Recent Breakthroughs in PANDAS Research

แชร์
ฝัง
  • เผยแพร่เมื่อ 9 ธ.ค. 2020
  • MGH PANDAS Website: www.massgeneral.org/children/...
    MGH PANDAS Giving Page: giving.massgeneral.org/donate...
    MGH PANDAS Webinar May 2021: • PANDAS Clinical Care &...

ความคิดเห็น • 28

  • @jeanniefreeman106
    @jeanniefreeman106 2 ปีที่แล้ว +12

    Thank you MGH for the research you are doing. Please continue with all engines at full steam. Children are dying under the traditional medical model as they are not acknowledging this very real illness. Be the voice we need!

    • @hnss5750
      @hnss5750 2 ปีที่แล้ว +2

      My son almost died . I just kept taking him to the hospital in the beginning

  • @hnss5750
    @hnss5750 2 ปีที่แล้ว +12

    I can pin point the moment my child became sick. Certain psychotic medications produced some results but fail to cure him. He eventually became catatonic and he was dying. He refused to eat or drink.
    He's still here. He still has OCD and I medicate him daily because his insurance won't pay for the intravenous treatment that he needs.
    Thanks for your efforts. I hope it isn't too late to save him.
    He's a wonderful human being and he deserves better.

    • @marygoff3332
      @marygoff3332 2 ปีที่แล้ว

      Find a patient advocate and go get your son the help he needs, fight fight fight and take your story to the news media if you need to. Do not give up so easily.

    • @cjskarting7707
      @cjskarting7707 2 ปีที่แล้ว

      Plasmapheresis is the cure to PANDAS except the OCD.

    • @mdmichsocial6540
      @mdmichsocial6540 2 ปีที่แล้ว

      ​@@cjskarting7707 OCD can sometimes be addressed and lowered considerably by healing Leaky Gut Syndrome and gut inflammation. TRS Zeolite minerals, Fulvic/Humic Acid that replaces beneficial bacteria back into the gut since antibiotics/medications destroy good bacteria and increase Leaky Gut and allow excessive growth of H. Pylori bacteria. Gut/Digestion aids like Chamomile, Lemon Balm, Slippery Elm, Marshmallow are great and avoiding processed foods/sugars, synthetic dyes like Red #40, Yellow #5, GMO's that are genetically modified & sprayed with RoundUp Ready Herbicide. Exposure and Response prevention (ERP) and Cognitive Behavior Therapy by CBT therapist helps. Ozone Therapy, Vitamin Chelation, B's, Choline, Zinc, NonGMO vitamin C, Magnesium Glycinate, Glutathione is critical to detoxing the body and a heavy metal detox by a Licensed Naturopath is what we have seen improves PANDAS and OCD.

  • @samsoilydesigns2289
    @samsoilydesigns2289 3 ปีที่แล้ว +13

    yes the caveat, that if you get treatment you are likely to outgrow or be healed, but without treatment, what is the prognosis, when you have whole countries with little to no doctors who believe in P/P or the few that do are totally inaccessible .......

    • @aleksandarnikolovski9740
      @aleksandarnikolovski9740 2 ปีที่แล้ว +2

      You are right!! My brother is 20 and suffers from PANDAS since he was 3. My parents tried everything and we found out not a long time ago his real diagnosis. My question is also if he can be healed at least a little bit...

  • @MatthewPomar
    @MatthewPomar 2 ปีที่แล้ว +2

    Thank you for publishing this. Any updates on the clinical trial of the anti-inflammatory medication referenced at 39:43? Anyone know what the name of this medication is? Seems the only recognizable treatment after addressing any active infections is continuous IVIG.

  • @meganomalley4120
    @meganomalley4120 3 ปีที่แล้ว +5

    OCD is brain inflammation like SO many other psychiatric conditions. What is causing the inflammation in the brain.... Genetic susceptibility and environmental assaults...

    • @hnss5750
      @hnss5750 2 ปีที่แล้ว

      Yeah. But isn't it a bazaar phenomenon?

    • @bbongwaterr3854
      @bbongwaterr3854 2 ปีที่แล้ว

      @@hnss5750 I know isn't it also bizarre the military forces you to this point it's kinda interesting I think I have pans/pandas from my mother's long term dpd or other related mental illness

  • @latoyalove23
    @latoyalove23 ปีที่แล้ว +2

    thank you my daughter is dealing with this I think

    • @YoursUntruly
      @YoursUntruly ปีที่แล้ว

      I’m so sorry, I hope you’re seeing some progress

  • @alenadanh9225
    @alenadanh9225 ปีที่แล้ว

    Hi I think my son has PANDAS and need urgent medical attention and ready to take part in any research. Cunningham panel came back positive.

  • @JonsterMonster
    @JonsterMonster 2 ปีที่แล้ว +4

    I am interested if vaccination can worse the p/p symptoms 🤨🤔

    • @linzG
      @linzG 2 ปีที่แล้ว

      @Herman Alfredsson I am so sorry to hear that. I hope things get better for her.

    • @belindaadkins9888
      @belindaadkins9888 2 ปีที่แล้ว

      I believe so!

  • @hnss5750
    @hnss5750 2 ปีที่แล้ว +2

    I can help. I know I can.

  • @funnyfurfamily1513
    @funnyfurfamily1513 ปีที่แล้ว

    Has anyone heard of resilience homeopathy? Our 3 year old son is battling Pandas and we have him on this. We are seeing results, but it’s a battle.

  • @right..5651
    @right..5651 ปีที่แล้ว

    Can you get this as an adult? Like a late onset we're suddenly find yourself in this situation? Or is my OCD because of a different reason? It's really making me miserable 😪