Thank you for posting this seminar, RSDSA, and m Dr. Pradeep Chopra, M.D., for providing this excellent source of updated information on RSD/CRPS for physicians, clinicians, patients and the scientific community. There was a great deal of valuable information provided that will be useful for application in daily practices for professional with updates in treatments and medications used for RSD/CRPS. Keep up the great work! Respectfully, Julie Combs
Thank you very much Dr. Chopra for your time well spent in helping us all. I greatly appreciate all the knowledge you shared that I can now share with my doctor. It truly is a shame that more doctors aren't aware of what RSD is or how it takes over the body.
thanks so much for this conference. i was honored to be in attendance and it was my first time learning about crps after being diagnosed and i was able to meet awesome people.
Though I've had this monster disease reflex sympathetic dystrophy/complex regional pain syndrome 20+ years, this video was still very informative and helpful. I appreciate this doctor, for this update; I will watch this over and over.
My daughter was diagnosed with CRPS in September 2017. She was in pain 24/7 and couldn’t get around without a knee scooter because it was in left foot. I was searching on TH-cam and ran across a dr that was using scrambler therapy and after 10 treatments everyone was getting off there meds and no pain which didn’t seem possible so I did more research and found a dr in Dallas that had a device and we went and she is off all meds and walking and pain free and now I got one of our Doctors in Shreveport La to get one and he has been using it for about 4 weeks and having great results
Great lecture. I was just diagnosed on New Years Eve from a fall in early December. Very helpful to get all of this clinical info,thank you Dr. Chopra.
Would love a chance to attend a seminar or conference where Dr. Chopra is speaking. Dr. Chopra. So far, I've learned that I have done everything that Dr. Chopra said was not very helpful. Now I am committed to start with exercise and weaning off the pain meds. Thanks Dr. Chopra
Thank you so much for uploading this. There is still so much we don't know our bodies and learning about out latest understanding helps spark hope that one day we will be able to understand and treat all those who suffer. As a CRPS Type 1 patient I found this very informative and it has given me a few new options to research and try. Thank you :-)
I have CRPS thru my entire body and.it started from a shoulder injury. I get bloodwork.done, due having anemia and CRPS spreads everytime I get bloodwork or any kind of of injections. For example: I had a bone.boipsy in.my hip bone. This started me to have swelling, pain, and redness my lower back. Also it spread when I had my shoulder operation, even with a injection(nerve block )1 week before and right before surgery. Then I fractured my entire foot, Except for the heel bone. I have severe swelling in my body and redness & purple coloration all over body, along with the pain. I live in my bed, resting helps keep the redness, swlling, and paim to a more tolerable pain level. I take 3 meds for it, gabapentin, Nyucuyta, and cymbalta.
Thanks so much for this straight forward and information-packed video about this challenging issue! This is an amazingly useful and easy to understand introduction to share with family, friends, care providers,etc. who have never heard of CRPS/RSD.
Good info!. I wish that you ould have discussed more on what happens to the intestines. I started out with gastroperesis. Then came dumping syndrome, SMA, etc. Now I have scleroderma of small intestines & esophagus & have been told I have less than 1 yr. to live. I have a feeding tube. At 80 lbs. into ICU I went for a PICC for TPN. Then barely 1 mo. after TPN I got a blood clot & blood infection. Do you think it would be possible do a segment on RSD/CRPS & the damage it causes internal organs?
I've had RSD for over two yrs now any information I get is helpful to me,it was caught and diagnose early for me so I painful fight like Hell for remission. I got it from a boxers fracture and it spread up my arm to my shoulder but I fight I won't let it own me ! Love and Light
My daughter has been diagnosed after 6 years of seeing many doctors and lots of medical tests. I want to thank you for all of your research and for saying that the kids and Mothers will not stop at anything to help the child get better. I burst into tears when you thanked Mothers because this has been extremely difficult. My daughter is 17 and since we live in Nebraska the Children's Hospital is just beginning to understand the need for pain management. We are still battling and praying that this is an accurate diagnosis. If anyone wants to email me on how I can get her additional help please let me know. I am a working single Mother with no financial support and am not on any assistance programs. The medical bills and prescriptions are really hard to keep up with and I am taking a third job, yet keeping my priority as a Mother as the most important role I have and I cherish. Thank you again!!!
