My Cancer Diagnosis Came Out of Nowhere! - Tim | Multiple Myeloma | The Patient Story
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- เผยแพร่เมื่อ 13 มิ.ย. 2024
- Tim's cancer diagnosis came out of nowhere. When he started to have stomach pain though, Tim went to the emergency room. They discovered large gallstones that led to a severe gallbladder infection. While they were testing Tim to see what might be wrong with him, they suspected he also had multiple myeloma. This came as a shock to Tim as he felt asymptomatic aside from the stomach pain. A bone marrow biopsy confirmed Tim's diagnosis, and he started treatment right away.
In this cancer vlog, Tim describes the shock of his cancer diagnosis, the details of his stem cell transplant, and how he is living his life with multiple myeloma.
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #multiplemyeloma #mmsm #stemcelltransplant #chemotherapy #chemotherapysideeffects
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[Video Chapters]
00:00 Who I Am
00:38 I felt like I was asymptomatic
02:15 Through tests for my gallbladder, they suspected I had multiple myeloma
03:02 A bone marrow biopsy confirmed my diagnosis
04:21 Processing my diagnosis
05:43 My treatment plan
07:30 Describing a stem cell transplant
09:30 Post stem cell transplant
10:11 Eating healthy
10:59 My current maintenance program
14:00 My mindset
15:30 Staying active when doing treatments
17:02 My biggest advice
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The interview has only been edited for clarity. The interview has only been edited for clarity.
My Cancer Diagnosis Came Out of Nowhere! - Tim | Multiple Myeloma | The Patient Story
• My Cancer Diagnosis Ca...
I was diagnosed with multiple myloma, in 2005 i m still here, you will be fine.
My neighbor in his 80's has survived almost 20 years with multiple myeloma! I hope that this patient also has a long survivorship.
It is important that we be there as much as we can for anyone who is facing scary diagnosis and try to understand suffering comes with so many diagnosis , Cancer, Celiac , Diabetes, heart issues. stop blaming people for illness just if you see them eating a candy or chocolate bar, carrots and lettuce and people doing all the right diets still suffer disease , just love one another as best we can , my nanny was always showing up for people and she was suffering herself, we all know just how much now , she didn't talk about her pain and limitations but was baking and visiting and knitting and living outside of her pain in Service to Humanity. Love is the best Medicine.
@@powerofloveismI agree…. Vegans get cancer, babies get cancer, its not always about diet! My cancer is genetic no diet was going to stop it.
@@powerofloveism love your post. ❤
Did your neighbor have treatment?
@@conniebaker1958how else would they survive it....?
Regarding mortality I often think of healthy young men in their late teens and a bit older who lost their lives in military conflicts so making it to 60 and older is a gift. I have tried to simplify my life and relax as much as possible. Finding pleasure with a reasonable trip and gardening around home. I don't socialize like I used to and having people over for dinner became cumbersome, expensive and monotonous. Don't do as many eat outs either. Restaurants have become outlandishly expensive and quality control in the kitchen is sketchy. Waking up and looking out at the beautiful trees around my house and watching people jog by are precious to me. I enjoy little things now. Feeling up to cutting my lawn, smelling the fresh grass, working up a touch of a sweat. These are the things I love. Talking with my son about his work and ambitions and helping my wife cook a nice dinner are so special to me.
P⁰0
I can fully relate to your story. Two years ago I was 54 years old, in excellent health and had never spent a night in a hospital except the day I was born. Then Multiple Myeloma broke my T-9 vertebra, I had never felt so much pain ever. Once they ran tests I was diagnosed, with a cancer I had never heard of. The nurse came to me with tears welling up in her eyes, so I knew it was bad but had no clue what Multiple Myeloma was until later. I had to do radiation to shrink the cancer that broke my T-9 vertebra from the inside out, the bone pieces were pressing into my spinal cord. After going through that and ringing the bell, we did the stem cell transplant at UCSD in La Jolla, CA. They took a second set of stem cells during aphresis so I'd have them at the University for whenever I needed a second transplant. They said around five years after the first transplant. I have done all of the same treatments you have, Revlemid, Dex, Velcade etc etc. Unfortunately my numbers shot up just four months after the transplant, so basically the transplant failed. We're two years in now and still doing treatments, back to "stable" but know the numbers will climb again eventually. All we can do is FIGHT IT💪
Chris Beat cancer approach?
