I got POTS after covid infection and learned about it 6 months later when I was researching my symptoms by myself. Then after 1 year and 3 months my symptoms subsided (from 130 upon standing to 80). And after 5 months I got covid again and my POTS is back.
Thank you for hanging out! It is so wonderful to get to talk out stuff like this with others and at the very least know we are not alone even though these conditions can be very isolating. I'm glad we are all finding each other! 💜 - Alyssa
thank you so much for this video! I'm 18 and, while i'm not officially diagnosed, i've been experiencing all of the symptoms for so long. recently, i did a poor man's tilt table test. my HR laying down was 78 and within a minute of me standing up, my HR jumped to 126. this was the confirmation for me after years of being downplayed since i was 12. I was previously diagnosed with orthostatic hypotension, but it didnt explain my super cold fingers and toes all the time, and anemia had been ruled out with a blood test. after researching the syndrome from potsies themselves, i learned all the quirks i thought everyone else went through (exercise intolerance, risking passing out in a hot shower, blood pooling, colby jack hands)- i felt understood! I'm scared, but comforted by the community. now i just have to find the same comfort in attempting professional diagnosis.
Hi madi, I am so glad to hear you are finally on your way to getting some answers. I also remember how comforting it was to find other potsies and know that all the things I was experiencing were felt by other people too! Keep being persistent in pursuing a diagnosis! I hope you get some relief from your symptoms soon. - 💜 Alyssa
Thanks for sharing this video. I am still going through final testing but my dr is 95% sure it’s POTS and suggested I learn more about it. Your videos have helped me comprehend what I’m facing and comforting that I’m not alone.
Thanks you so much for this video you've really helped me understand POTS. I was diagnosed with it about a year ago and your video has helped me recognise what my diagnosis means.
I am so glad I was able to help. That is the whole reason I made the video in the first place. Thank you so much for watching and commenting; I really appreciate it! I wish you the best of luck in your treatment - hopefully your treatment is going well! - 💜Alyssa
Thank you, my daughter was just recently diagnosed and I’m just watching and reading and learning. I’m going to see if she will watch your video with me together, thank you 🙏
Hi Dank187911, I am so glad you found this video helpful. I wish you and your daughter all the best as you begin the POTS journey. Let me know if there is anything else I can do! - 💜 Alyssa
I have been feeling very ill lately, and i have had heart palpitations for a while. When i stand up, my heart can go up to 140-160. Some days are better than others. I do not know if i have POTS or something else. I am hopefully going to the doctor this week to hopefully find some answers.
out of all these years i finally decided to talk about about what happens when my blood pressure drops, shes my psychiatrist but she has always been in the medical field she asks me if i ever heard about pots and i said i have heard of it a little. i thought it was just low blood pressure. ill be seeing the medical provider when i go back there so they can see further. im learning more about this starting today. so im here to learn more about it. it explains why i almost faint all the time and the heart racing. looking and reaching upward makes me feel the worst. but ill go see what my issues are all about. hoping its just low blood pressure this seems scary although im already experiencing it for so many years. fingers crossed.
Hi Chicken Leg! Thank you so much for sharing. I know facing a new potential diagnosis can be scary, but in my experience, I always feel better just knowing what I am facing and knowing its name. I am so glad you have found a provider who takes you seriously and is knowledgeable enough to point you in the direction of potential answers. I hope you find the answer to your symptoms, it is treatable, and you get to feeling better very soon. Best of luck! - 💜 Alyssa
I am going to a cardiologist next Thursday but I wanted to ask, have you ever experienced a thumping in your ears or being aware of your pulse and hearing it?
I have! I often experience palpitations either in my ear or resonating in my chest. For me, it is often an early warning sign that I might pass out if I don't sit or lay down soon. I have also experienced it in my stomach with my MALS (here is my video on it here if you are unfamiliar: th-cam.com/video/jjNZ56nH4UI/w-d-xo.html ). I hope this helps, and good luck with your cardiologist appointment! - 💜 Alyssa
Hi. I have been diagnosed with Neurocardiogenic syncope. I have all the symptoms of pots and just recently discovered that the condition existed. I truly believe I have pots and hopefully my cardiologist rediagnoses me. I take midodrine already but it doesn't seem to help much. I have had symptoms of pots on and off for over 15 yrs. Only last yr my symptoms were at it's peak and looked into it. Thanks for this video. Take care. Xo
hello! i've been seeing a cardiologist since i was 9, and i'm 20 now, and when i first went in they didn't know what was wrong with me, and then for the next five years i was diagnosed with neurocardiogenic syncope! none of my other doctors ever knew what it was and i was even told that wasn't a real thing, but when i switched cardiologists due to my first one moving states, i was diagnosed with pots right after! so you may indeed have pots, i hope you get medicine that helps you feel better
I don't personally have much experience with Neurocardiogenic syncope, but from some cursory research, it seems like there might be some overlap between the two conditions. Here is a small article I found that suggests this: pubmed.ncbi.nlm.nih.gov/21208233/ Hopefully, you will find full answers soon, and can begin your road to management! Best of luck - 💜 Alyssa
It's definitely possible you have both, I just got diagnosed with both this week. you need a tilt table test with a medication induced episode to confirm. have you found out since then?
