It makes me really angry how many of these mystery diagnosis stories are about people who could have got treated a lot faster if doctors had just bothered to listen what the patients are saying, instead of just deciding whats wrong with their patient, and refusing to investigate any further no matter how obviously the diagnosis is wrong.
Aaawwww! Aren't you Sweet, you non-medical professional?! When you're basic attitude is "Be as patronising as possible & you're regular diagnosis has reduced to "Meh", it's time to retire & play Golf full time!
Now, Now: Let's not get Hysterical, shall we? Just accept Our diagnosis of "Suffering from Being a Woman" & don't worry your pretty, Very Little head about it! - Bad enough when Mysoginistic Make Doctors do it, even worse when it's another Woman!
I can't speak for men's experience because I'm not a man so maybe their experience is the same but I've definetely been told by lots of doctors my problems are psychological and all in my head. Even other women telling me and I can't help wondering if it's just 'cause I'm a woman. Like how would they like it? It's disgrace for any doctor to have this attitude even when a patient knows they are fine mentally.
don't go to that site i got a feeling after seeing in the search bar instaportal scam that they can collect your Instagram login token from you entering the site if your logged in and if not logged in the site probably asks you to login on Instagram on their site
I hate click bait! The only reason I can think that they titled this with click bait is bc the migraines and cluster headaches I get from Hashimoto's do feel like being stabbed in the head repeatedly. A friend of mine has a CSF leak from a near fatal car accident that left her with a broken, degenerating neck and she describes her headaches from that the same way.
It is a disgrace that these women had to go through such long periods of suffering. There are doctors, and there are Doctors. So glad these ladies are now doing well.
The brown patches on the cheeks told me it was autoimmune at the beginning of Amanda's case. It's outrageous that we need to be able to diagnose ourselves. My mother was a nurse with extra abilities as a matron & midwife. She took years to convince her own GP, whom she worked with & advised, that she had hypothyroidism & went without treatment for over a decade. This resulted in physical changes which couldn't be reversed after such a long time without thyroxine. Both my sister & myself had to convince our own doctors to check our thyroid function in order to obtain treatment here in UK. Once on medication for hypothyroidism in UK we no longer pay for prescriptions so G.P's are not in a hurry to put patients on medication until their function is very low & tested then retested over months.
My wife was really quite ill after giving birth to our daughter and we went through a similar situation. For me the problem was that majority of doctors today don't really care and simply order tests to be done, blood tests, urinalysis etc etc and then rely on the test to give them the answer. Majority of the time I felt like I could be a doctor as all they did was say have this test then come back to me and I'll read you the result.
My mum had the exactly same problem as Anne in the last case. And doctors also struggled to find what that was due to the fact that was so rare. Here in Portugal that are only 6 known cases. They thought that could be a brain tumor and also thought that might be a cold or sinusitis. Luckily it was not the worst case scenario and the doctors were able to find the leak through the nose and there was no need to do an open brain surgery. And her body never rejected the patch that was made from the skin of her own nose, cause the body accepts the skin better than it it was a synthetic material. It was 5 years ago too, and she remains healthy and without her body rejecting the patch, and we hope that it will remain like that 😊
My boyfriend has hashimoto's but his symptoms were nothing like this and they found it very quickly. He only really had diminished immune system, they found it when he went to the hospital after having had the flu for a month and it didn't seem to be going away
Gry Luneborg was put on antidepressants when I was 20 and started complaining about loss of memory, dizziness, « pressure » in my head as if I was being strangled, loss of balance, extreme fatigue... 3 years later I suddenly lost eyesight in one eye. They then discovered I had intracranial hypertension which is caused by excessive cerebral spinal fluid putting pressure on the brain and optic nerve 😞 Yeah... it was in my head, literally! 3 years ago I went to the ER because of terrible pain in both my forearms and was left all night in a room. A doctor came in once to tell me that I was having a panic attack and should see a psychiatrist... 6 hours later I was rushed to the OR because I was having a heart attack!
@@fazistephanie7066 How absolutely horryfying for you! Very lucky you didnt loose your life. To many amateurs and to little experts out there I guess. Years ago, I suffered bad abdominal pains, and was rejected help, because they too claimed it was "up in my head." I got so sick that I started to think of suicide, just to get out of the pains. My family payed for a private hospital, and they found that my abdomen was full of blood, and one ovarie was twisted around.Women usually get morphine for those kind of pain.
@@fazistephanie7066 I believe you on the first one but the second? Hearth attack attacks just one arm (fully) can even go to chest and not just the forearm. And surely not the two.. Ah and a hearth attack when you have u passed out in the minute you feel the pain on the arm. You know why? Cuz it's unbearable. So yeah first of all impossible u last more than 6 hours, second one to much misleaded information and plot holes. But on the first one I trully believe you.
I often wonder how some physicians get through medical school. I went through the same thing Amanda did before finally being diagnosed with Hashimoto's disease. Medicine has become so specialized that it is really hard to get a physician who tries to find all the health issues a person might have.
I know right? Do you know that besides that we also have to monitor our b12 vitamin D3 and iron levels because us with hashimoto can't usually absorb them? There are many more things with this desease than just taking a pill to regulate the hormones
It took me 15 years & multiple doctors to get diagnosed with Hashimotos. It makes me so angry I went through 15 years of suffering for something that could’ve been answered with a simple blood test. I had all these symptoms and more.
