What my son's seizures look like
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- เผยแพร่เมื่อ 13 ก.ย. 2024
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Hopefully he will stop having seizures, but until then he is a very smart kid and I glad he knows what to do in the case of one.
😢 I am sorry for you
@@wandaburkowicz5665 why-
@@wandaburkowicz5665it wasn't about them🤨 it was about Griffin being smart and stuff-💀
Does EVERYONE have seizures cause I NEVER had one
@@user-st2vd7gd2ino… where r ur brains lady?
I have seizures too, and when I have absence seizures I'm usually sitting, and I fall over, which is very dangerous, so I'm glad to know that Griffin knows to get to the floor before he has a seizure. I have straps that go on most chairs to prevent me from falling.
🙏🙏
My aunt has these; we think it's from the vaccine because she has very dangerous absent sezuries that can last for up to two hours. She hits herself, laughs, wakes up, forgets who she is, goes back into one, then wakes up like nothing happened
@@urfav_tayOMG is your grandma ok I hope she did not get really hurt I will pray for her😢
@@cieraalston151 she's perfectly fine lol, she wakes up like nothing happened. We don't know why.
i have the same thing
He seems like a great kid I will be praying for his health
Great 🙏💯
Amen. ☁️🎺👼🙏💒🌹✨
Amen.
Very good kid but why is the mother filming him during a seizure well i guess she gets used to it or is its demonstration of it?
Victor probably for educational purposes
You have a very brave young man who has learned to deal with his seizures in a very smart way
Its heartbreaking to see him just playing and have to deal with the seizures. But then goes right back to what he was doing! He is a true superhero ❤
That’s sad I hope he gets better
i have non epileptic seizures and it’s really uplifting to see how much of a trooper he is
Me too
@@_Bookish_Nymph_me too!
omg me too!!
Same❤
My mother has epiletic seizures
Hi. I used to get seizures as well, and I just wanted to say you doing a good job. Your a great mom and don’t ever forget that ❤
You're* :)
You’re*
indeed i do agree that being calm is very important for them and a low light environment with minimal sounds are very good to prevent its been proven that disco lights in movies and video games can trigger the brain
I used to have them to when I was younger
As an epileptic myself I can confirm it is exactly like this
I'm so sorry for that, it looks absolutely terrifying. That's why it bothers me that the mother exploits her child on the internet. Idk, he should decide rather and right now he is too young for that.
Hi
I pray that the little boy and his doctor find the medication needed to control his seizures. God bless this family. ❤
new talent alert he would win the best worm of the year
@@nobody-yc6ciyou’re a waste of oxygen
He is doing so well! I can see people in public freaking out though, but they just don't understand. I hope he gets better. ❤
Its better if they care. You want people to see a child fall to the ground and shake and brush it off? 💀💀💀
@@povclownyou came off a bit rude
What they mean is yes you worry but ask the childs parent before freaking out
Well my daughter used to have them until she had brain surgery almost 2 years ago. No one ever paid attention or offered to help in public. Its sad most people dont care.
I'm so glad that he has such great parents as you to be able to help him deal with his seizures. I am so glad I got to learn about this today.
imagine growing up and finding out your mom posted videos of ur seizures for the world to see
He will know she is doing it to educate people. It's like how people with autism, tic, ADHD, depression, bpd etc do videos. It's not for attention it's to educate people and it's clearly people like u they are trying to educate
He will know she is doing it to educate people. It's like how people with autism, tic, ADHD, depression, bpd etc do videos. It's not for attention it's to educate people like u who clearly don't understand
another thing is she said he has five to ten a day and in this video there were three which implies that they often are not filmed
She did nothing wrong and actually family and children services will actually recommend recording in case of any injury just fyi
“ educating “ strangers on the internet is not more important than your child’s privacy and safety
Count your blessings with your son. Having only a few seconds is amazing. I can tell you that I've seen my friend shake for minutes. It is truly remarkable that he knows what to do and how to act before and after. Wish you all the best
Your child’s privacy during these moments is more important than content and comments on social media.
Even tho you might be thinking that they said in a video there doctor told them to record these moments to see what’s happening. Don’t always assume.
@@Em81034 recording is different than posting on the internet.
@@MelanieTheSuperHero true
@@MelanieTheSuperHerothey may also be doing it so someone can learn or teach them something. Not everything is posted for likes.
