Best buddy died of pancreatic cancer. Took about 2 yrs after diagnosis. He knew there was no hope. His 4 yr old son and I sat outside the funeral home, both too shook up to go inside. Eventually, we walked inside. I held his little hand as we walked down the aisle toward our seats up front... I'll never forget that.
I believe you gave more to his little boy than you'll ever know. I also believe your friend knows and is so grateful you were there. God bless you. Thank you. ❤
I lost my husband in 2019. He was only 39. Never in a million years did I imagine being a widow at 38 trying to raise 3 sons 6,8,&14. I have never felt such heartache. I am still struggling.
I lost my mother today to cancer. A very healthy woman of 80 years who was diagnosed in February and died today this morning in my arms. I don’t wish this on anybody. Im hurting real bad.
So, so sorry for you, dear. It is painful and there are no words that can help or ease your ache. I wish for you loving people around you that are there for you and to listen and hold you and that they understand that now is not the time for platitudes or philosphizing. It is the time to grieve, to cry and be around people who understand. No one and no words can 'fix the pain of loss'. Time eventually helps us accept it.💜
Both of my parents died of pancreatic cancer. Dad had extreme pain, Mom had none. Dad chose a whipple which seemed to speed up the metastasis (think pouring gas on a fire), Mom learned from that and immediately went on Hospice post-diagnosis. She died quietly and peacefully. Everyone IS different but to us, Mom chose the better path. Thank you, Nurse Julie, for this concise assessment of the process.
I hope you have had genetic testing and talk with your genetic counselor every few years to learn of updates. I found out I was able to get an MRI with contrast and it was covered by insurance.
I worked in the medical field a long time ago, 1970s, and huge advances have been made, but it sure seemed to me that the surgeries they did then sped up the cancer. As you say, like gasoline on fire. Really made me think. I'm so sorry for your loss, truly. I'm glad your mom made the right decision for herself and that she was spared the pain.
@voyaristika5673 , operating rooms have higher levels of oxygen pumped into them. The O2 promotes healing to the body in most instances. Those rooms are also kept at lower temperatures to inhibit bacterial and viral growth. However, when highly oxygenated air hits cancer cells, it is very much like gasoline on a fire. I'm 69 now, and still maintain that if I ever get a cancer diagnosis, I might or might not try some type(s) of treatment. Depends on the type and the stage. But I will NEVER let them open me up.
Glad for the video. Last year I had some bad GI problems and lost 45 pounds. Not the first test, but had an MRI and my gastroenterologist didn’t like what he saw a said the dirty words “I’m concerned it’s pancreatic cancer.” I’m 65 and quite active, so it knocked me on my butt and I was scared! My sister-in-law had just died of Ovarian cancer. For 2 days I cried and went into depression. For me, my action was to pray for peace and healing if necessary. After the second day a great peace came over me. My mantra became, “If I live or die I win either way.” I’m sure others of faith have thought that. So, after more tests I was cleared of having cancer. I was relieved in a calm sort of way, maybe because I had accepted that my days on earth weren’t many. I’m not sure my purpose for writing this, except to say that if a family member or friend has cancer, be there for them through the whole journey. Surprisingly the most outreach I got was from non-church and non-churched friends. They stuck with me. Even though I didn’t have a pancreatic cancer diagnosis I was still pretty sick, and my friends let me talk about it, vent to them, and cry a little bit. So the friends who have stuck with me are the most valuable thing i have been blessed with. Stick with your friends and family who are sick, the whole journey!
I'll never understand the "friends" who abandon someone when they're seriously ill or dying. I've seen it happen repeatedly. Unfortunately, even immediate family are often guilty of the same behavior. That happened in my own family with with siblings during our parents end of life journey. I'm so disgusted, I don't even want to see them anymore.
@@kaycampbell8532 you’re exactly right. When my brother’s wife died, at church he felt “cut out” of the group of couples he was friends with for almost 40 years.
@@kaycampbell8532 Those are not friends those are PARASITES the world is full of them. True friends are like 4 leaf clovers, they are ot there but truly hard to find....
My Dad died exactly 2 weeks to the day of his Pancreatic cancer diagnosis, it was already at Stage 4 when they caught it 😭 it had started to spread to his Liver and Lungs😭 he was jaundiced but he said he had no pain. It happened fast, but we couldn’t have gotten through it all without hospice❤️ they explained the process and steps and were there every step of the way, we will be forever grateful to hospice 🙏❤️
I couldn’t agree more, hospice services are invaluable. They were there for me and my brother and helped us through my mother’s last two weeks. We could not have coped without their compassionate support.
My husband died 3 weeks after diagnosis. What was tragic is that he was in the covid ward and I could not visit with him. I finally had to yell at the doctor that if he was not going to survive he wanted to be home…not in a hospital all by himself. Ugh. I was so frustrated…No one updated me on his condition…He did finally make it home and 3 days later he was gone when I went to check on him and give him his morphine.
My sister turned yellow one day. 10 days later she passed away from pancreatic cancer. It was a horrible shock for our family. I'm grateful her suffering wasn't long but we miss her terribly. She was only 53. 😢
My Daddy died from pancreatic cancer on February 27. He suffered so much. Before the cancer diagnosis, he had several severe cluster strokes. Morphine every hour. Halidol. Ativan. The pain was so intense. Thank you for this video. Our family literally fell apart with his death. My sister won’t speak to me. My mom is just broken and impulsive. I’m doing my best to help my mom but she can be so hurtful. I just want to give up. Thank God for my husband. My family died with my dad.
I totally feel what you have shared here. I have experienced the exact same thing when my father passed. I will never understand what happened with my siblings. It is experiencing more than just one death .
My daughter passed (not from cancer) but the same thing happened to my family. We started to fall apart earlier but since we are a mess. A separated, sad, mess.
Same here! As my mom was dying my brother just lashed out at me and refuses to speak to me. I’m beyond shocked and saddened as to what the hell happened??!
I have a crochet student who was diagnosed with pancreatic cancer and she told me about the Whipple procedure (reminded me of the whip stitch for sewing) and she finished her chemo and actually went into remission! One of the very few who survive that far. She’s a wonderfully kind lady and I’m glad she’s made it this far!
My Mum passed 20 days ago from Pancreatic Cancer. She had no pain and she was only diagnosed 4 weeks before she passed. We only found out because one morning she had turned yellow, so we called the Doctor. My mum had none of the symptoms. It was such a shock. I want to Thank You for your videos, which helped me greatly, through this experience.
So very sorry for your loss, however if you can think on the positive side, it was a blessing for her, that the time after diagnosis was short. You said she wasn’t in pain, be eternally thankful that was the case. Pancreatic cancer and other cancers can be very painful. Sending you a 🫂 please take time to grieve, it must have been a big shock to you, to have her pass so suddenly.
I had a sweet friend die of this horrible disease. Yes pancreatic cancer is mostly terminal. She tried to fight it but barely made it though the 1 year point. It was awful watching her suffer. Ascites, liver Mets and more. Thankfully her death was peaceful in hospice surrounded by loved ones. She is dearly missed. Her memory lives on.
My husband transitioned 8 mo ago. It was a brutal 10 mo journey. Fortunately, in the end he peacefully passed. I watched your videos throughout his illness. I was his caregiver and couldn't have done it as well without you! He was a strong well built 67 yrs. and it destroyed his body. He had cachexia with it. Unfortunately it is becoming a more common cancer. Thank you Julie. Your videos were a lifeline for me. 💜 Hospice was wonderful 🙏
I am a survivor, and thankfully. There’s a 13% chance of survival now. We walk in 60 cities across America on Sat. to raise funds for PanCAN Purplestride to help others with pancreatic cancer. All are welcome to help & thank you. 💜💜💜 Thank you Nurse Julie for your valuable information. You helped me with my father many months ago, via TH-cam. I appreciate you more than you know. 💜
My sweet Mom passed away from pancreatic cancer on July 21, 2017. She was a very healthy active 86 year old. When she went to the hospital TWICE when she was not feeling well she was sent home TWICE. I will never get over how the hospital did not treat her properly. I so wish that I had had this information then. Thank you for sharing your knowledge.
Exact same with my mom. Instead of checking her out for pancreatic cancer when she complained of pain, they first removed her gallbladder and then when they checked her blood and saw that her blood sugar levers were through the roof even though she was thin and very fit and had no family history of diabetes, they diagnosed her with diabetes and put her on a strict diet. So much time wasted when she could have been getting treatment maybe. I'm very sorry for your loss.
Pancreatic cancer is occult and very difficult to diagnose. It’s not uncommon to see Doctors a couple times before diagnosis. It’s not as if you go to the ER with nausea and the first thing they think about is Pancreatic Cancer. My Dad’s cancer wasn’t diagnosed until he woke up lemon yellow one morning. He’d also been having trouble with itching, but that in itself doesn’t point to Pancreatic Cancer right off the bat. By the time the jaundice occurred the cancer was well entrenched and he died 9 months later. You can’t fault the frontline Doctors in the least.
My husband passed just this past February, I took care of him myself. It was hard at the very end, but you touched on all of the things I wished so much I had information about. The doctors were especially cagey around the whole thing, as if it is somehow against the rules to say to someone "You are dying, this is a process" They just kept offering hope in this or that treatment, even literally one week before he passed, even I could see he had nothing left to fight with.
