the best advice garry every game when we chatted was look after youself watch the bees on the flowers just relax. i had a few weeks and the first thing i did was watch gary’s videos to remind me to to look after myself rest recharge that battery you no what garry you’re so so right and i miss u so very much. ❤
My sons named it The Zonk in the 1990s. Used to need a daily nap, and slept 1 day a week 24 hrs. Now, I'm happy to get 1/2 day of a week awake, dressed, and out. Seeing Unrest movie made me grateful for what I have. Agree, chiropractor helps esp top cervical adjustments. FIR sauna, or anything to sweat helps. Sitting on back patio in dirct sunbeam makes a better day. SAMe supplement keeps depression away....Modafinil Rx worked for years, but not anymore. Been working with neurologist.... he's sending me to sleep specialist in Orlando!!!
I was so shocked when I just happened to see the such sad news in the paper yesterday! Thank you Gary for making this channel & doing your videos, they really did & continue to help me. Rest in Peace ✨
@@beeswax888 Turn to Jesus He loves you, He is the healer of the body And savior of the soul, There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16 1 Corinthians 15 1-4 Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain, For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures And that He was buried, and that He rose again the third day according to the scriptures, Take care
Hey I just want you to know that I’m in bed right now suffering from a pretty bad flare, hot and cold flashes, pain on the entire left side of my body. And you’re helping. You’re helping a lot. Thank you.
Having a tough time here too Gary. No 'better days' since end of August. It does just build up doesn't it. You need those ok days to keep your hope up and when they disappear the frustration builds and it all becomes too much. Thanks for checking in!
Thank you. Just discovered your videos after suffering CFS in a similar way to you for the past 20 months. Feeling very frustrated and low at the moment but you have brought back the hope & positivity that has been slowly draining from me. I will share your videos with my loved ones as you explain the condition so perfectly in a way I have been unable to express. Good luck with your journey to a healthy life
Bravo! Everything you've said just rings true, so nice to see other sufferers understanding the challenges of Chronic Fatigue and Fibro. I too do a lot of crying through utter frustration and it's usually a sign that I'm so exhausted. I tip my hat to you dealing with work as well as cfs. Great video clip, I sat nodding my head to most of it!
Late to the party here - just discovered your channel. Your optimism and cheer is nice to see and inspiring. I've been suffering with CFS for 30 years. I am all too familiar with the "putting on a brave face" and the many challenges that come with this debilitating illness. I had a friend once remark to me "you're the happiest depressed person I've ever met" lol. Thank you for creating this content. Being housebound 80% of the time makes it difficult to get out and connect with others - so it's nice to connect with others going through the same struggles. :)
Thank you! I am listening to this in my bed. I sleep about 12 hours a day and spend a lot of time in bed and on the sofa since I crashed a couple of months ago. I have been ill with ME for 10 years now. I usually feel a bit better in the summer. It frightens me to crash this badly...Best wishes to you 💜
Really good to see you again Gary. I have been resting as much as possible before my wedding this Saturday. I know you had to rest up in order to get through your big day and I'm hoping I'll be able to follow your advice and take some short time out intervals on the day too. I'm worried about the payback I'll get afterwards, but determined to enjoy no matter what.
Gary huge love and support to you. That handheld video is pretty rough for you and for me! But I'm so happy you shared this experience and honesty and a good message. With you all the way man.
Lovely to hear someone talk about the truth of how it is, I am worse with my illness than you, getting dressed means getting undressed an hour later as it's used too much energy and having to sleep for 2 or 3 hours, really appreciated the story about trying to leave the house and not being able to, never heard anyone talk so clearly about these things, keep going, and get these messages out there, the coffee with friends bit was really good too, and recognized about leaving the cups and plates on the drainer so not having to get them out again later :)
Great to see you again Gary, but sorry that you've not had a good month or so. Know exactly how you feel. I'm also getting through a less good period and, yes, crying sometimes. Find it helps as it releases tensions and reduces the stress and anxiety a bit. Hope things improve over the next few weeks for you and, yes, be kind to yourself.