@@snowythealicorn5784 teaching other people is not more important than your child’s privacy during these moments. No one is learning anything, I guarantee it.
Thank you so much for posting this! Not all seizures look the same for everyone living with them. He is one smart kid to know the signs his body gives before having one! Thank you for spreading awareness about what it means to have someone on your family with special needs!
Poor baby
The smiling can be a sign of absent seizures. People often mistake their children as joking because the child with smile or even giggle/laugh during or right after.
I’m so glad he knows how to get through it and deal with it you guys must be such good parents
I'm happy to know he has the support he needs and I hope he gets better.
Your doing good little dude, I along with hopefully many others wish you can enjoy a seizure free and peaceful future. ❤
I agree
I actually have epilepsy to where I have seizure. It’s where I have them at night and they used to think I had it when I was staring off but I also have ADHD and I would just stare off.
Poor buddy I will be praying for him🎀💕
Its nice to see how he is still happy after his seizures end. I hope for him that he will get better
God bless this little guy hope and pray he gets better
One day he will be seizure free, my sister is epileptic but stopped having seizures a few months later, now she hasn’t had one in 4 years and she is doing great! I wish your son the best!
I had the same seizures! I havent had one in 3.5 years! Glad ur sister recovered as well.
Thanks. I have a new friend who is epileptic. This is good information, as my friend is quiet about his illness.
My sister loves working with special needs kids at her school and loves it. I think that both griffin and sawyer are so cute
When I was 6 and a half years old, I had my first seizure, at least the first been seen. I was diagnosed with epilepsy some time later, went to two different neurologists, and continued to take medicine until I was 13. My neuro said I'm fully recovered now. I'm now 17. I had absense seizures too but they were longer than his, but not long enough to give me any sequels, thank God.
The thing that having epilepsy troubled me the most was sleeping. The medicine I took made me so sleepy. Because of this I think I slept in class every sigle day. So It was Very hard for me. I stopped taking medicine in the middle of the year. In the end of It, I was so much better, and was the first year that I could remember that ended without failing any subject.
Sending prayers and good thoughts, so proud of all your kids and what they have accomplished ❤❤❤
I used to have absence seizures when I was in preschool to 2nd grade, but I was never taught to go to the ground in the process. That would have definitely helped me a lot during that time! I know my situation is very different from him, but I know that he can be seizure free ❤
I'll keep this sweet boy in my prayers. -With Love from someone else who has seizures.
I have an almost 2 year old that started having seizures every two-ish hours that was triggered from a febrile (fevered/sick) seizure. They didn’t stop even after the sickness went away and they showed no signs of slowing down. It was like a switch has been pulled and got stuck in the down position. kepra only decreased to about 5 a day. Neurologist solution was to try out other drugs on him or increase the current at the time kepra dose he had. I had connections that suggested I give him an NAD IV(vitamin b3), and also a Meyers cocktail IV(a blend of some essential vitamins). He was to have these treatments every day or so for a few times but after the first treatment they completely stopped and we did finish out the other treatments. If he gets sick we know we can give him NAD pills, the pill version of the NAD IV and it either prevents them all together for that sickness or that bout of seizures is reduced to about 3 for that sickness. He seems to be on the fast track to grow out of the seizures like some of his relatives did with their “normal” febrile seizure and I have the confidence to send him to daycare since I have been able to catch it every time that he may start up again since they were triggered by sickness. His seizures went from every two hours ish , to very few and far between. The NAD treatment for seizures might not be apart of mainstream medicine, but boy is it nice to have his future ahead of him for him to take ahold of and make great.
I love his bug shirt. I hope he finds meds too! I am on oxcarbazipine known as trileptal as well. I have epilepsy I know it's a little different. But I take an anti seizure med and I hope this helps 🙏❤ edit:bug**
Hope this boy recovers fast, stay strong buddy!❤
Thanks for exposing your disabled child to the internet in his most vulnerable state
He is a little sweetheart 💕
It took many years, multiple neurologists, until my sister finally found the right doctor and treatment plan and she has been seizure free for several years. Hopefully your little one can find that doctor one day. It just takes so much time… neurology is so finnicky and finding that doctor that understands the source of the problem is the key to solutions (:
Glad he is improving (:
As someone who has seizures and is epileptic this is really nice to see the awareness. Having it I try not too let me hold me back but it does at times. I “full Brain “ epilepsy so sadly it is rare I will not grow out of it. But Great Parenting.