I've been disabled since 2015 with two autoimmune diseases and other diagnosis. It changes you. You learn to give up or change your food choices, push yourself to move, and to deal with it all in the most positive way possible. Up and down. I've thought many times, "wow, I'm not very good at that." I couldn't have done it without God. Just being honest. I've gotten much closer to Him. I'm 66 and who knows? I'm going to become a grandma for the first time in November. That's pretty wild. LOL. Blessings to you and yours.
My friend has MM and diagnosed 7 years ago. Had stem cell transplant and dping very well and remains cancer free. Treatment has come a long way. Prayers for you. ❤🙏🙏🙏
How blessed you were to have had that gallbladder attack…it saved your life.
My brother was also diagnosed the summer of 2022 with MM. He got the diagnosis while in the hospital on his 65th birthday. He was experiencing horrible back pain…and that’s when it started. He’s also doing well. Prayers for you both.
My dad got diagnosed with MM in June of '23, he's had 7 rounds of revlimid & chemo shots & was deemed in deep remission by March of '24 then in April of '24 he had his stem cell transplant & is now at home resting & recuperating & regenerating his new stem cells. So far he's only had diarrhea & constipation & is always sleepy. Anyway positive vibes sent to this gentleman & his family!
Kind of a blessing that your gallbladder shot craps. If that had not happened they may not have caught your cancer in time to save your life. God is so good!
I don’t understand how “ God is good” for the gallbladder part to alert Tim about the cancer. Doesn’t it make more sense to just not give him the cancer? That seems a lot more straightforward.
You're a handsome dude. This stem cell transplant stuff is a great thing and I wouldn't be surprised if you live a long and healthy life because of it. Be well Tim.
He is handsome
I've been fighting Multiple Myeloma for over 12 years, I'm getting ready to have a Car-T cell transplant.
God bless you, this is a tough cancer!
God bless you 🙏 you have got this lady ❤
@@stavroulapsiharis8357 Thank you!
Multiple Myeloma is a beast. I'm so sorry you're having to experience it. We weren't so lucky.
My oldest brother had MM, and I was diagnosed with light chain high risk MGUS in 2022. I wish medical personnel would STOP putting an expiration date on people's lives like we're a hunk of sharp Cheddar! They told my brother 3-5 years back in 2001, he lived till 2013 but died from an abdominal aneurysm. With all the research and new treatments for MM, things have changed over the years! Thank you for sharing your inspiring and informative story! I pray you have a very long life in remission! 🕊🙏❤🕯
I think most people see other people's diagnosis and think it can't happen to them .... until it does. Just a reminder to never take each day for granted and don't stress about the small stuff (just about everything is small stuff in the big picture!)
Amen
My brother died in 1990 at 54 with MM. He was 6’6” and 350 lbs and claustrophobic so they couldn’t do MRI. He bent over to get a drink from
a water fountain and could not straighten up. By this time, it was stage 4 and not much they could do. He live only a couple of months. Dr said his back pain was an indication and no one would sedate him for MRI. Very sad loss. So glad yours was found early and pray you live a long and happy life.
That's awful, I've never had an MRI without sedation, I'm horribly claustrophobic
There's an open MRI now, so you are not enclosed.
Its sad the couldn't give him something to relax him wouldn't need to be fully sedated?
It's quite surprising how often both chronic and acute back pain proceed a cancer diagnosis. BEST WISHES.
My wife has MM. i feel for you and i understand what you’re going through. The hope is that they come out with long term treatments in time. In time to save my wife, you and so many others. Hang in there Sir and don’t give up.
Yes, I was also at a teaching hospital. I was diagnosed with MM Nov 2023. One of the residents said I had five years. Then the supervisor doctor said decades. I fell apart in front of all of them.
I am so sorry you are dealing with that awful disease. I lost my brother in law to MM after 8 years of fighting. I hope the remainder of your years bring you love, joy and happiness and no pain.
I am now fighting ocular melanoma.
Cancer sucks.
Sending love and light
😢😮 l'ma so sorry for you loss! Prayers going up for you and your family. May your bro R.I.P. 🙏🕊💐 I'ma fighting the big CA since 2021 but l'ma never worry over small things. My time with my daughter and granbabies and cats is mad precious and l'ma not let the big CA let me down. I'ma live ever day to the full! 👍😊🫂
Sending positive vibes and prayers your way! 🙏👍😊😊🫂❤️💙💛
🙏🏼 a little prayer is coming your way from the desert in Scottsdale, Arizona🌵.
