Thank you for your comment! I had HSCT in Moscow, Russia. I had Lemtrada only because I couldn't get HSCT sooner, so definitely go for HSCT rather than Lemtrada if you can!
Thank you very much! Mr Rommell congratulations for having Hsct successfully and not being far from the 1-year mark things will really start to settle in terms of the recovery! My old symptoms, mostly sensory symptoms, don’t concern me too much even though they keep being present more or less even now 18 months after...As long as the MRI stays clear and the old symptoms don’t turn into new ones and turn out to be a relapse, there should be no reason to worry. Chemotherapy alone causes tissue damage to various areas of the body which again can bring some strange sensations/symptoms that can easily be confused with ms symptoms. The time of recovery post Hsct transplant is quite an overwhelming time since the neurological recovery physiologically occurs sometimes bringing up sensations mimicking those of previous sensory relapse of. At 8 months and from that period forward the best you can do for your recovery is to focus on the good possible improvements by trying to ignore any possible reappearing symptoms. Living with MS is nothing but uncertainty about the future, but after Hsct the risk of relapsing has been lowered significantly giving the body the resources and time to heal some of the old damage. It has been and it still is hard to not think about the possibility of relapsing or the present symptoms thought to be old actually to turn out inflammation on a MRI or simply a clinical relapse. Personally, since most of my symptoms have always been mostly sensory it has been very mentally tiring to find reassurance about the actual cause of those symptoms that keep occurring randomly. But over time I have had to stop over analyzing every single sensation and focus on more relevant and positive things that support my recovery and health in general. May I ask if you are currently experiencing worsening of symptoms and what type during your recovery?
How are you doing after all this time? Thank you.
Where did you do it? How are you now 5 months later? Do you recommend it over DMT such as Lemtrada?
Thank you for your comment! I had HSCT in Moscow, Russia. I had Lemtrada only because I couldn't get HSCT sooner, so definitely go for HSCT rather than Lemtrada if you can!
hi I'm 8 months post. how were you at 8 months and did any of your old symptoms get worse after hsct? your look great :-)
Thank you very much! Mr Rommell congratulations for having Hsct successfully and not being far from the 1-year mark things will really start to settle in terms of the recovery! My old symptoms, mostly sensory symptoms, don’t concern me too much even though they keep being present more or less even now 18 months after...As long as the MRI stays clear and the old symptoms don’t turn into new ones and turn out to be a relapse, there should be no reason to worry. Chemotherapy alone causes tissue damage to various areas of the body which again can bring some strange sensations/symptoms that can easily be confused with ms symptoms. The time of recovery post Hsct transplant is quite an overwhelming time since the neurological recovery physiologically occurs sometimes bringing up sensations mimicking those of previous sensory relapse of. At 8 months and from that period forward the best you can do for your recovery is to focus on the good possible improvements by trying to ignore any possible reappearing symptoms. Living with MS is nothing but uncertainty about the future, but after Hsct the risk of relapsing has been lowered significantly giving the body the resources and time to heal some of the old damage. It has been and it still is hard to not think about the possibility of relapsing or the present symptoms thought to be old actually to turn out inflammation on a MRI or simply a clinical relapse. Personally, since most of my symptoms have always been mostly sensory it has been very mentally tiring to find reassurance about the actual cause of those symptoms that keep occurring randomly. But over time I have had to stop over analyzing every single sensation and focus on more relevant and positive things that support my recovery and health in general. May I ask if you are currently experiencing worsening of symptoms and what type during your recovery?