🏥 Mast Cell Flare & Pain Med Pump | Last Minute NEW HOME STRESSES 🤯 (4/23/19)
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- เผยแพร่เมื่อ 23 เม.ย. 2019
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When Judd says "what's the worst that can happen," it's very sad.
Seeing your videos come up as recommended isn’t easy ! Will miss seeing your videos 💔.
" whats the worst that could happen" oh poor jud. Im so sad she never got to see her new home
This came up in my recommeded. My heart is heavy watching this. To know her dreams and plans will never come to be.
Fly high Jaquie 💗
My heart goes out to anyone who deals with chronic pain. You are in my prayers. I'm also sorry that this is the era of withholding opioid meds from people who need them, just on general principles. I hope your doctors will open their eyes, accept your condition to be as you say it is, and actually treat you with the big guns of pain relief. God bless you.
Dogs instinctively know when you are moving! We move around every six months for my husbands work. Our poodle 'Mozart' has a suitcase (a really old one we found at a lawn sale with hard sides). He would watch us intently as every box expertly was packed and went in a pile for the movers. The last suitcase packed was his, and he would go right over and sit on top of it; making sure he was going too! Harlow just wants to make sure that if his toys are leaving, he's going too!
That’s awesome, brought a much needed smile to my face.
I know the whole house thing didn't turn out the way you would have liked it to, but Thank God Judd is SO WONDERFUL & taking care of the physical aspect of this move. You all DO make an awesome team, as you've been lining up when things are turned on/off, etc. That's a HUGE help, so that Judd can focus on getting things done. Together you all are getting it done & it's SO AWESOME they were able to bring all of the paperwork to the hospital to get closing done! That's SO AMAZING!!! SO GLAD everything didn't have to be stopped until you get out of the hospital...that would have REALLY sucked!! You all are SO AMAZING how you are able to go with the flow, & things turn out SO WELL, though you have to adjust to your chronic medical issues. You both handle it SO WELL!!!! So happy for you! Congrats! What HUGE blessing that you no longer have to deal with those stairs!! Hurray!!!!!!
Thank you for filming! I can't wait to see you in your new house! Lots for love and healing vibes from the UK!
I be been telling my doctors for 28 years it was period which set everything in my body off nobody ever took me serious I’m glad you’re saying it now now I’m in menopause and haven’t had severe infection still have problems but no infections fight for what you believe in!!!! You know your body better then anyone else!!!
I am so glad they are coming to you for the closing so you get to be a part of it. I so hope that pump is just what you need to get you better. Moving into a new house is such an exciting time and I know you want to be a part of all of it. I cant wait till you can walk through your front door a healthier happy you!
Good luck with the house! I hope everything goes to plan, and you get well and home soon! 😘
sending my love Jaquie. I hope you get to feeling better so you can enjoy your new home.
I'm sorry, praying for you and Judd! Hope you recover soon!
This is FANTASTIC! Not that your in pain of course. It’s that you have a different treatment that might just be able to get you out of the hospital and into your new beautiful home. As always, prayers for you, Hippo, and Judd. You got what it takes to conquer this flare! Aspire. Strive. One Day At A Time. Positive thoughts.
Written with love, 💗
~Angelina
Wishing you and your family & Harlow many blessings in your new home , good health and happiness.
I'm hoping the pain-flare cycle gets broken asap! When I first saw the picture of that thing on your face, I got scared that your asthma was starting to flare too. (I have asthma and had landed in the emergency room needing a nebulizer, which is scary.) Sending hugs and LOVE the Fur Baby Happy Hippo! Get well soon so you can get to your new home.
I hope you feel better soon Jaquie. You are so strong and I love your videos!
The positives... If the pain pump works, moving forward you now know what will work. You have a great support system to help. Even though it is stressful not being out of the hospital, the moving part can be so overwhelming. Finally, the caption above Harlow's head should be "We got this mom". Get better soon.🏠
Sending love and blessings to you all.
Judd is certainly one in a million.
💛💜🦋
Congrats hun on your new home! I’m so very happy for you! Just keep truckin , ‘ We are all on your side, and I’m always rootin for ya xoxo
Sending you lots of love! Congratulations on your new home even tho your not there with judd its still a exciting wonderful experience and its happening YAY! hopefully you get to go be home soon chicky! Xoxo lots of love from Australia
💜YOU GOT THIS! 💜
Menses always caused flares in me, sucks big time. Hugs sweetie and it is so rough. I struggle with c-diff another really rough bug to treat and control. I also get skin infections from Staph over growing on my skin microbiome. I always flare when moving too. The stress sets stuff off.
