but they are not on my spinal cord. So it doesn't look like MS. I want to thank you and Kelly Doyle for inspiring me to keep on going and know I'm not alone out here.
This is the best video you have made. You and Kelly are inspirational. You are Debra and Kelly ,you help me,us them,he and she. No you cant give up you both have so much to teach us . Love you both
This speaks for so many with disabilities and even those that are able bodied. Whether it’s a lifetime condition or just the flu... we have all experienced this in some form.
GREAT video! We all need to remember that sometimes the very smallest thing we can give is the biggest thing needed at the time and we need to receive it. Hope that came out right, love you guys.
I would love to see you and Kelly camping together! Love you both for your sharing and caring and honesty! KIKO and Follow your Bliss! xxo (and your video was FAB-YOU-LOUS without any editing, loved the sunshine on your glowing face!)
Debra, I wanna be like you when I grow up! I know we usually only see your better days, but on those days you just GLOW with joy!!! On those days, there is a radiant sparkle to those beautiful eyes, that I honestly envy. I will continue to lift you (and Robert) in prayer. There is a reason God brought the two of you together, for however long that time may be. HE'S brought you this far, he's not going to give up on you now. I pray you're able to live out your days as you and Robert wish to. Thanks for inspiring me to be the best ME I can be. God bless you!!
Thank you for this. So many blessings being sent to you, Kellie, and everyone living with this disability. I am going to finally say this....my mom was diagnosed FINALLY correctly with TBI... after years of her showing small signs...and there is so much more. But I'll leave it there. I am so happy that you and Kellie have both decided to live your dream of travel while you can and want to...I wish my Mom had the information she needed to make her choice in time to do the same.
You exude peace & love!!! How very sweet of you to make this video! I’m a strong believer in telling someone how much they mean to you in the time we are all here & not WAIT until they’re in a casket!! I discovered your channel through Kelly’s. You have a new fan!!! I understand limitations... I worked in Mental Health for over 25 years & loved helping others. I had been struggling with chronic, severe pain issues from Fibromyalgia to severe Osteoarthritis & others. I dealt with those things but Then, all of a sudden my lungs stopped working & I almost died. I had to stop working, was approved for permanent disability just two months after I applied. It was a Godsend but it made me very sad to stop doing what boosted my self esteem- I based it on the fact that I helped people on a daily basis. I stopped working full time about seven years ago. I lost the house I bought & lived in for 12 years (I was 2 WEEKS LATE, seriously, it was while the big foreclosure thing happened all over so I couldn’t get any help). Anyway, I lost a lot & I’m still struggling but my mental health has improved but it’s a work in progress. My situation now is I have stage 3 COPD/Chronic Respiratory Failure. I’ve managed to stay out of the hospital since last July! I was in ICU twice. I’m praying for you. You sound very strong & brave!! ❤️❤️❤️☮️☮️☮️😁 Take care!!!
Debra lately I have finally come to the realization that it's not about what I can't do anymore, its about what I can do now. With that realization I have had to be able to allow the kind people who offer help to let them help. I do not get out of my quiet home very often, but when I do it exhausted me...but I did get out. BTW housing assistance is chancery and each county and city is different... I am HUD and Section 8 certified and unfortunately the housing is getting worse daily and it is important that you and Kelly are talking about it. Also shelters are iffy and most won't allow animals.
Wonderful video that a lot of people could learn by. Having a disability myself I can relate to how people want to think by just looking at you there's nothing wrong with you . I like your attitude we have to do only what our bodies say and it would be wonderful if everyone could understand and not judge. Much love to you and Kelly both. 😍
Debra and Kelly, I am glad both of you are writing about this. My heart goes out to both of you for your situation and your courage and determination. I just want to say that I took care of my partner of 30 years through her dementia at the end of her life. She did not take to giving up her independence very well at all. This kind of situation was frustrating for me as I loved her very much. Eventually, she had to accept her dependence on others. This period became the most precious period of our relationship. It is a gift to the caregiver to be able to take care of their loved one or friend if that is their desire. Accepting the love and help from your friends isn't a one way street. It can be arranged so that it is not a burden on one person. It can enrich both sides immensely, allowing you to stay engaged in life and the caregiver(s) to experience a purpose that is greater than themselves, actually for you too. Your situations are nothing but horrible at times, but you might not have to give up the life that you seem to love.