Bless you
Two years since being diagnosed with MM. Had all of the treatments, 2 high doses of chemo and 2 SCT. Doing ok, feel quite good. On maintenance Lenalidomide now. God bless all who are suffereing, my honest love too xxx
Prayers sent stay strong. My cousin had his stem cell transplant his is doing great now good luck 🍀 ❤
Sorry to say Tim but thank goodness for the gall bladder problem you found the other one prayers and blessings to you ❤❤❤🙏
Thank you Tim for sharing the most poignant details of your experiences. It is so very helpful to all of us who are dealing with serious medical issues and that we are not alone. You seem like an incredibly wonderful and beautiful person. I hope you have more good days than bad in your future. Like yourself I am a hip and young 61 year old male and in the past three years I have been dealing with prostate issues, kidney and bladder stones, and a host of age related matters. I try to remain positive and think about maximizing what time I have left. Keep well my brother.
You look much younger now so whatever your doing keep at it. Plus I hate when they say this will kill you eventually. That's BS. I knew people with cancer that died totally random from something else. We all go eventually, ironically it's a part of life. Enjoy your time together.
You know you work your whole life, raise your kids, get ready to retire, and shit goes wrong. My best friend, who's a nurse, said she sees people approaching 70 diseases start to happen. I guess our bodies aren't designed to live super long.
Yes. My uncle retired after 35 years of sitting in a bank. He played golf once and had about 6 weeks of "retirement". His back started hurting so badly he went to the ER. Multiple Myeloma. He lived 2 years. If you want to do something, by God, do it. We don't know how much time we have.
We are designed to live to 120 years or even longer but majority of population will never reach that point due to various factors. Primary reason is incorrect and unhealthy diet. Basically food we eat shortens our lives.
We evolved to now live even as long as 100 or so. Few make it to that age, and even fewer get very old without having at least one major physical problem. But life expectancy has certainly increased, for myriad reasons.
I have MGUS, it’s very scary! God bless you!❤️🙏🏻🇺🇸🇦🇷
I have light chain high risk MGUS. I pray yours never progresses! 🕊🙏❤🕯
Talk about a fighter and finding the positive. Thank you for sharing your story. I hope you win this battle for many, many years.
I'm so grateful to have come your "Voice" you are so 💗 love of life, you show strength even though yu don't feel like it.
I Absolutely live YOU!
My brother has Multiple Myeloma but hasn’t had treatment and it’s 6 yrs now he is not a well man at all has blood tests all the time but still holding out. He has been told it will get him
Stay strong brother 🙏🏼🙏🏼🙏🏼
Sorry to hear this. I have CLL but being tested for Mml. Bone marrow biopsy soon for me, my protein levels shot up. Wishing you full recovery.
I wish you well and many more years on this planet. Glad your cancer was caught early. Mine was too but i wasted 3 years dealing with an oncologist who was out of her depth. I needed a specialist. Luckily I found one and am now getting heavy duty treatment to kick this. Vukvar cancer that has spread to my groin and lymph nodes. Keeping positive and working on keeping my strength up😊
My mother died in 2011 of the disease of Kahler also multiple myeloma.
She propably had the disease for over 20 years in her blood.
I wish you all the best! And check your kidness often.
Peoples strength amazes me. Having family , friends and a good support system makes all the difference. A positive outlook and good diet. I fear a diagnosis like this and wouldn’t be able to fight much honestly. I have no family and only a few friends. As I get older my circle keeps getting smaller and soon I’ll have literally no one. Most of the people I love have already passed away. That drives my health anxiety even more.
How right you are. I have the same concerns. Having recently lost a parent and with my remaining family not reliable, I don't know that I'd have the fight in me. Friends are hard to come by, the genuine kind. I'll get myself an android when they're readily available, for company and to help. Maybe that will be the answer soon.
@@diorrybak335I didn’t think of that option. I have cats and a dog to keep me company but they couldn’t do much if I were very sick. I worry about what would happen to them. No one seems to care really. Very sad.
A lot of good info and advice while at the same time sharing a deeply personal matter. Thank you.
I just watched your post. I was dx w/ MM 3 summers ago. I have a very rare autoimmune 5 yrs ago, diffuse systemic scleroderma and there is no cure for this so when I was dx w/ the MM 3 yrs ago I declined treatment/bone marrow bx as I am not going to treat it. I remain as MGUS but my IGg numbers change often. I am not a candidate for a stem cell transplant and w/ me goint to be turning 70 in a few months I don't have the desire. You look like you are doing well with this disease. I wish you only the very best on your journey.