Bcs of how the system & their education is built.. everyone is to be a specialist in some particular subject. And thats on the cost of generall knowledge & knowledge you only get by experience.. Nurses have mutch wider work tasks & experience = wider knowledge.. as. Anurse you see alot off everything, not a lot of one particular illness/issue/trauma..
Seriously I'm a family physician and we order thyroid tests all the time, even if we think they'll be normal. I myself was diagnosed with Hashimoto's by accident last year. Her doc has no excuse
My mom was diagnosed with Hashimoto's without even having any symptoms. The endocrinologist just saw some spots on her skin and decided to run some labs and she indeed had it. How did they not come up with that?
Hashimodos is not that rare. But very under diagnosed. Very easy to treat in most cases. I'm glad they finally found out. In women it's often blamed on psychological issues. Ig got hypothyroidism but not from Hashimodos tho. Went with it for years.
Gosh ! I was just caught up with the title and waiting for a concrete knife to be found in their heads 😂. Just dont take the titles literally, the knife they've been referring is the pain in their heads 😆😆
How did I, someone with absolutely no medical background, know that this ladies problems were thyroid related and not a single doctor did? (Aside from having the same symptoms in a very minor way). It’s such an obvious cause for fatigue, dry skin and hair, aches and pains??
I am stunned the doctors didn’t suspect the thyroid , dry hair ,fatigue ,dry skin , joint pain are typical symptoms 😨 mind you I struggled with symptoms for years and was basically fobbed off . When I was menopausal I went for blood tests and took the form to work and had a colleague draw blood . The gp did not tick what test to do so I added thyroid function tests too , my mother nearly died of hashimotos and was in a coma .I often worried about my levels so cheekily took the opportunity to get tested . You got it .... I was hypothyroid ! A lot of doctors are toooooo quick to blame depression and stress . My mothers go said she had stress and later that day she started having fits, she later arrested on the way to a larger hospital . Luckily she made it . I am so glad the lady is ok now
These videos show how difficult it can be for a sick person to be properly diagnosed. How persistant one must be in order to be able to recover and not die instead.
My younger cousin had enormous headaches for a while now , the first thing his doctor did was dona CT-scan. I feel so so so bad & sorry for this lady she went through such a terrible pain for so long :(.
I was diagnosed with CSF when I was 17. It took 4 years to find out what was wrong with me. Many of my doctors just said “oh you’re a teenager, your depressed, you should go to a psychologist or oh you have a bad migraine, here you go a high dosage of ibuprofen (600mg)” Yep not helping. It’s vary hard to be diagnosed with a condition when many of the symptoms are things you can’t see.
@@anwensu4381 and Nekolalia, that's what I thought as well. As soon as they mentioned a steady drip of a water like fluid was coming all the time from one nostril, I had her diagnosed - leakage of cerebrospinal fluid that should have been instantly located and treated by doctors as soon as she told them about that. Ladies, there are at least 3 of us who diagnosed before ''proper'' doctors. Maybe we could think about getting together to form a ''Mysterious Diagnosis - Tell us your Symptoms, and we will give you the Answer! {The correct one!}.''. We could make a fortune together. !! lol
@@breakprismatshell6270 I always said I was not depressed; turns out I was. It IS a possibility. It just feels like doctors jump to that conclusion too fast.
I have this. It took years to get a diagnosed despite the fact that my mother and her mother had underactive thyroids. It was called Myxoedema then but they said my levels weren't low enough (scientists didn't understand autoimmune disase when nan and mum had it.) It took moving to a new house, meeting a new Dr. who checked my blood for 'thyroid antibiodies' to spot the problem. By then I too had a diagnosed of Fibromyalgia for 5 or 6 years.
I understand the frustration of going from doctor to doctor with zero outcome. Thousands of $$$$ down the drain, numerous tests, being told it was "all in my head" - unbearable pain, exhaustion, (and yes, eventually depression because you're feeling like death yet being told there is "nothing wrong"). Then, 14 years later, finally being diagnosed with RA - which had already caused massive damage to my body. Because of the late diagnosis and progression of the disease by the time it was "discovered", I now sit with the fallout trying to deal with daily, ongoing never-ending discomfort, pain and other complications.
I have had very similar symptoms and I thought it was my age...My doctor diagnozed it very quick. I was not even there because of that, just needed a recipe. And she said: Wow, you look so terrible, you have a disease". I said "No way, nothing wrong but getting older" (pain in the knees, depressions, dry skin, getting fat, hair falling out...). A few days later : Hashimoto. But I am still very often tired, the skin itches, hair is still of bad quality. I tried all different mg's of Thyroxin. But it is never really okay.
So they missed tiny ventricles on a scan, and didn't notice while DOING the lumbar puncture that her pressure was low? As soon as she mentioned the dripping nose and metallic taste, someone should have known to check for a leak.
Always watch these and thaught hey that sounds like a thyroid problem. The thing is, its actually very common, at least in sweden. I know this pain thou, having hashimotos myself...
So many Primary Care Physicians are to quick to just say here's some pills, go home and rest and your fine....... For some that works and its great for others its NOT OKAY!
jenn jeffs very true. Or some Primary Care Physicians just want to get you out of their office or are so narrow minded and believe that they’re always right.
