It's time for neurologists to stop sticking to old paradigms and investigate the non-epileptiform causes of motor seizures. It's an embarassment labelling them psychogenic.
It also might just be a bridge way into a new appreciation for other things deemed “emotionally caused” or “psychogenic” in the sciences as well. This is just one case in a much larger genus of issues caused by the lack of respect for actual human experiences in American academics. Hopefully medicine is able to begin seriously including a patients hermeneutics and experiences in diagnosing a treatment strategy.
I had a neurologist run me through epilepsy testing and as soon as it was determined that my seizures were non-epileptic, he told me I was making them up, they were in my head and to get over it. Since it wasn't epilepsy, he wouldn't help me with any treatment and just told me to see a psychiatrist. He also accused me of not taking them seriously despite the fact I sought him out to help me figure out what was going on. He even stopped seeing me for my migraines. I still have the seizures and the migraines, and just live them them because it's so hard to find a neurologist that will actually listen. It still makes me mad and I hate the episodes.
Yeah. I'm a minor, barely 15 and was diagnosed with these seizures. I have about 5 a day at best and it only took me nearly passing me head open and going completely unresponsive (probably an absent seizure) to be taken series. It's fucking insane
My daughter has an abnormal mass on her brain and she has these seizures and was told she needs to talk to a psychiatrist because it’s stress related seizure disorder so nothings really wrong 😑 CAN YOU IMAGINE THAT????? A trained medical professional saying you’re crazy without using those words and in the same breath saying there’s nothing wrong but there’s something wrong 🤦🏾♀️🤦🏾♀️
@@voranastlin158 I hope you are doing better now! I used to have PNES seizures too however I stopped having them about ten years so they will stop at some point! You may be having PNES seizures and epileptic seizures like I was. I hope you have a good neurologist! Take care!
@@nanny-masway5948 Yes I can believe it! I was diagnosed with epilepsy over 20 years ago then I started having PNES seizures. My neurologist told me I wasn't ''really having seizures and that often when someone finds out they're not having real seizures they go away''. Thankfully mine went away that day however I know this is not usually the case. I hope your daughter is doing better!? Take care!
Human, psychological, suppression and keeping abuse a secret causes the grief to manifest into traumatic seizures from pushing the grief away down deep inside a person. Dying from grief is real people!
The cure for non epileptic seizures is to shift from a sympathetic (fight or flight) to a parasympathetic state . This is best achieved through deep abdominal breathing with prolonged exhales making a deep humming sound in your throat as you exhale. Breathe in and out only through your nose, focusing on your breath and nothing else the whole time. You should feel the back of your throat area vibrating when you exhale making the humming sound. The back of the throat area is the hub of the parasympathetic nervous system and activating it with humming automatically activates the parasympathetic nervous system relaxing your mind and body. Practice this for 20 min in the morning, afternoon and night and your seizure frequency will reduce greatly. Also practice it the moment you feel a seizure coming on and most likely the seizure feeling will go away. Combine this with mindfulness training and learn to live in "day tight" compartments focusing only on the present moment specifically on the task at hand and doing what you enjoy.
I agree! The parasympathic nervous system is incredibly powerful! I've been diagnosed with PNES seizures, epilepsy, bipolar 1, panic attacks, sleep paralysis and night terrors, CPTSD, DID, and ADHD. I've found breathwork, yoga, meditation, exercise, going for long meditative walks in nature, body scans, creative play, good nutrition, and taking supplements have helped me so much I've been able to come off of decades of pharmaceuticals! I hope you are doing well and take care of yourself please! Remember you have the power to heal completely, just as you are!
This makes sense to me as vibration would stimulate the Vagas Nerve Another thing , a somatic therapist or bodyworker would probably work with the motions made during the siezures I have three maybe four we've worked out My right leg kicking out My left arm like doing a triceps kick back and usually accompanied by a left Jenkins motion with my head like I'm trying to look over my shoulder All probably connected to trauma repetitive motions I also used to have tonic flexed stiff frozen and ones that I just dropped to the ground and couldn't move at all I would get an aura or knew that they were getting ready to happen I would try to get to a safe place I haven't had one of those in a year..but they were regular for years
Maybe I’m crazy, but when I have these seizures, it’s like I’ve entered another realm and tuned into another frequency. It’s so wild. I don’t believe that it’s suppressed emotions or whatever they’re trying to sum it up to, I’ve been in therapy for most of my adult life and I’ve worked through my life’s traumas. I truly believe spirits are trying to communicate with me when I’m in that state. 🤷🏼♀️
I feel the same way, like Im transcending the universe. Mine are most likely triggered by stress, but in combination with another factor like not enough sleep, low blood sugar, excessive drinking the night before, or too much caffeine.
@@Simon-qb6zl I don't know but if I had to put a bet on it, in terms of PNES, probably some receptor dysfunction triggered by an immune system response.
Joseph Dalmau is finding shits tons of causes just like this. Hell there was a schizophrenia like disease that had these “psychogenic nonepileptic seizures” and it turns out it was anti bodies acting as channel blockers of NMDA receptor as.
The best way for me to describe my experience is this in the broad scope of things. Imagining hearing one of your parents die and you forcefully deny the emotions and the accounts of the events. Yet your subconscious mind is attacking what feels like your central nervous system. Like a leaky pipe under too much pressure. That's why people need to cry. Putting on a brave face especially when you are by yourself isn't necessarily the healthy approach. Took me along time to learn that my self ego only hurts thy self.
Exceptional video!!! My mom is 73 & is continuing to see doctor are doctor for a medical diagnosis ignoring PTSD. Trauma being stored in the body. Thank you for this!!!
I had a roommate who had these. They were NOT fake. She had been badly gang assaulted (r4pe) and she had these often. At least once a day. So much medicine still doesnt know.... The brain basically shuts itself down, thinking it's re-entering the threat when a memory comes. Sad. I know I'd want a benzo if that was happening to me! Give them the dang treatment....
I am the world’s leading expert on PNES! Exposure therapy is the answer and the cure! I help girls testify against their abuser’s in court and it totally cures the PNES! This is a mental suppression problem that should not be treated with mental suppression drugs! There’s different reasons why people get PNES but there’s also a lot of different types of exposure therapy that really works! When you push problems deep down inside it can manifest itself physically and that is what this is! You need a psychologist, not a psychiatrist or drugs! Let me know if you have any questions!
They DO know, but it's still psychosomatic and NOT neurological. The two are extremely different. If you saw a TRUE seizure, you'd understand. People die from the neurological kind.
@@toeachitsown2050people with PNES have much higher mortality rates. It's psychogenic, but worth considering if there are ways we can destigmatize it and improve treatment outcomes. Australia opened a PNES clinic last year.
I thought I was just having panic attacks maybe I still I do. When an onlooker started to scream that I looked like I was having a seizure I started to have doubts. Also when other people described how their panic attacks were not even near what I experienced I began to suspect something more was going on. Just hearing her saying she felt like ants were crawling on her head knowing that’s exactly how I felt moments before I had an episode is actually scaring me. I’m confused and scared now.
Wow.. I thought I was having panic attacks too or maybe diabetic because it was so odd, I was extremely fatigued, breathing was labored and like…a blasting headache.. not sure what they are yet. Panic attacks feel so different tho. But very similar as they come out of nowhere but I can feel when they’re about to happen
@@Didyouknowthis2 Who exactly do you see for this NVU analysis? Going through this presently and fighting my panics but fight them at night is making me not sleep and having to have to use medication (spinning my mind in circles and frustration, anger and hopelessness)🙏💪
This was me! I ended up having to go get evaluated at a mental hospital. Turns out they weren’t just panic attacks, and it’s so relieving to know. Because you get so confused … why are my panic attacks so different? Why are they so severe?
