How to NOT Get Better if You Have CFS | CHRONIC FATIGUE SYNDROME
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- เผยแพร่เมื่อ 27 พ.ย. 2024
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Are you struggling with chronic fatigue syndrome (CFS) and feeling overwhelmed by the prospect of getting better? You’re not alone. Sadly, many people living with CFS suffer because they don't have the right information or know-how on how to cope and make positive changes that can improve their health.
While there are certainly effective steps for making real progress towards wellness, it's also important to understand what NOT to do if you want to successfully manage your condition. In this video, I will share some of these pitfalls so you can avoid them in your own journey of living a happier and healthier life - despite CFS.
You Are Just One Mindshift Away From Living Life Without Chronic Pain and Fatigue
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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Sorry I don't have the money for this help.
Hey Miguel, you said you had a doctor in the hospital who knew what the disease is and what to do every day in order to get better. Was it luck or a cfs specialist? How did you know he is the right choice? For me it is very frustrating and difficult to find anyone who really understands this cfs disease/ disregulation.
I think finding a recovery group that resonates with you personally as an individual is the key to recovery I found watching too many videos from different groups overwhelming and confusing I find these videos extremely positive and the least complex you really are doing an amazing job😊
I found this video really helpful Miguel!
It’s mindblowing that at 27 years old you have these amazing coaching skills, bravo for that!
That promises for a very successful future, so well deserved!
Keep up your awesome work!🤗🌻
Thank you very much! 😀
I totally agree that tracking everything doesn't work for most people. I've been told over and over by various people (support groups, a pain clinic, the local post-covid clinic) to track things in complicated charts or by wearing a smart watch, but every time I try doing this it just spikes my anxiety. Sometimes I need to go over my limits a bit (which is fine, for me at least), and I don't feel like I'm able to track EVERYTHING. Life isn't a science experiment! There are a few very organized people for whom micro-tracking works, but not for most people. Thank you for validating my experience on this.
I wanted to thank you for your videos. They contributed greatly to getting me from flatbound to almost normal in a couple of months. Thank you :)
You're very welcome! 🌟 I'm thrilled to hear that the videos I create have played a part in your remarkable progress. Keep up the fantastic work on your journey to wellness! 😊🙌
Just having these videos on in the background while trying to walk downtown for 10 feet (back and forth) in the little town I live was game changer.
I think it gave me permission, and if people were curious why I was struggling to walk or challenging myself, or talking to myself while attempting to walk - - it provided an explanation in the background. Can’t tell you how grateful I am. Thank you.
Wow! This is amazing! Thank you for sharing! 😊
I was in a POTS group trying to get some help and had to get out of it, becuz it just seemed like there was literally NO HOPE in there for me and I couldn’t handle that thought. I’m glad I found you and hope is back.
I’m glad it resonated with you 😊
Great information. Thank you! I’m working on recovery from Long Covid with dysautonomia which mimics CFS as I understand it. I’m 16 months in. Your videos are helping me 😊
Glad it was helpful!
How are you now?
How are you??
I wanted to say thank you again for these videos, this should be show to any long covid sufferer!
You're very welcome! 🙌
Good advice here about not falling down a rabbit hole of negativity in support groups. Some are excellent for information if you can overlook the negative and scarier stuff. It is excellent advice to ltreat the bodily system as a whole, such as the nevous system, instead of the 20 symptoms going nuts. Getting to the root cause should be the goal. I do wish though that I had been wearing a fitness monitor after becoming ill a few years ago. As I am now. Because I have noticed that even the past six months, I am improving leaps and bounds. No more daily crashes and naps are now rare. Sometimes you don't notice when you're improving. Such as the absence of pain. Had I been tracking my heart rate earlier though, I think it would have scared me to death.
Omg sooo true w the heart rate monitor when I got POTS I got an Apple Watch now I don’t use it because it was giving me panic attacks
Hi Miguel
Thank you for the great work you do.
Maybe in of your next videos, could you also talk about the use of stimulants during periods of adjustment?
Referring to coffee, taurine, B12/energy supplements....could imagine it's detrimental as CNS seeks rest & peace, but maybe you can share your experience. Cheers
Thank you so so much! I have the same symptoms and it took me soo long to find the right docs. Your videos are amazing and help a lot. Love them! 🙌
You're very welcome! I'm glad to hear that my videos have been helpful to you. Stay positive on your journey towards better health. If you ever have more questions or need support, feel free to reach out. 🌟😊
What kind of dr?
Thanks Miguel, I am following the principles from your videos and doing so much progress😁. This video gives me some more puzzle pieces to work with 😀.
Great to hear!
Lost me on the financial part. Anyone who has truly suffered this, who had the solution, would tell the world for free. This is my third bout. First after thyroid storm. Second after a shoulder surgery. Third this past entire year after respiratory virus. It is very devastating. If I knew the secret I would announce it to the world. Thanks for some helpful information, though.