I'm not sure if you received my messages. Unfortunately my daughter has now been diagnosed with some different things that we have to rule out some serious things. As far as I know there's only a clinic in Philadelphia and Kansas City. If I find out any more than that I will definitely let you know. We are in the process right now of some other serious things. Wish you the best and thank you for your response I did not know that you sent that message till now.
jennifer pederson I just replied so it is all good. Sorry to hear there maybe more issues. Best wishes with getting her the best health care possible. I will research Kansas City. Also i think there is a doctor trained in Calmare relief therapy at the Mayo in MN i have been looking at. I have other issues to due to my injury that they can team up on. Best wishes!
Thank you for responding. The information shared is appreciated.. We went for a routine check up in November. The Rhematoid we saw wanted a Nerologist, sleep study and eye exam done. After doing the sleep study we were called and told to see her Prinary Care Doctor for an EKG and heart holder monitor. Sleep study found that my daughter had a heart srythmis and av block. After the results came in we found her heart has high and low arrhythmias. She was fighting her typical bronchitis and wheezing. After a blood draw they found she had low Platlets and sed rate was high. We monitored her platlets every week. They found she had the Ebstein Barr Virus. It was missed and it's not active now. Very concerned and frustration. We are now seeing a Hematologist. We are getting a 2nd opinion with a new and amazing Rhematoid specialist who's working with the Hematolgist. My daughters having a complete body scan/pet exam on Tuesday and we are waiting on blood tests that the Rhematoid doctor has ordered. Eleven viles of blood. I would truly appreciate prayers and am grateful to share this with anyone who has gone through what my daughters going through now. Love and light to everyone. Thank you for responding.
I am just now reading all about How the pain is sent to from place to place with R SD and to brain in the first sec.So far it is hitting the nail on head.I will update more as I keep reading.R.S.D. This is is a very rare disease and is hard to find good info.Thank you very much.I back to reading more?Is there a way to if lose place to find where I fist found info.?
So, with PT, major break through bone breaking pain didn't start occuring until after PT was started. Days where no PT is done, it doesn't feel as though the bones in the thigh are breaking into a million pieces. So does therapy need to continue??
it does feel like your bones are splintered, best therapy, yourself. I have type 1 and type 2 I got type 2 after PT as well, I twisted my ankle, thats it.
i have rsd i was hurt in 97 was diagnosed at Stamford university's pain clinic. I've been on the gambit of meds and pain meds. have a spinal cord stimulator since 98. on methadone 60 mg now.but they want to take me off. they want to do things that i had in 97-2003 blocks that didn't help. meds that had bad side effects. some pain dr have god complex like well it will work now cuz i say so. i hate it when you have medical records and they don't bother reading them cuz they know better. I'm so upset. live in Oshkosh wi
hi lori, please call me 920 515 2762, im a fairly new RSD patient and in appleton, wi, wondering if there is any advice you could offer.. please contact me anytime, leave a message or text me
I'm looking for a Dr that is knowledgeable about RSD/CRPS near Killen,Alabama. Or if I have to travel I would. I appreciate this video. I'd love to be a patient of his or someone as knowledgeable as him on this horrible disease. Gore those like me that are seeking help, don't give up. And ask. Don't let others negative remarks get to you. They are cold hearted people that are so insensitive everywhere. So ignore them. Best of luck & prayers go up for you
Ive crps 2 in my L hand, arm, ear. unable to travel,on disability. I was a deaf interpreter @ church & public school.neck pain, Arthritis in the neck & Chronic migraines causin lots of problems but after developin mass on L hand, ring finger & grew, painful. # of drs seen, didn't kno what was. 1 dr wanted remove send for biopsy. Lost surroundin tissue, Fluid during so called said "sorry, don't know". Then came rsd ,went Undiag 3 yrs,.7 SGB'S(my lack of knowledge).worse.Help. . :( Killen, Ala
