Life with an Invisible Illness (ME/CFS)

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  • เผยแพร่เมื่อ 30 ก.ค. 2024
  • What are the realities people face with Myalgic Encephalomyelitis (ME)?
    What is it like living with this Invisible Illness?
    What is the main difference between someone with ME and a healthy person?
    #meandme #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs #longcovid
    Disclaimer: I am not a medical professional. The information share in this video comes from my own experiences and research. It is meant to be a discussion starter.

ความคิดเห็น • 16

  • @links_von_rechts4429
    @links_von_rechts4429 หลายเดือนก่อน +1

    Very well explained!

  • @intignia
    @intignia 2 หลายเดือนก่อน +1

    Thank you. You hit the nail on the head and explained our lack of stamina and strength perfectly.

  • @lotuspocus76312
    @lotuspocus76312 2 หลายเดือนก่อน +1

    When I hear "low energy level" I think of where the energy comes from in the first place....and that shows where the issue lies in my eyes....🤔

  • @youknowcrimedontpay9257
    @youknowcrimedontpay9257 2 ปีที่แล้ว +6

    Thank you for all the great videos. You bring our illness to light and hopefully one day we will all have relief from ME, CFS, & Fibromyalgia. I wish I could thank you personally for your kindness and dedication. We are so grateful and we appreciate you more then you know.
    Please like and subscribe and share this video and help yourself and others.
    Thank you.

    • @MEandme3
      @MEandme3  ปีที่แล้ว +1

      Thank you so much for your encouraging words! I am excited to post my next video which will be my younger brother’s story.

    • @youknowcrimedontpay9257
      @youknowcrimedontpay9257 ปีที่แล้ว

      @@MEandme3 Let him know I am thinking of both of you. You are simply amazing and so dedicated to this channel. I know exactly what his life is like.
      Sending both of you and your entire family all the strength and the very very best in life.
      ❤️

    • @MEandme3
      @MEandme3  ปีที่แล้ว +1

      I will ❤️

  • @bas3374
    @bas3374 7 หลายเดือนก่อน +2

    Wundervoll 👍❤️

  • @youknowcrimedontpay9257
    @youknowcrimedontpay9257 2 ปีที่แล้ว +3

    Love ❤️ this channel. Everything you've spoken about in every video I've watched is absolutely 100% accurate. Great job Bravo!

  • @zoomerboomer6834
    @zoomerboomer6834 2 ปีที่แล้ว +1

    Great content and presented very well. I realize that this might be beyond the scope of your channel, but I have a "few" questions.
    If individuals believes that they are possibly afflicted with ME/CFS, would you be able to describe the process on how to be properly and efficiently diagnosed?
    What medical discipline, if any, specializes in the diagnosis and treatment of ME/CFS?
    Once officially diagnosed, any recommendations on how individuals should approach their employer?
    If diagnosed, is ME/CFS considered a "disability" that may require employers to give an accommodation as an alternative to termination of employment?
    If individuals no longer have the capacity to be productive enough for continued practical employment, what are their options for subsistence?
    Thanks again for the information your presentation.

  • @nimaljayasiri6065
    @nimaljayasiri6065 ปีที่แล้ว +2

    Thank you for finding energy to make these very informative videos. Like someone else said earlier, i too wish i could say thank you in person. By the way, what tools do you use to make your videos, they are truly very professional looking.

    • @MEandme3
      @MEandme3  ปีที่แล้ว

      Thank you so much!
      I use Doodly to make the animations and iMovie to attach the clips 🎬🎥

    • @nimaljayasiri6065
      @nimaljayasiri6065 ปีที่แล้ว

      @@MEandme3 Thank you. Wish you the best !! 🙏