@@ashiecloud yes I do have pots. I got off the midrodrine and have been on wellbutrin(off label) and it has helped so much. I haven't fainted in almost a yr. Also incorporated LMNT drink mix into my daily life and it has helped me be able to go harder and longer in my workouts.
Hi! I am 13 yrs old and got diagnosed about a year ago but never knew what it rly mean! Thank you very Mitch for this brilliant video discussing it as this explains alot😀
@Christopher and @George I am so glad y'all found this helpful and found each other. As I recall (but double-check me), I think the ratio of females to males with POTS is 3:1. Thanks for watching 💜 - Alyssa
Thank you so much for the video! I've been struggling with POTS like symptoms, I went to the hospital and the Dr told me that I have depression and anxiety, I don't know what to do anymore, I hate standing up I want to be laying down all the time just to not feel my heartbeat go so fast
I hope you can see another doctor. Show them this comment you wrote. Sometimes it is easier to write than to speak, especially in a stressful hospital room setting! 🥲❤️
So when did you know to actually go and get tested for it or checked out by a doctor? It doesn't happen to me too often, maybe a few times a week at most but typically in mornings right after I stand out of bed(even if I stand slowly) I'll start to try and walk but my legs tremor and I start getting extremely dizzy to where I cant stand so I try and grab onto a wall. Sometimes everything goes dark and I cant tell what's going on around me. I'm not sure, I'm not trying to self diagnose or anything I'm just not excited to have to go back to the doctors just for them to say "you probably are stressed and growing too fast". As far as I know it probably isn't even POTS and is something completely different, I just want to see if any of this is common for anyone.
Those sound like they could be POTS symptoms, but they could also be from a lot of different things. For me, an important question I would ask myself is how much it impacts my day to day life. If you think it is having a significant impact, it might be something to bring up with your doctor. In my case I became very sick to the point it was clear something was very wrong and it was keeping me from school and other activities, that was when we started looking for answers. Though be aware, if you decide to pursue testing you might get some push back from doctors who are unfamiliar with the condition and its many ways of presenting; don't be afraid to ask them to order the exact tests you want or ask them to refer you to someone who knows more. Another of my best tips is to not be afraid to try other doctors (even those you have to travel to see) if you think it might improve your quality of life. Regardless, you are certainly not alone and what you described sounds familiar to me in my experiences. I hope you find the answers you are looking for! Thank you so much for watching and for commenting 💜 - Alyssa
Im not sure if I have pots, but i get the mild dizziness all day 4-5 days a week. I started praying 🙏 to Jesus and i have been experiencing relief 👍😀😀😀😀, not trying to preach but just saying Kenzie....it took a few weeks of praying 🙏...😀😀👍👍 goodness try it.
I'm a 52 year old man isn't POTS considered a Affliction that hits women? I keep hearing this but I've been diagnosed with this for years and I have one heck of a case of it. I have to consume a certain amount of salt or I'm in trouble I get to fainting passing out when I try to get up and start walking or even as I walk for a few stop just stand and start blacking out so yeah I appreciate your video
POTS is more common in women than in men, but it isn't exclusive to women; men can have it too. I think the prevailing theory is that estrogen (as a vasodilator) aggregates POTS and leads a disproportionate number of women over men to seek medical assistance. But since the cause of POTS is often idiopathic, it can absolutely affect men. Increasing my salt intake has been one of the most beneficial actions I have taken to improve my symptoms. I even keep a container of rock salt at my desk to have on particularly bad days. I am so glad you found this helpful, and thank you for sharing your experiences; I am sure there are many men who are glad to see that they are not alone in their experience too! - 💜 Alyssa
I don't have pots but I do have problems with almost fainting. It's heat related, I get palpitations and start feeling dizzy and sleepy and then I start to feel weak. When it first started happening I got a heart monitor to check if I did have it but I think they never found a reason as to why it happens.
@crypticlawyer8, I am so sorry that you still have unexplained symptoms. It is good that you can recognize what the spells feel like when they start, so you have a time buffer to get to a safe place. I hope you find answers and help soon. Thanks for stopping by and commenting! - 💜 Alyssa
This is a great video, I was diagnosed with POTS last year. But no one exploited a sub type b or told me. I suspect adrenergic. But shouldn't those tests be standard? Which type do you have as I have the same symptoms? I get fast hert rate, fatigue, exercise intolerance and headache in the occipital mostly, but no fainting.
My doctor dismissed my symptoms. My Holter heart monitor shows my heart goes from 65 to 150, everytime I stand. This makes my life hard to live. I shouldn't be dismissed
I have a question. My doctor thinks i may have pots so i’m going to get a tilt test done. What’s it like? Also, my heart rate usually goes up to about 120-140, but sometimes while i’m still standing still it’ll start to drop back to about 100(my resting heart rate is about 80). Is that normal in pots?