Hi I'm Kat Nd hVe been dealing with for 3 years since I had accident I get depressed from the constant pain so tins chronic would be understatement when both my legs cramp and spasm I use every once of stretch I have to fight ithe pain drugs not working but morphine Nd pills for this and that not working in moring I. Ant roll over on my side the pain is so bad also if I try to sit up I yell on pain cand walk far noticed my hands are cramping I at loose end need some support to help me bybt
I have spreading CRPS/RSD and my family and friends tell me I am talking too softly (past 12 months) and now (6+months) I am having symptoms of Larengitis - barely being able to talk. I am not sick in any way. A few times, I have not been able to eat because I could not swallow even soft food. I believe this is the spreading of CRPS/ RSD but my Dr. is unsure if that is possible. I figure if anyone would know, it would be you. Do you have any thoughts on this subject? Lauri Smith
sounds like C>O>P>D> to me. or G.E.R.D. not sick in anyway? then my friend you do not have crps, spend 9 months in a hospital and NOBODY can make heads or tails of it, until a genius walks in and knows exactly what it is.
mick mueller I take several layered medications and i know from stopping one or the other that my pain changes etc, start taking them and oh things go back to how they were before. The thing is....NOTHING will stop the pain, so no use really dreaming, look instead on reducing to a workable level...if then it does even better then its a nice surprise and not a disappointment. I am in Australia and about 4 years ago a new drug was released ... its founded here as well and was designed specifically for CHRONIC pain...it is DIFFERENT to anything that has been on the market...what can I say, Watch this space baby. It has a different feel as well. They are tweeking it at the moment so there is new hope. I am proud of Australia for this and it is nice to know that someone IS and WAS thinking of US Chronic pain sufferers
That sounds hopeful. Right now, I take Methadone, Clonopin, an Cymbalta. I shattered my arm in 2001, and slowly realized a burning pain after my bones healed. Until then, I did not know of RSD. Here is the kicker. In 2008, I found out that I had stage 4 colon cancer. Had I not been near one of the best cancer hospitals in the world I would be dead. It has been a long recovery. Many operations, and long hospital stays when I was on the brink. I have quite a bit of mental trauma that I am trying to deal with. Thank you for the info. RSD is still my worst foe. I could not believe how many nurses had not heard of RSD. I don't really talk about it much, because most have no clue when I tell them my skin is hurting. Like it is all open nerves. It is much worse when it rains. Sorry to ramble. take care.
Hi Bill. I don't have this, but girlfriend does. I live in Philly. If you are in Philly, this is where she goes for ketamine and other treatment: Hahnemann University Hospital which works well for her. If you're really desperate, Mexico offers ketamine comas, this is not FDA approved. I wish you luck.
It is appalling how little this doctor knows about physiotherapy for CRPS. There are physiotherapists who are specialized in treating CRPS, and it is more than just exercises. We retrain the sensitized brain, using mirror therapy and graded motor imagery. We restore range of motion in the nerve structures, gaining function and reducing pain. before passing a comment on a profession that is integral to the recovery of many CRPS patients, he should consult with the experts in the field, like David Butler and Lorimer Moseley. There research is groundbreaking and definitely not just exercises
It is not his specific area of expertise regarding CRPS/RSD so I can see why he didn't expand on it. He did, however, stress the multi-modality approach were all doctors involved communicate with each other. It's not like he dissed your area of expertise.
I've just been diagnosed with CRPS following a infection from a operation. I also suffer with Raynauds Disease. Because it was not detected for 5 weeks it has spread to my bladder now. The pain is horrendous on a daily basis. I have had it now 6 months It is worse at night. I have physio 3 times a week which I feel is a waste of time. My right hand has been constantly swelled I have no use in my right hand. I have been on morphine for 2 to 3 months will this activate more glial cells.???? My pain management doctor has stopped the morphine and put me on 200mg pregablin 3 x daily. And also amitriptyline twice a day. Will this help????