I am 33 and have autoimmune also, and an M spike which my doctor says is probably MGUS but we don’t know until we see the haematologist (18 month wait). Do you have MGUS or MM? I just got told my thyroid cancer is incurable so to have two incurable cancers for the rest of my life, along with autoimmune, other chronic illnesses and disabilities, its a lot to process. I am sorry about what you are going through and wish you all the best!
@@iSheree I am MGUS my lab # go u and down so I am seen at my cancer center every 12 weeks to check my labs. I am not going to treat this if it goes into full blown MM.
@@laurawilliams5363 if I was your age, I wouldn’t bother either. Quality over quantity. I am 33 so I think I would feel obligated to. I am an only child and don’t want to put my mum through losing her only child. 💔
@@iSheree I understand your position and if I was your age my decision could be different. I wish only the best for you.
@@laurawilliams5363 thank you. All the best to you too. ❤️
I’m glad you getting better,God bless you always 🙏🏼.
So many get diagnosed in the ER. My friend had pneumonia. They came back told her to go see oncologist. Holes in her bones on xray. Yup MM. Fall of 2016. She did her transplant fall 2017. She with us.
Greetings from Vineland, New Jersey. I really appreciate your testimony. It helps me understand how fragile life is. We need to cherish each moment, each day. Take care and continue doing what is best for you.
Good looking 60! Glad your doing well.
I am so sorry. Best wishes for strength and healing ❤️
God bless you & keep you strong 🙏
Thanks for sharing your story with us, wish u health and happiness ❤
Thank you for sharing your story, your strength and hope with us. Wishing you and your family many joyful years together! 🙏❤️🦋🌈
I wish you the best to you and your family. Keep talking about how you feel, that will make you feel better. God bless you.
The oncologist never really explained what my husband’s stage 4 meant. When I asked if he should be on hospice they did he was to young however he died 13 months later but all s as long we were in the dark
Join the club. I have MM and will be 3years this coming September in remission. I take revlimid for 3 weeks and 1 week off and I have a good life. My cell transplant seems ages ago now and I just get on with my life as I know you will too.
Very educational. I follow all developments re MM . Thank you! RESPECT! Yes it can be managed! And you're ALL managing it! It's good you have the stamina for the transplants. Let every day create itself! You are a very plucky guy..well supported. I wish you well.
Sir, I hope God blesses you with as long a life as possible.
This sounds like me, no symptoms other than back pain. I'm high risk. I'm 53 and start chemo on Wednesday.
Prayers for you
May Allah grant you health and cure and full recovery, and shine your way and guide you to the right path ❤❤❤
My younger brother and a cousin on my dad's side both have a MM diagnosis.
Praying you have 25 years left 🤞
Hang in there champ your families love will help you through it👍
whishing you health and healing.
Thank you ,wishing you the very best
My sister was just diagnosed a second time with breast cancer. She had her plastic surgery reconstructive surgery to find out she has breast cancer again. She had zero symptoms this time.
Me too diagnosed this year
Thank you for sharing your journey; may the Lord Jesus bless you with continued healing and health. I also have multiple myeloma and can relate to everything you spoke about. Having MMbid the most frightening, painful and stressful thing I've had to deal with. It has completely turned my life upside/down. But we must fight on.
🌷🙏 That you just keep getting better. Keep positive thoughts
🙏 ❤️ 🙏
For You
Always & Forever
Great ideas ❤
Thank Goodness you are doing well! I found Shane Clark’s story on his Channel very interesting out come.
Best wishes from Jacksonville, Florida.😊
Bless you
Just out of curiosity did you take the clot shots. "Turbo" cancers are on a HUGE rise for those that did. Life insurance actuaries tell the story.
Sounds like he has the same program that I'm going through right now. I've already been through radiation and am continuing with chemo. It started with a huge shock to my wife and I. I was upset at first, but what can I do about it. Stem cells are next. Praying for all.
My Dad had this and did well for many years. He died from a stroke not MM.
My father had also MM and died from pneumonia from the flu.I think my brother had infected them but not sure. . My father was admitted to the hospital in 2022 October 18, where they for saw he had bone marrow cancer, he also had very bad lungs. He was there for 18 then 6 days and then 8 days. He was also there for the last 8 days of last year and on the 23rd he had to go to oncology, where they measured a trace of Corona and he had to stay with that, that trace turned out to be false, so no Corona. My brother and I were there on Monday and my brother was not really ill, but he had a starting cold and was it the flu, I don't know, he had a sore throat and I didn't know that, but he was wearing a face mask. On Thursday my father got the flu, and on Saturday he passed away. I think it is my brother's fault that he passed away. I no longer have a lasting life. Sometimes I want to die myself and I wouldn't wake up. When I talk about it I cry and can't think of anything else.