I've been binge watching this week. As for how this video will be received without any editing...well I was so caught up in it, that it was like talking with a friend. I never even noticed the problems you were having with the sun. KOKO
Love this. Thank you Debra. I love Kelly Doyle. You both inspire me so much! From another Debra who is checking out Casitas...with several disabilities. 🌼
Aww that was such a sweet thing you just did...and you are so adorable too btw! I hope both you and Kelly hang on and are able to keep up with this on the road thing and video. When people offer to help that's not the same as taking care of someone. I love Kelly's videos and I'd be ok if they were just updates like that one when she's have trouble. I thought she did a dang good job with that video. It was a lot better then I would have been able to do
Government housing is very difficult to get into when you don't have the right connections. They tend to be in noisy areas. Some are 55 and older but can still be noisy. You are correct in saying once there a person without the right connections is stuck. In the state I am stuck in 55+ communities allow children when there is no one else to care for the grandkids. More unsupervised noise at high volume. Don't get me wrong I like kids, I just cannot handle loud noises either. Thank you for linking to Kelly's video. She staed what I have been going through too. I grieve at the thought that you also will be giving up seeing friends. Some will visit you. In my state most friends have left for good and we gradually lost touch over the years. I am thankful you and Robert have each other and that you have a wonderful trustee! My heart goes out to you more than you know. ♡ Keeping you and Robert in my prayers. You did a wonderful job in this video. Maybe you might consider doing more raw ones like this. You won't lose followers. KOKO♡
I cannot do crowds, I tried joining a caravan near Yuma and I only lasted 3 days. My homemade truck camper had some issues also so I drove back to Colorado. But a new van is hopefully in the near future. Then I can hopefully have more freedom.
I watched Kelly's videos and wondered if you would do a reply video and glad you did! Love ya Debra - I love Kelly and Sophie Doyle too. I'm so proud of you and Kelly. Hugs to ya both and doggie cuddles to Sophie! At 12:47 the community housing you mentioned, I think you meant section 8. My oldest daughter is paraplegic; it took her countless years to finally get in to one that could actually accommodate her needs.
Well done, Debra. I’m impressed with both you and Kelly. I prefer real life at least once in a while - it’s a reality check for us viewers. Much of what you and Kelly describe about TBI is true for me also.
Great Video!!! I have congenital heart disease 3 ohs so far in my 48 yrs and now I'm facing another one in the upcoming yr or 2 so I know what its like to have Down Days where your exhausted and even sitting is too much, I had 1 yesterday..I get completely worn out to the point of exhaustion cuz I ALWAYS have to push myself to do more just to keep up with the other healthy ppl, lol..I've made a video about my heart condition too on my channel. And when I watched Kelly's video with being a caregiver for many yrs and I have a friend that has a brain injury that effects being about to read n count n comprehend some things I was wanting to Jump into my screen and go help Kelly my ownself!!!! I hope she's ok and finds a way to have ppl help her when she needs it. Take care...😊Tina
I saw this, I've been worried about Kelly, I am glad you have done this for Kelly. Kelly we love you and miss you. Look forward to your next video. I haven't done one yet. I did do my bed, but it's in limbo until I get my trifold mattress.
Living large is different for different people. A well known artist (whose name I can't recall:)l) was confined to his home with some kind of disability. He painted what he could see from his windows, doors and when he was taken out into the yard. I think a life lived large is whatever fills our individual canvas on which to paint our individual life. I think of Christopher Reeves after his paralysis. I think his life was lived larger than before. You are living your life large with your courage and sharing. Consider letting go of urges for perfectionism . You videos are just fine raw. Better than many that are edited. Also please recall that those who seek to be of aid consider it a gift to be allowed to be of help.
yep yep and yep. I get where your coming from. I agree with you.Yes let people give. Give that moment of help. We like to give but it seems we don't like to take/that generous help. Thanks
Love you have reached out to Kelly. Wish you would finally find each other that would be a wonderful video. People need people we all need help even those of us without disabilities. You have Robert and lots of others and you are able to stay on the road because of that. Hope Kelly sees that through you. No one can be forced to sign up to be another’s caregiver BUT people can volunteer out of love. Sometimes they need the opportunity to help as much as you need the help. PS no need to edit its more maskless this way my friend I have not meet
I don't give a hoot about whether you edit, it's just always such a gift to hear from you -- in some ways even more so without the edits! KOKO, Debra! I'm just sad I most likely won't get to meet you in person now that you need to avoid groups and unfamiliar people. I wanted to be at Rice Ranch this winter but I had surgery and I just couldn't get on the road soon enough to be there. You're with me in my travels anyway. (I don't see emojis here, so envision a heart and a big smile in sunglasses!)