I'm so sorry 😞 I am caretaker for my 92 year old father who has dementia and not looking forward to any of this end stuff. I'm here trying to prepare myself and learning so much from Jule. My heart goes out to you🙏
Hi I was not feeling good 18 months ago and went for tests . Bloods showed pre diabetic. Had heart eug , nothing amiss there ,breathing was a problem as I would get short of breath . Nothing diagnosed then either. In February this year I saw a different GP to my usual one and she triaged me . I had an ultra sound and in March was told hypoechooic lesion in mid pancreas and in liver. Next ct. inconclusive not on liver so had two more cts . Inconclusive tiny spots in lungs .At this stage i found out that in 2022 when I had a scan for something else my lungs were a mess as quoted by specialist .i knew nothing of this and was never told. I tried to go private as had lost faith in our health system in NZ. Semi promised a resection op and would give benefit of doubt on lungs . This changed as strikes here etc. All this followed by colonoscopy with tiny benign polyp . Then biopsy of pancreas. Was told looked like adenocarcinoma , but this changed . Net cancer .Then I had Two Pet scans and mri on liver . Liver showed lesion .They now say I have neuroendocrine pancreatic cancer with mets lungs peritoneum pelvis and are offering Captem pills. I am unsure if I should take as I had breast cancer 28 yrs ago with intravenous chemo which was just awful . Is there anyone out there with this rarer cancer and anyone that has had the pills to help. I feel in the last six months of which It taken that length of time to come to a conclusive diagnosis that things have become much worse and I am struggling mentally and physically not knowing which path to go down. Any help or advice would be greatly appreciated . Thank you
My best friend was diagnosed thanksgiving day 2023, when I found her dark yellow i rushed her to the hospital. Her dr now every time we go in. I ask many questions. And he always says it’s the disease. We never get any other answer. It’s very Frustrating. I’ve been her caregiver since day one. And for 10 months she’s Been fighting, I keep her going and she has really great spirits. It helps. But, she’s lost 80 lbs so far. I’m praying for all you. Stay strong and trust GOD.
My mom died of pancreatic cancer hers spread into her hip she had a tumor in the hip area as big as a pumpkin, plus throughout her lungs and in the liver she never had the swollen belly. Her body shut down in a peaceful way she also had morphine but needed no oxygen. She was taken care of and asked if she wanted water or food. She was never agitated she expected her terminal illness and still communicated with family and friends as she would without being sick. She went peacefully surrounded by family ❤🦋🙏
I held my wife's hand as she took her last breath at 3AM on a February Tues morning. We had a lucid Sunday afternoon when she came home to start a hospice of only two days. A Whipple survivor of four years, her cancer was in the liver and lungs. She struggled with symptoms while carrying on with daily life until the very end of December, not knowing yet the source of her discomfort. The then Covid restrictions made it very difficult until I was permitted to be with her. The hospice people of the Cleveland area were angels.
I am a dementia specialist with 2 degrees. I have learned so much from you that it has changed the way I interact with my patients. Thank you so much. I've seen an angel too. Was instantaneous also. You describe things beautifully. Please talk about the power of music with dementia. It's important
I’m a physician and I have learned so much from your videos too. It has really altered my attitude about my own death as well as the deaths of patients. Great job! Thank you.
My wonderful mother in law was diagnosed with pancreatic cancer in Aug of 2021. We had high hopes because she responded very well to the first round of chemo. It was inspiring to see how positive and upbeat she was in the face of such a devastating illness. On 3 May 2022 she lost her battle with cancer . It's been 2 years and it's still very painful.
December 2022, my 45 year old cousin was admitted to the hospital due to COVID. While there they had trouble maintaining his blood sugar level and soon after, his abdomen filled with fluid. He was diagnosed with pancreatic cancer that had already spread to his liver. He passed on New Year's Eve a mere 10 days after he was diagnosed. Prior to the fluid/blood sugar he'd had no symptoms. On one hand, we're grateful he wasn't sick/in pain until the end. But losing him 10 days after receiving his diagnosis was stunning. Awful, awful disease. Be well, everyone
My twin brother PeeWee passed away from pancreatic cancer on July 8, 2011 just 3 weeks after our 50th birthday, the Doctor's misdiagnosed my brother for 5 mounts before they found it then they gave him only a week to live, he lived 2 more mounts I stayed with him in the hospice 24-7, the hospice staff was amazing they took good care of my brother and me, the last week of his life he was in a coma like sate on the Wednesday before he died on that Friday he woke up at 1:30 AM and told me he was hungry I asked him what he wanted to eat he said Pop tarts and the hospice did not have any so I asked the nurse if she could watch him and i jumped in to my car and went to CVS and got him some Pop tarts, he ate one Pop tart and had two glasses of milk and he said thank you brother and that was the last words he said to me, and when he died a part of me died with him, thank you for your channel.
My cousin started having pain under her left rib-cage and intermittent diarrhea, it was just after the Pandemic and it was still difficult to get a doctors' appointment. My cousin used to work in a hospital as a secretary, so she knew how to communicate effectively with medical professionals, but her docs were still indecisive about making a diagnosis. Fortunately, one of the doctors overheard her talking to her husband and then the penny finally dropped with them... My cousin was informed that her disease had metastasised and had spread to her lungs, she suffered greatly, but died peacefully at home surrounded by her family. Throughout her life my cousin had been an extremely kind person and would go far out of her way to help other people, she also had an amazing sense of humour and would light up the room when she walked in. I miss her "like crazy." How I wish they would make in-roads into curing this awful form of cancer that seems to be on the increase.
I'm sorry for your loss. You being with him is a wonderful blessing for both of you. You got to be together, that's important. Nothing can make up for the loss of losing part of yourself but I pray you find peace and comfort in knowing you were there when it matter most.
Thank you for this. My Mom passed in January from pancreatic cancer. She had all the symptoms. It was brutal to watch but she had such integrity and grace through it. Watching this helped me a lot.
My younger sister who was only 66 passed away from pancreatic cancer last year in 2023 in just a few months. It had spread to her stomach and shortly after being diagnosed, she became a paraplegic and never walked again. it was SO sad and our family was devastated.
My Mother woke up yellow one day. They took her to surgery from the ER, thinking she maybe had gallstones. It was an open & close surgery as she was ‘full of cancer’. They said pancreatic cancer was known for being too far gone before a symptom was seen (“a silent killer”). This was in 1985/1986 (they gave her 6 weeks, she lived for 8 weeks). My sister and I took care of her at home, until her death. It was just basically wasting away. She was able to say goodbye to her family. She tied up loose ends. It was just the last week that she was no longer conscious. There was no hospice back then. We gave her morphine and insulin injections as needed. It was a very Spiritual time. Thanks for helping people to know that none of us gets out alive, and what the end of life is like…and that death is a normal part of Life. 💙💙💙🌷🌷🌷
My oldest brother died of pancreatic cancer. He was only 53 years old. His skin color and eyes turned yellow and he of course was not feeling well. This was 40 years ago. He was such a nice and very successful man.
I lost my husband, 52y.o. to pancreatic cancer, a year ago. Later, my relative passed away from the same cancer. And now my friend is battling this cancer. A lot of it it going around since 2021.
My husband lost his first wife to pancreatic cancer. His was a hospice nurse at the time. It was awful. He knew exactly what was going to happen from the moment of her diagnosis. They tried different treatments because she wanted to even though he knew they probably would be of no help. I do my very best to stay as healthy as I can. I don’t want him to lose two wives. Hospice nurses have a special calling to do what they do. My husband did it for over 30 years along with mental health. He is retired now.
Unfortunately y mom was diagnosed with pancreatic cancer last April and with chemotherapy she was able to be with us until November. All drs kept telling me is how painful pancreatic cancer can be but it wasn’t so wi5 my mom. She was pretty much pain free and didn’t get ascites and passed away peacefully in her sleep under the care of hospice. The hospice team was WONDERFUL and I encourage any patient and their families to seek their help and guidance. My mom was under palliative care first and then the last ten days she was under hospice. She was sleeping pretty much the whole time and hospice taught me all the signs of discomfort to look for. The hospice nurse even recommended your videos! THank you Julie for all the knowledge you share with others. They are so helpful and I appreciate you so much!
I've been watching your videos since my dad was diagnosed with Pancreatic cancer.. Thank you for the advice and information you give. It helps so many, myself included.
Julie, I appreciate your honesty.As a professional caregiver, I hate it when I see family members tiptoe around symptoms or illnesses. These things can still be phrased kindly, but honestly. The patient has a right to know if they choose to. It annoys me so much when the family pretends the illness doesn’t exist. That won’t make it any better.
Our nephew was losing weight and he was happy because he was trying to lose small amount. Sadly he quickly lost lot of weight. Dr did some test and he had this horrible cancer. He died in 3 weeks.
This! My sister was diagnosed in October 2022, I read all I could and watched her slowly decline through chemo/radiation/chemo and ultimately hospice in Feb 2024. My family kept telling her to “fight” and it enraged me. Like seriously, people need to educate themselves and support their loved ones. Don’t watch it happen and tell them to fight, it’s insulting!