Hi Camryn, I don't know if you saw, but I actually have a whole video about what doing a tilt test is like. Here it is if you haven't watched it already: th-cam.com/video/1ClSnTTphQE/w-d-xo.html To answer your second question, it can be normal, especially if you are moving some as we can compensate by using large muscle groups in our legs and core to help move blood back towards our heart and our head. That is why in a tilt table test the table stands you up, so that muscle compensation isn't measured. I hope this answers your questions, and I hope you get answers soon and get to feeling better. Best of luck! - 💜 Alyssa
@Elyse, that is interesting that you did not have a tilt table test, but there are a few other ways to be diagnosed. I have Ehlers-Danlos Syndrome, and hypermobility is a common comorbidity of POTS, so lots of us are in the same boat on that one. Thank you so much for watching! - 💜 Alyssa
The doctors did a poor man's POTS test on me. Even the POTS specialist. My state is poor. Maybe they don't have a tilt table here. Anyways they can diagnose you without a tilt table.
I started getting symptoms while in my third trimester of pregnancy and I use to be so bad my heart would go into the 160s while standing and 140s while sitting. It took me so long to eat because I couldn't sit up long enough without feeling like I was going to faint. I was in beta blockers till I had my baby. Shes now 4 months old and my symptoms are coming back and im trying to find answers. Ive had ekgs, CT scans, echocardiogram, and Holter monitors and was just diagnosed with tachycardia but after reading more on this I really think this is whats wrong. Any advise on bringing it up to my doctor and getting the right testing?
@Tae D. I am so sorry to hear that you are struggling. My best advice is to be direct. If they ask for thoughts or questions at the end of the appointment, don't be afraid to bring it up and ask for a Tilt Table Test. (here is my video on that test th-cam.com/video/1ClSnTTphQE/w-d-xo.html ) I helps to be able to articulate why you think POTS is something you should be tested for, and when you bring it up, most Drs. will be willing to look into it and test for it. I hope that helps and you get answers soon! - 💜 Alyssa
Hi I started having fainting spells at 15 and no doctor could ever tell me what was wrong. Because I'm thin people always assume I'm just not eating properly and it extremely frustrating. I'm 28 and just now hearing about this thanks to my phone listening in on my conversations.🤣😂🤣😂 My question is what doctor do I go to to get a tilt test done. I will be so relieved to finally find out what is wrong with me!!
Hi Carley, I am so sorry to hear that you have been struggling for so long! The vast majority of doctors who diagnose POTS are cardiologists, but not all cardiologists are familiar with POTS. Sometimes doctors from other specialties have found themselves familiar with diagnosing and treating POTS as well. I would suggest looking at this website from Dysautonomia International: www.dysautonomiainternational.org/page.php?ID=14 It is a list of doctors who are familiar with POTS and with other related conditions listed by country (and by state in the USA). I would look into seeing one of these doctors if you can! I hope you find answers and relief soon! - 💜 Alyssa
I'm not sure if this is POTS or not but I always feel like my heart is racing, my heart rate goes from 80 - 130 bpm after standing, i faint multiple times a day, i get lightheaded almost every time i stand/sit up, right before i faint my hands get all tingly and my vision goes dark, my hr got to 171 bpm just from doing a 60 second challenge in phys ed (literally just jumping over a cone for 1 minute), I struggle to do everyday tasks because a lot of the time my vision is darkening and my ears are pounding. Is this POTS? I've always thought it might be but I think asking someone who has it and has experienced it might know. I'm only 13 - if it is POTS, when do ppl normally develop it? Thanks so much ❤️
there’s something that I want to ask does your heart rate need to be over 100 when standing up to be considered to have pots? if my heart rate 60 while lying down and when I stand up it goes to 90 or 95 this also can be pots? Sorry if it’s a stupid question🙏🏻
Okay I’ve noticed that every single time I stand up, even if I’ve been sitting for two seconds I get up and I get very dizzy to the point where I’m falling over, my whole vision blacks out, my brain feels like it’s being pressured, and sometimes I’ll be out of breath and my heart goes faster. Even when im walking around school my heart beats very fast about 100-160 and im out of breath. But I could just be out of shape…
It is possible, but if you are worried about having POTS, it can not hurt to bring it up with your doctor. If you find they are a little bit resistant, it can help to have information about the condition with you, so you can show them why you are concerned or think it is worth looking into. I hope you found my video helpful, and I wish you luck on your journey towards feeling better! - 💜 Alyssa
I had some of these symptoms in the past, went to my Dr. All I really remember her telling me was too wear compression socks, and eat more salty foods. I have been getting really bad headaches, getting heart palpitations and dizzy. Today, I had all the symptoms at once again and fell because I was dizzy. I starting looking up my symptoms and found POTS and looked up on TH-cam to get more info. But in don't get this all the time. Could it be POTS or something else, I wonder.
@Rayana Since I am not your Dr., it is impossible for me to say if you have POTS, but it does sound like it could be a possibility. If it is, the things your Dr. recommended are treatments for POTS! I would definitely bring it up with your Dr. again. There are lots of things (like lifestyle) that could affect why your symptoms are worse again. Testing is the only way to know for sure, and I would ask your Dr. to test for it if you think it's on the possible list of explanations for your symptoms. Here is my video on the Tilt table test to get you started on your research: th-cam.com/video/1ClSnTTphQE/w-d-xo.html I hope this helps! 💜 - Alyssa
Thank you. Yes I talked to my Dr and she recommended a tilt table test (which apparently she had suggested a couple of years ago and I declined it 🤦🏻♀️) so I'm scheduled for the testing this month
Hi! I had one question🥺 Is POTS and Tachycardia the same thing..? Ik it’s probably dumb to ask, but my doctor diagnosed me with this but the paper solely says Tachycardia. I wasn’t sure if POTS was another version of Tachycardia or something. Tysm in advance!