I hope Dr. Chopra is correct, I have GlioBlastoma stage 4 Brain Tumer behind my right eye. I start chemo and radiation January 31st, Tuesday at Stanford in Los Gatos clinic.
I am data-limited, so I can't watch all of this but I appreciate this channel. Recently diagnosed.
I am in New Zealand and my child was diagnosed nearly 2 yrs now....this is really good thank you :-)
Thank you for posting this seminar, RSDSA, and m Dr. Pradeep Chopra, M.D., for providing this excellent source of updated information on RSD/CRPS for physicians, clinicians, patients and the scientific community. There was a great deal of valuable information provided that will be useful for application in daily practices for professional with updates in treatments and medications used for RSD/CRPS. Keep up the great work! Respectfully, Julie Combs
Thank you very much Dr. Chopra for your time well spent in helping us all. I greatly appreciate all the knowledge you shared that I can now share with my doctor. It truly is a shame that more doctors aren't aware of what RSD is or how it takes over the body.
thanks so much for this conference. i was honored to be in attendance and it was my first time learning about crps after being diagnosed and i was able to meet awesome people.
Though I've had this monster disease reflex sympathetic dystrophy/complex regional pain syndrome 20+ years, this video was still very informative and helpful. I appreciate this doctor, for this update; I will watch this over and over.
do u have special diet?
Thank you Pradeep for all that you do for the CRPS community
What does he do, exactly?
Thank you so much!!!!!!!!!!!!!! I was diagnosised several months ago and this video is HIGHLY INSIGHTFUL xx
My daughter was diagnosed with CRPS in September 2017. She was in pain 24/7 and couldn’t get around without a knee scooter because it was in left foot. I was searching on TH-cam and ran across a dr that was using scrambler therapy and after 10 treatments everyone was getting off there meds and no pain which didn’t seem possible so I did more research and found a dr in Dallas that had a device and we went and she is off all meds and walking and pain free and now I got one of our Doctors in Shreveport La to get one and he has been using it for about 4 weeks and having great results
Great lecture. I was just diagnosed on New Years Eve from a fall in early December. Very helpful to get all of this clinical info,thank you Dr. Chopra.
I get so much sweating tremors, blurred vision, double vidiom, dizzy, severe nausea, vomiting. Also muscle spasms thru out my.body
Would love a chance to attend a seminar or conference where Dr. Chopra is speaking. Dr. Chopra. So far, I've learned that I have done everything that Dr. Chopra said was not very helpful. Now I am committed to start with exercise and weaning off the pain meds. Thanks Dr. Chopra
Thank you so much for uploading this. There is still so much we don't know our bodies and learning about out latest understanding helps spark hope that one day we will be able to understand and treat all those who suffer. As a CRPS Type 1 patient I found this very informative and it has given me a few new options to research and try. Thank you :-)
I have CRPS thru my entire body and.it started from a shoulder injury. I get bloodwork.done, due having anemia and CRPS spreads everytime I get bloodwork or any kind of of injections. For example: I had a bone.boipsy in.my hip bone. This started me to have swelling, pain, and redness my lower back. Also it spread when I had my shoulder operation, even with a injection(nerve block )1 week before and right before surgery. Then I fractured my entire foot, Except for the heel bone. I have severe swelling in my body and redness & purple coloration all over body, along with the pain. I live in my bed, resting helps keep the redness, swlling, and paim to a more tolerable pain level. I take 3 meds for it, gabapentin, Nyucuyta, and cymbalta.
Thanks so much for this straight forward and information-packed video about this challenging issue! This is an amazingly useful and easy to understand introduction to share with family, friends, care providers,etc. who have never heard of CRPS/RSD.
Thank you Dr. Chopra for sharing your knowledge! This gives me hope living with RSD.
