King's Tale (Living with Beare-Stevenson Syndrome)

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  • เผยแพร่เมื่อ 7 พ.ย. 2024

ความคิดเห็น • 311

  • @BLOVES
    @BLOVES 3 ปีที่แล้ว +518

    The siblings that come out of these special need families seem to be the most amazing humans EVER!!!

    • @manestage5403
      @manestage5403 3 ปีที่แล้ว +14

      And very mature!

    • @freedomofspeech766
      @freedomofspeech766 3 ปีที่แล้ว +2

      Does the darling little King have a dad?

    • @mattbrown4651
      @mattbrown4651 2 ปีที่แล้ว +16

      What this channel, probably quite rightly, does is over egg the positives.
      My profoundly disabled sister broke every family member one way or another. All 3 siblings had / have some neurological issue. On top of that I've suffered 35 yrs of multi substance addiction, stemming from legit prescriptions.
      I challenge Chris to find me some positives in my life.
      Despite my personal negative attitude, I applaud Chris for the massive positivity and knowledge he spreads.
      Great work chap, the world could use more of you.

    • @mcmlxii4419
      @mcmlxii4419 2 ปีที่แล้ว +1

      BLOVES ~Yes, they do! This precious little boy has a great family.

    • @aronlelenora9572
      @aronlelenora9572 2 ปีที่แล้ว +2

      ❤❤❤❤

  • @macobats
    @macobats 3 ปีที่แล้ว +314

    Wow, that's horrible that a nurse was negligent! Some nurses don't take their job seriously. She was being kind. As a nurse, you either take your job seriously or you are negligent! That being said, the love for this child is beautiful...

    • @chantellegattrell7073
      @chantellegattrell7073 3 ปีที่แล้ว +26

      Sadly some are in it for the money which is so heartrenching

    • @anthonylockhart6120
      @anthonylockhart6120 2 ปีที่แล้ว +10

      @@chantellegattrell7073 exactly 💯 some of these people don't deserve to have a job in the medical field

    • @weetzybat
      @weetzybat ปีที่แล้ว +3

      Its one thing to be in it for the money but at least put in the work

  • @craigward7691
    @craigward7691 3 ปีที่แล้ว +156

    Nothing but good parenting and wonderful sibling love in this video......God bless all of them

  • @NAprincess324
    @NAprincess324 3 ปีที่แล้ว +98

    This had me In tears I wish every child could be born healthy but I’m so happy he has such amazing support from his family God bless this young man ♥️

  • @carolinamachado5919
    @carolinamachado5919 3 ปีที่แล้ว +130

    Oh Gosh, what an amazing family! His sister has such a beautiful soul.

  • @keona3157
    @keona3157 3 ปีที่แล้ว +36

    Such a honest mother and the most well behaved compassionate children

  • @DogGran
    @DogGran 3 ปีที่แล้ว +277

    King was born to a QUEEN! That is one amazing Momma right there, her children are well adjusted compassionate and loving 🥰 Love this whole beautiful family.

    • @ktgoldielocks5187
      @ktgoldielocks5187 2 ปีที่แล้ว +3

      YESSSSSSS a queen 👑

    • @mesleyraves9983
      @mesleyraves9983 2 ปีที่แล้ว +2

      amen

    • @g0tsp33d
      @g0tsp33d 2 ปีที่แล้ว

      @@ktgoldielocks5187 queen of terrible genetics

    • @Sav-ed8wo
      @Sav-ed8wo หลายเดือนก่อน

      Yes she is a great mother to teach her kids to be accepting

  • @Totalchaos0228
    @Totalchaos0228 3 ปีที่แล้ว +330

    So someone's negligence cost him his ability to communicate how he used to...that's terrible!! You cant tell this mom loves her children with everything in her.

    • @WestinNReptar
      @WestinNReptar 3 ปีที่แล้ว +50

      Yeah this stood out so much to me--I'd actually like to know the details.