Praying you start to heal and recover soon. Gentle hugs to you, Harlow and Judd.
Oh Jac...my heart breaks for you...I was literally crying...I thought the hope and hiccup of the day change would have been your blessing...I know Judd will do everything he can to make your first day in the house as special as possible...the two of you can go out and celebrate with Harlow or something...I really don’t know what to say but I am sending a TON of prayers and love always...love you and stay strong...can’t wait to see YOUR reaction to the house when you first step foot in it...
congrats on becoming a home owner! we closed on ours in November and it was a lot of work getting moved in. I honestly think you being removed from the situation is a partial blessing, although I wish it was under different circumstances. Lowes delivered our appliances too and I swear we had a hiccup at every turn (they brought the wrong attachments for the water/ice cube dispensers and had to make return visits and even delayed shipping). there were a lot of little things we missed like we completely forgot we'd have no curtains installed and had to amazon prime them overnight lol! we also had no mailbox (it was a renovation) and had to install one ASAP. between my health and all the house stuff its been a journey but it everything will fall into place. God has a plan
As someone who lives with chronic pain daily I totally understand what you're talking about, it's hard to understand for those who don't have to deal with chronic pain daily.
You guys rock! I’m always thinking about you Jaquie! I’m very excited for you to get your new home!!!
I’m so glad you are finally getting some pain relief!Hang in there and you’ll be out before you know it!
I’m SO hoping the pain pump will snip that SO vicious cycle!! The new house is so exciting, & we know u want to be there ASAP, helping with absolutely everything, & having as much of a part in things as you can-but u want to be as sorted as possible, so you don’t end up rebounding back in hospital in the midst of everything happening with the house/move!-take the time to take care of your health-and be patient with what has to happen for your health, during such a stressful time and huge life upheaval! It looks as if you have some amazing people around y’all/fam, that will make sure you+Judd have the best support and help around! Hang in there, I’m sure Judd, Fam and Hippo have it all sorted...It sure seems that way!! We are cheering for you all-and know, #UGotThis!! #Godspeed-it will happen according to his will.❤️
Praying that this cycle is broken so you can be on your way to healing and home. 🙏 Harlow is a hoot. Our puppers know when we need them, she is such a great helper for you. Give her a scratch from me and Otto my 12.5 year old service dog.
you have had control though, You set up all the important details 😊 The most frustrating thing is not being able to carry things, plus your doing the work of getting better 😊💪🙏❤️
Harlow looks so sweet in the boxes! But I’m so sorry you aren’t progressing quickly enough to participate in the house process. But you’ll get there!
Jacquie I hope you are improving with the medication. If you need to cry, cry and let the unhelpful thoughts go with the tears. The pictures of Harlow we're adorable and Judd is being brilliant. Keeping everything crossed for you and I hope everything is signed and sealed with the house. Theresa
I’m praying for you to get out of that hospital, Jaquie. 💖
Praying for you to get well so you can get in your new home rest and dont worry it will fall in place
I'm hoping with all my heart that the bad cycle is broken really soon.
Hey Jaquie! Hope you feel better soon.
So sorry you are dealing with all this. Hugs
I am so sorry that you are still in the hospital my prayers are with you and Judd. Get well soon so you can enjoy your new house. I wish I could take away your pain. Love you guys. My heart breaks for you and Judd.
Keep moving forward hun you got this!
Here's hoping that you'll be well enough to get out of the hospital soon!
God bless you guys. I am so happy for you guys. Get well soon and get out soon.
"Likes for lilly"
Here's 1 Judd! 😂
I hope you got a break from the cycle. You will get there, your steps are just smaller so it takes longer. Sending gentle hugs xx
I'm a control freak too. When we moved into our house my husbands baseball team moved everything. They sent me away for the day so I wouldn't have any panic attacks. It was great. At the end of the day I went to the house and everything was in it's place and perfect. Just keep reminding yourself everything will be ok.
I would personally rather do anything except calling and setting up those details, so from my point of view, you are doing the hardest part! 😄
Jaq, you have my daily prayers. Get better soon.
Believe me, it is a Blessing in disguise. I’m sitting here praying for your recovery. God Bless you, Judd and Harlow.
Sure hope you feel better soon Jaqui, Miss Harlow is adorable, love watching you all especially Harlow, feel better soon
Still 🙏 for you to get better.