I have a large history with seizures (temporary paralysis) until this day I did not get any clear answers if it’s epilepsy or psychogenic non-epileptic seizures or panic attacks disorder, the only thing I know is some doctors treat patients like trash in these cases like we’re making it up, I’ve been hospitalized in the ER many times they don’t take their mission seriously.
When my seizures began quickly lead to many ambulance trips to ER following a week in hospital doing the epilepsy screening to be told these psychogenic non epileptic seizures were a result of severe post traumatic stress still took years for me to understand why
My PNES seizures were related to my CPTSD and DID as well however I don't have them anymore and last year actually I integrated my DID. Unfortunately I still have epileptic seizures and CPTSD but I'm happier, healthier, and fully present in my life for the first time ever! I hope you're doing well and take care!☺
I had a seizure while boarding a plane yesterday. It came out of nowhere I had no anxiety or any thoughts, I simply collapsed and was 100% sure I was dying. They told me it was a panic attack without even consulting a neurologist
This is/ was me , I had PNES for years didn’t know what it’s was , I know this is an old post , hopefully someone can read this an get help, I’m a young 67 told woman, I was abused for years as well an Alcoholic in recovery for 35 years,I was in therapy for 9 years my therapist retired. Then I met my previous therapist well psychiatrist , she taught me mindfulness meditation, thinking, it’s like hypnotizing . I took myself to an amazing place where I found comfort. Long story…. They stopped.. ❤ I was amazed that this person in one / two visits helped me that fast . Most likely I wanted them to stop 🛑 I’m grateful!!
You guys are pushing this way to hard. Patients that have had years long documentation of actual Seizures and the cause of those seizures, are being missed diagnosed with this anytime they can’t perform a seizure at a doctors demand. The willingness of the medical community to slap this label on Random epileptics is nothing short of harmful and insulting.
I agree! Whether the seizures are epileptic seizures or PNES seizures(or in my case both) doctors give out medications for both far too much! I'm in the process of weaning off of copious amounts of pharmaceuticals and even though I'm having epileptic seizures again(I stopped having PNES seizures years ago) I'm determined to finding a healthier solution this time! Take care of yourself!
It was the other way around for me. Everyone thought I was epileptic, or even now continue to assume that I am, but it turns out I have PNES. And they ARE real seizures, they just aren’t caused the same way. Speaking from experience. No way they aren’t real.
I’ve had ptsd for over 20 years, a year ago I left my ex and then the seizures started. I had an eeg they are non epileptic but I recently had surgery and 6 nurses witnessed it. I think my ptsd got worse and it caused this.
Sometimes being alone or abandoned from relationships cause a lot of stress and become something of these sorts and people don't understand how severe someone or something is until they experience it themselves.
I just had one now I think. I don't really know, felt like I passed out, and then I sort of came too and all my muscles and jaw are sore. And I've got PTSD really really bad. Thats why I'm here, trying to figure out wtf is going on.
In Australia neurologist doing neuroscience, don't care about the patient's with non epilepsy seizures, 23 years no explanation and a form 174. Mine is due to head truma, so they don't care at all. Within my epilepsy seizures books there's over 2000 seizures recorded, and ambulance service to hospitals for epileptic seizures. The neurologists don't care, why should I.😩 If I fall again onto traintracks it doesn't matter, if I fall in the middle of an intersection, it doesn't matter, if I have another seizure at home 🏡 and I'm unconscious for hours in the shower,it doesn't matter, my life doesn't matter. My GP knows and he looks after me.🙂 Over all my neurologist doesn't care,I don't matter.
I'm so sorry you're going through this! Doctors and neurologists unfortunately have almost no compassion for PNES seizures, trauma, and CPTSD. I think it's due to the fact that they know very little about it and even less about how to heal them! Take care of yourself please!
It's the same with the neurologist I saw for psychogenic seizures, he is on the Gold coast in QLD. Didn't care and on the second and last visit was very rude. These people shouldn't be doctors
Heather Carey Vlogs have you been able to find any help? I have PTSD, DID, Borderline Personality Disorder and I also have non epileptic seizures. I am desperate for help and I cannot find any help
Hey! I have the same diagnosis as you, but I was also diagnosed with Bipolar 1 -- which has been a lifetime struggle with survival and development. I've been seeing a trauma therapist weekly for 6 years to address my symptoms but it's not an easy fix. In the last 7 months, I have had 3 gran-mal seizures with consistent symptoms, however, my neurologist insists on the diagnosis of PNES. There is NO preceding event or conscious warnings of stress. Regarding treatment, I've been taking psychotropic meds and also CBT for over 30 years and it has had no effect in curbing my seizures. If anyone going through the same dilemma, please share with me. Thanks!!
My dad gets these when he sees doctors (not always) I'm guess it's a lot of anxiety. He gets really hot and sweats so so much! Than he goes unconscious and shakes for a bit. When he come back hes very very tired and kinda weak. Still a little sweaty. He talks as if hes waking up from surgery. Within an hour hes good to go besides being just a little tired. Can anyone relate and share their stories. Please and thank you all!
I also get them from panic attacks ,internal tremors ,numbness tingling ,feeling of not being real ,stiff and numb arms ,legs can't even move ,I jerk and convulse ,muscles contracting even inside my abdomen ,feeling tired and wiped out after it's finished ,luckily it doesn't last long ,30 minutes tops
The human body isn’t just a bunch of cells there are many layers to it such as the electrical, etheric , spiritual and stuff u probably haven’t heard of. The disruption or imbalance of one can affect the other. Unfortunately modern medicine doesn’t seem to take these things into consideration .
I'm curious as to how many of us have a history of trauma, I know who doesn't? I have been diagnosed with PNES seizures, epilepsy, bipolar 1 , ADHD, CPTSD, DID, dyslexia, night terrors, and sleep paralysis. I'm not saying that trauma is the cause however it would interesting to look into.
I'm here now cause i just found out my neighbor passed away. I.. was breathing so irregularly I tried breath deep as much as i can. Then my whole body went stiff my hand looked like someone who had a stroke, that i feared for my life. Twice i experienced this in my childhood, and today's the third.
Ive been having what the doctors are calling psychogenic non epileptic seizures. They statted three months ago and i have no idea where they came from. Its scary as hell not having anyome explain to me what this is
I don’t understand how he says they don’t know how it happens then goes on to say its psychogenic , I see a lot of doctors say this including my docs and its happened even when I’ve been happy and least amount of stress. I would like to know how they get a count of patients getting better with therapy and patients without trauma .
Anybody else with anxiety attacks and panic attacks sometimes feel like they're about to have a seizure, but doesn't happen? I feel like a tingly ticklish sensating with my head. I feel jittery and anxious when I feel this telling myself what if it's a seizure but never happens. What is this, is it what the video says?
I get theese kind of attacks. Today when I talked to a person I got an attack and I just walked off because it felt so uncomfortable, I am aware of my surroundings but I still act weird. It feels like everybody is watching me and I feel dumb. I also wake up in middle of night fully awake and my heart is beating
@@maskenmakkan yes, same here as soon as I open my eyes, my heart starts racing. Yesterday I had a massive panic attacks outside while walking. Heart was beating so fast.