❤ from West Virginia
Hallelujah!!! I’m the favorite, $60,000 every week! Now I can afford anything and also support the work of God and the church.
Oh really? Tell me more! Always interested in hearing stories of successes.
This is what Ana Graciela Blackwelder does, she has changed my life.
After raising up to 60k trading with her, I bought a new house and car here in the US and also paid for my son’s (Oscar) surgery. Glory to God.shalom.
I know Ana Graciela Blackwelder, and I have also had success...
@@LalataSalteAbsolutely! I have heard stories of people who started with little or no knowledge but managed to emerge victorious thanks to Ana Graciela Blackwelder.
MIND/BODY/SPIRIT...GOD BLESS
My uncle and brother died of the same disease
Curious about Trtmt COST...Insurance Coverage or Medicare???
Any particular challenges with payment for care???
Years of back pain was probably the warning sign.
Safe and effective?
I know someone who had a sore on his toe in August 2015 by 2016 feb he was dead. He had the same thing
❤🙏🏻
Look into the Joe Tippens protocol
You're story is the same as mine.
💕💐💐💐💕
Did you get the jab ? Just curious because cancer rates are up 300 % in people who did.
Wishing you a full recovery. Vitamin D3 1100 IU up to 5000 IU + Magnesium helps with existing cancer and prevents several types of cancer but only when taken on a daily basis. If not on a daily basis the effect drops from 60 - 77% prevention to only 12%. Aspirin reduces the onset of cancer by several percent but not sure about what it does when cancer already exists. You need a keto diet because cancer in most cases feeds on sugar in a primitive energy production process that does not use oxygen. So you need to avoid simple carbs. Fortify your immune system with 1 bell pepper a day and a spoon of olive oil. Turmeric also helps with cancer although it is mostly a weak preventive substance. Pectin helps in colorectal cancer, not sure about myeloma. Taking sugar free anti-inflammatory pectin, e.g. Luden's sugar free lozenges may help too. It is a molecule that seems to fool the Warburg effect cancer cells. There are theories but nobody knows why it works. Pectin competes with sugar so it is best with low carbs and no sugar.
Vaxxed?
Did you get the Covid 19 MRNA shot before your illness? I lost 3 cousins due to those jabs. Strokes, heart failure, blood clots and fast moving sudden cancers are being reported worldwide wide in young and old.
Correlation is not cause.
Please no more mrna vaxes and boosters. They increase IgG4 antibodies and change the immune system to not be as able to detect and destroy cancer cells. They negatively affect tumor suppressor genes and promote very aggressive cancer in addition to other bad things.
@@Ceeradsman your a genius regurgitating an empty slogan
@@RustyShakleford1 You want to believe that the vax causes illness, feel free. I want to indicate that just because someone gets ill or dies after taking the vax doesn’t prove that the vax caused that illness or death. After all, those same people also probably had bread. Maybe bread caused the illness? And I’d love it if these conspiracy-minded people would refrain from asking if the “jab” - that word! 🤮 - caused the person’s cancer. Let’s read some science. Oh - and it’s “your,” not “you’re,” when it’s possessive.
@@RustyShakleford1
No, YOU are!
Vaccine injury
Jesus Christ is the Savior and once you're saved, he answers prayers. Cancer is a demon.
Did you take the jab?
You say that like people never got cancer before covid. 💀 I am unvaccinated and I have thyroid cancer and possible multiple myeloma or at least MGUS. People have asked me if I took the jab, or straight up say that it must be the jab! So embarrassing.
@@iShereeGood point, although I do wonder if it speeds things along at all once you have it.
@@5Gburn my cancer is aggressive and I never had the jab or even covid. While I do believe that cancer rates have risen since covid, it could be for a large number of reasons. I believe the stress of the lockdowns caused mine to speed up. It is meant to be a very slow growing cancer, like 20 years to get to the growth I had before surgery and treatment. I had nothing there in 2019 and then in 2021-2022 (during and after Melbourne lockdowns) it was growing rapidly until I got a doctor who finally listened to me in early 2023 last year. It is meant to be a very slow growing cancer with a very high cure rate. Unfortunately for me, its incurable now.
@@iShereeI don’t know if you have seen Joe Platters channel but his thyroid cancer journey might be interesting for you to follow along. I watch his channel often. Good luck with your treatments x
@@leo0986 yes! He died the day I had my first thyroid cancer surgery. Interesting you mentioned him I didn’t even say I have thyroid cancer. ❤️ thank you xx