Ugh. i had a stroke at 13 and then received a bone marrow transplant. Took some time to recover but its been 12 years without sickle cell anemia now. Thankful every single day.
My sister died tow weeks ago form acute chest syndrome but i think the doctor was carless because she was good until he injured her trachea during mechanical intubation he made her condition to be difficult
I had a friend die from this recently. He was 24, and it was very sudden. He was like a brother to me. I wish he'd told me the toll this disease took on him, but I think he just wanted me to treat him like everyone else. I wish he'd let me help him. If you have this condition, please consider relying on your friends. They'll want to help you. I wanted to help him so much
I too had a best friend who died from this last week. i didn't know until he died, I guess they don't want to make us go through the mental trauma that they go through so they choose to fight their battles silently. I ask myself how could I not recognize that he was in pain? it hurts like hell
@@tyrone4083 I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now i can feel good...... You can also contact the consultant on whatsapp +2349091419996. Goodluck
@@benjamensuccess6386 my brother and I both have sickle cell and the side effects are now affecting his eyes. We are working on building a website to raise awareness and educate the medical community as to the need for a cure. Would you mind being interviewed for our website? I am very interested in your story. We have tried many natural remedies and our organization is a faith-based non-profit. Please respond to this message and let me know if you are interested. Thanks, Shelly Morgan.
I have this disease. I’m 14 and i never understood how my illness worked. Now that i’m older and mature, i finally understand how this affects my life. I can’t do things that my friends can do. I cant push myself into doing physical activities. My illness was so bad when i was younger. I was going to the hospital every week because of my pain. It hurts a lot, it really does. I try to hide my pain so no one would worry. Every time i’m in a crisis, i go straight to my mother. In 8th grade, people would always bully me because of the yellow eyes and how i take too long to run. Now that i’m in high school, people are starting to understand how i’m living life with this disease. I kept my disease private, to myself and my family, and now that a lot of people are understanding what i’m dealing with it makes everything easier. It is difficult to live like this, but i’ve learned that it’s just the way it is! I am a happy, healthy young girl who is ready to see what life throws at me! Stay safe everyone ❤️
My Mom have been in the same position &still is 40yrs later she found out before she had me she was 6mo pregnant and she found out before because she had a test called a (amousatisa,&the doctor said she was going to have a abortion and she she is 6mo pregnant and I am a baby already so she had to have a talk with my dad then make a decision the doctor also,her boss my Mom was working at the doctor office and she said don't ever try to tell her what to do without knowing what she already has to choose to kill her baby or have a baby with a diease that she knew about because her brother had it most people didn't even know anything about it but I am a lucky girl/woman now and I am happy even though I go through hell I still glad my mom didn't get rid of me because I got the greatest Mom ever and she said she was never going to kill me but I see how much pain and guilt she has and how she blame herself everytime I am sick in a pain crisis or all the other thousand of things this disease has in store but ,and there is nothing to get rid of it mostly because it is more of a (Black Disease)as it is really not it is more in the black population I have God&My Mom&some family members are here for me but not my own dad every time I am going bad &they think I am not going to wake up which I don't ever stop fighting and I don't know how to do anything else but fight and yes I have told my mom and said God take me but I don't blame my mom but it breaks my heart when I see her face or here her when I am not doing well and when the doctors say I am gone or let her go she doesn't have to suffer anymore I don't know what to do but fight and come back to my mom and prove them wrong we all as sickle cell patients and parents and family are fight to God says he is ready for us that is why we are Sickle Cell Worrior's to the end decison may be spell wrong but she had to go to the rest of her pregnancy knowing that I was going to have to live with this de
Well, I have sickle cell anemia as well, SS type and I will be 35 in November, and what I know for sure is that God's stregth is made perfect in my weakness, so when I'm exhausted which is most of the time, I endure, and when I am in pain and suffering I pray and Christ strengthens me to endure through the pain. Getting angry at God will never help, but trusting Him will. I will live to see my grandkids and I will not forsake Christ and He won't forsake me. Forget the statistics, try Christ.
My cousin passed away by sickle cell on 2 months ago in 05/03/23 and she was 24 years old. I'm crying over her because she was really sick! Rest In Peace my beautiful big cousin! 🕊
I too live with Sickle Cell Disease...it is a struggle as we all know. I am now 28 and still have a hard time accepting it. So many people are uneducated on this disease. They don't understand the level of pain and struggle one goes through. I have been told many times 'you don't look sick'. Those words are irritating. I may not look sick at that particular moment but I am. I have learned to keep God first through my hard times. I pray for each of you. Xoxoxo
@@franks8436 what helped me as a kid/teenager was my parents being thoroughly educated. We found ourselves at times telling the doctors what I needed. Hydration hydration hydration. Look for more natural medications if possible. I HATE all the poison they pump into my body. She has to learn her body and what works. Look into hydrxreaua (misspelled) but it’s a medication to help control crisis
@@tyniosocute hey I’m 16 year old boy have anemia but not cickle cell disease. I feel really bad for people with this disease. Just breaks my heart wish we could all just could be born with the perfect body. Nobody really is though, hope you are in a good place and are doing well at this time god bless you
I’m 35 and I was diagnosed with sickle cell at the age 3. I can’t even describe the pain that I went through with me being hospitalized numerous of times throughout my life but I’m grateful that Jesus delivered me from my affliction!
Her dad said he never heard anybody scream that loud before and that broke my heart. 💔 I hate this disease and the suffering it inflicts on people. I've had this disease for 33 1/2 years (at the time of this writing) and I could never wish this upon another human being, even my absolute worst enemy. To the OP and everyone else who commented here who has this disease I say keep living and stay strong! Never let this disease define you as a person nor let it hold you back from living and experiencing life and all of the good things that it has to offer.
Hi this guy, I was watching this video and looked through the comments, I would like to introduce you to a product that may be helpful to you in dealing with sickle cell. If you are interested in finding out more infomation please message me on messenger @ joanna seymour or whatsapp 16492417439
My boyfriend currently has sickle cell anaemia. It’s the most heartbreaking thing to hear/see a love one go through. I wish there was something I could do to change and remove his pain/disease. I know there is a bone marrow transplant, but I don’t think it’s open to adults... Please remember that life is fragile and tell your love one every day that you love them. You’ll never know when it’ll be the last time you can. ❤️
What an incredible, beautiful, intelligent girl! She must be so blessed to have such a loving family and team of doctors who are constantly looking out for her.
Nonthing2Loose011 It's believed to be a 'throw back' (not sure if that's the right word you use) of people of African (mainly) descent, as it's believed to provide protection from malaria. An illness carried by mosquitos (predominantly) and passed on via blood.
Because it's genetic, and the gene is more common in people with ancestors from parts of Africa. There are other genetic diseases that are mostly in people with European ancestors, or asian, etc. In the case of sickle cell one of the reasons the gene has survived so many generations is probably because even though two sickle cell genes give you the aweful disease, if you just have one it apparently helps protect you from malaria.
Nonthing2Loose011 people with sickle cell anemia got Sickle Cell because in Africa they were trying to stop the spread of malaria people with sickle cell are immune to malaria but when you mix the genes together you cause the sickle cell. I have sickle cell anemia and one of the worst things ever but God has me in his hands and yes I want to go home to Heaven all the time because of the pain won't stop name things you need medicine that help your body die it's supposed to help with the pain but sometimes the medicine doesn't work so I'm calling God through all things especially this illness the strongest Warriors.