Shes an opportunist selling peoples experiences to fuel her channel and books. I guess shes never heard of Hippa. She a despicable individual. Dont tell her your stories or it will be in her next book.
@@monongahelacats Yeah she does everytime she writes about somebodys medical condition, shes nothing but an opportunist using her position to gather info for preying on peoples hardships for her profit and notoriety. Hows that helping people??
My mom was diagnosed with pancreatic cancer on August 25th 2021. She passed away on September 14th 2021. Yes 19 days later. It was devastating. Her and I lived together and we got hospice right away. They were angels. I took care of her those last few weeks. I miss her so much. I was her youngest and her and I were very close. She was 81 and I was almost 51. I am a carrier of the PALB2 mutation. I had my first pancreatic endoscopy last December. He found 2 tiny spots he’ll keep a close eye on.
My grandma just died today from pancreatic cancer, in a hospice facility. She was diagnosed earlier this month, and declined very quickly. She was a relatively healthy and active 74 years old. Luckily, she was surrounded by loving family, and we were all there with her during her last moments. I had seen some of your videos in the past, primarily the ones about end of life breathing. I'm glad I had seen those, so that I knew what to expect.
My brother n Law was diagnosed with Pancreatic Cancer. He was able to have the Whipple Surg. ...Chemo Radiation..he stopped eating meat ate fruit and veggies, a long process but by God he beat it.. We're not in contact with an longer but I understand he is doing well and gosh he has to be 80 yrs old now. This all began like 20 yrs ago. right after he retired. God Bless him. 😊 🙏 🙏
Had a guy at my workplace who succumbed to pancreatic cancer last January. He was never a large individual but I really picked up on his sudden frailty a couple of months before he passed. That man worked up to about three weeks before he died; I occasionally could discern his ascites and observed his evolving coloration. I offered to call him a cart during a fire drill, but a month from demise, he still insisted on staying afoot. I hope his last few weeks were comfortable.
My husband has stage4 Pancreatic Cancer and is 8 months having Chemotherapy, he is a lawyer and even though becoming fragile and sleeping a lot wants to still work and walk and ride his exercise bike,it helps him to stay positive and live as long as possible.😞🙏
What an outstanding video, Julie! The information you provide is surely helping so many families. The ability of an experienced hospice nurse to educate and prepare patients and families is one of the most important skills, and you are a great example of this!
Nurse Julie, your videos helped me through my father’s passing. I had but three minutes to talk with him the day before he transitioned to sleeping and end of life. The videos about good oral care and removing the fluids, and him sleeping with his mouth open were so informative when we felt so helpless. Made me come to terms better, knowing what to expect. ❤
Yeah, my Dad had a super sweet lady working for him in his office and we had lots of great chats. She and I had an unexpected coincidence in common. I'm a truck driver and I've picked up many loads of peppers from Coachella and had spent a lot of nights parked at the TA, down there. Before she moved to my state (which is a long way) and started working for my dad, she worked at that same TA. It's a small world. Anyway, she was diagnosed with pancreatic cancer and within two months, she was gone. It's a terrible disease. You said there are many roads you can take, treatment wise, but I'm pretty sure they all end up at the same place.
My mom was diagnosed in July and died this month. Pancreatic cancer is a nasty, nasty, ugly disease and she suffered so very much. It was devastating to watch. I started watching your videos right after her diagnosis and they helped me tremendously. Thank you.
My Dad died in November exactly one month to the day after PC diagnosis. I asked about draining his fluid while he was hospitalized and was told they couldn't do it. I wish I had access to this video at the time. His experience was exactly as you described. Thank you so much for the knowledge you provide - it is so incredibly helpful
So informative. I used to see the jaundice and liver failure patients. I remember one woman outside visiting with her husband. She had white hair but it glowed with that yellow tint. I knew she did not have long. That deep yellow was in her eyes and skin. Her husband visited her daily. She died maybe 3 days after I saw her last. Thanks again, Julie for this information.
My MomMom died almost 14 years ago from this. She had in home hospice, then in home palliative care, during the last 6 months or so. Thank you for making this video. It’s helpful knowing what the end was like for her.
My Mom passed away at 80 last year only 17 days after her diagnosis. It just ripped through her like a wild fire. Hospice was a miracle. She passed away peacefully in my arms with a Hospice Nurse and a Volunteer. Love you Mamma!
I love the work and education you do with this channel. So important! Knowledge reduces fear for everyone. Thank you Julie for the time, effort and great advice always given respectfully and with dignity.
Oh Julie, I wish so much you could have been on my mom's hospice team 5 years ago. Diagnosed in Feb., passed in May. Every PC patient is different, but you explain things so thoroughly. Her hospice team was very compassionate, but did not explain things the way you do. Her body had a very lengthy process to shut down because her heart and body were still in relatively good shape. She lost hardly any weight because she chose no chemo. It took 10 days once we decided she needed care in a hospice house. I stayed with her 24/7 and it was the hardest thing I will ever go through in my life. I had so many questions, even though I had read books. I never really got solid answers on some things and it haunts me to this day. God bless you for the work you do to educate us.
I watched my 63 year old beautiful mother die from stomach cancer and it was brutal…she died at home and my sister took care of her the nurses were great and they cried to
A co worker recently passed from this. She was 43. I did not know she had been sick. I had not talked to her for a month before she died, so I had no idea. Idk if she believed a miracle would happen or what but from what I can tell, it did not seem she believed it would be terminal. Although, I wish I could have been there for her, she appears to have had a strong support system. I do miss her. She was definitely one of the good ones. Always helped me out and listened whenever I wanted to vent, even outside of work. Only thing is, she listened to me talk about my mom and her cancer and probably had known about her on road up ahead but didn’t say anything. That couldn’t have been comfortable to hear! Rest in peace Judith!
Both my mother and mother in law died from pancreatic cancer. My mother never had any pain; and gradually passed, but my mother in law suffered greatly.
I am a firm believer in this. If someone is told they have 3 months to live, they'll die in 3 weeks from the stress and heartache My dad had a very weak heart and an infection from a surgery that never went away. We all went to the same primary Dr. And he told me my dad had less than a year to live, I said, "Please don't tell my dad that he promised me he wouldn't. Dad lived 7 more years.
I am a 14 year survivor of Pancreatic cancer. I had a distal pancredectomy and had a recurrence 8 months later. I then was diagnosed with locally advanced Pancreatic cancer that had metastasized to my abdominal wall. I was given 6 months to live. I had Gemzar and cisplatin and 30 radiation treatments.
I recently lost my dad to pancreatic cancer. He didn't get a chance to make it to treatment. He got his port put in for chemo and later that night he started vomiting and couldn't stop. He was put in the hospital for 8 days and later went to hospice and transitioned 7 days later. He was diagnosed in February and gone by the first week of April. It was so fast.😞
Paul, always happy to see you and hear from you. I'm so sorry you are going through this surgery again. You never cease to amaze me with the knowledge you have on day to day life things as well as your medical. I'm stunned the words you can pronounce. What the heck is on your shirt today? I only wish the very best for both you & Caroline. I'm more than happy that I found your channel and it was right at the time it'd started. I'd say right when both people that I'd been following had taken a turn for the worst both Jenny Apple & Sarah McGloghlon. It blew my mind that there were so many similarities too many to count. Getting to know you through your channel has been nothing but a pleasure. Excellent content and coverage in all of your work. Sending prayers, hope, & love.
Hi. I have Intrahepatic Cholangiocarcinoma. That’s bile duct cancer. I was lucky. I was diagnosed in stage 1 so I have a chance of cure. ICCA is rapidly increasing in incidence and many victims are young. It’s a rare cancer but becoming less rare every day. I would love it if you would spread awareness of cholangiocarcinoma since it is increasing and has a dismal survivor’s rate. I would also love to see you address survivor’s guilt among loved ones. I feel this when people in my support group are in the dying process.
This is pretty accurate my grandfather died on Monday from pancreatic cancer and he did have confusion and once they addressed that he returned to normal but ultimately it was too much going on with him. The doctor told us they gave him fluids in his active dying stage and it brought his pressure up but then his heart rate started going down. I wish I was there to let them know we didn’t want fluids.
My Dad 2002 from Pancreatic cancer ,he had chemo and Radiation. He lived 9 months. He lived everyday on 1 pain pill a day. We planed his funeral, who was going to carry his casket. My dad was A Superintendent of the Cemetery. Those days broke my heart ❤️
My uncle has had it pancreatic cancer over 10 years, doing experimental treatments still going although it has spread everywhere. Still gets around fine very rare when it comes to this cancer
Thank you for all your videos My husband discovered it in stage 4. It went all over and it was horrible. Nothing helped and pain was not stoppable. He passed 5 mos after diagnosed
My grandfather passed from this. So did a coworker. I feel worse for my coworker. At least my grandpa got to retire and live many relaxing years with my grandma. My coworker worked for weeks in pain and spent a few weeks on hospice.