    • @laymere9905
      @laymere9905 3 ปีที่แล้ว +2

      you cant or you can cause by the look of it she does

    • @raydenbartley
      @raydenbartley 2 ปีที่แล้ว +6

      @@WestinNReptar Chris probably was told the details. But negligent nurse is all we need to know

    • @icanbeyourgeniehowboutalad5158
      @icanbeyourgeniehowboutalad5158 ปีที่แล้ว +1

      So he got brain damage pretty much from the lack of oxygen to the brain?

  • @CCK28
    @CCK28 3 ปีที่แล้ว +78

    I love how honest King’s mother is.

  • @rosemarys2465
    @rosemarys2465 3 ปีที่แล้ว +79

    This little boy is so very loved! Hugs! Such a great family!

  • @Bimboslayer
    @Bimboslayer 3 หลายเดือนก่อน +9

    Rest in peace, King. He died in 2023 at 10 years old. He will be missed ❤️

  • @ptrdshijfffjvddf
    @ptrdshijfffjvddf 3 ปีที่แล้ว +268

    Ebony is such an incredible big sister!!

    • @janicewashington4318
      @janicewashington4318 3 ปีที่แล้ว +11

      She’s the best big sis ❤️

    • @miapdx503
      @miapdx503 ปีที่แล้ว +3

      Beautiful inside and out! She's going to be an amazing woman 🌹

  • @rickysmoothshow2207
    @rickysmoothshow2207 3 ปีที่แล้ว +32

    This is an amazing family. That little girl is so smart and caring, I love her and her love for her brother.

  • @marcokat1
    @marcokat1 3 ปีที่แล้ว +43

    wow this family is beautiful. they all shine in such special ways.

  • @brendalg4
    @brendalg4 3 ปีที่แล้ว +298

    I wish they would go more into detail about a person's condition. The reason King has some of his issues is because a nursing facility didn't take proper care of him. I know they mention it but it is so little that people might not make the connection. Lack of oxygen to the brain caused him to have a heart attack. This happened because the nursing facility did not properly take care of him

    • @amandacharlebois9295
      @amandacharlebois9295 3 ปีที่แล้ว +30

      which is infuriating!!

    • @alexiz0013
      @alexiz0013 3 ปีที่แล้ว +25

      Wow, that is horrible! Did they (or could they) sue?

    • @hencole
      @hencole 3 ปีที่แล้ว +17

      @@alexiz0013 They could and probably did, but it isn't going to make him better.

    • @nickrichrriicchh5890
      @nickrichrriicchh5890 3 ปีที่แล้ว +1

      Why do you think that?

    • @brendalg4
      @brendalg4 3 ปีที่แล้ว +1

      @@alexiz0013 I don't remember if they talked about trying to sue them. I would think if I had found info on that I would have put it in my original comment

  • @thegulfcoastexperience
    @thegulfcoastexperience 3 ปีที่แล้ว +53

    This is one strong family. King, you are blessed. Keep fighting lil man.

  • @vielkadenerson2534
    @vielkadenerson2534 3 ปีที่แล้ว +19

    I'm impressed with the sister , she is so wise ,so mature for her age and the love for her precious brother is amazing ! the mom is so strong and so committed , God bless this extraordinary family !

    • @rudynewman2040
      @rudynewman2040 ปีที่แล้ว +1

      The sister is just darling. So sweet and compassionate toward her brother.
      Even the little brother is kind and loving. And we all know this love and behavior has come straight from Mamabear!!

  • @kateeppolito4272
    @kateeppolito4272 3 ปีที่แล้ว +17

    Wow this was so special to watch. King’s siblings are so full of love for him. And his mom is a handpicked mama for sure

  • @kellanbellchamber6430
    @kellanbellchamber6430 3 ปีที่แล้ว +81

    His brother is so sweet 🥺❤️"i love him because i love him" ahh so cute

  • @brennanreidy6669
    @brennanreidy6669 2 ปีที่แล้ว +22

    Ebony is the epitome of an angel. She is SO mature and I'm so amazed by her speech and knowledge. She's so well spoken, and I can tell that their Mom is a stellar parent and teacher. They're respectful, loving, protective, all the traits a sibling could wish for.

