Yes, I will pray for your father. I was 3 months old when I was diagnosed with SC. I am now in my 9th year of my 50's (59). Never been married, no children. Two older brothers. One has the SC Trait, the other doesn't. 😊
This is so Amazing, living with sickle cell myself is challenging but those that has donated we thank everyone and God has been Amazing through it all her story is amazing 🙌🏾🙌🏾
26 struggling with my SCD. I can only pray to live that long. Some days I fear I won’t make it past 30 due to my complications. I’m scared to leave my family and baby behind so early
Be positive explore some options beyond English medicine. My cousin sister has it she's 34 and she doesn't take tablets for 6 or 7 years and although she has pain occasionally the frequency and the days the pain last is much lower than when she was taking tablets. She had severe problems back then she explored many options. Idk if it's gonna work but as it is an oxygen related problem how bout u do wim how method or any other breathing exercises and also focus on diet which enriches oxygen . Maybe things will get slightly better
Don't put that blame on you. It's no real help here for us. If that due happened it's because you are not getting the proper care. From these damn hospitals period and that's facts
I’m 42 with SCD and wish I didn’t waste so many of my younger years worrying about longevity. It kept me from pursuing things I would’ve otherwise done (like a master’s program, traveling, pursuing relationships without fear, etc.). I believed there was no point in chasing dreams. But life is a gift, and every breath is a chance to live fully. Do the things you want, love on your family, savor life without limitations. I also started taking Hydrea in 2017 and have been pain-free since then. I had to be eased into the medication because it gave me side effects like rashes around my nose and mouth and hair loss, but after a year of sticking with it, the side-effects resolved themselves. I now travel the world, I occasionally drink cocktails, I hike, swim, walk long distances, and I’ve been to high altitude places
I just found out my grandson who only 3 weeks old has SCA . Come to find out my daughter and her boyfriend has the trait. I use to talk to both my kids about this when they were older. My daughter apparently was not listening. I’m not taking the news of my grandson well. I’m asking for prayers towards my family.
He should be on hydroxyurea, penicillin, and folic acid. You should have plenty thermometers around, they should teach you to check his spleen for trapped blood. Please get him a medical bracelet, with his trait type and your contact info. Praying for you Mama. You going to have to be doing and educate yourself. He's going to need a die hard advocate 💯
My son died of sickle cell when he was 26 years old in 2022.All his life since he was 2 yrs old he battled crisis on and off.The hospital visits were unbearable,He never wanted to be disabled,just wanted to live a normal life.He had a bright future and tried to manage his pain on his own
Truely Inspiring...I was diagnosed with SC at 2yrs old. Doctors had me thinking I'd be gone at 12. And almost every year since, up until my early 20's, I used to dread that each yr was my last. Took me a while to shed that feeling, no child should ever have to dwell on those thoughts at such a young age...I said all of that to say that Im 43 now and look forward to growing much older. So don't ever let them get in your head....Live Life and Love, just as long and as much as anyone else. Everyday is a blessing!💯🙏🏾
Amazing story. My mom, aunt, and uncle all passed before mid-50s due to complications with sickle cell. I still run into doctors that think this disease is black-only. My family is Sicilian.
thank you for commenting on this. I'm Black and have always been told the same about sickle cell and fibroids. it's good to know the advocacy can be extended and more inclusive.
I’m 32 years old & this gives me hope. Because I too want to leave a long, healthy & happy life especially because I have 2 Boys that are 11 & 8; but they have the trait. So whn they get older i gotta have the talk with them whn decide to have kids on their own. 😅😊 But to those who donate blood thank you 🙏🏽 you are great appreciated for ppl like us who goes through this day in & day out. ❤
My Mother died March 30, 2023…she would have been 79. She died from complications due to liver failure(Hepatic Infarction)! She had Sickle Cell and Beta Thalassemia! She went to the emergency room on Sunday and died the following thursday here in Los Angeles! Obviously, you don’t die from the disease itself-but from the complications it causes! I wish these 2 ladies could have met!
@@bobbymacauley2618 you will live a long life in taking care of yourself physically and mentally,don’t let the disease take you,overtake it and be a testimony for many out there who needs courage🙏🏾🙏🏾🙏🏾
my X boyfriend just recently died from SCA. he was 54. he had a SC crisis. the sad thing about it is the same day they buried his oldest sister he died. he didnt make it to her funeral because he was hospitalized with that sickle cell crisis.
I have Sickle cell anemia IAm 61yrs old I was told that I would not live past 21yrs old by the Indy papers printing that screw up my early life in my twenties.
I’m 53 with hemoglobin SC disease. If anyone needs a good hematologist surrounding the phila area,, my doctor is Joseph Potz. He’s also an oncologist. His office is Alliance Cancer Specialists. There are many other there also, but this dr has truly fought for me in difficult medical situations when in the hospital suffering from life threatening positions.