Love your videos!! And I ABSOLUTELY understand if you can't update. You're videos are VERY helpful and I share them. You are a blessing, sir! Thank you for all you have done and the blog. You're amazing💞👍
I have had most me symptomes for a period of 22 years... before I got diagnosed this year, 2019. Worked as a elecrician since 1990 and motorcycle athlete from 1988, but since year 2000, thats all gone. All the best to Gary and all other me/cfs people. Cheers from Norway
Hello. I am sorry you have to deal with this debilitating condition. I have had Fibro and cfs for many years now. Your explanations and examples are spot on. My pain is unbearable at times, and the exhaustion is through the roof. I have ibs, thyroid issues, and vitamin deficiencies, I get very breathless. I have dreadful waves of nausea and dizziness, depression and anxiety as well. All fun.....I am in bed right now watching this video and understand your frustration. We have to be kind to ourselves and stop pushing so hard. I am a go-getter and active, so this is like being trapped in prison. I hope you find a good work-life balance and feel better. Prayers
Good to see you again! I have been wondering about you for a long time. I have fortunately found out what triggers the most of my ME, so I finally have a life. Not 100 % like before, bur backing it up some 20 years (of 35 years of getting worse and worse). My body gets inflamed by... plants! After a nearly two months of trasitioning from veggies and some meat and fish, I now eat only animal products. I ditched the coffe too after this mornings flare up after my morning mug. So... Beef, pork, fish, some poltry, eggs, butter, salt and seafood. That's it. The veggies that I ate more and more of... that was triggering my inflammation. I have no idea what is your trigger. But I have tried so many things... this was the only one that worked for me. If it can help someone else, I'll do that. Search for carnivore.
Nice to see you 🙂 Sorry to hear you've had a symptomatic September. Glad you can let out the emotions, and be kind to yourself. I find it immensely helpful too. Trying to work with the 'achiever'. Yes! Leave the plates!
Hi Gary, thank you for the update. I'm 5 yrs in to ME/CFS and can really relate to a lot of what you say. I haven't listened to all of your videos yet but felt compelled to mention the Optimum Health Clinic in London that specializes in ME/CFS. Sorry if your sick of people saying these types of things to you- I get that too, lol. I just wanted to mention it in case it may be of help. Looking forward to your next update! Thank you :-)
Hello how are you getting on now Gary? I am 52 and have been very poorly for 23 months. I did 9 days in neurology and they diagnosed me with Guilain Barre syndrome but now they believe I have ME. The truth is from learning so much about it now I know I have it. I just wondered how it was going for you this many years on.
Thank you Gary! I have spent the last 15 years wondering WTH is wrong with me. My GP initially diagnosed depression then a few years later diagnosed MECFS. Everything you said in your video resonated so much with me, I was literally nodding the whole way through! I am experiencing the worst episode so far. Off work for three months now! Thank God I am not severe like so many others, but feel extremely frustrated at the hand dealt to me none the less. Sending you well wishes from Northern Ireland!
Gary - I loved your honesty in this one, it made me relate to you in ways I hadn't before. It's hard to find good ME materials and this one I had to share with my husband because I knew he would understand your discussion, because it sounded verbatim how I discuss exertion (...amen that going out with one person is so much more difficult that one alone). I appreciate what you do and this video made me understand you a bit better. Thank you and I wish you successful pacing affording you delightful days with double dares that don't make you crash!
💙💙💙 Ive been thru hell , I'm traveling a few states up to see a specialist in a few days, my life is getting worse with the pain- I understand about the face we must put on as we are a generational bakery and people expect a happy healthy woman.... yet my 26 year old son had to take over our business because papa couldn't now me:( It's a tuff road but I know there's hope. So far I've been to Mexico next Germany if My Washington trip fails:( Here in my area I was written off and deemed a drug seeker even though I didn't ask for drugs:( I hear your words and I respect them- But I just want help at any cost- even the cost of my parents retirement- I need to get better- Cbd isolate I buy by the kilo as it's cheaper and wow it works :) I just wish it took the whole lot away:/ Be well my comrade, may we fight till the end. And rest in between.