Hi! That is not a dumb question at all! Tachycardia is just the name for a fast heart rate. It is one of the many symptoms that are apart of POTS. POTS is one potential explanation for tachycardia. I hope that helps clear up any confusion, and thanks for the question! 💜 - Alyssa
I am trying to find more information on this, so please excuse a late comment. The symptoms I have been telling doctors for years without much help: dizziness, forgetfulness, chest pains, trouble breathing, insane heart rate (180+ on a jog,) soreness at random (everwhere,) exhaustion, trouble standing up (partial white outs,) and others I can not remember. I (34m) have had 3 years of these symptoms and been telling doctors these symptoms constantly. I learned that POTS was a thing yesterday and it had an eye widening effect, it also sent me on waves of anger, depression, and happiness. My specific questions I have for you, if they apply. What is the chest pain like for you? I get it 3-7 days a week, right side (mostly), above the heart. It feels like a tightness and stabbing pain. Doctors have been brushing this off because they did not know how to explain it. Weird one here, do you get the white lines zooming through your vision when you exercise? It doesn’t happen often to me, but I am trying to understand if it may be related to this syndrome. Thank you for the video, hope your day goes well
Hi Jeremy, likewise, I'm sorry I haven't gotten back to you sooner. I am so sorry to hear that you have been struggling for so long! as far as my experience goes, I don't really have any chest pain. I do experience palpitations frequently when standing, but they have never been painful. I do sometimes have visual disturbances on my bad days when I stand, but for me, it is like tunnel vision and visual blackouts rather than white lines. I hope this answers your questions, and I hope you find the answer to your health struggles soon! - 💜 Alyssa
I have 95% symptoms Im19y/male mostly laying on bad bcz of Lockdown .i feel stable only if im laying on bed And currently having little pain... (Eng tranl)
@yeboi I am so sorry to hear this that you are struggling. I know that lockdown has worsened the deconditioning of people with all kinds of chronic illnesses, especially dysautonomia. I would bring this up with your doctor and maybe ask about ways to improve your conditioning (possibly exercise programs). If you have not been diagnosed yet, that is something to pursue with your doctor as well. Best of luck! - 💜 Alyssa
Hi Eemeli, if you are undiagnosed, this might be something to bring up with your doctor and get tested for. Either way, I hope you are feeling better! - 💜 Alyssa
@@carmella88 Hi. I lived in a house in 2021 for a year. I was there all day and night. I felt worse really tiered all the time and started getting dizzy. Then I got a rash. I started noticing a little mold in the house then realized there was actually a lot. The landlord had it tested and it was all kinds of really bad mold. I had my blood and urine tested and had the same kind of mold in me and my husband. He was not there as much and was not as affected. It was an old house with a lot of cosmetic work that hid he mold at first. There was a lot of black mold.
@@chrisgabriel4310 dang thats crazy. I want my husband to check our house we moved in to this house and I have been sick more often and now I'm getting the heart palpitations dizzy all the symptoms you have. Pots is what I think I have. I may have to have them check it out. 😭😭
@@carmella88 Girl, you better check it out for sure. It can be hidden in the walls. Don’t try spraying bleach on. That can make it worse. It can be all kinds of colors too. Look for any water damage...probably going to have mold. Ozone IVs helped me. I’m not over it yet.
When did you first learn about POTS? Was it during October (Dysautonomia Awareness Month)? 💙
I learned about it looking into service dogs for a different disability I have. Now I am talking with my doctor about it
I got POTS after covid infection and learned about it 6 months later when I was researching my symptoms by myself. Then after 1 year and 3 months my symptoms subsided (from 130 upon standing to 80). And after 5 months I got covid again and my POTS is back.
I learned about POTS in the comment section of an autism video. POTS is more common if you have autism.
I've been chronically ill for 8 years now (CFS/ME, fibro, POTS) and it's always nice to see others ❤️ thanks for the video!
Thank you for hanging out! It is so wonderful to get to talk out stuff like this with others and at the very least know we are not alone even though these conditions can be very isolating. I'm glad we are all finding each other! 💜 - Alyssa
thank you so much for this video! I'm 18 and, while i'm not officially diagnosed, i've been experiencing all of the symptoms for so long. recently, i did a poor man's tilt table test. my HR laying down was 78 and within a minute of me standing up, my HR jumped to 126. this was the confirmation for me after years of being downplayed since i was 12. I was previously diagnosed with orthostatic hypotension, but it didnt explain my super cold fingers and toes all the time, and anemia had been ruled out with a blood test. after researching the syndrome from potsies themselves, i learned all the quirks i thought everyone else went through (exercise intolerance, risking passing out in a hot shower, blood pooling, colby jack hands)- i felt understood!
I'm scared, but comforted by the community. now i just have to find the same comfort in attempting professional diagnosis.
Hi madi, I am so glad to hear you are finally on your way to getting some answers. I also remember how comforting it was to find other potsies and know that all the things I was experiencing were felt by other people too! Keep being persistent in pursuing a diagnosis! I hope you get some relief from your symptoms soon. - 💜 Alyssa
Hi are you still feeling sick
Thank you! I am recently diagnosed. I plan to show your video to my family to help explain what is going on.