I hate seizures I feel dumb when I’m around my friends and at school cuz I have trouble learning unlike everyone in my school who are smarter then me I’m sure. I only try to act “cool” at school bc I think it would be embarrassing if someone saw me and think I’m dumb 😕🥺
@Luke Augustus if it’s not then why does my mom and sisters tease me about it if u have it u should follow me on insta I could use more followers jc_51807
When they say PNES is unknown origin but most have symptoms of complex PTSD . The motions make sense in the light of stress made visible. Each of my sizeure like motions likely make sense in light of things that happened to me. Especially the paralysis in a hyperflexed pose Jerking head looking left over and over I have had very few after a the first year in somatic trauma therapy with acknowledging the motions, moving purposely through those motions like finishing running, Looking left and discussing the PTSD memory
My friend has been seizure free for 2 years.! I am not a a doctor but I was attending college to become a psychologist. I believe that some people do need to see a psychiatrist but not every problem can be solved taking psychiatric drugs. I was raped by my sister for about 10 years when I was just a kid so this is what really makes me more qualified in mental healing!
I was raped by my sister for 10 years as well so I understand what it’s like to push problems deep down inside until it causes more, major problems! I help girls testify against their abuser’s in court and it totally cures the PNES! If you have any questions please don’t hesitate to ask!
No as he said epilepsy is caused due to high firing neurons in brain that are either developed or already presend regardless they are an abnormality to the normal physiology whereas non epileptic seizures or psychogenic seizures as the name suggests have no high firing neurons or any other neurotransmitter based deformity whereas can be linked to any psychological issue related to some underlying trauma, repressed emotions etc. and he never said its making in the head its just the cause is different and even making something up in their head and having issue in carrying day to day life also constitutes as a medical concern
So I was actually offered to go through cognitive behavioral therapy, but it sounded really stupid so I bailed on it. Yes, you are 100% right it does sound stupid because like you said: the patient is making it up in their head? Sadly, it’s just a bunch of emotions that there’s only so much that people with epilepsy or different type of disabilities can handle. I have these now and they said that’s it’s from me being, stressed, depressed, and my anxiety. But the problem is that I don’t know what or why I would be feeling like this. I mean I feel completely fine. So once I went to the therapist and we talked about it I was blown away by how she discussed with me on why and what it was causing me to feel like this when I felt fine. It’s like your emotions are hiding from you and you don’t even know it.
Your body’s are not meant to be a trash compactor for stress or abuse. You must confront the problems and exposure yourself to the very things that hurt you the most!
I used my psychology background and I would just announced the thought or feeling prior to the seizures. I would have my support system help me get comfortable and work around my triggers for the next time.
I got diagnosed with FNS (Functional neurological symptoms) after having a PNES episode in response to Psychological distress. I also have a extreme neological response pain. I passed out and vomited with period pain, got to the hospital and got told i had a neological problem! I said "no, it's pain", they were like "your symptoms are neological" and I was like "I am bleeding and in pain" 😂😂. The neurologist said my body was over reacting to stimuli, I have a software problem but my hardware is healthy.
Are eyes always closed during psycogenic non epilepsyseizhures??My seizhured do not appear on EEG snd most times eyes halfopened or closed that why doctors say that I have non epileptic seizhures
After I had my first seizure since the age of 4, I was diagnosed with PNES because they got normal EEG results… then I had one in a hospital parking lot. They kinda retracted it after that.
Please help me to know my symptoms every time I seizure I can feel it but it comes first my hands sweating then harden and seizure happens. Please help me with this it hurt every time when my seizure happens. I also undergo a EEG, CT scans and MRI process but I have no epilepsy
I had an EEG, MRI, and CT scan and all mine were normal too however I was having epileptic seizures as well as PNES seizures so it's possible to have both! Do you have a good neurologist?
I am the leading expert now on curing PNES and I don’t even have my doctorate in psychology yet! I use new ways of exposure therapy that hasn’t been utilized and has been overlooked.
I want to go there my aunt had seizures unfortunately she has passed 😢 I miss her so much but i suffer from seizure now too complex epileptic seizure and non epileptic seizure and I know that they can help me
Please i need some advice. In 2017, i got my first seizure. In 2019,i got second one And just recently last week,i got s tbird one. I dont take any epilepsy medecines and i get it only when i have extremely long and heavy periods and its towards the end of the period. P.s last time,i have fever during my period and this time i had food poisoning. And sugar was high as well. Is it epilepsy?what should i do?should i go to a neurologist? I also have pcos
I have similar experiences. I had one a year ago. I had one last week. I have partial ones around my period. They are different feeling depending where its starting from. Mine is starting in the temporal lobe. Estrogen makes them worse. I was hospitalized bc they wouldn't stop. Keep records. Dates. And you need a eeg. They will want a mri too. Keppra is working for me. I am also trying keto diet. Hope this helps
I have had seizures from when i was 4, im 17 now and have had a total of about 10 seizures, ive had multiple mri's, cat scans, and blood tests but the doctors still havent pin pointed what it is i have. But its genetic beacuse my uncle has the same thing. He had it in his childhood and when he got around 17-18 it stoped, now hes early 40's and is expieriencing symptoms again. But worse than before, now he aslo has hallucinations and screams like a crazy peron. My point being now i know he has the exact condition i do, becaue my symptoms were exactly like his so far. The seizures stoped Im 17. Im most likely destined to end up like him, a crazy person with no family to take care of me
You should consult neurologist,,, I too face seizure disorder in 2005 and I take medicine for 5 years but alhamdullha I am fine now,, but from some years I face nerve pain,,,
Hi I have uploaded a video of my "seizures" they started in 2017 they are very weird. I had 2 hospital stays 1st they thought I had faciobrachio dystonic seizures and i was treated with plasma pherisis. lots of blood work and spinal tap scans, Mri's and eeg's diagnosis is partial seizures. I was having 10-15 a day tried several meds. Now I'm on xcopri, seems to be helping them. Mostly had them in my sleep but then progressed. please look at my video. I have been looking for other videos to see if they compare and I haven't found anything.
I have C-PTSD and experience convulsions, ticks, and arm thrashing when I experience invasive memories of my group sexual battery (and other Narcissistic abuses). I take two kinds of anti epileptic medication.
Dude I am experience the exact same things. The convulsions start like where my diaphragm is while all the flashbacks come to me. It’s either convulsing or my whole body goes into fetal position and is like, stiff like I can’t move at all. I’m so sorry of your traumas and I’m sorry you have to endure these things as well, we will get better 🖤🖤
Have you ever had the chance to go after the perpetrator or are you able to? I help girls confront being violated and I help them testify in court and it totally cures the PNES. This is a mental suppression problem and exposure therapy is the best answer and cure for this. When you push problems deep down inside it can manifest itself physically. If you can’t confront your abuser there’s other methods of exposure therapy that can help! If you have any questions please don’t hesitate to ask me!
Thanks for sharing, I am stuck in this weird place of being told i have a trauma disorder by some and ocd by others (other stuff too but those seem pretty erroneous to me) - also have tics and thrash at night sometimes - although i generally don't tell providers to avoid damaging diagnoses... Hope you are doing ok, I know this is an old comment - but i am grateful for your sharing this. Honestly, I learn so much more from random people than most accessible professionals lol.