Yes true but funny thing is I’m pretty white looking even though I’m Hispanic so when I was at the hospital one of my nurses told me that when I was a baby she walked in saw me and at the time people not even nurses knew much about it so when I didn’t look black she thought it was the wrong room but came back to see if I was the kid with sickle cell and my mom said yes so it came to a surprise
I couldn’t imagine being any member of this family. I’m a mom and hearing my child tell me they wanted to go “home” and knowing that didn’t mean our physical home, it would absolutely kill me. I couldn’t imagine my child going through so much. My heart goes out to this family and families like them.
A woman is being treated using CRISPR-CAS9, a gene editing tool that will remove the gene responsible for Sickle Cell Anemia. Look it up, a cure is coming!
I knows what it is to battle a illness. I do not have sickle cell, have diabetes. I hope to see sickle cell and diabetes cured. Alexandria has the same last like me. Many blessings to Alexandria.
My heart goes out to Alexandria, her family, and anyone else affected by this genetic disease. My biochemistry class recently discussed primary protein structure and one of the examples discussed was sickle cell anemia. The sad part about SCA is that even a change is just ONE amino acid can lead such drastic changes to the entire body. I aspire to become a doctor one day to help patients live their life to the fullest. Remember, dear friends, health is the ultimate form of wealth. Blessings to all.
It's a very debilitating disease. I have sickle cell anemia ss. I'm 24 years old but I'm blessed to live a fairly normal life and I recently had my first child thank god she doesn't have the disease she just has the trait. I've been very blessed!
I am 46 years old and I have this disease.This disease is very hard on us that have this disease.But I know That God will see us through. I am having problems with my knees now but I trust God that I will get better real soon.Lets keep each other in prayer.
Apparently when i was really young i almost died to heart failure, i had no idea till i recently went through hospital files to send to my new hospital(im moving away for uni) When i found out about it i laughed about it with my siblings but it scared me. I almost died before even living. Im soo grateful for my health now, though i almost died as a child im relatively healthy with few crisises. I know many cant do what ive bee able to and im forever grateful
I have sickle cell anemia and im going through a crisis as of right now i was watching this vid i found out things i didnt even know about myself godbess everyone
I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now im can feel good...... You can also contact the consultant on whatsapp +2349069647732. Goodluck
Thats terrible. Sorry for your loss. May I ask what caused her death? I have sickle cell anemia, and I always wonder in which way is it going to take me out.
Sickle cell disease is such a tough disease to manage, Its even more worrying that there is little to no awareness out there to support those like myself that suffer with the condition. However with young advocates like Alexandria who is alot older now judging by the date of the video advocating and speaking up this is inspirational. Thank you for speaking up and fighting the fight. Sending you love and positive vibes from the UK
God be the glory, I lost my best friend to Sickle Cell at a young age of 38, she was blessed to have beautiful twins. I can remember her crisis and the pain she had to deal with. I pray for all of you
When I was young I know A boy in my 6th grade class who had sickle cell &he had to miss days of school....I didn't know he had to go through a lot of pain at a young age 😔💔
My bf had the disease, then he had a stroke and from there down everything went down hill. I was with him for 10 years it killed my spirits when he passed at 28. I hope you have better days to come and I'll be praying for you;)
I cant stop watching this video, my two brothers have sickle cell. and the older one who is 17 years has been having severe pains in the head and the back. we are in DRCongo we dont have doctors who can do that, i think i going to loose my brothers . I thank God for you
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I have lived and struggled with sickle cell anemia my whole life (27yrs). It is a very painful ordeal and it comes with many hurddles!! It's many days that i struggle with low to no energy while at the same time trying to carry on day to day as "normaly" as i can. I have friends and family that do not understand what i go through with this and when i try to explain, i'm met with alot of confussion!! I love my sickle cell family...
My mom passed away from sickle cell 10/30/21 age 55. She would be in and out of the hospital when I was young. She would always say how tired she feels after doing an activity and I would be upset. I never really understood what the disease was until I got older. This disease sucks man RIP mom 🕊
I have SCT (Sicke Cell Trait) and I am symptomatic as I get older. I suffer from what the ER docs call, "FEVER of an UNKNOWN CAUSE!" OK!!!!! Mine comes out in the way of random fevers with achy joints and pain down my arms and legs as well as my back.
I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now i can feel good...... You can also contact the consultant on whatsapp +2349091419996. Goodluck
@@benjamensuccess6386 you can't cure it, scammer. Stopping the pain isn't curing it also. You are still making sickle blood cells. The only cure is a stem cell transplant.
I have sickle cell disease aswell. I have had crisis's 5 times this year and it hurts a lot. I have also had a blood transfusion before but luckily for me, i have never had a stroke. My youngest sister also has sickle cell. She is 5 and has never had problems with sickle cell but my first crisis was when i was 3.
Im a 15year old boy who lives in bronx Ny with sickle cell anemia the full diseases........ It does not feel like i have it because i play jv basketball and im in shape everyda i have to thank God because watching this girl makes me feel very fortunate for my health........... and by the im going to be a future NBA player
I have sickle cell anemia, I understand what she's going through. It's painful, so painful. But honestly I'm lucky that for the most part I can live a normal life until I have a crisis.
How is Alexandria doing now? I hope she is able to continue her treatment that is giving her so much relief. My father had Sickle Cell Disease. He told me when he was dying; he knew. Sufferers of this horrible disease certainly need support; but the families do as well as we can see from the responses of Alexandria's parents.
I am here to share my testimony to the world on how Dr Olaniwu helped me in curing my son's sickle cell anemia. It is well known that sickle cell anemia has no cure but I can boldly say there is cure to it because my son was cured from it lately October 31st last year 2018 when I came across someone testifying about how Dr Olaniwu also cured his own sickle cell anemia, at first I didn't believe because I was not so sure but I still went on to give it a try. I contacted the Dr and told him everything and he told me that he will prepare an herbal medicine cure for me which I will give to my son for good 14 days and on the 16day I should take him to the hospital for check up. 3days after we had this conversation, he prepared the herbal medicine and sent it to me through UPS DELIVERY SERVICE, I received the medicine and started giving my son the medicine and I followed the prescription and the dosage on how the medicine should be taken by my son.. After the 14days of the medicine effectiveness according to the doctor, I took my son to the hospital on the 16th day and behold to my greatest surprise, my son was cured from sickle cell anaemia crisis.Contact the herbal doctor via Email:drolaniwu@gmail.com or whatsapp (+2348102743287)
I HAVE SICKLE CELL ANEMIA TOO BUT THNK GOD I NEVER HAD A CRISIS SINCE I WAS 5 N NOW IM 21... N I NO LONGER HAVE TO GET TRANSFUSION UNLESS IM REALLY SICK OR IF I GOTTA DO SURGERY, SO I JUST WANTED TO SAY KEEP THE FAITH N NEVER GIVE UP...
I knows exactly how it is to battle a major illness. I do not have sickle cell, I have diabetes. My prayers are going out to people who have sickle cell disease. I hope that sickle cell n diabetes be cured. Many blessings to you Alexandra. By the way, u n I have the same last name.