Sickle Cell Anemia is a horrible affliction. Kids in constant pain, Mom's trying to manage the disease and complications. Blood donations are needed desperately. Please donate to a foundation that provides transportation and other assistance to the families.❤
If she answers you can you please tell me? I just want to meet her, seeing this has literally lifted my spirit in ways i cannot explain, i now have hope that feels fair to have since it’s stemming from a true story, it is priceless🌺
She must of stayed away from the Dr then because living with this illness living in Philadelphia is horrible many of people died at Jeff hospital many people. And it's getting worse I don't understand how we are living in Philadelphia with no damn help. They only talk about us when it's helping them give blood. Where is the help. At where is the Dr at why are all the places you can get treatment from all a sudden don't take certain insurance why I can't find not one Dr here they only wanna keep offering a damn cancer center I don't have no cancer. Why isn't a clinic set up for us where is the help at here in Philadelphia.
Philadelphia is doing a poir job on managing people with sickle cell anemia a very poor job. No one seems to care. The news only reported her story to help the company cls. Or is it csl I wouldn't have given them no interview at all
My dad's got sickle cell, he's really in bad shape right now, he's 61 years old he's really defied the odds also. Pray for him
Father in heaven, in Jesus' name, we pray for health, healing and comfort for @cameronford's father. Amen and amen!
Yes, I will pray for your father. I was 3 months old when I was diagnosed with SC. I am now in my 9th year of my 50's (59). Never been married, no children. Two older brothers. One has the SC Trait, the other doesn't. 😊
🙏
@@Getrealpeepswhy did not get married it is dangerous disease or not to meet a understanding partner
🙏🙏🙏😢
Thank you so much for sharing this story. I am 26 and living with Sickle Cell. Thank you for giving me hope❤️❤️🙏🏽
I am sixteen now one of those with sickle cell disease thank u for giving me hope
What do you take to manage the pain please what type of pain killers ?
Great story,I’m 47 with sickle cell. It’s not easy but I push for my children,family.
❤❤
This is so Amazing, living with sickle cell myself is challenging but those that has donated we thank everyone and God has been Amazing through it all her story is amazing 🙌🏾🙌🏾
I’m 59 and doing just fine. This story gives me hope. I have sickle beta thal and I want to keep living.
This warms my heart to see her still thriving she looks healthier than me lol. Much love grandma
26 struggling with my SCD. I can only pray to live that long. Some days I fear I won’t make it past 30 due to my complications. I’m scared to leave my family and baby behind so early
You will not. Continue to speak life. So much love
Be positive explore some options beyond English medicine. My cousin sister has it she's 34 and she doesn't take tablets for 6 or 7 years and although she has pain occasionally the frequency and the days the pain last is much lower than when she was taking tablets. She had severe problems back then she explored many options.
Idk if it's gonna work but as it is an oxygen related problem how bout u do wim how method or any other breathing exercises and also focus on diet which enriches oxygen . Maybe things will get slightly better
Don't put that blame on you. It's no real help here for us. If that due happened it's because you are not getting the proper care. From these damn hospitals period and that's facts
I’m 42 with SCD and wish I didn’t waste so many of my younger years worrying about longevity. It kept me from pursuing things I would’ve otherwise done (like a master’s program, traveling, pursuing relationships without fear, etc.). I believed there was no point in chasing dreams.
But life is a gift, and every breath is a chance to live fully. Do the things you want, love on your family, savor life without limitations.
I also started taking Hydrea in 2017 and have been pain-free since then. I had to be eased into the medication because it gave me side effects like rashes around my nose and mouth and hair loss, but after a year of sticking with it, the side-effects resolved themselves. I now travel the world, I occasionally drink cocktails, I hike, swim, walk long distances, and I’ve been to high altitude places
Oh baby girl, please don't lose hope. My son is 20, they told me wouldn't see 5. You are beautiful, and God has plans for you and those babies❤
She is beautiful! God bless you!!
I just found out my grandson who only 3 weeks old has SCA . Come to find out my daughter and her boyfriend has the trait. I use to talk to both my kids about this when they were older. My daughter apparently was not listening. I’m not taking the news of my grandson well. I’m asking for prayers towards my family.
He should be on hydroxyurea, penicillin, and folic acid. You should have plenty thermometers around, they should teach you to check his spleen for trapped blood. Please get him a medical bracelet, with his trait type and your contact info. Praying for you Mama. You going to have to be doing and educate yourself. He's going to need a die hard advocate 💯
My Dear friend is 70 she has sickle cell she wants to live longer 🙌
My son died of sickle cell when he was 26 years old in 2022.All his life since he was 2 yrs old he battled crisis on and off.The hospital visits were unbearable,He never wanted to be disabled,just wanted to live a normal life.He had a bright future and tried to manage his pain on his own
I am so sorry for your loss. My heart is breaking for you. You are one strong Mama ❤
hi my x boyfriend just pass from complications from a sickle cell crisis. will you help me to understand the crisis and what causes the death.
