A Convo w/ Christy Huff, M.D.: "Benzodiazepine-Induced Neurological Dysfunction (BIND)-A Survey"
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- เผยแพร่เมื่อ 3 ต.ค. 2024
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Guest Bio:
Christy Huff, M.D. is a cardiologist and medical director of Benzodiazepine Information Coalition (aka BIC), a nonprofit that educates about the adverse effects of prescribed benzodiazepines.
In addition to her work at BIC, Dr. Huff is a member of the Colorado Consortium for Prescription Drug Abuse Prevention’s Benzodiazepine Action Work Group.
Dr. Huff speaks and writes frequently about her lived experience with benzodiazepines. Her personal experience with protracted benzodiazepine withdrawal led her to realize the serious risks of these medications and the knowledge gaps in the medical community surrounding benzodiazepines. Dr. Huff specifically advocates for better education of physicians regarding the adverse effects of benzodiazepines and how to safely taper patients off these medications. Her research interests include patient-centered benzodiazepine deprescribing and benzodiazepine-induced neurological dysfunction (BIND).
Paper #1 Experiences with benzodiazepine use, tapering, and discontinuation: an Internet survey
www.ncbi.nlm.n...
Paper #2 Enduring neurological sequelae of benzodiazepine use: an Internet survey
www.ncbi.nlm.n...
Paper #3 Long-term consequences of benzodiazepine-induced neurological dysfunction (BIND): A survey
journals.plos....
Some media coverage of Paper #3
(1) medicalxpress....
(2) www.miragenews...
(3) www.eurekalert...
(4) • Benzodiazepine-Induced...
(5) www.webmd.com/anxiety-panic/news/20230630/anxiety-medicines-may-cause-neurological-problems
(6) nypost.com/202...
Follow Dr. Huff on Social Media
Twitter: / christyhuffmd
Follow Benzodiazepine Information Coalition (BIC):
Website: benzoinfo.com
Twitter: / bzinfocoalition
Facebook:
Instagram: / bzinfocoalition
TH-cam: / @bzinfocoalition
Other Links:
Colorado Consortium’s Benzodiazepine Action Work Group: corxconsortium....
Dr. Huff's story: www.benzoinfo....
Benzodiazepine CME:
Under "CME/Education": www.benzoinfo....
Under "Project" Column: corxconsortium...
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Big Pharma is NOT OUR FRIEND!!! A nefarious group of money hungry psycho's.
So sad about Christy's passing. Discouraging to this community. She will be missed. Thankful for her work
I am so grateful for Christy and heartbroken by her loss. I’ve watched hours upon hours of her work. (Nicole’s too). I’m grateful for both of these women. You cannot imagine the strength between these two.
Needs fully investigated! 🙏🏼
Thank you!
@@MedicatingNormalI’m so heartbroken
Rip dr christy huff i cant believe you passed i wish you were here
RIP Christy.
@@melzahner8638 look up Christy Huff death and benzodiazepines information coalition comes up it will tell you.
Thank you. It helps so much to be believed.
I'm very grateful.
10years on, cold turkey taper 6years off the klonopin been through all sorts of therapy, no one around here understands the tapering process. I am hopeless and it destroyed my beautiful life. I was put on it for sleep and anxiety and they both are way worse, and I never had agoraphobia before the meds and I deal with it everyday. I am suffering more than I ever knew was possible. Help!
I want help too but the only doctors who even believe in withdrawl, are so expensive for us to even be able to afford them. There is no help. A lot of times I see these videos where people like her claim they are healed and they are not, so its hopeless. They either come on here and say how they e been protracted for 10 15 years and the still suffer neurological problems. How is that healing?
@@madelynhernandez7453People heal. Only 10-20% of benzo users have severe protracted withdrawals and those are mainly the ones that are went off the meds cold Turkey. A very slow taper is the way to go. Also once off the meds minerals and vitamins deficiency are a lot of the reasons people have symptoms. Diet and exercise can also assist in the healing process. And don’t forget lean on God and ask for his help! I hope you recover soon!
