In the Hospital, After Surgery | Let's Talk IBD
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- เผยแพร่เมื่อ 22 ธ.ค. 2019
- In this video, I show the 3 days I stayed inpatient at the hospital for Barbie Butt surgery. It was definitely difficult having my colon, rectum, and anus removed, but I am recovering well. Zak and my dad make guest appearances in this video! :)
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that nurse who removed the drain was super nice
I had a proctocolectomy about 7 weeks ago. I was in hospital for 15 days. I was in Intensive Care for 4 days. I didn't even stand up for 4 days, it's amazing that you are able to come home after 2 days🙂
Hope you're well xx
You did it!!!!!!!
You are a trooper, Zac is a great partner. Healing wishes go your way
You are so sweet,loving, gratuitous for posting and you have and awesome positivity from what you have been through. I’m glad you have a husband/boyfriend to help you. Him and your dad also have great attitudes. I’ve been keeping up in case I need this someday but I don’t have the strength that you do. BTW, I am Jeffery, 56 years old and from Michigan. You have my support and prayer to keep moving forward and for giving so many others a positive influence on how they can do this. You are truly an angel and inspiration.
Your positivity lights up the vibe. You’re an inspo! You’re empowering everybody to fight every battle with grace
Glad it's over now. So much respect for you on how you handle all of this . Zak is amazing. Good luck and wish you the best 🙏🙏🙏
Duuuude, that drain pull! Great set of videos. Thank you for sharing all of this information. You are helping a lot of people. Merry Christmas 🎄
I’m just now getting to watching all your recent videos but I just wanted to say how proud I am of you, I know this hasn’t been easy! You have been in my prayers ❤️
You look great Maggie!👍 I couldn’t believe how great you did walking!! It took me days after my colon surgery to walk that good. Merry Christmas to you and Zak and all your pups!! Thank you for sharing this video. ❤️
You are an amazing individual...I marvel at your stamina and spirit. May 2020 bless you with health and happiness
God bless you hun!Please get well quick, the world needs you!
I love how strong and optimistic you are!!!! And I felt for you when they pulled that tube out!! It looked so uncomfortable and like such a weird sensation. I hope you heal fast !!
Its very weird - like a snake slithering through your abdomen with lots of pressure. Thank you so much!
Great to see you happily going home to heal. Bless you
Nice to see you home and still smiling. Sending healing vibes. ❤
I literally just found ur channel a couple days ago. I'm so glad u have made it thru the worst part and ur now on the recovery side of this adventure. I'm no where near as ill as u have been, but I have a chronic bowel issue (among other dx's) and I'm pretty sure I'll eventually have bowel cancer, so ur positivity is encouraging for me. I hope u recover quickly and I'll follow up with ur next videos.
Awesome I'm glad your doing ok. Under the circumstances. I will continue praying for. As I'm laying here in the hospital but yet again.
Your hair looks Sooo Good!!!!
Your a great spirit and may your healing be quick!,,❤️❤️❤️
Get well quick. God grant you healing. I love your soft spoken voice.
You are a real trooper Maggie, and with Zac beside you you are a great team.
You are an amazing young lady! Hope your family realizes how fortunate they are to have you!
You’re such an inspiration you still have a smile on your face and still so beautiful. You’re surrounded by love and that’s a blessing on its own . Thank you so much for sharing your Journey with us it’s a wonderful awareness for many because I myself didn’t know anything about this . I wish you a very speedy recovery and a very bless new year ❤️ 🙏
Wow you did amazing after surgery! I had my first of about 10 resections and ileostomy 29 years ago when I was 16. My Crohns flared last year after almost 20 yrs remission and I've had alot of the same problems you've had over the past year. The flare is in my rectum and the small part of my colon still attached. My GI recommended I have the proctocolectomy surgery but after many conversations and for various reasons he's advised I delay as I'm very high risk. I was terrified of having it anyway but not so much after watching your journey. I'm doing Infliximab and azathioprine combination but I know in the next year or two I will need it. Thanks for sharing your story, it makes a massive difference to people and makes it not such a lonely disease. I hope you have a speedy recovery and Merry Christmas to you and Zak.
You are so brave, Maggie. Thank you for your postings.
God bless you.
You look amazing from just having surgery. I hope you have a wonderful Christmas and a New Year.
You are so 💪...such a lovely person. I was diagnosed with Crohn's Disease 25 years ago. At that time I had an abscess the size of a grapefruit. I came close to dying. My gastro doctor thought I would be a tough case going forward. I have been symptom free since then. It is an insidious disease and could awaken any time. I hope you have a great 2020 filled with love and wellness.
Merry Christmas you guys🎁🎄⭐ Hope your healing journey goes smoothly💜
Zak and u both have big heart !!! God bless you
Blessings 💜 you are soooo brave all you've been through your dad and fiancee are Awsome xxx
You tot me, to be thankful everyday
hope you’ll be okay I admire you!
keep fighting may god bless u always.
Maggie, I'm so proud of you! You are an inspiration to all of us! God bless you! Speedy recovery and Merry Christmas!
Thanks for the update! You look great!