Hi Karen, I am so glad this video could help and I hope it helps your family as well! I hope you are doing well! - 💜 Alyssa
Thanks for sharing this video. I am still going through final testing but my dr is 95% sure it’s POTS and suggested I learn more about it. Your videos have helped me comprehend what I’m facing and comforting that I’m not alone.
Thanks you so much for this video you've really helped me understand POTS. I was diagnosed with it about a year ago and your video has helped me recognise what my diagnosis means.
I am so glad I was able to help. That is the whole reason I made the video in the first place. Thank you so much for watching and commenting; I really appreciate it! I wish you the best of luck in your treatment - hopefully your treatment is going well! - 💜Alyssa
Thank you, my daughter was just recently diagnosed and I’m just watching and reading and learning. I’m going to see if she will watch your video with me together, thank you 🙏
Hi Dank187911, I am so glad you found this video helpful. I wish you and your daughter all the best as you begin the POTS journey. Let me know if there is anything else I can do! - 💜 Alyssa
I have POTS but have never fainted/passed out. I've been diagnosed since I was 13. I'm now almost 30
I have had POTS for years and have never fainted from it.
I have been feeling very ill lately, and i have had heart palpitations for a while. When i stand up, my heart can go up to 140-160. Some days are better than others. I do not know if i have POTS or something else. I am hopefully going to the doctor this week to hopefully find some answers.
I hope this video helped answer some of your questions. I also hope you are on the road to finding answers. Best of luck! 💜 - Alyssa
@@AlyssaLayne thank you so much! 😊 this video was super helpful!
It sounds like POTS to me
@@sarab7720 how are you now I feel like I have this im feeling doomed
out of all these years i finally decided to talk about about what happens when my blood pressure drops, shes my psychiatrist but she has always been in the medical field she asks me if i ever heard about pots and i said i have heard of it a little. i thought it was just low blood pressure. ill be seeing the medical provider when i go back there so they can see further. im learning more about this starting today. so im here to learn more about it. it explains why i almost faint all the time and the heart racing. looking and reaching upward makes me feel the worst. but ill go see what my issues are all about. hoping its just low blood pressure this seems scary although im already experiencing it for so many years. fingers crossed.
Hi Chicken Leg! Thank you so much for sharing. I know facing a new potential diagnosis can be scary, but in my experience, I always feel better just knowing what I am facing and knowing its name. I am so glad you have found a provider who takes you seriously and is knowledgeable enough to point you in the direction of potential answers. I hope you find the answer to your symptoms, it is treatable, and you get to feeling better very soon. Best of luck! - 💜 Alyssa
Hi did you get a diagnosis? POTS isnt defined by a significant drop in blood pressure, that would be hypotension
I am going to a cardiologist next Thursday but I wanted to ask, have you ever experienced a thumping in your ears or being aware of your pulse and hearing it?
I have! I often experience palpitations either in my ear or resonating in my chest. For me, it is often an early warning sign that I might pass out if I don't sit or lay down soon. I have also experienced it in my stomach with my MALS (here is my video on it here if you are unfamiliar: th-cam.com/video/jjNZ56nH4UI/w-d-xo.html ). I hope this helps, and good luck with your cardiologist appointment! - 💜 Alyssa
Hi. I have been diagnosed with Neurocardiogenic syncope. I have all the symptoms of pots and just recently discovered that the condition existed. I truly believe I have pots and hopefully my cardiologist rediagnoses me. I take midodrine already but it doesn't seem to help much. I have had symptoms of pots on and off for over 15 yrs. Only last yr my symptoms were at it's peak and looked into it. Thanks for this video. Take care. Xo
hello! i've been seeing a cardiologist since i was 9, and i'm 20 now, and when i first went in they didn't know what was wrong with me, and then for the next five years i was diagnosed with neurocardiogenic syncope! none of my other doctors ever knew what it was and i was even told that wasn't a real thing, but when i switched cardiologists due to my first one moving states, i was diagnosed with pots right after! so you may indeed have pots, i hope you get medicine that helps you feel better
I don't personally have much experience with Neurocardiogenic syncope, but from some cursory research, it seems like there might be some overlap between the two conditions. Here is a small article I found that suggests this: pubmed.ncbi.nlm.nih.gov/21208233/ Hopefully, you will find full answers soon, and can begin your road to management! Best of luck - 💜 Alyssa
It's definitely possible you have both, I just got diagnosed with both this week. you need a tilt table test with a medication induced episode to confirm. have you found out since then?
@@ashiecloud yes I do have pots. I got off the midrodrine and have been on wellbutrin(off label) and it has helped so much. I haven't fainted in almost a yr. Also incorporated LMNT drink mix into my daily life and it has helped me be able to go harder and longer in my workouts.
I was just diagnosed with Pots last week!
Hi! I am 13 yrs old and got diagnosed about a year ago but never knew what it rly mean! Thank you very Mitch for this brilliant video discussing it as this explains alot😀
Hello John! I am so glad my video was helpful! Thank you so much for watching it! 💜-Alyssa
Well explained. I deal with pots myself.