Just a comment on the poor path my father suffered. He first had "digestive discomfort" and went to his doctor. ( It always took a lot for Dad to even think of going to a doctor.) The doctor brushed him off and told him to "take Mylanta". The pain did not go away, but Dad assumed the doctor was right, or that he had some food reaction. Another month passed and again he went to the doctor, who even seemed amused and told him again to "take Mylanta". At that point, my brother asked Dad to see another doctor, who immediately referred him to an oncologist. Result - pancreatic cancer, metastisized. He lasted another couple of months. Hospice was helpful, but my anger resides with the first doctor who brushed him aside. Treatment might have saved him, or at least prolonged his life or given him relief from pain!
My husband was brushed off as well when he kept telling the person he was seeing something was wrong. He told them for months he needed an MRI. They kept claiming it was this or that. When he finally ended up at the hospital it turned out he had lung cancer which had spread to many areas. IF they would have sent him for imaging like he requested when things first began maybe he wouldn't have terminal cancer. Like you I am angry at that person and I absolutely fault her for falling him. If caught when certain things started he may have had a chance at actual life saving treatment, not life extending treatment. Blessings be with you.
My sister was in pain due to extreme constipation (due to pain killers) and the doctors just prescribed more pain killers. She got a colonic and that was a huge relief for her.
This wonderful and comforting place, thank you. I hope our Australian hospice/palliative training starts improving. Our frightened doctors just can't talk to people who are in short term life.
So many sad stories on the comments thread. I really hope they can find a cure for cancers in my lifetime we’ve lost too many many people to this horrible disease
Thank you for this. I saw some of the symptoms you mentioned in this, definitely the ascites, pain (but it was in her back) and confusion in my friend. I hope she's in peace now. I don't think I could be a hospice worker, my heart wouldn't cope. X
My aunt had pancreatic cancer. It had spread to her liver, bone, and lungs. She was admitted into the hospital and died 3 weeks later. For her it caused deep vein thrombosis and several strokes. It was so fast and we were shocked because as far as we know there is no cancer in the family.
My Dad fought so hard, he was always strong willed😂He had gone in for a stomach bypass surgery cuz they thought his duodenum was beyond repair, they saw his liver covered with cancer and closed him back up without doing anything. He could not believe it when he woke up, but he wanted to do anything necessary even though they gave him only 3 mths with treatments and he ended up living 15 mths! We are thankful for all those bonus days indeed and also that he never got ascites, but boy was he yellow and in unbearable pain the last few weeks! Thankfully he had a port from all his chemo and so Hospice used that to give his end of life med. hospice is amazing!!!❤❤❤
Dealing with this with a family member right now. It's taking him so fast and its heart breaking. 💔 His stomach is huge but doesn't want a drain. It's such a sad thing to see.
Hi Julie, I came across your video and I learnt alot out of them. I lost my Mom in December 2022 due to land cancer. Currently I am working in Canada and I have bought a land back home in Uganda to build a hospice center. However I am also looking for people like you for technical advice. Thank you for the work.
My younger Sister passed away on June 12 2024 from pancreatic cancer. There was no treatment for her. She wanted to fight for her life! I am still devastated.
Our best friend is actively dying of pancreatic cancer. It has spread to the liver and lungs. They are currently in hospice. The nurse said they have days. We are heartbroken.
I am so thankful for you and the information you provide!! Thank you so much!! As you have said, the more you know the more you are equipped to deal with the things that are happening
My dad was diagnosed with pancreatic cancer, it had spread to his liver, and within 33 days of diagnosis, he had passed. He was only 59 years old. My great-grandmother passed away with pancreatic cancer at 86 in 1996. It runs in my family. Very scary 😨
My dad died of pancreatic cancer May 12 2023. We were notified 6 weeks prior. Shocked and scared we started to walk with him on his final road. We didn't know how long. No one knew anything, but we knew it would be limited. His brothers and sisters all made the 15 hour trip to see him while he was still doing well. His friends came from all over to see him. Hospice was there too. The last 2 weeks it was day to day with pain management. And then hour to hour. He fell asleep in death with my mom and I holding his hands on a beautiful spring morning. The birds were chirping and he was calm and seemed to be at peace. He died of pancreatic cancer, but he was in charge of how he was gonna go out. All who are dealing with this, I'm truly sorry. Cancer stinks. All I know is to just roll with punches and be in the moment.
Hello. I came across your youtube channel a few months ago and you got me engaged instantly. My personal evolution has driven me to the pursue of "dying consciously" as my ultimate goal. There's a hindu word for that, they call this "mahasamadhi". I am now 56 and healty, but after watching some of your stuff I realize that it will become altmost impossible to reach this goal. I'd love if you share experiences or impressions about this. Have you ever withnessed someone dying in full consciousness? Thank you so much.
My father had liver cancer cer and I am so sorry to say he was placed on hospice in Puerto Rico and died with so much pain. Agonizing is a better word . Them people did nothing for him😢
Thank you for this, Hubby has pancreatic cancer and was told it was terminal and approximately 6 months.He had a stent fitted to his bile duct and he was not offered any treatent other than palliative care.
My father passed from this in 2016. I'm beginning to think everybody gets it. He died in home hospice, 6 months after being diagnosed stage 4. He had sepsis twice. One evening he hemorraghed, and died 3 days later.
My father died last year January from pancreatic cancer. He was diagnosed in early October 2022 and died January 2023. He suffered terribly! By the beginning of 2023 it had metastasized to his stomach and his lymph nodes. He stayed at home refusing to go to the hospital. I became unemployed and took care of Mom and Dad doing chores, errands and groceries so Mom could attend to Dad. Home care came daily to monitor and administer meds to help relieve his pain. Mom and I were there in the bedroom when he died. It may sound terrible but I was relieved because he was in such agonizing pain and none of the drugs helped other than to knock him out. His last coherent words to me were “I’m very proud of you!” I held his hand and kissed his cheek and he smiled. I told him I loved him. 😢 For those of you that are going or will go through this the only advice I can offer is make sure you tell your loved one(s) your feeling for them. Once they are gone, those thoughts and feeling will always be inside you and you will dwell on them with regret for not speaking them.
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My sister had pancreatic cancer in 2020, had surgery and chemo. She is still clear and in remission today, 2024.
That’s amazing❣️
Must of got it early
Praise God 👏
That’s wonderful. My sister in law was diagnosed in Dec 21, lived for 16 months. Hoping your loved one is cured.
How did she do it?
Best buddy died of pancreatic cancer. Took about 2 yrs after diagnosis. He knew there was no hope. His 4 yr old son and I sat outside the funeral home, both too shook up to go inside. Eventually, we walked inside. I held his little hand as we walked down the aisle toward our seats up front... I'll never forget that.
God bless you.
I believe you gave more to his little boy than you'll ever know. I also believe your friend knows and is so grateful you were there. God bless you. Thank you. ❤
Thank you for being there for your friend and his son. That's your boy now
You really were his best buddy.
I lost my husband in 2019. He was only 39. Never in a million years did I imagine being a widow at 38 trying to raise 3 sons 6,8,&14. I have never felt such heartache. I am still struggling.
Oh my goodness. I am so sorry. That’s a lot to deal with. I hope you have a good support system.
He is still with you in spirit ❤️
I pray for your comfort and for your boys
May God bless you
🙏🙏🙏
I lost my mother today to cancer. A very healthy woman of 80 years who was diagnosed in February and died today this morning in my arms. I don’t wish this on anybody. Im hurting real bad.
I’m so sorry to hear this. I hope you have loved ones to wrap their arms around you. This pain will eventually ease.
So, so sorry for you, dear. It is painful and there are no words that can help or ease your ache. I wish for you loving people around you that are there for you and to listen and hold you and that they understand that now is not the time for platitudes or philosphizing. It is the time to grieve, to cry and be around people who understand. No one and no words can 'fix the pain of loss'. Time eventually helps us accept it.💜
I am so sorry for your loss! Keeping in prayer for strength, comfort and peace.
Deeply sorry for your loss. May your memories provide you comfort and peace.
I’m so sorry for your loss 😔
Both of my parents died of pancreatic cancer. Dad had extreme pain, Mom had none. Dad chose a whipple which seemed to speed up the metastasis (think pouring gas on a fire), Mom learned from that and immediately went on Hospice post-diagnosis. She died quietly and peacefully. Everyone IS different but to us, Mom chose the better path. Thank you, Nurse Julie, for this concise assessment of the process.
I hope you have had genetic testing and talk with your genetic counselor every few years to learn of updates. I found out I was able to get an MRI with contrast and it was covered by insurance.
I worked in the medical field a long time ago, 1970s, and huge advances have been made, but it sure seemed to me that the surgeries they did then sped up the cancer. As you say, like gasoline on fire. Really made me think. I'm so sorry for your loss, truly. I'm glad your mom made the right decision for herself and that she was spared the pain.
@voyaristika5673 , operating rooms have higher levels of oxygen pumped into them. The O2 promotes healing to the body in most instances. Those rooms are also kept at lower temperatures to inhibit bacterial and viral growth. However, when highly oxygenated air hits cancer cells, it is very much like gasoline on a fire. I'm 69 now, and still maintain that if I ever get a cancer diagnosis, I might or might not try some type(s) of treatment. Depends on the type and the stage. But I will NEVER let them open me up.
