Thank you for your work to bring awareness to PANS/PANDAS. It is real and devastating. We had success with Plasmapheresis treatments and great help at AMEN Clinic for our son.
Fatjon Taullau I’m 29 I had it since 15. Check for infections if there is no infection make sure they change there diet to a anti inflammatory diet I thought it was just strep but we found out stomach problems can flare me an other pandas people to. Once the inflammation is down I can recover
OMG this is what I'm currently struggling with in regards to my daughter.....my heart goes out to every family and every person dealing and living with this horrible sickness....so sad watching ur child struggle and as a parent u can't fix it
it is so weird looking at the comments on this video. just for the reason that I have never met another person face to face that also has pandas. It sometimes makes me feel like im alone in the world and that no one will ever understand what i am going through. So seeing these comments with other people expressing that they have it, honestly makes me feel a lot better. :)
I’m so thankful you’ve made this video of awareness. Your sons story almost mimics my sons. We’ve tested for all sorts of things and doing the cycle of meds with zero improvement. He’s now 20 and I’m blessed to have found your video. I wasn’t sure this could be it due to his age. I’ve found a pans dr and will hopefully see him next month and get answers/help. I’ve watched this a million times. Just wanted to say thank you and it’s gives me hope and increases my faith we can get his life back.
Wow what a testimony of answered prayer thank you Jesus, praying for more knowledge and permanent treatments in Jesus name. Praise God for researches seek and you shall find :)
Wow! This video is very informative, you are doing a great job on explaining the symptoms etc. I am so sorry that your family is going through this and for the loss of your friend's son. Glad that you guys found the diagnosis and are bringing awareness to this disease. I came here from the ABC snippet on PANDAS, hopefully this will get more views. And congratulations to your son on starting college, that's wonderful. Take care.
His withdrawal phase sounds very reminiscent to Hikimori. People with PANS & PANDAS need monitors they can wear to regularly test their blood throughout their daily lives & send results immediately to emergency contacts, primary care physician, & the wearer’s smart device. Sort of like those wearable glucose monitors. This way, the6 wouldn’t have to wait for behavioral signs that the levels may be changing; don’t want any other PANS/PANDAS person to suddenly have supe4 elevated levels that get them killed before anyone has a chance to save them.
Out of all the stories ive watched and read, yours stands out because you spoke about praying for your son and behold, you found your answer. The Lord heals through prayer and I’m saddened that most families with this disease don’t consider praying for their child. We wrestle not flesh and blood but against principalities, against fallen angels. God bless your son. 🙏🏻
Hello! Thank you for you’re article, I am a college student doing research on PANDAS and every bodies stories are so helpful! Hopefully we will find a full cure for this disorder
God bless all of your families. And for bringing this to light. I am struggling to find out what is going with my 4 year old and it fits these so close.
Thank you for this! My son Jace was diagnosed at 3 he is 4 now. He got sick at 2 and was not diagnosed untill a year later. He's been on antibiotics since October. We tried to take him off but he regressed. Can't afford ivig so we're completely at a loss.
Stacy Higginbotham In Canada treatment would be paid for! Nobody has to suffer or die because they don't have $$$. Stop believing what you are being told about healthcare & vote accordingly.
Stacy Higginbotham why dont u look forward for ivig treatment in other countries . Some countries have really cheap medical facilities . I am from india i m hearing abt this diseases first time . I dont know much abt treatment but india is cheap for Americans may u can find ivig treatment here
This family has been through HELL AND BACK. This vid doesn't begin to describe their intense suffering. Lesser men would have melted in a puddle on the floor or run away from their family by now. Many props to Jason for being a faithful and strong man of God; he made it through the crucible.
Thank You For sharing your Story. I being praying for an answer . Thank you I'm glad that your Son is doing better. My deep condolences goes to Max Family God Bless You All🙏❤️🙏
They need to be put on low doses of antibiotics for a year. They need to do cycles of 3 months on and 3 months off, otherwise the immunoglobulins therapy alone is of limited usefulness. This is how it is treated in Europe.
