Hey there, pinned comment: please respect people in the comments and try not to reply to other commenters with unsolicited advice. This is not to be confused with making your own individual comment about what has worked for you since that is totally ok. Thanks!
We have to share our individual stories and solutions with each other. The “experts” base their advice on artificial statistical norms they have invented. We are each of us individuals and not some bucket of statistical averages. I would rather hear a real person tell me what works for them even if it’s not something that’s going to work for me because their lived experience will always always always teach me invaluable and unexpected skills. You never can predict what lump of coal you think you are offering turns into a diamond for someone else. Keep on sharing!
Thank you for sharing! We need safe places to share with others. I only discovered my own Sensory Processing Disorder when my son was getting his diagnosis 15 years ago. In advocating for him. I learned to advocate for myself. There’s been a lot of ptsd and a lot of healing. Thank you for providing a safe space to share.
Left a comment earlier that I felt the need to delete, but people seemed to like the idea so I’m reposting with less personal info: Having a to-go bag with the same sensory tools I use at home has been really helpful for me-especially since I often don’t have the executive function or working memory slots to find all the things I need in order to leave my apartment (ADHD/burnout). Bonus if I have duplicates of my comfort items so I can have my at-home versions and my to-go versions that always live in my bag (can’t afford this for everything, but it’s useful when I can).
Your post earlier was ok. I got a bit prickly about other people offering you unsolicited advice. I’m going to set the boundary so people know. Thank you for sharing again.
@@dsathreads Thank you for setting those boundaries-the unsolicited advice is what made me delete the original comment (I had responded to it originally, but was worried that might make the situation worse-so I figured reposting was the easier route). Again, thank you for your video and your work to make this a neurodivergent-friendly space ❤️
Also! I mention not being “diagnosed” which I want to clarify also includes just not being “aware” of your identity, as not everyone has access to diagnosis.
Holy shit. Absolute lightbulb moment at 13:20 when you said, "we don't just get used to it [...] If you're wearing something uncomfortable, it's gonna be uncomfortable. It's not going to stop being uncomfortable. You might get distracted from that discomfort, but that's not the same thing as not feeling it". I dissociate almost constantly bcs my body can't process it all, so it has to shut some parts down in order for me to function. My sensory sensitivity got a lot higher once I was infected with COVID, and I remember talking to My therapist about how everything was so loud and bright and too much, and how I was scared I was never going to "get back to my normal" and he reassured me that with time and more exposure to stimulus, I'd probably get back to a tolerable level. Except I didn't. I got sick in Feb 2022 and my sensory input levels haven't gone back down to what they were pre-infection. It's hard to know what I can expect for myself, whether I'll have further skill regression or if maybe, through work calming my internal systems, I might be able to get to a lower level of perpetual overwhelm.
@@alexinatree I need to look back at my notes, but Janae from TraumaGeek mentioned (I think) that Covid wears away the myelin(?) that surrounds the vagus nerve. I’m not entirely sure of that, but it makes total sense your sensitivities would be more prominent. It would be more that your regulation is impacted, the capacity to get into ventral vagal. So yeah, exposure won’t do crap for that. I recommend their Facebook page, lots of graphics and stuff.
Great video! Very informative and relatable :D Ever since I received my diagnosis I've let go of the idea that I "have to" cook the conventional way like "every normal person" (on a stove, just standing there, waiting for 30+ min. stirring in pots and pans now and then to check if it doesn't burn with the fume hood making awful noise...). It costs me so much energy, because I just found it so boring and loud, but watching a show in the meantime made me forget the food and burn everything :S Now I cook with machines only, that do all the work for me and turn off automatically (timer oven, airfryer, slow-cooker, rice-steamer etc.). I never want to use a regular stove ever again and that's ok :)
Your experience is super duper insanely helpful. 31 years of struggling on my end as a person who is AuDhD is validated further by your amazing effort to publish this video
i am so happy i stumbled upon this channel, thank you so much for these videos!!!! I'm 23 AuDHD (and a costumer!) and it is SO SO SO hard to find resources to help live life with this silly brain. a lot of what i find is very medical or overly optimistic and makes me feel like I'm somehow "doing disability wrong".. everything you've shared is honestly so refreshing and relatable, it's good to feel like I'm not alone!!!
I am glad you decided to share your story despite not wanting to be perceived in a certain way - I avoid this experience as well. Even though you have children and I do not, I felt heard and validated listening to your story because it sounds a lot like some parts of mine, especially the masking and burnout/unmasking/late diagnosis parts. Ooof its really hard. Appreciate you
Thanks so much ❤️ I've just been diagnosed with autism at age 31, and I'm waiting on my ADHD assessment. Pretty sure I'm AuDHD. Just wanted to say that I really appreciate your videos, and I love how you deliver them too. They resonate A LOT. Such an awesome, unique personality! ❤️ Sending love as these struggles are HARD. x
Thank you for making this video! It's helpful to hear how others are working through burnout. Hearing others insights is incredibly empowering and affirming.
Thank you for sharing this. I too am an autist con adhd amongst other descriptors. I would love to try those Bose. I have some noise canceling ones for doing yard work but probably not as nice.
@@dsathreads last night I went to a rodeo. I forgot my headphones and I sat pretty close to a loudspeaker 📢. I had to go for multiple walks to the outside perimeter. Luckily I could spend time with the cows whilst regulating myself. I’m going back tomorrow. Headphones for sure and further back from the action and speaker
Hey there, pinned comment: please respect people in the comments and try not to reply to other commenters with unsolicited advice. This is not to be confused with making your own individual comment about what has worked for you since that is totally ok. Thanks!