  • @MJJIllseeyouinheaven
    @MJJIllseeyouinheaven 3 ปีที่แล้ว +37

    Such a caring and loving family - a truly blessed family. I wish you all the best for the future!
    Greetings from Germany

  • @tammy3458
    @tammy3458 3 ปีที่แล้ว +11

    What a beautiful loving family. You can see how devoted they all are to each other❤️🙏🏻These thoughtful, sweet siblings are truly a rarity.

  • @tinkerbell1666
    @tinkerbell1666 3 ปีที่แล้ว +15

    Queen mom has done an amazing, amazing job raising her children. They are so well adjusted and loving. What a beautiful family!! Mom your kids are awesome. Your daughter is so mature. God bless your family.

  • @wakingohiomama9110
    @wakingohiomama9110 3 ปีที่แล้ว +33

    Dear God bless your whole family King! That little girl is so intelligent loving and articulate!!!! GO MAMA BEAR I LOVE YOUR FAMILY!

  • @4Mr.Crowley2
    @4Mr.Crowley2 9 หลายเดือนก่อน +6

    Hearing this poor child, who is blind and due to the massive brain traumas he doesn’t respond to anything, laboring so hard to take basic breaths, even when he has a trache and oxygen supplements etc, is just tragic. That labored breathing is very taxing on the cardio system and is definitely painful for him. Sigh.

  • @vwlh8r
    @vwlh8r 3 ปีที่แล้ว +11

    I love King and his family. It's so inspirational to see people who love each other so much.

  • @Monkey3328
    @Monkey3328 3 ปีที่แล้ว +17

    I feel bad king really has a beautiful heart and deserves so much love

  • @jakecompton8733
    @jakecompton8733 3 ปีที่แล้ว +24

    The sister is so smart and kind

  • @JackieHagge
    @JackieHagge 3 ปีที่แล้ว +23

    Love to know how King and his awesome family is doing now

  • @kathrynoneill5862
    @kathrynoneill5862 3 ปีที่แล้ว +22

    Precious little baby boy.

  • @susanpaul4752
    @susanpaul4752 3 ปีที่แล้ว +5

    Beautiful children...lovely mother who has taught her children well...beautiful family. Lucky King to have these loving family members.

  • @zoesmith849
    @zoesmith849 2 ปีที่แล้ว +2

    Lovely to meet you all! What a beautiful family. Thank you for sharing your love ❤️

  • @kimikae4170
    @kimikae4170 3 ปีที่แล้ว +7

    I'm speechless at the beautiful sweet pure love this mother has for her sweet special son, and all her children..... And Kings sister is as precious as can be! WoW what a beautiful gem she is shinning like she does when she just looks at him even. And of course Kings brother is a cutie who loves his brother dearly.
    Such a lovely, loving, beautiful family..... If all families could have such a loving strong mama as King does, boy oh boy what a wonderful world this would be!oh
    Cheers!

  • @jennia4853
    @jennia4853 2 ปีที่แล้ว +3

    I’m so impressed by the sister’s compassion and level of maturity. She is a beautiful soul.

  • @DeAnn909
    @DeAnn909 ปีที่แล้ว +7

    I love that they named him King. That's a cool name.

  • @ingridisaviolet8498
    @ingridisaviolet8498 3 ปีที่แล้ว +23

    Even though this condition makes day to day life a little more difficult I think King really brought this family together. 😌

  • @localgyakutenkenjitu
    @localgyakutenkenjitu 3 ปีที่แล้ว +24

    it puts things into perspective how good you have it when you see someone so young stepping up to the plate and doing so much for her sibling

  • @debraholz9756
    @debraholz9756 3 ปีที่แล้ว +8

    WOW So beautiful! What an amazing, loving mom and sweet brother and sister. Excellent parenting, momma

  • @dawna4185
    @dawna4185 3 ปีที่แล้ว +25

    what an incredible family!

  • @1Sarradd
    @1Sarradd 3 ปีที่แล้ว +5

    Love and prayers for you and your family. I lost my niece to trisomy 18 who had a lot of similar needs. I was a caretaker for her. Your struggles are real and your love is real and thank you for doing this video to show the world that love is stronger than anything.