I hope all is well, I too have SS Gene, and I'm 42, I celebrate every month of life. I am in a crisis now at home, been 7 months since I was hospitalized. The craziest thing is I had a crisis 1 time out the year or none up until 2015 and they caused me to go weekly or stay for weeks with a crisis, 2019 suffered from a heart attack cause by lack of blood flow oxygen and sickling in the heart, it's true it can damage organs. Also had acute chest syndrome 2 times in my late 20s early 30s. Diagnosed with lupus in June of 2022, I don't wish this on anyone. I pray all my fellow warriors are staying strong and fighting the fight. You got this! Ask God to comfort you and make sure you pray for your nurses, doctors, or those who love and help care for you when in need ❤
I have sickle cells. And when I was younger I would always have pain. In and out hospitals and always getting sick. My mother told me that I almost died not once but twice in her own arms. She also told me that I went into a coma because of it. I had to re-learn how to walk again. But when I was three i had surgery to remove my spleen. Ever since that day I got less pain and I only get fevers ever now and then. And visit the hospitals once a year and end up staying for a week.
I live in the Republic of Turkey. I have the sickle cell anemia patients. gibi.tanrı unbearable torture is a very difficult disease, pain crises, help us
I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now im can feel good...... You can also contact the consultant on whatsapp +2349069647732 Goodluck
This makes me so sad. I have so many friends with this horrible disease. I don't have any family with it (I have a very large family), so I'm not sure if I even carry the trait.
My dad just passed away from sickle cell, a day after my birthday, on thanksgiving night. The struggles that they deal with is truly heart wrenching. Fortunately, my dad lived to be 55 years old, a week shy away from his 56th. 🙏🏾 to anyone that’s dealing with this.
i have sickle cell anemia and it really does suck, you cant do the same things that your friends do and sometime it makes you feel left out and you just feel like you cant have fun because eventually it will end up causing pain.
I have Sickle Cell as well, Im 25 years old. I get Blood Transfusions every 3 weeks to prevent strokes and to help me with my crisises. The pain is very painful, I cant even describe what it's like. Thats how painful a crisis is, I also have to take a lot of pain meds to help me with the pain. I take Oxycodone, Morphine and Motrin, when Im in the hospital or ER they give me Dilaudid through the IV.
I'm glad to hear that you are doing good. I to have sickle cell disease and take HYDROXYUREA. I have been trying to remain crisis free for at least one full year, but unfortunately I haven't been able to obtain that goal.
I have sickle cell as well, the treatments I have are blood transfusions every 6 weeks and Hydrea capsules (three 500mg tablets a night). I havent had a sickle crisis (pain) since late 2011. Please ask your doctor about these tablets because they help alot. I am still tired alot but better than being in pain.
I'm sickle cell, I'm 27 yrs old and I'm so tired. I'm tired of life because I live in a third world country, no jobs, no govt support, no family. Today, I'm having my crisis,, I can't go to the hospital, I can't see a doctor, all I can do is take my painkillers ( mostly don't work), drink water and wait. It's hell for me on earth, I want to take my life cos it will give me the rest I truly deserve but my question is, if I take my life, would I still go to another hell?
I almost had a stroke and my pains are so bad and I used to think why me because my brother is the most healthiest person I know and people pick on me for being short and flat but my bestfriend encourages me and sometimes I give up and want to kill myself but the lord is with me. Plus I have asthma and I was premature
caroline ferdinand, I think we’re basically the same person lol. I have sickle cell too, my brother is 17 and has only been sick like once, and everyone makes comments about how flat I am.
@@sleepytimesoundsnightnight and don't forget the healthy chemo and that is green, black and white tea. Then there's Rooibos tea highest antioxidant above mentioned. Then don't forget your algaes - spirulina which has just about all the nutrition except B12 which is fake B12. Then chlorophyll, wheatgrass, etc. All this will oxygenate the blood and filter out unwanted contaminations from all around the environment. Just watching GNTV about it and a doctor has said the best two treatments are Hydroxycarbamide sometimes known as hydroxyurea. It's a cancer drug but the benefits for sickle cell are positive. Then of course the other treatment is regular blood transfusions depending on the severity a program.
I have sickle cell and had a silent stroke when I was nine and I've been getting blood transfusions since then and I'm 26 now my older sister died from complications from this disease that had we had better doctors she wouldn't have died because of their negligence, and the sad part is I've always had more problems than her . I wish we had more resources and research for this disease
That was good insight into the life of a sickle cell patient. Though, one correction needs to be made. She was not getting a blood transfusion. She was, however, getting a red cell exchange. That's a minor detail, but there is a difference between the two.
am an SS ...pain is small compare to what we face, its something we can't take away,am 21 now but still pains get worse..thanks to my mum and dad for taking care of me, we don't need pity because it makes us weaker , we are just like everybody else only abit weak different doesn't mean weak,my frnds says I have the strongest of heart, here in Nigeria they some blv if u have a child born of ss you shldnt spend much on the child because she wld die soon Alex.....am saying a big Thank you to ur mum and dad for keeping u safe..because blood has made us sisters We Are stronger than the strongest.. keep fighting baby that is one battle u have to win all the time#love you#
I have Sickle Cell too and this really bothers me. I can really relate to what the young lady in this video was going through and how she felt about her case of sickle cell.
I am so sorry it must be hard loving without a mum i have CF and its hard sometimes but my parents always help me through it. Stay strong and never forgot you mum
I’m from Saudi Arabia I was diagnosed with sickle cell unfortunately my first crisis happened to me when I was at 5 and I remember when I went to U.S for studying I got sick there I went to the hospital in Tallahassee memorial hospital I still remember that place and Remember the people up there in the hospital thinks that I’m joking when I said to them it was funny because they think I’m African but anyway I’m 35 I have wife and beautiful healthy daughter what I want to say life is beautiful but for us we need to be more careful about our health like drinking water all the time more than normal people eat healthy food get your self enough sleep cover your self with heavy clothes in cold weather
I feel like I’m in the right place to express my feelings I’m 21 old scd warrior but since i was A child things was too hard i barely get treatment and medication but I believe that God is the only One who protected me now I’m 21 and I’ll keep pushing forward. ❤love to all scd warriors
YESSS!!! IT IS PAINFUL. I have Sickle Cell Disease as well. I try not to let it get me down but its hard sometimes. I'm 25 yr old old. I got my LPN. Im going further I want to get the WORD out. If ppl are interested please get in contact with me. I am a speaker so so about it. I just want ppl to be aware. Be bless yall. Lets stick together like our cells so..
I had a little blister on my mouth which I thought it was just normal, until my doctor told me it was herpes and it has no medical cure, I decided to try out natural stuff by giving a try to DR Rorpopor Herbal on TH-cam am so glad that I was able to heal my herpes blister with his product. Is very infective and active 💯 contact him on WhatsApp or his TH-cam
I'm from India and i am suffering from Sickle cell, I was just 7 year old when my family knew about my disease, and I'm now 17. I can't explain in words about the pain when this happens. Nobody can feel the pain untill someone get suffered by this. I pray to God that no one get suffered by this. Doctor suggest me to take medicine lifetime, and one think the doctor said me especially that I can't do exercise, can't lift heavy things because hard work can cause more pain and you have to admit in hospital, if you will not get admitted then the death is near. Whenever I have pain I feel that someone Drop the Big Truck on my hand and leg.