@@thatgirltrinity5342 I sure can,I will be messenging you shortly
Truely Inspiring...I was diagnosed with SC at 2yrs old. Doctors had me thinking I'd be gone at 12. And almost every year since, up until my early 20's, I used to dread that each yr was my last. Took me a while to shed that feeling, no child should ever have to dwell on those thoughts at such a young age...I said all of that to say that Im 43 now and look forward to growing much older. So don't ever let them get in your head....Live Life and Love, just as long and as much as anyone else. Everyday is a blessing!💯🙏🏾
Amazing story. My mom, aunt, and uncle all passed before mid-50s due to complications with sickle cell. I still run into doctors that think this disease is black-only. My family is Sicilian.
Sending my condolences,I’ve loss family also. Sickle cell is not an only black disease. Some doctors/ppl don’t know that.
thank you for commenting on this. I'm Black and have always been told the same about sickle cell and fibroids. it's good to know the advocacy can be extended and more inclusive.
I’m 32 years old & this gives me hope. Because I too want to leave a long, healthy & happy life especially because I have 2 Boys that are 11 & 8; but they have the trait. So whn they get older i gotta have the talk with them whn decide to have kids on their own. 😅😊
But to those who donate blood thank you 🙏🏽 you are great appreciated for ppl like us who goes through this day in & day out. ❤
I wish more people understood. So much love and light to all patients of the disease. Especially my sister ❤
My Mother died March 30, 2023…she would have been 79. She died from complications due to liver failure(Hepatic Infarction)! She had Sickle Cell and Beta Thalassemia! She went to the emergency room on Sunday and died the following thursday here in Los Angeles! Obviously, you don’t die from the disease itself-but from the complications it causes! I wish these 2 ladies could have met!
I'm 33 now living with SCD, im scared because it has limitede so much.. i dont want to die now ans leave my 1 year old son behind.. 😭😭😭😭
i understand, i’m scared too, but look at this lady, its possible, i think that’s all i needed to know 🌸
@@bobbymacauley2618 you will live a long life in taking care of yourself physically and mentally,don’t let the disease take you,overtake it and be a testimony for many out there who needs courage🙏🏾🙏🏾🙏🏾
I have sickle cell anemia also congestive heart failure. I haven’t been to a doctors in years.
Sending prayers and love ❤️ you got this you were born a warrior
Why not ?
my X boyfriend just recently died from SCA. he was 54. he had a SC crisis. the sad thing about it is the same day they buried his oldest sister he died. he didnt make it to her funeral because he was hospitalized with that sickle cell crisis.
😭😭 I'm with you boo ❤❤❤
I have Sickle cell anemia IAm 61yrs old I was told that I would not live past 21yrs old by the Indy papers printing that screw up my early life in my twenties.
This story gives me so much hope. 🥹
I really needed to see this. God bless this woman.
I’m 59 with sickle beta thal and this gives me hope.
I’m 53 with hemoglobin SC disease. If anyone needs a good hematologist surrounding the phila area,, my doctor is Joseph Potz. He’s also an oncologist. His office is Alliance Cancer Specialists. There are many other there also, but this dr has truly fought for me in difficult medical situations when in the hospital suffering from life threatening positions.
I’m 32 and also struggling with sickle cell anemia
I’m 30 still pushing 😢
Stay Blessed and Encouraged Everyone 🙌 🙏 🙏
My oldest daughter have it😢
I am 23 and I have SCA
From KSA 🇸🇦
Sickle Cell Anemia is a horrible affliction. Kids in constant pain, Mom's trying to manage the disease and complications. Blood donations are needed desperately. Please donate to a foundation that provides transportation and other assistance to the families.❤
I'm sickle cell at 58, hoping to live up to 100, living heathier than those AA and AS.
Didn't she recently pass away?
even if she food she was in her 80s, can we focus on the positive? ugh people like you don’t get it.
Plant based diet helps sickle cell anemia tremendously 🌱🌿
Just searched
HOW CANT I MAKE JOAN'S LIFE EASIER!!!
You need blood, kindness, home chores...I'm in
If she answers you can you please tell me? I just want to meet her, seeing this has literally lifted my spirit in ways i cannot explain, i now have hope that feels fair to have since it’s stemming from a true story, it is priceless🌺
She must of stayed away from the Dr then because living with this illness living in Philadelphia is horrible many of people died at Jeff hospital many people. And it's getting worse I don't understand how we are living in Philadelphia with no damn help. They only talk about us when it's helping them give blood. Where is the help. At where is the Dr at why are all the places you can get treatment from all a sudden don't take certain insurance why I can't find not one Dr here they only wanna keep offering a damn cancer center I don't have no cancer. Why isn't a clinic set up for us where is the help at here in Philadelphia.
Philadelphia is doing a poir job on managing people with sickle cell anemia a very poor job. No one seems to care. The news only reported her story to help the company cls. Or is it csl I wouldn't have given them no interview at all