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HOSPITAL VLOG | going to the emergency room,living with chronic illness !
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- āđāļāļĒāđāļāļĢāđāđāļĄāļ·āđāļ 18 āļ.āļ. 2024
- Hi ! Today i am going to the going to the emergency room and taking you with me on the journey ! I haven't been able to eat for over a month due to medication for intracranial hypertension that have messed up my stomach. So I have to go to the ER to get some help...
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Interacranial hypertension playlist:
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ð·FRENQUENTLY ASKED QUESTIONS
How old I am ? 20 years old
Where I am from ? Switzerland
Why I am in a wheelchair ? my legs are paralyzed from functional neurological disorder
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#emergencyroom #hospital #spoonie
Look after yourself âĪ
Thank you !
Would it be possible to receive nutrition if you had a PIC line or feeding tube and could receive Parenteral nutrition. It's not exactly a fun idea but maybe your energy would be better with good nutrition.
Love the music in your videos.
Both my kids are bilingual French English. Language is such an interesting thing to study. I love finding words in English that originated from the French. My French is a little crazy as I find the grammar a bit tricky especially Les genres, but its mainly because I came to speak French quite late in life. I wish you well and will follow your progress. âĢð
I tried asking for any solution. A feeding tube wasnât really an option because I couldnât even tolerate water and it would have been difficult. But i was a candidate for a pic line I had multiple doctors and nurses who wrote letters to my doctor to say that I would benefit from it but my doctor refused because of the risk. I was supposed to get a referral for to see a anesthesiologist for a pic line but my doctor never did it.
Itâs really cool that youâre kids are bilingual and making some mistakes with grammar isnât that big of a deal with a language as difficult as French
@@hoaslife Thanks for your reply. As far as I know the major risk with a pic line is infection. I learned this from following a blog about a little baby boy receiving treatment for leukaemia, who is now doing really well. (Life with the Bridges.) He had a problem with an infection in his Pic line and was given antibiotics but then it got blocked up and a nurse tried to flush it and baby Ted started hemorrhaging from his Pic line. His mum and dad had been trained what to do and always had a little box with them at all times containing two clamps. They leapt into action and cross clamped the line before the nurse had time to do anything. Unfortunately it did then have to be removed. Their are serious risks. I suppose you have to balance the risks against the benefits. Maybe ask to discuss it with another doctor for a second opinion. âĢð
It still surprises me how in a country like Switzerland doctors are so naive. Anyways, i hope you are feeling better and find a solution. The fact you are taking time to thank people for their orders shows what an amazing person you are. You are very consistent and keep trying besides your everyday difficulties and this is gonna give you only reward! As far as the German language I'm currently B1 and I'm preparing for Goethe exams! It's very challenging not gonna lie!!
Itâs really complicated to navigate the medical system everywhere I think. For my health itâs complicated as always but itâs going in the good direction I would say. I always try to thank people who support me because I am so grateful and itâs the least that I can do!
I wish you all the best for your future German exam itâs really not easy. At the end of my school program I am supposed to be at a B2 level but I wonât have the official exam