“I’m a human being just like you” This made me well up. What a wonderful job you are doing empowering Max with knowledge of himself, his needs and how to advocate for them. My son is 7, just diagnosed PDA and struggling with school. He is too stressed a lot of the time to be able to help him understand his PDA and guide him in ways to regulate - aside from what he does instinctively. You are helping me so much and inspiring me to think that maybe I could home educate…. I hope I can introduce your videos to my son soon as I think they would really help him see he is not alone.
Thank you so much for your lovely comment, it means so much to us. We are sorry to hear that your son is struggling. Perhaps as he gets a bit older and starts to recognise what helps him he will be able to communicate. If it would help Max is quite happy to record private videos that wouldn’t be shared anywhere online where he can talk about whatever subject would help your son. Also if you are considering home education please feel free to drop us a message on our Facebook page where we are happy to discuss what we do and good Facebook groups to belong to. You and your son aren’t alone. It can be so tough. We have had so many children say that Max is the first child they have met with pda. So we understand how lonely the children can feel especially.x
Thanks,. We want to get back to making videos it is just a big struggle with the fidget-t launching and a new baby. We tend to post more short form Videos on TikTok and Facebook of that helps
Thank you for sharing the tips that work well for Max. It is very helpful. Good luck with your continuing work to give Max the best opportunities to live his best life.
The sugar could be due to a need for dopamine, have you looked at ADHD too? It tends to be co-morbid with PDA. Eating is a struggle with new foods, we just try to make it as undemanding as possible with the environment, so in his room rather than at the table, and give him a platter of things that he likes with other things. It could be a texture thing rather than food, or things touching and altering the texture by making soggy etc. could be lots more going on than just not liking certain foods.
Hi April, max tends to only use the sensory toys for a short period of time. We found that leaving them out or handy for him to discover on his own time helped him use them. There are many that he doesn’t find useful, but it helps to consider what type of under stimulation he is receiving, then focus on sensory items that help stimulate that sense. Hope that helps.
“I’m a human being just like you” This made me well up. What a wonderful job you are doing empowering Max with knowledge of himself, his needs and how to advocate for them. My son is 7, just diagnosed PDA and struggling with school. He is too stressed a lot of the time to be able to help him understand his PDA and guide him in ways to regulate - aside from what he does instinctively. You are helping me so much and inspiring me to think that maybe I could home educate…. I hope I can introduce your videos to my son soon as I think they would really help him see he is not alone.
Thank you so much for your lovely comment, it means so much to us. We are sorry to hear that your son is struggling. Perhaps as he gets a bit older and starts to recognise what helps him he will be able to communicate. If it would help Max is quite happy to record private videos that wouldn’t be shared anywhere online where he can talk about whatever subject would help your son. Also if you are considering home education please feel free to drop us a message on our Facebook page where we are happy to discuss what we do and good Facebook groups to belong to. You and your son aren’t alone. It can be so tough. We have had so many children say that Max is the first child they have met with pda. So we understand how lonely the children can feel especially.x
Thank you so much! I’ve told Jude about Max and he said he would like a video about gaming! I will drop you a message on FB. Xx
Hi Sarah, we have replied to your message on Facebook. Will speak to max about the video 😁
🤯😱
Always see this channel when trying to find my own, was an interesting video, was nice to learn about PDA
Be great to see new videos with updates on how things are going..
Thanks,. We want to get back to making videos it is just a big struggle with the fidget-t launching and a new baby. We tend to post more short form
Videos on TikTok and Facebook of that helps
What an incredible video, so eloquent and perfectly said! Smell is a big sensory help for me too, I personally love spicy smells to help me calm down.
Thank you for sharing the tips that work well for Max. It is very helpful. Good luck with your continuing work to give Max the best opportunities to live his best life.
Thankyou, that’s all anyone should be afforded. It’s so frustrating that not every one gets what they need automatically 😣
What do you do about food? I can't get my daughter to eat anything other than sugar. Any advice?
The sugar could be due to a need for dopamine, have you looked at ADHD too? It tends to be co-morbid with PDA. Eating is a struggle with new foods, we just try to make it as undemanding as possible with the environment, so in his room rather than at the table, and give him a platter of things that he likes with other things. It could be a texture thing rather than food, or things touching and altering the texture by making soggy etc. could be lots more going on than just not liking certain foods.
My son is 8. And he won't really use very many sensory toys. Did you ever go through that?
Hi April, max tends to only use the sensory toys for a short period of time. We found that leaving them out or handy for him to discover on his own time helped him use them. There are many that he doesn’t find useful, but it helps to consider what type of under stimulation he is receiving, then focus on sensory items that help stimulate that sense. Hope that helps.
😂you are the best
Thankyou