I was like so curious what Amanda had and when it turned out she has the same disease I (and the half of my family) have, I realized yet again how much luck I have, as in Hashimoto's disease is quite gentle on the majority of my family, only my elderly relatives need to take medications for it, the rest is completely fine. Also, I've been diagnosed very early (16 yo), so the thyroid problems are the first thing I'll think about if something strange starts happening to me.
As soon as in the second case she said that she had a fluid coming out her nose, I said " CSF leak, she has a brain malformation". The metallic taste should be a strong indicator that it's CSF. The first case too. It was clearly autoimmune. They dismissed her over and over.
I am appalled at the difficulties Amanda had getting diagnosed. It beggars belief that so many doctors failed. Horrific. Thank goodness for the final Dr that joined the dots together.
This confusion could have been prevented at the first place by a proper history taking. I cant understand how could they miss out on these small things
It's taken me three years of tests and diagnoses that didn't explain all my symptoms to have fibromyalgia even remotely considered and that doctor just threw it at her like nothing, that infuriates me
Medical Mysteries is, basically, This woman has physical symptoms that nearly destroy her life! Doctors, Meh, it's just that you're a woman. Learn to live with it. Woman: 10 years later, all my obviously endocrinology symptoms are revealed to be a glandular issue!
my mother went through the same thing after having me (she'd been ill beforehand but felt fine during pregnancy due to the immune system chilling out to accomodate for a baby). It infuriates me that doctors wont listen to women post-partum when they say that they KNOW something is wrong with their body.
Iv been ill nine years and i realy cant cope no more it's not that i dont want to live i just cant cope with this nomore I'm always in hospital but nothing helps I'm just drained mentally emotionally and physically i need answers to why they cantt even stop me vomiting to the point all i bring up is blood and bile cant even get a night's sleep as the nausea wakes me up nerely ever hour 9yrs is along time to be left suffering like this 😢😢😢
Moonbeam, there has to be someone who specialises in your illness maybe see a gastroenterologist ? There could be something wrong with your stomach or the food you eat causing the vomiting . I hope you can get some help and treatment , no one should be suffering like this for so long, it must be horrible for you 😔 wishing you all the best and getting better asap 💜
I have the same disease. My symptoms are not this bad, but I do certainly recognise them. I am confused why it took so long for doctors to figure this out, since it is a pretty common disease =3=
Anne's doctor should be de registered! She should have been sent to the ER weeks earlier for tests. This is why universal healthcare is vital!!! In Australia medicare covers all emergency appointments .
Fibromyalgia is intense, and yes you have terrible pain and are tired because you are constantly dealing with the pain and flu like symptoms. Sitting here dealing with joint pain I am glad that I know longer am a full time mother but a grandma who can stay in bed when I need to. My children are the best understanding my situation. Wanting to live is another matter.
It’s awful when you know your ill and are thought to be depressed and mad. . I have hashimoto and all they kept saying for fifteen years my illness I was having was besause of that , despite being on levothyroxine . Wasn’t till I had covid vaccine and ended up admitted to neuro and they tested for everything they found out I have gluten ataxia and undiagnosed coeliac disease . Iron levels of three and all I got was it was stress . Three months gluten free and feeling much better ,they said it could be two years before I feel full benefits due to damage to intestines . Despite many admissions to hospital took a vaccine and a neurologist to make me well
After years of "everything seems normal" you lose hope and just deal with it. I'm close to giving up, I had a blood test but it will probably be normal.... again.
My experience is that doctors get upset when you do your own research and ask for this and that test. Then they feel their authority is being undermined. Most of them really have personality disorders. 🙄
Thyroid problems can be genetic so make sure your daughters get continually checked over their life time , I have hashimotos too all females on my direct maternal side have Hypothyroidism , A gluten free , dairy free (don’t forget to add calcium in another form ) or lactose free diet can help to stop triggering the immune system
It depends. My Mother has it but my brother got it and I didn't. I have my fathers blood type not hers....Thank goodness. My brother has my mothers blood type.
It seems that a large number of these unknown diseases are either autoimmune or endocrine-related. People who are in these situations ought to be referred to immunologists or endocrinologists.
I wonder how in the f- world, having very little medical education, the moment I heard about the taste in her mouth and the liquid, I instantly knew what it was. It's absolutely horrifying how many *SO* unbelievably uneducated doctors thrive out there in the world and even scarier to think about just how many people died or ended up crippled for life because of their misdiagnosis.
How long ago was this episode? The camera is zoomed a little too much into the patients recalling their stories, the narrator sounds a bit different... may this be the first season?
I knew it was thyroid as soon as she said her hair turned frizzy but was when nothing came back on blood results I was like 'I really thought it would be thyroid". How could they miss that?i myself was suffering with thyroid disease for years after my daughter was born.. low thyroid also leads to high cholesterol as well as heart disease. I was diagnosed after I bled out for weeks and my level 5 haemoglobin level.could mot be ignored . I had no headaches but had aching ankle joints whenever I would walk.down stairs as well as many other symptoms. These stories really make.me.mad at doctors. When you're female and a mother they seem to.tthink you are psychotic. A doctor actually told me I was another time for a different ailment lol, when I was actually suffering from strictures of my esophagus from acid reflux!