I understand your perspective, and I do provide a lot of valuable information and strategies for handling CFS through my free videos. However, it's important to keep in mind that creating and sharing that free content requires time, effort, and resources. While I offer a ton of free information, I also offer a paid program for those who may benefit from more personalized guidance and support. The program involves additional resources, tools, and one-on-one coaching to help individuals on their recovery journey. It's entirely optional and designed to provide a more tailored approach for those who choose to participate. My intention is to support and empower individuals in their healing process, and yes, there is a price for it as it takes up ALL my time! I hope that helps clarify things for you.
@cfsrecovery You charge an incredibly high amount though, which gives the impression that you are trying to benefit off the sick. I'm not saying you don't have good tips and free content, but a lot of it is incredibly vague. If you have the power to help people whose entire lives have been lost, why would you put such a high price tag? Many are on disability..
You had that video talking about how many thousands or what not you're looking to make.
@@setitheredcap2677it's true it's very a very expensive program. I'm I'm another country so due to exchange rates it's practically impossible. There are alternatives that are more possible like Raelen and Dan Neuffer. I think it all becomes marketing at the end and making these videos are also a way of selling and self promoting.
When I go out and try to walk, that's when I get light headed and feel like I'm about to faint. This happens daily so it's like I avoid walking much since I know I'll start to feel faint. Thank goodness I have my son I can grab on to and he helps me walk.
Ditto!
Same. Horrible bc i used to be a jogger. Now walking around the grocery store when i have symptoms makes me feel faint
I didn't find this a bad video but there are a number of things that I just don't think you've explained what you mean correctly. Firstly I totally agree that being on Facebook or Reddit forums that are negative is not going to help you, but you seemed to present this as never been on a forum. As with tracking steps or your heartrate I think that what you're really saying is that you need to stay positive to stand any chance of recovery, which I totally agree with. I think there are places for doing these things as long as you take things with a pinch of salt, take techniques and try things that might work you because some things that work for some people will work for you but some things don't work and that's ok, just as some things in this video can work, or at least start you down the path to recovery. You do have to take all the positives you can from whatever you can, which from my own experience is hard at times, and just not dwell too much on the negatives. I do think keeping a daily diary helps, though for me this isn't to read back or compare on a daily basis the previous entry but so that you do have a record of symptoms, maybe even flare ups if you have those, because in my experience these do happen, but in the end not doing any tracking, not checking certain forums (stay away from those where there's a lot of negativity obviously) is not what you should be telling people, you need to find places you trust (like maybe this channel, i don't think I've watched many, if any of your videos before), and in the end learn what works for you and where to get support, advice, and information.
Thank you for sharing!
I been worried half to death for awhile now. My lease ends May 31 but I may have to stay a month or more longer. I must give my cat away or find someone who could keep him awhile - I'm very, very worried about his safety. I'm so scared for him. I feel no joy daily. I hate everything - how some people are, my location, this entire area, and my life (no life) in general. I think I got the chronic fatigue. I'm light headed all the time. I'm fatigued all the time. I can't go out by myself. I get to where I feel faint - happens daily. Sometimes I feel suicidal although I wouldn't act on it. I fear when I take off from this place in 1-2 months things will go wrong and I'll end up homeless. To many worries.
That sounds very stressful, sending you strength and love. Day to day life can be so painful and challenging
If you read it, I wonder how things are going with you.
I know all of this having researched and used the principals for a while now but i watched this just in the nick of time became a holistic doctor ALMOST had me convinced to purchase all these supplements like adrenal support etc and all it would have done is emptied my wallet and plugged me in to the hyper vigilance again which is probably what caused all of this in the first place. Thank you!
Glad it was helpful 😊
Wow, this is one of the best😊 Truly appriciate.
Thank you so much 😀
Do people really DO the bizarre tracking and obsessive stressing about it as you mention in this video? I’m too exhausted to write more than a shopping list twice a week! Get a dog when you feel well enough. I went on Cymbalta for pain and Meloxicam for unresolved inflammation. I go to work a few hrs a day to get out of my head, pay bills, and chat with people. Someone to care for, something for pain, and souls to connect with DO help. I have GOUTY arthritis, Fibromyalgia, and Chronic Fatigue. Surviving cancer and COVID the first 6 months it hit the U.S. worsened my CFS. My internist suggests I try a stimulant so I can make it beyond hitting a wall after 3 hrs of work.
Good for you 😁
Hello friend, thanks so much for what you do for us here on your channel..Quick question, did you ever have the symptom of a pounding heart rate, it’s not particularly fast but will rock my body and create movement!
I can actually feel my headboard rock sometimes, many thanks
I know it goes against what you’re saying in this video but ..being able to relate this symptom to CFS is important to me
th-cam.com/video/o95e53HK5ig/w-d-xo.html
Thanks Miguel. I am curious about your thoughts on supplementing with Creatine to help with energy during the later end of recovery.