Thanks Go Fish Office! It is always nice to find others with a shared experience - 💜 Alyssa
@@AlyssaLayne You're amazing. I think I will share my story one day on my channel
Im new so i appreciate the help 🙏
Me too bro , Diagnosed less than a month ago and don't see alot of men with POTS it seems
@Christopher and @George I am so glad y'all found this helpful and found each other. As I recall (but double-check me), I think the ratio of females to males with POTS is 3:1. Thanks for watching 💜 - Alyssa
Yes I failed the tilted table test I knew what was going on after I watched your great video
I have tilt table test again in 45 min
I failed one at first Dr
@@cnance1972 My blood pressure never dropped but my heart rate did it took me 3 days to recover from that table test groggy fatigue headache
Thank you so much for the video! I've been struggling with POTS like symptoms, I went to the hospital and the Dr told me that I have depression and anxiety, I don't know what to do anymore, I hate standing up I want to be laying down all the time just to not feel my heartbeat go so fast
I hope you can see another doctor. Show them this comment you wrote. Sometimes it is easier to write than to speak, especially in a stressful hospital room setting! 🥲❤️
So when did you know to actually go and get tested for it or checked out by a doctor? It doesn't happen to me too often, maybe a few times a week at most but typically in mornings right after I stand out of bed(even if I stand slowly) I'll start to try and walk but my legs tremor and I start getting extremely dizzy to where I cant stand so I try and grab onto a wall. Sometimes everything goes dark and I cant tell what's going on around me. I'm not sure, I'm not trying to self diagnose or anything I'm just not excited to have to go back to the doctors just for them to say "you probably are stressed and growing too fast". As far as I know it probably isn't even POTS and is something completely different, I just want to see if any of this is common for anyone.
Those sound like they could be POTS symptoms, but they could also be from a lot of different things. For me, an important question I would ask myself is how much it impacts my day to day life. If you think it is having a significant impact, it might be something to bring up with your doctor. In my case I became very sick to the point it was clear something was very wrong and it was keeping me from school and other activities, that was when we started looking for answers. Though be aware, if you decide to pursue testing you might get some push back from doctors who are unfamiliar with the condition and its many ways of presenting; don't be afraid to ask them to order the exact tests you want or ask them to refer you to someone who knows more. Another of my best tips is to not be afraid to try other doctors (even those you have to travel to see) if you think it might improve your quality of life. Regardless, you are certainly not alone and what you described sounds familiar to me in my experiences. I hope you find the answers you are looking for! Thank you so much for watching and for commenting 💜 - Alyssa
Im not sure if I have pots, but i get the mild dizziness all day 4-5 days a week. I started praying 🙏 to Jesus and i have been experiencing relief 👍😀😀😀😀, not trying to preach but just saying Kenzie....it took a few weeks of praying 🙏...😀😀👍👍 goodness try it.
All this for me is post covid 7 months, i never had it before
@@georgegonzales811 You probably don't have POTS then.
I'm a 52 year old man isn't POTS considered a Affliction that hits women? I keep hearing this but I've been diagnosed with this for years and I have one heck of a case of it. I have to consume a certain amount of salt or I'm in trouble I get to fainting passing out when I try to get up and start walking or even as I walk for a few stop just stand and start blacking out so yeah I appreciate your video
POTS is more common in women than in men, but it isn't exclusive to women; men can have it too. I think the prevailing theory is that estrogen (as a vasodilator) aggregates POTS and leads a disproportionate number of women over men to seek medical assistance. But since the cause of POTS is often idiopathic, it can absolutely affect men.
Increasing my salt intake has been one of the most beneficial actions I have taken to improve my symptoms. I even keep a container of rock salt at my desk to have on particularly bad days. I am so glad you found this helpful, and thank you for sharing your experiences; I am sure there are many men who are glad to see that they are not alone in their experience too! - 💜 Alyssa
Me too , THANK YOU
I don't have pots but I do have problems with almost fainting. It's heat related, I get palpitations and start feeling dizzy and sleepy and then I start to feel weak. When it first started happening I got a heart monitor to check if I did have it but I think they never found a reason as to why it happens.
@crypticlawyer8, I am so sorry that you still have unexplained symptoms. It is good that you can recognize what the spells feel like when they start, so you have a time buffer to get to a safe place. I hope you find answers and help soon. Thanks for stopping by and commenting! - 💜 Alyssa
Sounds like neurocardiogenic syncope / presyncope. I have it as well as POTS. what does your blood pressure do during an episode?
This is a great video, I was diagnosed with POTS last year. But no one exploited a sub type b or told me. I suspect adrenergic. But shouldn't those tests be standard? Which type do you have as I have the same symptoms? I get fast hert rate, fatigue, exercise intolerance and headache in the occipital mostly, but no fainting.
I don't faint either and I don't know my subtype but mine is probably caused by Ehlers Danlos Syndrome.
Awesome video!
😊Thank you!
My doctor dismissed my symptoms. My Holter heart monitor shows my heart goes from 65 to 150, everytime I stand. This makes my life hard to live. I shouldn't be dismissed
You should not. Did you see another doctor sweetheart?
I have a question. My doctor thinks i may have pots so i’m going to get a tilt test done. What’s it like? Also, my heart rate usually goes up to about 120-140, but sometimes while i’m still standing still it’ll start to drop back to about 100(my resting heart rate is about 80). Is that normal in pots?