Yesterday I told my daughter about Pandas, and she didn't believe it. Today after reading about the "Girl Who Couldn't Stop Sneezing", she believes. I'm glad we know, because she thought she was to blame for the (depression, anxiety, and rage) exhibited by her daughter. We thought it was hormones /ADHD, until she started talking about wanting to die and running away. She is also hard to reason with. We both have medical backgrounds, and are herbalists. The blood purifiers seem to be helping, but traditionally, Amoxicillin sounds right to me as well. An immunologist is using gamma globulin which seems to work as well and seems to be helping some young people.
This is my family’s exact story. I’m blown away watching this video. Georgia needs to speed up their support for families like mine. Insurance covers none of the treatment in my state.
Thanks for sharing. My son started with symptoms at 13 and was diagnosed with Tourettes and due to his OCD he was bullied at school and having to be schooled at home. His OCD got bad at 16-17 controlling food intake and had gotten so thin he would pass out. Praise God he’s doing better even though OCD is there with hand washing and bathroom visits for 2 hours, but he’s been able to complete high school and now online computer courses. People need to know PANS and PANDAS is real. A psychologist was the one who diagnosed him, but no available treatment in Spain, it is unknown here too. Awareness is essential!!!
@@conniegonzalez7797 oh wow Im great he is doing good so far like you said some OCD the only issue I have now is that she was recently positive for strep no symptoms yet but I’m worry
Thank you so much for this video, this is our 16 year old son exactly and finding help in Arizona is just not working for us. We are trying very hard and our Immunologist is trying to treat but he is not an expert. I wanted to ask you a few questions do you have a website or a contact that I could ask you a few questions. We will do anything to save our son and refuse any other psychiatric treatment centers. We need help and feel so desperate.
Years ago 3 people in my family had some kind of coughing illness. None went to doctor. It lasted longer than a cold. My younger sister was one of the 3 that had the cough. Within a few months or years my sister went on to have paranoid schizophrenia. She wasn't able to tell us when something changed in her brain.
Hello, I am just learning about this disease and all symptoms seems to fit my 7 yr old daughter and I leave in Arkansas as well. I am trying to contact several doctors to see if they are aware of it to help with my daughters issues.
My sister has PANDAS and I don’t know what to do. If anyone else has a sibling with PANDAS just let me know. Please. I know this is such a hard thing to go thru. I know. I’m young, so I won’t use the scientific stuff. Somehow PANDAS makes her crazy and she screams such hateful stuff. I know she can’t help it. Someone just talk to me. Please
Amber Loft yes because that is usually when it’s acquired. My daughter was 8. They don’t get automatically cured when they turn 18. My daughter is now 19 and still struggling.
Please try Anti parasites Seems to work with someone with schizophrenia symptoms which is similar My loved one has episode every month after more than six months almost normal but not yet cured
My daughter is having horrible pans symptoms. I'm having a hard time finding someone to treat her. Do u have resources as to who I can take her to? We feel so helpless
This is a medical issue not a psychiatric one. The doctors HAVE TO help you. They can’t turn you away. Keep at it. Keep making appointments. Show them video of tantrums. Provide them with info on PANDAS. Demand treatment. It’s your right.
Did this family make this video? If anyone knows how to get in touch with The Puckett family please message me. We are going through something very similar with our 15 year old son. It is horrific and we need to talk to someone who has made it through. Please HELP.
Most patients develop Strep Throat days after their Vaccine the a month later got Pandas/Pans syndrome. To me, the medical industry just came up with a new name for the more severe Autism, Tourettes and OCD caused by their vaccines
So why is no one making the connection between auto-immune neurological disorders in children and adolescents and the increased vaccine schedules. This is something that now effects as many as one in every two hundred children. Just like the numbers of autism cases has steadily increased over the past two decades. This has to be something that has changed in the environment that directly effects children and early teens.