Am also a patients who lives in Ghana..but seeing Alexander going through all this is not easy.. for us here in Ghana we may not even know that stroke is coming cos we all can't afford brain scan. The only thing i do is to take my medication, do some good exercise, go for check up n drink a lot of water.. i must say i don't remember the last time i had a blood transfusion. I believe God is in Control..
Well,I can say this if your kids have sickle cell disease that means you and your childrens father have sickle cell trait(SCT)/and or sickle cell disease(SCD) aswell.I just want to say that there is still hope for you and your kids.Do your research on sickle cell and talk to your kids let them know that even though they may have struggles they can still overcome with help treatment and guidance.Also I would say Pray,I do believe that Prayer changes things.I hope and pray for you and your family.
Sickle Cell Anemia is primarily found in people from the tropics, especially around the Congo area because it's a human adaptation to Malaria. The parasite has a harder time attacking Sickle shaped cells, but unfortunately this human adaptation hasn't had enough time for the body to adapt to it and so the individual with this will die a horrible death. But it should be said that without modern medicine you would live a longer life in the Congo with Sickle cell than without it because of having more immunity to Malaria. That's how bad Malaria is.
I Have Sickle Cell Anemia And it’s so hard for me I’m 14 years old and was diagnosed when I was 14 I get so scared when I watch videos bc I hear or see what I don’t wanna so yeah I’ve never had a stroke thank god I only get pain mostly when I’m playing in the cold or swimming in cold water it’s always to do with the cold and I’m struggling to gain weight
My son is five they say he have Sickle Cell Disease. He had no crisis's. The doctor told me he had the worse causes of sickle cell Disease. When he was one he would be very sick. I reject every bad report. I only believe the report of the Lord. My son is healthy. Just turn five over the weekend. I gave a testimony on my channel. To show of God goodness and grace on our life. I feed him healthy, I pray and I fast.
I had a little blister on my mouth which I thought it was just normal, until my doctor told me it was herpes and it has no medical cure, I decided to try out natural stuff by giving a try to DR Rorpopor Herbal on TH-cam am so glad that I was able to heal my herpes blister with his product. Is very infective and active 💯 contact him on WhatsApp or his TH-cam
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Ugh. i had a stroke at 13 and then received a bone marrow transplant. Took some time to recover but its been 12 years without sickle cell anemia now. Thankful every single day.
Can I ask how long it took you to recover? I'm considering getting this procedure done.
Ouh that transplant gonna be so painful
They only do this procedure in the US and on children from research id do anything to help my friend she's 32 almost 33
@@nyashadonaldson6069 tumeric root and lots of organic non-gmo green juice daily!!
Alhumdllah
my sister died form sickel cell when she was 16 an i have it an im 12 our prayers are open....
sharelle felton sorry for ur loss 😔😪
TobiPlaysGames check out the sickle cell documentary we produced on our chanel
sharelle felton u won't die of it my dear. Am more than 30 and I suffer from such pain.
I Have Sickle Cell And I Am Trying Create Awareness To It Can You Guys Subscribe To My Channel ?
My sister died tow weeks ago form acute chest syndrome but i think the doctor was carless because she was good until he injured her trachea during mechanical intubation he made her condition to be difficult
Be strong and pray daily, this has gotten me thru so much, my life expectancy was 13 years but I'm 32 now God is a healer
Wow that's why it's Gods voice we listen God bless the doctors but they do not have the final say in our lives
Or maybeee it was because of the doctors
Hammer and sickle is racist ands makes fun of sickle cell.
Same stay bless eat ya veggies drink water and eat edibles
I had a friend die from this recently. He was 24, and it was very sudden. He was like a brother to me. I wish he'd told me the toll this disease took on him, but I think he just wanted me to treat him like everyone else. I wish he'd let me help him.
If you have this condition, please consider relying on your friends. They'll want to help you. I wanted to help him so much
You probity right he might not wanna you to treat him any different
I too had a best friend who died from this last week. i didn't know until he died, I guess they don't want to make us go through the mental trauma that they go through so they choose to fight their battles silently. I ask myself how could I not recognize that he was in pain? it hurts like hell
I just had a friend who died of it too and it was sudden as well
@@tyrone4083 I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now i can feel good...... You can also contact the consultant on whatsapp +2349091419996. Goodluck
@@benjamensuccess6386 my brother and I both have sickle cell and the side effects are now affecting his eyes. We are working on building a website to raise awareness and educate the medical community as to the need for a cure. Would you mind being interviewed for our website? I am very interested in your story. We have tried many natural remedies and our organization is a faith-based non-profit. Please respond to this message and let me know if you are interested. Thanks, Shelly Morgan.
I have this disease. I’m 14 and i never understood how my illness worked. Now that i’m older and mature, i finally understand how this affects my life. I can’t do things that my friends can do. I cant push myself into doing physical activities. My illness was so bad when i was younger. I was going to the hospital every week because of my pain. It hurts a lot, it really does. I try to hide my pain so no one would worry. Every time i’m in a crisis, i go straight to my mother.
In 8th grade, people would always bully me because of the yellow eyes and how i take too long to run. Now that i’m in high school, people are starting to understand how i’m living life with this disease. I kept my disease private, to myself and my family, and now that a lot of people are understanding what i’m dealing with it makes everything easier. It is difficult to live like this, but i’ve learned that it’s just the way it is! I am a happy, healthy young girl who is ready to see what life throws at me! Stay safe everyone ❤️
Pray for me sister..
I cried when they said she wanted to go to heaven; I can relate so much. Bless her.
Yes I understand
@Dorris Tammy What the fuck???
My Mom have been in the same position &still is 40yrs later she found out before she had me she was 6mo pregnant and she found out before because she had a test called a (amousatisa,&the doctor said she was going to have a abortion and she she is 6mo pregnant and I am a baby already so she had to have a talk with my dad then make a decision the doctor also,her boss my Mom was working at the doctor office and she said don't ever try to tell her what to do without knowing what she already has to choose to kill her baby or have a baby with a diease that she knew about because her brother had it most people didn't even know anything about it but I am a lucky girl/woman now and I am happy even though I go through hell I still glad my mom didn't get rid of me because I got the greatest Mom ever and she said she was never going to kill me but I see how much pain and guilt she has and how she blame herself everytime I am sick in a pain crisis or all the other thousand of things this disease has in store but ,and there is nothing to get rid of it mostly because it is more of a (Black Disease)as it is really not it is more in the black population I have God&My Mom&some family members are here for me but not my own dad every time I am going bad &they think I am not going to wake up which I don't ever stop fighting and I don't know how to do anything else but fight and yes I have told my mom and said God take me but I don't blame my mom but it breaks my heart when I see her face or here her when I am not doing well and when the doctors say I am gone or let her go she doesn't have to suffer anymore I don't know what to do but fight and come back to my mom and prove them wrong we all as sickle cell patients and parents and family are fight to God says he is ready for us that is why we are Sickle Cell Worrior's to the end decison may be spell wrong but she had to go to the rest of her pregnancy knowing that I was going to have to live with this de
Well, I have sickle cell anemia as well, SS type and I will be 35 in November, and what I know for sure is that God's stregth is made perfect in my weakness, so when I'm exhausted which is most of the time, I endure, and when I am in pain and suffering I pray and Christ strengthens me to endure through the pain. Getting angry at God will never help, but trusting Him will. I will live to see my grandkids and I will not forsake Christ and He won't forsake me. Forget the statistics, try Christ.