Hi Camryn, I don't know if you saw, but I actually have a whole video about what doing a tilt test is like. Here it is if you haven't watched it already: th-cam.com/video/1ClSnTTphQE/w-d-xo.html
To answer your second question, it can be normal, especially if you are moving some as we can compensate by using large muscle groups in our legs and core to help move blood back towards our heart and our head. That is why in a tilt table test the table stands you up, so that muscle compensation isn't measured. I hope this answers your questions, and I hope you get answers soon and get to feeling better. Best of luck! - 💜 Alyssa
@@AlyssaLayne thanks! i’ll look at it when i get home
I have diagnosed pots and I didn't get the turn table test, but I have Hypermobile Spectrum Disorder.
@Elyse, that is interesting that you did not have a tilt table test, but there are a few other ways to be diagnosed. I have Ehlers-Danlos Syndrome, and hypermobility is a common comorbidity of POTS, so lots of us are in the same boat on that one. Thank you so much for watching! - 💜 Alyssa
The doctors did a poor man's POTS test on me. Even the POTS specialist. My state is poor. Maybe they don't have a tilt table here. Anyways they can diagnose you without a tilt table.
I started getting symptoms while in my third trimester of pregnancy and I use to be so bad my heart would go into the 160s while standing and 140s while sitting. It took me so long to eat because I couldn't sit up long enough without feeling like I was going to faint. I was in beta blockers till I had my baby. Shes now 4 months old and my symptoms are coming back and im trying to find answers. Ive had ekgs, CT scans, echocardiogram, and Holter monitors and was just diagnosed with tachycardia but after reading more on this I really think this is whats wrong. Any advise on bringing it up to my doctor and getting the right testing?
@Tae D. I am so sorry to hear that you are struggling. My best advice is to be direct. If they ask for thoughts or questions at the end of the appointment, don't be afraid to bring it up and ask for a Tilt Table Test. (here is my video on that test th-cam.com/video/1ClSnTTphQE/w-d-xo.html ) I helps to be able to articulate why you think POTS is something you should be tested for, and when you bring it up, most Drs. will be willing to look into it and test for it. I hope that helps and you get answers soon! - 💜 Alyssa
Hi I started having fainting spells at 15 and no doctor could ever tell me what was wrong. Because I'm thin people always assume I'm just not eating properly and it extremely frustrating. I'm 28 and just now hearing about this thanks to my phone listening in on my conversations.🤣😂🤣😂 My question is what doctor do I go to to get a tilt test done. I will be so relieved to finally find out what is wrong with me!!
Hi Carley, I am so sorry to hear that you have been struggling for so long! The vast majority of doctors who diagnose POTS are cardiologists, but not all cardiologists are familiar with POTS. Sometimes doctors from other specialties have found themselves familiar with diagnosing and treating POTS as well. I would suggest looking at this website from Dysautonomia International: www.dysautonomiainternational.org/page.php?ID=14 It is a list of doctors who are familiar with POTS and with other related conditions listed by country (and by state in the USA). I would look into seeing one of these doctors if you can! I hope you find answers and relief soon! - 💜 Alyssa
@@AlyssaLayne thank you so much for the information!
I'm not sure if this is POTS or not but I always feel like my heart is racing, my heart rate goes from 80 - 130 bpm after standing, i faint multiple times a day, i get lightheaded almost every time i stand/sit up, right before i faint my hands get all tingly and my vision goes dark, my hr got to 171 bpm just from doing a 60 second challenge in phys ed (literally just jumping over a cone for 1 minute), I struggle to do everyday tasks because a lot of the time my vision is darkening and my ears are pounding. Is this POTS? I've always thought it might be but I think asking someone who has it and has experienced it might know. I'm only 13 - if it is POTS, when do ppl normally develop it? Thanks so much ❤️
there’s something that I want to ask does your heart rate need to be over 100 when standing up to be considered to have pots? if my heart rate 60 while lying down and when I stand up it goes to 90 or 95 this also can be pots? Sorry if it’s a stupid question🙏🏻
As long as your heart rate goes up 30+ beats when you stand it is probably POTS. I never heard that it has to be over 100. But check with a doctor.
Okay I’ve noticed that every single time I stand up, even if I’ve been sitting for two seconds I get up and I get very dizzy to the point where I’m falling over, my whole vision blacks out, my brain feels like it’s being pressured, and sometimes I’ll be out of breath and my heart goes faster. Even when im walking around school my heart beats very fast about 100-160 and im out of breath. But I could just be out of shape…
It is possible, but if you are worried about having POTS, it can not hurt to bring it up with your doctor. If you find they are a little bit resistant, it can help to have information about the condition with you, so you can show them why you are concerned or think it is worth looking into. I hope you found my video helpful, and I wish you luck on your journey towards feeling better! - 💜 Alyssa
I had some of these symptoms in the past, went to my Dr. All I really remember her telling me was too wear compression socks, and eat more salty foods. I have been getting really bad headaches, getting heart palpitations and dizzy. Today, I had all the symptoms at once again and fell because I was dizzy. I starting looking up my symptoms and found POTS and looked up on TH-cam to get more info. But in don't get this all the time. Could it be POTS or something else, I wonder.