Good info!. I wish that you ould have discussed more on what happens to the intestines. I started out with gastroperesis. Then came dumping syndrome, SMA, etc. Now I have scleroderma of small intestines & esophagus & have been told I have less than 1 yr. to live. I have a feeding tube. At 80 lbs. into ICU I went for a PICC for TPN. Then barely 1 mo. after TPN I got a blood clot & blood infection. Do you think it would be possible do a segment on RSD/CRPS & the damage it causes internal organs?
I've had RSD for over two yrs now any information I get is helpful to me,it was caught and diagnose early for me so I painful fight like Hell for remission. I got it from a boxers fracture and it spread up my arm to my shoulder but I fight I won't let it own me ! Love and Light
My daughter has been diagnosed after 6 years of seeing many doctors and lots of medical tests. I want to thank you for all of your research and for saying that the kids and Mothers will not stop at anything to help the child get better. I burst into tears when you thanked Mothers because this has been extremely difficult. My daughter is 17 and since we live in Nebraska the Children's Hospital is just beginning to understand the need for pain management. We are still battling and praying that this is an accurate diagnosis. If anyone wants to email me on how I can get her additional help please let me know. I am a working single Mother with no financial support and am not on any assistance programs. The medical bills and prescriptions are really hard to keep up with and I am taking a third job, yet keeping my priority as a Mother as the most important role I have and I cherish. Thank you again!!!
Hi Jennifer Have you found any relief in Nebraska yet. I to have RSD and live in W Nebraska and have been going to Colorado searching for help.
I'm not sure if you received my messages. Unfortunately my daughter has now been diagnosed with some different things that we have to rule out some serious things. As far as I know there's only a clinic in Philadelphia and Kansas City. If I find out any more than that I will definitely let you know. We are in the process right now of some other serious things. Wish you the best and thank you for your response I did not know that you sent that message till now.
jennifer pederson I just replied so it is all good. Sorry to hear there maybe more issues. Best wishes with getting her the best health care possible. I will research Kansas City. Also i think there is a doctor trained in Calmare relief therapy at the Mayo in MN i have been looking at. I have other issues to due to my injury that they can team up on. Best wishes!
Lots of positive energy and prayers for you. I truly appreciate your kind words.
Thank you for responding. The information shared is appreciated.. We went for a routine check up in November. The Rhematoid we saw wanted a Nerologist, sleep study and eye exam done. After doing the sleep study we were called and told to see her Prinary Care Doctor for an EKG and heart holder monitor. Sleep study found that my daughter had a heart srythmis and av block. After the results came in we found her heart has high and low arrhythmias. She was fighting her typical bronchitis and wheezing. After a blood draw they found she had low Platlets and sed rate was high. We monitored her platlets every week. They found she had the Ebstein Barr Virus. It was missed and it's not active now. Very concerned and frustration. We are now seeing a Hematologist. We are getting a 2nd opinion with a new and amazing Rhematoid specialist who's working with the Hematolgist. My daughters having a complete body scan/pet exam on Tuesday and we are waiting on blood tests that the Rhematoid doctor has ordered. Eleven viles of blood. I would truly appreciate prayers and am grateful to share this with anyone who has gone through what my daughters going through now. Love and light to everyone. Thank you for responding.
yay Dr. Chopra! Thank you!
Modulation of our nervous systems cells go into overdrive & we must learn how to deactivate. All cells concerned.
Is there any treatments in the D/C AREA?
Please send us an email at alexisdavis@rsds.org so I can send you a list of physicians in the DMV.
BTW- It is Gina Guerre (myself) that wrote the message below not Pat. He is my husband
I am just now reading all about How the pain is sent to from place to place with R SD and to brain in the first sec.So far it is hitting the nail on head.I will update more as I keep reading.R.S.D. This is is a very rare disease and is hard to find good info.Thank you very much.I back to reading more?Is there a way to if lose place to find where I fist found info.?
It's not that rare, just mis-understood, they don't teach this in med school.