77godsdaughter Hope you are still doing well ❤️
How are you now. I see this is from 8 years ago.
How are u now? Hope u good. I am a sickle cell patient too. I pray we feel better
I also have sickle cell and it is no joke
so powerful. God bless you
My cousin passed away by sickle cell on 2 months ago in 05/03/23 and she was 24 years old. I'm crying over her because she was really sick! Rest In Peace my beautiful big cousin! 🕊
I too live with Sickle Cell Disease...it is a struggle as we all know. I am now 28 and still have a hard time accepting it. So many people are uneducated on this disease. They don't understand the level of pain and struggle one goes through. I have been told many times 'you don't look sick'. Those words are irritating. I may not look sick at that particular moment but I am. I have learned to keep God first through my hard times. I pray for each of you. Xoxoxo
My daughter has the disease. Anything we can do to help her?
@@franks8436 what helped me as a kid/teenager was my parents being thoroughly educated. We found ourselves at times telling the doctors what I needed. Hydration hydration hydration. Look for more natural medications if possible. I HATE all the poison they pump into my body. She has to learn her body and what works. Look into hydrxreaua (misspelled) but it’s a medication to help control crisis
@@tyniosocute hey I’m 16 year old boy have anemia but not cickle cell disease. I feel really bad for people with this disease. Just breaks my heart wish we could all just could be born with the perfect body. Nobody really is though, hope you are in a good place and are doing well at this time god bless you
@@wavxy7454 what treatment do you use to take? I'am also a person with sickle cell trait but I have lots of pain crisis with fever
Praying 🙏
I’m 35 and I was diagnosed with sickle cell at the age 3. I can’t even describe the pain that I went through with me being hospitalized numerous of times throughout my life but I’m grateful that Jesus delivered me from my affliction!
Amen 🙏🏾
Please how do you mean
Amen 🙏 God help my nephew
What the Hell have you got to be thankful to Jesus for?, He gave you it in the first place by your reckoning
Her dad said he never heard anybody scream that loud before and that broke my heart. 💔
I hate this disease and the suffering it inflicts on people. I've had this disease for 33 1/2 years (at the time of this writing) and I could never wish this upon another human being, even my absolute worst enemy.
To the OP and everyone else who commented here who has this disease I say keep living and stay strong! Never let this disease define you as a person nor let it hold you back from living and experiencing life and all of the good things that it has to offer.
Hi this guy, I was watching this video and looked through the comments, I would like to introduce you to a product that may be helpful to you in dealing with sickle cell. If you are interested in finding out more infomation please message me on messenger @ joanna seymour or whatsapp 16492417439
Amen
My boyfriend currently has sickle cell anaemia. It’s the most heartbreaking thing to hear/see a love one go through. I wish there was something I could do to change and remove his pain/disease. I know there is a bone marrow transplant, but I don’t think it’s open to adults...
Please remember that life is fragile and tell your love one every day that you love them. You’ll never know when it’ll be the last time you can.
❤️
Tumeric root and lots of organic non-gmo green juice daily!!
Amen
What an incredible, beautiful, intelligent girl! She must be so blessed to have such a loving family and team of doctors who are constantly looking out for her.
Hammer and sickle is racist ands makes fun of sickle cell.
My girlfriend have sickle cell but I wanna care for her and keep loving her for who she is
My girlfriend too 😭😭😭
My gf too....it sucks man, I am always worried about her 😢
can you describe her pain?
I have sickle cell anemia as well and the pains are just horrific but all I can say is that I thank God for everyday I have been alive on this earth
Mostly black people have this disease , I'm not sure why.
But my prayers go out to this young sister, and everyone who has it or lost someone to it.
Nonthing2Loose011
It's believed to be a 'throw back' (not sure if that's the right word you use) of people of African (mainly) descent, as it's believed to provide protection from malaria. An illness carried by mosquitos (predominantly) and passed on via blood.
Because it's genetic, and the gene is more common in people with ancestors from parts of Africa. There are other genetic diseases that are mostly in people with European ancestors, or asian, etc. In the case of sickle cell one of the reasons the gene has survived so many generations is probably because even though two sickle cell genes give you the aweful disease, if you just have one it apparently helps protect you from malaria.
it is most common in Africa as being a carrier or being affected with the disease makes you immune from malaria
Nonthing2Loose011 people with sickle cell anemia got Sickle Cell because in Africa they were trying to stop the spread of malaria people with sickle cell are immune to malaria but when you mix the genes together you cause the sickle cell. I have sickle cell anemia and one of the worst things ever but God has me in his hands and yes I want to go home to Heaven all the time because of the pain won't stop name things you need medicine that help your body die it's supposed to help with the pain but sometimes the medicine doesn't work so I'm calling God through all things especially this illness the strongest Warriors.
Yes true but funny thing is I’m pretty white looking even though I’m Hispanic so when I was at the hospital one of my nurses told me that when I was a baby she walked in saw me and at the time people not even nurses knew much about it so when I didn’t look black she thought it was the wrong room but came back to see if I was the kid with sickle cell and my mom said yes so it came to a surprise
I couldn’t imagine being any member of this family. I’m a mom and hearing my child tell me they wanted to go “home” and knowing that didn’t mean our physical home, it would absolutely kill me. I couldn’t imagine my child going through so much. My heart goes out to this family and families like them.
We need to find a cure!!
benjamen success is this legit ?
I take a medication called hydroxycarbomide it helps it so much
Google the health benefits of using sugar beets molasses
A woman is being treated using CRISPR-CAS9, a gene editing tool that will remove the gene responsible for Sickle Cell Anemia. Look it up, a cure is coming!
Tumeric root and lots of organic non-gmo green juice!!
my beautiful and heroic cousin with her loving and supportive family!!!
I knows what it is to battle a illness. I do not have sickle cell, have diabetes. I hope to see sickle cell and diabetes cured. Alexandria has the same last like me. Many blessings to Alexandria.
My heart goes out to Alexandria, her family, and anyone else affected by this genetic disease. My biochemistry class recently discussed primary protein structure and one of the examples discussed was sickle cell anemia. The sad part about SCA is that even a change is just ONE amino acid can lead such drastic changes to the entire body. I aspire to become a doctor one day to help patients live their life to the fullest. Remember, dear friends, health is the ultimate form of wealth. Blessings to all.
I would not wish this disease on anyone. This must be one of the most horrible diseases in the world.
Aric Mackenthun cancer..cough cough
Randomthing1222 one of
Aric Mackenthun i have sickle cell i need a transplant
It is 😭
Breanna Washington yep
sometimes when you are in pain ,you begin to give up.may God strengthen all sickle cell patient all over the world.
It's a very debilitating disease. I have sickle cell anemia ss. I'm 24 years old but I'm blessed to live a fairly normal life and I recently had my first child thank god she doesn't have the disease she just has the trait. I've been very blessed!
Hope your doing a-okay.
+Czaremati I've Been here for two weeks I was just in a coma for a few days. I almost lost my life.