Oh my gosh we’ve got the same type of CFS and then with the added bonus of restless leg syndrome which is such a pain in the arse when all you can do is lay down. So glad you’ve got something that helps with your legs, cos I feel like it’s adding salt to wound, you know all you can do is rest and then your legs go on one. Just came across your vids and love them, love your honesty and kindness. All the best to you
Oh Yay! You’re still around! Just the other week, I was looking through my subscriptions and saw the Zonked club, I was wondering about you and how you were. Honestly I was hoping you’d found your groove in coping with this hideous illness and that you were just too busy to update. So sorry that is not the case and like the rest of us you’re just muddling along from day to day. Great vlog by the way, I can relate to everything you say. In the two years I have been moderately ill (mostly house and bed bound) I have realised there is quite a bit that can make us feel rubbish, and a big one seems to be seasonal changes. There is definitely a pattern to my illness. I can be good for months, to the point where I’m rather proud of myself and suddenly symptoms flare and my energy levels drop massively. Every time I wonder why? And then... “Oh right, it,s autumn or spring,” Changes in weather too. Rain is a massive hit for me. Just as well I’m down on the Southern end of the world. 🇦🇺 . This is a horrible illness, and it takes a while to learn the lessons, and then relearn the lesson we thought we had learnt, and then relearn the lesson we thought.... And yes, the most important and most difficult is to be kind. Hang onto that one. It’s important. Gentle virtual hugs for you from over the sea. Don’t disappear on us again. You’re an important part of our community. 💙
PS. 😬 The Oh Yay! Really not meant as oh yay you’re still sick. 😅 But Oh Yay, you’re still able to make vlog and have not slipped into the severely ill category.
Great that you've uploaded as I always resonate with your vlogs but really sorry to hear that symptoms have come back with a vengeance. It's an incredibly frustrating illness, especially when you feel that you've reached a point where you're managing symptoms and then a flare hits but yes going back to basics is the only way to go. I'm in a similar situation at the minute and I feel like I should be used to it as I've been ill with this since 2005 but it's really tough to deal with. I'm mostly housebound with this illness and am constantly searching for low energy activities I can do to relieve the boredom ( hence being on you tube!) so I will look into your podcast suggestions, thanks for that. I also had a sudden revelation too when you were talking about going out for coffee with more than one friend using more energy, I actually don't think I'd thought of it in those terms. I'd just wondered why sometimes I can manage this on a good day, whereas other times the payback is huge. But actually yes I think that I tend to cope better if it's just me and hubby, but the more people I have to listen to & converse with, plus background music/ noise ect the harder it is. Anyway, nice to see another vlog from you and I really hope things get back on a more even keel for you soon. X
I don't send out fake pictures etc. They're all real as I don't take any. I put on Facebook saying I've been let down by carers so my daughter can't get to school. I'm exhausted, can't pay bills, can't buy school shoes... I'm not sure how much longer I can survive this. I'm here for my children. But I can't wait for the day I'm not.
Gary, look into the story of Jeff Wood and Craniocervical Instability causing CFS. It's basically the vertebrae in your neck have excessive movement due to ligament laxity which pinches and compresses arteries and nerves which restricts blood flow through the neck. Jeff Wood was 100% fixed and thinks many people with CFS have this.
I can relate so well to the mask we put on for the outside world. I put lots of make-up on to go to my parttime job because I'm terrified people will see how tired I really am and will wonder if I'm actually up for it...
If I told everyone the truth when they asked me how I was, they would never talk to me again. No matter how much or long we try to explain how we actually really are no one would understand what we were trying to say anyway. Only way for them to know what we are going through 24/7 is to jump into our bodies if that was ever possible.
thank you for speaking to us 💛 I recognize so much in my own life and listening to you talking makes my own situation more real and then also easier to practice acceptance and kindness. 💛 would love to hear more on this channel, but as always, health is first priority! sending love to all of the warriors out here who are dealing with these challenges. 🤗
I’m a fake too . If you watched my videos , nobody would believe how sick I can be . A video can put me back to bed for two days . I put a lot of work into mine , make up, hair and lots of outfit changes . Then the editing with a crappy old slow computer . Why do I do it . I’m rethinking other ways . Perhaps might use my phone more often . Xx yes we need to prioritise all the time .
I had to give up work. I was working 7 days a week and just couldn't carry on with it anymore. Your in a very lucky position with work. Im just happy that i can rest now whenever i need to... Whereas before i put on this brave face and was clearly struggling alot.
