Hallelujah! A Consultant who really understands PoTS, hEDS and MCAS!! I’m 74 and have these awful syndromes, which have worsened as I’ve got older - needless to say, my quality of life is zero. I’d be so grateful for as many videos as you like to make on this subject, and help with what I could take (or not) for them, especially MCAS. Thank you, so much, in advance!
Carnivore diet can help with all of them, worth researching. MCAS and POTS have improved so much for me, now I understand exactly what triggers the reactions and can manage them
first things first, famotidine (pepcid ac) and loratidine (claritin) block the histamine receptors ASAP. run this at a fairly high dose for a month and see how you feel. if better, you're likely having MCAS or server histaminic reactions
Having all these problems for so many years I just realized that after beeing ill with high fever my body feels better for about 2 days. More Energy, less pain etc. I went to my doctor and told him my Observation but he thought I am making things up.
I’m a rarity Dr. Anderson. I actually survived the dissection of my cecum/ileocecal valve when I was 55, and halfway thru an evaluation for EDS 4 in Baltimore. I had horrible POTS (hypovolemia and hyperadrenergic) at the time which was triggered by a shingles shot (tho it took a long time to figure out that was the start). But I never developed mcas. I wear braces all the time and I’m pretty classic. I had to have a hysterectomy very young bc after childbirth my uterus pretty much fell out of me. I also have one of the acute porphyria’s which only got definitively Dxed ten years ago. I wonder if that may have had a protective effect from mcas-though it’s a pretty nasty disease and I’d rather have mcas! But at about the 12 year mark of pots I started to improve. My life was ruined (husband left etc) but I just finally got ahead of the bits and pieces of supplements and diet. I still have a lot of problems but am pretty good at coping. Dealing with the iv fluids shortage now and that’s really really bad.
This is wonderful!!! I just started seeing more MCAS patients and have been in Functional Medicine since COVID. These are truly correlated and I’d love to see more MCAS treatment protocols. One simple treatment I have seen is Singulair; but I also do Ozone therapy, Methylane Blue and High Dose IV Vit C! Thanks for sharing!
I have noticed over the years that when I get exposed to my allergens - like corn derivitives - I often will get Potsy. But otherwise often Pots is not a problem for me if I stay hydrated. Of course I do a lot of walking so I have very strong leg muscles. I do have hEDS and at 52 (almost 53 now) I am still very hypermobile in all of my joints including my feet. Cannot wear normal shoes at all. Can only wear barefoot style shoes! Otherwise a raised heel and the arch support wrecks my feet. But the allergies - MCAS - is my main problem! I am avoiding so many foods + smells and common stuff its crazy. Have the celiac gene AND autism (type 1 aka aspergers) too!
Thanks for the content! Very, very good. Appreciate all the work you are putting into this. I've literally watched over 20 videos on here in the last 2 days and listened while driving. Some of the best explanations I've found on a number of these topics. Thanks!
I just found your channel and subscribed! I live in VA. Can you recommend a functional medicine Dr in VA? Maybe someone who knows about Pots/migraines/disease causing genetic mutations ? Thank you!
I got covid in april 2022 and now is my life bedridden and wheelchair, before i run maraton distans the doctor gave me the diagnos FND but i am not satisfied with that , because this is long covid and pots ,but the doctor want lissen to me because all my tests are fine so I am well he says 😢 ok how I can not walk or stand up without help
My 13 yo I think has this triad -(she has hEDS as do I and she has severe POTS - it's hard to dx MCAS so I'm unsure but it's very likely) where it gets really scary and complicated is when the neck ligaments fail....how do we prevent that?! That seems to happen far too frequently and people need horrid fusions that cost hundreds of thousands of dollars.
Can you make a video on RCPD thanks
Hallelujah! A Consultant who really understands PoTS, hEDS and MCAS!! I’m 74 and have these awful syndromes, which have worsened as I’ve got older - needless to say, my quality of life is zero. I’d be so grateful for as many videos as you like to make on this subject, and help with what I could take (or not) for them, especially MCAS. Thank you, so much, in advance!