@@joydebra1954hope you don’t get breast cancer then. Remove it or it spreads. I know…
@@sandyk13599 Yes, both my brother and I got genetic testing. I couldn't get radiologic studies to be covered by insurance, however.
Glad for the video. Last year I had some bad GI problems and lost 45 pounds. Not the first test, but had an MRI and my gastroenterologist didn’t like what he saw a said the dirty words “I’m concerned it’s pancreatic cancer.” I’m 65 and quite active, so it knocked me on my butt and I was scared! My sister-in-law had just died of Ovarian cancer. For 2 days I cried and went into depression. For me, my action was to pray for peace and healing if necessary. After the second day a great peace came over me. My mantra became, “If I live or die I win either way.” I’m sure others of faith have thought that. So, after more tests I was cleared of having cancer. I was relieved in a calm sort of way, maybe because I had accepted that my days on earth weren’t many. I’m not sure my purpose for writing this, except to say that if a family member or friend has cancer, be there for them through the whole journey. Surprisingly the most outreach I got was from non-church and non-churched friends. They stuck with me. Even though I didn’t have a pancreatic cancer diagnosis I was still pretty sick, and my friends let me talk about it, vent to them, and cry a little bit. So the friends who have stuck with me are the most valuable thing i have been blessed with. Stick with your friends and family who are sick, the whole journey!
@Jugheadjones ,,,glad you're OK! God bless❤
@@ellenledvina9825 thank you!
I'll never understand the "friends" who abandon someone when they're seriously ill or dying. I've seen it happen repeatedly. Unfortunately, even immediate family are often guilty of the same behavior. That happened in my own family with with siblings during our parents end of life journey. I'm so disgusted, I don't even want to see them anymore.
@@kaycampbell8532 you’re exactly right. When my brother’s wife died, at church he felt “cut out” of the group of couples he was friends with for almost 40 years.
@@kaycampbell8532 Those are not friends those are PARASITES the world is full of them. True friends are like 4 leaf clovers, they are ot there but truly hard to find....
My Dad died exactly 2 weeks to the day of his Pancreatic cancer diagnosis, it was already at Stage 4 when they caught it 😭 it had started to spread to his Liver and Lungs😭 he was jaundiced but he said he had no pain. It happened fast, but we couldn’t have gotten through it all without hospice❤️ they explained the process and steps and were there every step of the way, we will be forever grateful to hospice 🙏❤️
Like my mom - only 10 (!!) days of diagnosis she died. She had only 52. years.😔
I couldn’t agree more, hospice services are invaluable. They were there for me and my brother and helped us through my mother’s last two weeks. We could not have coped without their compassionate support.
Same as my mom. Only 11 days after diagnosis 😢😢
My husband died 3 weeks after diagnosis. What was tragic is that he was in the covid ward and I could not visit with him. I finally had to yell at the doctor that if he was not going to survive he wanted to be home…not in a hospital all by himself. Ugh. I was so frustrated…No one updated me on his condition…He did finally make it home and 3 days later he was gone when I went to check on him and give him his morphine.
My sister turned yellow one day. 10 days later she passed away from pancreatic cancer. It was a horrible shock for our family. I'm grateful her suffering wasn't long but we miss her terribly. She was only 53. 😢
I heart goes out to your for your loss. My deepest condolences to you and your family.
I'm so sorry.
So sorry
That must have been such a huge shock. I'm so sorry. God bless you and your family
My Daddy died from pancreatic cancer on February 27. He suffered so much. Before the cancer diagnosis, he had several severe cluster strokes. Morphine every hour. Halidol. Ativan. The pain was so intense. Thank you for this video. Our family literally fell apart with his death. My sister won’t speak to me. My mom is just broken and impulsive. I’m doing my best to help my mom but she can be so hurtful. I just want to give up. Thank God for my husband. My family died with my dad.
I totally feel what you have shared here. I have experienced the exact same thing when my father passed. I will never understand what happened with my siblings. It is experiencing more than just one death .
My daughter passed (not from cancer) but the same thing happened to my family. We started to fall apart earlier but since we are a mess. A separated, sad, mess.
Peace and love to you and family.
Same here! As my mom was dying my brother just lashed out at me and refuses to speak to me. I’m beyond shocked and saddened as to what the hell happened??!
Why won't your sister talk to you?
We lost my dad last Sunday from pancreatic cancer in hospice... R.I.P. popz; we never deserved you❤
Sorry for your loss
RIP to your dad
So sad, I hope you and your family are pulling through.
I have a crochet student who was diagnosed with pancreatic cancer and she told me about the Whipple procedure (reminded me of the whip stitch for sewing) and she finished her chemo and actually went into remission! One of the very few who survive that far. She’s a wonderfully kind lady and I’m glad she’s made it this far!
My Mum passed 20 days ago from Pancreatic Cancer. She had no pain and she was only diagnosed 4 weeks before she passed. We only found out because one morning she had turned yellow, so we called the Doctor. My mum had none of the symptoms. It was such a shock. I want to Thank You for your videos, which helped me greatly, through this experience.
Very sorry for your loss 😢
So very sorry for your loss, however if you can think on the positive side, it was a blessing for her, that the time after diagnosis was short. You said she wasn’t in pain, be eternally thankful that was the case. Pancreatic cancer and other cancers can be very painful. Sending you a 🫂 please take time to grieve, it must have been a big shock to you, to have her pass so suddenly.
I'm so sorry for your sudden loss. I hope it was at least enough time to say your goodbyes until you meet again
I had a sweet friend die of this horrible disease. Yes pancreatic cancer is mostly terminal. She tried to fight it but barely made it though the 1 year point. It was awful watching her suffer. Ascites, liver Mets and more. Thankfully her death was peaceful in hospice surrounded by loved ones. She is dearly missed. Her memory lives on.
My husband transitioned 8 mo ago. It was a brutal 10 mo journey. Fortunately, in the end he peacefully passed. I watched your videos throughout his illness. I was his caregiver and couldn't have done it as well without you! He was a strong well built 67 yrs. and it destroyed his body. He had cachexia with it. Unfortunately it is becoming a more common cancer. Thank you Julie. Your videos were a lifeline for me. 💜 Hospice was wonderful 🙏
I am a survivor, and thankfully. There’s a 13% chance of survival now. We walk in 60 cities across America on Sat. to raise funds for PanCAN Purplestride to help others with pancreatic cancer. All are welcome to help & thank you. 💜💜💜
Thank you Nurse Julie for your valuable information. You helped me with my father many months ago, via TH-cam. I appreciate you more than you know. 💜
Pancan? is that an accident for pancake?
My sweet Mom passed away from pancreatic cancer on July 21, 2017. She was a very healthy active 86 year old. When she went to the hospital TWICE when she was not feeling well she was sent home TWICE. I will never get over how the hospital did not treat her properly. I so wish that I had had this information then. Thank you for sharing your knowledge.
You have my sympathy sweet. Sometimes those tasked to look after us don't.
I’m so sorry for your loss. I lost my 71 year old mom the end of October to pancreatic cancer
Exact same with my mom. Instead of checking her out for pancreatic cancer when she complained of pain, they first removed her gallbladder and then when they checked her blood and saw that her blood sugar levers were through the roof even though she was thin and very fit and had no family history of diabetes, they diagnosed her with diabetes and put her on a strict diet. So much time wasted when she could have been getting treatment maybe. I'm very sorry for your loss.
Pancreatic cancer is occult and very difficult to diagnose. It’s not uncommon to see Doctors a couple times before diagnosis. It’s not as if you go to the ER with nausea and the first thing they think about is Pancreatic Cancer. My Dad’s cancer wasn’t diagnosed until he woke up lemon yellow one morning. He’d also been having trouble with itching, but that in itself doesn’t point to Pancreatic Cancer right off the bat. By the time the jaundice occurred the cancer was well entrenched and he died 9 months later. You can’t fault the frontline Doctors in the least.
My husband passed just this past February, I took care of him myself. It was hard at the very end, but you touched on all of the things I wished so much I had information about. The doctors were especially cagey around the whole thing, as if it is somehow against the rules to say to someone "You are dying, this is a process" They just kept offering hope in this or that treatment, even literally one week before he passed, even I could see he had nothing left to fight with.