+MH Creative Collective I am so sorry, I hope things are going well for you now. I will always keep you in my thoughts.
me to but I'm 10
MH Creative Collective they people with the trait have more pain than the people that actually have Ik my mom has it
god bless the people who have this
I am 46 years old and I have this disease.This disease is very hard on us that have this disease.But I know That God will see us through. I am having problems with my knees now but I trust God that I will get better real soon.Lets keep each other in prayer.
Hattie Golden bless you
Hattie Golden I know how you feel I have it too it is not easy to live with
Hattie Golden hello sis I have sickle cell anemia as well. My knees hurt so bad. I stay positive and I know we serve a faithful all knowing God
Why you don't have Bone Marrow Transplant?!
Money the cost is really high @@iwillsuccess4726
Apparently when i was really young i almost died to heart failure, i had no idea till i recently went through hospital files to send to my new hospital(im moving away for uni) When i found out about it i laughed about it with my siblings but it scared me. I almost died before even living. Im soo grateful for my health now, though i almost died as a child im relatively healthy with few crisises. I know many cant do what ive bee able to and im forever grateful
I have sickle cell anemia and im going through a crisis as of right now i was watching this vid i found out things i didnt even know about myself godbess everyone
Keyvon Starkey I also have sickle cell
Wikileaks me to I hate sickle cell
Wikileaks I don't have it here in the UK but how do you get rid of the yellowing on the eye ball
thank you for the advice
I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now im can feel good...... You can also contact the consultant on whatsapp +2349069647732. Goodluck
My 5 years old daughter passed in 2009 by complications of Sickle Beta Thal Zero and Influenza A. Good bless you all.
Thats terrible. Sorry for your loss. May I ask what caused her death? I have sickle cell anemia, and I always wonder in which way is it going to take me out.
@@ddotdollaz she just said what but just not exactly might be all she was told
@@ddotdollaz it can kill in alot of ways stroke seems common
Currently dealing with pain now 😣
Kizzy J. Same
Kizzy J. Same
Kizzy J. Stay strong listen to Prodigy
Same here and they took my meds from me. Smh
Kizzy J. Same here
Sickle cell disease is such a tough disease to manage, Its even more worrying that there is little to no awareness out there to support those like myself that suffer with the condition.
However with young advocates like Alexandria who is alot older now judging by the date of the video advocating and speaking up this is inspirational.
Thank you for speaking up and fighting the fight. Sending you love and positive vibes from the UK
God be the glory, I lost my best friend to Sickle Cell at a young age of 38, she was blessed to have beautiful twins. I can remember her crisis and the pain she had to deal with. I pray for all of you
When I was young I know A boy in my 6th grade class who had sickle cell &he had to miss days of school....I didn't know he had to go through a lot of pain at a young age 😔💔
My bf had the disease, then he had a stroke and from there down everything went down hill. I was with him for 10 years it killed my spirits when he passed at 28. I hope you have better days to come and I'll be praying for you;)
Sorry for your lost.
🙏🏾🙏🏾🙏🏾
R.I.P Prodigy of Mobb Deep ✊🏾
I cant stop watching this video, my two brothers have sickle cell. and the older one who is 17 years has been having severe pains in the head and the back. we are in DRCongo we dont have doctors who can do that, i think i going to loose my brothers . I thank God for you
glorbit gloria how are they?
“Rep. Martha McSally (R), her party’s nominee for the open U.S. Senate seat in Arizona, was a staunch supporter of the Trumpcare legislation to repeal Obamacare, literally telling her Republican House colleagues that they needed to get the “fucking thing” done. Now that she is under fire for her vote for the wildly unpopular legislation, she is simply lying to her constituents and pretending that the bill would not have eliminated insurance protections for the more than 100 million Americans with pre-existing medical conditions. In a KTAR radio interview on Wednesday, McSally was asked about ads claiming that McSally would have let insurance companies discriminate against those with pre-existing conditions.”
don't let your friends and loved ones be caught out in the cold.
glorbit gloria try natural treatments. Google stuff online too see if you can find some natural ways to help it
I have lived and struggled with sickle cell anemia my whole life (27yrs). It is a very painful ordeal and it comes with many hurddles!! It's many days that i struggle with low to no energy while at the same time trying to carry on day to day as "normaly" as i can. I have friends and family that do not understand what i go through with this and when i try to explain, i'm met with alot of confussion!! I love my sickle cell family...
I have a rare RO subtype which is really effective in the treatment of Sickle Cell disease. I will give blood to help as much as I can.
mich I wish you could help me
Thanks bro❗️💯💯
god bless you (if you believe in it)
I Have Sickle Cell And I Am Trying Create Awareness To It Can You Guys Subscribe To My Channel ?
My mom passed away from sickle cell 10/30/21 age 55. She would be in and out of the hospital when I was young. She would always say how tired she feels after doing an activity and I would be upset. I never really understood what the disease was until I got older. This disease sucks man RIP mom 🕊
I lost the love of my life to this disease 2 months ago. My heart is broken in ways that I can't even describe. I'm so very sorry for your loss.
@@Wilson-vx6ty sorry for your loss
I have the same thing I know how it fells let's stay strong
I have SCT (Sicke Cell Trait) and I am symptomatic as I get older. I suffer from what the ER docs call, "FEVER of an UNKNOWN CAUSE!" OK!!!!! Mine comes out in the way of random fevers with achy joints and pain down my arms and legs as well as my back.
I just lost a brother to sick cell, in December and my heart still heavy today , I so miss him so much, prayers to all that have to go threw this,
Curtently dealing with pain now 😭 please pray i didnt know this disease could kill i always thought i was safe
I also have sickle cell also and I'm working a documentary movie about sickle cell. Can I use clips from this movie in my movie.
I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now i can feel good...... You can also contact the consultant on whatsapp +2349091419996. Goodluck
@@benjamensuccess6386 oh no not one of these guys
@@benjamensuccess6386 you can't cure it, scammer. Stopping the pain isn't curing it also. You are still making sickle blood cells. The only cure is a stem cell transplant.
I have sickle cell disease aswell. I have had crisis's 5 times this year and it hurts a lot. I have also had a blood transfusion before but luckily for me, i have never had a stroke. My youngest sister also has sickle cell. She is 5 and has never had problems with sickle cell but my first crisis was when i was 3.
Uenbg What do you mean by this?
Well, I do at times but when I am in pain I find it hard to accept that I have this disease
Check out my channel I have sickle cell and I'm giving out knowledge for people.
+Terrian Love Ok and thanks😊
Ann-Francisca Addai thanks for the response. I just did a video on how to protect yourself while your in pain. Think I'm the first to do it honestly
God Bless You Alexandria and your family. I will be lifting you up in prayer for your continued better health.
Im a 15year old boy who lives in bronx Ny with sickle cell anemia the full diseases........ It does not feel like i have it because i play jv basketball and im in shape everyda i have to thank God because watching this girl makes me feel very fortunate for my health........... and by the im going to be a future NBA player
I have sickle cell anemia, I understand what she's going through. It's painful, so painful. But honestly I'm lucky that for the most part I can live a normal life until I have a crisis.
I have sickle cell as well and other diseases I’m with you I’ll always be with you
How is Alexandria doing now? I hope she is able to continue her treatment that is giving her so much relief. My father had Sickle Cell Disease. He told me when he was dying; he knew. Sufferers of this horrible disease certainly need support; but the families do as well as we can see from the responses of Alexandria's parents.