I love watching Kelly videos. I think she smart, funny, and awesomely brave. Sending hugs to you all and your warrior spirits.
I love that you two ladies can connect like this. No one can truly understand unless you live it. My hat's off to you dear lady. Koko!
God bless you for being so kind to Kelly, she's a great gal.
Agreed! She sure is. :))
OMG I love Kelly and Sofie Doyle.
Love the wheelchair analogy!! As a chronic illness warrior, I understand how hard it is to accept help. For those of us who were completely independent and self sufficient, It’s a huge daily struggle. And...you’ve seen my stubbornness first hand!! 🙄
Hugs Gina!!!! Shalom and Happy Trails 👵 🚐🤗 💕
offthehook4u Hello!!
I have so much respect for you and Kelly. I recently had a heart attack so my diet has to change drastically. I am going to have to take an aggressive approach to what is heart healthy. My hat off to both of you.
As a medical professional, TBI is still a silent epidemic but with people like you Ms. Debra and Ms. Kelly sharing the everyday struggles and certain flare up challenges, helps ALL understand this debilitating life. You are Walking Angels to share and enlighten yourself and others who suffer. I wonder if there is a TBI Nomads Support Network. So many triggers of TBI flare ups on the road. Blessed you guys. ❤️❤️👍👍🙏🙏.
Glorious will be the day when we can make space for, support, assist, celebrate all humans regardless of ability, etc. without it being seen by giver or receiver as an act of charity. Thank you for educating us.
I can so relate! Thank you Debra and Kelly for helping to bring this topic to light. My disability(s) are invisible and physical, but I see we share many of the same experiences and feelings whether it’s a brain injury or physical illness disability. I am considered “permanently disabled” but most people would never guess if they see me on a good day or hour. We get good at faking it when we socialize. Often to our own peril and paying the price in recovery days weeks or longer. We want people to feel comfortable, so we often put their needs above our own - at least I used to. It is so true about the battery scenarios. In CA, Sec 8 housing wait list is and has been closed for years. Other housing list is more like a 10 year wait list. I’ve been on one 8 years so far. I have a many stories to tell and may some day write about it all. I’m such an independent person at heart, it’s been really hard to ask for and get help when I need it the past almost 20 years, but there are times there is no choice. It’s survival. We’ve got this! KOKO. 👍🏼😊✨🌻💜
Soulmadic Thank you for being this up. Yes, in every city in a climate I can live in the waiting lists are ALL CLOSED. You can’t even get ON the waiting list and last I heard it’s up to ten years. Budget cuts while homelessness is rising to record highs.
Love you Kelly
As a MSer i relate to the challenge of feeling like a burden. Asking for help and accepting help can be frustrating, depressing and confusing. A lot of conversations with God helped me understand that i sometimes need to change my thinking about help. I love to crochet for charity. It allows me to express love for those in need. God helped me understand when i receive help from others im providing them the opportunity to express love too. Some days its still frustrating depressing and challenging to lose the independence i have always took pride in. But now i challenge myself to humbly and graciously accept the help i and blessed to receive. You are so right about your honest assessment of the challenges we face. Hugs and much success in the van build.
What a tremendous support you are, Debra. Considering your TBI you have made a great letter for Kelly Doyle. I am so happy you have help and hopefully Kelly will be as fortunate. I hope the RTR designates a special quiet place for those who need it. It needs to serve everyone, especially those who have disabilities. Strength in numbers.
People can be so cold hearted selfish. DONT GIVE UP KEEP ON DOING WHAT YOU BOTH DO SO WELL. Both have more guts an heart than these other know it alls.
I 100 % agree
Thank you very much for the educational video. The open letter to Kelly Doyle is beautifully done
No editing needed. Bless you all.
Kelly an Debra are my heros.. You two are amazing .Kelly makes me laugh till I have tears..But still so down to earth.BOTH HAVE SO MUCH TO GIVE JUST DOING WHAT YOUR DOING. ITS SO IMPORTANT AN "NEEDED"YOU HEAR ME,➡️YOU GUYS ARE NEEDED.⬅️ STAY SAFE, DONT STOP AN THANK YOU..GOD BLESS.
Very great job on the open letter to Kelly without editing. You did a wonderful uplifting video for the disabled community!! God Bless all Nomads healthy & disabled. May your roads be clear and your destinations always bring you to new & old FRIENDS! 😀 💛
What a wonderful heartfelt unedited video. You are amazing, I hope everything works out for you and for Kelly Doyle. Take care and be safe.