High dose vit c-then get fats in your system-coconut oil and look into keto-saturated animal fats are key-the brain is made from fat-cholesterol is the healer-also b1(thiamine) and b complex-sauna-hot /cold ‘therapy’ helps-stimulate your nerves-with a shower head!!! Toes-neck,spine-Use a tens machine on neck and down spine-it’s about rebuilding and vit c to stop the withdrawal xx
Omgosh!! Me too!! Been three years off KLONOPIN cold turkey, and the Agoraphobia is killing me! 😭. What do we do??? Ruining my life 😭
@@JM-kq7rn things that helped me with that are magnesium, taurine, L theanine and choline supplements. I would try to eat as cleaning as possible as well. I pray for a breakthrough for you and wish you a fast recovery!
You ladies are HEROS for this work and your shining example. THANK YOU from the bottom of my heart. Your channel is a LIFESAVER. Much 💕 LOVE.
You should look into antipsychotic withdrawal (acute and protracted). There's hardly any research compared to benzos or antidepressants. If you think nobody listens to benzo victims, imagine what happens to those coming off of antipsychotics who people believe they must be really "crazy".
can imagine 🤎🖤
There's definitely some need to adress the problems with neuroleptics.
But they are psychiatry's holy cow... so most people don't want to touch the issue. The next problem is narcissism, once you are on neuroleptics, you're considered crazy, and the channel is called medicating "normal", not mentally burdened aka crazy people who deteriorate even more under the influence of psych drugs, who are not told about the side effects and withdrawal problems, or offered alternative treatments.
We're collectively dodging the issue and I don't think this channel has the balls to adress this.
I hope, they prove me wrong, though.
Antipsychotics are definitely not designed for the benefit of the patient
In my country at least they are given to the undesirables so that they can be quiet in their corner
Practically a chemical lobotomy
I was only 15 and a "difficult teen" when they pushed neuroleptics on me and sealed my fate. They did not tell me how these pills destroy the brain, body and cause addition. Instead they downplayed any concerns. My wish is there should be lawsuits filed against such practioners because there could be other innocent victims of these practicioners.
@@blaa1hun-look into ketogenic diet-vit b complex-and b1-thiamine xxx hope you ok xx -also carnivore even for a short time looks really interesting I’m just looking into it now??!
I was suffering with BIND when on the drug,now I'm tapering at my Gps insistance that I do so after 32 yrs of being on this chemical. I could never understand what was wrong with me,and was constanly at the Drs ,then sent to see numerous specialists,who never put 2x2 together that it was the benzo.Your channel Medicating Normal ,Benzo Coalition Groups ,etc ! are my lifeline and educating myself on my ill health for all these years.You are all my hero's for all the work and helping us the public understand these drugs and what their effects are on the body and brain.
they never think anything is drug related, its woefully inadequate, I have just had months of absolutely awful mysterious symptoms, and they tie in exactly with my tapering down. I kept thinking ..is this the Benzo causing this ? they never put 2 x 2 together, even a specialist, but I am now convinced it is indeed ALL caused by the Benzo. Even if I told my Dr, it is the benzo, I do not think for a minute the Dr would believe me, or have any understanding of Benzo withdrawal consequences. They keep offering me more drugs for the symptoms . I will not take them.
This is so scary. The ppl who are supposed to be helping us are dropping like flies and suddenly??
I did Not abuse the prescription. I took as directed. Just finished physically tapering. Yes, still have symptoms.
Ativan. High dose/long term.
Couple weeks ago I realized - 40 years of Poly Psychiatric Chemical Abuse - over medicated, mis medicated, left in restraints in ER hallways,
locked away in 'hospitals' - not for 20 years. Also been on Disability. I'm 60. So are Benzos. The first psych chemical I was told to, ".. take this.." inpatient, of course- NO Informed Consent-, was Librium, the first benzo. I was 20 years old.There's an Empty.. ..where's living life?...I'm needing help. Any suggestions? Thank you for this information. Don't believe ignorance is bliss. Thank you.
Me too! Need HELP terribly bad! 😭
Fuck benzos. Even .5 mg a day will destroy your memory
so glad I listened to this!