There is a type of eating disorder where you choke/gag or vomit (not purposeful vomiting like in bulimia but as a reflex triggered but eating certain food or food in general) when eating but also physical things that can cause nausea even without actual vomiting, when eating so you need to talk to a doctor and maybe get tests. If I can remember the name of the disorder I will come back and let you know so you can maybe look it up and see if it sounds like your symptoms. It’s really important that you only look online for help about what things it might be worth asking your doctor about rather than looking for a diagnosis online. I hope you’re able to find a solution to your problem
Hi guys, my mum has been having seizures but the doctors couldn't say what is it exactly. I am gonna upload her videos. Can you watch and compare and please comment ? I need this.
I don't question rather this is real, my friend's son has this, what I question is the idea that it's not neurological Extreme emotion itself, think anxiety or depression, or BPD or ADD/ADHD are neurological If they weren't it wouldn't make sense to treat them with medication So there's something in the brain causing these seizures to occur What this video showed me is that the doctors themselves don't seem to know what's going on
In some cases I have people testify against their abuser and that’s the best healing method and it’s more powerful than people give it credit for. This cures PNES! I call it court room therapy!
That is not a psychogenic seizure. Cannobiod receptor 1 has interactions with nmda receptors that can lead to hypo function. Source, lots of articles on pubmed and the TH-camr “Ask a Psychiatrist,” and catatonia to me as a layperson kinda reminds me of an absence seizure.
Yesterday I had sever dehydration and felt dizzy I drank Gatorade and felt better then I got home laid on my bed and felt dizzy and a bit then it stopped after i ate something is thst a seizure
@@gabrielguzman6018 this summer something similar happened to me except I had way more symptoms on top of the dizziness, there was fatigued, my body was screaming that it was tired and exhausted, I was hot, and didn’t know how to fix it, my heart started racing and then my breathing was labored with a drilling headache. The breathing felt similar to a panic attack but the discomfort was something entirely different. Were you confused? Did the dizzy spill feel like vertigo too and made you sit down until it went away or something because I looked into the symptoms and they have similar ones close to heat stroke so maybe
I Need some help I have experienced seizures two times last 2019 And recently just a couple of weeks ago And I don't have any apelipsy since then I can only experience seizures specially when I can't have enough sleep during Night times How can I deal with it, I need help my experience of it already gives me a lot of trauma
My girlfriend has non epileptic seizure. She takes weed in order for her seizures to calm down. It amazes me as to why weed is illegal when it helps so many people with seizures. If you’re able to get weed please do so, it’ll help you a lot
TB HPV PNES THE P IS papillomavirus Have to figure out N? Have to figure out Eplispy Have to figure out Scoliosis My disorder If I figure it out Then NEAD SEIZURES GET SOLVED TOO Because i solve N E THEN I HAVE TO SOLVE A D DISORDERS When i figure out A D AND N ILL COME BACK
I can cure people completely from PNES but they have to be willing to deal in order to heal! You have to be able to address your most innermost problems and bring them to the surface.
The Brain cant heal if a Person live in toxic body..keto way of eating, lovering the inflamation is the key ..meditation is good, but it doesnt heal nutrition deficency, and nervous system
People with dissociative seizures don't chose to have seizures. Dissociative Seizures happen unconsciously because the mind is in a dissociative state there is a disconnection between the mind and body and the body goes into a fight or flight response that's actived by the sympathic nervous system. Please know your facts before you start judging people and take the time to understand instead of taking the time to judge
Wonder how many of the young girls complaining in these comments that their made up condition isnt taken seriously enough even still fake these seizures and haven't moved onto the next it condition - DI
It's time for neurologists to stop sticking to old paradigms and investigate the non-epileptiform causes of motor seizures. It's an embarassment labelling them psychogenic.
Yeah like it's not real or it's made up..
I wish I could give you 1000 likes
@Davison(DavisonVideo) Say that! You nailed it!
It also might just be a bridge way into a new appreciation for other things deemed “emotionally caused” or “psychogenic” in the sciences as well. This is just one case in a much larger genus of issues caused by the lack of respect for actual human experiences in American academics. Hopefully medicine is able to begin seriously including a patients hermeneutics and experiences in diagnosing a treatment strategy.
Not all non-epileptic seizures as labeled as psychogenic and many individuals such as myself absolutely have seizures because of psychological reasons
I had a neurologist run me through epilepsy testing and as soon as it was determined that my seizures were non-epileptic, he told me I was making them up, they were in my head and to get over it. Since it wasn't epilepsy, he wouldn't help me with any treatment and just told me to see a psychiatrist. He also accused me of not taking them seriously despite the fact I sought him out to help me figure out what was going on. He even stopped seeing me for my migraines. I still have the seizures and the migraines, and just live them them because it's so hard to find a neurologist that will actually listen. It still makes me mad and I hate the episodes.
I find this type of seizure rather offensive.. It makes some of us feel like they think we're making it up.. And aren't taken seriously
Yeah. I'm a minor, barely 15 and was diagnosed with these seizures. I have about 5 a day at best and it only took me nearly passing me head open and going completely unresponsive (probably an absent seizure) to be taken series. It's fucking insane
My daughter has an abnormal mass on her brain and she has these seizures and was told she needs to talk to a psychiatrist because it’s stress related seizure disorder so nothings really wrong 😑 CAN YOU IMAGINE THAT????? A trained medical professional saying you’re crazy without using those words and in the same breath saying there’s nothing wrong but there’s something wrong 🤦🏾♀️🤦🏾♀️
@@nanny-masway5948 sadly i do.. been through it for 30 some years
@@voranastlin158 I hope you are doing better now! I used to have PNES seizures too however I stopped having them about ten years so they will stop at some point! You may be having PNES seizures and epileptic seizures like I was. I hope you have a good neurologist! Take care!
@@nanny-masway5948 Yes I can believe it! I was diagnosed with epilepsy over 20 years ago then I started having PNES seizures. My neurologist told me I wasn't ''really having seizures and that often when someone finds out they're not having real seizures they go away''. Thankfully mine went away that day however I know this is not usually the case. I hope your daughter is doing better!? Take care!
Human, psychological, suppression and keeping abuse a secret causes the grief to manifest into traumatic seizures from pushing the grief away down deep inside a person. Dying from grief is real people!
Happened to an aunt of mine.. one day itll happen to me too.. since no one wants to listen or take me serious
My sister is suffering right now, we're trying to do whatever we can. This is like hell on earth. I don't even wish this on my worst enemy..
@@nicmackowey510 I feel the exact same way. last night my tremor also made me puke and that really frightened me :/
@@vierhans1553 did your tremors felt like inside tremors ???
The cure for non epileptic seizures is to shift from a sympathetic (fight or flight) to a parasympathetic state . This is best achieved through deep abdominal breathing with prolonged exhales making a deep humming sound in your throat as you exhale. Breathe in and out only through your nose, focusing on your breath and nothing else the whole time. You should feel the back of your throat area vibrating when you exhale making the humming sound. The back of the throat area is the hub of the parasympathetic nervous system and activating it with humming automatically activates the parasympathetic nervous system relaxing your mind and body. Practice this for 20 min in the morning, afternoon and night and your seizure frequency will reduce greatly. Also practice it the moment you feel a seizure coming on and most likely the seizure feeling will go away. Combine this with mindfulness training and learn to live in "day tight" compartments focusing only on the present moment specifically on the task at hand and doing what you enjoy.