Good 🍀 on moving to the new house 👍😊
It's always best to stay ahead of the pain. Once pain gets severe it's really hard to stop it. (I speak from 48 years of experience.) We are all praying this works, Jaquie. seems like a good plan to me. Harlow is worried about you. :*( she's so dear. You'll be in your new place soon enough and all. will. be. well. 🕊 &💛.
I agree with Blessing in disguise, you’ll be moving right in your new home, so Happy for you both 🙂😜🤪 Closings are stressful but it all works out in end, Judd is a rock star husband! ☺️ AWESOME taking care of your love ❤️
I am so sorry you are continuing to experience so much pain. I know you are beyond disappointed to not experience the move into your new home. It is the unfortunate reality of chronic pain sufferers that our bodies NO NOT cooperate. Missing out on this is so incredibly frustrating. Your first priority is for your health to be stable. The rest of life can continue once that had happened. It totally stinks... I get it. Soon you will be home. Judd is a great guy and you have family and friends to help. You will have to accept their help for now. I know you have strong faith. You will get beyond this and one day it will be a distant memory. God Bless you and your family. Sending gentle hugs 💗
It’s so great that you can handle new construction and new things. My husband deals with multiple chemical sensitivity and new doesn’t work with that at all. As I start to show more signs of mast cell problems I was worried that it would become a problem for me too but we’ll never know because not like he can handle new. So cool that you can
🙏🏽Congrats on your closing
Keeping you in my thoughts 💙💙💙
I hope you get better soon. I missed my daughters wedding with appendix was removed and I've had 9 spinal surgeries. Your health comes first I pray for a speedy recovery!
I use a PCA pump when i am inpatient and its the only way to control my pain enough to get me to where I can go home! But it is good to remember to get back to your normal meds for a day or two, to make sure you're not going to feel bad after having the steady level of pain medication taken away, before you go home. What i do is just when im starting to feel better I space it out a few minutes more and a few minutes more if I can. That really helps me not feel horrible and in pain and nauseated etc. when I am discharged and home. But i am so glad they finally gave you that cause I felt so bad with you just being in so much pain. Im gonna visit my aunt in Tampa soon I hope and that would be so great I hope you are doing better today and that spirits are up! (: xo
Oh hugs you three, I’ve NEVER seen Judd this stressed 😫
Sorry you will still be in hospital for your move.
Hope the pain pumps helps, praying xx
Do you suppose the stress of everything is also causing the increasing severity of reactions? I know that stress or strong negative emotions will send me into a flare, emotional stress especially.
I know it may sound horribly silly, but there are a lot of TH-cam mediation walk throughs. The only reason I would suggest it is because they helped me through some of my ketamine treatments when the world went wonky. They kept me calm & breathing which would help me more effectively. Just pop it into your earphones. Or, for you, perhaps a sermon about good health & destressors?
However, you’re absolutely correct when you say that Judd & you make a great team. It’s obvious just from watching you’re vids. It’s also obvious that you two make it through whatever obstacles are thrown at you every time. You compliment each other very well & pick the other up when they’re down. I know the gut eating guilt that comes along with wanting to help your loved ones so much & unable to because you’re body is being an arsehole. It doesn’t matter how much they reassure you that it’s okay, it’s still in the back of your mind. But I promise you, they got you. You have a lot of loved ones, friends, & followers who will always be there to lift you up.
If you don’t mind my asking, what medication are they using in the pain pump? I’m curious because morphine isn’t effective for me; it doesn’t work. My parent’s & I all have adverse reactions to it. Also, I’ve been on fentenyl patches for the past 5yrs so that IV Fentenyl is also ineffective. Ketamine works, but it’s always been a med that wears off quickly.
I have a good feeling that the pump will work & help stop the cycle so that you can enjoy you’re new home. I know that stagnant cycle where just the symptoms are treated and you can’t break the cycle for whatever reason. Generally with autoimmune they can’t do anything because they don’t know what causes some of the diseases so they can’t treat the source of the problem. Too bad you can’t get Xolair at the hospital. Grr.
Hopefully you’re signing papers as I’m writing this!! Sending love & healing vibes your way from the east coast on warm sunshine, darlin’. 💜
Hey Jackie, get better soon!
Bless you, sweet girl. I'm wishing for your quick recovery so you can begin the next chapter in your brand new house.
Sorry to hear you are not feeling well. You guys are in my prayers
I hope you feel better soon.