Speedy recovery 🙏 hugs
Oh my you are a trooper. God bless you!!!
Oh my god that drain 😱 I was not as ready for that as I thought I was.. so much bigger than I was expecting!
Hope you recover well! You are strong!! ❤❤❤
Incredible - I am a doctor and you have to be the perkiest person so soon after major surgery!!
You will find that you will have ongoing fluid losses through your ostomy, and this is a real problem!
It doesn't matter how many times I have had drains removed, they hurt like hell. It is less likely you end up with an hospital infection, if you go home as early as possible. You did brilliantly with surgery on Friday and home on Monday. Just remember, you had major surgery that will rake time too heal.
Happy New Year everyone.
So happy to see you doing well so far! 💗
Thank you Marie!!
Sending best wishes and positive vibes for a speedy recovery 💟☮️⚛️
Woe is the life of those of us who have had this surgery (eleven digestive surgeries for me and still counting due to so many, many complications that continue to arise). Thank goodness you have youth on your side. I hope your journey proceeds much better than mine. Hang in there, good days and bad days will happen. As with everything, it takes time to adjust to your new life. The thing that helped me the most was to give my ileostomy a name. Seriously, Candice Elaine K. DOB 10/26/2005. Take care of yourself and keep smiling even when it hurts.🙃🙃
I'm really glad everything went so well considering how much scaring there was. Have a Merry Christmas 💜🎅🤶🎄
Ooohh! I finally got to order a sweatshirt tonight!💜💜💜
Zak you did good filming. I hope you were able to get her up and walking. She looks great, it's a huge deal what she went through. Of course she is tough as nails!
You have a great positive attitude. God bless you
Hi well done Maggie hope you heal soon and are back on your feet keep that smile shining 💐🤗
Im happy to see you happy. Merry Christmas.
Wishing you continued fortitude.
Strong, beautiful woman... Keep fighting :)
That nurse is wonderful!
Only 3 days in the hospital for that surgery? That's great. You were in my neck of the woods! I had surgeries near there, at Jefferson (J-pouch) and HUP (ileostomy re-opened permanently due to chronic pouchitis).
Let's Talk IBD * You are so amazing and strong.I hope everything works out for you and I know what you was going through but I still have everything.Thus is a great idea and more people need to talk more about this. try not to rush things and bless you, sending you Hugs . Thanks again for sharing your story and this video.xx😇💕
So happy that you are home, and that this surgery is behind you-literally! Hey, if you can’t tell butt jokes with another ostomate, what’s the point?! Will be sending positive thoughts and prayers your way. Try to get lots of rest and don’t do too much too soon. ❤️😊❤️
Zack is the best lol he puts a smile on his face and embraces you with grace, does not complain about the pain you caused him because he understands is nothing compared to your pain lol . He is just like my husband ❤️Maggie, I really don’t know how you do it and put a smile on your face after all you go through. I personally don’t suffer from What you have, only Lupus, and after I started watching your videos, I kind of stopped complaining about my pain! Keep fighting 🙌🙏.
You were SO brave with your drain! I had an ovary out last year and I screamed the place down when they pulled my drain out. Im having another surgery in 3 weeks and I am honestly more scared of having the drain out than anything else.
so brave! you all are awesome!
Hi Maggie... you are such a Beautiful individual...your Spirit is so Awesome....your journey is a very hard one but you are truly SPECIAL... Thank you for giving others strength and sharing your Life...God Bless Kathy from Hawaii🌺🤶🎅☃️🎄💜
Hope you continue to feel better. Take care.
Hey Maggie! Just going down memory lane with your event since I’m having my 2nd surgery consult in a couple weeks. Still not decided on Barbie butt or j-pouch and scopes last week show worsening of diversion colitis. Not sure I want to risk a relatively uneventful stoma as she is now...anyhoo - thanks for documenting your journey so remarkably detailed! Happy World IBD Day 💜
Grazie per la tua testimonianza di vita. Prego per te
i love your positive outlook. very healthy mind
Thanks for sharing! Merry Christmas!!
Merry Christmas!!
Well done , we love you for all you are 😍
So brave, you look so much happier and better already hope you are better soon love to you all xx
U look better already. Awesome.
Oh Maggie about the drain!!! I have PTSD with that, first time didn’t hurt but the other two times it was like an animal being tortured!!! One time my pain meds wore off the other time felt like Jack the Ripper! I bawled for an hour!! I scared the whole floor with my swearing 🤬 & howling, Iam sure I broke the nurses fingers!!! You were so brave but I know that pain!!! Next time I told them to bring me down to the ER! Sorry if I scared everyone but sometimes they need to hear what the patient tells them!!! Your one brave tough awesome cookie! Speedy recovery & a Merry Christmas 🎄 to you & Zak! ❤️🇨🇦
The drains can be AWFUL! So glad this one was ok! Merry Christmas and thank you!!
Oh my goodness, I can’t imagine being in that kind of pain. I had a bilateral mastectomy and with each surgery JP drains are required. Thankfully I have no feeling in my chest or sides of my rib cage. I just felt the strange suction. I am so sorry you went through that.