Multiple tasking is impossible I can’t walk outside. The Walking is horrible and also painful have to use power chair. My cognitive dysfunction are very badly mess up. So cannot coordinate the seeing hearing and walking. Walking outside not possible for me it will finish me off.
Tara Drolma hi I only found his channel today, I googled him and very sad to say he died in Jan 2022 of cancer. So so sad. He was only 46 he died in his sleep it says.
@@kazz.c1234 I have just found Gary and was wondering why there wasn't any recent videos. He seemed like such a lovely man. My heart goes out to his family❤
I'm so sad to hear he died at only 46. I'm 46 and have had cfs for 9 years. I'm always paranoid that I've got something like cancer. Because basically, how can you feel this ill for 9 years and not have something malignant going on underneath. Rest in peace Gary 🙏
the best advice garry every game when we chatted was look after youself watch the bees on the flowers just relax. i had a few weeks and the first thing i did was watch gary’s videos to remind me to to look after myself rest recharge that battery you no what garry you’re so so right and i miss u so very much.
❤
My sons named it The Zonk in the 1990s. Used to need a daily nap, and slept 1 day a week 24 hrs. Now, I'm happy to get 1/2 day of a week awake, dressed, and out. Seeing Unrest movie made me grateful for what I have.
Agree, chiropractor helps esp top cervical adjustments. FIR sauna, or anything to sweat helps. Sitting on back patio in dirct sunbeam makes a better day. SAMe supplement keeps depression away....Modafinil Rx worked for years, but not anymore. Been working with neurologist.... he's sending me to sleep specialist in Orlando!!!
Thank you Gary.Words of a true champion.Be free,fly and rest in peace🦋
I was so shocked when I just happened to see the such sad news in the paper yesterday! Thank you Gary for making this channel & doing your videos, they really did & continue to help me. Rest in Peace ✨
@@beeswax888 Turn to Jesus He loves you, He is the healer of the body And savior of the soul, There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16
1 Corinthians 15 1-4
Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand
By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain,
For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures
And that He was buried, and that He rose again the third day according to the scriptures, Take care
Hey I just want you to know that I’m in bed right now suffering from a pretty bad flare, hot and cold flashes, pain on the entire left side of my body. And you’re helping. You’re helping a lot. Thank you.
For me, becoming chilled (beyond it being cold) is a sign that I've overdone and am going to crash hard any second. Sending you hugs.
What a beautiful soul, so sad
Having a tough time here too Gary. No 'better days' since end of August. It does just build up doesn't it. You need those ok days to keep your hope up and when they disappear the frustration builds and it all becomes too much.
Thanks for checking in!
Thank you. Just discovered your videos after suffering CFS in a similar way to you for the past 20 months. Feeling very frustrated and low at the moment but you have brought back the hope & positivity that has been slowly draining from me. I will share your videos with my loved ones as you explain the condition so perfectly in a way I have been unable to express. Good luck with your journey to a healthy life
Sending best wishes.
Bravo! Everything you've said just rings true, so nice to see other sufferers understanding the challenges of Chronic Fatigue and Fibro. I too do a lot of crying through utter frustration and it's usually a sign that I'm so exhausted. I tip my hat to you dealing with work as well as cfs. Great video clip, I sat nodding my head to most of it!
Late to the party here - just discovered your channel. Your optimism and cheer is nice to see and inspiring. I've been suffering with CFS for 30 years. I am all too familiar with the "putting on a brave face" and the many challenges that come with this debilitating illness. I had a friend once remark to me "you're the happiest depressed person I've ever met" lol. Thank you for creating this content. Being housebound 80% of the time makes it difficult to get out and connect with others - so it's nice to connect with others going through the same struggles. :)
Thank you! I am listening to this in my bed. I sleep about 12 hours a day and spend a lot of time in bed and on the sofa since I crashed a couple of months ago. I have been ill with ME for 10 years now. I usually feel a bit better in the summer. It frightens me to crash this badly...Best wishes to you 💜
39 yrs for me
Really good to see you again Gary. I have been resting as much as possible before my wedding this Saturday. I know you had to rest up in order to get through your big day and I'm hoping I'll be able to follow your advice and take some short time out intervals on the day too. I'm worried about the payback I'll get afterwards, but determined to enjoy no matter what.