    • @lexiev1250
      @lexiev1250 ปีที่แล้ว +1

      I’m so sorry for your loss 😥

  • @teacherbecca526
    @teacherbecca526 3 ปีที่แล้ว +17

    I'm thankful that God chose me to be his Momma. Yes, that's it right there. You are an amazing woman of faith. Thank you for sharing your story with us and giving such a beautiful perspective on what many would regard as a difficult situation. 🥰

  • @robbyyn
    @robbyyn 3 ปีที่แล้ว +59

    "God gives his toughest battles to His toughest soldiers" - Here's to you, soldier mom! And to your amazing kids!

  • @MD-lw4kw
    @MD-lw4kw 3 ปีที่แล้ว +8

    most supportive real mother I've seen on this entire channel

  • @HS-cf4lb
    @HS-cf4lb 3 ปีที่แล้ว +12

    El Rey is a gift of God. Bless him and his beautiful family. I'm so humbled by this channel and all these kids. Lord please forgive me for every time I've complained about the petty things that I complain about and thankyou for bringing this gift in to my life.

  • @Sharonlee334
    @Sharonlee334 3 ปีที่แล้ว +11

    Such a special family! ❤️

  • @youcanthandletheheat
    @youcanthandletheheat 2 ปีที่แล้ว +2

    I love seeing how much these families love their special babies. The parents are amazing the siblings are amazing. Just amazing angels on this earth.

  • @evonza4858
    @evonza4858 3 ปีที่แล้ว +20

    God continue to bless this little guy and everybody who takes care of him🥰❤️🖤💚

  • @ktgoldielocks5187
    @ktgoldielocks5187 2 ปีที่แล้ว +3

    I really love & appreciate his mother's honesty about getting used to how he looked at first

  • @grahamvandyke
    @grahamvandyke 2 ปีที่แล้ว +7

    I had a tracheostomy years ago and whenever I was in desperate need of suctioning it felt like I was drowning in my own mucus. He has a really incredible sister who's willing to do that all for him.

  • @queenettajones5510
    @queenettajones5510 3 ปีที่แล้ว +13

    Awwwww king is so cute 😊. His family really loves him.

  • @suzannemenuet947
    @suzannemenuet947 2 หลายเดือนก่อน +1

    He has the best siblings and mother anyone could ask for.❤❤❤

  • @TheElektra
    @TheElektra 3 ปีที่แล้ว +1

    I learned so much from that little girl just watching this. What a phenomenal sister and human. This family is amazing. Kids are so smart and loving and so is mom!

  • @gerardnoles8273
    @gerardnoles8273 3 ปีที่แล้ว +2

    I'm so moved and touched by kings story!
    Mom, sister and brother what a supportive family that can push as mom says a little more.
    Our children is our life
    and mom you are exemplifying that love that no one else can bear!
    Love you dearly!
    Sent with gentle effect!
    G.Noles
    Mesquite, Tx

  • @adamisaac4685
    @adamisaac4685 2 ปีที่แล้ว +1

    Love you guys so much!
    I am a musician from Madison Wisconsin. It’s been a pleasure meeting your little king.
    What a boy!!! My heart has definitely gotten larger.
    You are very blessed indeed.
    God does give his toughest battles to his strongest soldiers.
    I love you ❤️

  • @patricialewis-neal376
    @patricialewis-neal376 3 ปีที่แล้ว +20

    King is God’s child, and he’s Loved just like all of God’s children. He’s a blessing and very loved. God has him in his arms always. 🙏❤️🙏

  • @BrooklynGirl
    @BrooklynGirl ปีที่แล้ว +1

    What a beautiful family. God Bless you all.

  • @hyeena7290
    @hyeena7290 3 ปีที่แล้ว +8

    And Ebony, you are a beautiful, young lady! A true angel.

  • @cherylarmstrong5880
    @cherylarmstrong5880 3 ปีที่แล้ว +3

    Wouldn't it be a much better world if all parents bought their kids up to be as loving and kind as these. They are a fantastic example for everyone to learn from, even though they have had to cope with negligence from staff who should have been more professional. This happens far more frequently than it should, my family included. God bless all of you.