I love the rig you are inside. :) & the red glasses! I'm proud of you and Kelly sharing, making the world more aware. Bless you.
Thank you Debra for the open letter to Kelly and to all of us with a disability. Every video I watch of your's and/or Kelly's both inspire and educates me. I don't know if it is a lack of awareness, acceptance, inability to focus or stay focused or is it my lack of short term memory, but each time I hear you speak I hear things that seem brand new to me. I am grateful to you both for sharing your lives so openly. You are truly a blessing. Thank you
What an inspiration you are. Yes, we’ve got this. We have to pace ourselves and sometimes retrace and that’s ok. It’s so nice there are so many kind people here. There should be a big piece of land somewhere where everyone could gather and have their quiet, solitude, beauty, and a close helping hand from others who understand.
Kelly is such an amazing soul. 💞
We just love her and her sweet little Sophie. 💕
She’s always in a battle with her TBI and still finds
the energy to encourage & support others.
I admire you both for taking charge of your health and making lives for yourselves, outside of the system. You are educating so many people about TBI. I do worry about both of you but know you have friends out there who look out for you. I hope you are able to continue your nomadic lives for a long time.
Debra, what a beautiful open letter to Kelly! Thank you so much for sharing more perspectives of a TBI. While I don't have a TBI, I'm an introvert, and tend to go on sensory overload pretty easy. Crap, TBI folks multiply that by a metric fu*k ton with way more complications! As far as hou$ing assistance, yeah, it's a real catch 22, and such a bummer about the long wait list. Thank you, Debra, for acknowledging that it's ok to ask for help, and that goes for YOU, too! You did a fantastic job making this video! Peace, love and healing light to you both!! You know, within the last year or so, a TBI assisted living place called BrainSpace opened up only about a mile from our house. It's in Shoreline, WA. After learning about TBI and watching you and Kelly, I feel proud and honored to have such a place in our neighborhood. Corny, I know, but that's me, lol.
Well said about Disabilities! Im retired now, as I was a Caregiver for over 20 yrs as my Job...Took care of clients with TBI ,Alzheimers, Cancer ,Aids and Hospice care...I fully get what your saying...God Bless You and Kelly!
Thank you, Sheryl. And bless you for the care you gave to so many. Makes you an earth angel in my book. Love and hugZ, d
I cannot tell you how grateful I am to you for this vlog. I may have mentioned this before. I deal with Depression. Different from TBI, but similar in many ways. Sometimes, I am okay and can do things like shopping and cooking and seeing friends and just doing the everday things that people do. But other times, like rigjt now, I can't even scramble an egg. Not because I forget how, but because the energy and motivation just isn't there. Hell, I could not even mske toast this morning. And I can't edit this like I usually would to get all the typos. I have an incredibly hard time asking for help. The shame is paralyzing. Truly it is. But...I am inspired by you, Debra, because even thougj I don't know all of what you are dealing with, my experience reminds me just how hard it is to KOKO. Annway, just wanted to say thank you. I am all teary and need to blow my nose. And that's ok.
Hugs to you MS Petal🤗
Debra ~ this is my favourite of all of your videos. Unedited, with the glorious blinding sunshine! You continue to be such an inspiration, and not just because you are a TBI Thriver, but mostly because you are such a tenderheart, with a generous and kind-hearted soul. You are a dear one ❤ Thank you for all that you share. And with regards to asking for help ~ I like this Zen perspective: When we ask for help, we are allowing the other person the opportunity to give. ✌🌻 KOKO ☮💜🕉✌ ~ Lorelei
I really do love the uncut version of you and your videos. Take care.
I admire you & Kelly both for showing real life & you are both an inspiration to so many. Keep on keeping on Debra. I'm glad you have been blessed with friends but am so sorry you can't live life as you want too. You are both a blessing to so many.
Well done Debbie. I love Kelly and Her pup. Keep digging deep for what you want, how you want it. Only you guys know what’s best for you. Love to meet up someday.
Thank you, Jean! I look forward to that meetup. KOKO!
