Stanford Rheumatologist SCLERODERMA Physical Exam
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- เผยแพร่เมื่อ 10 ก.พ. 2025
- Dr. Chung is a Professor of Medicine (Immunology and Rheumatology) and Dermatology at Stanford University, where she developed the Stanford Scleroderma Program, aimed at providing comprehensive care, maintaining a clinical database for research, and conducting clinical trials for systemic sclerosis (SSc) treatments. In this video, she will be instructing healthcare learners on how to perform the physical exam for a scleroderma patient. Thank you so much for our patient "RB."
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In addition, thank you to CSRP Funding for assisting the creation of this video.
This video was produced, filmed and edited by Aaron Frank, MD and Errol Ozdalga, MD.
Thank you all for the support.
Stanford Medicine 25 team
0:03 Introduction
1:00 Limited vs Systemic Sclerosis
1:56 Classification Criteria
2:29 Skin Physical Examination
3:18 Sclerodactyly
5:02 Digital Pitting Scars
5:36 Telangiectasias
Big thank you to the team. And bigger thank you to the patient for being such a patient teacher of doctors
Interesting, thank you. My Mom died from complications of scleroderma at age 71 in 2001. She had been diagnosed at age 50, though symptoms began 10 years prior and it took that long and many doctors to get a proper diagnosis, because doctors didn't really know much about it back then. Even 21 years later when she began having breathing problems, the doctors couldn't figure out why. After months of this, I happened to read an article in Parade magazine about pulmonary hypertension, and the list of people most at risk included people with autoimmune diseases like scleroderma. I cut out the article and gave it to Mom and told her to show the doctor. Well she did, and I was right, and she was immediately admitted to the hospital and they performed a procedure right in her hospital bed to siphon the water from around her heart with a big needle, but they accidentally nicked her heart (a "known complication" they said, so then why do it in her room?) and she went into cardiac arrest and had to have emergency open heart surgery. It was successful, but she never made it home again and died 6 weeks later as her organs shut down. It wasn't until after she was gone that I learned from the internet (something Mom didn't have access to, she relied on doctors) that progress had been made in the treatment of scleroderma in those couple decades and there were new medications she could have tried. Losing her was very hard on me, and I still have anger toward the doctors and system that failed her, as well as anger at myself for not researching it myself sooner. I was just relying on the doctors like Mom was, too caught up in my own life to think to question things, but I should have known better and been on top of it. Incidentally, during those decades, she got the most relief when she was going to a homeopathic doctor (in addition to her other MDs). He wasn't even familiar with scleroderma before that... he said looking at her symptoms (like painful finger sores that wouldn't heal) he was inclined to treat it one way (probably something to boost her immune system), but after reading up on scleroderma he realized he needed to approach it another way (probably something to suppress her immune system, being it's an autoimmune disease). He'd give her something to either drink or eat, I forget which... he told her its technical name, and then said wanna know what it really is - charred ox hide, lol... and that one dose would last a couple months. She had to avoid mint altogether, which is otherwise good for you, however it would cancel the effect of the "medicine". He'd send her home with an extra dose, incase she accidentally ingested mint, which is easy to do. I know this all sounds crazy, lol... but Mom was definitely doing better when she was being treated by him, and she attributed that to how she lasted as many years as she did. Btw, he was an actual MD, but he had done his residency (or whatever) with a homeopathic doctor in England, and he said he started out skeptical, but by the end he was a believer. I'm just sharing Mom's experience, incase you would have any insight as to why that particular treatment might have helped...? Another note... she once took some Echinacea and woke up in the morning with a rash on her lower legs, I assume because you don't want to boost the immune system of a person with an autoimmune disease. It's great for some/most people, but not for everyone, and it seems most herbalists don't take that into consideration unless they're well educated. (Sorry for such a long post!)
Thank u 💖
thank you so much ❤
cool video