I didn't know it was something so serious! I feel bad for her. Hopefully she doesn't have another stoke and stay healthy!
I want this young lady to kno she isn't alone going thru this. #warriorsister we out here with each other.
I am here to share my testimony to the world on how Dr Olaniwu helped me in curing my son's sickle cell anemia. It is well known that sickle cell anemia has no cure but I can boldly say there is cure to it because my son was cured from it lately October 31st last year 2018 when I came across someone testifying about how Dr Olaniwu also cured his own sickle cell anemia, at first I didn't believe because I was not so sure but I still went on to give it a try. I contacted the Dr and told him everything and he told me that he will prepare an herbal medicine cure for me which I will give to my son for good 14 days and on the 16day I should take him to the hospital for check up. 3days after we had this conversation, he prepared the herbal medicine and sent it to me through UPS DELIVERY SERVICE, I received the medicine and started giving my son the medicine and I followed the prescription and the dosage on how the medicine should be taken by my son.. After the 14days of the medicine effectiveness according to the doctor, I took my son to the hospital on the 16th day and behold to my greatest surprise, my son was cured from sickle cell anaemia crisis.Contact the herbal doctor via Email:drolaniwu@gmail.com or whatsapp (+2348102743287)
My old schoolmate was 17 when he passed away he would be 18 now 🥺❤️🩹
I HAVE SICKLE CELL ANEMIA TOO BUT THNK GOD I NEVER HAD A CRISIS SINCE I WAS 5 N NOW IM 21... N I NO LONGER HAVE TO GET TRANSFUSION UNLESS IM REALLY SICK OR IF I GOTTA DO SURGERY, SO I JUST WANTED TO SAY KEEP THE FAITH N NEVER GIVE UP...
So sad. I pray for anyone who’s suffering with this.
Last 10 year I am taking Hydroxyurea, it's reduced pain attack. Now my age 37.
Thanks for sharing. You are very brave. I have it myself and it interferes with many many things I want to do.
So happy for u dear hang on I’m 52 living with the disease also stay strong warriors
My daughter has it and she's only 2 months. Any advice
I knows exactly how it is to battle a major illness. I do not have sickle cell, I have diabetes. My prayers are going out to people who have sickle cell disease. I hope that sickle cell n diabetes be cured. Many blessings to you Alexandra. By the way, u n I have the same last name.
I hope all is well, I too have SS Gene, and I'm 42, I celebrate every month of life. I am in a crisis now at home, been 7 months since I was hospitalized. The craziest thing is I had a crisis 1 time out the year or none up until 2015 and they caused me to go weekly or stay for weeks with a crisis, 2019 suffered from a heart attack cause by lack of blood flow oxygen and sickling in the heart, it's true it can damage organs. Also had acute chest syndrome 2 times in my late 20s early 30s. Diagnosed with lupus in June of 2022, I don't wish this on anyone. I pray all my fellow warriors are staying strong and fighting the fight. You got this! Ask God to comfort you and make sure you pray for your nurses, doctors, or those who love and help care for you when in need ❤
I wonder if she still alive? This documentary is 13 years old
You go Andrea!
Great parents are hard to find. ....you got. lucky!
I have sickle cells. And when I was younger I would always have pain. In and out hospitals and always getting sick. My mother told me that I almost died not once but twice in her own arms. She also told me that I went into a coma because of it. I had to re-learn how to walk again. But when I was three i had surgery to remove my spleen. Ever since that day I got less pain and I only get fevers ever now and then. And visit the hospitals once a year and end up staying for a week.
My prayers goes out to her🙏💖
I live in the Republic of Turkey. I have the sickle cell anemia patients. gibi.tanrı unbearable torture is a very difficult disease, pain crises, help us
I have sickle cell but im cured with natural herb which ejected it from my body.... Prior to this i do feel pain in my bones but thank God i met the herb specialist that help me to counter this deadly trait... Now im can feel good...... You can also contact the consultant on whatsapp +2349069647732 Goodluck
Cok gecmis olsun lütfen bunu okursan bana ulasabilir misiniz
This makes me so sad. I have so many friends with this horrible disease. I don't have any family with it (I have a very large family), so I'm not sure if I even carry the trait.
Go do the test and always insist that any of your wannabe husband take the test too , to ascertain whether your genotypes are compatible.
My dad just passed away from sickle cell, a day after my birthday, on thanksgiving night. The struggles that they deal with is truly heart wrenching. Fortunately, my dad lived to be 55 years old, a week shy away from his 56th. 🙏🏾 to anyone that’s dealing with this.
You stole this comment from someone in Inside Edition
@@The_Average_Ragebait_Borutard What? You sound stupid.
i have sickle cell anemia and it really does suck, you cant do the same things that your friends do and sometime it makes you feel left out and you just feel like you cant have fun because eventually it will end up causing pain.
I have Sickle Cell as well, Im 25 years old. I get Blood Transfusions every 3 weeks to prevent strokes and to help me with my crisises. The pain is very painful, I cant even describe what it's like. Thats how painful a crisis is, I also have to take a lot of pain meds to help me with the pain. I take Oxycodone, Morphine and Motrin, when Im in the hospital or ER they give me Dilaudid through the IV.
I'm glad to hear that you are doing good. I to have sickle cell disease and take HYDROXYUREA. I have been trying to remain crisis free for at least one full year, but unfortunately I haven't been able to obtain that goal.
I have sickle cell as well, the treatments I have are blood transfusions every 6 weeks and Hydrea capsules (three 500mg tablets a night). I havent had a sickle crisis (pain) since late 2011. Please ask your doctor about these tablets because they help alot. I am still tired alot but better than being in pain.
I'm sickle cell, I'm 27 yrs old and I'm so tired. I'm tired of life because I live in a third world country, no jobs, no govt support, no family.
Today, I'm having my crisis,, I can't go to the hospital, I can't see a doctor, all I can do is take my painkillers ( mostly don't work), drink water and wait. It's hell for me on earth, I want to take my life cos it will give me the rest I truly deserve but my question is, if I take my life, would I still go to another hell?
my two siblings have this disease ,...i really feel bad when i see them when in pain.God should see them through.
I almost had a stroke and my pains are so bad and I used to think why me because my brother is the most healthiest person I know and people pick on me for being short and flat but my bestfriend encourages me and sometimes I give up and want to kill myself but the lord is with me. Plus I have asthma and I was premature
caroline ferdinand I'm sorry, that sucks! Life is worth living, there is more good in life for you!
caroline ferdinand, I think we’re basically the same person lol. I have sickle cell too, my brother is 17 and has only been sick like once, and everyone makes comments about how flat I am.
And I have asthma
Tumeric root and lots of organic non-gmo green juice daily!!!!
@@sleepytimesoundsnightnight and don't forget the healthy chemo and that is green, black and white tea. Then there's Rooibos tea highest antioxidant above mentioned. Then don't forget your algaes - spirulina which has just about all the nutrition except B12 which is fake B12. Then chlorophyll, wheatgrass, etc. All this will oxygenate the blood and filter out unwanted contaminations from all around the environment. Just watching GNTV about it and a doctor has said the best two treatments are Hydroxycarbamide sometimes known as hydroxyurea. It's a cancer drug but the benefits for sickle cell are positive. Then of course the other treatment is regular blood transfusions depending on the severity a program.