When she got a MRI and it came negative I was sad. Because Ive been wanting to get one in 2 years. The doctor diagnosed me with fibromyalgia but I my headache also get that worse. Somedays I have so little pain other days gets worse for few days then it gets better. My whole body pains but my head is the worst
These doctors on the USA doctors seem not to talk to each other. A lot of what goes on seems to come because of the patient. Not great. Our nhs is a turn key system and although not perfect, you can push more easily for a referral elsewhere.
That's because here in the US, medical records are not shared. You have to request your records be sent to any new doctor you're seeing and every time you go to see a new doctor for the first time, you have a fill out paperwork about your medical history. A lot can be missed, especially if the records are never sent over, are not sent over completely, or if you forget something in your medical history paperwork. Not to mention, since record-keeping is not centralized, there are various systems that are used to store records, which could lead to things being missed during transfer. It is needlessly time-consuming and terrible for the patient, as is everything with our system.
Why do I get so addicted to watching these videos every night before going to bed :( anyone else here is an addict ??
This is legit me right now🤣
Im legally addicted
Me too, am literally addicted to mystery diagnosis
so me
You have perfectly defined my situation
It makes me really angry how many of these mystery diagnosis stories are about people who could have got treated a lot faster if doctors had just bothered to listen what the patients are saying, instead of just deciding whats wrong with their patient, and refusing to investigate any further no matter how obviously the diagnosis is wrong.
Story of my life, made me give up at many times, you really have to fight to get the diagnosis. The treatment isnt as easy as it is visualized here
Aaawwww! Aren't you Sweet, you non-medical professional?!
When you're basic attitude is "Be as patronising as possible & you're regular diagnosis has reduced to "Meh", it's time to retire & play Golf full time!
If you’re not already, you should be a doctor. You are exactly what’s missing from our medical community!
@@florencepierce1864 *your
@@florencepierce1864 ?????
What do we learn from the first story? That women are often not treated and they're often told it's all in their head 🤷🏻♀️🤦🏻♀️
Or that they're getting oLd
Now, Now: Let's not get Hysterical, shall we? Just accept Our diagnosis of "Suffering from Being a Woman" & don't worry your pretty, Very Little head about it!
- Bad enough when Mysoginistic Make Doctors do it, even worse when it's another Woman!
@@florencepierce1864 If it's another woman, it's not mysoginistic, it's just probably how her approach to everyone is.
@@ameliab324 Women doctors can be sexist too towards other women. Women aren't innocent either so don't make excuses for them.
I can't speak for men's experience because I'm not a man so maybe their experience is the same but I've definetely been told by lots of doctors my problems are psychological and all in my head. Even other women telling me and I can't help wondering if it's just 'cause I'm a woman. Like how would they like it? It's disgrace for any doctor to have this attitude even when a patient knows they are fine mentally.
Doctors these days still be like "ma'am, I diagnose you with Woman"
😅
meanwhile they diagnose that to a male bodybuilder with the most dominant male features
i think the doctor needs glasses same for their tests
don't go to that site i got a feeling after seeing in the search bar instaportal scam that they can collect your Instagram login token from you entering the site if your logged in and if not logged in the site probably asks you to login on Instagram on their site
or weight problems
Well said and so true! 😏
Im still waiting for that woman who has a knife in her head
Me too
I hate click bait! The only reason I can think that they titled this with click bait is bc the migraines and cluster headaches I get from Hashimoto's do feel like being stabbed in the head repeatedly. A friend of mine has a CSF leak from a near fatal car accident that left her with a broken, degenerating neck and she describes her headaches from that the same way.
Yes so am I
Its because it FEELS like that lol.... she has Hashimoto's
yea me too
It is a disgrace that these women had to go through such long periods of suffering. There are doctors, and there are Doctors. So glad these ladies are now doing well.
The brown patches on the cheeks told me it was autoimmune at the beginning of Amanda's case. It's outrageous that we need to be able to diagnose ourselves. My mother was a nurse with extra abilities as a matron & midwife. She took years to convince her own GP, whom she worked with & advised, that she had hypothyroidism & went without treatment for over a decade. This resulted in physical changes which couldn't be reversed after such a long time without thyroxine. Both my sister & myself had to convince our own doctors to check our thyroid function in order to obtain treatment here in UK. Once on medication for hypothyroidism in UK we no longer pay for prescriptions so G.P's are not in a hurry to put patients on medication until their function is very low & tested then retested over months.
My wife was really quite ill after giving birth to our daughter and we went through a similar situation. For me the problem was that majority of doctors today don't really care and simply order tests to be done, blood tests, urinalysis etc etc and then rely on the test to give them the answer. Majority of the time I felt like I could be a doctor as all they did was say have this test then come back to me and I'll read you the result.
My mum had the exactly same problem as Anne in the last case. And doctors also struggled to find what that was due to the fact that was so rare. Here in Portugal that are only 6 known cases. They thought that could be a brain tumor and also thought that might be a cold or sinusitis. Luckily it was not the worst case scenario and the doctors were able to find the leak through the nose and there was no need to do an open brain surgery. And her body never rejected the patch that was made from the skin of her own nose, cause the body accepts the skin better than it it was a synthetic material. It was 5 years ago too, and she remains healthy and without her body rejecting the patch, and we hope that it will remain like that 😊
Hashimoto’s is so common though, how have they missed it? That’s dumb
Exactly what I thought. It's certainly not especially unusual!