So, with PT, major break through bone breaking pain didn't start occuring until after PT was started. Days where no PT is done, it doesn't feel as though the bones in the thigh are breaking into a million pieces. So does therapy need to continue??
it does feel like your bones are splintered, best therapy, yourself. I have type 1 and type 2 I got type 2 after PT as well, I twisted my ankle, thats it.
i have rsd i was hurt in 97 was diagnosed at Stamford university's pain clinic. I've been on the gambit of meds and pain meds. have a spinal cord stimulator since 98. on methadone 60 mg now.but they want to take me off. they want to do things that i had in 97-2003 blocks that didn't help. meds that had bad side effects. some pain dr have god complex like well it will work now cuz i say so. i hate it when you have medical records and they don't bother reading them cuz they know better. I'm so upset. live in Oshkosh wi
You might want to consider other options cuz you live in Michigan??
Excuse me, Oshkosh, WI!
hi lori, please call me 920 515 2762, im a fairly new RSD patient and in appleton, wi, wondering if there is any advice you could offer.. please contact me anytime, leave a message or text me
THAT'S MY DOC!
hi does insurance cover her ketamine and other treatments?
I'm looking for a Dr that is knowledgeable about RSD/CRPS near Killen,Alabama. Or if I have to travel I would. I appreciate this video. I'd love to be a patient of his or someone as knowledgeable as him on this horrible disease. Gore those like me that are seeking help, don't give up. And ask. Don't let others negative remarks get to you. They are cold hearted people that are so insensitive everywhere. So ignore them. Best of luck & prayers go up for you
Theresa Ann facebook.com/TheNeurologicReliefCenter/photos/a.334857956546396.83565.108673602498167/1021447574554094/?type=1&comment_id=1021649407867244
+Theresa Ann I have been to see DR Chopra...amazing, caring doctor.
Bill, are you still looking for someone to talk to? How can I help?
Ive crps 2 in my L hand, arm, ear. unable to travel,on disability. I was a deaf interpreter @ church & public school.neck pain, Arthritis in the neck & Chronic migraines causin lots of problems but after developin mass on L hand, ring finger & grew, painful. # of drs seen, didn't kno what was. 1 dr wanted remove send for biopsy. Lost surroundin tissue, Fluid during so called said "sorry, don't know". Then came rsd ,went Undiag 3 yrs,.7 SGB'S(my lack of knowledge).worse.Help. . :( Killen, Ala
I looked at the Trend Consortium website and found no "guidelines" whatsoever. Does anyone have any adiditional information.
Trying find other sufferers near Killen, Al as well as a KNOWLEDGE Dr. Love to receive inform hand local dr, ers, ect in my area pls
Mr. Bill S and OriginalCreation36 - You are NOT alone. I thought I was....
Hi I'm Kat Nd hVe been dealing with for 3 years since I had accident I get depressed from the constant pain so tins chronic would be understatement when both my legs cramp and spasm I use every once of stretch I have to fight ithe pain drugs not working but morphine Nd pills for this and that not working in moring I. Ant roll over on my side the pain is so bad also if I try to sit up I yell on pain cand walk far noticed my hands are cramping I at loose end need some support to help me bybt
I need someone too talk to who has crps. I am wishing death it is sooo bad. Am I alone? My name is Bill Schlebach
I have had rsd/crps for 30 yrs, still hanging in there. You're not alone, there are many of us around. Ketamin infusions have been the most helppful.
I hope you found some relief sir.
Can you recommend a place in India for my husband to get treated with RSD? Please help
Yeah, they all come to the US after getting a free education and med school, folllow the money
I have spreading CRPS/RSD and my family and friends tell me I am talking too softly (past 12 months) and now (6+months) I am having symptoms of Larengitis - barely being able to talk. I am not sick in any way. A few times, I have not been able to eat because I could not swallow even soft food. I believe this is the spreading of CRPS/ RSD but my Dr. is unsure if that is possible. I figure if anyone would know, it would be you. Do you have any thoughts on this subject?