I’m 29 I had it since 15. Check for infections if there is no infection make sure they change there diet to a anti inflammatory diet I thought it was just strep but we found out stomach problems can flare me an other pandas people to. Once the inflammation is down I can recover
when i was 5 and had pandas bad, they put me on Penicillin for a year or 2 and also got therapy and it helped with my ticks and ocd. also healthy diet and exercise helps. Certain vitamins like probiotic or B12 can help. There is some specialists out there if you have the money.
@@dignal8399 Much better than when I was a kid but being a member of society is hard and forming intimate relationships is hard. It’s hard not to take drugs or alcohol but i’m trying.
My son was recently diagnosed with PANDAS after seeking an answer for his symptoms for over 8 years. I am hoping and praying for a miracle.
Thank you for your work to bring awareness to PANS/PANDAS. It is real and devastating. We had success with Plasmapheresis treatments and great help at AMEN Clinic for our son.
Please help me. I think my nephew has this syndrome. he has tic. How was your son recovered? Are you cured of this syndrome? please respond to me
Fatjon Taullau I’m 29 I had it since 15. Check for infections if there is no infection make sure they change there diet to a anti inflammatory diet I thought it was just strep but we found out stomach problems can flare me an other pandas people to. Once the inflammation is down I can recover
which amen clinic?
Amen
@@HappyLeeFitness Dr. Daniel Amen the brain guy?
You're a warrior Mama Bear fighting for your son, the way your husband looks at you in the video is so beautiful! Blessings to your family.
This mother saved her son's life! What a hero!
Thank you for your courage to share your story and raise awareness of PANDAS.
Pandas
OMG this is what I'm currently struggling with in regards to my daughter.....my heart goes out to every family and every person dealing and living with this horrible sickness....so sad watching ur child struggle and as a parent u can't fix it
Hi how is your daughter my daughter is going thru, it’s really hard
Same here with my daughter for the past 6 years
GOD BLESS YOU MAMA BEAR FOR DOING YOUR RESEARCH AND NOW SHARING THE KNOWLEDGE XOXOXOXO #ADVOCACY#PREVENTION
Thank you for this. I used I have PANDAS around the same age as him and I appreciate you are trying to raise awareness. 😊
My nephew was just diagnosed yesterday. The doctors have said that his case is very rare. Thanks for posting
it is so weird looking at the comments on this video. just for the reason that I have never met another person face to face that also has pandas. It sometimes makes me feel like im alone in the world and that no one will ever understand what i am going through. So seeing these comments with other people expressing that they have it, honestly makes me feel a lot better. :)
GOD IS GOOD. Proactive momma, love you! God bless!
I’m so thankful you’ve made this video of awareness. Your sons story almost mimics my sons. We’ve tested for all sorts of things and doing the cycle of meds with zero improvement. He’s now 20 and I’m blessed to have found your video. I wasn’t sure this could be it due to his age. I’ve found a pans dr and will hopefully see him next month and get answers/help. I’ve watched this a million times. Just wanted to say thank you and it’s gives me hope and increases my faith we can get his life back.
Wow what a testimony of answered prayer thank you Jesus, praying for more knowledge and permanent treatments in Jesus name. Praise God for researches seek and you shall find :)
Wow! This video is very informative, you are doing a great job on explaining the symptoms etc. I am so sorry that your family is going through this and for the loss of your friend's son. Glad that you guys found the diagnosis and are bringing awareness to this disease. I came here from the ABC snippet on PANDAS, hopefully this will get more views. And congratulations to your son on starting college, that's wonderful. Take care.
This story needs to be spread around the whole world!!!!!!!!!!!!!!!!!!!!
His withdrawal phase sounds very reminiscent to Hikimori. People with PANS & PANDAS need monitors they can wear to regularly test their blood throughout their daily lives & send results immediately to emergency contacts, primary care physician, & the wearer’s smart device. Sort of like those wearable glucose monitors. This way, the6 wouldn’t have to wait for behavioral signs that the levels may be changing; don’t want any other PANS/PANDAS person to suddenly have supe4 elevated levels that get them killed before anyone has a chance to save them.