Carnivore diet can help with all of them, worth researching. MCAS and POTS have improved so much for me, now I understand exactly what triggers the reactions and can manage them
first things first, famotidine (pepcid ac) and loratidine (claritin) block the histamine receptors ASAP. run this at a fairly high dose for a month and see how you feel. if better, you're likely having MCAS or server histaminic reactions
Could you do a video, if you haven't already, going into more detail about how MCAS affects the parasympathetic nervous system?
Having all these problems for so many years I just realized that after beeing ill with high fever my body feels better for about 2 days. More Energy, less pain etc.
I went to my doctor and told him my Observation but he thought I am making things up.
I’m a rarity Dr. Anderson. I actually survived the dissection of my cecum/ileocecal valve when I was 55, and halfway thru an evaluation for EDS 4 in Baltimore. I had horrible POTS (hypovolemia and hyperadrenergic) at the time which was triggered by a shingles shot (tho it took a long time to figure out that was the start). But I never developed mcas. I wear braces all the time and I’m pretty classic. I had to have a hysterectomy very young bc after childbirth my uterus pretty much fell out of me. I also have one of the acute porphyria’s which only got definitively Dxed ten years ago. I wonder if that may have had a protective effect from mcas-though it’s a pretty nasty disease and I’d rather have mcas! But at about the 12 year mark of pots I started to improve. My life was ruined (husband left etc) but I just finally got ahead of the bits and pieces of supplements and diet. I still have a lot of problems but am pretty good at coping. Dealing with the iv fluids shortage now and that’s really really bad.
This is wonderful!!! I just started seeing more MCAS patients and have been in Functional Medicine since COVID. These are truly correlated and I’d love to see more MCAS treatment protocols. One simple treatment I have seen is Singulair; but I also do Ozone therapy, Methylane Blue and High Dose IV Vit C! Thanks for sharing!
I have noticed over the years that when I get exposed to my allergens - like corn derivitives - I often will get Potsy. But otherwise often Pots is not a problem for me if I stay hydrated. Of course I do a lot of walking so I have very strong leg muscles.
I do have hEDS and at 52 (almost 53 now) I am still very hypermobile in all of my joints including my feet. Cannot wear normal shoes at all. Can only wear barefoot style shoes! Otherwise a raised heel and the arch support wrecks my feet.
But the allergies - MCAS - is my main problem! I am avoiding so many foods + smells and common stuff its crazy. Have the celiac gene AND autism (type 1 aka aspergers) too!
Thanks for the content! Very, very good. Appreciate all the work you are putting into this. I've literally watched over 20 videos on here in the last 2 days and listened while driving. Some of the best explanations I've found on a number of these topics. Thanks!
Dr A - you are just awesome! Is ADHD associated with MCAS? I have both. So just wondering
Histamine will cause brain fog
Quercitin is good for MCAS and B1 good for POTS
Wow. Never knew a condition could make hEDS worse, over time.
I just found your channel and subscribed!
I live in VA. Can you recommend a functional medicine Dr in VA?
Maybe someone who knows about Pots/migraines/disease causing genetic mutations ? Thank you!
Would anti histimines help
Do you think methyl prednisone is a good remedy to help mediate MCAS
I got covid in april 2022 and now is my life bedridden and wheelchair, before i run maraton distans the doctor gave me the diagnos FND but i am not satisfied with that , because this is long covid and pots ,but the doctor want lissen to me because all my tests are fine so I am well he says 😢 ok how I can not walk or stand up without help
Nicotine patches, binder (bentonite) and oolong tea, plasmid curing compounds..
My 13 yo I think has this triad -(she has hEDS as do I and she has severe POTS - it's hard to dx MCAS so I'm unsure but it's very likely) where it gets really scary and complicated is when the neck ligaments fail....how do we prevent that?! That seems to happen far too frequently and people need horrid fusions that cost hundreds of thousands of dollars.
Dr, i tried antihistamines but i am having horrendous digestive problems. I stopped the antihistamines. I don’t know what to do :(
Maybe you're reactive to the fillers. Maybe try antihistamines in liquid form and Cromolyn sodium-but check with your doctor first. Best of luck!❤
Try making Quercitin,.......YT has videos.😊