I have an almost 2 year old that started having seizures every two-ish hours that was triggered from a febrile (fevered/sick) seizure. They didn’t stop even after the sickness went away and they showed no signs of slowing down. It was like a switch has been pulled and got stuck in the down position. kepra only decreased to about 5 a day. Neurologist solution was to try out other drugs on him or increase the current at the time kepra dose he had. I had connections that suggested I give him an NAD IV(vitamin b3), and also a Meyers cocktail IV(a blend of some essential vitamins). He was to have these treatments every day or so for a few times but after the first treatment they completely stopped and we did finish out the other treatments. If he gets sick we know we can give him NAD pills, the pill version of the NAD IV and it either prevents them all together for that sickness or that bout of seizures is reduced to about 3 for that sickness. He seems to be on the fast track to grow out of the seizures like some of his relatives did with their “normal” febrile seizure and I have the confidence to send him to daycare since I have been able to catch it every time that he may start up again since they were triggered by sickness. His seizures went from every two hours ish , to very few and far between. The NAD treatment for seizures might not be apart of mainstream medicine, but boy is it nice to have his future ahead of him for him to take ahold of and make great.
Maybe try this for yourself
I hope your son has a great life ahead of him and I wish him all the best.
Coming from a kid that used to have seizures I feel for him. I’ve had seizures my entire life. I am now seizure free for 40 years now just don’t give up you’ll find a doctor that uses different tactics and just using medication like my doctor I have I am very thankful for him.
Players to you and your beautiful family. ❤ your babies are so blessed to have such wonderful parents
I am so sorry little dude. ❤ I hate that he has to go through this and I hate seeing this as a parent. As one epeliptic with uncontrolled seizures, I hope you guys find the right medication combo that works for him without major side effects! ❤
He is such a smart and brave kid his smile just warms my heart❤❤❤
I have the same problem
i’m proud of him soo much he’s a brave little boy ! ❤
He looks like a really sweet kid I hope the best for him!❤
Yep😔🫡🥹
My son was diagnosed with epilepsy at 13 years old. He had both impaired awareness seizures, which were like he was sleep walking that could last up to 15 minutes and drop/convulsive (tonic clonic) seizures. Through many medication changes and dosage adjustments, he has now been seizure free for 1 year!💜 It is possible; keep praying and never give up hope! 🙏🤞🏻
Your a great mom! If I was a mom and had a son like that, personally it would be a lot for me to handle because of trauma with my dad. Just to let you know I’m proud of you
Praying for your son he is in my prayers
It is awsome he already knows to lay down. I pray yal find a great treatment. ❤
My brother also has severe epilepsy. I’m glad that he knows when and what to do in this case. He probably will have them forever but with the medication needed he will have basically a nice life.
I’m so incredibly proud of both parents ‼️ I watch and marvel at the amount of work & dedication these parents have for their children 💖
He seems so sweet 🥹 good luck with everything ❤️❤️❤️❤️❤️
I have epilepsy and much much more I have lots of different types of seizures every day and mines happen when I'm sick, to happy, sad, mad, anxious, scared, hot and stressed out and when I'm not any of these I still have them I've fallen and hurt my self lots of times but I get back up ever time just like griffin. So even if he does have them for a long time he will get stronger each time he has one because he's EXTREMELY STRONG just like his parents 😊 stay safe and beautiful y'all 🤠❤️
My 9 year old developed epilepsy 2018. It's gotten much worse. His are from brain damage. They will only get worse. He recently hit his head while having a grand mal and it caused him to focal seizure for 18 hours. It was so scary. It's been a hard journey bc my son is nonverbal and lacks communication skills. I'm just learning how many different types and kinds of seizures and my son has way more seizures than I thought. It's the hardest years of my life
I'm so glad your child knows what to do when he feels like he's about to have a seizure. Wishing you and Griffin all the best!
I will pray for him and your family! Hope he gets better!!
My sister will stare up at the sun or roof while her eyes kind of flicker as they try to roll to the back it lasts for about 10 seconds and she will either go back to normal or cry afterwards.
God bless you an your family! ❤
Just glad that hes okay. The sheer persistence within his mind and body shows that he'll grow up to be strong and healthy.
He’s so cute and I also hope one day he is also seizure free❤❤❤❤!!