We have to share our individual stories and solutions with each other. The “experts” base their advice on artificial statistical norms they have invented. We are each of us individuals and not some bucket of statistical averages. I would rather hear a real person tell me what works for them even if it’s not something that’s going to work for me because their lived experience will always always always teach me invaluable and unexpected skills. You never can predict what lump of coal you think you are offering turns into a diamond for someone else. Keep on sharing!
Thank you for sharing! We need safe places to share with others. I only discovered my own Sensory Processing Disorder when my son was getting his diagnosis 15 years ago. In advocating for him. I learned to advocate for myself. There’s been a lot of ptsd and a lot of healing. Thank you for providing a safe space to share.
Left a comment earlier that I felt the need to delete, but people seemed to like the idea so I’m reposting with less personal info:
Having a to-go bag with the same sensory tools I use at home has been really helpful for me-especially since I often don’t have the executive function or working memory slots to find all the things I need in order to leave my apartment (ADHD/burnout).
Bonus if I have duplicates of my comfort items so I can have my at-home versions and my to-go versions that always live in my bag (can’t afford this for everything, but it’s useful when I can).
Your post earlier was ok. I got a bit prickly about other people offering you unsolicited advice. I’m going to set the boundary so people know. Thank you for sharing again.
@@dsathreads Thank you for setting those boundaries-the unsolicited advice is what made me delete the original comment (I had responded to it originally, but was worried that might make the situation worse-so I figured reposting was the easier route).
Again, thank you for your video and your work to make this a neurodivergent-friendly space ❤️
I did this for my son during the school day when he was younger! I called it a tool bag.
Also! I mention not being “diagnosed” which I want to clarify also includes just not being “aware” of your identity, as not everyone has access to diagnosis.
Holy shit. Absolute lightbulb moment at 13:20 when you said, "we don't just get used to it [...] If you're wearing something uncomfortable, it's gonna be uncomfortable. It's not going to stop being uncomfortable. You might get distracted from that discomfort, but that's not the same thing as not feeling it". I dissociate almost constantly bcs my body can't process it all, so it has to shut some parts down in order for me to function.
My sensory sensitivity got a lot higher once I was infected with COVID, and I remember talking to My therapist about how everything was so loud and bright and too much, and how I was scared I was never going to "get back to my normal" and he reassured me that with time and more exposure to stimulus, I'd probably get back to a tolerable level. Except I didn't. I got sick in Feb 2022 and my sensory input levels haven't gone back down to what they were pre-infection. It's hard to know what I can expect for myself, whether I'll have further skill regression or if maybe, through work calming my internal systems, I might be able to get to a lower level of perpetual overwhelm.
@@alexinatree I need to look back at my notes, but Janae from TraumaGeek mentioned (I think) that Covid wears away the myelin(?) that surrounds the vagus nerve. I’m not entirely sure of that, but it makes total sense your sensitivities would be more prominent. It would be more that your regulation is impacted, the capacity to get into ventral vagal. So yeah, exposure won’t do crap for that. I recommend their Facebook page, lots of graphics and stuff.
Great video! Very informative and relatable :D
Ever since I received my diagnosis I've let go of the idea that I "have to" cook the conventional way like "every normal person" (on a stove, just standing there, waiting for 30+ min. stirring in pots and pans now and then to check if it doesn't burn with the fume hood making awful noise...). It costs me so much energy, because I just found it so boring and loud, but watching a show in the meantime made me forget the food and burn everything :S Now I cook with machines only, that do all the work for me and turn off automatically (timer oven, airfryer, slow-cooker, rice-steamer etc.). I never want to use a regular stove ever again and that's ok :)
Thank you for sharing. I'm going through burnout and appreciate the insight into places I can look to reduce sensory stressors
Your experience is super duper insanely helpful. 31 years of struggling on my end as a person who is AuDhD is validated further by your amazing effort to publish this video
i am so happy i stumbled upon this channel, thank you so much for these videos!!!! I'm 23 AuDHD (and a costumer!) and it is SO SO SO hard to find resources to help live life with this silly brain. a lot of what i find is very medical or overly optimistic and makes me feel like I'm somehow "doing disability wrong".. everything you've shared is honestly so refreshing and relatable, it's good to feel like I'm not alone!!!
Sobbing that you have done a part two, OH MY GOD THE ID
I am glad you decided to share your story despite not wanting to be perceived in a certain way - I avoid this experience as well. Even though you have children and I do not, I felt heard and validated listening to your story because it sounds a lot like some parts of mine, especially the masking and burnout/unmasking/late diagnosis parts. Ooof its really hard. Appreciate you
Thanks so much ❤️ I've just been diagnosed with autism at age 31, and I'm waiting on my ADHD assessment. Pretty sure I'm AuDHD. Just wanted to say that I really appreciate your videos, and I love how you deliver them too. They resonate A LOT. Such an awesome, unique personality! ❤️ Sending love as these struggles are HARD. x
Thank you for making this video! It's helpful to hear how others are working through burnout. Hearing others insights is incredibly empowering and affirming.
Thanks for sharing :) really useful insights.
This is so positive and super helpful. Thank you.
this video was really important and helpful to me, thank you so much.
Thank you for sharing this. I too am an autist con adhd amongst other descriptors. I would love to try those Bose. I have some noise canceling ones for doing yard work but probably not as nice.
@@RLWarrior I wear mine all the time. All the time and everywhere.
@@dsathreads last night I went to a rodeo. I forgot my headphones and I sat pretty close to a loudspeaker 📢. I had to go for multiple walks to the outside perimeter. Luckily I could spend time with the cows whilst regulating myself. I’m going back tomorrow. Headphones for sure and further back from the action and speaker