Lauri Smith
sounds like C>O>P>D> to me. or G.E.R.D. not sick in anyway? then my friend you do not have crps, spend 9 months in a hospital and NOBODY can make heads or tails of it, until a genius walks in and knows exactly what it is.
i think i might have this what do i do
I use liquid ketamine i take it orally i just squirt it into my mouth down into my throat is that affective or the same as the pill one?
Where do you get it? I had 2 ket. infusions it's pretty intense!
I have had RSD for 13 years. Methadone is the only pain med that help with the pain.
mick mueller I take several layered medications and i know from stopping one or the other that my pain changes etc, start taking them and oh things go back to how they were before. The thing is....NOTHING will stop the pain, so no use really dreaming, look instead on reducing to a workable level...if then it does even better then its a nice surprise and not a disappointment. I am in Australia and about 4 years ago a new drug was released ... its founded here as well and was designed specifically for CHRONIC pain...it is DIFFERENT to anything that has been on the market...what can I say, Watch this space baby. It has a different feel as well. They are tweeking it at the moment so there is new hope. I am proud of Australia for this and it is nice to know that someone IS and WAS thinking of US Chronic pain sufferers
That sounds hopeful. Right now, I take Methadone, Clonopin, an Cymbalta. I shattered my arm in 2001, and slowly realized a burning pain after my bones healed. Until then, I did not know of RSD.
Here is the kicker. In 2008, I found out that I had stage 4 colon cancer. Had I not been near one of the best cancer hospitals in the world I would be dead. It has been a long recovery.
Many operations, and long hospital stays when I was on the brink. I have quite a bit of mental trauma that I am trying to deal with.
Thank you for the info. RSD is still my worst foe. I could not believe how many nurses had not heard of RSD. I don't really talk about it much, because most have no clue when I tell them my skin is hurting. Like it is all open nerves. It is much worse when it rains. Sorry to ramble. take care.
yes but it took my son's life he took too much may he rest in peace always
Hi Bill. I don't have this, but girlfriend does. I live in Philly. If you are in Philly, this is where she goes for ketamine and other treatment: Hahnemann University Hospital which works well for her. If you're really desperate, Mexico offers ketamine comas, this is not FDA approved. I wish you luck.
It is appalling how little this doctor knows about physiotherapy for CRPS. There are physiotherapists who are specialized in treating CRPS, and it is more than just exercises. We retrain the sensitized brain, using mirror therapy and graded motor imagery. We restore range of motion in the nerve structures, gaining function and reducing pain. before passing a comment on a profession that is integral to the recovery of many CRPS patients, he should consult with the experts in the field, like David Butler and Lorimer Moseley. There research is groundbreaking and definitely not just exercises
It is not his specific area of expertise regarding CRPS/RSD so I can see why he didn't expand on it.
He did, however, stress the multi-modality approach were all doctors involved communicate with each other.
It's not like he dissed your area of expertise.
+Belinda McD What is your area of expertise, exactly? There are many experts on RSD/CRPS.
I've just been diagnosed with CRPS following a infection from a operation. I also suffer with Raynauds Disease. Because it was not detected for 5 weeks it has spread to my bladder now. The pain is horrendous on a daily basis. I have had it now 6 months
It is worse at night. I have physio 3 times a week which I feel is a waste of time. My right hand has been constantly swelled I have no use in my right hand. I have been on morphine for 2 to 3 months will this activate more glial cells.???? My pain management doctor has stopped the morphine and put me on 200mg pregablin 3 x daily. And also amitriptyline twice a day. Will this help????
I do believe there are stages of this condition and time eases. A clean diet is important too.
I suffer from crps and it’s the worst pain in the world. I hate it
We totally understand. Anything we can do to assist? We can send you a physicians list if that is what you need!
No Bill you are not alone.
Sound way too low. cannot understand a word.
I hope Dr. Chopra is correct, I have GlioBlastoma stage 4 Brain Tumer behind my right eye. I start chemo and radiation January 31st, Tuesday at Stanford in Los Gatos clinic.
This disease is brutal .
i think i might have this what do i do