Debra...thank you for addressing the issues of the disabled...whether it's a TBI, PTSD, or many other debilitating chronic diseases that challenge us on a daily basis. The analogy of "A, B, & C Batteries" is spot on! I'm struggling overpaying on a "Wheelchair Accessible" apartment (I'm on the waiting list for 5 different apartment communities that may or may not really be "wheelchair liveable" but do have a lower rent) that's only accessible thru the front door. I've had maintenance take off doors and figured out a path thru the apartment...to go into the bathroom, I must go thru the living room, down a narrow hallway, make a u-turn in the kitchen, a sharp turn into my bedroom followed by a three point turn and cross back over the hallway into the bath. My shower chair barely fits in the shower and there are no grab bars to assist getting out of shower. That being said...I'm trying to figure out how to adapt a RV/Van so that I can travel on the road and enjoy life outside instead of this apartment. Your videos keep me looking for the answers to living a better life. Thank you for your courage and vulnerability in discussing sensitive subjects. Loved the "Hell No" response...I'm a Texas woman that responds in similar fashion...just like my current housing situation...it's temporary because I'm going to find the answer! Blessings to you. ♥️
Thank you for sharing so openly and honestly. You will find the answer and I will vision it coming to fruition with you. KOKO!!! Love and hugZ, d
This was absolutely lovely Debra. So gracious and kind of you to reach out to Kelly. You are two of the bravest and most genuine women out there, and the information you covered in this video is so important for others to understand. Asking for and accepting help when we need absolutely does suck and is so hard to do, but unfortunately life always seems to throw us some curve balls. Take care, Koko.❤❤❤
You and Kelly both are an inspiration! That was a beautiful letter! There are so many people on the road that love y'all and would love to help when and where we can. You both got this! Love you guys!
Frugal RV Gal ❤️🐶
When I became an empty nester, I sought to offer my home to a section 8 family. I was treated horribly by county officials, like I was a would-be slum lord trying to score an easy buck from the govt. I can't imagine what horrible treatment those applying for section 8 must meet with. My best to you and yours!
Dannie N Bless you for that!
Thanks for sharing this point of view with others.
This was an awesome video, and you are awesome for doing it for Kelly Doyle. And Sophie Doyle. Because I cannot think of Kelly Doyle without also thinking of Sophie Doyle. Hope you are having a lovely day today, Debra.
Although my disability is not brain related, I definitely could relate to your response to Kelly Doyle - I heard you loud and clear Debra. Sometimes, our drive to be independent can cause more heartache to those around us than our asking for help. It's a fine balance. Kelly's video tore me apart but I had no words to respond to her transparent and brave video. Don't worry about editing btw, this unedited version is just fine. You spoke your truth with your usual eloquence.
oh Debra...thanks for being such a wonderful person! I'm glad Kelly told us about you, so I could discover you! 😊
Debra you did great! One take no editing wow! You are so strong and keep up the fight to be, and do, your best life! Love you dear! ❤
You are a doll Debra! What a great way to connect and keep putting out informative information! You & Kelly Doyle ROCK! KOKO! Love you both!
Well said, Debra. BTW I love the colors in this video - your glasses and also the stained glass vase with white roses (which may not be yours) but it's gorgeous. Good luck with your journey. Helping others is always good for the heart - I saw how you perked up when you were faced with the ides of helping someone else.
All my best,
Cathy C.
Thank you, Cathy! Yes, that stained glass vase is mine and it actually was a gift from my friend, Lisa. It is foldable. Can you believe that?!?!! I love it! I can't find the exact one I have on Amazon but here is a similar one: amzn.to/2LBeQhu. The roses were from Robert. I am truly blessed. Thanks again!
For me, disability is frustrating. Not being able to attend functions, events is isolating , depressing. I had times I couldnt watch tv, talk to people go to a store. I am better again and trying to live life as full as I can before it happens again. Bless you
Element Gypsy, I hear you. There are times that I get very sad on things I have to miss out on socially. For the most part, my close family and friends understand, but I ache when I am unable to attend birthday parties, celebrations, outings, etc. My newfound earmuffs help A LOT. I am able to do more with them but am still limited. I am lucky and blessed in that I enjoy solitude. Always have. And even before my brain injury and diagnosis, I had not had a tv for years. Having it all mandated though, plus the tbi episodes, is entirely a different story somehow. To cope, I focus on all the good. And there is a LOT of good. I am very blessed and grateful. Blessings to you dear one. KOKO!
LOL autocorrect is the devil! With the TBI, I don't trust it at all, it's said things I didn't mean, embarrassed the dickens out of me, & I also have a thing about being independent. I do the earbud thing, so I can control the input. Music, or a book, whatever, it's the tone not the content. It helps prevent the brain swirl (what I call it). I think you meant HUD housing, you know that's an apartment in a place you cannot control the noise level, the neighbors, the maintenance, etc. I cannot do an apartment at all. I already know that. Plus the constant monitoring by the state make paranoia worse. It's ok that we need quiet. It's ok that we need a tribe that will allow us to park on the fringe. I even have a plan for a privacy sign. You are so kind. Thank you for this. Kelly Doyle brought me here.