Gary huge love and support to you. That handheld video is pretty rough for you and for me! But I'm so happy you shared this experience and honesty and a good message. With you all the way man.
Lovely to hear someone talk about the truth of how it is, I am worse with my illness than you, getting dressed means getting undressed an hour later as it's used too much energy and having to sleep for 2 or 3 hours, really appreciated the story about trying to leave the house and not being able to, never heard anyone talk so clearly about these things, keep going, and get these messages out there, the coffee with friends bit was really good too, and recognized about leaving the cups and plates on the drainer so not having to get them out again later :)
Rest In Peace Gary.
Great to see you again Gary, but sorry that you've not had a good month or so. Know exactly how you feel. I'm also getting through a less good period and, yes, crying sometimes. Find it helps as it releases tensions and reduces the stress and anxiety a bit. Hope things improve over the next few weeks for you and, yes, be kind to yourself.
You Sir, are awesome!
Love your videos!! And I ABSOLUTELY understand if you can't update. You're videos are VERY helpful and I share them.
You are a blessing, sir! Thank you for all you have done and the blog. You're amazing💞👍
I have had most me symptomes for a period of 22 years... before I got diagnosed this year, 2019. Worked as a elecrician since 1990 and motorcycle athlete from 1988, but since year 2000, thats all gone. All the best to Gary and all other me/cfs people. Cheers from Norway
Hello. I am sorry you have to deal with this debilitating condition. I have had Fibro and cfs for many years now. Your explanations and examples are spot on. My pain is unbearable at times, and the exhaustion is through the roof. I have ibs, thyroid issues, and vitamin deficiencies, I get very breathless. I have dreadful waves of nausea and dizziness, depression and anxiety as well. All fun.....I am in bed right now watching this video and understand your frustration. We have to be kind to ourselves and stop pushing so hard. I am a go-getter and active, so this is like being trapped in prison. I hope you find a good work-life balance and feel better. Prayers
Unfortunately Gary died last year
@@GeoffreyGibson-yh3cv I am so sorry. May he RIP
Good to see you again! I have been wondering about you for a long time.
I have fortunately found out what triggers the most of my ME, so I finally have a life. Not 100 % like before, bur backing it up some 20 years (of 35 years of getting worse and worse).
My body gets inflamed by... plants!
After a nearly two months of trasitioning from veggies and some meat and fish, I now eat only animal products. I ditched the coffe too after this mornings flare up after my morning mug. So...
Beef, pork, fish, some poltry, eggs, butter, salt and seafood. That's it.
The veggies that I ate more and more of... that was triggering my inflammation.
I have no idea what is your trigger. But I have tried so many things... this was the only one that worked for me. If it can help someone else, I'll do that. Search for carnivore.
Nice to see you 🙂
Sorry to hear you've had a symptomatic September.
Glad you can let out the emotions, and be kind to yourself.
I find it immensely helpful too. Trying to work with the 'achiever'.
Yes! Leave the plates!
I am so.glad to have found you. I sent resonate with everything you say.
This is always a great reminder. Thanks for using some of your precious energy to share. Sending love + health
Thank you for the reminder to be kind to myself, I've had CFS for a few years now again tyvm
Hi Gary, thank you for the update. I'm 5 yrs in to ME/CFS and can really relate to a lot of what you say. I haven't listened to all of your videos yet but felt compelled to mention the Optimum Health Clinic in London that specializes in ME/CFS. Sorry if your sick of people saying these types of things to you- I get that too, lol. I just wanted to mention it in case it may be of help. Looking forward to your next update! Thank you :-)
Hello how are you getting on now Gary? I am 52 and have been very poorly for 23 months. I did 9 days in neurology and they diagnosed me with Guilain Barre syndrome but now they believe I have ME. The truth is from learning so much about it now I know I have it. I just wondered how it was going for you this many years on.
Thank you Gary! I have spent the last 15 years wondering WTH is wrong with me. My GP initially diagnosed depression then a few years later diagnosed MECFS. Everything you said in your video resonated so much with me, I was literally nodding the whole way through! I am experiencing the worst episode so far. Off work for three months now! Thank God I am not severe like so many others, but feel extremely frustrated at the hand dealt to me none the less. Sending you well wishes from Northern Ireland!