I agree! The parasympathic nervous system is incredibly powerful! I've been diagnosed with PNES seizures, epilepsy, bipolar 1, panic attacks, sleep paralysis and night terrors, CPTSD, DID, and ADHD. I've found breathwork, yoga, meditation, exercise, going for long meditative walks in nature, body scans, creative play, good nutrition, and taking supplements have helped me so much I've been able to come off of decades of pharmaceuticals! I hope you are doing well and take care of yourself please! Remember you have the power to heal completely, just as you are!
I really like this tysm. I’m going to try this next time I have one
TY SO MUCH, I STARTED DOING THIS PARASYMPATHETIC STATE AND I GOT BETTER AFTER 5 MIN
This makes sense to me as vibration would stimulate the Vagas Nerve
Another thing , a somatic therapist or bodyworker would probably work with the motions made during the siezures
I have three maybe four we've worked out
My right leg kicking out
My left arm like doing a triceps kick back and usually accompanied by a left Jenkins motion with my head like I'm trying to look over my shoulder
All probably connected to trauma repetitive motions
I also used to have tonic flexed stiff frozen and ones that I just dropped to the ground and couldn't move at all I would get an aura or knew that they were getting ready to happen I would try to get to a safe place
I haven't had one of those in a year..but they were regular for years
I am not in flight or fight mode when it happens so this would not work for me. They happen WITHOUT any trigger.
Maybe I’m crazy, but when I have these seizures, it’s like I’ve entered another realm and tuned into another frequency. It’s so wild. I don’t believe that it’s suppressed emotions or whatever they’re trying to sum it up to, I’ve been in therapy for most of my adult life and I’ve worked through my life’s traumas. I truly believe spirits are trying to communicate with me when I’m in that state. 🤷🏼♀️
Hey girl I deff wanna ask you some questions about this because I believe I’ve also experienced this
Omg i feeel u
I believe that's exactly what it is. I have also experienced this
Yeah you are right,l also heard music while such episodes its like I am going to die but I manage come out of it by my own will,I am 18.
I feel the same way, like Im transcending the universe. Mine are most likely triggered by stress, but in combination with another factor like not enough sleep, low blood sugar, excessive drinking the night before, or too much caffeine.
It's so frustrating to still be seeing this narrative. Reminds me of when we were told schizophrenia was caused by childhood trauma.
Where does it come from ?
@@Simon-qb6zl I don't know but if I had to put a bet on it, in terms of PNES, probably some receptor dysfunction triggered by an immune system response.
@@valerieevanier9632 I 100 hundred percent agree with you
Joseph Dalmau is finding shits tons of causes just like this. Hell there was a schizophrenia like disease that had these “psychogenic nonepileptic seizures” and it turns out it was anti bodies acting as channel blockers of NMDA receptor as.
The best way for me to describe my experience is this in the broad scope of things. Imagining hearing one of your parents die and you forcefully deny the emotions and the accounts of the events. Yet your subconscious mind is attacking what feels like your central nervous system. Like a leaky pipe under too much pressure. That's why people need to cry. Putting on a brave face especially when you are by yourself isn't necessarily the healthy approach.
Took me along time to learn that my self ego only hurts thy self.
👏👏👏👏👏👏👏
Exceptional video!!! My mom is 73 & is continuing to see doctor are doctor for a medical diagnosis ignoring PTSD. Trauma being stored in the body. Thank you for this!!!
Trauma and PTSD can effect a person's health for their entire life unfortunately. I hope your mom is doing better!
Trauma is stored in the Brain, healing the Brain with good nutrition is the key, and lovering inflamation
I had a roommate who had these. They were NOT fake. She had been badly gang assaulted (r4pe) and she had these often. At least once a day. So much medicine still doesnt know.... The brain basically shuts itself down, thinking it's re-entering the threat when a memory comes. Sad. I know I'd want a benzo if that was happening to me! Give them the dang treatment....
I am the world’s leading expert on PNES! Exposure therapy is the answer and the cure! I help girls testify against their abuser’s in court and it totally cures the PNES! This is a mental suppression problem that should not be treated with mental suppression drugs! There’s different reasons why people get PNES but there’s also a lot of different types of exposure therapy that really works! When you push problems deep down inside it can manifest itself physically and that is what this is! You need a psychologist, not a psychiatrist or drugs! Let me know if you have any questions!
Can u till me what happened to her…
@@AkramAl-abdowhy do you want to know the whole story?
They DO know, but it's still psychosomatic and NOT neurological. The two are extremely different. If you saw a TRUE seizure, you'd understand. People die from the neurological kind.
@@toeachitsown2050people with PNES have much higher mortality rates. It's psychogenic, but worth considering if there are ways we can destigmatize it and improve treatment outcomes. Australia opened a PNES clinic last year.
I thought I was just having panic attacks maybe I still I do. When an onlooker started to scream that I looked like I was having a seizure I started to have doubts. Also when other people described how their panic attacks were not even near what I experienced I began to suspect something more was going on. Just hearing her saying she felt like ants were crawling on her head knowing that’s exactly how I felt moments before I had an episode is actually scaring me. I’m confused and scared now.
Same with the ants thing.
Wow.. I thought I was having panic attacks too or maybe diabetic because it was so odd, I was extremely fatigued, breathing was labored and like…a blasting headache.. not sure what they are yet. Panic attacks feel so different tho. But very similar as they come out of nowhere but I can feel when they’re about to happen
@@Didyouknowthis2 Who exactly do you see for this NVU analysis?
Going through this presently and fighting my panics but fight them at night is making me not sleep and having to have to use medication (spinning my mind in circles and frustration, anger and hopelessness)🙏💪
Absolutely me too ,My panic attacks are crazy ,just like a seizure
This was me! I ended up having to go get evaluated at a mental hospital. Turns out they weren’t just panic attacks, and it’s so relieving to know. Because you get so confused … why are my panic attacks so different? Why are they so severe?
I have a large history with seizures (temporary paralysis) until this day I did not get any clear answers if it’s epilepsy or psychogenic non-epileptic seizures or panic attacks disorder, the only thing I know is some doctors treat patients like trash in these cases like we’re making it up, I’ve been hospitalized in the ER many times they don’t take their mission seriously.
When my seizures began quickly lead to many ambulance trips to ER following a week in hospital doing the epilepsy screening to be told these psychogenic non epileptic seizures were a result of severe post traumatic stress still took years for me to understand why
My PNES seizures were related to my CPTSD and DID as well however I don't have them anymore and last year actually I integrated my DID. Unfortunately I still have epileptic seizures and CPTSD but I'm happier, healthier, and fully present in my life for the first time ever! I hope you're doing well and take care!☺
@@hannahg39 so glad for you 😊,stay good and well ❤️🩹
I had a seizure while boarding a plane yesterday. It came out of nowhere I had no anxiety or any thoughts, I simply collapsed and was 100% sure I was dying. They told me it was a panic attack without even consulting a neurologist
This is/ was me , I had PNES for years didn’t know what it’s was , I know this is an old post , hopefully someone can read this an get help, I’m a young 67 told woman, I was abused for years as well an Alcoholic in recovery for 35 years,I was in therapy for 9 years my therapist retired.
Then I met my previous therapist well psychiatrist , she taught me mindfulness meditation, thinking, it’s like hypnotizing . I took myself to an amazing place where I found comfort. Long story…. They stopped.. ❤ I was amazed that this person in one / two visits helped me that fast . Most likely I wanted them to stop 🛑 I’m grateful!!