My boyfriend has hashimoto's but his symptoms were nothing like this and they found it very quickly. He only really had diminished immune system, they found it when he went to the hospital after having had the flu for a month and it didn't seem to be going away
It's still very under diagnosed both in US and Europe, cause you're "depressed"....One blood test and voila!
These videos are from the 90s when Hashimoto's was not really common.
My mom has Hashimoto’s, but she didn’t have this array of symptoms and they still found it... like HOW CAN YOU MISS IT
I just wasted 45 minutes of my life waiting to see the woman with a knife in her head. Your title is very misleading.
thanks for telling me... so there's no knife in her head? Fine!! I don't think I'll finish it then
😭😭😭😭
It´s annoying that the first thing doctors often think of, is depression. Like everyone has it.
So unintelligent!
Gry Luneborg was put on antidepressants when I was 20 and started complaining about loss of memory, dizziness, « pressure » in my head as if I was being strangled, loss of balance, extreme fatigue... 3 years later I suddenly lost eyesight in one eye. They then discovered I had intracranial hypertension which is caused by excessive cerebral spinal fluid putting pressure on the brain and optic nerve 😞
Yeah... it was in my head, literally!
3 years ago I went to the ER because of terrible pain in both my forearms and was left all night in a room. A doctor came in once to tell me that I was having a panic attack and should see a psychiatrist... 6 hours later I was rushed to the OR because I was having a heart attack!
@@fazistephanie7066 How absolutely horryfying for you! Very lucky you didnt loose your life. To many amateurs and to little experts out there I guess. Years ago, I suffered bad abdominal pains, and was rejected help, because they too claimed it was "up in my head." I got so sick that I started to think of suicide, just to get out of the pains. My family payed for a private hospital, and they found that my abdomen was full of blood, and one ovarie was twisted around.Women usually get morphine for those kind of pain.
@@fazistephanie7066 I believe you on the first one but the second? Hearth attack attacks just one arm (fully) can even go to chest and not just the forearm. And surely not the two.. Ah and a hearth attack when you have u passed out in the minute you feel the pain on the arm. You know why? Cuz it's unbearable. So yeah first of all impossible u last more than 6 hours, second one to much misleaded information and plot holes. But on the first one I trully believe you.
@@Rachel......... We get it, you hate psychology.
@@user-je3fd8qf5g maybe I just hate enablers 🤷♀️ and people who think mental illness can be cured by sympathy alone
Ira and Amanda I’m so happy that you finally found out what was wrong 💜💜🇦🇺
"I can't keep you pregnant forever" had my laughing out loud 🤣
For those saying that Hashimoto's is common, you should know that this series is kind of old. It is possible that is was not as well known back then
I often wonder how some physicians get through medical school. I went through the same thing Amanda did before finally being diagnosed with Hashimoto's disease. Medicine has become so specialized that it is really hard to get a physician who tries to find all the health issues a person might have.
I know right? Do you know that besides that we also have to monitor our b12 vitamin D3 and iron levels because us with hashimoto can't usually absorb them? There are many more things with this desease than just taking a pill to regulate the hormones
It took me 15 years & multiple doctors to get diagnosed with Hashimotos. It makes me so angry I went through 15 years of suffering for something that could’ve been answered with a simple blood test. I had all these symptoms and more.
Bcs of how the system & their education is built.. everyone is to be a specialist in some particular subject. And thats on the cost of generall knowledge & knowledge you only get by experience..
Nurses have mutch wider work tasks & experience = wider knowledge.. as. Anurse you see alot off everything, not a lot of one particular illness/issue/trauma..
Seriously I'm a family physician and we order thyroid tests all the time, even if we think they'll be normal. I myself was diagnosed with Hashimoto's by accident last year. Her doc has no excuse
My mom was diagnosed with Hashimoto's without even having any symptoms. The endocrinologist just saw some spots on her skin and decided to run some labs and she indeed had it. How did they not come up with that?
Am so happy n relieved that she got a solution. Also goes to show having a loving husband is very crucial to life!
Hashimodos is not that rare. But very under diagnosed. Very easy to treat in most cases. I'm glad they finally found out. In women it's often blamed on psychological issues. Ig got hypothyroidism but not from Hashimodos tho. Went with it for years.
Can't believe with all those symptoms the doctor just sends her away with anti depressants 😯
Gosh ! I was just caught up with the title and waiting for a concrete knife to be found in their heads 😂. Just dont take the titles literally, the knife they've been referring is the pain in their heads 😆😆
Mee too
They should put a true title but wont get as many views. Tricksters.
I was also waiting for the same thing😂😂
Me too😂😂😂
Saved me a few moments of time. Thanks.
How did I, someone with absolutely no medical background, know that this ladies problems were thyroid related and not a single doctor did? (Aside from having the same symptoms in a very minor way). It’s such an obvious cause for fatigue, dry skin and hair, aches and pains??
Because you watched the video then wrote this comment after you seen the diagnosis.
That’s why.
Haha,,I died when he said I can`t keep you pregnant forever..lol..that one got me
That annoyed me to the pit of my stomach.. I want to swear but I wont.