Out of all the stories ive watched and read, yours stands out because you spoke about praying for your son and behold, you found your answer. The Lord heals through prayer and I’m saddened that most families with this disease don’t consider praying for their child. We wrestle not flesh and blood but against principalities, against fallen angels. God bless your son. 🙏🏻
Just praying doesn't do it. The love for their son did it. Doctor after doctor and not giving up
@@giovanniikon4364 thats your opinion 🤷🏻♀️
this video was so helpful. I was just diagnosed and hearing you and your families story has given me more hope
Hi how are you doing now.
Same as me
Hello! Thank you for you’re article, I am a college student doing research on PANDAS and every bodies stories are so helpful! Hopefully we will find a full cure for this disorder
Lauren hi, I was curious is (with proper treatment) pandas can go away in puberty? Maybe you have an answer.
@@buksiblingsfun8906
No, it will not, because it is not a brain chemicals imbalance, it is an infection
@@buksiblingsfun8906 You're very crazy
God bless all of your families. And for bringing this to light. I am struggling to find out what is going with my 4 year old and it fits these so close.
God bless you and your family, Max.
Thank you for this! My son Jace was diagnosed at 3 he is 4 now. He got sick at 2 and was not diagnosed untill a year later. He's been on antibiotics since October. We tried to take him off but he regressed. Can't afford ivig so we're completely at a loss.
Stacy Higginbotham In Canada treatment would be paid for! Nobody has to suffer or die because they don't have $$$. Stop believing what you are being told about healthcare & vote accordingly.
I'm having a hard time finding somewhere that will see my daughter for pans. Doctor's here are not aware of this and don't want to
Stacy Higginbotham why dont u look forward for ivig treatment in other countries . Some countries have really cheap medical facilities . I am from india i m hearing abt this diseases first time . I dont know much abt treatment but india is cheap for Americans may u can find ivig treatment here
Hope Jace gets better soon!
did you write to the company making the IVIG????
I am so so so glad your family found the diagnosis and treatments. That is incredible news!
The dad looks absolutely defeated. Its not your fault brother. Keep your head up!
This family has been through HELL AND BACK. This vid doesn't begin to describe their intense suffering. Lesser men would have melted in a puddle on the floor or run away from their family by now. Many props to Jason for being a faithful and strong man of God; he made it through the crucible.
Thank You For sharing your Story. I being praying for an answer . Thank you I'm glad that your Son is doing better. My deep condolences goes to Max Family God Bless You All🙏❤️🙏
Well done, parents! Wonderful you went into action as your son's advocate.
They need to be put on low doses of antibiotics for a year. They need to do cycles of 3 months on and 3 months off, otherwise the immunoglobulins therapy alone is of limited usefulness. This is how it is treated in Europe.
I had pandas! You need to remove his tonsils because that fixed it for me! GOD BLESS YOU!!!
My nephew has pandas and also had his tonsils removed but he still has it. What else did you do
@@kristinasnyder3696 IVIG
Thank you mama for getting the msg out because it will help so many other families too!!
How awful! Prayers. I've never heard of this before!
Glad he’s okay I’m from hot springs Arkansas and I think I seen him before looks familiar prayers to you and your family
Yesterday I told my daughter about Pandas, and she didn't believe it. Today after reading about the "Girl Who Couldn't Stop Sneezing", she believes. I'm glad we know, because she thought she was to blame for the (depression, anxiety, and rage) exhibited by her daughter. We thought it was hormones /ADHD, until she started talking about wanting to die and running away. She is also hard to reason with.
We both have medical backgrounds, and are herbalists. The blood purifiers seem to be helping, but traditionally, Amoxicillin sounds right to me as well. An immunologist is using gamma globulin which seems to work as well and seems to be helping some young people.
This is my family’s exact story. I’m blown away watching this video. Georgia needs to speed up their support for families like mine. Insurance covers none of the treatment in my state.