One thing you guys might look into if the seizures get worse is a seizure dog (or...well any dog! They will teach themselves 9 times out of 10) that will alert him (and/or you and your husband) if he is going to have one. Gives him a chance to lay down for the larger ones and you a chance to make sure he can't accidentally hurt himself.
That could help. But the dog could get distracted. They also have like 6..? Kids I think and 3 of them are special needs. It’s also a lot of money which with the things their kids need, idk how much money they have to afford a service dog or a dog in general. But that could definitely help.
My BC Tess's son, Maxwell Smart, became a service dog to a little girl with CP. He trained himself to predict her seizures, but he had to train his owner so she'd know how to respond to his warning. His mother let me know that I had Diabetes 2 with the sniff test in '95 before my dr. diagnosed it. I wonder if my other BCs might've had this other such abilities if noticed and trained earlier.
Griffin is such a smart boy❤
Poor guy.😢
I hope your family finds a way to help your son be seizure free.❤
It’s sad that this happens to some people, y’all are amazing parents.
Ah yes, amazing parents, that record their kid have a seizure rather than being worried
Hopes he stops but you have to let him know how cute he is ❤
I would be mortified if my mom plastered my disabilities all over the internet when I was a child. Heartbreaking.
Strong kid. Hope for the best, people might not understand but having a family member with epilepsy, you know the true risks, and for a boy his age to actually have the ability to know when to lay down, wow.
He makes my day❤
Peter griffin💀
if you don't mind me asking, why does he have these seizures? i'm not really educated on seizures or angelman syndrome, so i don't know if it's common for people with angelman syndrome to have seizures or if it's for another reason.
You're right, seizures are a trait of angelman syndrome.
@@s.0.d.a. thanks for letting me know! that clears it up.
Bro had the Grimace Shake 💀💀💀
Naw💀
Bro he’s having a seizure they aren’t funny or a joke! I have never had a seizure but they still are horrible
I used to have epilepsy since birth, but I took a lot of those terrible tasting medicine, and it’s been a few years or months and I don’t need them anymore! But I need to be careful when I’m watching something, if there are flashes and it lasts long or fast I might get it but, it’s under control. I hope your son can get medicine that will control his seizures.
I have focal seizures and I have never heard of these type. Hope he is seizure free one day❤
I have an almost 2 year old that started having seizures every two-ish hours that was triggered from a febrile (fevered/sick) seizure. They didn’t stop even after the sickness went away and they showed no signs of slowing down. It was like a switch has been pulled and got stuck in the down position. kepra only decreased to about 5 a day. Neurologist solution was to try out other drugs on him or increase the current at the time kepra dose he had. I had connections that suggested I give him an NAD IV(vitamin b3), and also a Meyers cocktail IV(a blend of some essential vitamins). He was to have these treatments every day or so for a few times but after the first treatment they completely stopped and we did finish out the other treatments. If he gets sick we know we can give him NAD pills, the pill version of the NAD IV and it either prevents them all together for that sickness or that bout of seizures is reduced to about 3 for that sickness. He seems to be on the fast track to grow out of the seizures like some of his relatives did with their “normal” febrile seizure and I have the confidence to send him to daycare since I have been able to catch it every time that he may start up again since they were triggered by sickness. His seizures went from every two hours ish , to very few and far between. The NAD treatment for seizures might not be apart of mainstream medicine, but boy is it nice to have his future ahead of him for him to take ahold of and make great.
I had these as a kid and the Dr prescribed zarontin . I grew out of them When I was 14. I hope you find the answers you want . I'm so glad you are raising awareness.
May God bless this lil man. And hopefully the seizures go away for ever
This reminds me of me of what I went through in middle school .. They called them tremors and I was on all kinds of medication .. Mine happened from Blunt for Trama to my head and laster until after my brain healed .. Im so lucky to finally be able to live life free of them .. I pray your sob will be healed .. as well ..
That kid is so nice I am praying for his health 🙏 I hope you feel better soon I promise you will feel better soon 💓
Such a strong young man, must get his strength from his parents! Bravo to all of you!!! Praying there will soon be a answer!!❤❤❤
I hope his friends and teachers understands this when his at school stay safe:)
If my parents posted me having seizures as an epileptic myself I would be livid
bro some parents allow there kids on the internet and stuff and some people just wants to spread awareness
@@Misszebyrobloxvideos756so posting a video of a autistic child having a meltdown online must be completely fine then I guess
We hope your son is fully recovered:) ❤
I hope for nothing but the best for Griffin, hopefully the seizures stop and he can live a life without having to worry about anything and just an amazingly happy guy!!