@@Marie.b why would that annoy you?
@@gh6st575 I don't remember the story, it was a month ago. do you know where it is on the timeline to refresh it? i'll be glad to tell you.
@@Marie.b at 16:25 he said he cant keep his wife pregnant forever since it was the only thing that seemed to take away her illness
@@gh6st575 yep. i answered 21 mins ago. see above. thanks
I am stunned the doctors didn’t suspect the thyroid , dry hair ,fatigue ,dry skin , joint pain are typical symptoms 😨 mind you I struggled with symptoms for years and was basically fobbed off . When I was menopausal I went for blood tests and took the form to work and had a colleague draw blood . The gp did not tick what test to do so I added thyroid function tests too , my mother nearly died of hashimotos and was in a coma .I often worried about my levels so cheekily took the opportunity to get tested . You got it .... I was hypothyroid ! A lot of doctors are toooooo quick to blame depression and stress . My mothers go said she had stress and later that day she started having fits, she later arrested on the way to a larger hospital . Luckily she made it . I am so glad the lady is ok now
These videos show how difficult it can be for a sick person to be properly diagnosed. How persistant one must be in order to be able to recover and not die instead.
I agree with the husband: Amanda's hair is amazing.
These doctors need to learn to listen to their patients, unfortunately many women experience this dismissive treatment
Yep. I've noticed it also especially hits pregnant women or mother's. It's always blamed on our wombs and hormones and never taken seriously.
Thats 100000% what its like here with my drs! 🤬
My younger cousin had enormous headaches for a while now , the first thing his doctor did was dona CT-scan. I feel so so so bad & sorry for this lady she went through such a terrible pain for so long :(.
Well done to Amanda and her husband, just goes to show, don’t give up. X
"I can't keep you pregnant forever"
*DRAMATIC EYE CLOSEUP*
Dum - Dah - Daaaaaah!
😂😂
I was diagnosed with CSF when I was 17. It took 4 years to find out what was wrong with me. Many of my doctors just said “oh you’re a teenager, your depressed, you should go to a psychologist or oh you have a bad migraine, here you go a high dosage of ibuprofen (600mg)” Yep not helping. It’s vary hard to be diagnosed with a condition when many of the symptoms are things you can’t see.
Anne: *starts having a steady runny nose*
Me, a layperson: oh 💩 her cerebrospinal fluid
Trained doctors too 🐓💩 to appear on the show: 🤷🏼♀️
Nekolalia I thought the same thing!
MOOD
@@anwensu4381 and Nekolalia, that's what I thought as well. As soon as they mentioned a steady drip of a water like fluid was coming all the time from one nostril, I had her diagnosed - leakage of cerebrospinal fluid that should have been instantly located and treated by doctors as soon as she told them about that. Ladies, there are at least 3 of us who diagnosed before ''proper'' doctors. Maybe we could think about getting together
to form a ''Mysterious Diagnosis - Tell us your Symptoms, and we will give you the Answer! {The correct one!}.''. We could make a fortune together. !! lol
Me, an anxious over thinker with a sinus infection and runny nose: oh 💩 my cerebrospinal fluid
Don't blame them its due to trails and challenges of life in this confused generation.
Why is their first thought depression?? She's clearly in a lot of pain physically
Depression CAN cause severe pain. I know first-hand,
@@l.hendriks93 ^^
@@l.hendriks93 yes but if the patients says: 'I don't feel depressed at all!'. That might not be it.
@@breakprismatshell6270 I always said I was not depressed; turns out I was. It IS a possibility. It just feels like doctors jump to that conclusion too fast.
Because she is a woman
A few minutes in and I am screaming HASHIMOTOS!!! I was lucky enough to be diagnosed early and have amazing doctors.
I have this. It took years to get a diagnosed despite the fact that my mother and her mother had underactive thyroids. It was called Myxoedema then but they said my levels weren't low enough (scientists didn't understand autoimmune disase when nan and mum had it.) It took moving to a new house, meeting a new Dr. who checked my blood for 'thyroid antibiodies' to spot the problem. By then I too had a diagnosed of Fibromyalgia for 5 or 6 years.
I understand the frustration of going from doctor to doctor with zero outcome. Thousands of $$$$ down the drain, numerous tests, being told it was "all in my head" - unbearable pain, exhaustion, (and yes, eventually depression because you're feeling like death yet being told there is "nothing wrong"). Then, 14 years later, finally being diagnosed with RA - which had already caused massive damage to my body. Because of the late diagnosis and progression of the disease by the time it was "discovered", I now sit with the fallout trying to deal with daily, ongoing never-ending discomfort, pain and other complications.
I have had very similar symptoms and I thought it was my age...My doctor diagnozed it very quick. I was not even there because of that, just needed a recipe. And she said: Wow, you look so terrible, you have a disease". I said "No way, nothing wrong but getting older" (pain in the knees, depressions, dry skin, getting fat, hair falling out...). A few days later : Hashimoto. But I am still very often tired, the skin itches, hair is still of bad quality. I tried all different mg's of Thyroxin. But it is never really okay.
Anna is a true living mircale even after 17 surgeries. May the Holy Spirit continue to strengthen n protect her in Jesus mighty name Amen.