Thanks for sharing. My son started with symptoms at 13 and was diagnosed with Tourettes and due to his OCD he was bullied at school and having to be schooled at home. His OCD got bad at 16-17 controlling food intake and had gotten so thin he would pass out. Praise God he’s doing better even though OCD is there with hand washing and bathroom visits for 2 hours, but he’s been able to complete high school and now online computer courses. People need to know PANS and PANDAS is real. A psychologist was the one who diagnosed him, but no available treatment in Spain, it is unknown here too. Awareness is essential!!!
Hi. How is your son doing now, anything helped I have a 14year old with same symptoms
@@dignal8399 has had no treatment. Very smart. Into programming and maths. But, no treatment.
@@conniegonzalez7797 oh wow Im great he is doing good so far like you said some OCD the only issue I have now is that she was recently positive for strep no symptoms yet but I’m worry
@@dignal8399 praying she’s completely healed!! Nothing is impossible for God!! He loves our children more than we can imagine!! He’s in control!!!
@@conniegonzalez7797 Amén thank you. Prayers are all and yes JESUS love us
Omg Max, im sooo sorry:(
His brother looks like he could used some therapy himself. He looks defeated.
Thank you so much for this video, this is our 16 year old son exactly and finding help in Arizona is just not working for us. We are trying very hard and our Immunologist is trying to treat but he is not an expert. I wanted to ask you a few questions do you have a website or a contact that I could ask you a few questions. We will do anything to save our son and refuse any other psychiatric treatment centers. We need help and feel so desperate.
Years ago 3 people in my family had some kind of coughing illness. None went to doctor. It lasted longer than a cold. My younger sister was one of the 3 that had the cough. Within a few months or years my sister went on to have paranoid
schizophrenia. She wasn't able to tell us when something changed in her brain.
I’ve heard of testimony that deworming with enemas helps a lot. God bless your family with healing in Jesus name.
Hello, I am just learning about this disease and all symptoms seems to fit my 7 yr old daughter and I leave in Arkansas as well. I am trying to contact several doctors to see if they are aware of it to help with my daughters issues.
Live
A woman of faith ❤
Thank you from the bottom of my heart!
My sister has PANDAS and I don’t know what to do. If anyone else has a sibling with PANDAS just let me know. Please. I know this is such a hard thing to go thru. I know.
I’m young, so I won’t use the scientific stuff.
Somehow PANDAS makes her crazy and she screams such hateful stuff. I know she can’t help it. Someone just talk to me. Please
Pandas will go away with treatment. Ik its hard but it will go away. I hope the best for u
Hi how is your sister doing?
My niece gets ivig at Children's in arkansas
I believe 2 of my sons have this. I am now looking for help to get a diagnosis. A new treatment I am looking into now is DMSO. Have you heard of this?
It’s kind of weird that all the videos I’ve watched about PANS have been 2 years from now
I pray for a full and complete miracle healing for Cam in Jesus name!
correct me if i am wrong but doesnt the P in PANDAS/PANS stand for "Pediatric"???
Amber Loft yeah
Pediatric is until ur 25 and even then it doesn’t go away completely
Amber Loft yes because that is usually when it’s acquired. My daughter was 8. They don’t get automatically cured when they turn 18. My daughter is now 19 and still struggling.
PANS/PANDAS awareness!! 👏 RIP to Max Wallace :(
My daughter has this. She is suffering so much. We are getting treatment and are hopeful she will improve
Hi how is your daughter doing. I have a 14years old no help
I had pandas but not anymore it’s not bad at all. It just makes u nervous for everything
How did you fix it
Hi how did you fox it?
My son has PANS what were his triggers/infections
Is there a way for a children's hospital to test for this panel? I'm here now, I believe my son has this
Have you contacted Dr Susan Swedo who first recognized the disease??????
I think i have PANS. How do i get them to shift from FND to PANDAS
So... with treatment it can go away in puberty or did I misinterpret?
Koala From Tomorrow I’m sorry if I offended you. I dont quite understand your reply...?
Koala From Tomorrow ah thank you very much
No it can’t. Despite it having the word pediatric in the acronym, it can affect anyone and sadly doesn’t just disappear when you reach a certain age.