Thank you❤
You guys are pushing this way to hard. Patients that have had years long documentation of actual Seizures and the cause of those seizures, are being missed diagnosed with this anytime they can’t perform a seizure at a doctors demand. The willingness of the medical community to slap this label on Random epileptics is nothing short of harmful and insulting.
I agree! Whether the seizures are epileptic seizures or PNES seizures(or in my case both) doctors give out medications for both far too much! I'm in the process of weaning off of copious amounts of pharmaceuticals and even though I'm having epileptic seizures again(I stopped having PNES seizures years ago) I'm determined to finding a healthier solution this time! Take care of yourself!
It was the other way around for me. Everyone thought I was epileptic, or even now continue to assume that I am, but it turns out I have PNES. And they ARE real seizures, they just aren’t caused the same way. Speaking from experience. No way they aren’t real.
I’ve had ptsd for over 20 years, a year ago I left my ex and then the seizures started. I had an eeg they are non epileptic but I recently had surgery and 6 nurses witnessed it. I think my ptsd got worse and it caused this.
Sometimes being alone or abandoned from relationships cause a lot of stress and become something of these sorts and people don't understand how severe someone or something is until they experience it themselves.
I just had one now I think. I don't really know, felt like I passed out, and then I sort of came too and all my muscles and jaw are sore. And I've got PTSD really really bad. Thats why I'm here, trying to figure out wtf is going on.
@@mbe102 You okay? I'm really scared of having one because if I do I don't want to mention it to anyone...
Thank God I finally got cured,💯💯 💓💓 I appreciate God.
@@oliviasmith4940 why do you keep repeating this ? You're not genuine.
Exposure Therapy people! Please trust in it! The human brain is a lot more complicated than we give it credit for!
facts
In Australia neurologist doing neuroscience, don't care about the patient's with non epilepsy seizures,
23 years no explanation and a form 174.
Mine is due to head truma, so they don't care at all.
Within my epilepsy seizures books there's over 2000 seizures recorded, and ambulance service to hospitals for epileptic seizures. The neurologists don't care, why should I.😩
If I fall again onto traintracks it doesn't matter, if I fall in the middle of an intersection, it doesn't matter, if I have another seizure at home 🏡 and I'm unconscious for hours in the shower,it doesn't matter, my life doesn't matter.
My GP knows and he looks after me.🙂
Over all my neurologist doesn't care,I don't matter.
I'm so sorry you're going through this! Doctors and neurologists unfortunately have almost no compassion for PNES seizures, trauma, and CPTSD. I think it's due to the fact that they know very little about it and even less about how to heal them! Take care of yourself please!
@@hannahg39 thankyou for your kind words 😊
It's the same with the neurologist I saw for psychogenic seizures, he is on the Gold coast in QLD. Didn't care and on the second and last visit was very rude. These people shouldn't be doctors
emotional seizures real
I have complex PTSD, PNES, DID, and Schizophrenia from childhood abuse!
Heather Carey Vlogs have you been able to find any help? I have PTSD, DID, Borderline Personality Disorder and I also have non epileptic seizures. I am desperate for help and I cannot find any help
Hey! I have the same diagnosis as you, but I was also diagnosed with Bipolar 1 -- which has been a lifetime struggle with survival and development. I've been seeing a trauma therapist weekly for 6 years to address my symptoms but it's not an easy fix. In the last 7 months, I have had 3 gran-mal seizures with consistent symptoms, however, my neurologist insists on the diagnosis of PNES. There is NO preceding event or conscious warnings of stress. Regarding treatment, I've been taking psychotropic meds and also CBT for over 30 years and it has had no effect in curbing my seizures. If anyone going through the same dilemma, please share with me. Thanks!!
My dad gets these when he sees doctors (not always) I'm guess it's a lot of anxiety. He gets really hot and sweats so so much! Than he goes unconscious and shakes for a bit. When he come back hes very very tired and kinda weak. Still a little sweaty. He talks as if hes waking up from surgery. Within an hour hes good to go besides being just a little tired. Can anyone relate and share their stories. Please and thank you all!
I also get them from panic attacks ,internal tremors ,numbness tingling ,feeling of not being real ,stiff and numb arms ,legs can't even move ,I jerk and convulse ,muscles contracting even inside my abdomen ,feeling tired and wiped out after it's finished ,luckily it doesn't last long ,30 minutes tops
The human body isn’t just a bunch of cells there are many layers to it such as the electrical, etheric , spiritual and stuff u probably haven’t heard of. The disruption or imbalance of one can affect the other. Unfortunately modern medicine doesn’t seem to take these things into consideration .
Yes we are! We're like monkeys trying to build a nuclear reactor in the dark!
@@hannahg39 Maybe not "the human body" but there's so much more to life in general than only being cells.
I'm curious as to how many of us have a history of trauma, I know who doesn't? I have been diagnosed with PNES seizures, epilepsy, bipolar 1 , ADHD, CPTSD, DID, dyslexia, night terrors, and sleep paralysis. I'm not saying that trauma is the cause however it would interesting to look into.
Yup deep suppressed trauma that I don't even know nor remember very well ,but my body does 💜
I'm here now cause i just found out my neighbor passed away. I.. was breathing so irregularly I tried breath deep as much as i can. Then my whole body went stiff my hand looked like someone who had a stroke, that i feared for my life. Twice i experienced this in my childhood, and today's the third.
Ive been having what the doctors are calling psychogenic non epileptic seizures. They statted three months ago and i have no idea where they came from. Its scary as hell not having anyome explain to me what this is
I am going through this right now they just told me today that they think I have this PNES.. im very sad at the moment...😥
I don’t understand how he says they don’t know how it happens then goes on to say its psychogenic , I see a lot of doctors say this including my docs and its happened even when I’ve been happy and least amount of stress. I would like to know how they get a count of patients getting better with therapy and patients without trauma .
Same, I told my neurologist when they happened I wasn’t anxious or having some sort of panic attack and they still prescribed me anxiety medication 🤨
PNES is kinda like suffering from grief and your body pushes the problems way down inside and then it manifest’s itself physically into seizures.
My panic attacks though less frequent now thanks to therapy but they have gotten more intense causing seizure like symptoms.
Mine too , extreme panic causes seizure immediately for me
Sir I have some questions
@@Србомбоница86I have some questions plez tell me
Does anyone know of any universities or facilities conducting clinical trials that are looking into the causes of Pnes that they can recommend?
What happened to the video that I watched a year ago that talked about electrical seizures! Was it taken down as false/ fake???
I’m convinced my seizures are due to emotional and psychological trauma.
Anybody else with anxiety attacks and panic attacks sometimes feel like they're about to have a seizure, but doesn't happen? I feel like a tingly ticklish sensating with my head. I feel jittery and anxious when I feel this telling myself what if it's a seizure but never happens. What is this, is it what the video says?
I get theese kind of attacks. Today when I talked to a person I got an attack and I just walked off because it felt so uncomfortable, I am aware of my surroundings but I still act weird. It feels like everybody is watching me and I feel dumb. I also wake up in middle of night fully awake and my heart is beating
@@maskenmakkan yes, same here as soon as I open my eyes, my heart starts racing. Yesterday I had a massive panic attacks outside while walking. Heart was beating so fast.
@@ABJ4684 Have you had any seizures?
@@maskenmakkan no, not even once.