I'm so sorry 😞 I am caretaker for my 92 year old father who has dementia and not looking forward to any of this end stuff. I'm here trying to prepare myself and learning so much from Jule. My heart goes out to you🙏
These doctors don't seem to know how to help people have a good end of life
Hi I was not feeling good 18 months ago and went for tests . Bloods showed pre diabetic. Had heart eug , nothing amiss there ,breathing was a problem as I would get short of breath . Nothing diagnosed then either. In February this year I saw a different GP to my usual one and she triaged me . I had an ultra sound and in March was told hypoechooic lesion in mid pancreas and in liver. Next ct. inconclusive not on liver so had two more cts . Inconclusive tiny spots in lungs .At this stage i found out that in 2022 when I had a scan for something else my lungs were a mess as quoted by specialist .i knew nothing of this and was never told. I tried to go private as had lost faith in our health system in NZ. Semi promised a resection op and would give benefit of doubt on lungs . This changed as strikes here etc. All this followed by colonoscopy with tiny benign polyp . Then biopsy of pancreas. Was told looked like adenocarcinoma , but this changed . Net cancer .Then I had Two Pet scans and mri on liver . Liver showed lesion .They now say I have neuroendocrine pancreatic cancer with mets lungs peritoneum pelvis and are offering Captem pills. I am unsure if I should take as I had breast cancer 28 yrs ago with intravenous chemo which was just awful . Is there anyone out there with this rarer cancer and anyone that has had the pills to help. I feel in the last six months of which It taken that length of time to come to a conclusive diagnosis that things have become much worse and I am struggling mentally and physically not knowing which path to go down. Any help or advice would be greatly appreciated . Thank you
My best friend was diagnosed thanksgiving day 2023, when I found her dark yellow i rushed her to the hospital. Her dr now every time we go in. I ask many questions. And he always says it’s the disease. We never get any other answer. It’s very Frustrating. I’ve been her caregiver since day one. And for 10 months she’s Been fighting, I keep her going and she has really great spirits. It helps. But, she’s lost 80 lbs so far. I’m praying for all you. Stay strong and trust GOD.
My mom died of pancreatic cancer hers spread into her hip she had a tumor in the hip area as big as a pumpkin, plus throughout her lungs and in the liver she never had the swollen belly. Her body shut down in a peaceful way she also had morphine but needed no oxygen.
She was taken care of and asked if she wanted water or food. She was never agitated she expected her terminal illness and still communicated with family and friends as she would without being sick. She went peacefully surrounded by family ❤🦋🙏
Sending you love 💕
@@hospicenursejulie thank you 🦋💕
I'm glad she had a gentle transition
I held my wife's hand as she took her last breath at 3AM on a February Tues morning. We had a lucid Sunday afternoon when she came home to start a hospice of only two days. A Whipple survivor of four years, her cancer was in the liver and lungs. She struggled with symptoms while carrying on with daily life until the very end of December, not knowing yet the source of her discomfort. The then Covid restrictions made it very difficult until I was permitted to be with her. The hospice people of the Cleveland area were angels.
My sympathy, Moe. In Cleveland as well, and I advocate for my friend with prostate cancer. Hospice of the Western Reserve is here.
I am a dementia specialist with 2 degrees. I have learned so much from you that it has changed the way I interact with my patients. Thank you so much. I've seen an angel too. Was instantaneous also. You describe things beautifully. Please talk about the power of music with dementia. It's important
I’m a physician and I have learned so much from your videos too. It has really altered my attitude about my own death as well as the deaths of patients. Great job! Thank you.
💕💕💕💕
@@melindahall5062thank you! This means a lot
My wonderful mother in law was diagnosed with pancreatic cancer in Aug of 2021. We had high hopes because she responded very well to the first round of chemo. It was inspiring to see how positive and upbeat she was in the face of such a devastating illness. On 3 May 2022 she lost her battle with cancer . It's been 2 years and it's still very painful.
December 2022, my 45 year old cousin was admitted to the hospital due to COVID. While there they had trouble maintaining his blood sugar level and soon after, his abdomen filled with fluid. He was diagnosed with pancreatic cancer that had already spread to his liver. He passed on New Year's Eve a mere 10 days after he was diagnosed. Prior to the fluid/blood sugar he'd had no symptoms. On one hand, we're grateful he wasn't sick/in pain until the end. But losing him 10 days after receiving his diagnosis was stunning. Awful, awful disease. Be well, everyone
oh jesus, I just replay on comment by yours. My mom died only 10 days of diagnosis. She had only 52. years. A horrible disease.
@@mariiveli623I'm so sorry. That must have been an awful shock
My twin brother PeeWee passed away from pancreatic cancer on July 8, 2011 just 3 weeks after our 50th birthday, the Doctor's misdiagnosed my brother for 5 mounts before they found it then they gave him only a week to live, he lived 2 more mounts I stayed with him in the hospice 24-7, the hospice staff was amazing they took good care of my brother and me, the last week of his life he was in a coma like sate on the Wednesday before he died on that Friday he woke up at 1:30 AM and told me he was hungry I asked him what he wanted to eat he said Pop tarts and the hospice did not have any so I asked the nurse if she could watch him and i jumped in to my car and went to CVS and got him some Pop tarts, he ate one Pop tart and had two glasses of milk and he said thank you brother and that was the last words he said to me, and when he died a part of me died with him, thank you for your channel.
You were a good brother to him
God bless him
I'm a Catholic and will pray for his soul.
So sorry for your loss
My cousin started having pain under her left rib-cage and intermittent diarrhea, it was just after the Pandemic and it was still difficult to get a doctors' appointment. My cousin used to work in a hospital as a secretary, so she knew how to communicate effectively with medical professionals, but her docs were still indecisive about making a diagnosis. Fortunately, one of the doctors overheard her talking to her husband and then the penny finally dropped with them...
My cousin was informed that her disease had metastasised and had spread to her lungs, she suffered greatly, but died peacefully at home surrounded by her family.
Throughout her life my cousin had been an extremely kind person and would go far out of her way to help other people, she also had an amazing sense of humour and would light up the room when she walked in. I miss her "like crazy."
How I wish they would make in-roads into curing this awful form of cancer that seems to be on the increase.
I'm sorry for your loss. You being with him is a wonderful blessing for both of you. You got to be together, that's important.
Nothing can make up for the loss of losing part of yourself but I pray you find peace and comfort in knowing you were there when it matter most.
I'm so sorry for your loss. I am so glad for the time you got to have together, including that very last pop tart. My heart goes out to both of you. ❤
Thank you for this. My Mom passed in January from pancreatic cancer. She had all the symptoms. It was brutal to watch but she had such integrity and grace through it. Watching this helped me a lot.
My younger sister who was only 66 passed away from pancreatic cancer last year in 2023 in just a few months. It had spread to her stomach and shortly after being diagnosed, she became a paraplegic and never walked again. it was SO sad and our family was devastated.
I’m so sorry. We are losing a family member right now. The call will come within days. We too are devastated.
@justmeherexx482 If you can say goodbye do it. Trust me. I laid my mother to rest 3 days ago.
My Mother woke up yellow one day. They took her to surgery from the ER, thinking she maybe had gallstones. It was an open & close surgery as she was ‘full of cancer’. They said pancreatic cancer was known for being too far gone before a symptom was seen (“a silent killer”).
This was in 1985/1986 (they gave her 6 weeks, she lived for 8 weeks). My sister and I took care of her at home, until her death.
It was just basically wasting away. She was able to say goodbye to her family. She tied up loose ends. It was just the last week that she was no longer conscious. There was no hospice back then. We gave her morphine and insulin injections as needed.
It was a very Spiritual time.
Thanks for helping people to know that none of us gets out alive, and what the end of life is like…and that death is a normal part of Life. 💙💙💙🌷🌷🌷
Clean, safe, and comfortable. Thank you Julie for sharing the three most important tasks to focus on in caregiving.
My oldest brother died of pancreatic cancer. He was only 53 years old.
His skin color and eyes turned yellow and he of course was not feeling well. This was 40 years ago. He was such a nice and very successful man.
I lost my husband, 52y.o. to pancreatic cancer, a year ago. Later, my relative passed away from the same cancer. And now my friend is battling this cancer. A lot of it it going around since 2021.
My husband lost his first wife to pancreatic cancer. His was a hospice nurse at the time. It was awful. He knew exactly what was going to happen from the moment of her diagnosis. They tried different treatments because she wanted to even though he knew they probably would be of no help. I do my very best to stay as healthy as I can. I don’t want him to lose two wives. Hospice nurses have a special calling to do what they do. My husband did it for over 30 years along with mental health. He is retired now.
I wish I saw this before my husband passed away of cancer. Thank you for your videos. It's very helpful and gives healing..
Unfortunately y mom was diagnosed with pancreatic cancer last April and with chemotherapy she was able to be with us until November. All drs kept telling me is how painful pancreatic cancer can be but it wasn’t so wi5 my mom. She was pretty much pain free and didn’t get ascites and passed away peacefully in her sleep under the care of hospice. The hospice team was WONDERFUL and I encourage any patient and their families to seek their help and guidance. My mom was under palliative care first and then the last ten days she was under hospice. She was sleeping pretty much the whole time and hospice taught me all the signs of discomfort to look for. The hospice nurse even recommended your videos! THank you Julie for all the knowledge you share with others. They are so helpful and I appreciate you so much!
Thank you Julie. My husband has recently been diagnosed with stage IV. This information has helped me immeasurably xx
I've been watching your videos since my dad was diagnosed with Pancreatic cancer.. Thank you for the advice and information you give. It helps so many, myself included.
Julie, I appreciate your honesty.As a professional caregiver, I hate it when I see family members tiptoe around symptoms or illnesses. These things can still be phrased kindly, but honestly. The patient has a right to know if they choose to. It annoys me so much when the family pretends the illness doesn’t exist. That won’t make it any better.
Our nephew was losing weight and he was happy because he was trying to lose small amount. Sadly he quickly lost lot of weight. Dr did some test and he had this horrible cancer. He died in 3 weeks.