Brain inflamation. What about antinflamatory medicine? Mix with antibiotics?
Please try Anti parasites
Seems to work with someone with schizophrenia symptoms which is similar
My loved one has episode every month after more than six months almost normal but not yet cured
The Silver/Aloe protocol would be beneficial and it would not damage the gut microbiome like antibiotics. It can be found at Robert Scott Bell . Com
All the natural stuff is completely useless for autoimmune disease. You have no idea how serious it is or how many bodily systems are effected.
As a person with pandas I don’t like ‘it’s like ur kid is kidnapped right infront of your eyes’ he’s still your kid dude! They’re just different
I agree
Do you have discord by a chance?
your not understanding they are so different you cant recognize
Ivig didn’t help my son. Was ivig the only thing that helped? Did you do anything else besides antibiotics and anti vitals?
We lived in Denver and none of the doctors wanted to spend the time to read the details to help 😢
My daughter is having horrible pans symptoms. I'm having a hard time finding someone to treat her.
Do u have resources as to who I can take her to? We feel so helpless
Kristy Linzie Hi did you get any help my daughter is going thru the same and is frustrating when there’s nothing you can do.
This is a medical issue not a psychiatric one. The doctors HAVE TO help you. They can’t turn you away. Keep at it. Keep making appointments. Show them video of tantrums. Provide them with info on PANDAS. Demand treatment. It’s your right.
How is Cameron doing now?
PANDA!
Did this family make this video? If anyone knows how to get in touch with The Puckett family please message me. We are going through something very similar with our 15 year old son. It is horrific and we need to talk to someone who has made it through. Please HELP.
Hi did you get any help?
Did you receive help for your child?
Most patients develop Strep Throat days after their Vaccine the a month later got Pandas/Pans syndrome. To me, the medical industry just came up with a new name for the more severe Autism, Tourettes and OCD caused by their vaccines
Krystal Smith 100%. The correlation between vaccinated countries and autism is too strong to ignore
These kids did they all had the childhood vaccinations?
TH-cam- the Michael sanicola story. Related to P.A.N.D.A.S
My daughter is autistic and had strep today is day 16 with 0 food intake she is 4 years old and my body is telling me she has pans
So why is no one making the connection between auto-immune neurological disorders in children and adolescents and the increased vaccine schedules. This is something that now effects as many as one in every two hundred children. Just like the numbers of autism cases has steadily increased over the past two decades. This has to be something that has changed in the environment that directly effects children and early teens.
I need help my grandson just got diagnosed with pandas help !!
I’m 29 I had it since 15. Check for infections if there is no infection make sure they change there diet to a anti inflammatory diet I thought it was just strep but we found out stomach problems can flare me an other pandas people to. Once the inflammation is down I can recover
when i was 5 and had pandas bad, they put me on Penicillin for a year or 2 and also got therapy and it helped with my ticks and ocd. also healthy diet and exercise helps. Certain vitamins like probiotic or B12 can help. There is some specialists out there if you have the money.
@@xxxfloridaboy2661 hi how are you doing now?
@@dignal8399 Much better than when I was a kid but being a member of society is hard and forming intimate relationships is hard. It’s hard not to take drugs or alcohol but i’m trying.
@@xxxfloridaboy2661 it is hard
That what I'm going those
So sad.
For everyone looking for answers.
FUNCTIONAL MEDICINE
FUNCTIONAL MEDICINE
FUNCTIONAL MEDICINE
please contact me. I would like to help my son who has this condition. I would also like to raise awareness.
God how much do these treatment cost.... I hope they are covered by insurance....
Made a new community for individuals and families with PANDAS:
reddit.com/r/PANDASsyndrome
There is NOTHING too big for Jesus Christ, the Great Physician!
I'm a PANS survivor and it stole my entire childhood.
Seriously? Actual doctors are the great physicians...not storybook characters.
@@amandaconticello2120 lol
Amén
This is the fucking worst disorder/disease ever, i hate it.