@Rayana Since I am not your Dr., it is impossible for me to say if you have POTS, but it does sound like it could be a possibility. If it is, the things your Dr. recommended are treatments for POTS! I would definitely bring it up with your Dr. again. There are lots of things (like lifestyle) that could affect why your symptoms are worse again. Testing is the only way to know for sure, and I would ask your Dr. to test for it if you think it's on the possible list of explanations for your symptoms. Here is my video on the Tilt table test to get you started on your research: th-cam.com/video/1ClSnTTphQE/w-d-xo.html I hope this helps! 💜 - Alyssa
Thank you. Yes I talked to my Dr and she recommended a tilt table test (which apparently she had suggested a couple of years ago and I declined it 🤦🏻♀️) so I'm scheduled for the testing this month
Yay for testing! It sounds like positive progress is being made! Definitely let us know what you find out. Best of luck! 💜 - Alyssa
Hi! I had one question🥺 Is POTS and Tachycardia the same thing..? Ik it’s probably dumb to ask, but my doctor diagnosed me with this but the paper solely says Tachycardia. I wasn’t sure if POTS was another version of Tachycardia or something. Tysm in advance!
Hi! That is not a dumb question at all! Tachycardia is just the name for a fast heart rate. It is one of the many symptoms that are apart of POTS. POTS is one potential explanation for tachycardia. I hope that helps clear up any confusion, and thanks for the question! 💜 - Alyssa
I am trying to find more information on this, so please excuse a late comment.
The symptoms I have been telling doctors for years without much help: dizziness, forgetfulness, chest pains, trouble breathing, insane heart rate (180+ on a jog,) soreness at random (everwhere,) exhaustion, trouble standing up (partial white outs,) and others I can not remember.
I (34m) have had 3 years of these symptoms and been telling doctors these symptoms constantly. I learned that POTS was a thing yesterday and it had an eye widening effect, it also sent me on waves of anger, depression, and happiness.
My specific questions I have for you, if they apply.
What is the chest pain like for you? I get it 3-7 days a week, right side (mostly), above the heart. It feels like a tightness and stabbing pain. Doctors have been brushing this off because they did not know how to explain it.
Weird one here, do you get the white lines zooming through your vision when you exercise? It doesn’t happen often to me, but I am trying to understand if it may be related to this syndrome.
Thank you for the video, hope your day goes well
Hi Jeremy, likewise, I'm sorry I haven't gotten back to you sooner. I am so sorry to hear that you have been struggling for so long! as far as my experience goes, I don't really have any chest pain. I do experience palpitations frequently when standing, but they have never been painful. I do sometimes have visual disturbances on my bad days when I stand, but for me, it is like tunnel vision and visual blackouts rather than white lines. I hope this answers your questions, and I hope you find the answer to your health struggles soon! - 💜 Alyssa
I only pass out twice a year. I still don’t know what’s wrong with me.
I have 95% symptoms
Im19y/male mostly laying on bad bcz of Lockdown .i feel stable only if im laying on bed
And currently having little pain...
(Eng tranl)
@yeboi I am so sorry to hear this that you are struggling. I know that lockdown has worsened the deconditioning of people with all kinds of chronic illnesses, especially dysautonomia. I would bring this up with your doctor and maybe ask about ways to improve your conditioning (possibly exercise programs). If you have not been diagnosed yet, that is something to pursue with your doctor as well. Best of luck! - 💜 Alyssa
I'm male also and have POTS kinda of a nightmare huh bro?
Pots has increased since the xa- v (spelt backwards)
Sounds like me 😦
Hi Eemeli, if you are undiagnosed, this might be something to bring up with your doctor and get tested for. Either way, I hope you are feeling better! - 💜 Alyssa
Good book about POTS
POTS: What It Really Is & Why It Happens
By:Patrick Ussher
Thank you so much for the suggestion! I haven't read this one before, but I will add it to my list for sure! - 💜 Alyssa
Pots twins !
It is always so great to find new people who actually get it! Welcome to the club 😄 - 💜 Alyssa
Why am I still so ill a week after I
fainted ?
You may either have more severe symptoms, or be actually sick.
I think this has happened to me due to exposure to toxic mold.
Why do you think it was mold or how did you find mold
@@carmella88 Hi. I lived in a house in 2021 for a year. I was there all day and night. I felt worse really tiered all the time and started getting dizzy. Then I got a rash. I started noticing a little mold in the house then realized there was actually a lot. The landlord had it tested and it was all kinds of really bad mold. I had my blood and urine tested and had the same kind of mold in me and my husband. He was not there as much and was not as affected. It was an old house with a lot of cosmetic work that hid he mold at first. There was a lot of black mold.
@@chrisgabriel4310 dang thats crazy. I want my husband to check our house we moved in to this house and I have been sick more often and now I'm getting the heart palpitations dizzy all the symptoms you have. Pots is what I think I have.
I may have to have them check it out. 😭😭
@@carmella88 Girl, you better check it out for sure. It can be hidden in the walls. Don’t try spraying bleach on. That can make it worse.
It can be all kinds of colors too. Look for any water damage...probably going to have mold. Ozone IVs helped me. I’m not over it yet.
@@chrisgabriel4310 wow so even though you're not exposed to the mold you still suffer ? Shoot