This class of drugs needs to be banned.
My worst problem has been setbacks. It’s hard to avoid everything for years.
As someone stuck on SSRIs because of withdrawal, I applaud this channel's efforts to spread knowledge of these kind of issues with psychoactive meds that have been so normalized in the medical community as not causing dependency issues in people. All this is real in some people, even if the majority of folks don't deal with it.
I would argue majority of folks on these drugs do have issues but they do not attribute them to the drugs. Doctors do not recognize drug harm. They are guessing with the symptoms and misdiagnose to only issue more drugs.
RIP
My Endocrinologist told me I had a dysregulated autonomic nervous system from the Klonopin. I have been off for over 4 years and I did taper too fast because I had no guidance tapering. I still have symptoms. I was on .T mg Klonopin for 18 mos. Was prescribed for anxiety and sleep when my husband was diagnosed with Pancreatic Cancer and he passed away.
I personally like ABIND :) Well done, Dr. Huff and thanks for hosting, Nicole 👏🏻
What do you mean you like it??
@@Carolina_girl86 I think they mean the name to describe it
@@katrinamenzies9398 🙄
Thanks
How long are the symptoms considered BIND until they are thrown to wayside and not acknowledged anymore.
🙏🏼❤️
I have had years of chronic symptoms - look into TMS - it does not only apply to pain. I am tapering Benzo;s after 10 + yrs plus on, and am on an SSRI which I want to get off at some stage too. I wonder - and I am not saying I am right, but I wonder if tapering off and being on Benzo''s creates an hypersensitive hypervigilent nervous system which spits out tons of random symptoms that we place too much meaning to, just as all my various symptoms of TMS have. The more u freak out the more your brain creates symptoms. I have no idea how I will be when, or if, I get off Benzo's but I have to use TMS work to cope with any side effects or symptoms, and I know that the brain has the most amazing ability to heal itself . I choose not to think I will have "protracted" symptoms/syndrome or get into the horror stories of having "damage" to my CNS. . It just makes the whole fear thing exacerbated which will make it all 10 x worse. That is not to say the symptoms are not real - they are real - but how to deal with them best ? TMS work is my only hope and may help others: Neuro Science,. Mind Body. TMS . loads YT videos on it. Its the only option as far as I can see. the medical system has no options for us to heal or feel better.
Perhaps TMS works for some, however, we've had a guest who was badly injured from it: th-cam.com/video/pOIuAravIfA/w-d-xo.html
TMS is not an FDA-approved treatment for benzodiazepine withdrawal. People should be aware of this fact for full informed consent.
@@MedicatingNormal the above person talks about The Mindbody Syndrome
I'm curious to know how much Dr. Huff was taking and for how long ?
Her story is here: www.benzoinfo.com/2020/04/20/one-year-off-benzodiazepines-a-doctors-journey/
@@MedicatingNormal RIP Dr Christy Huff 💜
I see this is all been researched in the US. Are you guys going to let Canadian doctors aware of all this to.
I did them for 10 fucking days and I NEVER KNEW IT could cause permanent DAMAGE !!
I have headaches everyday for no reason, Erectile problems, Mood problems, and mostly the headaches/head pressure is the worst part!
I was unsble to complete the voice story. I have a Dr trying to findcsomthing to help me sleep. Just prescribed Linesta, nightmare !!! How can I get sleep. The 2 years 3 hours sleep a night has given me sleep deprivation deprivation
Why have you said some injuries can be permanent? It's very distressing
… because at some point it’s not withdrawal it’s damage. The lie is that these brain cells change back. They have to rewire with what is left. I know many people that had their akathisia come back after being gone for years. Even if you feel better, the line between “healed” and not healed is thinner than it looks. I resent people getting mad for calling my symptoms permanent. I’ve been battling akathisia and dystonia on some level for decades. I do believe those hurt the worst have underlying auto immune damage/issues making them prone to more injury. I also believe non-neurotypical people are prone to more injury. I believe sickness & fever & antibiotics in childhood (PANS/PANDAS) caused an overreaction reaction and my immune system to attack my brain. The damage it left pushed me to try and treat it with medications and I got hurt even more. That’s my theory anyway.