This! My sister was diagnosed in October 2022, I read all I could and watched her slowly decline through chemo/radiation/chemo and ultimately hospice in Feb 2024. My family kept telling her to “fight” and it enraged me. Like seriously, people need to educate themselves and support their loved ones. Don’t watch it happen and tell them to fight, it’s insulting!
Shes an opportunist selling peoples experiences to fuel her channel and books. I guess shes never heard of Hippa. She a despicable individual. Dont tell her your stories or it will be in her next book.
@@RadioRich100 She never violates HIPAA (notice the correct spelling) and she helps many people. You sound bitter.
@@monongahelacats Yeah she does everytime she writes about somebodys medical condition, shes nothing but an opportunist using her position to gather info for preying on peoples hardships for her profit and notoriety. Hows that helping people??
My mom was diagnosed with pancreatic cancer on August 25th 2021. She passed away on September 14th 2021. Yes 19 days later. It was devastating. Her and I lived together and we got hospice right away. They were angels. I took care of her those last few weeks. I miss her so much. I was her youngest and her and I were very close. She was 81 and I was almost 51. I am a carrier of the PALB2 mutation. I had my first pancreatic endoscopy last December. He found 2 tiny spots he’ll keep a close eye on.
Are the spots on your pancreas? Are they cysts? I saw a commenter say she decided to get hers out and she's glad she did because cancer was inside.
I love your honesty. Don’t ever change. ❤
My grandma just died today from pancreatic cancer, in a hospice facility. She was diagnosed earlier this month, and declined very quickly. She was a relatively healthy and active 74 years old. Luckily, she was surrounded by loving family, and we were all there with her during her last moments.
I had seen some of your videos in the past, primarily the ones about end of life breathing. I'm glad I had seen those, so that I knew what to expect.
My brother n Law was diagnosed with Pancreatic Cancer. He was able to have the Whipple Surg. ...Chemo Radiation..he stopped eating meat ate fruit and veggies, a long process but by God he beat it.. We're not in contact with an longer but I understand he is doing well and gosh he has to be 80 yrs old now. This all began like 20 yrs ago. right after he retired. God Bless him. 😊 🙏 🙏
Why are you out of touch?
Thank you, Julie. A loved one is currently dying from pancreatic cancer and this helped me to understand a bit better.
Had a guy at my workplace who succumbed to pancreatic cancer last January. He was never a large individual but I really picked up on his sudden frailty a couple of months before he passed. That man worked up to about three weeks before he died; I occasionally could discern his ascites and observed his evolving coloration. I offered to call him a cart during a fire drill, but a month from demise, he still insisted on staying afoot. I hope his last few weeks were comfortable.
He was admirable. To work right up to the end is honorable.
My husband has stage4 Pancreatic Cancer and is 8 months having Chemotherapy, he is a lawyer and even though becoming fragile and sleeping a lot wants to still work and walk and ride his exercise bike,it helps him to stay positive and live as long as possible.😞🙏
What an outstanding video, Julie! The information you provide is surely helping so many families. The ability of an experienced hospice nurse to educate and prepare patients and families is one of the most important skills, and you are a great example of this!
Nurse Julie, your videos helped me through my father’s passing. I had but three minutes to talk with him the day before he transitioned to sleeping and end of life. The videos about good oral care and removing the fluids, and him sleeping with his mouth open were so informative when we felt so helpless. Made me come to terms better, knowing what to expect. ❤
Yeah, my Dad had a super sweet lady working for him in his office and we had lots of great chats. She and I had an unexpected coincidence in common. I'm a truck driver and I've picked up many loads of peppers from Coachella and had spent a lot of nights parked at the TA, down there. Before she moved to my state (which is a long way) and started working for my dad, she worked at that same TA. It's a small world. Anyway, she was diagnosed with pancreatic cancer and within two months, she was gone. It's a terrible disease. You said there are many roads you can take, treatment wise, but I'm pretty sure they all end up at the same place.
My mom was diagnosed in July and died this month. Pancreatic cancer is a nasty, nasty, ugly disease and she suffered so very much. It was devastating to watch. I started watching your videos right after her diagnosis and they helped me tremendously. Thank you.
My Dad died in November exactly one month to the day after PC diagnosis. I asked about draining his fluid while he was hospitalized and was told they couldn't do it. I wish I had access to this video at the time. His experience was exactly as you described. Thank you so much for the knowledge you provide - it is so incredibly helpful
So informative. I used to see the jaundice and liver failure patients. I remember one woman outside visiting with her husband. She had white hair but it glowed with that yellow tint. I knew she did not have long. That deep yellow was in her eyes and skin. Her husband visited her daily. She died maybe 3 days after I saw her last. Thanks again, Julie for this information.
Thanks for the video. This video helps me understand what my mom was going through as she lived out the last months of her life.
Thank you for this wonderful informative video. Pancreatic cancer seems to be popping up everywhere. 😊
You helped me through Mums death. Thank you❤❤
Excellent teaching, Julie! The longer I work in hospice the more I value these videos. Thank you for all the work you put into them!
My MomMom died almost 14 years ago from this. She had in home hospice, then in home palliative care, during the last 6 months or so. Thank you for making this video. It’s helpful knowing what the end was like for her.
Dafuk is a MomMom? What are you 5?
My Mom passed away at 80 last year only 17 days after her diagnosis. It just ripped through her like a wild fire. Hospice was a miracle. She passed away peacefully in my arms with a Hospice Nurse and a Volunteer. Love you Mamma!
Believe me this so called nurse Julie profited from it somehow.
I'm so sorry. Thank God you were with her
@@cynthiaholland13 Im sure julie will profit off of it.
@@RadioRich100 can you explain what you mean? What amount of profit would replace your mom's life if she died today?
I love the work and education you do with this channel. So important! Knowledge reduces fear for everyone. Thank you Julie for the time, effort and great advice always given respectfully and with dignity.
My brother Steven died of pancreatic cancer it was hard watching him suffer so much
I'm sorry. 😢
So sorry for your loss and that he suffered.
We all suffer now and then.
I love listening to you. You are so clear and detailed enough to get the picture. Thank you for these videos.
Oh Julie, I wish so much you could have been on my mom's hospice team 5 years ago. Diagnosed in Feb., passed in May. Every PC patient is different, but you explain things so thoroughly. Her hospice team was very compassionate, but did not explain things the way you do. Her body had a very lengthy process to shut down because her heart and body were still in relatively good shape. She lost hardly any weight because she chose no chemo. It took 10 days once we decided she needed care in a hospice house. I stayed with her 24/7 and it was the hardest thing I will ever go through in my life. I had so many questions, even though I had read books. I never really got solid answers on some things and it haunts me to this day. God bless you for the work you do to educate us.
I watched my 63 year old beautiful mother die from stomach cancer and it was brutal…she died at home and my sister took care of her the nurses were great and they cried to
A co worker recently passed from this. She was 43. I did not know she had been sick. I had not talked to her for a month before she died, so I had no idea. Idk if she believed a miracle would happen or what but from what I can tell, it did not seem she believed it would be terminal. Although, I wish I could have been there for her, she appears to have had a strong support system. I do miss her. She was definitely one of the good ones. Always helped me out and listened whenever I wanted to vent, even outside of work.
Only thing is, she listened to me talk about my mom and her cancer and probably had known about her on road up ahead but didn’t say anything. That couldn’t have been comfortable to hear!
Rest in peace Judith!
Both my mother and mother in law died from pancreatic cancer. My mother never had any pain; and gradually passed, but my mother in law suffered greatly.
I’m sorry 😢
What do you think made the difference?
I am a firm believer in this. If someone is told they have 3 months to live, they'll die in 3 weeks from the stress and heartache
My dad had a very weak heart and an infection from a surgery that never went away. We all went to the same primary Dr. And he told me my dad had less than a year to live, I said, "Please don't tell my dad that he promised me he wouldn't. Dad lived 7 more years.
I am a 14 year survivor of Pancreatic cancer. I had a distal pancredectomy and had a recurrence 8 months later. I then was diagnosed with locally advanced Pancreatic cancer that had metastasized to my abdominal wall. I was given 6 months to live. I had Gemzar and cisplatin and 30 radiation treatments.
@@tammywilson6444 can i ask some question?
I recently lost my dad to pancreatic cancer. He didn't get a chance to make it to treatment. He got his port put in for chemo and later that night he started vomiting and couldn't stop. He was put in the hospital for 8 days and later went to hospice and transitioned 7 days later. He was diagnosed in February and gone by the first week of April. It was so fast.😞
I lost my dad 2 days ago to this horrible disease, its horrible but you ain’t alone brother ❤️❤️
@@infinity3jif same thing happened to my mom in May, it was fast but horrible bc of the vomiting all day everyday for a month😭
Paul, always happy to see you and hear from you. I'm so sorry you are going through this surgery again. You never cease to amaze me with the knowledge you have on day to day life things as well as your medical. I'm stunned the words you can pronounce. What the heck is on your shirt today? I only wish the very best for both you & Caroline. I'm more than happy that I found your channel and it was right at the time it'd started. I'd say right when both people that I'd been following had taken a turn for the worst both Jenny Apple & Sarah McGloghlon. It blew my mind that there were so many similarities too many to count. Getting to know you through your channel has been nothing but a pleasure. Excellent content and coverage in all of your work. Sending prayers, hope, & love.