Thanks for this heartfelt open letter. We are all differently abled and I admire you and Kelly so much for being able to communicate about your paths.
Thank you, to you and Kelly both. You both have such amazing attitudes and bravery. We can all learn from you.
Love to you, Debra, and also Kelly. You two are in my top 5 favourite TH-camrs. :) I love these videos. I'm disabled and I struggle a lot with needing help and feeling like a burden. But it's NOT a weakness to ask for help or to need help. No where is it written "we must all be able to take care of ourselves entirely". We are all worthy of love and care for others, and some of us need more than others.
Debra, that was so beautiful. I love how authentic and real it is without the editing. You are so brave. Kelly as well. I was hoping to meet you guys at WRTR. God bless you both. You are truly an inspiration. Love to you!
A lover of life. ....well said..... take care Debra And Kelly and Sofie Doyle!
thank you both debra and kelly, for your channels. you guys are brave, sharing and so thoughtful. Wunderbar!
I take my hat off to you ladies, and I’m humbled to have met you and spend time with you. Much love to you ladies. 🙏🏽💖
Thank you Debra so much for doing this letter to Kelly. There are many of us who have been very concerned about her recently.
Debra, you are the most kind hearted lady...and So courageous. You and Kelly both rock. 💕
Wow Debra, that was wonderful. It was great. Thank you.
Super-inspiring!! My heart goes out to both you and Kelley as you both come to terms with life changes that are hard to accept. Thanks for educating all of us on what it’s like to live with a TBI so that we can be more sensitive and responsive with TBI-sufferers in our lives. KOKO! (Oh, and screw the editing, this video was awesome!!)
Two thumbs up to both you and Kelly living this lifestyle with disabilities Showing the "REAL " does help others........Awesome
Absolutely wonderful!!!! Sending you and Kelly lots of healing love
The world is a better place with you in it. Thank you for choosing hope, not dispare❣
Well done Debra
Continued 🙏 Prayers for Kelly , Robert and you 🙏🙏🙏🙏🙏
😉🙏✌💞👍👌😊
Debra, thank you so much. That was beautiful and very well done! Now I’m going to have to do an open letter to YOU! LOL I too made notes but for now I’d just like to say we love you. We feel a deep kindred spirit love for you and all that you do. You are amazing, brave, strong, and still the most inspiring person out there to me. Truly. You help me get through.
Much love and big hugs from me and Sophie Doyle. 🤗🐶❤️
P.S. I would love to camp with you some day for night or two if ever we are in the vicinity of each other. And not just because I would love to for once not be the last person to get out the door in the morning. 😉
Kelly Doyle hi Kelly. Hoping to meet up someday. I’d love to give that sweetheart pup a hug too.
Thank you for that. I recently got cognitive testing done after a year and a half after my frontal lobe tumor removal. I didn't do well. I have been in a deep depression because of my brain just don't work like it use to. I have the same issues as a TBI. The doctors thought I had MS. Do you have lesions on your brain? I do but they are not on my spinal cord. So it doesn't look like MS. I want to thank you and Kelly Doyle for inspiring me to keep on going and know I'm not alone out here.
This is the best video you have made. You and Kelly are inspirational. You are Debra and Kelly ,you help me,us them,he and she. No you cant give up you both have so much to teach us . Love you both
This speaks for so many with disabilities and even those that are able bodied. Whether it’s a lifetime condition or just the flu... we have all experienced this in some form.
You are a gift to us all. Thank you .
GREAT video! We all need to remember that sometimes the very smallest thing we can give is the biggest thing needed at the time and we need to receive it. Hope that came out right, love you guys.
Absolutely wonderful video Debra. 💜💜💜💜💜💜💜💜💜💜💜
I would love to see you and Kelly camping together! Love you both for your sharing and caring and honesty! KIKO and Follow your Bliss! xxo (and your video was FAB-YOU-LOUS without any editing, loved the sunshine on your glowing face!)
Debra, I wanna be like you when I grow up! I know we usually only see your better days, but on those days you just GLOW with joy!!! On those days, there is a radiant sparkle to those beautiful eyes, that I honestly envy. I will continue to lift you (and Robert) in prayer. There is a reason God brought the two of you together, for however long that time may be. HE'S brought you this far, he's not going to give up on you now. I pray you're able to live out your days as you and Robert wish to. Thanks for inspiring me to be the best ME I can be. God bless you!!