You need to get a lumbar puncture done to check for encephalytis. You are on the right track. I believe that benzos cause auto immune disease in many people and I too fully believe that those damaged are suffering from autoimmunity in the brain and CNS in the form of limbic encephalytis. We should connect to talk about this further as I am working with a neurologist to see what happened to me. I took .5 mg of xanax for sleeping (138 tablets within 12 months) and then a one year taper of valium from 10 mg to zero and I have been destroyed. I was an extremely healthy, very active individual before this disaster. It is absolutely shocking to me that there are tens of millions of people on the planet that have been effectively destroyed by this drug class and no one even talks about it. It is the largest medical disaster in the history of mankind.@@kevk741
@@kevk741, you’ve got to stop leaving these nightmarish comments without providing your full history. You’ve been on and off decades of meds if I recall correctly
So still dealing with this every day severely 14 months after you were taken of klonopin abruptly after 12 taking it as (prescribed by your fucked up psychiatrist)years means what? I’m house bound. I have no life, my brain feels like I have a massive growth or tumor 24/7 non stop.
Same. So sorry you are having to endure this HELL.
Start ketogenic diet-high dose vit c to detox and stop withdrawal-coconut oil on neck and in hot water everyday-up fats-to rebuild the brain -get b complex-look into it-especially b1-thiamine-heal you-you can do it xx coconut oil oil on skin down spine everyday
What did Dr.Huff die from exactly?
I don’t understand how these benzos don’t destroy you until you stop taking them.
They do, they change brain and nervous system function dramatically
@@ShawnRKA not for me until I stopped taking it.
@@Carolina_girl86 so you got wd symptoms when you stopped, right?
@@ShawnRKA yes, stopped taking it 21 months ago and have been suffering deep brain damage (that’s basically what it is even though they say it’s withdrawal).
@Itsjust-me yeah it's brain damage. Can be severe. It's not withdrawl and it's ridiculous people even say protracted wirhdrawl.
Has anyone tried cbd to help with BIND? Help! 😭
Not BIND, but Lexapro-induced akathisia. Thumbs-up.
@@toiletresinReally? That's what I have.
@@bethgra2007 Sorry to hear that. I hope you feel better soon. I don't even remember writing that comment (for the best, perhaps!) and feel mostly back to normal (had brain zaps and other weirdness on the reg for a couple of months after tapering off over one month). Not sure if I truly had akathisia, but somehow I ended up watching a bunch of these videos during that time period and found them relatable.
I wanted to ask Dr Huff if she feels it's safe to have surgery during a taper. I need to have my breast implants removed and I know she also had breast surgery. Would you be willing to comment on this? Kind of a serious situation. Thank you!
It is as with anything while suffering from dysfunction to the nervous system from a psychotropic drug of any kind - everyone is different. We've met people who did just fine and had no issues, and we've met people who had a setback from something they were given during the surgery. Most people try to see if they can avoid benzos altogether in the surgery, but that is up to the anesthesiologist, so you must consult w/ them ahead of time. Overall, many people avoid elective meds and procedures until they feel better and stronger and only do the ones that are absolutely necessary until they are better. You have to determine for yourself what is the best course for your own situation.
I had a mastectomy with propofol anesthesia but no pain meds after. All nerves in breast gone or cut so not much pain at all until healing and nerve regeneration.
Can you take a benzo for a few weeks to help you get off opiods? Or will you then have to taper ?
Most people can, but the FDA showed cases where it happened in as short as a week. So, proceed w caution. They’re best used intermittently
@@MedicatingNormal thank you for the quick response. I was once in the hospital dealing with botched surgery for 3 weeks iv valium and ativan . Round the clock . I asked if i would have withdrawal, they said no. The weird thing is i didn't have any withdrawal. I was released on opioids though. I wonder now if opioids help benzo withdrawal?
So, if u take benzos everyday for less than 2 wks, u won't get protracted withdrawals?
it's much less likely - although there are rare folks who get it after just 7-10 days
I did it for 10 days and am still having problems 2 years later.