Gary - I loved your honesty in this one, it made me relate to you in ways I hadn't before. It's hard to find good ME materials and this one I had to share with my husband because I knew he would understand your discussion, because it sounded verbatim how I discuss exertion (...amen that going out with one person is so much more difficult that one alone). I appreciate what you do and this video made me understand you a bit better. Thank you and I wish you successful pacing affording you delightful days with double dares that don't make you crash!
💙💙💙 Ive been thru hell , I'm traveling a few states up to see a specialist in a few days, my life is getting worse with the pain-
I understand about the face we must put on as we are a generational bakery and people expect a happy healthy woman.... yet my 26 year old son had to take over our business because papa couldn't now me:( It's a tuff road but I know there's hope. So far I've been to Mexico next Germany if My Washington trip fails:(
Here in my area I was written off and deemed a drug seeker even though I didn't ask for drugs:( I hear your words and I respect them- But I just want help at any cost- even the cost of my parents retirement- I need to get better- Cbd isolate I buy by the kilo as it's cheaper and wow it works :) I just wish it took the whole lot away:/
Be well my comrade, may we fight till the end. And rest in between.
Oh my gosh we’ve got the same type of CFS and then with the added bonus of restless leg syndrome which is such a pain in the arse when all you can do is lay down. So glad you’ve got something that helps with your legs, cos I feel like it’s adding salt to wound, you know all you can do is rest and then your legs go on one.
Just came across your vids and love them, love your honesty and kindness.
All the best to you
Oh Yay! You’re still around! Just the other week, I was looking through my subscriptions and saw the Zonked club, I was wondering about you and how you were. Honestly I was hoping you’d found your groove in coping with this hideous illness and that you were just too busy to update. So sorry that is not the case and like the rest of us you’re just muddling along from day to day. Great vlog by the way, I can relate to everything you say. In the two years I have been moderately ill (mostly house and bed bound) I have realised there is quite a bit that can make us feel rubbish, and a big one seems to be seasonal changes. There is definitely a pattern to my illness. I can be good for months, to the point where I’m rather proud of myself and suddenly symptoms flare and my energy levels drop massively. Every time I wonder why? And then... “Oh right, it,s autumn or spring,” Changes in weather too. Rain is a massive hit for me. Just as well I’m down on the Southern end of the world. 🇦🇺 . This is a horrible illness, and it takes a while to learn the lessons, and then relearn the lesson we thought we had learnt, and then relearn the lesson we thought.... And yes, the most important and most difficult is to be kind. Hang onto that one. It’s important.
Gentle virtual hugs for you from over the sea. Don’t disappear on us again. You’re an important part of our community. 💙
PS. 😬 The Oh Yay! Really not meant as oh yay you’re still sick. 😅 But Oh Yay, you’re still able to make vlog and have not slipped into the severely ill category.
I miss you 😭😭😢
Mold illness is the absolute worst 💔
Did he have mold illness?
Great that you've uploaded as I always resonate with your vlogs but really sorry to hear that symptoms have come back with a vengeance. It's an incredibly frustrating illness, especially when you feel that you've reached a point where you're managing symptoms and then a flare hits but yes going back to basics is the only way to go. I'm in a similar situation at the minute and I feel like I should be used to it as I've been ill with this since 2005 but it's really tough to deal with. I'm mostly housebound with this illness and am constantly searching for low energy activities I can do to relieve the boredom ( hence being on you tube!) so I will look into your podcast suggestions, thanks for that. I also had a sudden revelation too when you were talking about going out for coffee with more than one friend using more energy, I actually don't think I'd thought of it in those terms. I'd just wondered why sometimes I can manage this on a good day, whereas other times the payback is huge. But actually yes I think that I tend to cope better if it's just me and hubby, but the more people I have to listen to & converse with, plus background music/ noise ect the harder it is. Anyway, nice to see another vlog from you and I really hope things get back on a more even keel for you soon. X
Thanks for being my voice
Great to see you back. 😊.....and awesome honesty. So refreshing. You really help others a lot. 😊
I don't send out fake pictures etc. They're all real as I don't take any. I put on Facebook saying I've been let down by carers so my daughter can't get to school.
I'm exhausted, can't pay bills, can't buy school shoes... I'm not sure how much longer I can survive this. I'm here for my children. But I can't wait for the day I'm not.
