EDS Patient Flys✈️ to Visit a Friend for the First time Since Diagnosis| My First college Friend 🤗

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  • เผยแพร่เมื่อ 5 ก.ค. 2022
  • Hi, my name is Olivia!
    I was born with a rare genetic condition known as Ehlers Danlos Syndrome (EDS for short). Living a normal life with this condition while receiving proper treatment and support is just about as rare as the condition. EDS causes a multitude of secondary conditions and with each secondary condition comes complications. In return this causes many medical professionals to reject patients that live with EDS out of fear from the unknown. This causes strain on ones mental health.
    My goal in life is to help those that struggle with mental health by becoming a motivational speaker as well as raise awareness for EDS. I came to know of my life purpose through a miraculous experience that brought me faith. The struggles of this world are big and try to tear me down but my God is much greater and beyond the dirt of any planet.
    What is EDS?- www.ehlers-danlos.com/what-is...
    My experience with EDS- • My Rare 🧬Genetic Condi...
    My secondary conditions- • P.O.T.S ❤️| THE TRIFEC... , • My Progressive Disease...
    Link to Purchase: www.bonfire.com/oli-keeping-t...
    Just want to donate? Click on this link-
    www.gofundme.com/f/21bw1arho0...

ความคิดเห็น • 3

  • @OliKeepingTheFaith
    @OliKeepingTheFaith  ปีที่แล้ว +1

    Sorry about the quality of this video. I am still learning how to use my camera and the video stabilization settings properly. Hopefully by my next video I will have it all worked out!!

  • @kimfroehlich1610
    @kimfroehlich1610 ปีที่แล้ว +1

    did you ever ask your doctor about IVIG I'm just curious

    • @OliKeepingTheFaith
      @OliKeepingTheFaith  ปีที่แล้ว

      Hi Kim! No, I totally forgot during my last appointment and believe I even wrote it in my notes but still forgot. Definitely going to try again to remember for my next appointment though. Thanks!