I have sickle cell and had a silent stroke when I was nine and I've been getting blood transfusions since then and I'm 26 now my older sister died from complications from this disease that had we had better doctors she wouldn't have died because of their negligence, and the sad part is I've always had more problems than her . I wish we had more resources and research for this disease
I know of an herbal doctor that specialize in curing sickle cell anemia patient
That was good insight into the life of a sickle cell patient. Though, one correction needs to be made. She was not getting a blood transfusion. She was, however, getting a red cell exchange. That's a minor detail, but there is a difference between the two.
am an SS ...pain is small compare to what we face, its something we can't take away,am 21 now but still pains get worse..thanks to my mum and dad for taking care of me, we don't need pity because it makes us weaker , we are just like everybody else only abit weak different doesn't mean weak,my frnds says I have the strongest of heart, here in Nigeria they some blv if u have a child born of ss you shldnt spend much on the child because she wld die soon
Alex.....am saying a big Thank you to ur mum and dad for keeping u safe..because blood has made us sisters
We Are stronger than the strongest.. keep fighting baby
that is one battle u have to win all the time#love you#
Never give up ,just tell your mind each and every day you gonna be alive
I have Sickle Cell too and this really bothers me. I can really relate to what the young lady in this video was going through and how she felt about her case of sickle cell.
My bestfriend/sister died with sickle cell anemia and it hurted us really bad. #LONGLIVEMOMMA2
My mom had Sickle cell and she Died :(
I am so sorry it must be hard loving without a mum i have CF and its hard sometimes but my parents always help me through it. Stay strong and never forgot you mum
Forget*
Amal Warsame Well My Mom been died do You have sickle cell I'm only 8
sorry :* im sure she is watching over you
Thanks for you telling me ♥♥♡♣♣♧♧
I’m from Saudi Arabia I was diagnosed with sickle cell unfortunately my first crisis happened to me when I was at 5 and I remember when I went to U.S for studying I got sick there I went to the hospital in Tallahassee memorial hospital I still remember that place and Remember the people up there in the hospital thinks that I’m joking when I said to them it was funny because they think I’m African but anyway I’m 35 I have wife and beautiful healthy daughter what I want to say life is beautiful but for us we need to be more careful about our health like drinking water all the time more than normal people eat healthy food get your self enough sleep cover your self with heavy clothes in cold weather
I have sickle cell trait.
RobinSanic me too
Same
I have trait and I have severe pain and sometimes crisis pain. We need to educate that the trait is not just a carrier.
RobinSanic me too
is it different from sickle cell anemia
I'm 24 with scd I've had both my right hip and shoulder replaced all in this year
why
SlimGoodie TheGreat I have Avascular Necrosis also but I’m afraid to do the hip replacement.. how was it ?
Shamara Fuller it was great actually healed really good was up and walking 3 days later way better than the shoulder
I feel like I’m in the right place to express my feelings I’m 21 old scd warrior but since i was
A child things was too hard i barely get treatment and medication but I believe that God is the only One who protected me now I’m 21 and I’ll keep pushing forward. ❤love to all scd warriors
YESSS!!! IT IS PAINFUL. I have Sickle Cell Disease as well. I try not to let it get me down but its hard sometimes. I'm 25 yr old old. I got my LPN. Im going further I want to get the WORD out. If ppl are interested please get in contact with me. I am a speaker so so about it. I just want ppl to be aware. Be bless yall. Lets stick together like our cells so..
Stay strong, and I wish You and your children the very best there is still hope for your family.!!!!
Who else is here 10 years later
I had a little blister on my mouth which I thought it was just normal, until my doctor told me it was herpes and it has no medical cure, I decided to try out natural stuff by giving a try to DR Rorpopor Herbal on TH-cam am so glad that I was able to heal my herpes blister with his product. Is very infective and active 💯 contact him on WhatsApp or his TH-cam
I'm from India and i am suffering from Sickle cell, I was just 7 year old when my family knew about my disease, and I'm now 17. I can't explain in words about the pain when this happens. Nobody can feel the pain untill someone get suffered by this. I pray to God that no one get suffered by this. Doctor suggest me to take medicine lifetime, and one think the doctor said me especially that I can't do exercise, can't lift heavy things because hard work can cause more pain and you have to admit in hospital, if you will not get admitted then the death is near. Whenever I have pain I feel that someone Drop the Big Truck on my hand and leg.
Allah aasani kare
I'm watching this in the hospital right now to see others like me so I know I'm not alone.
I hope your ok
Am also a patients who lives in Ghana..but seeing Alexander going through all this is not easy.. for us here in Ghana we may not even know that stroke is coming cos we all can't afford brain scan.
The only thing i do is to take my medication, do some good exercise, go for check up n drink a lot of water..
i must say i don't remember the last time i had a blood transfusion.
I believe God is in Control..
Hope u are really fine...yr message has been here over 10years now.
Love this video I'm going show my friend girl this tomorrow
Well,I can say this if your kids have sickle cell disease that means you and your childrens father have sickle cell trait(SCT)/and or sickle cell disease(SCD) aswell.I just want to say that there is still hope for you and your kids.Do your research on sickle cell and talk to your kids let them know that even though they may have struggles they can still overcome with help treatment and guidance.Also I would say Pray,I do believe that Prayer changes things.I hope and pray for you and your family.
My sincerest wishes for all those who are suffering because of this disorder. God is with you!
I’m 17 years old with the full blown sickle cell but hardly get sickle cell Crisis god blessed me.
Just had a 15 year old friend die from a stroke last night, caused by sickle cell. So sad:(
Sorry 😔😔😔😔
I'm with you...buddy...i hope you will get better..i'm kinda having that thing tooo...! :(
Stay strong Alex lord is your strength
Sickle Cell Anemia is primarily found in people from the tropics, especially around the Congo area because it's a human adaptation to Malaria. The parasite has a harder time attacking Sickle shaped cells, but unfortunately this human adaptation hasn't had enough time for the body to adapt to it and so the individual with this will die a horrible death.
But it should be said that without modern medicine you would live a longer life in the Congo with Sickle cell than without it because of having more immunity to Malaria.
That's how bad Malaria is.
I Have Sickle Cell Anemia And it’s so hard for me I’m 14 years old and was diagnosed when I was 14 I get so scared when I watch videos bc I hear or see what I don’t wanna so yeah I’ve never had a stroke thank god I only get pain mostly when I’m playing in the cold or swimming in cold water it’s always to do with the cold and I’m struggling to gain weight
I was diagnosed when I was 6 months I meant to say
How is annual brain scans good?
My son is five they say he have Sickle Cell Disease. He had no crisis's. The doctor told me he had the worse causes of sickle cell Disease. When he was one he would be very sick. I reject every bad report. I only believe the report of the Lord. My son is healthy. Just turn five over the weekend. I gave a testimony on my channel. To show of God goodness and grace on our life. I feed him healthy, I pray and I fast.
I had a little blister on my mouth which I thought it was just normal, until my doctor told me it was herpes and it has no medical cure, I decided to try out natural stuff by giving a try to DR Rorpopor Herbal on TH-cam am so glad that I was able to heal my herpes blister with his product. Is very infective and active 💯 contact him on WhatsApp or his TH-cam