  • @victoriap1649
    @victoriap1649 3 ปีที่แล้ว +5

    Sending so much love to King and his amazing family ♥️♥️♥️♥️

  • @keeleehudson
    @keeleehudson 3 ปีที่แล้ว +10

    What a beautiful family 😍🥰

  • @elizabethyoungshoeboot9880
    @elizabethyoungshoeboot9880 3 ปีที่แล้ว +6

    That's what love is for a family that is full of love for one another.

  • @joker6solitaire
    @joker6solitaire หลายเดือนก่อน +1

    What a lovely family. That's so adorable hearing his brother talk about watching Power Rangers together! And Big Sister, you are a strong young lady; I know your family is so proud of you. King, I hope you get lots more birthdays with fun superhero cakes!
    To King's Momma: I just about burst into tears when you revealed that King became so severely impaired due to his nurse's negligence. I deeply admire your perseverance, love, and pride in your family. I wish you all the very best.

  • @stephie7015
    @stephie7015 3 ปีที่แล้ว +2

    Wow!! What a loving family! Blessings!

  • @bornfree0507
    @bornfree0507 7 หลายเดือนก่อน +1

    I just love how much they love him!! Their little brother!!

  • @debraronan8389
    @debraronan8389 3 ปีที่แล้ว +4

    God bless you sweet King. You are loved!! 😘❤

  • @patricialambert1827
    @patricialambert1827 3 ปีที่แล้ว +2

    King, you are loved! You have a wonderful, loving family! Bless you!💕💕

  • @JasonBrockStick
    @JasonBrockStick 2 ปีที่แล้ว

    Thank You for sharing King’s story :) You are helping open people’s Hearts ♥️Your families Love towards King is warming so many lives, King and others souls born here with such difficulties are here to teach us some of the biggest lessons. You are an amazing family.

  • @amandamorcan3330
    @amandamorcan3330 2 ปีที่แล้ว

    You, beautiful lady, are an inspiration to all!! 💖 you have done such a wonderful job raising your children and have such a pure heart, as do your children... King is blessed to be part of such a family 🥰

  • @ScottBeck-hk2lq
    @ScottBeck-hk2lq 9 หลายเดือนก่อน

    This young man's family and most especially his sister are just, wow. What incredible hearts with just so much love.

  • @blackcitroenlove
    @blackcitroenlove 2 ปีที่แล้ว +1

    I love this young King. All the good things for him and his family

  • @nondassteele9329
    @nondassteele9329 3 ปีที่แล้ว +1

    Lots of Love in this family from King to them and them to King. God bless you all Family...

  • @demijour1234
    @demijour1234 ปีที่แล้ว +1

    King is so lucky to have such a loving family and vice versa, his family is so lucky to King. He brings such love and closeness to his family. This is my second time watching this and it saddens and angers me that because of one nurse who neglected to take care of King properly, worsened his condition. Sending lots of love and prayers and hugs to King and his family.
    ❤❤❤🙏🙏🙏🫂🫂🫂🤗🤗🤗💕💕💕

  • @rosemarykirby7489
    @rosemarykirby7489 ปีที่แล้ว +2

    One of the most beautiful families in the world. I just adore them! So loving and kind and sweet. God bless them all. King, queen, prince and princess. I bow down to you all! ❤

  • @nonames8734
    @nonames8734 2 ปีที่แล้ว +2

    This family is so sweet

  • @brandonm8901
    @brandonm8901 ปีที่แล้ว +3

    What a wonderful family ❤

  • @MA-sk4fg
    @MA-sk4fg ปีที่แล้ว

    The love that the whole family give to King is keeping him alive god bless you all.

  • @Nearlydeads
    @Nearlydeads 3 ปีที่แล้ว +6

    God chose the right family for this sweet soul!!!

  • @Frosty0762
    @Frosty0762 8 หลายเดือนก่อน +4

    I'd love to know what negligence that horid nurse did and if she was fired, they sued her, ect. I'm assuming the nurse failed to suction him for a long period of time and he had a huge lack of oxygen due to it. (I assume this by her bringing it up and then saying the nurse didn't take her job seriously) he could communicate.. he could move.. I'd be so heartbroken and the anger would be overwhelming and fuel me. I commend this Mama , dad and their babies. They're all so strong and positive. King was definitely meant for their family ❤ i hope, if not already happening at least a bit, that he's able to communicate again and interact with them. 🙏

  • @jennbeth1
    @jennbeth1 ปีที่แล้ว +4

    These genetic disorders are fascinating.