Another brave-and gracious-vlog about disabilities. I like unedited videos just fine, BTW!
I like unedited videos just fine too.
Thank you for this. So many blessings being sent to you, Kellie, and everyone living with this disability.
I am going to finally say this....my mom was diagnosed FINALLY correctly with TBI... after years of her showing small signs...and there is so much more. But I'll leave it there. I am so happy that you and Kellie have both decided to live your dream of travel while you can and want to...I wish my Mom had the information she needed to make her choice in time to do the same.
Right on Debra ...love love this video !
You exude peace & love!!! How very sweet of you to make this video! I’m a strong believer in telling someone how much they mean to you in the time we are all here & not WAIT until they’re in a casket!! I discovered your channel through Kelly’s. You have a new fan!!! I understand limitations... I worked in Mental Health for over 25 years & loved helping others. I had been struggling with chronic, severe pain issues from Fibromyalgia to severe Osteoarthritis & others. I dealt with those things but Then, all of a sudden my lungs stopped working & I almost died. I had to stop working, was approved for permanent disability just two months after I applied. It was a Godsend but it made me very sad to stop doing what boosted my self esteem- I based it on the fact that I helped people on a daily basis. I stopped working full time about seven years ago. I lost the house I bought & lived in for 12 years (I was 2 WEEKS LATE, seriously, it was while the big foreclosure thing happened all over so I couldn’t get any help). Anyway, I lost a lot & I’m still struggling but my mental health has improved but it’s a work in progress. My situation now is I have stage 3 COPD/Chronic Respiratory Failure. I’ve managed to stay out of the hospital since last July! I was in ICU twice. I’m praying for you. You sound very strong & brave!!
❤️❤️❤️☮️☮️☮️😁 Take care!!!
Adore you so much Debra!! Kelly D. Hugs to you KOKO
Debra lately I have finally come to the realization that it's not about what I can't do anymore, its about what I can do now. With that realization I have had to be able to allow the kind people who offer help to let them help. I do not get out of my quiet home very often, but when I do it exhausted me...but I did get out. BTW housing assistance is chancery and each county and city is different... I am HUD and Section 8 certified and unfortunately the housing is getting worse daily and it is important that you and Kelly are talking about it. Also shelters are iffy and most won't allow animals.
menofairy ❤️
That was perfect! 👍👍
Wonderful video that a lot of people could learn by. Having a disability myself I can relate to how people want to think by just looking at you there's nothing wrong with you . I like your attitude we have to do only what our bodies say and it would be wonderful if everyone could understand and not judge. Much love to you and Kelly both. 😍
You did great on that iPhone. I love you and I love Kelly. You are both the salt of the earth.
Kuddos to you and Kelly! 💜💜💜
Debra and Kelly, I am glad both of you are writing about this. My heart goes out to both of you for your situation and your courage and determination. I just want to say that I took care of my partner of 30 years through her dementia at the end of her life. She did not take to giving up her independence very well at all. This kind of situation was frustrating for me as I loved her very much. Eventually, she had to accept her dependence on others. This period became the most precious period of our relationship. It is a gift to the caregiver to be able to take care of their loved one or friend if that is their desire. Accepting the love and help from your friends isn't a one way street. It can be arranged so that it is not a burden on one person. It can enrich both sides immensely, allowing you to stay engaged in life and the caregiver(s) to experience a purpose that is greater than themselves, actually for you too. Your situations are nothing but horrible at times, but you might not have to give up the life that you seem to love.
I've been binge watching this week. As for how this video will be received without any editing...well I was so caught up in it, that it was like talking with a friend. I never even noticed the problems you were having with the sun. KOKO
Love this. Thank you Debra. I love Kelly Doyle. You both inspire me so much! From another Debra who is checking out Casitas...with several disabilities. 🌼
This is one of your best videos no need to apologize girl. koko
Absolutely beautiful
You & Kelly are such an inspiration-may God bless us all!!
Tell Kelly she's missed and just hoping she's ok.
Aww that was such a sweet thing you just did...and you are so adorable too btw! I hope both you and Kelly hang on and are able to keep up with this on the road thing and video. When people offer to help that's not the same as taking care of someone. I love Kelly's videos and I'd be ok if they were just updates like that one when she's have trouble. I thought she did a dang good job with that video. It was a lot better then I would have been able to do
All I can say is WOW! awesome, totally awesome
Government housing is very difficult to get into when you don't have the right connections. They tend to be in noisy areas. Some are 55 and older but can still be noisy. You are correct in saying once there a person without the right connections is stuck. In the state I am stuck in 55+ communities allow children when there is no one else to care for the grandkids. More unsupervised noise at high volume. Don't get me wrong I like kids, I just cannot handle loud noises either.