I had my Barbie butt surgery and my colostomy put in in October. I had just had six weeks of chemo and radiation across my midsection because I had rectal cancer. I still have my catheter in. My drain was in my bottom and my wound isn't completely healed yet. The second day after my surgery they put me on a regular diet and I ate a salad. Big mistake lol
I'm glad you are doing well 😊
Happy holidays! 😃
Well done Maggie, you are a trooper. Hard part over🙂
Thank you - that's what I keep reminding myself!
Girl u r so brave .
Get well soon
In sha Allah
So happy it went well for you. Get Well Soon.
Thank you!!
Praying for you. Merry Christmas!🎄🎁
Recover well, and have a great Christmas and New Year 2020.
Merry Christmas and Happy New Year!
You are beautiful, from inside out.
God bless always ❤️
You are so positive. Your look marvelous!
Thank you! I don't know about that though... :D
I am thinking, you are a super woman! Happy and Merry Christmas!
your AMAZING love your dad
On the bubble, complain about pain and get some pain meds flowing. One bubble for me hurt when it came out but the next time it didnt hurt too bad. Zak didnt pass out! Great job Zak!
Merry Christmas 2019!!
Thank you, Merry Christmas!
Your brave dear actually last sept 27,2019 I experienced this, but I didn't take video. 🙂 Hoping for ur fast recovery.💪💪💪 I watched ur vids and it inspire those who experiences to have colostomy bag.
I've had those JP tubes and it sure hurts when they take them out. When the doctor wanted to take mine out he told me to take 2 pain pills before hand but I didn't, I just took half a pill big mistake it sure hurt. Have a speedy recovery and many well wishes for Christmas and the New Year!
No fair that you got offered drugs for that. I got offered diddly squat.
If I'm wrong I apologise but your filming seems to give you some strength or at least comfort. I hope you finally feel some normalcy back in your life. Best wishes for 2020 😁
It does!! When I dont film, I tend to get more nervous for procedures. Thank you so much!! Happy New Year!
Maggie, you an inspiration and amazing personality. You give so much positive energy and hope to people with IBD. I adore you and wish you fast recovery. All the best 😘
keep strong honey....I'll pray for you...
I am watching yr videos an u are always so positive
Wow! I was still on oxygen and out of it at 4 days. You little 🌟
I was very fortunate this go-around - way healthier than previous surgeries!
God bless you l was watching and cry stay strong girl love you from iraq
Hi Maggie, l had barbie butt done May this year. I was day three before I was walking. I had open surgery so it was day six before going home.
The discomfort will soon pass. Wishing you a speedy recovery.
I have to have this as an open surgery next month, was bad was your pain , I feel it must have been worse then maggies
You are a very brave young lady. I'm very proud of you. I'm a 69 yo man with some sereve medical problems. I have been battling chronic pancratits and have been on fentynol pain patches for over 7 years and now they think I may have pancretitic cancer. I hove more test to be done. Then I have about 3 other areas in my body that may be cancer too as I also have something in my colon .Your bravery inspires me to move on. God bless!
You look after yourself, take it steady, plenty of rest.
Wishing you a speedy recovery!
Weird question: now that your colon has been removed, what happens to that space? Does everything else shift down, or did they fit you with a mesh sling to hold everything else in its normal spot? Does it pull on or alter the position or angle of your stoma? You are such a warrior - I so admire your positive attitude in the face of everything life has dealt you. Zak is wonderful too!
Your intestines are attached to a membrane (mesentary) that holds everything in place.
@@ICaughtTheSnitch26 So there's just a space where the colon used to be? I have heard of phantom limb pain, where one has a sense of a body part that is no longer there - is the same thing an issue with organ removal? Not a kidney or that sort of organ, but there is an awareness with the digestive organs, and surely the absence would confuse the brain.
@@Slastukin67 my understanding is that the mesentary can also shift. So organs and things can move around to some extent, but not a lot. That's why when you stand up you don't have all your internal organs weighed down into your pelvis. So either fluid will fill that space, or other internal organs will slightly shift to fill it. I have heard of fantom colonic spasms in people who have had their colons removed, but not everyone experiences that. I guess it depends on the person and how their brain is wired.
I went through this same surgery. I had to have a foley catheter fo 2 weeks because they found a hole in my bladder. I know all about what your going through. I had a problem I had blood in my colostomy bag but they just removed my rectum I had the same drainage tube. They had my drainage tube removed on my birthday but I don't remember my birthday but I fou d out my pepre was going to pass away soone then I had thought. I had dizzy spells because of it
I know that look from post op. The hair, the hospital gown, no make up and all the tubes. That’s what I look like after every surgery but I’m always hunched over from the huge abdominal incision.
Oh yeah! I tried very hard to stand as straight as possible because after my last surgery, I have trouble lying flat
curious. what was the reglan for? i was given reglan for my gastoparesis from my juvenile diabetes
Baby??? Your the bravest person ive ever seen!!!!
God bless you dear
You are an amazing woman.
God Bless you
Get well soon
i'm from philly. how far did you have to travel?
so brave