  • @lorettavogelgesang2490
    @lorettavogelgesang2490 2 ปีที่แล้ว

    God Bless You Precious King and Your Amazing Family...Thank You All for reminding us what pure love is...Divinely Inspiring Much Love 💖🙏🏾☮️

  • @glenda1385
    @glenda1385 3 ปีที่แล้ว +2

    His siblings just love him so. Awesome family :)

  • @Grimlock987
    @Grimlock987 2 ปีที่แล้ว +1

    These videos make me emotional.

  • @goodboix3528
    @goodboix3528 ปีที่แล้ว +2

    Much love to the whole family. Big ol pack o' sweethearts!!!!!

  • @starrrozmiarek3322
    @starrrozmiarek3322 3 ปีที่แล้ว +2

    What an incredible family King has!!

  • @mylifefornick
    @mylifefornick 2 ปีที่แล้ว +1

    Beautiful family! Patience and love 💕

  • @alanaazevedom
    @alanaazevedom 3 ปีที่แล้ว +1

    Absolutely lovely family! God bless you all

  • @Sav-ed8wo
    @Sav-ed8wo หลายเดือนก่อน +1

    King is so adorable.

  • @22lyric
    @22lyric 2 ปีที่แล้ว

    EVERYONE should have such a loving family! And his mom is such a warrior. Trying for EVERYONE, disabled, seniors, to get cameras in facilities to prevent abuse. And that started years ago. I can imagine it is even more needed TODAY. Hope facilities are changing!
    I LOVE KING! 🙏❤️

  • @bellejourneelibre47
    @bellejourneelibre47 2 ปีที่แล้ว +1

    King is adorable, wish him all the happiness with his sweet family 💕💕💕💖💗💗

  • @DAVEJJR
    @DAVEJJR 2 ปีที่แล้ว +2

    King will make me a better person! He’s a beautiful little boy, with an absolutely loving family who is devoted to him! I agree with his mom, based on experience, not every nurse is an angel. But King is a lucky boy!! I love you baby ♥️

  • @todknight3093
    @todknight3093 2 ปีที่แล้ว +1

    It's amazing how these families are so understanding and loving and all are so humble 🤩. I believe that has humbled all of these families so much and it's so beautiful to see. May God bless and strengthen all of these extraordinary loving families and keep strengthening. I admire all these families. 💪💪💪😇😇😇❤️❤️❤️❤️👍👍👍🙏🙏🙏🙏🙏

  • @anuskasoares8276
    @anuskasoares8276 2 ปีที่แล้ว

    What a loving family this little boy has! I can see that they want his best and that's all that matters. His mission on this planet must be very important.

  • @natalieee7445
    @natalieee7445 หลายเดือนก่อน

    Eboni was my best friend in elementary school and I miss her very much. I’m sorry for your loss and I love you all.

  • @jbeastmode2channel661
    @jbeastmode2channel661 9 หลายเดือนก่อน +1

    God bless this child❤️🙏🏼

  • @sirachvlogs5586
    @sirachvlogs5586 3 ปีที่แล้ว +2

    Wow, lovely mother and children.

  • @jesuscadena5673
    @jesuscadena5673 3 ปีที่แล้ว

    God bless you King. Thank the family for being there for him every minute of the day..

  • @snesable
    @snesable 3 ปีที่แล้ว +4

    wow such a beautiful family

  • @marleenninaka1303
    @marleenninaka1303 3 ปีที่แล้ว +3

    Hi everyone: It's so nice to see you all again on TH-cam. I want to meet you all one day. Take care and stay safe.

  • @NozFoxGaming
    @NozFoxGaming 3 ปีที่แล้ว +3

    what an amazing big sister

  • @teenstuball1543
    @teenstuball1543 2 ปีที่แล้ว +5

    The sister looks so tired