How could the doctors miss this. Underactive thyroid is pretty common
So they missed tiny ventricles on a scan, and didn't notice while DOING the lumbar puncture that her pressure was low? As soon as she mentioned the dripping nose and metallic taste, someone should have known to check for a leak.
This doesnt even require an mri or ct
Watery discharge and metalic taste are more than enough to know that she is having a csf leak
The most common cause of tiredness in women ! Bad doctors !
Her symptoms were so obvious, I can't believe doctors didn't spot it straight away.
Which woman?
Thank you reel truth documentaries for all the recent videos of mystery diagnosis
Always watch these and thaught hey that sounds like a thyroid problem. The thing is, its actually very common, at least in sweden. I know this pain thou, having hashimotos myself...
Johanna Hallin ditto!
Syns det på vanligt sköldkörtel prov? Har nästan alla listade symptom, har tagit sköldkörtel prov som var ok
Hashimoto kännetecknas av högt TSH och förhöjda antikroppar anti-TPO.
Love these videos. So brave these women
Amazing they didn,t Know it was Hashimoto! It is so frequent and so easy to discover with a simple blood test! Wow.
I am a medical intern, a steady runny nose + metallic taste = immediately said CSF leak, i had her diagnosed on the 1st 10 mins
A lot of times doctors misdiagnose patients , its sad 😐
I have no medical background at all and even i got it from that. Didn't know what it was called but knew it was spinal fluid in her nose and mouth.
Mo Adel - You’re awesome
Carina Daqqa i hope u r not being sarcastic 🙂
So many Primary Care Physicians are to quick to just say here's some pills, go home and rest and your fine....... For some that works and its great for others its NOT OKAY!
jenn jeffs very true. Or some Primary Care Physicians just want to get you out of their office or are so narrow minded and believe that they’re always right.
*you're
And then when something serious is found it could be too late.
Anne seems so full of life. It was actually inspiring to see her living her best life.
The knife must have been the headache.💆
Yep
I thought it was this 🔪
Lol
I was like so curious what Amanda had and when it turned out she has the same disease I (and the half of my family) have, I realized yet again how much luck I have, as in Hashimoto's disease is quite gentle on the majority of my family, only my elderly relatives need to take medications for it, the rest is completely fine. Also, I've been diagnosed very early (16 yo), so the thyroid problems are the first thing I'll think about if something strange starts happening to me.
Very interesting cases! Keep up the hard work!
He diagnosed her with fibromyalgia without excluding other illnesses?! No x-rays, blodwork or triggerpoint test? WTH?!
As soon as in the second case she said that she had a fluid coming out her nose, I said " CSF leak, she has a brain malformation". The metallic taste should be a strong indicator that it's CSF.
The first case too. It was clearly autoimmune. They dismissed her over and over.
I just love Ann.. so happy still.after all that. Hope she had a few words with that first doctor who gave out antibiotics like they were peanuts!
I am appalled at the difficulties Amanda had getting diagnosed. It beggars belief that so many doctors failed. Horrific. Thank goodness for the final Dr that joined the dots together.
The topic of knife in head undermines the vid, whilst the vid by itself is fundamentally very educational and enlightening.
When you are so tired that simply getting out of a chair and going to the bathroom is an adventure that needs to be recovered from.
This confusion could have been prevented at the first place by a proper history taking.
I cant understand how could they miss out on these small things
Me the intelligent: read the title
My brain: wait, that illegal
Just got here quick for more Mystery Diagnosis.
It's taken me three years of tests and diagnoses that didn't explain all my symptoms to have fibromyalgia even remotely considered and that doctor just threw it at her like nothing, that infuriates me
Medical Mysteries is, basically, This woman has physical symptoms that nearly destroy her life! Doctors, Meh, it's just that you're a woman. Learn to live with it. Woman: 10 years later, all my obviously endocrinology symptoms are revealed to be a glandular issue!
my mother went through the same thing after having me (she'd been ill beforehand but felt fine during pregnancy due to the immune system chilling out to accomodate for a baby). It infuriates me that doctors wont listen to women post-partum when they say that they KNOW something is wrong with their body.
Oh MD! You amaze me this week for uploading fast...if you continue doing this then my life would be brighter and brighter everyday !! 😍😍😍😚😚😚
What a great and sweet husband is that first man.
I can't keep her pregnant forever... rolling laughing
After a woman has a baby. Doctors should take notice of concerns of headaches and different symptoms.
Iv been ill nine years and i realy cant cope no more it's not that i dont want to live i just cant cope with this nomore I'm always in hospital but nothing helps I'm just drained mentally emotionally and physically i need answers to why they cantt even stop me vomiting to the point all i bring up is blood and bile cant even get a night's sleep as the nausea wakes me up nerely ever hour 9yrs is along time to be left suffering like this 😢😢😢
Moonbeam, there has to be someone who specialises in your illness maybe see a gastroenterologist ? There could be something wrong with your stomach or the food you eat causing the vomiting .
I hope you can get some help and treatment , no one should be suffering like this for so long,
it must be horrible for you 😔 wishing you all the best and getting better asap 💜
May you heal soon
A wet paper towel is what they all need-thats what we were given at school for everything from headache to broken limbs🤣
I was thinking she might have an under active thyroid -especially with the dry skin and dry brittle hair as well as joint paint
I enjoyed these real-life stories, thank you for uploading ❤
I have the same disease. My symptoms are not this bad, but I do certainly recognise them. I am confused why it took so long for doctors to figure this out, since it is a pretty common disease =3=
Anne's doctor should be de registered! She should have been sent to the ER weeks earlier for tests. This is why universal healthcare is vital!!! In Australia medicare covers all emergency appointments .
