Walk In Our Shoes: The Experience of Rare Disease Patients

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  • เผยแพร่เมื่อ 2 ต.ค. 2024
  • The National Organization for Rare Disorders is pleased to continue its collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series exploring equity in rare disease health care.
    This serves as the final event in the series and is a discussion with rare disease patients from underserved populations about their experiences living with rare disorders and their perceptions of diversity, equity, and inclusion during the health care journey.

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  • @EdnaKlos
    @EdnaKlos 9 หลายเดือนก่อน

    Looking for information on myelofibrosis