@@ABJ4684 Hmm ok, thanks for the answer. Im trying to figure out whats wrong with me
I was literally told “it’s all in your head.” I said, “yeah… that’s where my mind is…”
Thank You, I can relate to this and it’s not fun .
I hate seizures I feel dumb when I’m around my friends and at school cuz I have trouble learning unlike everyone in my school who are smarter then me I’m sure. I only try to act “cool” at school bc I think it would be embarrassing if someone saw me and think I’m dumb 😕🥺
@Luke Augustus if it’s not then why does my mom and sisters tease me about it if u have it u should follow me on insta I could use more followers jc_51807
When they say PNES is unknown origin but most have symptoms of complex PTSD .
The motions make sense in the light of stress made visible.
Each of my sizeure like motions likely make sense in light of things that happened to me.
Especially the paralysis in a hyperflexed pose
Jerking head looking left over and over
I have had very few after a the first year in somatic trauma therapy with acknowledging the motions, moving purposely through those motions like finishing running,
Looking left and discussing the PTSD memory
My friend has been seizure free for 2 years.! I am not a a doctor but I was attending college to become a psychologist. I believe that some people do need to see a psychiatrist but not every problem can be solved taking psychiatric drugs. I was raped by my sister for about 10 years when I was just a kid so this is what really makes me more qualified in mental healing!
Peace to you and your journey... I am sending love, good energy and healing. 🙏🏾🙏🏾🙏🏾✨✨ May the Creator Cover YOU
This is a mental suppression problem and exposure therapy is the answer and the cure, not mental suppression drugs from some psychiatrist!
I was raped by my sister for 10 years as well so I understand what it’s like to push problems deep down inside until it causes more, major problems! I help girls testify against their abuser’s in court and it totally cures the PNES! If you have any questions please don’t hesitate to ask!
So because you don't know how it works, the patient is making it up in their head? Wow, that's condescending.
No as he said epilepsy is caused due to high firing neurons in brain that are either developed or already presend regardless they are an abnormality to the normal physiology whereas non epileptic seizures or psychogenic seizures as the name suggests have no high firing neurons or any other neurotransmitter based deformity whereas can be linked to any psychological issue related to some underlying trauma, repressed emotions etc. and he never said its making in the head its just the cause is different and even making something up in their head and having issue in carrying day to day life also constitutes as a medical concern
So I was actually offered to go through cognitive behavioral therapy, but it sounded really stupid so I bailed on it.
Yes, you are 100% right it does sound stupid because like you said: the patient is making it up in their head?
Sadly, it’s just a bunch of emotions that there’s only so much that people with epilepsy or different type of disabilities can handle.
I have these now and they said that’s it’s from me being, stressed, depressed, and my anxiety. But the problem is that I don’t know what or why I would be feeling like this. I mean I feel completely fine.
So once I went to the therapist and we talked about it I was blown away by how she discussed with me on why and what it was causing me to feel like this when I felt fine.
It’s like your emotions are hiding from you and you don’t even know it.
this is a good app
Your body’s are not meant to be a trash compactor for stress or abuse. You must confront the problems and exposure yourself to the very things that hurt you the most!
How to possible to treat non epileptic seizer???
I used my psychology background and I would just announced the thought or feeling prior to the seizures. I would have my support system help me get comfortable and work around my triggers for the next time.
I got diagnosed with FNS (Functional neurological symptoms) after having a PNES episode in response to Psychological distress. I also have a extreme neological response pain. I passed out and vomited with period pain, got to the hospital and got told i had a neological problem! I said "no, it's pain", they were like "your symptoms are neological" and I was like "I am bleeding and in pain" 😂😂. The neurologist said my body was over reacting to stimuli, I have a software problem but my hardware is healthy.
Are eyes always closed during psycogenic non epilepsyseizhures??My seizhured do not appear on EEG snd most times eyes halfopened or closed that why doctors say that I have non epileptic seizhures
No they r not always closed. Eyes r open more than not when One is having a seizure of any kind.
Same here
Can being struck with sudden extreme pain cause this?
My son just started this no lie no bullshit .. I’m trying to see how I can help him with all of this ..
He just started having them this Past weak ..
After I had my first seizure since the age of 4, I was diagnosed with PNES because they got normal EEG results… then I had one in a hospital parking lot. They kinda retracted it after that.
Am having seizures three times a days what might be wrong with me.
Thank you
Please help me to know my symptoms every time I seizure I can feel it but it comes first my hands sweating then harden and seizure happens.
Please help me with this it hurt every time when my seizure happens.
I also undergo a EEG, CT scans and MRI process but I have no epilepsy
I had an EEG, MRI, and CT scan and all mine were normal too however I was having epileptic seizures as well as PNES seizures so it's possible to have both! Do you have a good neurologist?
I am the leading expert now on curing PNES and I don’t even have my doctorate in psychology yet! I use new ways of exposure therapy that hasn’t been utilized and has been overlooked.
I want to go there my aunt had seizures unfortunately she has passed 😢 I miss her so much but i suffer from seizure now too complex epileptic seizure and non epileptic seizure and I know that they can help me
Please i need some advice.
In 2017, i got my first seizure.
In 2019,i got second one
And just recently last week,i got s tbird one.
I dont take any epilepsy medecines and i get it only when i have extremely long and heavy periods and its towards the end of the period.
P.s last time,i have fever during my period and this time i had food poisoning. And sugar was high as well.
Is it epilepsy?what should i do?should i go to a neurologist?
I also have pcos
I have similar experiences. I had one a year ago. I had one last week. I have partial ones around my period. They are different feeling depending where its starting from. Mine is starting in the temporal lobe. Estrogen makes them worse. I was hospitalized bc they wouldn't stop. Keep records. Dates. And you need a eeg. They will want a mri too. Keppra is working for me. I am also trying keto diet. Hope this helps
I have had seizures from when i was 4, im 17 now and have had a total of about 10 seizures, ive had multiple mri's, cat scans, and blood tests but the doctors still havent pin pointed what it is i have. But its genetic beacuse my uncle has the same thing. He had it in his childhood and when he got around 17-18 it stoped, now hes early 40's and is expieriencing symptoms again. But worse than before, now he aslo has hallucinations and screams like a crazy peron. My point being now i know he has the exact condition i do, becaue my symptoms were exactly like his so far. The seizures stoped Im 17. Im most likely destined to end up like him, a crazy person with no family to take care of me
You should consult neurologist,,, I too face seizure disorder in 2005 and I take medicine for 5 years but alhamdullha I am fine now,, but from some years I face nerve pain,,,
Did you every figure out what was going on with you?
Girlfriend experiencing similar issues. Looking everywhere for an answer.
Please help I have the symptoms
Thank God I finally got cured,💯💯 💓💓 I appreciate God
@@oliviasmith4940 how can you tell me
Hi I have uploaded a video of my "seizures" they started in 2017 they are very weird. I had 2 hospital stays 1st they thought I had faciobrachio dystonic seizures and i was treated with plasma pherisis. lots of blood work and spinal tap scans, Mri's and eeg's diagnosis is partial seizures. I was having 10-15 a day tried several meds. Now I'm on xcopri, seems to be helping them. Mostly had them in my sleep but then progressed. please look at my video. I have been looking for other videos to see if they compare and I haven't found anything.