Hi. I have Intrahepatic Cholangiocarcinoma. That’s bile duct cancer. I was lucky. I was diagnosed in stage 1 so I have a chance of cure.
ICCA is rapidly increasing in incidence and many victims are young. It’s a rare cancer but becoming less rare every day.
I would love it if you would spread awareness of cholangiocarcinoma since it is increasing and has a dismal survivor’s rate.
I would also love to see you address survivor’s guilt among loved ones. I feel this when people in my support group are in the dying process.
I’m so sorry. City of Hope is the
Best. My friend had this but it was advanced. They can do a surgery if not too much in liver. 🙏
Yes! I think the biggest concern for people dying, especially when it happens suddenly, is the worry for what their family members will go thru…
If you don’t mind me asking what were your symptoms with the bile duct cancer?
Thank you so much for sharing Nurse Julie! Thank you for being so generous sharing your knowledge & expertise. I am very grateful🙏💜🙏
Hospice care givers are special people.
This is pretty accurate my grandfather died on Monday from pancreatic cancer and he did have confusion and once they addressed that he returned to normal but ultimately it was too much going on with him. The doctor told us they gave him fluids in his active dying stage and it brought his pressure up but then his heart rate started going down. I wish I was there to let them know we didn’t want fluids.
My Dad 2002 from Pancreatic cancer ,he had chemo and Radiation. He lived 9 months. He lived everyday on 1 pain pill a day. We planed his funeral, who was going to carry his casket. My dad was A Superintendent of the Cemetery. Those days broke my heart ❤️
My uncle has had it pancreatic cancer over 10 years, doing experimental treatments still going although it has spread everywhere. Still gets around fine very rare when it comes to this cancer
I wonder if you haven’t already, can you do a video on elderly failure to thrive? Just a general global decline and what happens and what to do?
Thank you for all your videos
My husband discovered it in stage 4. It went all over and it was horrible. Nothing helped and pain was not stoppable. He passed 5 mos after diagnosed
My grandfather passed from this. So did a coworker. I feel worse for my coworker. At least my grandpa got to retire and live many relaxing years with my grandma. My coworker worked for weeks in pain and spent a few weeks on hospice.
Just a comment on the poor path my father suffered. He first had "digestive discomfort" and went to his doctor. ( It always took a lot for Dad to even think of going to a doctor.) The doctor brushed him off and told him to "take Mylanta". The pain did not go away, but Dad assumed the doctor was right, or that he had some food reaction. Another month passed and again he went to the doctor, who even seemed amused and told him again to "take Mylanta". At that point, my brother asked Dad to see another doctor, who immediately referred him to an oncologist. Result - pancreatic cancer, metastisized. He lasted another couple of months. Hospice was helpful, but my anger resides with the first doctor who brushed him aside. Treatment might have saved him, or at least prolonged his life or given him relief from pain!
My husband was brushed off as well when he kept telling the person he was seeing something was wrong. He told them for months he needed an MRI. They kept claiming it was this or that. When he finally ended up at the hospital it turned out he had lung cancer which had spread to many areas.
IF they would have sent him for imaging like he requested when things first began maybe he wouldn't have terminal cancer. Like you I am angry at that person and I absolutely fault her for falling him.
If caught when certain things started he may have had a chance at actual life saving treatment, not life extending treatment.
Blessings be with you.
There are cemeteries full of people who were brushed aside by doctors.
It is indeed vital to understand what is coming. Your videos and frank discussions have been so very helpful.
❤
My sister was in pain due to extreme constipation (due to pain killers) and the doctors just prescribed more pain killers. She got a colonic and that was a huge relief for her.
This wonderful and comforting place, thank you. I hope our Australian hospice/palliative training starts improving. Our frightened doctors just can't talk to people who are in short term life.
My husband died from pancreatic cancer which had spread to his lungs
So many sad stories on the comments thread. I really hope they can find a cure for cancers in my lifetime we’ve lost too many many people to this horrible disease
Thank you for this. I saw some of the symptoms you mentioned in this, definitely the ascites, pain (but it was in her back) and confusion in my friend. I hope she's in peace now. I don't think I could be a hospice worker, my heart wouldn't cope. X
My aunt had pancreatic cancer. It had spread to her liver, bone, and lungs. She was admitted into the hospital and died 3 weeks later. For her it caused deep vein thrombosis and several strokes. It was so fast and we were shocked because as far as we know there is no cancer in the family.
My Dad fought so hard, he was always strong willed😂He had gone in for a stomach bypass surgery cuz they thought his duodenum was beyond repair, they saw his liver covered with cancer and closed him back up without doing anything. He could not believe it when he woke up, but he wanted to do anything necessary even though they gave him only 3 mths with treatments and he ended up living 15 mths! We are thankful for all those bonus days indeed and also that he never got ascites, but boy was he yellow and in unbearable pain the last few weeks! Thankfully he had a port from all his chemo and so Hospice used that to give his end of life med. hospice is amazing!!!❤❤❤
Good information. Thank you for sharing.
Dealing with this with a family member right now. It's taking him so fast and its heart breaking. 💔 His stomach is huge but doesn't want a drain. It's such a sad thing to see.
This was informative, and everyone have a great weekend!
My wonderful SIL died a year ago next month of pancreatic cancer. She was 66. She never lived to see her 2nd grandson, though she had chemo.
Hi Julie,
I came across your video and I learnt alot out of them. I lost my Mom in December 2022 due to land cancer.
Currently I am working in Canada and I have bought a land back home in Uganda to build a hospice center. However I am also looking for people like you for technical advice.
Thank you for the work.
My younger Sister passed away on June 12 2024 from pancreatic cancer. There was no treatment for her.
She wanted to fight for her life! I am still devastated.
Not even chemo..
my bff passed away at 63 from this its a horrible death , I hate cancer !!!
Our best friend is actively dying of pancreatic cancer. It has spread to the liver and lungs. They are currently in hospice. The nurse said they have days. We are heartbroken.
I am so thankful for you and the information you provide!! Thank you so much!! As you have said, the more you know the more you are equipped to deal with the things that are happening
🥰🥰❤️Are they clean, safe and comfortable??🥰 🙏I only wish this in my last days!!🙏❤️ Don’t prolong things! Just keep me clean, safe and comfortable!!🙏❤️
My dad was diagnosed with pancreatic cancer, it had spread to his liver, and within 33 days of diagnosis, he had passed. He was only 59 years old. My great-grandmother passed away with pancreatic cancer at 86 in 1996. It runs in my family. Very scary 😨
You are a beautiful soul.
My dad died of pancreatic cancer May 12 2023. We were notified 6 weeks prior. Shocked and scared we started to walk with him on his final road. We didn't know how long. No one knew anything, but we knew it would be limited. His brothers and sisters all made the 15 hour trip to see him while he was still doing well. His friends came from all over to see him. Hospice was there too. The last 2 weeks it was day to day with pain management. And then hour to hour. He fell asleep in death with my mom and I holding his hands on a beautiful spring morning. The birds were chirping and he was calm and seemed to be at peace. He died of pancreatic cancer, but he was in charge of how he was gonna go out. All who are dealing with this, I'm truly sorry. Cancer stinks. All I know is to just roll with punches and be in the moment.
Hello. I came across your youtube channel a few months ago and you got me engaged instantly. My personal evolution has driven me to the pursue of "dying consciously" as my ultimate goal. There's a hindu word for that, they call this "mahasamadhi". I am now 56 and healty, but after watching some of your stuff I realize that it will become altmost impossible to reach this goal. I'd love if you share experiences or impressions about this. Have you ever withnessed someone dying in full consciousness? Thank you so much.
My father had liver cancer cer and I am so sorry to say he was placed on hospice in Puerto Rico and died with so much pain. Agonizing is a better word . Them people did nothing for him😢
Thank you for this, Hubby has pancreatic cancer and was told it was terminal and approximately 6 months.He had a stent fitted to his bile duct and he was not offered any treatent other than palliative care.
My father passed from this in 2016. I'm beginning to think everybody gets it. He died in home hospice, 6 months after being diagnosed stage 4. He had sepsis twice. One evening he hemorraghed, and died 3 days later.
Thank you for this sad issue!!❤❤❤❤❤❤❤😊😊😊😊😊😊
My father died last year January from pancreatic cancer. He was diagnosed in early October 2022 and died January 2023.
He suffered terribly! By the beginning of 2023 it had metastasized to his stomach and his lymph nodes.
He stayed at home refusing to go to the hospital. I became unemployed and took care of Mom and Dad doing chores, errands and groceries so Mom could attend to Dad. Home care came daily to monitor and administer meds to help relieve his pain.
Mom and I were there in the bedroom when he died. It may sound terrible but I was relieved because he was in such agonizing pain and none of the drugs helped other than to knock him out.
His last coherent words to me were “I’m very proud of you!” I held his hand and kissed his cheek and he smiled. I told him I loved him. 😢
For those of you that are going or will go through this the only advice I can offer is make sure you tell your loved one(s) your feeling for them.
Once they are gone, those thoughts and feeling will always be inside you and you will dwell on them with regret for not speaking them.