As someone who suffers from seizures That’s so sad I’m so sorry 😢
You are such a brave mum and griffin will always remember you helping him from his child hood and I’m really glad he knows what to do hopefully on day he will stop having seizures
Thank you for posting this. As both a parent and a medical field student it is important to know what these can present as for both a parent and a medical personnel. Im sure this isnt an easy thing to post as a parent but i appreciate your openness.
My nephew used to fall backwards when he started with seizures! They started after Scarlet Fever! He eventually grew out of them! He was in the ER several times after being diagnosed and after the third time in one week social services were going to keep him from going home! My sister was all upset! I told her to call his pediatrician. He called the ER and the social worker apologized. Once his meds leveled out he had less seizures! Seizures are scary! He deserves a better, seizure free life! Bless him!
As a person that has epilepsy I pray that he gets through this it’s not a fun thing, but he is a very intelligent kid knowing to lay down when that is about to happen
I have an almost 2 year old that started having seizures every two-ish hours that was triggered from a febrile (fevered/sick) seizure. They didn’t stop even after the sickness went away and they showed no signs of slowing down. It was like a switch has been pulled and got stuck in the down position. kepra only decreased to about 5 a day. Neurologist solution was to try out other drugs on him or increase the current at the time kepra dose he had. I had connections that suggested I give him an NAD IV(vitamin b3), and also a Meyers cocktail IV(a blend of some essential vitamins). He was to have these treatments every day or so for a few times but after the first treatment they completely stopped and we did finish out the other treatments. If he gets sick we know we can give him NAD pills, the pill version of the NAD IV and it either prevents them all together for that sickness or that bout of seizures is reduced to about 3 for that sickness. He seems to be on the fast track to grow out of the seizures like some of his relatives did with their “normal” febrile seizure and I have the confidence to send him to daycare since I have been able to catch it every time that he may start up again since they were triggered by sickness. His seizures went from every two hours ish , to very few and far between. The NAD treatment for seizures might not be apart of mainstream medicine, but boy is it nice to have his future ahead of him for him to take ahold of and make great.
He is a fighter. And you are very lucky that you know what is going on when this happens. I will pray every night for him to be seizure free forever for the rest of his life😊❤
Bless his heart, may God heal this little boy
That’s so sad but you have such a beautiful boy that shouldn’t go through that ❤❤❤❤❤❤❤❤❤ he’s adorable
Aaaw poor guy so scary. MY GRANDSON HAD ONE AND ITS SCARED ME SO BAD. STILL HAVEN'T RECOVERED. I THANK GOD EVERY DAY FOR BLESSING HIM NOT TO HAVE ANYMORE ❤
I'm also diagnosed with apilepce, and I have seiziors too and I pray for your son
He is actually really smart for getting on the ground wish him luck
seizure is a sudden, uncontrolled burst of electrical activity in the brain. It can cause changes in behavior, movements, feelings and levels of consciousness. Having two or more seizures at least 24 hours apart that don't have a known cause is considered to be epilepsy. I didn’t write dis
I used to have seizures just like girrfin and I recovered and I haven't had in years thankfully and as someone who has gone through this I pray for his health and safety
My mother had seizures since she was a kid. When I was a kid, she finally stopped having them
Its glad to see how smart he is with handling them i hope well for him and the rest of you guys😊
Oh my lord the first part had me on a panic attack. I saw him on the floor and water everywhere I thought he collapsed or something ❤️
That’s so fascinating. When I have my absence seizures it’s like I zone out and I’m there physically but not at all mentally.
I’m praying for the both of Griffin! Just wanna let you know. You’re a rock star!
you are all so strong, wishing you the best for you and your beautiful boy
He is such a brave little boy❤ god bless you and your family❤ hope you make it to seisure free❤❤❤
Poor boy, I hope he gets better ❤ you trained him well.
He is a real smart kid because he knows when he’s having one 1.first he drops to the ground 2. He shakes a bit 3.he gose. Back to what he was doing he is a really really really smart kid
Hopefully he will stop having seizures, stay strong. One day you will be fully free