Thank you for linking to Kelly's video. She staed what I have been going through too.
I grieve at the thought that you also will be giving up seeing friends. Some will visit you. In my state most friends have left for good and we gradually lost touch over the years.
I am thankful you and Robert have each other and that you have a wonderful trustee!
My heart goes out to you more than you know. ♡
Keeping you and Robert in my prayers.
You did a wonderful job in this video. Maybe you might consider doing more raw ones like this. You won't lose followers. KOKO♡
I care about both of you so much! Another TBI.
I cannot do crowds, I tried joining a caravan near Yuma and I only lasted 3 days. My homemade truck camper had some issues also so I drove back to Colorado. But a new van is hopefully in the near future. Then I can hopefully have more freedom.
There's a reason you have Keep On Keeping On as your motto! XO
I watched Kelly's videos and wondered if you would do a reply video and glad you did! Love ya Debra - I love Kelly and Sophie Doyle too. I'm so proud of you and Kelly. Hugs to ya both and doggie cuddles to Sophie!
At 12:47 the community housing you mentioned, I think you meant section 8. My oldest daughter is paraplegic; it took her countless years to finally get in to one that could actually accommodate her needs.
Well done, Debra. I’m impressed with both you and Kelly. I prefer real life at least once in a while - it’s a reality check for us viewers. Much of what you and Kelly describe about TBI is true for me also.
Oh beautiful one!!! The editing is fluff. It's the message that counts! Shalom and Happy Trails 👵 🚐🤗 💕
Great Video!!! I have congenital heart disease 3 ohs so far in my 48 yrs and now I'm facing another one in the upcoming yr or 2 so I know what its like to have Down Days where your exhausted and even sitting is too much, I had 1 yesterday..I get completely worn out to the point of exhaustion cuz I ALWAYS have to push myself to do more just to keep up with the other healthy ppl, lol..I've made a video about my heart condition too on my channel. And when I watched Kelly's video with being a caregiver for many yrs and I have a friend that has a brain injury that effects being about to read n count n comprehend some things I was wanting to Jump into my screen and go help Kelly my ownself!!!! I hope she's ok and finds a way to have ppl help her when she needs it. Take care...😊Tina
Thank you for sharing. Blessings and best of health to you.
I saw this, I've been worried about Kelly, I am glad you have done this for Kelly. Kelly we love you and miss you. Look forward to your next video. I haven't done one yet. I did do my bed, but it's in limbo until I get my trifold mattress.
God Bless you, Debra! Do what you can for as long as you can! Celebrate that sun coming out! ❤️😀😎
Living large is different for different people. A well known artist (whose name I can't recall:)l) was confined to his home with some kind of disability. He painted what he could see from his windows, doors and when he was taken out into the yard. I think a life lived large is whatever fills our individual canvas on which to paint our individual life. I think of Christopher Reeves after his paralysis. I think his life was lived larger than before. You are living your life large with your courage and sharing. Consider letting go of urges for perfectionism . You videos are just fine raw. Better than many that are edited. Also please recall that those who seek to be of aid consider it a gift to be allowed to be of help.
yep yep and yep. I get where your coming from. I agree with you.Yes let people give. Give that moment of help. We like to give but it seems we don't like to take/that generous help. Thanks
Love you have reached out to Kelly. Wish you would finally find each other that would be a wonderful video. People need people we all need help even those of us without disabilities. You have Robert and lots of others and you are able to stay on the road because of that. Hope Kelly sees that through you. No one can be forced to sign up to be another’s caregiver BUT people can volunteer out of love. Sometimes they need the opportunity to help as much as you need the help.
PS no need to edit its more maskless this way my friend I have not meet
I don't give a hoot about whether you edit, it's just always such a gift to hear from you -- in some ways even more so without the edits! KOKO, Debra! I'm just sad I most likely won't get to meet you in person now that you need to avoid groups and unfamiliar people. I wanted to be at Rice Ranch this winter but I had surgery and I just couldn't get on the road soon enough to be there. You're with me in my travels anyway. (I don't see emojis here, so envision a heart and a big smile in sunglasses!)
Will this do? ❤️😁😎
Whether you can edit your videos or not, that doesn't matter. I enjoy your videos and hearing from you.