Always read the description, especially if it SOUNDS really weird!
Sounds strange with so many pills, what were they even for?
Fibromyalgia is intense, and yes you have terrible pain and are tired because you are constantly dealing with the pain and flu like symptoms. Sitting here dealing with joint pain I am glad that I know longer am a full time mother but a grandma who can stay in bed when I need to. My children are the best understanding my situation. Wanting to live is another matter.
It’s awful when you know your ill and are thought to be depressed and mad. . I have hashimoto and all they kept saying for fifteen years my illness I was having was besause of that , despite being on levothyroxine . Wasn’t till I had covid vaccine and ended up admitted to neuro and they tested for everything they found out I have gluten ataxia and undiagnosed coeliac disease . Iron levels of three and all I got was it was stress . Three months gluten free and feeling much better ,they said it could be two years before I feel full benefits due to damage to intestines . Despite many admissions to hospital took a vaccine and a neurologist to make me well
Although the other doctors couldnt help her (their fault) but lets not miss the point that who helped her was also a doctor
that's why you always have to do your own investigation when you feel something is wrong
After years of "everything seems normal" you lose hope and just deal with it. I'm close to giving up, I had a blood test but it will probably be normal.... again.
My experience is that doctors get upset when you do your own research and ask for this and that test. Then they feel their authority is being undermined. Most of them really have personality disorders. 🙄
Please make all episodes available in the states.
Thyroid problems can be genetic so make sure your daughters get continually checked over their life time , I have hashimotos too all females on my direct maternal side have Hypothyroidism , A gluten free , dairy free
(don’t forget to add calcium in another form )
or lactose free diet can help to stop triggering the immune system
It depends. My Mother has it but my brother got it and I didn't. I have my fathers blood type not hers....Thank goodness. My brother has my mothers blood type.
Yet another autoimmune disorder. Just like most of these mystery diagnosis.
Well since it's not an external thing they are probably much harder to diagnose
It seems that a large number of these unknown diseases are either autoimmune or endocrine-related. People who are in these situations ought to be referred to immunologists or endocrinologists.
I wonder how in the f- world, having very little medical education, the moment I heard about the taste in her mouth and the liquid, I instantly knew what it was.
It's absolutely horrifying how many *SO* unbelievably uneducated doctors thrive out there in the world and even scarier to think about just how many people died or ended up crippled for life because of their misdiagnosis.
We did ALL KINDS OF ACTIVITIES. Eating out, going to the movies... LOL
How long ago was this episode? The camera is zoomed a little too much into the patients recalling their stories, the narrator sounds a bit different... may this be the first season?
I too got addicted with this 😊
I’m so pleased for Anne. X
Still that dramatic blinking is overly exaggerated.
Fantastic fibromyalgia- Doctor!!! He really Did all that, Any doctor with respect for himself should!
I knew it was thyroid as soon as she said her hair turned frizzy but was when nothing came back on blood results I was like 'I really thought it would be thyroid". How could they miss that?i myself was suffering with thyroid disease for years after my daughter was born.. low thyroid also leads to high cholesterol as well as heart disease. I was diagnosed after I bled out for weeks and my level 5 haemoglobin level.could mot be ignored . I had no headaches but had aching ankle joints whenever I would walk.down stairs as well as many other symptoms. These stories really make.me.mad at doctors. When you're female and a mother they seem to.tthink you are psychotic. A doctor actually told me I was another time for a different ailment lol, when I was actually suffering from strictures of my esophagus from acid reflux!
Does the blonde second patient remind you of Phoebe from Friends especially when she smiled.
I’m in stitches laughing reading all your comments. 😂
Why?
Interesting cases but irritating why they had to lie about knife in head
I'm waiting the real knife lol😁😁
I have fibromyalgia and sounds nothing like fibromyalgia bcoz fibromyalgia involves the muscles
I was expecting for a surgical knife got stuck on the skull during head surgery.. I felt dissapointed
When she got a MRI and it came negative I was sad. Because Ive been wanting to get one in 2 years. The doctor diagnosed me with fibromyalgia but I my headache also get that worse. Somedays I have so little pain other days gets worse for few days then it gets better. My whole body pains but my head is the worst
I'm a cluster headache sufferer the pain is massive. I understand your suffering my friend. 😢
Try magnesium and look up research. I nearly died fron magnesium deficiency.
These doctors on the USA doctors seem not to talk to each other. A lot of what goes on seems to come because of the patient. Not great. Our nhs is a turn key system and although not perfect, you can push more easily for a referral elsewhere.
That's because here in the US, medical records are not shared. You have to request your records be sent to any new doctor you're seeing and every time you go to see a new doctor for the first time, you have a fill out paperwork about your medical history. A lot can be missed, especially if the records are never sent over, are not sent over completely, or if you forget something in your medical history paperwork. Not to mention, since record-keeping is not centralized, there are various systems that are used to store records, which could lead to things being missed during transfer. It is needlessly time-consuming and terrible for the patient, as is everything with our system.