Sending you love and hugs.
And on you go! Thanks for sharing so honestly and with such clarity, take care, keep cosy and be as well as possible 💪😴👊
Hi gary.im in bed 3 weeks crashed in bed trying not to feel sorry for myself😒 glad to see you.xx
Love your work Garry!
nice to see you back Gary, I know what you mean, I did too much last week, totally wiped me out
Gary, look into the story of Jeff Wood and Craniocervical Instability causing CFS. It's basically the vertebrae in your neck have excessive movement due to ligament laxity which pinches and compresses arteries and nerves which restricts blood flow through the neck. Jeff Wood was 100% fixed and thinks many people with CFS have this.
Gary died in 2020.
But I have heard of neck problems causing cfs in some people.
I can relate so well to the mask we put on for the outside world. I put lots of make-up on to go to my parttime job because I'm terrified people will see how tired I really am and will wonder if I'm actually up for it...
If I told everyone the truth when they asked me how I was, they would never talk to me again. No matter how much or long we try to explain how we actually really are no one would understand what we were trying to say anyway. Only way for them to know what we are going through 24/7 is to jump into our bodies if that was ever possible.
thank you for speaking to us 💛
I recognize so much in my own life and listening to you talking makes my own situation more real and then also easier to practice acceptance and kindness.
💛 would love to hear more on this channel, but as always, health is first priority! sending love to all of the warriors out here who are dealing with these challenges.
🤗
I’m a fake too . If you watched my videos , nobody would believe how sick I can be . A video can put me back to bed for two days . I put a lot of work into mine , make up, hair and lots of outfit changes . Then the editing with a crappy old slow computer . Why do I do it . I’m rethinking other ways . Perhaps might use my phone more often . Xx yes we need to prioritise all the time .
I had to give up work. I was working 7 days a week and just couldn't carry on with it anymore. Your in a very lucky position with work. Im just happy that i can rest now whenever i need to... Whereas before i put on this brave face and was clearly struggling alot.
Rest in peace
miss seeing you around buddy!
But thanks you, cause I can use you as my proof.
how do you find meaning in life
Multiple tasking is impossible I can’t walk outside.
The Walking is horrible and also painful have to use power chair.
My cognitive dysfunction are very badly mess up.
So cannot coordinate the seeing hearing and walking.
Walking outside not possible for me it will finish me off.
I have all these symptoms, I have not been diagnosed, what do I do, I feel soo down
Get you're GP to send you to a rumotologist that is knowledgeable about FM / ME.
Thank you. Hope for good research And medication..as a result.! Greetings Holland 2020
I think Gary does an excellent job of explaining what ME feels like. I would like to know how he is doing now. Is he better?
Tara Drolma hi I only found his channel today, I googled him and very sad to say he died in Jan 2022 of cancer. So so sad. He was only 46 he died in his sleep it says.
@@kazz.c1234 I have just found Gary and was wondering why there wasn't any recent videos. He seemed like such a lovely man. My heart goes out to his family❤
I'm so sad to hear he died at only 46.
I'm 46 and have had cfs for 9 years.
I'm always paranoid that I've got something like cancer. Because basically, how can you feel this ill for 9 years and not have something malignant going on underneath.
Rest in peace Gary 🙏
How are you holding on man? Long time no hear.
He died 🙏
How are you getting on now Gary?
How are you now Gary?
Where are you at right now?
Hi x
Hi i hope your ok?! Will you be doing anymore, if your well enough! xx
Sadly he passed away from cancer in January 2022, thats what I read on another comment. 😔
Yes Google his name and you'll find confirmation 🙏
Have you looked into stachybotrys mold?
Hi Gary.
Im really struggling with pain. Could you do a video about your CBD oils as im getting pain and can't sleep at all at night.
Gary died in 2020 🙏
Considering the pain you have I think you have fibromyalgia
CDC advises that Fibromyalgia is actually ME which are both the same. If you Google new name for Fibromyalgia ME pops up.
How are you getting on?
Gary dies 1st Jan 2022 of cancer
@@kazz.c1234 kidding me, that’s terrible. So sorry. RIP brother ❤️
Why don't we begin a worldwide drive to raise money to find help?
If we don't we cannot count on anyone to help us.