♥️✝️🔆🌈🙏 cheering for you darlin!! This is one of the hardest things you can go through in life and I’m still praying your body says “okay remission sounds great!! Let’s do it!!” Much love, reassurance from those of us who’ve been in the bed you’re in so to speak and all of us are cheering for you to be healthy feel happy and be in your wonderful new home 🏡 with Judd and Harlow♥️ one moment at a time, keep breathing♥️🔆⭐️you are strong Jaquie and God has you under his watchful eye and will comfort you in many ways. Xoxo
You're in my prayers Jaquie, you'll be home soon and it'll just be HAPPY time.......
Sending prays your way!! 💝
Said prayers in TotallyKathy's morning devotional for you. Hope you keep moving forward. 💗👍🙏
Oh that's wonderful that you will be closing on your house. I feel so badly for you with all the challenges that you endure. God bless you honey. :)
stay strong and relentlessly chase your dreams
😢😢😢😢😢😢 R.I.P. Your suffering is done
Get well soon!
Hope you get well soon and get home soon
Hey jaquie today’s my prep day before my colonoscopy and endoscopy tommrow Hoping it all goes good tommrow
Sending hugs your way.
I hope everything went smoothly today sweetie xxxxxxxxxxxx
Exciting Jaquie!
Tell us what appliances your having delivered from Lowe's????? 🙂 What color, what do they do????
I love your hair, your a doll,,, some time I like your straight hair. Do you style your hair straight sometimes????
I'm sad to hear that your still in the hospital. I hope you get better soon.
jaquie,i too have had MRSA in my bladder.so you are not alone.
I can so relate to the not being able to prevent the cycle as opposed to stop it there and then. I have chronic headaches and until a few months ago I would just take meds and go for a nap, now I have preventatives (literally writing this with a headache...)
I’m so sorry this is happening to you. You could use a break from this crap. Same thing with me. Every time I go to doctor a new health issue. I’m struggling with that. Just keep handling each issue as they come, that is what I’m trying to do but my depression is getting out of control. I can’t imagine what u r feeling. Good luck 🍀👍 it will get better, hang in there..
I hope everything is going well with the move.
Praying for you Jaquie.
Was hoping you would be out of the hospital for the closing on your home. But you need to be in the hospital to take care of you and get better. Judd will do a great job of taking care of moving everything. Hope the new medication will stabilize you so you get to go home soon.
I hope it all went well today!! I’m sure God came through to make is work out 🏋️♀️ y’all are the bomb
get well soon
You really perk up when Harlow and your husband show up.
Get well soon
I can't wait to try moving with movers. We have always moved ourselves. Hope you are feeling better and in your new home soon. Judd gets a steak at his favorite restaurant-Disney here we come.
Hope u get better
So sorry. Hang in there.....🌻🌻🌻🌻
I've just realised how much Judd looks like my surgeon's assistant. When I met him 2 weeks ago he seemed familiar but I couldn't place it at all, but now I know!
Our closing was a mess too. It took forever. And that was after 6 months of looking for the right place. We finally got the keys, went to the house and the keys did not work. The house was bank owned foreclosure and the keys the bank had were not the right ones. The best guess was the previous homeowner changed the lock as they left out of spite.
We basically had to get a lock smith to come break into our new home and install a new door lock before we could get into the house we just officially bought. Lol.
I had literally the same button but on a completely different pump last week. The previous time I had a PCA the button was horrendous, difficult to hold, no light, just not good. Same precautions with two nurses required to change the supply in the pump, but interestingly I was told the nurse was allowed to press the button, also as this was post surgery they were allowed to override the pump a certain amount of times.
Hippo to adorable awwww gosh she's so cute
I had a PCA pump years ago and there were only 2 doses of it but I was afraid to use it. It looks like they made improvements in the button control. Harlow looked like she wAs sad to leave you. I hope you get better so you can go to your new home.
Jaquie you should check out the new Vera Bradley x Disney collection! I think you'd love it!
Kipling has a Disney collection also.
Hopefully the pain meds will break the cycle and you can get to your new house. Hugs!
I'm so sorry you're still in the hospital. When I was hospitalized for cellulitis last year, they gave me IV vancomycin before I knew it was the absolute worst for MCAS. So I had terrible flares. And no one knew what to do for me. Like you, they were just treating the symptoms, and it was a vicious cycle. It took several weeks after I went home to get back to my baseline. MCAS is a bitch.
His timing is not our timing. You are such an awesome example of giving it to God and trusting Him. My prayers are with you and hope the PCA does the trick! Thank you for sharing your journey. Congratulations on your new home!!!