How do i get the video
Nancy Bradley partial seizures
@@barbarawright2145 it should be under nancybradley partial seizures and then just click on the video I hope it works
On TH-cam
Let me know if you find it on there I have my son looked it up just to make sure and it is there
I had one 9of these seziures a few weeks ago... I'm blaming a seritonin and dopamine overlode.. Apparently I was being 'more than happy'
Well caffeine causes mine ,and lack of sleep
Any clinics offering this in UK?
My non epileptic seizures look like actually seizures it's crazy
they are seizures
I have C-PTSD and experience convulsions, ticks, and arm thrashing when I experience invasive memories of my group sexual battery (and other Narcissistic abuses). I take two kinds of anti epileptic medication.
Dude I am experience the exact same things. The convulsions start like where my diaphragm is while all the flashbacks come to me. It’s either convulsing or my whole body goes into fetal position and is like, stiff like I can’t move at all.
I’m so sorry of your traumas and I’m sorry you have to endure these things as well, we will get better 🖤🖤
Have you ever had the chance to go after the perpetrator or are you able to? I help girls confront being violated and I help them testify in court and it totally cures the PNES. This is a mental suppression problem and exposure therapy is the best answer and cure for this. When you push problems deep down inside it can manifest itself physically. If you can’t confront your abuser there’s other methods of exposure therapy that can help! If you have any questions please don’t hesitate to ask me!
Thanks for sharing, I am stuck in this weird place of being told i have a trauma disorder by some and ocd by others (other stuff too but those seem pretty erroneous to me) - also have tics and thrash at night sometimes - although i generally don't tell providers to avoid damaging diagnoses... Hope you are doing ok, I know this is an old comment - but i am grateful for your sharing this. Honestly, I learn so much more from random people than most accessible professionals lol.
I am struggling with this badly. Is there anyone that can help me please.
I have no symptoms but when I try to eat something I feel like to vomit but not real vomitting just thinking of it and vomiting
There is a type of eating disorder where you choke/gag or vomit (not purposeful vomiting like in bulimia but as a reflex triggered but eating certain food or food in general) when eating but also physical things that can cause nausea even without actual vomiting, when eating so you need to talk to a doctor and maybe get tests. If I can remember the name of the disorder I will come back and let you know so you can maybe look it up and see if it sounds like your symptoms.
It’s really important that you only look online for help about what things it might be worth asking your doctor about rather than looking for a diagnosis online. I hope you’re able to find a solution to your problem
Hi guys, my mum has been having seizures but the doctors couldn't say what is it exactly. I am gonna upload her videos. Can you watch and compare and please comment ? I need this.
I don't question rather this is real, my friend's son has this, what I question is the idea that it's not neurological
Extreme emotion itself, think anxiety or depression, or BPD or ADD/ADHD are neurological
If they weren't it wouldn't make sense to treat them with medication
So there's something in the brain causing these seizures to occur
What this video showed me is that the doctors themselves don't seem to know what's going on
Are the seizures physically obvious?
Yup for me they are ,I get stiff and completely numb ,even convulse
In some cases I have people testify against their abuser and that’s the best healing method and it’s more powerful than people give it credit for. This cures PNES! I call it court room therapy!
Man I am having both lmfao. (I am also diagnosed with both)
It's either laugh or cry right, lol! I have both as well although I don't have PNES seizures anymore. What about your seizures? Take care!
@@hannahg39 Yeah mine aren't going great, meds are not working either
These doctors are wildly uninformed. Ive had undiagnosed seizures for 10 years now and am homeless.
This happens to me but when I’m high ☹️
But not every tine
That is not a psychogenic seizure. Cannobiod receptor 1 has interactions with nmda receptors that can lead to hypo function. Source, lots of articles on pubmed and the TH-camr “Ask a Psychiatrist,” and catatonia to me as a layperson kinda reminds me of an absence seizure.
Trigger warning. Fast transitions and weird zooming. Don't watch this if you have photosensitive epilepsy. Quacks.
Its a result if traums stuck in the body
My seizures went away by medication and cbt
You can have seizures due to lack of oxygen getting to the brain- hypoxia
Hypertensive crisis
Hormonal changes
Anemia
Severe dehydration
A seizure is a symptom of something. Essentially a seizure is a seizure. But the treatment is dependent on what's causing it
Yesterday I had sever dehydration and felt dizzy I drank Gatorade and felt better then I got home laid on my bed and felt dizzy and a bit then it stopped after i ate something is thst a seizure
@@gabrielguzman6018 this summer something similar happened to me except I had way more symptoms on top of the dizziness, there was fatigued, my body was screaming that it was tired and exhausted, I was hot, and didn’t know how to fix it, my heart started racing and then my breathing was labored with a drilling headache. The breathing felt similar to a panic attack but the discomfort was something entirely different. Were you confused? Did the dizzy spill feel like vertigo too and made you sit down until it went away or something because I looked into the symptoms and they have similar ones close to heat stroke so maybe
@@DijahSabreena probably just that but not a seizure
I Need some help I have experienced seizures two times last 2019
And recently just a couple of weeks ago
And I don't have any apelipsy since then
I can only experience seizures specially when I can't have enough sleep during Night times
How can I deal with it, I need help my experience of it already gives me a lot of trauma
Use CBD
Are you found a treatment of pseudoseizures.
My girlfriend has non epileptic seizure. She takes weed in order for her seizures to calm down. It amazes me as to why weed is illegal when it helps so many people with seizures. If you’re able to get weed please do so, it’ll help you a lot
Too bad....I'm in Kansas City.
I wish I could afford to get there. 😔
Thank God I finally got cured,💯💯 💓💓 I appreciate God
nhs
@@pttaekwondo I'm going to have my dog in service training soon.
@@FallenMuse81 so happy for you 💜🙏🏼
@@oliviasmith4940 how so ?
TB
HPV
PNES
THE P IS papillomavirus
Have to figure out N?
Have to figure out Eplispy
Have to figure out Scoliosis
My disorder
If I figure it out
Then NEAD SEIZURES GET SOLVED TOO
Because i solve
N
E
THEN I HAVE TO SOLVE
A
D
DISORDERS
When i figure out A D AND N ILL COME BACK
There is a medical origin- it’s psychiatric. That is a medical field. Keep up with the times.
I can cure people completely from PNES but they have to be willing to deal in order to heal! You have to be able to address your most innermost problems and bring them to the surface.
Check nutritional from good nutritional sources. ...... not standard med comunity....
The Brain cant heal if a Person live in toxic body..keto way of eating, lovering the inflamation is the key ..meditation is good, but it doesnt heal nutrition deficency, and nervous system
It’s upsetting as people true seizures get treated kik shot because of PNES wish seizures even happen.
They are Non Epileptic Seizures
People with dissociative seizures don't chose to have seizures. Dissociative Seizures happen unconsciously because the mind is in a dissociative state there is a disconnection between the mind and body and the body goes into a fight or flight response that's actived by the sympathic nervous system. Please know your facts before you start judging people and take the time to understand instead of taking the time to judge
@@believeinjesus2677 We certainly don't! I hope you are doing better now and take care of yourself!
Treat the source, not the symptoms…👈
In the ambulance service, we call them the ‘fakey shakeys’ 😅
i could put on a lab coat and sound just as capable plus provide no worth while benefit at less cost
They shouldn't be called seizures. It should have another mental health label.
Wonder how many of the young girls complaining in these comments that their made up condition isnt taken seriously enough even still fake these seizures and haven't moved onto the next it condition - DI
I have this condition I was a victim of sex trafficking and was raped at gun point and I’m looking for treatment facilities