Creatine is definitely not needed! You can use it if you were working out regularly again, and want to increase performance in the gym, but I wouldn’t use it just to get energy to live a normal life. We’re dealing with the nervous system issue, creatine helps with the muscular system.
What are your opinions on caffeine?
I've just reduced my caffeine intake during flares especially in the mornings, it was revving up my nervous system too much and making systems worse
@@denisebraisby4251 yah I don't use it amymoreb
hi miguel,thanks for ur videos ,just wanted to know when u have symptoms u do the brain training or u have anxious thouths?
Brain Retraining Can Cure Your Symptoms: th-cam.com/video/BwFLyhU1214/w-d-xo.html
What's the doctor's name?
I have been extremely tired and fatigue because of arthritis. Can your rewireing strategy also help me?
Great question!
It will work for other issues as well as chronic pain as so much energy is consumed in coping with pain that it doesn’t leave anything leftover, therefore we feel fatigued or have foggy brains. The more we can incorporate relaxation and mindfulness into our routines, the better our sleep will be, the calmer our autonomic system will be and the faster we will heal.
This will indirectly help other symptoms + fatigue. Reducing pain takes off stress on the nervous system, mainly from the emotional and mental aspect.
So funny, I did a video on my channel yesterday about this.
What are those all the other illnesses we need to crossed off ?
Your doctor will do tests based on your symptoms. For example, I dealt with a lot of tingling, pins and needles in my hands and legs, so the Dr. ordered brain MRI, brain MRA and cervical MRI. I also had CT scans.
For the palpitations I wore a heart monitor for 10 days, had many EKG's, echocardiogram, ultrasound of arteries (heart and neck).
So the Dr. will or should order tests, based on the symptoms to rule things out.
When people "Crash" what happens to them? Do they get dizzy and have to go lay down?
This video will help clarify the 'crashing aspect' th-cam.com/video/DNg7ipW5uNM/w-d-xo.html
Recently I added some new activity and may have overdone it. The next day I suddenly had problems with my balance and had vertigo. For me this is a new symptom and it scared me as I am not used to it. Do you think it was an adjustment period? It's less now.
100% percent that was an adjustment period 👍🏼
I have Long Covid and my body feels so heavy and weighed down all the time. It's like I have a ton of bricks holding me down all the time and even sitting upright or lying in bed feel so unsettling. What can I do about that?
Hello my name is Nate I went through this in February I'm still not 100% but follow the principles of keeping your mind calm I know it's going to be tough some days but you'll get through it many blessings
That's common, it gets better as your system normalises. Just try not to fear it.
Check this out th-cam.com/video/imO8ALQB-GM/w-d-xo.html
Also, in terms of overcoming fatigue watch this video - th-cam.com/video/Sv9NTv2KkCE/w-d-xo.html
I got sick again or covid again and got set back to where I was before, but I know I’ve gotten better before and I can do it again, is it common to see people get long covid twice, for example you recover and do well but then get covid again.
@@ezza1236 this happened to me too
Just wondering, is long covid considered as CFS? The symptoms are really similar
I have not caught Covid yet! But there have been many people in the program who have caught Covid during their recovery journey, and they've been able to bounce back using the same principles we teach. GRANTED, as long as there is no damage in the body, that is detectable, essentially Covid is like a really bad flu for them, which wreaks havoc on the nervous system. But if they can learn to allow their body to rest physically, but more importantly mentally and emotionally, they bounce back. Basically getting Covid is like going through a massive adjustment period.
@@cfsrecovery thank you.. i am considered as a long hauler (symptoms caused by covid) its been 21 months since the start of cfs synptoms, looking to try out your recovery program
Hey I was wondering did you do DNRS or your own type of brain retraining?
Brain Retraining Simplified, Step-by-Step Guide *WORKS FOR CHRONIC PAIN* [2022 UPDATED]: th-cam.com/video/_jOYvPkyE_o/w-d-xo.html
Yes I added this in. Is this the only brain training exercise you did or did you do visualizations also? And when you do this brain training for chronic pain do you expand and dim the entire time like for example breath in and expand then breath out and dim? Never dimming completely right? Trying to get the hang of this new brain training I’ve added and that’s got me a little confused. Appreciate all your help 🙏🏼
If you don't have the high end insurance you cant get the test,so you guess at it and stay stuck😢trying what you can.Then to say and almost EVERY VIDEO, does say Get enough sleep,but how how how when your body just wakes at 3,4,5, in the morning when it wants😢
How much is your program?
In terms of the cost, it really depends on a number of factors, and I have to see if we can even help you first. I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply
This is sooo helpful!
Glad it was helpful!
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I dont have cfs but generalised anxiety, seems the principles are same.
Almost, yes!